Afrikaans
Akan
Albanian
Amharic
Arabic
Armenian
Azerbaijani
Basque
Belarusian
Bemba
Bengali
Bihari
Bosnian
Breton
Bulgarian
Cambodian
Catalan
Cebuano
Cherokee
Chichewa
Chinese (Simplified)
Chinese (Traditional)
Corsican
Croatian
Czech
Danish
Dutch
English
Esperanto
Estonian
Ewe
Faroese
Filipino
Finnish
French
Frisian
Ga
Galician
Georgian
Greek
Guarani
Gujarati
Haitian Creole
Hausa
Hawaiian
Hebrew
Hindi
Hmong
Hungarian
Icelandic
Igbo
Indonesian
Interlingua
Irish
Italian
Japanese
Javanese
Kannada
Kazakh
Kinyarwanda
Kirundi
Kongo
Korean
Krio (Sierra Leone)
Kurdish
Kurdish (Soranî)
Kyrgyz
Laothian
Latin
Latvian
Lingala
Lithuanian
Lozi
Luganda
Luo
Luxembourgish
Macedonian
Malagasy
Malay
Malayalam
Maltese
Maori
Marathi
Mauritian Creole
Moldavian
Mongolian
Myanmar (Burmese)
Montenegrin
Nepali
Nigerian Pidgin
Northern Sotho
Norwegian
Norwegian (Nynorsk)
Occitan
Oriya
Oromo
Pashto
Persian
Polish
Portuguese (Brazil)
Portuguese (Portugal)
Punjabi
Quechua
Romanian
Romansh
Runyakitara
Russian
Samoan
Scots Gaelic
Serbian
Serbo-Croatian
Sesotho
Setswana
Seychellois Creole
Shona
Sindhi
Sinhalese
Slovak
Slovenian
Somali
Spanish
Spanish (Latin American)
Sundanese
Swahili
Swedish
Tajik
Tamil
Tatar
Telugu
Thai
Tigrinya
Tonga
Tshiluba
Tumbuka
Turkish
Turkmen
Twi
Uighur
Ukrainian
Urdu
Uzbek
Vietnamese
Welsh
Wolof
Xhosa
Yiddish
Yoruba
Zulu
Subtitles by explosiveskull
You ready?
I'm gonna plug it in.
- Ready? - Yup.
- Good night. - Good night.
I appreciate it very much.
Oh, you're very, very welcome.
Blackie. Want some food? Come on.
Good boy.
Sit. Sit.
God bless this little guy, amen. Okay.
Hello?
Yeah, next Friday,
- I gotta go in towards town. - Yeah.
I'm having a hard time rounding up a ride
with somebody that has a clean vehicle.
I was wondering if you wasn't doin' anything next Friday,
if you had time, if you'd be able
- to give me a ride in there. - Okay.
And have you already sort of cased the parking lot
and things like that?
Do you know that you can get in the building?
No, I don't know.
Hi, my name's Susan Malloy, and I'm taking a friend
to the doctor's to see Dr. Peterson on Friday the 12th.
For what? Peterson?
Yes, do you remember off-hand
when your pest-control company comes?
Uh, our pest control? No, I have no idea.
How can I find out?
About the maintenance schedule and pest control schedule?
Uh, hold on.
He comes the first of every month.
Okay, that's good for our purposes.
Yup.
Okay, and that's the pest-control guy?
- Yes. - All right.
Do you know if he's treating for ants
or anything in particular?
He's just treating for everything.
Like some kind of broad spectrum?
Okay. How about carpet shampoo?
I'm not sure, hold on.
I don't know how long it normally takes
for people to get significantly better.
You know, what do people normally do?
Get out of the line of fire.
Figure out what is triggering her symptoms
and get it out of the house.
There are a surprising number of people here
who found out once they get rid of some
of the chemical exposures.
What seems to really hurt is electronic equipment.
You know, computers and routers and cellphones
and things like that.
Okay, I'll tell her that.
We're trying as much as we can.
Out of where?
I know, sweetie.
I don't, um...
I don't have any miracles. I wish I did.
First saved voice message.
Hi, Susan, this is Jamal from the STC.
You can do a Google search on STC radio frequency safety
and from reading that, there does seem to be
a rule making that might be currently underway
so there might be an opportunity to submit
feedback in that rule making.
Their dad's a musician, and they grew up...
like, he wasn't around after the first few years
but they grew up around music with me
and him and just sort of...
uh, it's just kind of part of us.
I really just usually am feeling melancholy,
and I pick up the guitar, and I'm usually...
I'm mining that vein, you know?
That's Nathan playing his guitar.
They were more functional, you know, a while back.
Ah, let's see, these were made when we were living
in San Mateo and probably about the time
they moved over, maybe.
Well, that was Karen.
Must've been something funny going on.
I don't know what.
This is when they were leaving, how optimistic they were.
So are we forgetting anything?
It's a short one today so, uh... there's water,
and then there's lettuce, banana.
12 quarts of juice.
You hang on to the fact that God has promised to take care of us.
You know, I've talked to the pastors
at different times about this, you know, and one'll say,
"Well, some things you can't fix," you know.
He said, "Well, you just gotta draw a line in the sand
and do nothing."
And I said, "That's not an option."
I think it's a birthday greetings of some sort.
Uh-huh. 39, getting up there.
Did she do a drawing?
Uh, somebody did.
Thank you.
Karen was only 17 when she really became ill.
She would react rather severely to certain things,
but she couldn't really pinpoint it, what it was, you know.
She was ill when she was carrying Sam and Nathan.
I guess they just absorbed the problem from her.
The doctors said they should get someplace
where it would be healthier to be.
She should go where it's cleaner and drier air,
and they knew about Arizona, so that's why they came over.
I sold my place over in California, you know.
When I did that, we had the resource to do the house.
And now they've had trouble with neighbors
and spraying and stuff like that.
I guess it's been 20 years ago
that they actually got really...
had to be in bed a lot, you know.
And that's half their life, you know?
She hasn't allowed people to go in.
You wonder when it's gonna turn around
and do a little better, you know?
Yes, I need to refill prescriptions.
I do.
Okay, there are three of them,
and they're all for Joe Fasciulo.
F as in Frank,
A, S as in Sam.
I don't know how to tell you to prepare
for this show you're gonna see.
I am so entertainment deprived.
It'll be like "The Ed Sullivan show" right there.
I don't get to see my granddaughters very often
so just to get to see them is...
I'm gonna go down there without my mask
I just want them to remember me...
without the mask.
Yup.
They're not bothered by the mask.
I'm bothered that they'd point at me.
They don't point at you.
You know they do.
They point at you?
They point at the mask.
Well, okay, they do.
If something's gonna hurt me a little bit
I'm gonna have to make a sacrifice.
I'm gonna choose to do it when they're here.
You get pretty good when you're around them.
I know, 'cause I don't want them to see this.
Jojo!
Hi, Mimi Rue.
How are you?
I bet you like my sister's piggy tails?
Your sister has piggy tails?
You gonna go see Jojo?
Oh...
They're just like "Pick 'em up Joe."
Look at those pigtails. I haven't seen that before.
Say, "They're gettin' long."
Here, Joe, sit here.
- No, I'll stay over here. - Okay.
♪ One little monkey swingin' from a tree ♪
♪ Teasin' Mr. Alligator, can't catch me
♪ Oh, came Mr. Alligator, quiet as can be
♪ He snapped that monkey right out of that tree ♪
Gonna come play castle with us?
Oh, right here.
Oh, here's the fence.
With this?
Watching them play is what I would normally do, you know?
Okay. Hm, how does it go?
I forgot.
What do you want? Do you want this?
Yeah, I do, I'm sorry.
Oh, this is a new experience, isn't it?
I'm sorry, people.
The girls don't seem to mind, do you?
Chloe, is that good?
♪ The wheels on the bus for round and round ♪
♪ All through the town ♪
♪ The wipers on the bus go swish, swish, swish ♪
♪ Swish, swish, swish, swish, swish, swish ♪
♪ The wipers on the bus go swish, swish, swish ♪
♪ In our house ♪
♪ Babies on the bus go wah, wah, wah ♪
♪ Wah, wah, wah, wah, wah, wah ♪
♪ The babies on the bus go wah, wah, wah ♪
♪ All through the town ♪
♪ The mamas on the bus go shh, shh, shh ♪
♪ Shh, shh, shh, shh, shh, shh ♪
♪ The mamas on the bus go shh, shh, shh ♪
♪ All through the town ♪
- Did Jojo go upstairs? - Shh.
Shh, he's sleeping.
Did he go night night?
He's not sitting on the stairs, we can show you.
Here Remy, look, he's not right here.
- He went to bed. - He went to bed. See?
Say "night night."
Good night.
This radio is an at-home way to figure out
if any electrical appliance is spewing out
electromagnetic fields.
You want one that's real staticky
and gets between stations.
There's nothing magic about it.
It's usually enough if I can find out,
"Hm, that's a really serious emitter."
And then unplug it.
Get it?
Hi.
I... I hope you're Delaney.
- I am, yeah. - Hi.
Hi, good to meet you. Hey, buddy.
Yeah, this is Blackie.
I love your shoes!
Oh, thank you.
Where would you like to sit?
Um, well... let me see.
You can sit with Blackie on the bed.
- Uh-huh. - You can have a chair...
I'll just sit here, and when we talk,
maybe we can rearrange a little bit,
but for now, this is good.
Your coat smells like cigarettes.
- Does it? - Yeah.
- Okay, I'll take it off. - That'd be nice, thanks.
Okay, um, where should I leave it?
- Outside on that chair. - Okay.
Delaney do you like ginger better
or coffee better or both?
- Um, coffee sounds great. - Okay.
- I still smell cigarettes. - Okay.
Um... what would you like me to do?
- I'm not quite sure. - Okay.
Do you know if it might be on your clothes or hair?
Well, I don't smoke, so it would be coming
from the environment, I guess.
If you wanna smell me, that's fine.
Maybe you have a social life and you get to go out
around people who smoke.
I'm gonna get close to you for just a sec, okay?
Sure.
Shirt.
- It's the blouse, maybe. - Okay.
Do you mind if I give you something else to wear?
- No, not at all. - Okay.
Here, this might be a good start.
Great, thank you.
Okay.
I really like your shoes.
Could you just introduce yourself
and talk a little bit about who you are?
My name's Susan Malloy and 1992, '94,
was when I first... moved here,
lock, stock, and barrel as they'd say.
And I'd been living in the San Francisco Bay area
for a long time before that for graduate school
and to work on projects.
Could you sort of describe the day
or the night when it all hit you?
Oh, I was with friends, and I'd had plenty of exposures
to all kinds of things,
but I didn't really think much of it.
And that night, I felt this just bizarre feeling in my head.
And my sinuses and the palate of my mouth and my throat,
all swelled closed.
That was the beginning, that was the first of many
emergency room visits.
It can be your food, it can be mold in the bathtub,
it can be anything that you're sensitive to.
In my case it was chemical.
And soon I found out about electrical problems, too.
Cleaning products were impossible.
I learned to use baking soda for almost everything.
And when I got here, I didn't have any choice
but to notice I could walk pretty well.
My gait changed.
My speech cleared up a lot.
I had to admit I felt a lot better down here
and I had to take it real seriously.
I got this book. You know Rush Limbaugh?
He's written this children's book.
Very interesting.
It's a history of our country,
and it's... written to children to show them
how this country's began and all the pilgrims,
so it's really interesting.
- Hey, Sam! - Yeah?
- Can you see this? - Um, yeah.
Isn't that funny?
Wow.
I'm just reading the part where he's time traveled
back to the Mayflower.
- Huh? - I'm just reading the part
where they time travel back to the Mayflower.
Oh, who... who's traveling?
Well, he's substituting as a history teacher at school.
Uh-huh.
And so they go on the horse back in time
to visit all these different things.
So he's going back in time?
Yeah.
The horse talks,
and the horse can disappear if it wants to.
Okay.
It's a good book.
- Did he write it himself? - Yeah.
That's pretty heavy.
It is heavy, what happened?
I'm still doing this at 96.
And there's Sam and Nathan that their mom is there
to depend on but she won't always be there, either.
I sometimes feel like I've helped them to their doom
is how I feel sometimes, you know.
Which I can't tell them that, of course.
Cows versus trains, cows.
Oh.
Bartle Hall versus Nelson.
Nelson.
Yeah.
- Do you want company? - Huh?
Do you want company?
Yeah.
Oh, I'm picking up some fragrance from you.
Let me see what it is.
I think it's that. Let me see this.
Just zip it.
I think you're fine like that.
I'm actually gonna put my hoodie on.
It might not be a bad idea with the filters kicked down.
Okay.
The easiest way to relate is that he has
really bizarre food allergies or, you know,
he's allergic to everything.
But that doesn't really sum up...
what's going on.
But that's what people understand.
We weren't ever having someone's, you know...
the medical community say it's in his head.
We never had anybody say that.
However, nobody could really validate other...
not that it wasn't in his head or was in his head,
but they couldn't validate physically
what was going on with him because the unknown
is just so hard.
You know, it'd be a lot easier if you knew
that it was gonna end and, you know,
just not knowing "Is this ever gonna end?"
And I think that's where we all kind of are
right now 'cause it certainly has changed
the family dynamics a lot.
He had had a lot of blood in his stool
and went to our family doctor here
who had a colonoscopy ordered, and they couldn't find anything.
Then he started having trouble at work
with his colleagues.
Their personal hygiene, their shampoos,
things like that.
He would notice more blood in his stools.
His feet and his hands tingling,
having a really bad headache, being nauseated all the time.
And I'm starting to see the correlation.
Whether it's changing the oil in the car
or painting a room, you flare up.
And we've really protected him
against these chemical sensitives.
But you can't protect him against, you know,
all the electronics.
He can feel it.
He's pretty isolated, pretty solitary in what he does.
He's out there walking just to get
out of the house so that we can turn on the furnace,
have the washer and dryer running,
get caught up on finances so that I have to pay
bills on the internet.
And does he tell you about when he walks his loops?
He'll say loop one is for Lanie 'cause she's my one true love.
Then when I'm halfway around, I go, "What number am I on?"
And then I go two, two is for Joe and Lanie.
Three.
My son has three kids.
Iso, Lucia, Remy.
10 was Lanie's number in high school,
whenever she played sports, she was number 10.
Then I can start with Lanie and end with Lanie,
so I get the whole family.
We're hoping we get him down to Texas
in these new little cottages that are made
specially for people with chemical sensitivities and EMF.
But I think here we keep him...
more engaged in life outside of the illness.
I'm worried that we're gonna lose
that influence with him once he's down there.
And that sounds kind of harsh,
but I guess you have to know what he was like before.
Who is it? Who do you see?
Jojo. Jojo.
- Yeah. - Yeah?
You just see Jojo?
For some people, they just wanna turn back the clock
and see if they can get their life back
to what it was before they got sick, and...
that's not possible.
I thought I was gonna be...
maybe an art-history librarian,
maybe work at a museum, maybe get to travel more.
I'm glad I got to travel when I did.
This is what I slept in when I was in Indonesia.
This is my blanket.
I just love it because it reminds of sleeping there.
This is a beauty.
It smells really neat.
Sometimes I put water on it, you know,
and I swear, you can still smell camel.
And these are from a different part of my life... you know?
Maybe what I miss is I had the ability
to take risks in other places and learn things.
If I would've got my wish and been able
to be a librarian, you know what would've happened?
I do.
The museum would've fumigated,
or used preservation chemicals,
or gotten a new carpet,
or done construction and built on.
Something like that would've happened,
I would've got sick anyway.
You asked me if I felt bad about Sam and Nathan...
but I was thinking about that last night,
and one of the hardest things for me has been my mom.
Just the effect on her of all this.
That's been harder for me.
I'm just gonna say goodbye!
You're welcome.
Alright, love you, too!
So I'll see you later!
Bye.
Give you an imaginary hug.
Maybe you could just elongate "lose?"
It didn't matter to me, which...
It don't sound like you totally have it ironed out.
No, I'm gonna give it a shot here.
Well, it's kind of a process.
♪ Backdoor old man ♪
♪ Is fate just only circumstance? ♪
♪ Can we find a way to save our souls? ♪
♪ And save our souls ♪
♪ Now we're third in line ♪
♪ We got a little time ♪
♪ Cars ahead are movin' slow ♪
♪ And we both know ♪
For some reason, I had the idea that it was,
"Is it fate or only circumstance?"
Yeah, we had... we didn't... we had a couple ideas.
Yeah I think you were saying,
"Is fate just only circumstance,"
or can we, like, do something about it?
Can we make it a choice?
I don't find illness that interesting to write about
because usually when I'm writing, I'm writing
from emotion and it's kind of just the human experience.
And so, I... I guess I don't find
the illness is as interesting as I find... the...
just the human... the... the...
the way it affects my soul, I guess, or spirit or...
and what's more interesting, the cage or the prisoner?
I don't see it.
Okay, I'm gonna have to ask him where it is
'cause I don't see it.
That's it.
Yes?
The closet?
Yes, was it on?
Yes.
All he can think about now is somebody's got a cellphone,
how it's gonna hurt him.
I think part of it is he just doesn't know
what's gonna happen.
A lot of is that he's really scared.
And so it's tough when this has never
been our relationship before.
It's kinda like, you know... I said to him last weekend,
"You have me, but who do I have?"
You know, 'cause he's not an emotional support to me anymore.
He was my rock and, I mean, even to say
"How was work today?" or "What fun things went on?"
I mean, we... those aren't even conversations we have anymore.
I just feel like I'm less some mornings...
when I talk like this.
I just always thought if I'm gonna say these things,
I'm need to say 'em to him and I can't say
them to him anymore.
Will anybody give me a kiss goodbye?
Bye-bye.
- Bye. - Bye.
I love you girls.
We love you, Jojo!
- Love you, Jojo. - I love you too, Joycey,
Thank you so much.
Do you wanna put those supplements in here?
That's what I was gonna do.
You going to D.C.?
You going to D.C. right?
You gonna take the long train? Just one-way?
All right, she needs to...
This is our daughter, Meg.
- You haven't met Meg. - Hi.
All of the Internet and TV comes into the mechanical room
and I can shut it off there for people who don't want it.
I have TV and Internet in there right now.
So if you want that one, I need to shut it off
in the mechanical room so it doesn't come into the building.
And this one doesn't have it right now because
- a person didn't want it, so... - Okay.
- Do you want the lights off? - Yeah.
You shut this off, there's no power
going to that over there in the bedroom.
Same thing with this, you shut this off,
there's no power going to that.
And there are no other plugs in here
so you're plugless and outlet-less in here.
All the walls have double foil and copper wiring,
and the windows are all grounded.
EMF people get those EMF mats that they put on their beds.
You're supposed to ground 'em, so we just put
a grounding rod in before we pour the foundation.
EMF mats that you just sleep on?
Mm-hmm. It's supposed to ground you.
Well, with the double magnesium,
you can't get a cellphone signal in here,
and you're not gonna get anything from the outside.
And all of the wirings underground's in-conduit.
There's no wires in the walls.
I'm picking a little bit of fragrance up in here.
I don't know what... what it is.
I think it's the potassium silicate paint.
It's basically clay.
You know, I suppose something...
it could have an odor or not.
"Dear Mike and Bonnie,
"For months, I've been wanting to write or call
but days keep being too short and too tiring
and going by in a fog.
That is the hardest part of this illness.
It affects the brain so much
and imprisons us inside ourselves.
When you're that impaired, it can really
make you feel like dirt.
For instance, going to the store each day,
"people usually notice that you're not acting
like everyone else,
but they don't really know what's going on.
Things like wandering around the store
and not being able to make a decision.
Not being able to talk straight and generally
looking and feeling like something
that the cat dragged in.
People can be very impatient and unkind at these times,
and when you're already not feeling well
you begin to feel like the scum of the earth."
♪ Woman in an old t-shirt ♪
♪ Woman in a dress ♪
♪ Woman in some old jeans ♪
♪ Woman in a vest ♪
♪ That's the kind that I like the best ♪
♪ Woman in a... ♪
"We don't have good days or good times of the day.
"We have moments.
We have good times in moments."
♪ A woman in distress ♪
"We laugh and pray
and sing and talk in moments.
The rest is grueling and hard and marathon.
But thank God for the moments."
You'll find the Policy Priority Movement.
There's a lot of issues in there.
Find the ones you're passionate about.
That's what you want to talk about
as an individual advocate if you get an opportunity
to talk to your legislator.
If you all have questions on the things
that the subcommittees have been talking about,
catch up with 'em.
You see their faces. They're gonna be around today.
We're gonna have caucus sessions this afternoon.
It's a perfect time to grab one of 'em
if you have a question and delve into things deeper.
I definitely will be using you as a consultant.
See, a lot of these Mexican kids that grew up
- in migrant farm camps? - Yeah.
- I'm one of them. - They're sprayed.
I used to work in California, in Del Nuevas,
Sultana, in the grapes and the orchards
and they used to spray those.
See, I was eight to 12 years old when I work on that
As a result I only have 40% of my lung capacity.
- See? - Oh, no.
But we... we were all in there earning a living.
Farmers in the state, they never bothered
to put out these signs saying "Environmental hazard"
or never held the ranchers to any... any standards.
- Yeah. - So I definitely will support
what you're doing and get involved with it.
Are you familiar with the Willamette Valley in Oregon?
- Yes, absolutely. - I used to work there
in the summers when I was a kid
picking string beans and strawberries.
- Strawberries, I did, too. - All the stuff.
- We'll talk some more. - Good to meet you, yeah.
- Good to meet you. - Okay, see ya.
See ya.
Yeah, you may be the first person
in the last two years that has said that...
I'm chem... that I am fragrant.
It's unbelievable that you're telling us we're fragrant.
It's bullshit.
She's basically saying "stay away from my unit."
And I'm saying, if I don't have the right
to move around anywhere on these premises, fuck you.
Especially if the reason is I'm fragrant.
I'm already pissed that I don't have...
that I know she doesn't want me near that unit.
I just cann... you c... you just know it.
Well, yeah, she was waitin' for us when we came out.
She was lookin' out the... out the...
From this side... yeah, outside of...
from the sidewalk,
it's basically community property.
But you... you know, when you violate their space,
then you run the risk of them doing something
that you can't deal with.
She had her cellphone in a plastic bag.
Yeah, she probably doesn't like the smell.
So she probably doesn't have the electric problem.
She probably doesn't like the smell.
So she probably is more sensitive.
And maybe we have...
you guys have all been in Whole Foods.
We probably are fragrant, truth be told.
I should understand that better than I do,
but it's a what of crazies.
- Concentration. - Concentration of crazies.
That... that's not fair, though, I think...
I mean, that's not fair.
- It's not all fair. - No.
But there's truth to it.
No, it... I think it's just everybody's issues
- are so... so... - Concentration of very ill people
who all have to protect themselves in different ways.
I don't know.
I don't know.
I don't know, I think about being here
and tolerating it by yourself,
or being at home and tolerating it
and knowing that you have family and granddaughters
and all of this swarming around...
I don't know... why you would make that choice.
I agree but I think that if he would stay here
for a little bit, he would regain
some of his independence, and it would be easier on you.
Like, if he were here by himself even for a month,
he would be forced to cook for himself
and realize that he can do it.
But... I don't know.
Well... everything, for the last two years
has been about him,
and I just do whatever I can to...
for him, that I... that...
what I need or want or... doesn't really
play into the picture right now.
I guess that waits until after he's healed if he's gonna heal.
I don't... I don't know.
I don't think that's healthy, though, mom.
Because... I don't know that he's ever gonna be
exactly how he was before.
And I don't think it's fair for you...
to just...
like, you guys have to find a new normal together,
and it shouldn't be just you doing everything
at his beck and call.
You know, from the inside of my head,
it feels very hard and not working very well.
We have a few places that are the possibility areas.
We need to be somewhat rural,
but there are places like in the Verde Valley
where you're kind of rural even though you're near, like...
even though you're maybe less than five miles away from...
Yeah, and there's a lot of forest lands around
so that it... there's open spaces a lot.
Yeah, there's more spread out.
It's not the suburbs, you know.
We know a couple people that live there already.
One lady in particular.
We're trying to find somewhere that would work for us.
♪ There's a big marquee ♪
♪ With some glowin' lights ♪
♪ Sayin' hey to everyone ♪
♪ Who needs to sleep tonight ♪
♪ You can bring your credit card ♪
♪ And we'll get it done ♪
♪ You may have already won ♪
♪ Down at the Slots of Fun
♪ You can raise your kids ♪
♪ And kiss your wife ♪
♪ Or you can bring it all right down ♪
♪ And bet your life ♪
♪ Everyone gets a winning hand ♪
♪ Buddy, you've had none ♪
♪ You may have already won ♪
♪ Down at the Slots of Fun ♪
♪ Now you may turn out to be someone ♪
♪ Down at the Slots of Fun ♪
ADAbasics.org and go there and check it out.
Beginner's course on the law, on the ADA.
Now, just a second, Susan.
This is beyond beginning ADA.
This is surveying for accessibility
and how to do assessments
and protect all of our credibility in the community.
Susan?
Okay, I think one thing that would help us
would be when you make a sta...
when someone makes a statement like...
that the... you know, the lighting in the walls
and the type of carpet and so forth
doesn't impact accessibility.
I think it's helpful to say,
"except for certain people, for whom those are barriers,"
and then go ahead and explain it to a degree.
And I appreciate your comment.
Susan and I go back a few years
in working on multiple chemical sensitivity,
electromagnetic sensitivity, MCS, CS issues,
and she has taught me so much.
I appreciate your input, and what I may do
is reach out to you later on this year
as I'm finalizing the agendas
and run it by you as far as your input.
Thanks for your question.
Let's keep moving, so I can cover everything
on this, and then if I've got a couple minutes at the end,
we're gonna for Q and A...
I want them to come to you.
I don't want them to come to me
'cause I'm not the end-all expert on this,
but you guys are, and by referring them to you,
it gives you an opportunity to not only share the message,
but to grow the network
and add credibility to the network.
If I can turn 'em on to somebody who's a real expert
on the issue, I wanna be able to do that
'cause then I can go work on something else
where I don't have somebody to refer them to.
But you know what, it helps when it comes out of your mouth.
- But the referral will help. - Really a lot.
If I'm... if I'm able to... if they're coming to me
because they think I'm the... the all-wise Mark
and I say, "Here's a resource for you
that you've been looking for, and she's a buddy of mine."
Start right away sending me the stuff you're talking about
that you think is appropriate for me to look at.
Molding into the curriculum,
and then once I start to mold it,
I'm gonna send an outline to you to say,
"Susan, what do you think of this?"
- Love ya. - Wanna give you a high one?
- What's this? - High one.
High one? Excellent.
I've learned a new one today. Thank you.
That's when you have low expectations.
Oh, really?
I feel like I'm in this all by myself.
I feel like I'm doing this all by myself.
So I... and... and I know... I'm not.
I mean, everyone tells me how lucky I am
to have the support system I have.
And I know... I know I have a support system.
And I can tell people that I have
a fantastic support system, but when I go to bed at night,
I still feel like it's me that is in this room.
It's me who is stuck like this.
You're not the only one that's lonely.
So don't... you can't play that card.
You're not gonna be happy until...
or unless we're all sick, too.
- No. - Yes.
No.
This is kind of how I feel.
And I can't say it.
No, go ahead.
It's all right.
T-tell me.
You might as well tell me, this is gonna...
It's just gonna open up a whole...
I don't know.
Tell me.
No, I... I'm just... it... it doesn't matter.
It's like it doesn't matter how much we suffer,
you're just never gonna give us credit
for anything that we've done to help you along the way.
You've turned this into something that's all about you,
and you don't even think about
how it's impacted everybody else.
You don't care how it's impacted anybody else
because all you care about is how it's impacted you.
If you ever get better,
it's all gonna be something you did all by yourself.
You don't hear me when I say...
my wife has stood by me so unbelievably,
- my wife takes showers... - You say that, but you don't...
I mean, you say that to people in passing but it's...
you never, ever...
I mean. it's just like one of those things you say
because we're all standing here and they have no one.
So it's kind of like a feather in your cap,
but you don't make us feel like that day to day to day.
I'm a self-centered bastard.
Something else that you're gonna have to tell Earl
is that the reception is so bad out here
and people have to go outside to use their cellphones.
Well, it's true, that's what it is.
Not people trying to be mean.
I'm sorry, Lanie. I do appreciate...
I know how hard you work for me, and I appreciate it.
I'm sorry.
Are you crying?
Hey, Nick, this is your dad.
We're gonna get up early in the morning and head back.
Okay, bye-bye.
I'm 63 years old,
and I've finally learned to take a hint.
I just wanna work with people
who are listening or who ask for help,
not... not try to...
push my values on society.
That hasn't worked.
I just had illusions about it working.
We might as well get out of town
and sort of make lives for ourselves that don't hurt.
Look after our own.
All I know is people who are EMF...
use this and swear by it.
That's about all I can tell you.
Yeah, I mean this is pretty typical.
So turning all the breakers off
and then pulling one neutral at a time
and testing, that's... that does... that sounds...
Oh, yeah, that's real easy to do.
- Okay. - We absolutely can do that.
My wife has to do all the cooking for me.
And if I could start doing some of my own cooking,
she would be so happy.
Well, I do realize in your situations,
little things do affect you.
I mean, I can't understand... how.
But, I mean, I'm aware, little things do affect you.
"Effects of electromagnetic fields
on the immune system."
"Department of Neuroscience, Karolinska Institute,
Stockholm, Sweden."
"In summary, it is evident from our preliminary
experimental data that various biological alternations
are present in EHS persons
claiming to suffer from exposure to EMF.
The alternations are themselves enough to fully explain
the electrical hyper-sensitivity symptoms,
and the involvement of the immune system is evident."
I want a paper from someone talking about
what to do about it.
It doesn't exist.
What the... what you can do to help yourself.
It doesn't exist.
The fact that there's a paper that doesn't say
it's all in your head...
you should be happy with.
Please enter your PIN
followed by the pound key.
You have no messages. Main menu.
To send a message...
Nothing. This could be good.
Maybe everybody's okay!
The people I know who have impeccable houses
with no chemicals in them and the electricity's perfect
and so forth, I don't see them getting well.
Goblin! Goblin!
Goblin!
The people I know who've gotten better
or at least stabilize have a lot of love
and sharing and... and maybe prayer
or whatever you wanna call it in their lives,
seem to come out quite well.
In at least the last two or three months,
he's held pretty steady,
and his chemical sensitives have gotten better.
He has maybe not healed, but he's been able
to participate in life a little bit more than in the past.
We're able to take a breath and say,
"Okay, now we're ready for the next part of this journey."
I remember telling him, you know,
you're gonna get well from all this,
and I'm gonna have all this emotional baggage
that I'm not gonna know what to do with.
What do I do with how I'm feeling?
I don't know what to do with it.
It seems like you're supposed to care
for your own people regardless of what people think.
That's... you know, that's all.
♪ There ain't no alibi for leavin' ♪
♪ Still you try to think of some ♪
♪ Mm, come up with none ♪
♪ There ain't no alibi for leavin' ♪
♪ Still you to try to think of some ♪
♪ Mm, come up with none ♪
♪ Just spent the last day or two at his sister's house ♪
♪ Time for you to clear it out ♪
♪ Now there ain't no room for doubt ♪
Subtitles by explosiveskull
♪ And there ain't no alibi for leavin' ♪
♪ Still you try to think of some ♪
♪ Mm, but there's none ♪
♪ The note that you left said ♪
♪ It's just the way it's gotta be ♪
♪ Don't try to follow me ♪
♪ I guess we will eventually ♪
♪ But there ain't no alibi for leavin' ♪
♪ Still you try to think of some ♪
♪ Mm, come up with none ♪
♪ There ain't no alibi for leavin' ♪
♪ Still you try to think of some ♪
♪ Mm, come up with none ♪
♪ It's just that the one that you wake with ♪
♪ In the morning light ♪
♪ Ain't the one you're holdin' tight ♪
♪ Mm, dreamin' of ♪
♪ Yeah, there ain't no alibi for leavin' ♪
♪ Still you try to think of some ♪
♪ Mm, come up with none ♪
Can't find what you're looking for?
Get subtitles in any language from opensubtitles.com, and translate them here.