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Welcome to ACT UP!
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We are the AIDS coalition to unleash power.
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A diverse non-partisan group of individuals united in anger
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and committed to direct action to... ...end the AIDS crisis!
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Less than 12 hours from now,
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we are going to be taking over city hall!
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ACT UP, fight back, fight AIDS!
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Yes?
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Mr. mayor, in campaigning for the lesbian and gay vote in an
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election year, a bit of historical context is necessary
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in dealing with the AIDS crisis in New York City.
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It wasn't until 1983 that you met with people to deal with the AIDS crisis.
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- How do you respond to these criticisms? - That is a falsehood.
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Please, anybody who's thinking about being arrested,
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fill out a support sheet, make sure your support person knows
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who you are and what group you're in... yeah?
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If we end up in the tombs, is there like, a queer tank
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there and would you recommend that we ask to be there?
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There is a homo-tank and I've been there and it's
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better than the straight tank, let me tell you.
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Who else? Yes?
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In the past, you've described act up as fascist, yet in the press
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release, you called them "concerned citizens" and I was
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wondering what changed your mind?
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Well, I don't think you can't use both.
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Fascists can be concerned citizens and I don't believe
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they are fascists, I think they have used a fascist tactic.
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Let us celebrate together tonight, the end of the last day
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on which Ed Koch can tell himself that the communities
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which are being decimated by this epidemic are so weak and
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so divided among themselves, that he can keep serving us this kind of bullshit.
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Tomorrow morning he will begin to learn the truth!
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ACT UP, stand tall, tomorrow morning at city hall!
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ACT UP, stand tall,
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tomorrow morning at city hall!
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ACT UP, stand tall,
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tomorrow morning at city hall!
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ACT UP, stand tall...
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We're talking to Jim Eigo from the treatment issues committee of ACT UP.
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Jim, what specific treatment issues are being
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brought into this demonstration this week?
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The municipal hospitals are totally falling apart.
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More than half of the people that get diagnosed with AIDS
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today get diagnosed in the emergency rooms of our city.
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You're going to find yourself waiting four days in an
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emergency room before you get a bed.
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Pretty scared, but being
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HIV-positive, I don't have much choice in the matter.
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I just love all these people, and I think what we're doing is
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really right and I mean, listen to this and look at all the people.
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It's just really wonderful and it's worth putting yourself on the line for.
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...there is no accurate diagnosis.
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There are incentives in the city hospitals not to diagnose people
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with AIDS and therefore, people don't get treated.
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We are angry at the way this city has handled this crisis
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and we demand that ed Koch exert leadership and declare a state of emergency.
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Go in the street now or wait, those are the options.
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- One, he says go. - Go now.
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Says now, three.
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Tom?
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Go now, Tom says.
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We're standing here with Larry Kramer.
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What is ACT UP trying to say today to Ed Koch?
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We're sending a message to public officials, to closeted
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public officials, that we won't be shat on anymore and obviously
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all the AIDS issues.
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I would love to see like, more cameras or
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something, you know, for our own protection.
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Did everyone hear his concern?
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People die every day, friends get sick every day.
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It's like being in the trenches.
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There's such anger in the community and it is coalescing
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in a way that has never been done before.
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Okay, which way do we face girlfriends, this way or that way?
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Healthcare is a right, healthcare is a right!
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Healthcare is a right, healthcare is a right!
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Healthcare is a right, healthcare is a right!
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Pump up the budget!
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Healthcare is a right, healthcare is a right!
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You are currently in violation of law by obstructing
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vehicular pedestrian traffic.
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You have the option of leaving at this time, otherwise...
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ACT UP!
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Fight back!
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Fight AIDS!
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ACT UP!
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Fight back, fight AIDS!
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I guess I'm feeling pretty helpless at the moment.
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I think like, the biggest question that I'm facing
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now is how to remain hopeful in
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the face of increasing loss.
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I don't know, maybe it sounds really corny but I...
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As difficult as the time is for
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us... I like being alive.
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And I love my friends and I love my family.
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I love the people around me.
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I'm going to die from this.
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This isn't going to be cured for years and years and years.
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Doctor's office.
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Hi, it's Peter Staley.
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...it's like living in a war,
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all around me, friends are dropping dead and you're scared
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for your own life, all at the same time.
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I was diagnosed with AIDS-related complex while I was
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working as a bond trader on wall street.
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I had night sweats.
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I began to get dry, patchy, scaly, itchy skin on my face.
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And I would get sick constantly.
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Colds would lay me up for weeks.
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I started to look around in desperation for ways that I
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could find treatments to help
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save my life... um... And there was nothing coming out
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of our government's efforts, I quickly realized.
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Everything I read said I had about two years to live, at most.
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- What do we want? - A cure!
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- When do we want it? - Now!
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- What do we want? - A cure!
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- When do we want it? - Now!
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- What do we want? - A cure!
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- When do we want it? - Now!
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I was on my way to work and I got handed a flyer about act up and AIDS.
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My mentor says, "if you ask me,
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I think they all deserve to die because they took it up the butt."
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I was deeply closeted and I had to just stew about it for the rest of the day.
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I got myself to the very next ACT UP meeting.
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They could just tap into that immediate anger and get stuff done.
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...we will not leave until an administrator meets with us
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and tells us that St. Vincent's is willing to make a public
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statement condemning gay and lesbian violence.
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All those in favor?
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All those opposed?
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They're coming!
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You see them right there.
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You've heard about ACT UP.
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You've seen our flyers.
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The kiss-in happens tonight.
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ACT UP!
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Fight back!
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Make love!
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ACT UP!
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Whoo, whoo!
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I'll deal with the cameras.
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Are you the security guard that was beating people up?
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Members of the mainstream media were thrown out, as we
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were earlier on, but Steve Zabel
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and I came back in and we're bringing you this exclusive footage.
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Don't destroy property!
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You're destroying property.
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Well, actually you damaged some human property last week.
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You damaged people.
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You will not beat up on faggots and you will not beat up
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on lesbians in hospitals in our own community.
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Two gay women were beaten up and when her lover came to
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respond... you know the story.
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And another story was when two gay guys came in, one was sick
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with AIDS, the security guard told him to get the fuck out of
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here and called him "faggot."
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I think if you're gonna work, especially in Greenwich village,
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you should have some sensitivity training, 'cause we're not gonna have it.
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I'm willing to meet with three people if the rest of you leave.
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Okay, one at a time, one at a time.
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It's unclear how to play it.
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My own instinct would be to say, "we'll be glad to meet with you,
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and when the meeting's over, we'll leave."
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Not to leave before the meeting takes place.
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Gregg.
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We've shown the kind of power we can have by immediate action,
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by sticking together, by reaching a consensus together.
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We should take this in steps and we should be cool-headed.
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I'm going to take a straw poll, Okay?
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...and we agreed to leave the waiting room while he met with
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three of our representatives:
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Gregg, Jerry and Neil, in that public space right there.
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And then we would stick around out here and wait to see what the outcome was.
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So I said, "enough of this, this job is gonna kill me."
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So, I went on disability and
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decided to become a full-time AIDS activist.
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In the beginning, what drugs did we have?
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We had nothing.
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And the pneumonia could come
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on like that, and be gone and that person is dead.
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The skin lesions, the Kaposi's sarcoma was... people would be
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coming in with a purple spot.
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Everybody was coming in with, "what is this spot?
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What is that spot?"
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You'd have some guys come in with k.S. On their face and
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they'd be putting makeup on their face and they'd be...
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It was... and they were lucky if
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it just stayed in the skin.
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If it didn't go into their lungs, and then if it went into
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their lungs, chemo didn't work and then they were gone.
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You were grasping at straws for everything because these are
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young, vibrant people.
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And all of a sudden they're being snatched.
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I think everything has to be put in perspective.
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Larry?
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Iris long is lifesaving.
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If you can't hear in the back and you want to, just shout it out, please.
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This is a report from the American society of microbiology,
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a conference I went to at the end of may.
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Quiet!
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There were many infections talked about, including AIDS
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at this conference, and it was
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overwhelming to know how many pathogens, bacteria, fungus,
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protozoas and viruses there are
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out there that can really make
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you very sick...
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One day this woman just showed up, this housewife who had been a scientist and
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still was, and said, "you guys don't know diddly about what this is.
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And anybody who wants to learn about the system, how it works,
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how grants are made, how the science works, how everything
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works, how the N.I.H. Works, how the F.D.A. Works, how you
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can deal with all this enormous amount of material, I'll teach you."
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There should be much more funding than there is for infectious diseases.
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Iris was not gay, but
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she could not see, with what was going on around her and what
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she knew, not reaching out to the affected communities of AIDS.
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I waited and went up to iris afterwards and said,
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"I'm interested in what you were saying, I'd like to know more,
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I'd like to help."
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And a few people joined her,
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and that became a bigger and bigger group and that became the
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treatment and data committee:
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T & D.
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They're still getting a hell of a lot more money than
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actually getting those treatments in... ...it was kind of a dorky
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activity for a bunch of east village hipsters and artists to sit around reading
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medical journal articles.
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We called it science club, like it was chess club or something.
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There aren't drugs.
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Individual after individual had to come to grips
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with the fact that "I will survive the longest, the most I
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know about what I'm putting into my body."
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So they all had to be become scientists, to some degree.
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And what I'd like everyone to do is to keep on thinking of
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ways to refine these things to make them more clear to people
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that don't necessarily know the issues.
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Like, 'o. I.', no one knows what 'o. I.' Is... Okay, so I wrote it
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here, just 'cause it's shorthand.
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Only 17% of people in their trials have been taking drugs
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for opportunistic infections or cancers...
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00:16:50,009 --> 00:16:52,553
Mark wasn't like the big, beefcakey guy.
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He was super smart, smoked nonstop.
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Right away, Mark digested, as by osmosis,
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everything.
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And within a few weeks, he had come up with a glossary of AIDS
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treatment terms and we started giving it out in our meetings.
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Next we have an announcement by Tom Dwayne regarding housing.
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This is Bernard Braverman, who's in danger of being evicted
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from his apartment that he shared with his life partner for many, many years.
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His life partner died and the landlord wants Bernard out of
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his home, because his name was not on the lease.
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What's his landlord's address?
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There are cards here to fill out to write to the governor.
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Let's make sure our voices are heard in New York City
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to save the homes of p.W.A.S and other non-traditional families.
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Thank you.
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I just want to say something about what's just happened.
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I've realized we haven't done anything yet for him and we
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haven't been effective and we haven't been powerful.
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But we will be.
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It's very inspiring to know that the power in this room is
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potentially available to each and every one of us.
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One, two, three.
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Good?
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How's it?
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Is that as good as daddy's or better?
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You're better.
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Yay!
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Would you like daddy to try it?
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Are you ready?
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That's not very good.
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One, two, three.
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I know this sounds ironic, considering that it ended in divorce, but I think it
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is fair to say it is the only really successful love affair of my life.
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I came out at age 40.
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It was very bad timing to come out in the middle of an epidemic.
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The question is what does a decent society do with people
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who hurt themselves because they're human, who smoke too
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much, who eat too much, who drive carelessly, who don't have safe sex?
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I think the answer is that a decent society does not put
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people out to pasture and let them die because they've done a human thing.
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For the first time today, the government approved
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prescription sales of a drug to treat AIDS.
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The drug, A.Z.T., is not a cure for the disease, but it has
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prolonged the lives of some AIDS victims.
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It's the only government-approved AIDS drug in America.
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But even this most promising of drugs is a source of frustration and anger.
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At $10,000 a year cost per
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patient, it's prohibitively expensive for most and not widely available.
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Out of the bars and into the streets!
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Out of the bars and into the streets!
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A.Z.T. Was the most expensive drug in history;
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They charge $10,000 a year.
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00:20:16,415 --> 00:20:20,263
We need to get a substantial price reduction out of this company.
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00:20:20,953 --> 00:20:23,465
The incident began at 10 this morning when four AIDS
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activists took over an office at Burroughs Wellcome, saying they
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had enough food and water to stay holed up for a long time.
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The activists are demanding that Burroughs Wellcome lower its price of A.Z.T.
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Burroughs Wellcome is profiting off of our lives,
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that's why we did today what we did.
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And, if they don't see to, start
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listening to my community, to our community, the AIDS
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community, then we're gonna be back.
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00:21:34,394 --> 00:21:37,232
One of the worst, worst things was when people
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died in the hospital, they used to put them in black trash bags.
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00:21:45,638 --> 00:21:46,338
It was...
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00:21:49,308 --> 00:21:50,669
It was really awful.
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00:21:52,412 --> 00:21:56,623
And not every funeral parlor would take patients who had died
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of AIDS.
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But so the least we could
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offer is sympathy and moral
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support, you know, and kindness,
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and so forth.
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And that they deserved, in any case.
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And when even that became denied, you know, by the
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totalitarian rules of organizations, of institutions,
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it was really horrifying.
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It is the most frightening medical mystery of our times.
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AIDS victims must deal with the trauma of being both a patient and a pariah.
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00:22:33,787 --> 00:22:35,828
I hate to use the word "gay"
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in connection with sodomy.
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00:22:40,359 --> 00:22:43,735
There's nothing gay about these people, engaging in incredibly
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00:22:44,463 --> 00:22:49,031
offensive and revolting conduct that has led to the proliferation of AIDS.
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00:22:49,803 --> 00:22:51,572
There is a feeling among
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00:22:52,605 --> 00:22:54,578
members of any of a number of
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00:22:55,141 --> 00:22:58,684
professions or just the general population, that patients with
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00:22:59,746 --> 00:23:03,395
AIDS, many of whom are homosexual, are a little bit different.
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00:23:03,450 --> 00:23:06,988
I think that that has led to a little bit of a complacency
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00:23:07,354 --> 00:23:10,472
about the approach towards this disease.
331
00:23:12,057 --> 00:23:13,901
In the absence of adequate health care, we have learned to
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00:23:13,926 --> 00:23:18,934
become our own clinicians, researchers, lobbyists, drug smugglers, pharmacists.
333
00:23:18,964 --> 00:23:22,577
We have our own libraries, newspapers, drug stores, and laboratories.
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00:23:22,602 --> 00:23:26,648
Some of the medications that were made available were not effective.
335
00:23:26,673 --> 00:23:29,050
They were in this category that we called "what the hell" drugs,
336
00:23:29,075 --> 00:23:31,586
which is there's some evidence it could be useful,
337
00:23:31,611 --> 00:23:34,321
it's unlikely to be harmful... what the hell.
338
00:23:34,346 --> 00:23:35,434
Should I type?
339
00:23:38,151 --> 00:23:39,031
Yes, type.
340
00:23:42,721 --> 00:23:43,741
Take your time.
341
00:23:44,324 --> 00:23:45,208
Where are we?
342
00:23:45,325 --> 00:23:49,436
We're at the people with AIDS health group, the largest underground buyers'
343
00:23:49,461 --> 00:23:51,230
club in the United States.
344
00:23:52,499 --> 00:23:53,875
And what do you do here?
345
00:23:53,900 --> 00:23:57,603
We help people import drugs from other countries, um,
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00:23:58,104 --> 00:23:59,414
that are unapproved here.
347
00:23:59,439 --> 00:24:03,614
Peptide T, albendazole, oral amphotericin b, um, we have a
348
00:24:04,210 --> 00:24:07,245
whole variety of things for your treatment pleasure.
349
00:24:09,582 --> 00:24:11,691
None of which work, by the way.
350
00:24:11,718 --> 00:24:12,534
Put that in.
351
00:24:14,086 --> 00:24:17,698
People with AIDS, what they were mostly thinking about was
352
00:24:17,723 --> 00:24:19,873
"oh, drugs, how do I get it off-market?
353
00:24:20,559 --> 00:24:24,039
How do I... will we ever get a black market for this drug?
354
00:24:24,064 --> 00:24:25,807
I hear this is good and..."
355
00:24:25,832 --> 00:24:27,809
It was iris who helped us see:
356
00:24:27,834 --> 00:24:30,011
We don't want a... black market,
357
00:24:31,770 --> 00:24:33,506
we want to make the real market work.
358
00:24:35,909 --> 00:24:36,609
Try it.
359
00:24:48,988 --> 00:24:51,511
Hi, I'm Mark Harrington from ACT UP New York.
360
00:24:52,125 --> 00:24:55,671
Recently, a lot of activists have been asking why ACT UP is going...
361
00:24:56,563 --> 00:24:59,506
Uh, you've got to start over, I've gotta do that... I've gotta do that over.
362
00:24:59,531 --> 00:25:01,009
You can just start yourself over.
363
00:25:01,034 --> 00:25:03,511
But I did - but I won't get that wonderful cigarette-lighting thing.
364
00:25:03,536 --> 00:25:05,580
I think the cigarette maybe is not going to work.
365
00:25:05,605 --> 00:25:07,125
I shouldn't use the cigarette at all?
366
00:25:07,507 --> 00:25:08,207
Really?
367
00:25:08,240 --> 00:25:10,776
I don't think so, it's too, um... too much.
368
00:25:11,111 --> 00:25:11,859
Too much?
369
00:25:16,348 --> 00:25:18,838
Hi, I'm Mark Harrington from ACT UP New York.
370
00:25:19,419 --> 00:25:22,635
A lot of people have been asking why are AIDS activists going to the F.D.A.?
371
00:25:23,123 --> 00:25:25,332
First of all, you have to understand that the F.D.A. Is
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00:25:25,357 --> 00:25:27,635
one of the many federal AIDS bureaucracies which we're angry
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00:25:27,660 --> 00:25:29,971
with for not doing enough in the fight against AIDS.
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00:25:29,996 --> 00:25:31,638
Half the people who take A.Z.T.
375
00:25:31,663 --> 00:25:33,774
Can't take it 'cause of side effects, and therefore,
376
00:25:33,799 --> 00:25:37,411
the F.D.A. Has to take a more activist stance in the experimental process.
377
00:25:37,436 --> 00:25:40,648
And only the F.D.A. Has the power under existing laws and
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00:25:40,673 --> 00:25:44,478
regulations to release the drugs that we want released now.
379
00:25:44,844 --> 00:25:45,592
How's that?
380
00:25:47,846 --> 00:25:48,546
Chanting group approaches:
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00:25:48,548 --> 00:25:49,924
A.Z.T. Is not enough!
382
00:25:49,949 --> 00:25:51,854
Give us all the other stuff!
383
00:25:51,951 --> 00:25:53,380
A.Z.T. Is not enough!
384
00:25:53,987 --> 00:25:55,892
Give us all the other stuff!
385
00:25:55,922 --> 00:25:57,351
A.Z.T. Is not enough!
386
00:25:57,923 --> 00:25:59,734
Give us all the other stuff!
387
00:25:59,759 --> 00:26:01,324
It takes nine months to
388
00:26:01,794 --> 00:26:05,961
test a drug in Europe... in Belgium, in France, in Germany, in england.
389
00:26:06,132 --> 00:26:10,476
We are not asking the F.D.A. To release dangerous drugs without
390
00:26:10,970 --> 00:26:12,263
safety or efficacy.
391
00:26:13,006 --> 00:26:15,115
We are simply asking the F.D.A.
392
00:26:15,909 --> 00:26:17,065
To do it quicker.
393
00:26:17,876 --> 00:26:18,896
Drugs for sale!
394
00:26:19,211 --> 00:26:20,231
Drugs for sale!
395
00:26:20,846 --> 00:26:22,322
Dextran sulfate for sale.
396
00:26:22,347 --> 00:26:23,524
Get your dextran here.
397
00:26:23,549 --> 00:26:25,182
You can't get it inside.
398
00:26:27,854 --> 00:26:29,767
...f. D.A., but we're selling it anyway.
399
00:26:30,123 --> 00:26:31,892
$30 for dextran sulfate!
400
00:26:33,660 --> 00:26:35,074
Release the drugs now!
401
00:26:35,627 --> 00:26:37,124
Release the drugs now!
402
00:26:37,763 --> 00:26:39,260
Release the drugs now!
403
00:26:40,299 --> 00:26:42,204
...get to work, get to work!
404
00:26:42,535 --> 00:26:44,236
Get to work, get to work!
405
00:26:44,671 --> 00:26:46,440
...guilty, guilty, guilty!
406
00:26:46,806 --> 00:26:48,371
Guilty, guilty, guilty!
407
00:26:48,907 --> 00:26:50,472
Guilty, guilty, guilty!
408
00:26:51,778 --> 00:26:53,888
...seize control, seize control!
409
00:26:53,913 --> 00:26:55,886
Seize control, seize control!
410
00:26:56,715 --> 00:26:57,415
Keep it moving!
411
00:26:57,416 --> 00:26:58,436
Keep it moving!
412
00:26:58,884 --> 00:26:59,827
Seize control!
413
00:26:59,852 --> 00:27:01,961
Seize control, seize control...
414
00:27:02,689 --> 00:27:03,564
Fight AIDS!
415
00:27:03,589 --> 00:27:04,289
ACT UP!
416
00:27:04,390 --> 00:27:05,056
Fight back!
417
00:27:05,057 --> 00:27:05,805
Fight AIDS!
418
00:27:10,096 --> 00:27:11,048
Seize control!
419
00:27:11,730 --> 00:27:13,174
Seize control, seize control!
420
00:27:13,199 --> 00:27:14,151
Seize control,
421
00:27:15,067 --> 00:27:17,040
seize control, seize control!
422
00:27:22,342 --> 00:27:23,430
Seize control!
423
00:27:46,798 --> 00:27:50,511
Tell us why you got arrested, where are they taking you, what's going on today?
424
00:27:50,536 --> 00:27:52,364
We don't know what's... where they're taking us.
425
00:27:52,372 --> 00:27:54,782
We're here because this government has the resources
426
00:27:54,807 --> 00:27:58,057
to deal with the AIDS epidemic, and they won't do it unless we force them.
427
00:27:58,111 --> 00:28:00,288
I.J. Hutchins reports live from Rockville,
428
00:28:00,313 --> 00:28:03,157
where the massive protest is wrapping up... I.J.?
429
00:28:03,182 --> 00:28:05,994
Well, Jim, it's being billed as one of Montgomery county's biggest
430
00:28:06,019 --> 00:28:08,529
demonstrations in recent history and it went off smoothly.
431
00:28:08,554 --> 00:28:10,595
185 arrests, as a coalition of
432
00:28:10,990 --> 00:28:14,419
gay groups came to Rockville to shut down the F.D.A.
433
00:28:17,663 --> 00:28:21,321
Tonight, from Washington, crossfire, against all odds.
434
00:28:21,800 --> 00:28:23,433
On the left, Tom Braden.
435
00:28:23,702 --> 00:28:25,539
On the right, pat Buchanan.
436
00:28:25,904 --> 00:28:30,531
In the crossfire, Peter Staley of the New York AIDS coalition to unleash power.
437
00:28:30,843 --> 00:28:34,315
Peter Staley, you have the AIDS virus, and I am sorry.
438
00:28:36,449 --> 00:28:38,354
But don't you think that the
439
00:28:38,617 --> 00:28:42,595
federal drug administration has a responsibility not to let
440
00:28:43,955 --> 00:28:46,132
people, such as you, have quacks
441
00:28:48,060 --> 00:28:51,593
that could cause even more harm than you already have?
442
00:28:52,131 --> 00:28:55,738
The problem is, is that the F.D.A. Is using the same
443
00:28:56,402 --> 00:28:58,375
process to test a nasal spray
444
00:28:59,338 --> 00:29:02,408
as it is to test AIDS drugs, and it's a 7-10 year process.
445
00:29:02,674 --> 00:29:03,917
You have the F.D.A.
446
00:29:03,942 --> 00:29:05,166
Giving you a drug.
447
00:29:05,678 --> 00:29:07,379
So far, you've got A.Z.T.
448
00:29:07,846 --> 00:29:11,024
Why... - which I can't take because it's too... far too toxic
449
00:29:11,049 --> 00:29:13,427
and over half the people that have HIV can't take.
450
00:29:13,452 --> 00:29:15,289
Okay, but the F.D.A. Says
451
00:29:16,154 --> 00:29:20,935
there is nothing else that is worth anything.
452
00:29:20,960 --> 00:29:23,937
Mr. Staley, this is gonna astonish you, but I agree with you a hundred percent.
453
00:29:23,962 --> 00:29:26,240
I think if someone's got AIDS and someone wants to take a
454
00:29:26,265 --> 00:29:29,776
drug, it's their life and if it gives them hope, you ought to be able to take it.
455
00:29:29,801 --> 00:29:32,813
What I want to ask you is whether you know of anything
456
00:29:32,838 --> 00:29:35,817
that you think might be some kind of miraculous cure that
457
00:29:35,842 --> 00:29:37,420
you think they're sitting on at F.D.A.
458
00:29:38,044 --> 00:29:41,289
There are over 140 drugs out there that the F.D.A. Has
459
00:29:41,314 --> 00:29:43,219
identified as possibilities,
460
00:29:44,182 --> 00:29:47,094
and are in some stage of being looked at right now.
461
00:29:47,119 --> 00:29:48,129
Why are they holding back?
462
00:29:48,154 --> 00:29:52,031
Among that 140, there's gotta be one or a combination thereof
463
00:29:52,325 --> 00:29:56,428
that can, that can slow down this virus or halt it in its tracks.
464
00:29:56,662 --> 00:29:59,240
You're just simply carrying the virus, is that correct?
465
00:29:59,265 --> 00:30:03,555
I have a few very minor symptoms and my immune system is virtually shot.
466
00:30:03,836 --> 00:30:04,957
What would you like to take?
467
00:30:04,971 --> 00:30:08,247
I would like to be able to take dextran sulfate... legally.
468
00:30:08,340 --> 00:30:09,183
How would that hurt you?
469
00:30:09,208 --> 00:30:10,656
...on the underground right now.
470
00:30:10,843 --> 00:30:12,285
Well, why not, Mr. Braden?
471
00:30:12,310 --> 00:30:15,490
Because... well, I don't know anything about dextran sulfate.
472
00:30:15,515 --> 00:30:16,323
Well, I'll tell you this:
473
00:30:16,348 --> 00:30:19,694
It's an over-the-counter drug in Japan and has been for 20 years.
474
00:30:19,852 --> 00:30:21,689
But - over-the-counter.
475
00:30:21,854 --> 00:30:24,732
But if the F.D.A. Says... I'm only asking that they
476
00:30:24,757 --> 00:30:29,516
be released after there's a minimal amount of efficacy, not a 100% test.
477
00:30:30,962 --> 00:30:34,299
You've got the pink triangle on your shirt, silence equals death.
478
00:30:34,467 --> 00:30:36,216
I gather that means you're a homosexual.
479
00:30:36,602 --> 00:30:38,745
- Yes. - Looking in the camera, what would you tell some
480
00:30:38,770 --> 00:30:41,880
kid, say you had a younger brother, 21 years old, who also
481
00:30:42,541 --> 00:30:44,718
might have homosexual tendencies, what would you tell
482
00:30:44,743 --> 00:30:46,721
him if you wanted him to live a long life?
483
00:30:46,746 --> 00:30:51,581
Use a condom, and also to use a lubricant, by the way, that has the medicine...
484
00:30:52,452 --> 00:30:54,094
this is Russian roulette.
485
00:30:54,119 --> 00:30:55,862
It is not Russian roulette.
486
00:30:55,887 --> 00:30:58,733
It is Russian roulette to not give people this information
487
00:30:58,758 --> 00:31:00,802
when human nature dictates that they're gonna
488
00:31:00,828 --> 00:31:02,669
go out there, and they're gonna have sex.
489
00:31:02,694 --> 00:31:04,906
- You mean celibacy is impossible? - It's just not gonna work.
490
00:31:04,931 --> 00:31:08,045
People aren't gonna do it, and lots, lots of people are gonna die.
491
00:31:08,099 --> 00:31:10,208
Now would you rather have a lot
492
00:31:10,903 --> 00:31:13,380
of people cheating on their celibacy with thousands of
493
00:31:13,405 --> 00:31:17,027
people dying, or would you rather save those lives and let them have sex?
494
00:31:17,309 --> 00:31:19,920
I think that, uh... Well, thank you very much,
495
00:31:19,945 --> 00:31:21,555
Peter Staley, thanks for being in our studio.
496
00:31:21,580 --> 00:31:23,730
Mr. Braden and I will be back in in a minute.
497
00:31:27,452 --> 00:31:30,996
One of the things we wanted was a drug that you gave
498
00:31:31,257 --> 00:31:34,930
to people who had cytomegalovirus and advanced
499
00:31:35,694 --> 00:31:39,896
AIDS, because people who had both tended to go blind.
500
00:31:41,133 --> 00:31:42,630
It was called d.H.P.G.
501
00:32:13,164 --> 00:32:16,577
In a way similar to A.Z.T., it was highly toxic, but it was
502
00:32:16,602 --> 00:32:20,344
known to be effective because 6,000 people had already used
503
00:32:21,106 --> 00:32:23,962
the drug, but never in a clinical trial.
504
00:32:25,344 --> 00:32:26,500
Hey, hey, F.D.A.!
505
00:32:27,279 --> 00:32:29,161
How many people did you kill today?
506
00:32:29,815 --> 00:32:32,459
We are with Jim Eigo from ACT UP, and there's a major
507
00:32:32,484 --> 00:32:35,628
protest going on here in Bethesda over the drug d.H.P.G.
508
00:32:35,820 --> 00:32:36,964
Tell us what's happening.
509
00:32:36,989 --> 00:32:40,264
Well, this is the second meeting of the bush commission
510
00:32:40,425 --> 00:32:44,472
for reviewing procedures for approving AIDS and cancer drugs.
511
00:32:44,497 --> 00:32:46,198
And we thought, since the
512
00:32:46,699 --> 00:32:50,267
non-approval of d.H.P.G. Is such a perfect example of how
513
00:32:50,702 --> 00:32:53,414
regulation has gone wrong, we'd bring it home to the
514
00:32:53,439 --> 00:32:57,023
commission itself by showing up here in force, and that's what we've done.
515
00:32:57,309 --> 00:33:00,454
Okay, also inside at the hearing itself, and I understand
516
00:33:00,479 --> 00:33:03,291
there's gonna be an action in just a little while when Ellen Cooper speaks.
517
00:33:03,316 --> 00:33:04,264
I guess so.
518
00:33:09,055 --> 00:33:10,298
What about d.H.P.G.?
519
00:33:10,323 --> 00:33:11,684
What about d.H.P.G.?
520
00:33:13,659 --> 00:33:16,868
Without the objective data, we feel that we would indeed be
521
00:33:17,797 --> 00:33:19,770
on, on treacherous grounds in
522
00:33:21,166 --> 00:33:24,311
defending that decision, and in fact would be wide open to the
523
00:33:24,336 --> 00:33:26,626
charge of arbitrary decision-making.
524
00:33:27,239 --> 00:33:29,008
Although, uh, we certainly
525
00:33:29,342 --> 00:33:31,091
wouldn't be be accused of being inflexible.
526
00:33:31,210 --> 00:33:34,378
You did it with A.Z.T., I don't see why you can't do it with...
527
00:33:34,846 --> 00:33:37,925
I mean, I have to say that the difference in the data
528
00:33:37,950 --> 00:33:39,991
between A.Z.T. And d.H.P.G. Is
529
00:33:40,553 --> 00:33:44,682
the difference between night and day, as far as... Sight and blindness.
530
00:33:45,090 --> 00:33:46,655
You're just as blind...
531
00:33:48,794 --> 00:33:52,758
...since this meeting's started, and four more are gonna die before it's over.
532
00:33:52,798 --> 00:33:54,074
Who represents the patient on this panel?
533
00:33:54,099 --> 00:33:56,462
Where is the person of color on this panel?
534
00:33:56,769 --> 00:33:58,334
F.D.A. Relooks at the
535
00:33:59,704 --> 00:34:01,813
d.H.P.G. Data and suddenly, oh!
536
00:34:02,240 --> 00:34:03,533
Agrees with ACT UP.
537
00:34:05,443 --> 00:34:06,599
Ready for a vote?
538
00:34:07,847 --> 00:34:09,888
All in favor, raise your hand.
539
00:34:11,951 --> 00:34:12,699
One, two...
540
00:34:13,753 --> 00:34:15,250
Well, that's everyone.
541
00:34:19,291 --> 00:34:21,601
It was really an amazing encounter, but it sort
542
00:34:21,626 --> 00:34:24,270
of felt like reaching, uh, the wizard of oz, like,
543
00:34:24,295 --> 00:34:26,906
you've got to the center of the whole, of the whole system,
544
00:34:26,931 --> 00:34:29,143
and there's just this schmuck behind a curtain.
545
00:34:29,168 --> 00:34:31,946
There was no guiding agenda, there was no leadership,
546
00:34:31,971 --> 00:34:35,451
there was no global strategy for how to deal with AIDS in the U.S.
547
00:34:36,608 --> 00:34:40,018
And so, on the bus back from Bethesda, we decided to write a
548
00:34:40,346 --> 00:34:43,123
treatment agenda, because nobody was dealing with the entire map
549
00:34:43,148 --> 00:34:45,259
of AIDS, the entire constellation of opportunistic
550
00:34:45,284 --> 00:34:48,261
infections, the gaps in research, the underrepresented
551
00:34:48,286 --> 00:34:51,398
populations, the fact that the diseases and the drugs might
552
00:34:51,423 --> 00:34:52,744
be different in those populations.
553
00:34:52,757 --> 00:34:55,936
- How would we ever find out? - They weren't even being studied.
554
00:34:57,697 --> 00:34:59,194
??In the dark of night
555
00:35:00,833 --> 00:35:02,398
I laid myself to rest ??
556 00:35:07,106 --> 00:35:09,147 ??step out of the strange... ??
557 00:35:10,775 --> 00:35:12,358 - Bye, Ron! - Bye, Bobby!
556
00:35:15,547 --> 00:35:17,458
Come on Catherine, let's go. It's time to go.
557
00:35:17,483 --> 00:35:18,183
Yeah.
558
00:35:21,820 --> 00:35:22,520
??Again ??
561 00:35:24,322 --> 00:35:25,615 ??come to life... ??
562 00:35:28,027 --> 00:35:29,388 ...knows no borders!
559
00:35:29,461 --> 00:35:30,549
The AIDS crisis!
560
00:35:31,130 --> 00:35:32,286
Knows no borders!
561
00:35:32,697 --> 00:35:33,785
The AIDS crisis!
562
00:35:34,233 --> 00:35:35,389
Knows no borders!
563
00:35:35,668 --> 00:35:36,756
The AIDS crisis!
564
00:35:37,235 --> 00:35:38,391
Knows no borders!
565
00:35:38,771 --> 00:35:39,859
The AIDS crisis!
566
00:35:40,472 --> 00:35:41,628
Knows no borders!
567
00:35:41,840 --> 00:35:42,928
The AIDS crisis!
568
00:35:43,541 --> 00:35:44,697
Knows no borders!
569
00:35:45,677 --> 00:35:48,355
I'd just like to say that the reasons I can't get any
570
00:35:48,380 --> 00:35:51,792
of these drugs is 'cause for nine years now, the leadership
571
00:35:51,817 --> 00:35:55,693
in this country has failed to come up with a plan of action.
572
00:35:55,820 --> 00:35:58,961
They've failed to come up with a plan of research, a national
573
00:35:59,791 --> 00:36:00,879
research agenda.
574
00:36:01,427 --> 00:36:05,441
People with AIDS and their advocates have finally done this for them.
575
00:36:05,731 --> 00:36:06,479
This is it.
576
00:36:07,500 --> 00:36:09,249
This is the plan we're presenting.
577
00:36:09,534 --> 00:36:12,413
We need our government to read this plan, we need them to work
578
00:36:12,438 --> 00:36:16,217
with us, if they want to change it a little, we'll talk to them.
579
00:36:16,242 --> 00:36:19,085
But I want them to adopt it, I want them to get started
580
00:36:19,110 --> 00:36:21,941
on it, I want them to save our lives. Thank you.
581
00:36:23,148 --> 00:36:27,360
I snuck around and grabbed, uh, grabbed one of those copies,
582
00:36:27,385 --> 00:36:29,290
and it was very interesting.
583
00:36:29,355 --> 00:36:31,397
We believe that the united states has a global
584
00:36:31,422 --> 00:36:34,668
responsibility to quickly develop effective treatments,
585
00:36:34,693 --> 00:36:37,772
not only for HIV infection itself, but for all of the
586
00:36:37,797 --> 00:36:40,107
opportunistic infections, which actually cause suffering and
587
00:36:40,132 --> 00:36:42,076
death in people living with AIDS.
588
00:36:42,101 --> 00:36:46,471
This is not a new agenda, and it is not an agenda of only ACT UP.
589
00:36:46,672 --> 00:36:48,181
Scientists agree with this.
590
00:36:48,206 --> 00:36:49,635
Why can't we have it?
591
00:36:49,809 --> 00:36:52,052
The researchers and regulators are going to have to
592
00:36:52,077 --> 00:36:55,855
come up with a parallel release program that will get drugs to
593
00:36:55,880 --> 00:36:59,493
the people who need it before the five years down the pipe
594
00:36:59,518 --> 00:37:01,466
where they may be approved by the F.D.A.
595
00:37:01,786 --> 00:37:04,827
I was scribbling madly in this copy of their,
596
00:37:04,856 --> 00:37:07,567
their AIDS treatment research agenda... I would go back and
597
00:37:07,592 --> 00:37:09,633
forth between saying, "no, no!
598
00:37:09,829 --> 00:37:11,538
They, they don't understand!"
599
00:37:11,563 --> 00:37:15,233
To saying, "whoa, you mean this isn't the way we're doing trials?
600
00:37:15,400 --> 00:37:18,362
You mean people aren't allowed to do this or that?"
601
00:37:18,469 --> 00:37:21,845
But I have to tell you that I was still not ready to sort of
602
00:37:22,173 --> 00:37:24,456
go up to them and try, try and engage.
603
00:37:24,976 --> 00:37:28,221
I brought this copy back and I distributed it to a small group
604
00:37:28,246 --> 00:37:33,060
of statisticians that was meeting regularly to talk about trial design issues.
605
00:37:33,085 --> 00:37:36,426
The people sitting around that table got as excited as I did.
606
00:37:36,922 --> 00:37:39,685
This had clearly been written by people who were very
607
00:37:40,559 --> 00:37:44,635
knowledgeable, very, very intelligent, and really wanted
608
00:37:45,364 --> 00:37:47,174
to do the trials the best possible way.
609
00:37:47,199 --> 00:37:48,576
They were not against trials.
610
00:37:48,601 --> 00:37:50,978
They wanted to get the right answers, but they wanted what
611
00:37:51,003 --> 00:37:52,772
they called humane trials.
612
00:37:52,938 --> 00:37:56,713
It all came together in Montreal, but what was new for
613
00:37:57,009 --> 00:38:00,661
ACT UP... we went to a drug company.
614
00:38:01,079 --> 00:38:03,623
There is renewed hope for people infected with AIDS.
615
00:38:03,648 --> 00:38:07,527
A new experimental drug, D.D.I., will be distributed on a limited
616
00:38:07,552 --> 00:38:11,898
basis for free this fall by its developer, the giant Bristol-Myers company.
617
00:38:11,923 --> 00:38:15,101
This marks the first time an anti-AIDS drug will be available
618
00:38:15,126 --> 00:38:17,240
even before safety testing is finished.
619
00:38:17,795 --> 00:38:20,975
Full A.Z.T. Treatment is too much for patient Peter Staley.
620
00:38:21,000 --> 00:38:24,612
For nine months, he's been limited to a quarter-dose of the drug, and wants D.D.I.
621
00:38:24,637 --> 00:38:25,913
As soon as possible.
622
00:38:25,938 --> 00:38:28,047
Do you need D.D.I. To live, do you think?
623
00:38:28,072 --> 00:38:29,977
Yes, I need, I need D.D.I.
624
00:38:30,442 --> 00:38:33,176
I probably need some other anti-virals beyond that.
625
00:38:33,679 --> 00:38:37,485
It is historic, it is because the AIDS activist community
626
00:38:37,782 --> 00:38:39,347
has obtained this drug.
627
00:38:39,717 --> 00:38:43,163
It is not the government, no one has given it to us, we have
628
00:38:43,188 --> 00:38:46,089
fought for it, and for the first time, we have won.
629
00:38:47,226 --> 00:38:50,471
So, by '89, less than a year after our F.D.A. Demo, they had
630
00:38:50,496 --> 00:38:53,507
approved a drug to prevent blindness in people with AIDS.
631
00:38:53,532 --> 00:38:56,941
And we had gotten expanded access to D.D.I., and that was
632
00:38:57,101 --> 00:38:58,734
a very powerful feeling.
633
00:38:58,871 --> 00:39:02,148
We felt like we were taking direct action and we were helping make
634
00:39:02,173 --> 00:39:03,670
people's lives better.
635
00:39:07,346 --> 00:39:10,583
I wasn't sure that A.Z.T. Or D.D.I. Were all that great,
636
00:39:10,648 --> 00:39:12,860
but we were beginning to get letters from people that said,
637
00:39:12,885 --> 00:39:15,094
"thank you for saving my eyesight, " " thank you, ACT UP,
638
00:39:15,119 --> 00:39:17,063
for getting me access to D.D.I.
639
00:39:17,088 --> 00:39:19,061
And helping to save my life."
640
00:39:25,898 --> 00:39:29,337
At Merck, HIV was an important scientific target.
641
00:39:31,570 --> 00:39:33,407
HIV, of course, is a virus.
642
00:39:33,938 --> 00:39:37,782
In order for the virus to infect an uninfected cell, it needs to
643
00:39:38,911 --> 00:39:41,346
construct itself in a particular way.
644
00:39:42,380 --> 00:39:46,459
First, the viral RNA needs to transform itself into a DNA copy
645
00:39:47,485 --> 00:39:52,475
in order to knit itself into the nuclear DNA of the newly infected cell.
646
00:39:52,858 --> 00:39:56,290
This occurs by a process called reverse transcription.
647
00:39:56,527 --> 00:40:01,671
- A.Z.T. And D.D.I. Were both - Originally developed to try to
648
00:40:02,067 --> 00:40:05,233
inhibit that process of establishing infection.
649
00:40:05,737 --> 00:40:08,982
A number of other researchers began to focus on another
650
00:40:09,007 --> 00:40:13,122
portion of the viral life cycle, after the cell is already infected.
651
00:40:13,478 --> 00:40:17,353
One of the steps that it takes is that is... it makes a viral
652
00:40:18,483 --> 00:40:23,554
protein, it has to snip that viral protein in very specific places.
653
00:40:24,023 --> 00:40:29,012
The resulting pieces self-assemble to make the viral particle.
654
00:40:29,561 --> 00:40:32,139
And what does the snipping, and what in fact controls
655
00:40:32,164 --> 00:40:36,027
the snipping is a viral protein called the protease.
656
00:40:36,335 --> 00:40:40,047
If you genetically modify the viral protease so that it can no
657
00:40:40,072 --> 00:40:43,512
longer snip, the virus no longer has the ability to make those
658
00:40:43,675 --> 00:40:45,786
component pieces that it needs to make in order to
659
00:40:45,811 --> 00:40:49,015
self-assemble, and make an infectious viral particle.
660
00:40:50,449 --> 00:40:53,082
We solved the structure of HIV protease in 1989,
661
00:40:54,485 --> 00:40:56,662
and published it pretty quickly.
662
00:40:56,889 --> 00:41:00,100
I think, I think we saw the structure and within a few weeks
663
00:41:00,125 --> 00:41:01,435
it was in the literature.
664
00:41:01,460 --> 00:41:03,636
And then the question became "all right, can we prove it?"
665
00:41:03,661 --> 00:41:06,739
Can we prove it that that is in fact the case, and most
666
00:41:06,764 --> 00:41:10,572
importantly, can we prove that if you inhibit that protease,
667
00:41:10,869 --> 00:41:14,276
if you knock out its activity, that the virus can no longer
668
00:41:14,472 --> 00:41:18,152
replicate, and therefore make new progeny viral particles that
669
00:41:18,177 --> 00:41:20,878
would then go on and establish a new cycle of infection.
670
00:41:27,686 --> 00:41:29,596
AIDS is now the leading cause of death for men
671
00:41:29,621 --> 00:41:32,989
under 44 in New York and a half-dozen other cities,
672
00:41:33,257 --> 00:41:35,880
surpassing homicide and all other diseases.
673
00:41:35,927 --> 00:41:38,772
Yet Roman catholic bishops are meeting this week to publicly
674
00:41:38,797 --> 00:41:42,061
oppose the use of condoms as morally unacceptable.
675
00:41:42,733 --> 00:41:46,471
This puts them in direct opposition to U.S. public health policy.
676
00:41:48,474 --> 00:41:51,250
The new church position condemns not only the
677
00:41:51,275 --> 00:41:55,010
immorality of condoms, but their effectiveness, as well.
678
00:41:55,114 --> 00:41:58,826
The draft under consideration in Baltimore this week says it is
679
00:41:58,851 --> 00:42:03,027
quote, "a virtual certainty that reliance on condoms will result
680
00:42:03,188 --> 00:42:04,889
in transmission of AIDS."
681
00:42:05,490 --> 00:42:08,902
Of the bishop's proposed new policy, New York City health
682
00:42:08,927 --> 00:42:10,728
commissioner Stephen Joseph says...
683
00:42:11,195 --> 00:42:13,175
This would be a public health disaster.
684
00:42:13,498 --> 00:42:16,909
It would undoubtedly lead to more transmission, particularly
685
00:42:16,934 --> 00:42:21,081
in high-risk areas of the city, more disease and more death.
686
00:42:21,106 --> 00:42:25,185
Catholic conservatives say not just physical death but spiritual
687
00:42:25,210 --> 00:42:26,775
death is at issue here.
688
00:42:27,146 --> 00:42:30,790
As New York City's archbishop, John cardinal O'Connor put it...
689
00:42:30,815 --> 00:42:34,428
The use of prophylactics is immoral in a pluralistic society
690
00:42:35,253 --> 00:42:36,682
or any other society.
691
00:42:38,422 --> 00:42:42,002
I think that's it except, of course, we have Ann Northrop
692
00:42:42,027 --> 00:42:44,204
giving her sound bite technique.
693
00:42:53,304 --> 00:42:55,413
Uh, we want everybody to join
694
00:42:56,574 --> 00:42:58,547
us, to support us, to destroy
695
00:42:59,545 --> 00:43:02,616
the power of the catholic church, to make our side the
696
00:43:03,014 --> 00:43:04,851
strong one, and to do that,
697
00:43:05,384 --> 00:43:09,061
we must put out the message that we are the ones who are
698
00:43:09,086 --> 00:43:13,594
fighting for people's lives, and they are the murderers.
699
00:43:14,293 --> 00:43:16,266
Don't be afraid of the media.
700
00:43:16,762 --> 00:43:19,982
You're talking through them to the public.
701
00:43:20,199 --> 00:43:23,622
We are trying to arouse, to anger an action.
702
00:43:25,369 --> 00:43:30,200
And hone it down to, yes, a three-second bite, a five-second bite,
703
00:43:31,043 --> 00:43:35,154
just a phrase that will have an impact, that will say something
704
00:43:35,179 --> 00:43:38,568
specific and that will be understandable.
705
00:43:39,885 --> 00:43:40,585
So...
706
00:43:50,394 --> 00:43:52,163
I don't have a, uh, phrase
707
00:43:52,563 --> 00:43:55,826
worked out, and, uh, so you're all gonna have to create your
708
00:43:55,833 --> 00:43:57,738
own, so this is empowerment.
709
00:44:02,940 --> 00:44:03,640
ACT UP!
710
00:44:04,742 --> 00:44:05,442
ACT UP!
711
00:44:08,914 --> 00:44:09,730
??Answer me,
712
00:44:10,681 --> 00:44:11,565
sweet Jesus ??
717 00:44:12,717 --> 00:44:14,214 ??won't you help me? ??
718 00:44:16,822 --> 00:44:18,732 Please, you're interfering with us, step back.
713
00:44:18,757 --> 00:44:19,900
This is Jesus Christ.
714
00:44:19,925 --> 00:44:22,587
I'm in front of St. Patrick's cathedral on Sunday.
715
00:44:23,161 --> 00:44:26,906
We're here reporting on a major AIDS activist and abortion-rights activist
716
00:44:26,931 --> 00:44:30,310
demonstration, which will be taking place here all morning.
717
00:44:30,335 --> 00:44:32,240
Inside, cardinal O'Connor is
718
00:44:32,938 --> 00:44:37,332
busy spreading his lies and rumors about the position of lesbians and gays.
719
00:44:37,675 --> 00:44:40,319
We're here to say we want to go to heaven, too.
720
00:44:57,996 --> 00:45:01,074
J.C. Here with the fire and brimstone network, and we'd like
721
00:45:01,099 --> 00:45:05,524
to ask you a little bit about this large vision that you've visited upon us.
722
00:45:05,637 --> 00:45:07,480
Well, we've decided to rename the cardinal.
723
00:45:07,505 --> 00:45:09,342
He's now cardinal O'Condom.
724
00:45:09,740 --> 00:45:13,050
This is our message to him that condoms are safe, it's no sin.
725
00:45:42,474 --> 00:45:43,562
Stop killing us!
726
00:45:44,041 --> 00:45:45,129
Stop killing us!
727
00:45:46,143 --> 00:45:47,231
Stop killing us!
728
00:45:47,913 --> 00:45:49,690
We're not gonna take it anymore!
729
00:45:50,014 --> 00:45:51,238
You're killing us!
730
00:45:51,516 --> 00:45:52,216
Stop it!
731
00:45:52,818 --> 00:45:53,518
Stop it!
732
00:45:54,152 --> 00:45:54,852
Stop it!
733
00:45:55,454 --> 00:45:56,154
Stop it!
734
00:45:56,722 --> 00:45:57,878
Stop it, stop it!
735
00:45:59,358 --> 00:46:00,058
Stop it!
736
00:46:02,626 --> 00:46:04,310
How many more have to die?
737
00:46:04,596 --> 00:46:06,365
How many more have to die?
738
00:46:06,664 --> 00:46:08,705
Saving lives is morally right!
739
00:46:09,434 --> 00:46:10,522
Those protesting
740
00:46:10,969 --> 00:46:14,104
believe that the protests will result in some change of
741
00:46:16,173 --> 00:46:18,934
environment, some change of attitudes, perhaps.
742
00:46:19,777 --> 00:46:23,754
The church will be teaching that homosexual activity is sinful,
743
00:46:24,516 --> 00:46:25,859
until the end of time.
744
00:46:25,884 --> 00:46:27,108
That won't change.
745
00:46:33,190 --> 00:46:34,826
This is July 22nd, 1989.
746
00:46:36,027 --> 00:46:39,029
Now Sara, what do you think about your dad being 44?
747
00:46:39,797 --> 00:46:40,497
Good.
748
00:46:42,000 --> 00:46:43,810
Thank you, thank you for your support.
749
00:46:43,835 --> 00:46:44,923
One, two, three.
750
00:46:48,739 --> 00:46:50,520
Yay... We did it.
751
00:46:53,244 --> 00:46:54,221
A lot of smoke.
752
00:46:54,246 --> 00:46:54,946
Oh, boy.
753
00:46:55,112 --> 00:46:56,790
I wish those candles would stop smoking.
754
00:46:56,815 --> 00:46:58,324
It's bad for their health.
755
00:46:58,349 --> 00:46:59,092
That's right.
756
00:46:59,117 --> 00:47:02,027
Okay, Robert Rafsky, do you have any remarks before you jump off
757
00:47:02,052 --> 00:47:03,163
the edge of the porch?
758
00:47:03,188 --> 00:47:05,799
I have no interest in jumping off the edge of the porch.
759
00:47:05,824 --> 00:47:06,799
I will jump up and down.
760
00:47:06,824 --> 00:47:08,534
I think 44 is a very fine age.
761
00:47:08,559 --> 00:47:11,999
It has a nice symmetry to it, it has a nice feeling to it.
762
00:47:12,030 --> 00:47:15,330
It's, uh, better than 22 and possibly better than 88.
763
00:47:15,467 --> 00:47:16,167
We'll see.
764
00:47:17,936 --> 00:47:19,545
Here's how we planned this.
765
00:47:19,570 --> 00:47:23,784
What we want to do is run this like a treatment and data meeting.
766
00:47:24,309 --> 00:47:27,052
A number of times we've had people come to a treatment and
767
00:47:27,077 --> 00:47:28,778
data meeting and speak on
768
00:47:29,648 --> 00:47:30,656
certain issues.
769
00:47:30,681 --> 00:47:33,719
We try to get in depth, we try to nail issues down.
770
00:47:34,351 --> 00:47:36,096
This isn't a free-for-all.
771
00:47:36,121 --> 00:47:38,040
Let's call it a working confrontation.
772
00:47:38,956 --> 00:47:40,521
So, why don't we start?
773
00:47:40,992 --> 00:47:42,761
This is Dr. Anthony Fauci.
774
00:47:43,661 --> 00:47:44,409
Bob Rafsky.
775
00:47:44,795 --> 00:47:48,638
I may be wrong, Dr. Fauci, but it's my understanding that
776
00:47:49,733 --> 00:47:53,743
thousands of people died from pneumonia because there was no
777
00:47:53,771 --> 00:47:56,650
priority within the government, or within the medical system
778
00:47:56,675 --> 00:47:58,648
as a whole, to push the known
779
00:47:59,878 --> 00:48:01,792
preventative treatments for a long time.
780
00:48:02,047 --> 00:48:04,894
Now those thousands of people are dead.
781
00:48:05,182 --> 00:48:08,661
It would seem to me that someone who was within the government
782
00:48:08,686 --> 00:48:12,522
while that took place, as you were, must have on their
783
00:48:12,990 --> 00:48:14,623
conscience these deaths.
784
00:48:15,327 --> 00:48:17,232
That is a tough one, um...
785
00:48:18,063 --> 00:48:19,219
No, it really is.
786
00:48:19,364 --> 00:48:22,875
It's inexcusable that an academic priority should ever,
787
00:48:22,900 --> 00:48:26,145
ever come before the health of the people that you're working
788
00:48:26,170 --> 00:48:27,581
with, there's no question about that.
789
00:48:27,606 --> 00:48:31,817
But the reality of the situation is there was a great reluctance
790
00:48:34,112 --> 00:48:35,609
among the community of
791
00:48:37,215 --> 00:48:41,061
everything from the scientists to the congress saying that what
792
00:48:41,585 --> 00:48:43,286
we should be doing is not
793
00:48:44,456 --> 00:48:48,433
telling investigators what to do, but we should allow them to
794
00:48:49,059 --> 00:48:51,371
do what they feel is the most important.
795
00:48:51,396 --> 00:48:54,940
Now that sounds awful when you're putting it in the context
796
00:48:54,965 --> 00:48:59,212
of what we're talking about here, but the whole world isn't in this room.
797
00:48:59,237 --> 00:49:01,121
Every 12 minutes someone dies!
798
00:49:01,373 --> 00:49:03,414
Protests won me a Nobel prize!
799
00:49:03,541 --> 00:49:05,728
Every 12 minutes, someone dies...
800
00:49:08,313 --> 00:49:12,416
AIDS activists stormed the government's premiere disease research center.
801
00:49:12,583 --> 00:49:16,206
The national institutes of health is where an AIDS cure might be found.
802
00:49:16,487 --> 00:49:19,465
It is where therapies are being tested in clinical trials.
803
00:49:19,490 --> 00:49:21,104
No more secret meetings!
804
00:49:21,559 --> 00:49:24,904
No more secret... Demonstrators blocked access to buildings.
805
00:49:24,929 --> 00:49:28,987
Scientists and administrators reporting to work stood around looking confused.
806
00:49:29,568 --> 00:49:33,712
Activists charged the bush administration with foot-dragging on AIDS research.
807
00:49:33,938 --> 00:49:37,016
It's not the amount of federal money allocated to it so much as
808
00:49:37,041 --> 00:49:38,985
how research priorities are defined.
809
00:49:39,010 --> 00:49:42,149
We need new drugs to keep people alive, but the NIH is
810
00:49:42,213 --> 00:49:44,657
only testing old drugs, drugs that we already have.
811
00:49:44,682 --> 00:49:46,326
Can you tell us what you're doing?
812
00:49:46,351 --> 00:49:49,482
Hi, I'm Jim Jenson and I'm in a clinical trial here.
813
00:49:49,554 --> 00:49:54,042
And right now, I'm observing and participating in the ACT UP demonstration.
814
00:49:54,092 --> 00:49:56,235
Why? Why do you support this action?
815
00:49:56,260 --> 00:49:58,247
Because we need far more AIDS research.
816
00:49:58,630 --> 00:49:59,772
And we're just beginning.
817
00:49:59,797 --> 00:50:01,206
What trial are you in?
818
00:50:01,231 --> 00:50:03,967
I'm in interleukin-2 A.Z.T. Combination study.
819
00:50:04,702 --> 00:50:06,346
Are there any women in your trial?
820
00:50:06,371 --> 00:50:07,771
No, there aren't any women at all.
821
00:50:08,072 --> 00:50:09,160
People of color?
822
00:50:09,239 --> 00:50:10,650
Uh, no, there are not.
823
00:50:10,675 --> 00:50:12,053
Why do you think that is?
824
00:50:12,344 --> 00:50:14,898
Just the beginning of the problem.
825
00:50:15,512 --> 00:50:16,180
Murder, murder!
826
00:50:16,181 --> 00:50:18,629
There are three major things that control stupidity,
827
00:50:19,985 --> 00:50:21,550
incompetence and greed.
828
00:50:21,920 --> 00:50:24,264
Those are the three major driving forces behind what's
829
00:50:24,289 --> 00:50:26,799
going on here and why there are no treatments out there for
830
00:50:26,824 --> 00:50:29,001
people living with this disease.
831
00:50:29,226 --> 00:50:32,438
In that building down that way, Dr. Anthony Fauci is deciding
832
00:50:32,463 --> 00:50:34,333
the research priorities for the national
833
00:50:34,359 --> 00:50:36,476
institutes of allergy and infectious diseases.
834
00:50:36,501 --> 00:50:38,744
We're down here 'cause we think we should be deciding the
835
00:50:38,769 --> 00:50:40,947
research priorities, because these are the people who know
836
00:50:40,972 --> 00:50:43,741
what's going on 'cause they're dealing with it every day.
837
00:50:53,050 --> 00:50:54,701
The whole world is watching!
838
00:50:54,818 --> 00:50:56,723
The whole world is watching!
839
00:50:56,820 --> 00:50:59,766
The whole world is watching!
840
00:50:59,791 --> 00:51:02,601
The whole world is watching... The whole world is watching!
841
00:51:02,626 --> 00:51:04,531
The whole world is watching!
842
00:51:04,663 --> 00:51:06,568
The whole world is watching!
843
00:51:06,630 --> 00:51:08,671
The whole world is watching...
844
00:51:40,097 --> 00:51:42,070
If anything, the mood after
845
00:51:42,333 --> 00:51:45,444
the n.I.H. Was even bleaker than the mood before, because we had
846
00:51:45,469 --> 00:51:48,748
no indication that they were gonna change or respond to our
847
00:51:48,773 --> 00:51:52,118
demands, and we had in fact had a meeting with them in Bethesda
848
00:51:52,143 --> 00:51:54,654
after the n.I.H. Action that indicated that there was total
849
00:51:54,679 --> 00:51:57,424
resistance to putting people from the community on the
850
00:51:57,449 --> 00:52:00,226
research committees, to letting the ACT UP observers attend
851
00:52:00,251 --> 00:52:03,830
the meetings, and to open up the meetings so that they weren't secret anymore.
852
00:52:03,855 --> 00:52:05,732
Why should science be shrouded in secrecy?
853
00:52:05,757 --> 00:52:08,467
It's supposed to be based on a free exchange of ideas.
854
00:52:08,492 --> 00:52:10,533
And, so, it was very important
855
00:52:10,795 --> 00:52:14,074
to stage in San Francisco before, again, the global
856
00:52:14,099 --> 00:52:16,842
community of scientists and people working on AIDS, why we
857
00:52:16,867 --> 00:52:20,746
had been at the n.I.H., why the U.S. system wasn't working out,
858
00:52:20,771 --> 00:52:24,417
and to reach the people directly that we had reached symbolically
859
00:52:24,442 --> 00:52:26,211
through the n.I.H. Action.
860
00:52:40,724 --> 00:52:42,752
About a hundred protesters have already been arrested at
861
00:52:42,760 --> 00:52:46,281
the international AIDS conference that began today in San Francisco.
862
00:52:46,431 --> 00:52:49,442
Hundreds more are angrily protesting a government policy
863
00:52:49,467 --> 00:52:53,434
they say neglects research and ostracizes victims.
864
00:52:53,838 --> 00:52:56,415
Why don't you do an informational slide first?
865
00:52:56,440 --> 00:53:00,743
"United States has the most discriminatory immigration policies regarding HIV."
866
00:53:00,945 --> 00:53:05,090
I could say, you know, as a way to bridge the, uh, the rift
867
00:53:06,384 --> 00:53:08,862
between the scientific community... all of you...
868
00:53:08,887 --> 00:53:11,989
and the activists, we'd like you to join in some activism.
869
00:53:12,456 --> 00:53:15,168
...and I've always been painfully aware that in order
870
00:53:15,193 --> 00:53:19,038
for me to beat this virus and live, I will need a great
871
00:53:19,063 --> 00:53:21,036
deal of help from all of you.
872
00:53:22,733 --> 00:53:26,751
Can we all, before it's too late, begin to understand each other?
873
00:53:28,039 --> 00:53:32,136
Will we realize that we share similar motivations?
874
00:53:33,143 --> 00:53:36,322
During the upcoming days, act up New York will be handing
875
00:53:36,347 --> 00:53:39,793
out our AIDS treatment agenda, which includes a list of
876
00:53:39,818 --> 00:53:43,897
99 drugs that we believe could be ready for small phase-one
877
00:53:43,922 --> 00:53:45,691
studies this year or next.
878
00:53:48,259 --> 00:53:53,108
However, from your side, we're being constantly told to butt out.
879
00:53:54,532 --> 00:53:56,573
On my side, the level of anger
880
00:53:57,335 --> 00:54:01,212
and frustration is reaching such a point that attitudes claiming
881
00:54:01,873 --> 00:54:06,825
that all of you are uncaring and in it for greed are now widespread.
882
00:54:08,679 --> 00:54:11,950
While at times we may offend you, remember as well that
883
00:54:12,684 --> 00:54:14,725
like you, ACT UP has succeeded
884
00:54:15,420 --> 00:54:19,471
in prolonging the lives of thousands of people living with HIV disease.
885
00:54:24,762 --> 00:54:29,552
I would like to be joined in front of the stage by my fellow AIDS activists.
886
00:54:30,300 --> 00:54:31,797
Would you all come up?
887
00:54:32,503 --> 00:54:34,680
At this moment, there are others
888
00:54:35,606 --> 00:54:39,518
just like us who are trying to get into this conference but are
889
00:54:39,543 --> 00:54:42,777
being barred by the Billy clubs of San Francisco police.
890
00:54:43,847 --> 00:54:46,558
And there are still others like us who are trying to get through
891
00:54:46,583 --> 00:54:50,094
customs at the San Francisco airport, but are being detained
892
00:54:50,121 --> 00:54:52,094
instead because they are gay.
893
00:54:52,923 --> 00:54:55,830
There's a man that could have prevented these absurdities.
894
00:54:55,960 --> 00:55:00,164
This man has said that he would like to see a kinder, gentler nation.
895
00:55:00,931 --> 00:55:03,208
If you believe that the immigration policy barring
896
00:55:03,233 --> 00:55:06,112
people living with HIV disease from entering this country is
897
00:55:06,137 --> 00:55:10,180
useless as a health policy and discriminatory as well, please
898
00:55:10,240 --> 00:55:12,281
stand now and remain standing.
899
00:55:16,581 --> 00:55:19,672
Join us in vocalizing our collective anger.
900
00:55:19,951 --> 00:55:24,181
Join us in a chant against the man who could bring down the I.N.S. Barriers.
901
00:55:24,255 --> 00:55:27,967
Join us in a chant against the man who has decided to show his
902
00:55:27,992 --> 00:55:31,567
commitment to fighting AIDS by refusing to be here today.
903
00:55:31,829 --> 00:55:35,632
Instead, he is at this very moment in north Carolina,
904
00:55:36,000 --> 00:55:39,811
attending a fundraiser for the homophobic author of the I.N.S.
905
00:55:39,836 --> 00:55:43,338
Barriers, that pig in the senate known as Jesse helms...
906
00:55:44,641 --> 00:55:46,138
Join us in this chant:
907
00:55:46,311 --> 00:55:49,434
300,000 dead from AIDS, where is George?
908
00:55:50,213 --> 00:55:53,612
300,000 dead from AIDS, where is George?
909
00:55:54,552 --> 00:55:57,941
300,000 dead from AIDS, where is George?
910
00:55:58,623 --> 00:56:02,013
300,000 dead from AIDS, where is George?
911
00:56:03,293 --> 00:56:06,501
You can all now consider yourselves members of ACT UP.
912
00:56:15,172 --> 00:56:17,282
One of the things that happened in San Francisco was
913
00:56:17,307 --> 00:56:20,612
that we found out we had won some of our n.I.H. Demands.
914
00:56:21,311 --> 00:56:24,056
Fauci came up to me and said, "we had a meeting, we decided
915
00:56:24,081 --> 00:56:26,259
that we're gonna put you guys on all the committees, and we're
916
00:56:26,284 --> 00:56:28,094
gonna let your observers go to the meetings, and the meetings
917
00:56:28,119 --> 00:56:29,561
won't be secret anymore."
918
00:56:29,586 --> 00:56:35,728
Never again... could any of this be done without taking
919
00:56:37,228 --> 00:56:40,402
people with AIDS and their advocates into consideration.
920
00:56:40,998 --> 00:56:45,984
This would be public business from now on.
921
00:56:46,404 --> 00:56:49,275
You know, we should all be going through the bushes
922
00:56:49,340 --> 00:56:51,155
like this, like sticking our heads up...
923
00:56:52,809 --> 00:56:54,619
...it was beginning to feel a little different because we'd
924
00:56:54,644 --> 00:56:57,255
spent all the time up until then being on the outside, sort of
925
00:56:57,280 --> 00:57:00,159
beating on the doors and trying to get in, and now they actually
926
00:57:00,184 --> 00:57:01,851
wanted to hear what we had to say.
927
00:57:18,802 --> 00:57:20,843
We brought them in at Merck.
928
00:57:21,204 --> 00:57:24,449
We made... we made a very, uh, specific effort to bring those
929
00:57:24,474 --> 00:57:27,548
individuals in so that they would see what it is that we
930
00:57:27,577 --> 00:57:29,697
were doing... or trying to do from the very beginning.
931
00:57:29,713 --> 00:57:33,092
This was really fantastic stuff because we were sitting
932
00:57:33,117 --> 00:57:35,226
down with them, and... sometimes
933
00:57:35,820 --> 00:57:39,297
from the very earliest stages of development of a drug...
934
00:57:39,322 --> 00:57:44,015
and helping them plot out their strategy toward, uh, designing clinical trials.
935
00:57:44,327 --> 00:57:46,806
The chemists who had worked on the project, a bunch...
936
00:57:46,831 --> 00:57:50,176
uh, couple chemists said, "let's look at all the aspartic
937
00:57:50,201 --> 00:57:52,645
protease inhibitors that we have on the shelf."
938
00:57:52,670 --> 00:57:56,961
And they tested 'em and they found a few molecules that actually worked.
939
00:57:57,007 --> 00:57:59,988
The challenge was is now you had these molecules that were really
940
00:58:00,010 --> 00:58:04,686
good inhibitors in your assay, which is just in a test tube.
941
00:58:04,782 --> 00:58:07,326
When you put it into animals they just would never work
942
00:58:07,351 --> 00:58:09,472
or they would never get absorbed by your system.
943
00:58:09,719 --> 00:58:11,864
And I remember being very disappointed 'cause I had to
944
00:58:11,889 --> 00:58:14,433
share this information with sort of my own personal view,
945
00:58:14,458 --> 00:58:17,103
this is gonna be a lot more difficult than,
946
00:58:17,128 --> 00:58:18,682
you know, we thought it was gonna be
947
00:58:18,708 --> 00:58:20,572
originally, and in fact may not be possible.
948
00:58:20,597 --> 00:58:24,716
And Bill Bahlman said, "take a break, pick yourself up and go back at it."
949
00:58:25,068 --> 00:58:28,147
If he and his colleagues and his friends around the table can
950
00:58:28,172 --> 00:58:31,217
take that attitude and do that, I remember saying to myself,
951
00:58:31,242 --> 00:58:34,252
"Emilio, you've got no right to say to yourself, 'I don't know
952
00:58:34,277 --> 00:58:36,318
if I can do this, ' all right?"
953
00:58:36,347 --> 00:58:37,912
And... so, off we went.
954
00:58:39,050 --> 00:58:40,683
And we kept going at it.
955
00:58:41,318 --> 00:58:44,486
We're spending $4 billion a year on AIDS research.
956
00:58:44,822 --> 00:58:47,467
When you consider that on a per-capita basis for... compared
957
00:58:47,492 --> 00:58:50,770
to heart disease or cancer, it's an awful lot.
958
00:58:50,795 --> 00:58:54,007
Almost nothing stops George Bush from a round of golf.
959
00:58:54,297 --> 00:58:57,043
He's played nearly every day... and sometimes twice a day...
960
00:58:57,068 --> 00:58:58,905
during his August vacation.
961
00:59:02,039 --> 00:59:05,031
??I'll be glad when you're dead, you rascal, you ??
968 00:59:05,143 --> 00:59:06,163 ??rascal, you ??
969 00:59:06,277 --> 00:59:07,219 ??I'll be laughin'
962
00:59:07,244 --> 00:59:09,191
when you're in your grave, you dog ??
971 00:59:09,380 --> 00:59:10,264 ??dirty dog ??
972 00:59:10,681 --> 00:59:12,391 ??when you're dead and in your grave ??
973 00:59:12,416 --> 00:59:14,493 ??no more ravioli will you crave... ??
974 00:59:14,518 --> 00:59:17,130 If the message is research, I would say please
963
00:59:17,155 --> 00:59:20,565
talk to Dr. Fauci and others at the national institute of health
964
00:59:20,590 --> 00:59:25,054
who would tell you that, uh, we're doing pretty well in funding of research.
965
00:59:25,829 --> 00:59:26,917
??..dirty dog ??
978 00:59:26,998 --> 00:59:29,342 ??I invite you to my house for a meal ??
979 00:59:29,367 --> 00:59:31,661 ??all my meatballs you tried to steal ??
980 00:59:31,936 --> 00:59:33,977 ??mm... you're a devil, yeah ??
981 00:59:50,188 --> 00:59:54,497 We've got to factor in the sensitivity of those of us
966
00:59:58,029 --> 01:00:02,003
who feel that there's a spiritual and moral aspect to
967
01:00:03,833 --> 01:00:08,290
this playing to the homosexual, lesbian crowd.
968
01:00:09,472 --> 01:00:11,859
It makes it different from anything else.
969
01:00:13,277 --> 01:00:13,977
Oh, shh-.
970
01:00:14,077 --> 01:00:16,849
I wish they'd shut their mouths and go to work
971
01:00:16,981 --> 01:00:20,092
and keep their private matters to themselves and get their
972
01:00:20,117 --> 01:00:22,228
mentality out of their crotches.
973
01:00:22,253 --> 01:00:23,795
I'm here today because Jesse helms is the devil.
974
01:00:23,820 --> 01:00:27,465
Jesse helms has worked for years to do as much as he possibly can
975
01:00:27,490 --> 01:00:29,444
to ensure the continuance of the AIDS epidemic.
976
01:00:29,626 --> 01:00:33,505
The disease is spreading because of him, and people are dying because of him.
977
01:00:33,530 --> 01:00:36,808
This is an educational effort, it's not a violation of people's property rights.
978
01:00:36,833 --> 01:00:39,744
We've been very careful that absolutely no damage is done,
979
01:00:39,769 --> 01:00:43,292
and if any damage is done, whatever it is, we'll be happy to pay for it.
980
01:00:43,507 --> 01:00:46,093
We have the money with us to pay for it.
981
01:00:47,210 --> 01:00:49,054
You guys don't want to tangle with these people 'cause
982
01:00:49,079 --> 01:00:51,714
you don't want to get AIDS, I know, but what's next?
983
01:00:51,882 --> 01:00:53,038
Come on, get out.
984
01:00:53,617 --> 01:00:56,493
If they would keep their mouths shut and go about
985
01:00:56,519 --> 01:00:59,627
their business with whatever their sexual orientation is,
986
01:00:59,956 --> 01:01:02,637
nobody would ever say a word and we wouldn't know anything about it.
987
01:01:02,693 --> 01:01:05,666
But, no, they march in the streets, and they defy you to
988
01:01:06,530 --> 01:01:08,027
say anything about it.
989
01:01:08,164 --> 01:01:10,308
Well, they don't like me and I don't like them.
990
01:01:10,333 --> 01:01:11,476
Back off the property.
991
01:01:11,501 --> 01:01:14,172
Bunch of 'em climbed up on my house in Arlington
992
01:01:14,538 --> 01:01:16,375
and hoisted about a 35-foot
993
01:01:16,974 --> 01:01:21,095
canvas, uh, condom one day in protest of me.
994
01:01:23,347 --> 01:01:26,055
Fight AIDS! Fight AIDS, fight AIDS, fight!
995
01:01:26,983 --> 01:01:30,243
??I'll be glad when you're dead, you rascal, you. ??
1012 01:01:33,623 --> 01:01:35,801 Sir, when we started this colloquy, I thought I was
996
01:01:35,826 --> 01:01:38,554
on your side, particularly on the first amendment.
997
01:01:39,563 --> 01:01:41,473
And under the first amendment, people don't have to shut their
998
01:01:41,498 --> 01:01:43,044
mouths, they have a right to speak.
999
01:01:44,367 --> 01:01:46,340
Well, uh... they can speak,
1000
01:01:47,871 --> 01:01:49,504
uh, just so long as, uh,
1001
01:01:50,273 --> 01:01:52,694
they don't offend anybody else, uh, I suppose.
1002
01:01:59,215 --> 01:02:02,470
Make sure your second coming is a safe one.
1003
01:02:06,056 --> 01:02:06,872
Use condoms.
1004
01:02:08,458 --> 01:02:10,427
- ...are you shooting? - Yeah.
1005
01:02:11,128 --> 01:02:12,489
I just turned it on.
1006
01:02:15,199 --> 01:02:16,151
Okay, rolling.
1007
01:02:21,938 --> 01:02:22,947
Tell him we're rolling.
1008
01:02:22,972 --> 01:02:24,183
The machine is rolling.
1009
01:02:24,208 --> 01:02:25,876
You can start talking now, honey.
1010
01:02:26,510 --> 01:02:28,644
Oh, I didn't know she meant now.
1011
01:02:30,047 --> 01:02:34,059
What I was gonna say was I just love, I love so much to go up to
1012
01:02:34,719 --> 01:02:40,661
the 10th floor because no one ever had explained to me that
1013
01:02:42,726 --> 01:02:46,337
there was going to be light again in the world and that the
1014
01:02:47,097 --> 01:02:49,199
whole world wasn't going to be dark.
1015
01:02:51,469 --> 01:02:55,926
Some great challenges face us as young people.
1016
01:02:56,940 --> 01:02:58,709
We're in our 20s, and, and
1017
01:03:00,110 --> 01:03:03,349
this is the challenge that's been placed in front of me.
1018
01:03:04,581 --> 01:03:06,622
And, who knows, little camera.
1019
01:03:07,351 --> 01:03:11,719
Lots of other blind, deaf men have lived happy lives.
1020
01:03:14,190 --> 01:03:18,489
There are, there are many years to come, let's hope.
1021
01:03:22,099 --> 01:03:22,899
So...
1022
01:03:26,503 --> 01:03:27,555
What the hell?
1023
01:03:28,072 --> 01:03:30,019
Life is worth living... Isn't it?
1024
01:03:42,219 --> 01:03:44,417
The death rate just kept on climbing.
1025
01:03:47,257 --> 01:03:50,363
We realized that science really was up against a brick wall.
1026
01:03:51,429 --> 01:03:53,672
We kept getting new drugs approved to prevent
1027
01:03:53,697 --> 01:03:57,356
opportunistic infections, and then somebody would just get another infection.
1028
01:04:30,668 --> 01:04:33,813
So, Peter, where are we going?
1029
01:04:33,838 --> 01:04:38,921
We're gonna be going to the headquarters of daiichi pharmaceutical companies of Japan.
1030
01:04:39,943 --> 01:04:44,123
This is their U.S. headquarters, and, uh, we're blockading their
1031
01:04:44,148 --> 01:04:46,325
offices because they have a drug
1032
01:04:46,650 --> 01:04:50,795
that's important both to AIDS activists and cancer activists,
1033
01:04:51,688 --> 01:04:57,499
specifically, uh, breast cancer, um, that they've been dragging
1034
01:04:58,195 --> 01:05:01,661
their feet on for over two years now, and, uh, we don't
1035
01:05:02,099 --> 01:05:04,276
understand why, but we certainly
1036
01:05:05,235 --> 01:05:08,411
are gonna try to let them understand why we're concerned.
1037
01:05:09,139 --> 01:05:11,851
...and, everybody...wait for you at the end of the hall.
1038
01:05:11,876 --> 01:05:13,223
Just wait outside the elevators.
1039
01:05:14,378 --> 01:05:15,078
Shh...
1040
01:05:16,813 --> 01:05:17,513
Hey.
1041
01:05:17,780 --> 01:05:19,257
Hi, we're with ACT UP.
1042
01:05:19,282 --> 01:05:22,552
We're doing an act of civil disobedience, please remain calm.
1043
01:05:24,387 --> 01:05:26,156
Jim, it's Peter, we're in.
1044
01:05:26,456 --> 01:05:27,749
Send all the press.
1045
01:05:28,692 --> 01:05:30,848
Hello, we're from ACT UP New York.
1046
01:05:39,936 --> 01:05:42,413
You already have the blood of several thousand people on your
1047
01:05:42,438 --> 01:05:46,114
hands, and those of us like me who have Kaposi's sarcoma are
1048
01:05:46,143 --> 01:05:49,255
gonna die, and we are here until we get arrested.
1049
01:05:49,280 --> 01:05:52,090
You seem to know nothing about the actual details of the
1050
01:05:52,115 --> 01:05:53,225
development of this drug.
1051
01:05:53,250 --> 01:05:54,951
Maybe you're just not telling us.
1052
01:05:55,119 --> 01:05:57,820
Mr. Borsic, have you scheduled a meeting with the F.D.A.?
1053
01:05:58,155 --> 01:05:59,130
Yeah, as soon as we can.
1054
01:05:59,155 --> 01:06:01,567
We have helped many companies through this process.
1055
01:06:01,592 --> 01:06:05,036
We can take a drug from your test tube to the market
1056
01:06:05,061 --> 01:06:08,406
in under two years if you work with us, and we will pave the
1057
01:06:08,431 --> 01:06:11,228
way for you with the food and drug administration.
1058
01:06:11,501 --> 01:06:14,982
But, but this total reluctance on your part is gonna get you nowhere.
1059
01:06:15,139 --> 01:06:17,116
...have been used in people for 30 years.
1060
01:06:17,141 --> 01:06:18,616
It'll end up killing us, all right?
1061
01:06:18,641 --> 01:06:20,722
See this dark mark on my forehead?
1062
01:06:20,978 --> 01:06:22,611
That's Kaposi's sarcoma.
1063
01:06:23,480 --> 01:06:24,704
It's gonna spread!
1064
01:06:24,847 --> 01:06:26,140
It's gonna kill me.
1065
01:06:26,317 --> 01:06:27,659
You coming to my funeral?
1066
01:06:27,684 --> 01:06:30,035
Because you're the man fucking responsible.
1067
01:06:30,219 --> 01:06:33,073
You are my murderer in your shirt and tie.
1068
01:06:38,161 --> 01:06:41,232
Do you think that you'll live to see a cure?
1069
01:06:41,398 --> 01:06:42,098
No.
1070
01:06:42,498 --> 01:06:43,198
I don't.
1071
01:06:44,034 --> 01:06:45,683
Do you think that you'll live?
1072
01:06:47,804 --> 01:06:48,504
No.
1073
01:06:49,873 --> 01:06:50,573
No.
1074
01:06:50,773 --> 01:06:52,814
You expect to die from this?
1075
01:07:08,458 --> 01:07:12,404
The anger just mounted and mounted and mounted the more people who were dying.
1076
01:07:12,429 --> 01:07:13,858
Once a week we met...
1077
01:07:15,632 --> 01:07:18,210
And at that meeting a lot of people came who were just
1078
01:07:18,235 --> 01:07:21,403
terrified they weren't gonna be alive even the next week.
1079
01:07:22,072 --> 01:07:23,919
What can we do, how can we get there?
1080
01:07:24,574 --> 01:07:30,340
I think ACT UP's anger turned in after having been directed out so long.
1081
01:07:31,815 --> 01:07:33,380
In its first few years,
1082
01:07:34,318 --> 01:07:37,791
treatment and data pretty much got everything it wanted from
1083
01:07:38,021 --> 01:07:39,858
the floor of ACT UP, but as
1084
01:07:41,125 --> 01:07:45,093
treatment and data was becoming more and more technical,
1085
01:07:45,496 --> 01:07:49,140
there were a lot of people in the general membership of ACT UP
1086
01:07:49,800 --> 01:07:54,912
that saw that as an elite, and that maybe it would be better if
1087
01:07:56,273 --> 01:07:58,382
that elite was pulled in a bit.
1088
01:07:58,942 --> 01:08:03,318
There was a fear, I think, that we were getting too close
1089
01:08:03,847 --> 01:08:08,166
to the people in power, that we would compromise our own principles.
1090
01:08:08,485 --> 01:08:12,763
And the people who were more interested in the social issues
1091
01:08:13,090 --> 01:08:14,833
became uncomfortable with that.
1092
01:08:14,858 --> 01:08:17,730
I remember this very divisive moment where, um, you know,
1093
01:08:18,127 --> 01:08:20,772
there was a proposal for moratorium on meeting with
1094
01:08:20,797 --> 01:08:22,770
drug companies, and someone...
1095
01:08:24,001 --> 01:08:27,079
for six months... and there was a huge and impassioned debate
1096
01:08:27,104 --> 01:08:31,215
over it, and someone said... a woman who was not HIV-positive
1097
01:08:31,574 --> 01:08:34,152
said, "well, it's not like it's for the rest of your life."
1098
01:08:34,177 --> 01:08:36,218
And for a lot of people in the
1099
01:08:36,913 --> 01:08:38,795
room, it was the rest of their life.
1100
01:08:39,182 --> 01:08:39,882
ACT UP!
1101
01:08:40,050 --> 01:08:40,798
Fight back!
1102
01:08:40,984 --> 01:08:41,732
Fight AIDS!
1103
01:08:41,851 --> 01:08:44,696
There were inevitable splits in priorities.
1104
01:08:46,055 --> 01:08:47,455
And you know quite well... I know.
1105
01:08:47,557 --> 01:08:49,982
And it was completely left out of the n.I.H.
1106
01:08:50,027 --> 01:08:51,115
Research agenda.
1107
01:08:51,494 --> 01:08:52,194
I agree.
1108
01:08:52,229 --> 01:08:53,029
I, I...
1109
01:08:53,697 --> 01:08:58,138
I remember a lot of dirty tricks that happened, and a lot of fear within the
1110
01:08:59,435 --> 01:09:03,553
organization that the various factions had done this to each other.
1111
01:09:03,673 --> 01:09:08,131
Mark Harrington, Mark Harrington, there's a video camera here now.
1112
01:09:08,945 --> 01:09:11,923
Would you like to take an oath that you will not write nasty
1113
01:09:11,948 --> 01:09:13,853
anonymous letters to people?
1114
01:09:13,951 --> 01:09:16,160
I've been getting some hate letters too, but those are
1115
01:09:16,185 --> 01:09:19,097
unsigned. I don't ever, I don't ever... so you'll keep on
1116
01:09:19,122 --> 01:09:20,865
writing nasty letters to people?
1117
01:09:20,890 --> 01:09:26,024
There were a lot of charges in the midst of that, of sabotage and threats.
1118
01:09:26,329 --> 01:09:29,181
Our last speaker is, is Larry Kramer.
1119
01:09:30,567 --> 01:09:32,216
Why didn't you answer the charges?
1120
01:09:32,668 --> 01:09:34,913
Bill, you're gonna have a chance to talk,
1121
01:09:34,938 --> 01:09:36,914
all right, everybody's... don't lecture me,
1122
01:09:36,939 --> 01:09:39,654
you stupid, lazy, incompetent shithead!
1123
01:09:39,710 --> 01:09:41,759
Bill, everybody got the flyer...
1124
01:09:43,881 --> 01:09:46,023
...you can't just lick his ass before he talks!
1125
01:09:46,048 --> 01:09:48,504
Shut the fuck up and let him answer!
1126
01:09:48,985 --> 01:09:51,262
Look, there are a lot of people in the audience who want
1127
01:09:51,287 --> 01:09:54,432
to ask and talk about treatment, and I think it's important that
1128
01:09:54,457 --> 01:09:56,090
we allow that to happen.
1129
01:09:56,527 --> 01:09:58,270
Oh, we're gonna dictate free speech now?
1130
01:09:58,295 --> 01:10:00,944
You're the one who's interfering with speech right now.
1131
01:10:01,230 --> 01:10:02,523
Go back to G.M.H.C.
1132
01:10:02,565 --> 01:10:04,985
Or whatever AIDS pimp operation is paying you.
1133
01:10:05,101 --> 01:10:07,615
You're making the same point George Bush made... - plague!
1134
01:10:08,604 --> 01:10:10,793
We are in the middle of a fucking plague!
1135
01:10:11,341 --> 01:10:13,042
And you behave like this!
1136
01:10:20,751 --> 01:10:21,451
Plague!
1137
01:10:23,386 --> 01:10:25,495
40 million infected people is a
1138
01:10:26,722 --> 01:10:27,742
fucking plague!
1139
01:10:33,596 --> 01:10:38,173
We are in the worst shape we have ever, ever, ever been in!
1140
01:10:40,570 --> 01:10:43,876
All those pills we're shoveling down our throats, forget it!
1141
01:10:45,708 --> 01:10:49,087
ACT UP has been taken over by a lunatic fringe, they can't get
1142
01:10:49,112 --> 01:10:52,790
together, nobody agrees with anything, all we can do is field
1143
01:10:52,850 --> 01:10:54,836
a couple hundred people in a demonstration!
1144
01:10:55,418 --> 01:10:57,739
That's not gonna make anybody pay attention!
1145
01:11:00,157 --> 01:11:02,458
Not until we get millions out there!
1146
01:11:03,793 --> 01:11:05,222
And we can't do that!
1147
01:11:05,462 --> 01:11:08,961
All we do is pick at each other and yell at each other!
1148
01:11:09,565 --> 01:11:11,402
And I say to you in year 10
1149
01:11:12,735 --> 01:11:17,212
the same thing I said to you in 1981 when there were 41 cases.
1150
01:11:21,043 --> 01:11:25,117
Until we get our acts together, all of us, we are as good as
1151
01:11:28,851 --> 01:11:29,551
dead.
1152
01:11:33,023 --> 01:11:37,233
In the end, the treatment and data guys... Peter, Garance, Mark, and some
1153
01:11:37,627 --> 01:11:42,240
others... split off and formed their own separate organization.
1154
01:11:42,599 --> 01:11:46,770
Tag was one of the little Mercury balls that flew off the main body of ACT UP.
1155
01:11:47,537 --> 01:11:51,265
A more sort of "think tank" type project came about.
1156
01:11:53,176 --> 01:11:56,088
Mr. Harrington, a tag member, educated at Harvard
1157
01:11:56,113 --> 01:12:00,251
college, and he has worked for a long time on experimental
1158
01:12:01,051 --> 01:12:04,056
treatments for the disease, and and also the basic science.
1159
01:12:04,087 --> 01:12:06,060
And Mr. Gonsalves was born in
1160
01:12:07,390 --> 01:12:11,608
long island and attended tufts university, also a tag member.
1161
01:12:11,728 --> 01:12:15,429
Um, I guess I can do nothing better than to turn this
1162
01:12:16,332 --> 01:12:18,410
conference over to my speakers.
1163
01:12:18,435 --> 01:12:21,543
I noticed that you're both sitting up there in suits
1164
01:12:22,338 --> 01:12:27,352
and ties. Do you feel that your approach is better than circling
1165
01:12:29,011 --> 01:12:31,052
n.I.H. Buildings and so forth?
1166
01:12:32,649 --> 01:12:36,294
I think that we like to keep our options open, but it's silly
1167
01:12:36,420 --> 01:12:38,461
to risk arrest and the hassles
1168
01:12:39,088 --> 01:12:42,296
that are intendant upon it if you can get serious attention
1169
01:12:42,458 --> 01:12:44,612
and negotiations going with other measures.
1170
01:12:46,128 --> 01:12:50,051
We just released a report, a critique of all the n.I.H.'S AIDS programs.
1171
01:12:50,167 --> 01:12:52,643
The research is spread out over 12 agencies, there's no
1172
01:12:52,668 --> 01:12:54,752
coordination, there's a lot of duplication.
1173
01:12:55,271 --> 01:12:56,768
There's no leadership.
1174
01:12:56,974 --> 01:12:59,250
The budget is shrinking and shrinking as cases mount,
1175
01:12:59,275 --> 01:13:02,353
and the president needs to be blamed, as well as the congress
1176
01:13:02,378 --> 01:13:06,223
who cut the entire n.I.H. Budget by $150 million two weeks ago.
1177
01:13:06,248 --> 01:13:08,560
Our recommendations, I think, are gonna require some
1178
01:13:08,585 --> 01:13:10,626
legislation, um, so we have to
1179
01:13:11,253 --> 01:13:15,239
go to our friends on the hill and see what wonders they can work for us.
1180
01:13:26,369 --> 01:13:29,714
We had this one particular compound that looked like it may
1181
01:13:29,739 --> 01:13:31,644
have had the potency and the
1182
01:13:31,975 --> 01:13:35,730
physical properties that we wanted, and it could be a possible drug.
1183
01:13:35,912 --> 01:13:38,423
We said, you know, let's put in HIV-infected individuals
1184
01:13:38,448 --> 01:13:40,025
and let's see what happens.
1185
01:13:40,050 --> 01:13:43,128
So, we went into HIV-infected individuals with this drug
1186
01:13:43,153 --> 01:13:46,630
called crixivan, and you could see a very substantial drop just
1187
01:13:46,655 --> 01:13:50,085
with the one protease inhibitor, you could see a very substantial drop in virus load.
1188
01:13:50,327 --> 01:13:51,636
So that was the first week.
1189
01:13:51,661 --> 01:13:53,704
The second week was very disappointing, because what we
1190
01:13:53,729 --> 01:13:58,694
saw in the second week was in fact, the virus load coming right back up again.
1191
01:13:58,902 --> 01:13:59,854
One exception.
1192
01:14:00,203 --> 01:14:03,976
There was one patient that, um, patient 143, I believe,
1193
01:14:04,440 --> 01:14:06,277
was his name... his number...
1194
01:14:06,676 --> 01:14:09,588
that the virus went down and stayed down.
1195
01:14:09,613 --> 01:14:11,225
That told us that it was possible.
1196
01:14:12,282 --> 01:14:15,660
If it can happen in one, then by definition it can happen
1197
01:14:15,685 --> 01:14:18,730
in everyone, you just need to figure out how to do it.
1198
01:14:18,755 --> 01:14:20,875
That puts you in a completely different place and in a
1199
01:14:20,890 --> 01:14:22,667
completely different state of mind.
1200
01:14:22,692 --> 01:14:25,637
So then the question became, Okay, now what do we need to do
1201
01:14:25,662 --> 01:14:27,635
in order to make it possible?
1202
01:14:30,100 --> 01:14:34,595
This is the beginning of the primary season to elect the next president.
1203
01:14:34,871 --> 01:14:38,581
We want to send a message to all of the candidates... we have not
1204
01:14:38,742 --> 01:14:43,320
seen them actively address the AIDS plague, and we thought
1205
01:14:43,613 --> 01:14:47,844
it would be best to send a message by voting with our feet in the streets.
1206
01:14:48,251 --> 01:14:51,814
I want to call for a massive march on Washington.
1207
01:14:53,090 --> 01:14:56,344
The weekend the AIDS quilt is gonna be there.
1208
01:14:56,626 --> 01:15:00,027
We have got to surround the white house with people
1209
01:15:00,463 --> 01:15:02,368
concerned about AIDS to push
1210
01:15:03,265 --> 01:15:05,170
bush out of the white house!
1211
01:15:11,140 --> 01:15:13,744
Last night a man with AIDS heckled Clinton,
1212
01:15:13,844 --> 01:15:17,524
charging that he had a bad record on fighting AIDS in Arkansas.
1213
01:15:17,780 --> 01:15:21,935
When voter Bob Rafsky met Bill Clinton, it was anything but pleasant.
1214
01:15:22,118 --> 01:15:25,835
We're dying in this state, what are you going to do about AIDS?
1215
01:15:27,224 --> 01:15:32,145
First of all, it will become a part of my obsession as president.
1216
01:15:34,296 --> 01:15:36,977
And that's why I'm running for president, to do something about it.
1217
01:15:38,001 --> 01:15:39,770
Will you just calm down?
1218
01:15:41,671 --> 01:15:42,827
I feel your pain!
1219
01:15:43,939 --> 01:15:47,017
I feel your pain, but if you want to attack me personally,
1220
01:15:47,042 --> 01:15:49,286
you're no better than Jerry brown and all the rest of these
1221
01:15:49,311 --> 01:15:51,388
people who say whatever sounds good in the moment.
1222
01:15:51,413 --> 01:15:54,659
If you want something to be done, you ask me a question, you listen.
1223
01:15:54,684 --> 01:15:57,027
If you don't agree with me, go support somebody else for
1224
01:15:57,052 --> 01:15:59,231
president, but quit talking to me like that.
1225
01:15:59,256 --> 01:16:02,339
This is not a matter of personal attack, it's a matter of human loss.
1226
01:16:04,927 --> 01:16:07,857
I came here tonight because I'm dying from AIDS.
1227
01:16:08,398 --> 01:16:11,308
And it doesn't matter to me who the next president is if they
1228
01:16:11,333 --> 01:16:14,983
don't change 11 years of government neglect of this epidemic.
1229
01:16:15,671 --> 01:16:16,337
Is this on?
1230
01:16:16,338 --> 01:16:17,290
This isn't on.
1231
01:16:17,740 --> 01:16:19,373
Um, Okay, first off, um,
1232
01:16:21,545 --> 01:16:27,462
what happened this week was AIDS became an issue in this campaign.
1233
01:16:34,623 --> 01:16:36,205
I'd like to call down Bob Rafsky.
1234
01:16:58,280 --> 01:16:58,980
ACT UP!
1235
01:16:59,349 --> 01:17:00,097
Fight back!
1236
01:17:00,449 --> 01:17:01,197
Fight AIDS!
1237
01:17:01,984 --> 01:17:02,684
ACT UP!
1238
01:17:02,985 --> 01:17:03,733
Fight back!
1239
01:17:04,220 --> 01:17:04,968
Fight AIDS!
1240
01:17:09,158 --> 01:17:13,126
Uh, never debate a Rhodes scholar... it gets you into a world of trouble.
1241
01:17:14,430 --> 01:17:18,276
It looks like what we have to do is to keep forcing these clowns
1242
01:17:18,301 --> 01:17:20,911
to say the right thing so that if one of them happens to become
1243
01:17:20,936 --> 01:17:24,382
president, we can hold them accountable for doing the right thing.
1244
01:17:24,407 --> 01:17:25,107
Yeah.
1245
01:17:25,507 --> 01:17:28,352
But I just... it's always important to say that we all
1246
01:17:28,377 --> 01:17:31,990
know that the names of the people who might save our lives
1247
01:17:32,015 --> 01:17:34,671
are not Bill Clinton and Jerry brown, etc.
1248
01:17:34,884 --> 01:17:37,462
The names of the people who might save our lives are
1249
01:17:37,487 --> 01:17:40,245
iris long, Mark Harrington, Peter Staley, etc.
1250
01:17:40,756 --> 01:17:42,066
And they're the ones who will be
1251
01:17:42,091 --> 01:17:46,885
remembered as the heroes of this epidemic, as well as those who have gone before.
1252
01:17:50,899 --> 01:17:52,435
??..and he smells like one, too. ??
1270 01:17:52,668 --> 01:17:55,000 Well, I haven't showered, so I'm not surprised...
1253
01:17:55,805 --> 01:18:00,480
No, I've just been writing and I was up at 5 A.M. yesterday.
1254
01:18:00,542 --> 01:18:03,646
This is Bob's birthday, July 22nd, 1992.
1255
01:18:06,949 --> 01:18:08,717
- Ready for the pyrotechnics? - Yes!
1256
01:18:08,952 --> 01:18:09,995
Nathaniel, help.
1257
01:18:10,020 --> 01:18:11,120
No!
1258
01:18:12,087 --> 01:18:12,987
Yay!
1259
01:18:14,658 --> 01:18:15,610
Lydia E. Rios.
1260
01:18:18,127 --> 01:18:19,071
Steve H.
1261
01:18:21,730 --> 01:18:23,295
My friends David Evans,
1262
01:18:25,801 --> 01:18:27,978
Nicolas kaiser, George Marshall,
1263
01:18:31,307 --> 01:18:33,484
and my beloved brother Dennis J.
1264
01:18:35,045 --> 01:18:36,201
Robert R. Hakins.
1265
01:18:39,048 --> 01:18:40,681
Phillip Gregory Ellison.
1266
01:18:42,819 --> 01:18:43,835
Terry Ronan.
1267
01:18:45,822 --> 01:18:46,910
Michael Bennett.
1268
01:18:48,524 --> 01:18:49,604
Ron Field.
1269
01:18:50,827 --> 01:18:51,907
Tina Chow.
1270
01:18:53,262 --> 01:18:54,278
Perry Ellis.
1271
01:18:55,532 --> 01:18:56,620
Freddie Mercury.
1272
01:18:57,766 --> 01:18:58,782
Peter Allen.
1273
01:19:00,470 --> 01:19:06,086
To the thousands of other people who were made to suffer in silence.
1274
01:19:12,981 --> 01:19:15,874
Join ACT UP for a political funeral!
1275
01:19:16,685 --> 01:19:19,100
Meet at the South of the capitol at 1 P.M.
1276
01:19:20,122 --> 01:19:23,972
Give a wake-up call to George Bush and Bill Clinton and Perot.
1277
01:19:31,467 --> 01:19:35,371
I think the quilt itself does good stuff and is moving.
1278
01:19:35,939 --> 01:19:40,049
Still, it's like making something beautiful out of the epidemic, and I felt like doing
1279
01:19:41,444 --> 01:19:43,987
something like this is a way of showing there's nothing beautiful about it.
1280
01:19:44,012 --> 01:19:46,156
You know, this is what I'm left with... I've got a box full
1281
01:19:46,181 --> 01:19:47,491
of ashes and bone chips.
1282
01:19:47,516 --> 01:19:49,261
You know, there's no beauty in that.
1283
01:19:49,918 --> 01:19:53,125
And I felt like a statement like this is like saying "this is
1284
01:19:53,256 --> 01:19:55,302
what George Bush has done," you know?
1285
01:19:55,358 --> 01:19:57,701
This is what him and Ronald Reagan before him have done.
1286
01:19:57,726 --> 01:19:59,536
These are our loved ones and this is what they've been
1287
01:19:59,561 --> 01:20:03,303
reduced to, and we're bringing them to the person who's responsible for their death.
1288
01:20:20,382 --> 01:20:21,130
Fight back!
1289
01:20:21,518 --> 01:20:22,266
Fight AIDS!
1290
01:20:22,519 --> 01:20:24,628
ACT UP, fight back, fight AIDS!
1291
01:20:25,454 --> 01:20:27,563
ACT UP, fight back, fight AIDS!
1292
01:20:28,524 --> 01:20:30,633
ACT UP, fight back, fight AIDS!
1293
01:20:31,594 --> 01:20:32,294
ACT UP!
1294
01:20:32,628 --> 01:20:33,376
Fight back!
1295
01:20:33,430 --> 01:20:34,178
Fight AIDS!
1296
01:20:39,101 --> 01:20:41,012
Bringing the dead to your door!
1297
01:20:41,037 --> 01:20:42,738
We won't take it anymore!
1298
01:20:43,038 --> 01:20:45,016
Bringing the dead to your door!
1299
01:20:45,041 --> 01:20:46,742
We won't take it anymore!
1300
01:20:47,010 --> 01:20:49,020
Bringing the dead to your door!
1301
01:20:49,045 --> 01:20:50,746
We won't take it anymore!
1302
01:20:51,014 --> 01:20:53,123
Bringing the dead to your door!
1303
01:21:38,360 --> 01:21:39,060
ACT UP!
1304
01:21:39,095 --> 01:21:39,843
Fight back!
1305
01:21:40,128 --> 01:21:40,876
Fight AIDS!
1306
01:21:41,430 --> 01:21:42,130
ACT UP!
1307
01:21:47,136 --> 01:21:47,836
ACT UP!
1308
01:21:48,070 --> 01:21:48,818
Fight back!
1309
01:21:49,072 --> 01:21:49,820
Fight AIDS!
1310
01:21:50,073 --> 01:21:50,773
ACT UP!
1311
01:21:51,207 --> 01:21:51,955
Fight back!
1312
01:21:52,041 --> 01:21:52,789
Fight AIDS!
1313
01:21:53,042 --> 01:21:53,742
ACT UP!
1314
01:21:53,909 --> 01:21:54,657
Fight back!
1315
01:21:54,877 --> 01:21:55,625
Fight AIDS!
1316
01:21:55,878 --> 01:21:56,578
ACT UP!
1317
01:21:56,880 --> 01:21:57,628
Fight back!
1318
01:21:57,814 --> 01:21:58,562
Fight AIDS!
1319
01:22:01,251 --> 01:22:03,088
Shame, shame, shame, shame!
1320
01:22:03,786 --> 01:22:05,623
Shame, shame, shame, shame!
1321
01:22:06,421 --> 01:22:08,394
Shame, shame, shame, shame...
1322
01:22:14,697 --> 01:22:15,853
I love you, Mike!
1323
01:22:17,100 --> 01:22:18,256
I love you, Mike!
1324
01:22:44,493 --> 01:22:47,326
Welcome to the first of three debates among the major
1325
01:22:47,564 --> 01:22:51,142
candidates for President of the United States, sponsored by the
1326
01:22:51,167 --> 01:22:53,179
commission on presidential debates.
1327
01:22:53,670 --> 01:22:57,244
Mr. president, yesterday tens of thousands of people paraded
1328
01:22:57,273 --> 01:23:02,133
past the white house to demonstrate their concern about the disease, AIDS.
1329
01:23:02,377 --> 01:23:05,748
A celebrated member of your commission, magic Johnson,
1330
01:23:06,381 --> 01:23:09,602
quit saying that there was too much inaction.
1331
01:23:10,686 --> 01:23:12,262
Where is this widespread feeling
1332
01:23:12,287 --> 01:23:16,100
coming from that your administration is not doing enough about AIDS?
1333
01:23:16,125 --> 01:23:19,436
I can't tell you where it's coming from, but I am very much
1334
01:23:19,628 --> 01:23:21,465
concerned about AIDS, and I
1335
01:23:21,764 --> 01:23:24,508
believe that we've got the best researchers in the world
1336
01:23:24,533 --> 01:23:26,878
out there at n.I.H. Working the problem.
1337
01:23:26,903 --> 01:23:30,236
It's one of the few diseases where behavior matters.
1338
01:23:30,439 --> 01:23:33,250
And I once called on somebody, "well, change your behavior.
1339
01:23:33,275 --> 01:23:38,056
If the behavior you're using, uh, prone to cause AIDS, change the behavior."
1340
01:23:38,081 --> 01:23:41,926
Next thing I know, one of these ACT UP groups is out saying bush
1341
01:23:41,951 --> 01:23:43,361
ought to change his behavior.
1342
01:23:43,386 --> 01:23:45,302
You can't talk about it rationally.
1343
01:24:04,673 --> 01:24:09,041
Let everyone here know that this is not a
1344
01:24:11,381 --> 01:24:16,427
political funeral for Mark Fisher, who wouldn't let us burn
1345
01:24:19,221 --> 01:24:20,718
or bury his courage...
1346
01:24:22,759 --> 01:24:24,936
Or his love for us any more than
1347
01:24:25,895 --> 01:24:30,545
he would let the earth take his body until it was already in flight.
1348
01:24:32,467 --> 01:24:36,838
He asked for this ceremony, not so we could bury him,
1349
01:24:37,340 --> 01:24:40,259
but so we could celebrate his undying anger.
1350
01:24:42,679 --> 01:24:46,783
This isn't a political funeral for Mark, it's a political
1351
01:24:47,449 --> 01:24:50,616
funeral for the man who killed him and so many others,
1352
01:24:52,488 --> 01:24:54,189
and is slowly killing me.
1353
01:24:55,891 --> 01:25:00,057
Whose name curls my tongue and curdles my breath.
1354
01:25:00,997 --> 01:25:05,775
George Bush, we believe you'll be defeated tomorrow because we
1355
01:25:06,868 --> 01:25:10,175
believe there's still some justice left in the universe
1356
01:25:10,672 --> 01:25:14,296
and some compassion left in the American people.
1357
01:25:15,411 --> 01:25:20,223
But whether or not you are, here and now, standing by Mark's
1358
01:25:21,184 --> 01:25:26,826
body, we put this curse on you. Mark's spirit will haunt you
1359
01:25:27,923 --> 01:25:29,760
until the end of your days,
1360
01:25:30,592 --> 01:25:36,281
so that in the moment of your defeat, you'll remember our defeats.
1361
01:25:36,698 --> 01:25:40,471
And in the moment of your death, you'll remember our deaths.
1362
01:25:43,305 --> 01:25:45,482
As for Mark, when the living can
1363
01:25:46,609 --> 01:25:50,632
no longer speak, the dead may speak for them.
1364
01:25:52,247 --> 01:25:54,220
Mark's voice is here with us,
1365
01:25:55,752 --> 01:26:00,531
as is the voice of pericles, who two millennia ago warned the
1366
01:26:01,123 --> 01:26:05,535
Athenian soldiers who didn't have to die, and in whose death
1367
01:26:05,862 --> 01:26:10,504
he was complicit, but who had the nobility to say that their
1368
01:26:11,067 --> 01:26:13,040
memorial was the whole earth.
1369
01:26:14,804 --> 01:26:16,981
Let the whole earth hear us now.
1370
01:26:18,106 --> 01:26:23,543
We beg, we pray, we demand that this epidemic end!
1371
01:26:26,349 --> 01:26:27,982
Not just so we may live,
1372
01:26:30,051 --> 01:26:34,244
but so that Mark's soul may rest in peace at last.
1373
01:26:41,197 --> 01:26:47,529
In anger and in grief, this fight is not over till all of us are saved.
1374
01:26:55,478 --> 01:26:56,378
ACT UP.
1375
01:26:57,046 --> 01:26:57,794
Fight back.
1376
01:26:58,413 --> 01:26:59,161
Fight AIDS.
1377
01:28:36,279 --> 01:28:38,990
The debate over AIDS therapy has reignited with a new
1378
01:28:39,015 --> 01:28:42,921
European study that challenges the effectiveness of A.Z.T.,
1379
01:28:43,319 --> 01:28:46,524
the widely prescribed drug used to treat the HIV virus.
1380
01:28:46,588 --> 01:28:49,897
This study disproves what every other study proves,
1381
01:28:50,458 --> 01:28:54,604
is that the drug is at best modest, mostly useless, not good
1382
01:28:54,630 --> 01:28:55,839
for you in the beginning.
1383
01:28:55,864 --> 01:28:59,309
Two other drugs, D.D.I. And d.D.C., were approved
1384
01:28:59,769 --> 01:29:02,612
because they were as good as A.Z.T., which means that they
1385
01:29:02,637 --> 01:29:04,749
might not be very useful either.
1386
01:29:04,774 --> 01:29:09,132
All this is profoundly dispiriting for advocates of people with AIDS.
1387
01:29:09,345 --> 01:29:11,989
We thought we had made some advance in AIDS treatment over
1388
01:29:12,014 --> 01:29:15,827
the last five years, and these studies show that we really haven't.
1389
01:29:15,952 --> 01:29:19,672
Many activists now admit their demands were short-sighted.
1390
01:29:20,055 --> 01:29:24,131
It's been a huge expenditure, a waste of money for the U.S.
1391
01:29:24,193 --> 01:29:28,071
Taxpayer, and it was a naiveté on our part to think that the
1392
01:29:28,096 --> 01:29:31,988
magic bullet was out there, it just had to be tested in humans and, uh...
1393
01:29:34,036 --> 01:29:35,669
Given to us as the cure.
1394
01:29:35,805 --> 01:29:40,070
Many doctors and scientists say the bleak results presented here indicate the U.S.
1395
01:29:40,176 --> 01:29:45,181
Government needs to substantially reorganize the way it conducts AIDS research.
1396
01:29:45,448 --> 01:29:47,625
Robert Bazell, NBC News, Berlin.
1397
01:29:54,090 --> 01:29:57,097
There's been this big crisis at St. Vincent's about the way
1398
01:29:57,493 --> 01:29:59,330
that we talk about the, uh,
1399
01:30:00,762 --> 01:30:02,106
what happened in Berlin.
1400
01:30:02,131 --> 01:30:05,950
Couple of doctors said they were afraid of people committing suicide now.
1401
01:30:06,368 --> 01:30:08,273
I don't feel like, oh, now
1402
01:30:09,505 --> 01:30:13,150
I just... I don't feel oh, now I want to give up, now I want to
1403
01:30:13,175 --> 01:30:14,352
stop living because A.Z.T.
1404
01:30:14,377 --> 01:30:15,461
Doesn't work.
1405
01:30:15,711 --> 01:30:19,476
I've felt forever now that I'm not gonna outlive this epidemic, that I will,
1406
01:30:19,782 --> 01:30:21,124
that I will die from this.
1407
01:30:21,149 --> 01:30:24,428
You know, maybe that is our future, that we're gonna watch each other die.
1408
01:30:24,453 --> 01:30:26,597
It's... that's not a new thought.
1409
01:30:26,622 --> 01:30:29,293
We've been thinking that ever since we started the group.
1410
01:30:29,958 --> 01:30:33,299
The way that the recent spate of deaths is... I don't know,
1411
01:30:34,396 --> 01:30:36,581
it all seems so much more apocalyptic.
1412
01:30:37,432 --> 01:30:39,473
Like the story doesn't seem...
1413
01:30:41,270 --> 01:30:45,717
To have this relationship to effective treatment, or a cure anymore.
1414
01:30:45,841 --> 01:30:47,918
It now seems to have this relationship to death.
1415
01:30:47,943 --> 01:30:49,754
It ends, it ends with everybody dying.
1416
01:30:49,779 --> 01:30:52,480
Will the last person alive in Chelsea please turn out the lights?
1417
01:31:02,625 --> 01:31:05,236
Joining me now is Dr. David Kessler, the commissioner of the
1418
01:31:05,261 --> 01:31:07,234
food and drug administration.
1419
01:31:07,328 --> 01:31:10,705
Dr. Kessler, how excited should we get about this new family of
1420
01:31:10,800 --> 01:31:12,581
drugs, these protease inhibitors?
1421
01:31:12,902 --> 01:31:16,579
I don't want to over-promise, but these are the most potent
1422
01:31:16,604 --> 01:31:19,517
drugs we've seen against the virus.
1423
01:31:19,542 --> 01:31:22,846
I know that you are pushing for faster F.D.A. Approval
1424
01:31:23,011 --> 01:31:25,423
of these drugs, I know that the application has just gone for
1425
01:31:25,448 --> 01:31:28,565
the first of these drugs to the f. D.A... It's still gonna take six months.
1426
01:31:28,684 --> 01:31:32,125
We will turn around that application as quick as ever.
1427
01:31:32,354 --> 01:31:35,532
We're approving drugs in a matter of months these days.
1428
01:31:35,557 --> 01:31:37,802
But you were telling me that's six months, right?
1429
01:31:37,827 --> 01:31:38,869
That's as quick as possible.
1430
01:31:38,894 --> 01:31:41,004
We may be able to do it even a little quicker.
1431
01:31:41,029 --> 01:31:43,273
A split has developed between those who want
1432
01:31:43,298 --> 01:31:46,576
rapid approval based on early indicators of success...
1433
01:31:46,601 --> 01:31:48,716
And the treatment action group, or "tag".
1434
01:31:49,404 --> 01:31:53,463
Tag has asked the F.D.A. To reconsider the accelerated approval process.
1435
01:31:54,243 --> 01:31:56,012
We told the F.D.A., "no,
1436
01:31:56,479 --> 01:31:59,450
the company has asked you to approve that drug too soon.
1437
01:31:59,715 --> 01:32:01,617
They need a little bit more data first."
1438
01:32:02,318 --> 01:32:05,228
Tag is asking the F.D.A. To take a closer look at
1439
01:32:05,253 --> 01:32:07,892
saquinavir, the first protease inhibitor to seek approval.
1440
01:32:08,724 --> 01:32:13,003
We need to make sure we don't repeat the mistake we made with A.Z.T. And D.D.I.
1441
01:32:13,028 --> 01:32:14,804
This is a new class of drugs.
1442
01:32:14,829 --> 01:32:16,734
We need to know if it works.
1443
01:32:17,466 --> 01:32:20,671
...the battle over early approval of saquinavir was a
1444
01:32:21,636 --> 01:32:24,981
really pivotal moment for treatment activism, and we took
1445
01:32:25,006 --> 01:32:27,115
such shit for it... from within.
1446
01:32:28,610 --> 01:32:30,693
There are a lot of people who do agree that there are
1447
01:32:30,712 --> 01:32:34,742
problems, serious problems the way drug testing and drug trials are run.
1448
01:32:35,251 --> 01:32:37,914
But there are many of us who feel that halting, um,
1449
01:32:39,688 --> 01:32:43,100
accelerated approval is not necessarily the answer.
1450
01:32:43,125 --> 01:32:46,137
Tag made their proposal for this large, simple trial of
1451
01:32:46,162 --> 01:32:48,271
18,000 people that they want to
1452
01:32:48,930 --> 01:32:52,778
put in a placebo control trial where one-third would get placebo.
1453
01:32:53,168 --> 01:32:55,478
They pushed this idea on the F.D.A. At a secret meeting,
1454
01:32:55,503 --> 01:32:57,661
which was not announced to the community.
1455
01:32:59,108 --> 01:33:01,833
This is something we have fought hard and long for.
1456
01:33:02,278 --> 01:33:05,356
We've been arrested to get accelerated approval through.
1457
01:33:05,381 --> 01:33:07,758
It's the behavior that I have a problem with.
1458
01:33:07,783 --> 01:33:11,294
It's the work they're doing that I have a problem with, and it's,
1459
01:33:11,319 --> 01:33:13,062
this is what I am gonna fight.
1460
01:33:13,087 --> 01:33:15,432
I'm not interested in mud wrestling with the boys.
1461
01:33:15,457 --> 01:33:17,519
I am absolutely enraged that there are
1462
01:33:17,545 --> 01:33:19,923
people who have appointed themselves elitist
1463
01:33:20,229 --> 01:33:24,141
representatives, and represent themselves as the single voice of this epidemic.
1464
01:33:24,166 --> 01:33:26,677
I am gonna fight them, my patients are gonna fight
1465
01:33:26,702 --> 01:33:29,427
them, and you goddamn well better fight them!
1466
01:33:35,743 --> 01:33:39,515
Apparently there's a big discussion on accelerated approval and protease drug
1467
01:33:39,814 --> 01:33:42,825
development last week on the floor, so we just wanted to give
1468
01:33:42,850 --> 01:33:46,629
you sort of the tag perspective, and give you a sense of our, um,
1469
01:33:46,654 --> 01:33:48,699
proposal on protease drug development so we can start from
1470
01:33:48,724 --> 01:33:51,000
a baseline of common understanding and knowledge.
1471
01:33:51,025 --> 01:33:54,237
This proposal is not about taking expanded access away,
1472
01:33:54,262 --> 01:33:57,811
taking accelerated approval away... this is about adding something.
1473
01:33:57,865 --> 01:33:59,773
This is about figuring out how do we get
1474
01:33:59,799 --> 01:34:02,146
information about how to actually use these drugs.
1475
01:34:02,171 --> 01:34:05,074
We need more people when you have a less powerful drug.
1476
01:34:05,341 --> 01:34:07,955
If we were dealing with penicillin, we could do it in 20 people.
1477
01:34:08,743 --> 01:34:11,187
So we put together a large, simple trial that tried to
1478
01:34:11,212 --> 01:34:14,225
synthesize expanded access in a large, simple trial.
1479
01:34:14,250 --> 01:34:17,727
And what we did is we presented it to Merck, we presented it to
1480
01:34:18,621 --> 01:34:21,786
the F.D.A., we wanted to start a community discussion.
1481
01:34:21,823 --> 01:34:26,310
I just wanted to thank Gregg and Derek for coming to tell us about this...
1482
01:34:27,695 --> 01:34:31,712
Because we hadn't heard anything until we read about it in Barron's.
1483
01:34:31,934 --> 01:34:34,544
If you wanted to hear the proposal, you could have heard it 40 times.
1484
01:34:34,569 --> 01:34:36,246
It's been talked about all over.
1485
01:34:36,271 --> 01:34:37,805
Dr. Cotler wants to speak.
1486
01:34:38,274 --> 01:34:40,651
Tag is talking about getting accurate information.
1487
01:34:40,676 --> 01:34:43,198
ACT UP is talking about making drugs available.
1488
01:34:43,311 --> 01:34:47,003
There should be a way to mesh those two, it's really not one or the other.
1489
01:34:47,216 --> 01:34:49,818
Your two groups are really talking past one another.
1490
01:34:50,152 --> 01:34:53,386
Try not to scream, try not to go at each other's throats,
1491
01:34:53,588 --> 01:34:56,505
but just talk, because the differences really can be bridged.
1492
01:34:58,793 --> 01:34:59,677
No, no, no.
1493
01:34:59,828 --> 01:35:00,848
- Hey! - Shh...
1494
01:35:03,131 --> 01:35:03,831
Quiet!
1495
01:35:04,832 --> 01:35:06,822
'93 to '95 were the worst years.
1496
01:35:08,503 --> 01:35:10,680
It was a really terrifying time.
1497
01:35:12,173 --> 01:35:13,942
They were the worst years.
1498
01:35:18,314 --> 01:35:19,811
And then we got lucky.
1499
01:36:08,896 --> 01:36:09,596
Um...
1500
01:36:11,132 --> 01:36:12,765
You know, just losing...
1501
01:36:16,204 --> 01:36:16,904
And, uh...
1502
01:36:19,475 --> 01:36:20,495
Just so many...
1503
01:36:22,944 --> 01:36:24,305
So many good people.
1504
01:36:24,846 --> 01:36:25,662
And... uh...
1505
01:36:28,550 --> 01:36:30,115
You know, like any war,
1506
01:36:32,520 --> 01:36:34,493
you wonder why you came home.
1507
01:36:49,171 --> 01:36:50,600
Mark collected all of
1508
01:36:51,407 --> 01:36:54,718
our writings, pieces that all of us had done about what had gone
1509
01:36:54,743 --> 01:36:58,187
wrong in the ways that we studied previous drugs, and what
1510
01:36:58,212 --> 01:37:01,458
we were already doing wrong in terms of trying to figure out
1511
01:37:01,483 --> 01:37:03,360
whether the protease inhibitors worked, and we published it
1512
01:37:03,385 --> 01:37:06,098
as this big report and started passing them out everywhere we went.
1513
01:37:06,454 --> 01:37:07,330
Let's do this study.
1514
01:37:07,355 --> 01:37:10,964
They elevated themselves by their own self-education about
1515
01:37:11,193 --> 01:37:14,437
these things, and then it became very, very clear that you
1516
01:37:14,462 --> 01:37:17,106
weren't gonna mess with these people because they knew exactly
1517
01:37:17,131 --> 01:37:20,878
what you were talking about, and they knew exactly what they
1518
01:37:20,903 --> 01:37:22,196
were talking about.
1519
01:37:22,337 --> 01:37:25,782
Activists created a system that was able to do everything
1520
01:37:25,807 --> 01:37:30,227
faster, better, cheaper, more ethically, and more effectively.
1521
01:37:31,078 --> 01:37:33,757
They forced people to put together the right clinical
1522
01:37:33,782 --> 01:37:38,897
trials where you had the patient in mind, and you weren't cutting corners.
1523
01:37:39,387 --> 01:37:41,565
And of course, the big breakthrough was combination
1524
01:37:41,590 --> 01:37:45,061
therapy, 'cause mono-therapy was clearly not the way to go.
1525
01:37:45,594 --> 01:37:47,737
So let's go back into patients, and let's go back into
1526
01:37:47,762 --> 01:37:50,553
patients with crixivan plus A.Z.T. Plus 3tc.
1527
01:37:51,033 --> 01:37:54,044
The activists proposed a study design, industry used it.
1528
01:37:54,069 --> 01:37:56,218
It got the drug approved in six months.
1529
01:37:56,337 --> 01:37:59,275
So I was at a meeting in Washington, and I stood up
1530
01:38:00,141 --> 01:38:04,013
there and I showed for the first time the data in the study.
1531
01:38:05,012 --> 01:38:09,419
The data goes up on the screen and everyone gasps and cameras start to click.
1532
01:38:09,484 --> 01:38:13,914
And just, it's a realization that this is, this is really great drug, and it,
1533
01:38:14,222 --> 01:38:14,887
it could work.
1534
01:38:14,922 --> 01:38:18,134
I remember sitting there in a hotel room in Washington, D.C.,
1535
01:38:18,159 --> 01:38:21,817
our hotel banquet room, and just crying.
1536
01:38:23,030 --> 01:38:24,340
It was like, we did it.
1537
01:38:24,365 --> 01:38:25,521
We did something.
1538
01:38:25,934 --> 01:38:27,744
It was too much to take in at that point.
1539
01:38:27,769 --> 01:38:30,713
It wasn't until we started putting the drugs in our bodies
1540
01:38:30,738 --> 01:38:32,575
and we all went home and...
1541
01:38:33,475 --> 01:38:36,753
Started, went straight on that regimen that had been on that
1542
01:38:36,778 --> 01:38:41,882
slide, including crixivan and two nucleoside analogues.
1543
01:38:42,684 --> 01:38:47,060
And sure enough, it happened in us within 30 days, all of us.
1544
01:38:48,222 --> 01:38:50,408
Undetectable, undetectable, undetectable.
1545
01:38:50,525 --> 01:38:53,792
The dying was stopping with triple drug combination.
1546
01:38:54,429 --> 01:38:57,874
And if you needed your clinical trial, you could just go to
1547
01:38:57,899 --> 01:39:00,622
these hospitals that were not filling up the way they were
1548
01:39:00,636 --> 01:39:02,813
filling up with people with HIV.
1549
01:39:02,904 --> 01:39:06,148
You would see their Kaposi's sarcoma lesions that had been
1550
01:39:06,173 --> 01:39:08,078
bright and red and, um, big,
1551
01:39:09,778 --> 01:39:11,554
melting back into their skin.
1552
01:39:11,579 --> 01:39:13,257
They were calling it the Lazarus effect.
1553
01:39:13,282 --> 01:39:16,026
People who were deathly ill, would get put on this drug
1554
01:39:16,051 --> 01:39:18,262
and all of a sudden, they're working again.
1555
01:39:18,287 --> 01:39:20,328
That was a phenomenal feeling.
1556
01:39:20,689 --> 01:39:21,505
It worked.
1557
01:39:21,789 --> 01:39:24,072
You know, we did something remarkable.
1558
01:39:24,426 --> 01:39:27,600
So that breakthrough, you know, that we thought was
1559
01:39:28,195 --> 01:39:30,372
gonna happen in '88 or '89 if we
1560
01:39:30,998 --> 01:39:34,733
just worked fast enough, you know, it did happen.
1561
01:39:38,372 --> 01:39:40,277
But not until '96, and so...
1562
01:39:42,578 --> 01:39:44,394
You know, a lot of people died.
1563
01:39:44,579 --> 01:39:46,416
Maybe if Reagan had started
1564
01:39:47,416 --> 01:39:49,297
putting money into AIDS a little earlier...
1565
01:39:58,894 --> 01:40:00,663
They wouldn't all be dead.
1566
01:40:03,664 --> 01:40:08,107
I feel very fortunate, and there's probably a lot of
1567
01:40:08,636 --> 01:40:11,781
complicated reasons why, but I still find it very
1568
01:40:11,806 --> 01:40:14,709
difficult to plan for the future, and/or accept that
1569
01:40:16,444 --> 01:40:18,077
I will have a long life.
1570
01:40:20,716 --> 01:40:22,621
Which is unfortunate because
1571
01:40:23,318 --> 01:40:26,971
I've had a long life and I've been living with AIDS for 20 years.
1572
01:40:29,123 --> 01:40:31,306
But it's hard for me to relax into life.
1573
01:40:34,229 --> 01:40:38,976
I know lots of us went through really difficult times after...
1574
01:40:40,668 --> 01:40:44,226
Um, trying to figure out, well, what do I do now?
1575
01:40:45,273 --> 01:40:45,973
You know.
1576
01:40:46,408 --> 01:40:49,252
Not just because I didn't think I had a future and now I do,
1577
01:40:49,277 --> 01:40:55,440
so I have to make some plans, but... how do I do something else that is as...
1578
01:40:58,319 --> 01:41:03,535
I mean, it's a weird word, but as fulfilling as that work has been.
1579
01:41:04,960 --> 01:41:06,865
To be that threatened with
1580
01:41:09,864 --> 01:41:11,020
extinction, um...
1581
01:41:14,703 --> 01:41:16,472
And to not lay down, um...
1582
01:41:20,908 --> 01:41:22,949
To stand up and to fight back.
1583
01:41:27,015 --> 01:41:30,348
The way we did it, the way we took care of ourselves,
1584
01:41:30,418 --> 01:41:34,725
and each other, the goodness that we showed, the humanity
1585
01:41:36,557 --> 01:41:38,190
that we showed the world
1586
01:41:39,027 --> 01:41:40,524
is just mind-boggling.
1587
01:41:41,430 --> 01:41:42,518
Just incredible.
1588
01:41:45,533 --> 01:41:46,281
Fight AIDS!
1589
01:41:46,400 --> 01:41:47,100
ACT UP!
1590
01:41:47,569 --> 01:41:48,317
Fight back!
1591
01:41:48,837 --> 01:41:49,585
Fight AIDS!
1592
01:41:50,005 --> 01:41:53,972
Every single drug that's out there is because of ACT UP, I am convinced.
1593
01:41:54,443 --> 01:41:56,687
We had the brainpower and we had the street power.
1594
01:41:56,712 --> 01:41:58,588
We had the good cops and the bad cops.
1595
01:41:58,613 --> 01:42:00,628
The government didn't get us the drugs.
1596
01:42:00,716 --> 01:42:02,689
No one else got us the drugs.
1597
01:42:02,783 --> 01:42:06,234
We, ACT UP, got those drugs out there.
1598
01:42:06,654 --> 01:42:08,695
It is the proudest achievement
1599
01:42:09,557 --> 01:42:12,755
that the gay population of this world can ever claim.
1600
01:42:13,528 --> 01:42:16,505
We could do it because we could deliver hundreds and
1601
01:42:16,530 --> 01:42:18,571
sometimes thousands of bodies.
1602
01:42:19,000 --> 01:42:22,302
We had people with AIDS putting their bodies on the line,
1603
01:42:22,369 --> 01:42:26,958
flopping out in the streets, saying "fine, this is my body, take me away."
1604
01:42:27,341 --> 01:42:28,974
I drew the line there.
1605
01:42:30,679 --> 01:42:32,720
I didn't want to get arrested.
1606
01:42:34,315 --> 01:42:35,880
That far I wouldn't go.
1607
01:42:47,595 --> 01:42:48,479
??Keeping up,
1608
01:42:50,966 --> 01:42:53,647
keeping up with the feeling, oh, yeah ??
1627 01:42:54,269 --> 01:42:56,453 ??getting to know what you like
1609
01:42:57,671 --> 01:42:58,964
and what you love ??
1629 01:42:59,608 --> 01:43:03,779 I'd like to close with words written by fellow AIDS activist, Vito Russo.
1610
01:43:04,512 --> 01:43:08,690
"When future generations ask what we did in the war, we have
1611
01:43:09,717 --> 01:43:13,260
to be able to tell them that we were out here fighting, and we
1612
01:43:13,755 --> 01:43:17,909
have to leave a legacy to the generations of people who will come after us.
1613
01:43:18,993 --> 01:43:22,023
Remember that someday the AIDS crisis will be over.
1614
01:43:23,430 --> 01:43:26,938
And when that day has come and gone, there will be a people
1615
01:43:27,402 --> 01:43:30,998
alive on this earth, gay people and straight people,
1616
01:43:31,072 --> 01:43:34,484
black people and white people, men and women who will hear
1617
01:43:34,509 --> 01:43:39,349
the story that once there was a terrible disease, and that a
1618
01:43:39,613 --> 01:43:43,426
brave group of people stood up and fought... and in some cases
1619
01:43:43,451 --> 01:43:46,805
died... so that others might live and be free."
1620
01:43:48,222 --> 01:43:49,174
??And there's,
1621
01:43:50,158 --> 01:43:53,449
and there's, and there's no end in sight ??
1642 01:43:54,729 --> 01:43:56,566 ??and there's, and there's,
1622
01:43:57,565 --> 01:43:59,538
and there's no end in sight ??
1644 01:44:06,774 --> 01:44:08,970 We might have a federal charge against us...
1623
01:44:10,110 --> 01:44:10,810
Great!
1624
01:44:11,279 --> 01:44:13,048
Leavenworth, here we come.
1625
01:44:15,716 --> 01:44:16,804
...an invoice?
1626
01:44:24,792 --> 01:44:25,744
??Keeping up ??
1649 01:44:27,662 --> 01:44:28,614 ??keeping up ??
1650 01:44:28,930 --> 01:44:29,950 Green, green...
1627
01:44:31,600 --> 01:44:32,893
Ouch, that hurts.
1628
01:44:34,970 --> 01:44:37,191
??Keeping it up, keeping it up ??
1653 01:44:40,274 --> 01:44:43,285 Information is essential so that doctors and patients
1629
01:44:43,310 --> 01:44:45,560
can make intelligent treatment decisions.
1630
01:44:49,083 --> 01:44:50,160
Okay, all right.
1631
01:44:50,185 --> 01:44:51,853
Do I have to hold the red button?
1632
01:44:52,020 --> 01:44:53,449
No, you can let go.
1633
01:44:53,954 --> 01:44:55,632
I'm really glad to see everybody here.
1634
01:44:55,657 --> 01:44:57,086
You look really good.
1635
01:44:58,960 --> 01:45:01,508
??Try to keep up in time. ??
1661 01:45:02,296 --> 01:45:04,607 I'd like to suggest that we not be unethical, to do
1636
01:45:04,632 --> 01:45:08,574
a randomized trial of two different prevention programs.
1637
01:45:10,971 --> 01:45:14,937
If we don't eradicate HIV everywhere, we will never eradicate it anywhere.
1638
01:45:15,944 --> 01:45:16,896
??Keeping up ??
1665 01:45:18,880 --> 01:45:19,832 ??keeping up ??
1666 01:45:20,748 --> 01:45:23,981 We may march without incident or they may arrest us.
1639
01:45:24,719 --> 01:45:25,875
But it'll be fun.
1640
01:45:31,960 --> 01:45:33,797
...plane insky magazine.
1641
01:45:38,099 --> 01:45:40,020
??We're going to ad-min today. ??
1670 01:45:42,804 --> 01:45:47,497 ??and there's, and there's, and there's no end in sight ??
1671 01:45:48,710 --> 01:45:50,547 ??and there's, and there's,
1642
01:45:51,680 --> 01:45:53,653
and there's no end in sight ??
1673 01:45:57,886 --> 01:45:58,838 ??keeping up ??
1674 01:46:00,188 --> 01:46:02,229 In just over, um, two years,
1643
01:46:03,725 --> 01:46:06,562
um, that drug went from test tube to full approval.
1644
01:46:07,061 --> 01:46:08,908
??Heartbeat won't go slow ??
1677 01:46:10,332 --> 01:46:13,402 ??and when it's knowing you will be there tonight ??
1678 01:46:16,704 --> 01:46:17,656 ??keeping up ??
139919