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1
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Let's go.
2
00:02:06,370 --> 00:02:11,930
When you have kids, you just
want to imagine everything's going to be okay.
3
00:02:14,970 --> 00:02:20,330
For us, we can't hide in that
perfect future.
4
00:03:15,090 --> 00:03:19,650
You know when you have kids,
you're trying to control things,
5
00:03:20,890 --> 00:03:23,490
so one is possible, two,
6
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yeah, you can get control when
you have two kids, three is really stressful.
7
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When you get to four kids,
you accept chaos.
8
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Let's go.
9
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Mia was the first born.
10
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She's an A-type where it's like,
you follow me.
11
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Oh, my God.
12
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Leo is totally different from Mia,
you can't have more different.
13
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He has a lot of imagination.
14
00:04:12,170 --> 00:04:17,730
Sometimes I wish I could be in his head
because it looks so fabulous all the time.
15
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Colin, how can I describe him? He's...
16
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Weird kid.
17
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And Laurent.
18
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Laurent is our little philosopher.
19
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Life with four kids is never quiet,
so it's chaos.
20
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There's tantrum, there's like,
a meal to prepare, there's homework.
21
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We're just completely overwhelmed,
22
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so it seems like life
is just escaping you.
23
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You see each other every day
but there's not much time to connect.
24
00:05:10,370 --> 00:05:13,490
But after the diagnosis,
everything changed.
25
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Our kids were pretty young
when we learned that
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three out of four have
retinitis pigmentosa.
27
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So we have Mia, Colin,
28
00:05:34,530 --> 00:05:35,770
and Laurent.
29
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Leo is the only one that
didn't get the disease.
30
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Retinitis pigmentosa is a genetic disease.
31
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Basically, the cells in my kids'
retina are dying little by little.
32
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Blindness is a spectrum,
and everyone experiences it differently.
33
00:06:00,010 --> 00:06:02,410
But, with the condition my kids have,
34
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if your field of vision
is like that for a normal person,
35
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slowly it's going to be shrinking
36
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and shrinking until there's really
only the center that remains.
37
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You have this diagnosis,
38
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but what goes with it is that
we can't do anything about it.
39
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So, not only you're numb,
you're powerless.
40
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It's just too much.
41
00:07:05,050 --> 00:07:08,850
We walked out of the doctor's office and,
42
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we didn't really talk about it.
43
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I had dreams and an idea
of what my life
44
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and my family is going to be
in the future,
45
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and all of a sudden,
the rest of our story is a blank page.
46
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Like stepping in the unknown.
47
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No?
-No.
48
00:08:35,610 --> 00:08:41,530
For me, the hardest part with the
diagnosis was the inaction,
49
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'cause there's nothing they can
do about it.
50
00:08:47,010 --> 00:08:48,690
There's not treatment, there's nothing.
51
00:08:49,090 --> 00:08:53,250
You know, if there's anything
that I could do like,
52
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I don't know, a special diet,
exercise or,
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like I needed to get into action to feel
that I'm getting control over that.
54
00:09:02,050 --> 00:09:05,290
So, I met with a specialist
and she said,
55
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the best thing you can do right now
is to fill their visual memory.
56
00:09:11,490 --> 00:09:15,770
She was saying you can
open an encyclopedia
57
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and look at pictures of
elephants and giraffes,
58
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so, when they do go blind, they at least
have an image of what it looks like.
59
00:09:26,370 --> 00:09:29,450
That was something really
concrete that I can do.
60
00:09:31,010 --> 00:09:33,330
There's nothing compared
to the real thing.
61
00:09:34,610 --> 00:09:38,130
So, I said to Seb,
let's go see giraffes and elephants.
62
00:09:41,690 --> 00:09:45,530
Travelling the world is always
something that had been on our minds.
63
00:09:46,690 --> 00:09:50,690
and, we just put the two
together and said,
64
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okay, then, let's do it.
Let's do it now.
65
00:09:57,330 --> 00:10:01,330
Let's go all in and fill
their visual memory
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with as much beautiful
thing as we can.
67
00:12:21,610 --> 00:12:24,850
When you ask a six-year-old
which country do you want to visit,
68
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they have no clue.
69
00:12:27,810 --> 00:12:32,090
So we asked them, is you can
do any activity anywhere in the world,
70
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what you want to do.
71
00:12:35,930 --> 00:12:38,690
That's the famous bucket list.
72
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The backbone of our trip.
73
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Bye!
-Bye!
74
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You know the first one,
75
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I think that was unanimous.
76
00:12:53,690 --> 00:12:55,730
All the kids really wanted
to do a safari,
77
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so see the lions, elephants and giraffes.
78
00:13:05,650 --> 00:13:07,610
So he really wanted to sleep
in a train.
79
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Obviously.
80
00:13:24,010 --> 00:13:25,610
That was Mia's dream.
81
00:13:31,690 --> 00:13:33,410
Leo wanted to learn how to surf.
82
00:13:40,890 --> 00:13:44,530
Laurent, at some point said,
I want to drink juice on a camel.
83
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Like, really, why?
84
00:13:51,490 --> 00:13:52,890
Watch a desert sunset.
85
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See a sunrise on a mountain.
86
00:14:02,250 --> 00:14:03,770
Make friends in other countries.
87
00:14:08,250 --> 00:14:10,650
A Canadian couple is taking
their kids
88
00:14:10,770 --> 00:14:13,890
a year-long tour of the world
for a special reason.
89
00:14:14,890 --> 00:14:18,050
You are travelling and you are
homeschooling four kids,
90
00:14:18,370 --> 00:14:20,730
I can't even imagine,
where are you guys off to next?
91
00:14:25,370 --> 00:14:27,450
Thinking about this family
dealing with this,
92
00:14:27,810 --> 00:14:29,450
I think we all should seize the day.
93
00:15:00,610 --> 00:15:01,810
Let's go! Let's go!
94
00:15:32,290 --> 00:15:34,850
Once we had decided on our trip,
95
00:15:35,210 --> 00:15:37,930
the next step was,
how are we going to pay for that?
96
00:15:39,450 --> 00:15:43,890
It was possible but,
we would put all our resources in there.
97
00:15:45,130 --> 00:15:47,570
Do we have to rent the house,
do we have to sell the cars?
98
00:15:49,730 --> 00:15:52,130
But, not long before we
left for the trip,
99
00:15:52,450 --> 00:15:55,450
the company Sebastien was
working for got sold
100
00:15:55,610 --> 00:15:57,810
and he had shares in that company.
101
00:15:59,370 --> 00:16:02,930
They gave us a financial flexibity
to say, we can do this,
102
00:16:03,090 --> 00:16:05,810
you know, within our
200 dollar per day budget.
103
00:16:10,450 --> 00:16:13,650
And that's where I came up with,
well, we're going to go camping,
104
00:16:13,770 --> 00:16:16,250
we're going to go in youth hostels,
we're going to stay close to the people,
105
00:16:16,330 --> 00:16:18,130
we're going to stay in these homestays.
106
00:16:27,250 --> 00:16:29,130
No. No.
107
00:16:29,850 --> 00:16:33,770
No. Oh, my God.
Oh, my God.
108
00:16:36,290 --> 00:16:38,490
So tomorrow it's the night cruise.
109
00:16:38,770 --> 00:16:42,770
My kids, three of my kids don't
see in the dark at all, not at all.
110
00:16:44,050 --> 00:16:46,450
But maybe we can do the
first one and then decide
111
00:16:46,610 --> 00:16:48,490
which one of the two we
want to do.
112
00:19:48,370 --> 00:19:51,250
Right now, it's only their
night vision that's gone.
113
00:19:52,250 --> 00:19:55,090
So that means that,
when there's less light,
114
00:19:55,770 --> 00:20:00,090
they lose vision a lot quicker,
where you don't see in the dark.
115
00:20:56,170 --> 00:20:57,210
Okay, okay, okay.
116
00:24:44,170 --> 00:24:48,130
For some people, going on a backpacking
trip with four kids
117
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is just an insane thing to do.
118
00:24:51,010 --> 00:24:54,170
but, the only way to find out
is to try it.
119
00:24:59,490 --> 00:25:00,890
That's one of my items,
120
00:25:01,010 --> 00:25:04,090
I really wanted to go hiking
several days in the mountains.
121
00:25:05,490 --> 00:25:08,810
We were not sure if it was
a little crazy to do that.
122
00:25:10,610 --> 00:25:15,010
But, where better than the Himalayas
to push the limits?
123
00:27:40,890 --> 00:27:45,170
So, now we're in...
-Now we're in Genou. -Yeah.
124
00:27:46,890 --> 00:27:49,250
We're hiking nine days
to the Poon Hill lookout.
125
00:27:49,970 --> 00:27:52,610
Which is 3,300 metres above sea level.
126
00:27:53,770 --> 00:27:55,770
We'll celebrate Leo's birthday at the top.
127
00:32:40,570 --> 00:32:44,450
In the Himalaya, I took
so many pictures it's insane.
128
00:32:47,050 --> 00:32:50,730
With very little central vision
you can still see pictures.
129
00:32:52,370 --> 00:32:55,530
So for me it was
a way to take that grandness
130
00:32:55,770 --> 00:32:57,970
and put it in a little picture,
131
00:32:58,530 --> 00:33:00,890
for them to be able to see later.
132
00:33:03,250 --> 00:33:04,290
Let's go.
133
00:33:05,090 --> 00:33:08,050
You know, you see all the pictures
and you imagine your kids,
134
00:33:08,210 --> 00:33:11,450
you know, the sun rising,
but you forget the part that
135
00:33:11,570 --> 00:33:15,970
they're tired, cranky, it's cold,
and they need to hike that mountain.
136
00:33:18,090 --> 00:33:22,410
Sometime, you know, it's not
as magical as you imagine it can be.
137
00:35:40,890 --> 00:35:43,850
I knew Laurent knew he was
going blind,
138
00:35:44,570 --> 00:35:49,690
what I didn't realise is that he didn't
know what it meant to be blind.
139
00:35:54,090 --> 00:35:56,530
So, we were on the road,
140
00:35:57,370 --> 00:36:02,050
and all of a sudden he turns around,
mommy, what does it mean to be blind?
141
00:36:04,290 --> 00:36:07,010
And, like that question was just like,
142
00:36:07,370 --> 00:36:10,490
an arrow through my heart,
like I stopped breathing.
143
00:36:14,570 --> 00:36:18,130
He was only five,
So, I just answered simply,
144
00:36:18,930 --> 00:36:21,690
it's just like if your
eyes are always closed.
145
00:36:25,130 --> 00:36:27,330
But that moment,
146
00:36:27,570 --> 00:36:32,370
I just felt that I
somehow ended his innocence.
147
00:40:42,450 --> 00:40:43,490
Let's go.
148
00:40:45,730 --> 00:40:46,810
Let's go.
149
00:43:33,530 --> 00:43:35,290
I don't know anybody
who's blind,
150
00:43:35,810 --> 00:43:39,890
like in my family, around me,
I don't know anything about blindness.
151
00:43:42,090 --> 00:43:46,050
The first thing I did
when I got out of the doctor's office
152
00:43:46,170 --> 00:43:52,530
it was go onto the internet and read
as many research paper as I could.
153
00:43:53,410 --> 00:43:56,170
But, that didn't help me much.
154
00:43:59,290 --> 00:44:03,610
I was angry, I was like,
why does this happen to us?
155
00:44:10,770 --> 00:44:14,290
You need just a lot of time
for yourself to process it,
156
00:44:15,410 --> 00:44:19,170
and to go through the
anger and the sadness.
157
00:45:31,570 --> 00:45:32,610
Maybe.
158
00:46:49,130 --> 00:46:52,610
I remember the first time I
realised that she couldn't see stars.
159
00:46:55,490 --> 00:46:57,730
Those are the first things that
160
00:46:58,410 --> 00:47:03,410
you know they'll never be
able to see and there's no going back.
161
00:47:05,250 --> 00:47:10,850
That's the first things you need
to say goodbye to.
162
00:47:15,210 --> 00:47:20,530
You know, it's going to be like that
with so many things in the future.
163
00:50:31,050 --> 00:50:32,090
Wow.
164
00:54:11,250 --> 00:54:12,330
Okay?
165
00:57:17,450 --> 00:57:19,370
Oh, my God.
-Hello!
166
00:57:24,250 --> 00:57:26,370
Take care, take care, please.
167
00:57:29,810 --> 00:57:30,890
Take care.
168
00:59:02,170 --> 00:59:03,610
I never seen her like that.
169
00:59:06,690 --> 00:59:10,530
That moment for her
was a reminder of what's coming.
170
01:02:24,530 --> 01:02:27,530
Yeah, Gustavo seems to be, like,
171
01:02:27,650 --> 01:02:31,410
has as much energy as Leo.
Like a lot of energy.
172
01:05:11,810 --> 01:05:14,050
Actually, I remember mine.
173
01:05:14,970 --> 01:05:18,330
Um, it was Leo, my second son.
174
01:05:18,850 --> 01:05:24,410
And his face caught on fire
and he got badly burned by the fire.
175
01:05:26,810 --> 01:05:29,930
In the dream I wasn't
panicking but, still,
176
01:05:30,290 --> 01:05:33,210
that dream like, stayed with me.
177
01:05:33,450 --> 01:05:35,250
Because I knew it meant something,
178
01:05:35,490 --> 01:05:40,050
and I feel it's not something good,
but I can't figure out what it means.
179
01:09:52,290 --> 01:09:54,570
Let's, let's go guys.
Please, let's go.
180
01:14:30,930 --> 01:14:32,050
Have a good day.
181
01:15:15,290 --> 01:15:16,530
When we did that trip,
182
01:15:16,810 --> 01:15:20,850
we were so focused on filliing
their visual memory,
183
01:15:21,570 --> 01:15:24,930
we didn't see how
wonderful it would be
184
01:15:25,250 --> 01:15:27,650
to watch them grow and
discover the world.
185
01:15:29,730 --> 01:15:32,410
It was an amazing gift.
186
01:15:41,450 --> 01:15:43,450
But, they grow up.
187
01:15:47,130 --> 01:15:50,290
And little by little
they'll have their own life.
188
01:15:54,050 --> 01:15:57,770
Their own world outside
of the family.
189
01:16:00,650 --> 01:16:03,850
That's the hardest thing about
being a parent is letting go.
190
01:16:05,090 --> 01:16:07,530
And that's what you do
all their life.
191
01:19:57,050 --> 01:19:58,970
Bye!
-Bye!
15607
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