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These are the user uploaded subtitles that are being translated: 1 00:00:00,000 --> 00:00:03,080 The following program me contains adult themes 2 00:00:03,120 --> 00:00:06,240 and scenes which some viewers may find distressing. 3 00:00:40,560 --> 00:00:43,240 In the beginning when I was first convicted, 4 00:00:43,280 --> 00:00:45,280 I felt like Alice In Wonderland. 5 00:00:47,040 --> 00:00:49,760 Down the rabbit hole in this strange place 6 00:00:49,800 --> 00:00:53,320 that doesn't follow any rules that I'm used to or anything like that. 7 00:00:59,520 --> 00:01:03,880 When I came out, I remember I went to my hairstylist, and. 8 00:01:03,920 --> 00:01:05,960 I gave a big sigh, 9 00:01:06,000 --> 00:01:08,320 and I said, "OK, you're gonna be my first experience 10 00:01:08,360 --> 00:01:12,200 with experimenting with how much I say or don't say 11 00:01:12,240 --> 00:01:14,720 about where I've been the past couple of years," 12 00:01:14,760 --> 00:01:17,160 and where I've been is - I was in prison. 13 00:01:26,760 --> 00:01:28,440 My inclination, 14 00:01:28,480 --> 00:01:32,000 you know, here I am sitting here doing this, is 15 00:01:32,040 --> 00:01:35,520 you know, I don't mind people knowing because 16 00:01:35,560 --> 00:01:38,240 you know, I'm not guilty of a crime, so... 17 00:03:42,720 --> 00:03:44,720 Derrick, let's go. 18 00:03:47,760 --> 00:03:51,040 Are you ready to get up? 19 00:03:57,400 --> 00:03:58,640 Good morning. 20 00:04:00,720 --> 00:04:02,400 Come on. 21 00:04:02,600 --> 00:04:05,120 Come on. 22 00:04:07,280 --> 00:04:11,560 I remember when they brought Derrick home from the hospital. 23 00:04:11,600 --> 00:04:15,160 And I was just disappointed. I was like, "I got a baby brother. I wanted a little sister." 24 00:04:17,600 --> 00:04:20,440 And then when they brought him in the house, and I saw him, 25 00:04:20,480 --> 00:04:22,640 it was like an instant connection. 26 00:04:22,680 --> 00:04:26,440 Everything was fine, you know. Nothing out of the ordinary. 27 00:04:29,360 --> 00:04:32,760 I just remember that a certain point he became very listless, 28 00:04:32,800 --> 00:04:35,440 he didn't move much. 29 00:04:39,440 --> 00:04:42,680 He wouldn't wake up. You know, he slept all the time. 30 00:04:44,560 --> 00:04:46,800 He wasn't doing what he was supposed to do. 31 00:04:46,840 --> 00:04:49,720 Like he wasn't sucking, he wasn't holding his bottle. 32 00:04:50,560 --> 00:04:52,560 And he couldn't hold his head. 33 00:04:53,440 --> 00:04:56,040 I would ask the doctor, "Well, what's wrong with Derrick?" 34 00:04:56,080 --> 00:04:59,160 And he said, "Oh, you're comparing him to your older son. 35 00:04:59,200 --> 00:05:00,680 He'll be alright." 36 00:05:00,720 --> 00:05:03,960 And I says, "No, something's not right." 37 00:05:09,000 --> 00:05:12,480 Early on, Derrick had a series of seizures. 38 00:05:16,720 --> 00:05:19,880 So then they took Derrick, they put him in a sound room. 39 00:05:21,280 --> 00:05:25,560 And they would do the lights for his eyes to follow, and 40 00:05:25,600 --> 00:05:27,480 he just wouldn't react, 41 00:05:27,520 --> 00:05:29,200 or couldn't. 42 00:05:30,040 --> 00:05:33,720 And that's when they told me that he has cerebral palsy, 43 00:05:33,760 --> 00:05:36,360 mm-hm, and he would never, you know, 44 00:05:36,400 --> 00:05:38,400 be able to 45 00:05:39,360 --> 00:05:42,480 do as normal children would do. 46 00:05:42,520 --> 00:05:43,680 Mm-hm. 47 00:05:45,680 --> 00:05:47,440 Derrick visited a few psychologists. 48 00:05:47,480 --> 00:05:50,880 They deemed him, as the term they used, mentally retarded, 49 00:05:50,920 --> 00:05:53,400 non-verbal with cerebral palsy. 50 00:05:54,200 --> 00:05:56,440 You know, then not knowing what the heck that meant, 51 00:05:56,480 --> 00:05:58,720 it just meant Derrick can't walk, Derrick can't talk. 52 00:05:58,760 --> 00:06:01,040 Yes. 53 00:06:01,080 --> 00:06:03,080 It's all gone. 54 00:06:07,240 --> 00:06:09,240 It's all gone. You're done. 55 00:06:10,120 --> 00:06:12,760 You're done, mm-hm. 56 00:06:13,600 --> 00:06:15,440 OK. 57 00:06:30,040 --> 00:06:32,240 Take your hands out your ears. What you want? 58 00:06:32,280 --> 00:06:34,320 What's the problem? 59 00:06:34,360 --> 00:06:36,000 Hm? 60 00:07:07,720 --> 00:07:09,720 You know the routine. 61 00:07:11,040 --> 00:07:14,400 One finger. What's that? Shh. You signing me? 62 00:07:15,480 --> 00:07:16,680 Hm? 63 00:07:30,400 --> 00:07:33,360 Eventually, the seizures started to subside, 64 00:07:33,400 --> 00:07:35,800 but what his cognitive level was, 65 00:07:35,840 --> 00:07:38,840 I didn't have a way of assessing that. 66 00:07:40,080 --> 00:07:42,240 I know that he was listless for a point in time, 67 00:07:42,280 --> 00:07:45,320 and then all of a sudden there was an awakening of sorts, 68 00:07:45,360 --> 00:07:47,640 where he was in the world. 69 00:07:53,600 --> 00:07:57,360 Whenever we would lock eyes, like, there was recognition there. 70 00:07:57,400 --> 00:07:59,200 I just began to see Derrick, 71 00:07:59,240 --> 00:08:01,680 you know, develop his own personality 72 00:08:01,720 --> 00:08:03,600 and kind of come into his own. 73 00:08:03,640 --> 00:08:06,000 Oh! They were inseparable. 74 00:08:06,040 --> 00:08:08,640 Derrick would come home after school. 75 00:08:08,680 --> 00:08:10,520 John would run home, 76 00:08:10,560 --> 00:08:12,240 meet Derrick's bus, 77 00:08:12,280 --> 00:08:16,120 get Derrick in the house, call me, "Ma, we in the house." 78 00:08:16,160 --> 00:08:18,080 At a certain point, I just threw him on my back. 79 00:08:18,120 --> 00:08:20,760 Play together, get into mischief together. 80 00:08:20,800 --> 00:08:23,440 You know, wherever I go, Derrick has to go. 81 00:08:29,040 --> 00:08:32,840 Derrick's a character. You know, he loves to give hugs. 82 00:08:32,880 --> 00:08:34,960 He just loves to smile a lot, you know. 83 00:08:35,000 --> 00:08:37,720 You know when he's happy. 84 00:08:37,760 --> 00:08:40,160 He used to do, we called it, "the Stevie Wonder dance". 85 00:08:40,200 --> 00:08:42,440 You know, when Stevie Wonder is playing on the piano 86 00:08:42,480 --> 00:08:45,280 and really feeling the music, and his head would sway side to side. 87 00:08:45,320 --> 00:08:47,480 And so Derrick would do that from time to time too, 88 00:08:47,520 --> 00:08:50,360 especially in church when he's, like, really feeling the music. 89 00:08:57,960 --> 00:09:00,920 Sometimes he's self-abusive. We can be somewhere, 90 00:09:00,960 --> 00:09:03,720 and then all of a sudden, "Ah," he'll put his hand in his mouth 91 00:09:03,760 --> 00:09:05,920 and start banging his head and his knee. 92 00:09:05,960 --> 00:09:09,360 And I don't know why. Maybe he's frustrated, um, 93 00:09:09,400 --> 00:09:11,440 but he can't communicate. 94 00:09:11,480 --> 00:09:14,240 So what is going on in your head, Derrick? 95 00:09:14,280 --> 00:09:16,760 Like I really 96 00:09:16,800 --> 00:09:19,560 to me that was the great mystery. 97 00:09:39,040 --> 00:09:41,360 - Camera's rolling. - OK. Everything's fine. 98 00:09:43,000 --> 00:09:46,080 Tell me the story of how you met. 99 00:09:49,520 --> 00:09:52,200 I'm pretty sure, 100 00:09:52,240 --> 00:09:56,080 or at least, I'm hopeful that I haven't 101 00:09:56,120 --> 00:09:58,840 been rewriting things in my head. 102 00:09:58,880 --> 00:10:01,680 I don't... didn't wanna do that. 103 00:10:01,720 --> 00:10:04,080 You know, I see how easily it can happen. 104 00:10:12,600 --> 00:10:15,120 Our next speaker is Anna Stubblefield, 105 00:10:15,160 --> 00:10:19,360 the Director of the Philosophy Department at Rutgers. 106 00:10:19,400 --> 00:10:21,520 Thanks, David, is that one working? 107 00:10:21,560 --> 00:10:23,560 This one? How's this one? 108 00:10:23,600 --> 00:10:25,360 Ah, that's better. OK. 109 00:10:25,400 --> 00:10:27,400 'I was teaching 110 00:10:27,440 --> 00:10:31,040 in the American Studies doctoral program me at Rutgers Newark.' 111 00:10:31,080 --> 00:10:35,480 Race, class, gender, and sexual orientation and disability 112 00:10:35,520 --> 00:10:37,880 are inextricably intertwined, 113 00:10:37,920 --> 00:10:40,840 such that none of these concepts 114 00:10:40,880 --> 00:10:43,240 would exist as it does without the others. 115 00:10:43,280 --> 00:10:47,160 'And John was one of my students.' 116 00:10:48,680 --> 00:10:50,920 When I was doing my PhD at Rutgers... 117 00:10:52,080 --> 00:10:54,040 When a person cannot understand 118 00:10:54,080 --> 00:10:57,200 Anna Stubblefield was a philosopher of race, 119 00:10:58,080 --> 00:11:01,440 and also had a class about disability studies. 120 00:11:01,480 --> 00:11:05,080 Alongside theorising about disability and ethics, 121 00:11:05,120 --> 00:11:06,760 I also provide support 122 00:11:06,800 --> 00:11:09,400 to people labelled with developmental disabilities. 123 00:11:09,440 --> 00:11:12,680 I work with people who cannot communicate vocally 124 00:11:12,720 --> 00:11:14,560 to provide them with access 125 00:11:14,600 --> 00:11:17,840 to alternative forms of verbal expression and to literacy. 126 00:11:17,880 --> 00:11:20,480 You know, while I grew up with a disabled brother, 127 00:11:20,520 --> 00:11:22,600 I was not familiar with disability studies. 128 00:11:22,640 --> 00:11:25,960 And I think, as an instructor, she was great. 129 00:11:26,000 --> 00:11:28,120 And as a scholar, she was great as well. 130 00:11:31,080 --> 00:11:35,440 The course was looking at the notion 131 00:11:35,480 --> 00:11:38,040 of intelligence as a concept. 132 00:11:39,880 --> 00:11:43,600 For example, the notion that if somebody can't speak, it must be 133 00:11:43,640 --> 00:11:46,280 because they're too stupid, and there's just nothing in their head. 134 00:11:46,320 --> 00:11:50,040 That just is not the case. 135 00:11:50,080 --> 00:11:51,600 It's not the case. 136 00:11:51,640 --> 00:11:55,440 Lacking speech doesn't mean that you don't have anything to say. 137 00:11:55,480 --> 00:11:57,920 It doesn't mean that you can't use language. 138 00:11:57,960 --> 00:12:00,680 If somebody can just get you access to a way to do it. 139 00:12:02,880 --> 00:12:05,160 Can you describe what your world was like 140 00:12:05,200 --> 00:12:07,840 before you were able to communicate? 141 00:12:12,000 --> 00:12:14,000 Can you describe that for me? 142 00:12:17,640 --> 00:12:20,320 Somewhere along the course, we ended up watching this video. 143 00:12:22,520 --> 00:12:24,840 The person who was in the video had autism. 144 00:12:24,880 --> 00:12:27,320 Want to go to Grandma. You want to go to Grandma's? 145 00:12:27,360 --> 00:12:30,280 Want to go to Grandma. Yeah, Grandma is gonna come here... 146 00:12:30,320 --> 00:12:31,720 Sue Rubin, 147 00:12:31,760 --> 00:12:34,880 she's somebody who's perceived by her parents and everybody 148 00:12:34,920 --> 00:12:39,600 as severely intellectually impaired and just not there. 149 00:12:39,640 --> 00:12:42,120 Yeah. Yeah. 150 00:12:42,160 --> 00:12:46,280 But then she's given access to a way to communicate. 151 00:12:46,320 --> 00:12:49,400 "When I was 13, my mother said she had seen someone" 152 00:12:49,440 --> 00:12:52,240 start to communicate using a keyboard and support. 153 00:12:53,640 --> 00:12:56,040 It's called facilitated communication. 154 00:12:57,320 --> 00:13:00,960 "As I began to type, my mind began to wake up." 155 00:13:02,400 --> 00:13:04,720 Bye-bye. 'The person who was in the video' 156 00:13:04,760 --> 00:13:07,920 used a keyboard and eventually became proficient enough 157 00:13:07,960 --> 00:13:11,120 to communicate the complexities of her life. 158 00:13:12,080 --> 00:13:14,240 She was able to do college-level work, 159 00:13:14,280 --> 00:13:17,760 and she graduated with a dual major, etcetera, etcetera. 160 00:13:17,800 --> 00:13:19,440 And this was her story. 161 00:13:20,520 --> 00:13:23,640 "I think I was lost." W-A. 162 00:13:23,680 --> 00:13:25,960 "In some way. 163 00:13:26,000 --> 00:13:29,360 I... acted like my worst nightmare." 164 00:13:29,400 --> 00:13:31,880 Y-E. 165 00:13:31,920 --> 00:13:33,920 "Yes." 166 00:13:35,040 --> 00:13:36,880 At that time, I had never heard anything 167 00:13:36,920 --> 00:13:39,480 about this facilitated communication. 168 00:13:43,760 --> 00:13:46,760 After that class, John, he said, 169 00:13:46,800 --> 00:13:50,160 "This woman in this film reminds me a lot of my brother." 170 00:13:51,320 --> 00:13:53,480 How she moves, how she looks, and then... 171 00:13:53,520 --> 00:13:56,680 I see her typing, and she's going to college, 172 00:13:56,720 --> 00:13:58,680 and we've always been told 173 00:13:58,720 --> 00:14:01,600 that my brother, you know, basically, he should be institutionalised. 174 00:14:01,640 --> 00:14:04,480 But we've always felt that maybe 175 00:14:04,520 --> 00:14:07,640 "there's something more going on there." 176 00:14:07,680 --> 00:14:10,200 We recognised that Derrick had a disability. 177 00:14:10,240 --> 00:14:12,560 But we never thought that he was incapable 178 00:14:12,600 --> 00:14:14,440 of doing any number of things. 179 00:14:15,400 --> 00:14:18,440 I always knew that there was something there. 180 00:14:19,680 --> 00:14:22,080 Like right on cue, at certain points, 181 00:14:22,120 --> 00:14:25,040 Derrick would say, "Uh, uh, uh," you know, Derrick was paying attention. 182 00:14:25,080 --> 00:14:27,480 Derrick wanted to weigh in on this discussion. 183 00:14:27,520 --> 00:14:29,960 'When we would go to get haircuts, ' 184 00:14:30,000 --> 00:14:32,280 I would sit there and read The Daily News. 185 00:14:32,320 --> 00:14:35,440 And Derrick would be sitting next to me, and so every so often, 186 00:14:35,480 --> 00:14:38,480 Derrick would look over my shoulder and look in the newspaper. 187 00:14:38,520 --> 00:14:42,040 And was it a mimicking behaviour? Maybe. 188 00:14:42,080 --> 00:14:44,280 But he has this way of 189 00:14:44,320 --> 00:14:47,360 appearing to be absorbing information. 190 00:14:47,400 --> 00:14:49,640 And so there were dozens 191 00:14:49,680 --> 00:14:52,760 of these kinds of moments through our lifetime. 192 00:14:55,920 --> 00:14:57,720 I love my brother to death, 193 00:14:57,760 --> 00:15:01,720 and I always want nothing but the best for him. 194 00:15:03,040 --> 00:15:05,520 And so I asked her, "I would love to hear more 195 00:15:05,560 --> 00:15:09,200 about facilitated communication. Who can I talk to?" 196 00:15:11,440 --> 00:15:14,080 I told him the nearest place on the East Coast 197 00:15:14,120 --> 00:15:16,600 where there's support for facilitated communication 198 00:15:16,640 --> 00:15:18,680 is Syracuse University. 199 00:15:18,720 --> 00:15:21,240 But it's gonna be too expensive. 200 00:15:21,280 --> 00:15:22,960 So I said to John, 201 00:15:23,000 --> 00:15:25,320 "If you wanted, 202 00:15:25,360 --> 00:15:27,840 I could at least just kind of 203 00:15:27,880 --> 00:15:30,880 do some initial stuff, kind of see if it's working." 204 00:15:40,280 --> 00:15:43,560 She was Miss Anna. 205 00:15:43,600 --> 00:15:45,680 You know, she could do great things. 206 00:15:45,720 --> 00:15:48,520 She was gonna move mountains, and... 207 00:15:49,360 --> 00:15:53,640 I... accepted her at her word. 208 00:18:34,800 --> 00:18:38,440 When I was a child, I came from an unusual family. 209 00:18:38,480 --> 00:18:41,080 My mom did work with people 210 00:18:41,120 --> 00:18:43,360 with a range of physical disabilities, 211 00:18:43,400 --> 00:18:46,040 with intellectual disabilities, who came to the house. 212 00:18:46,080 --> 00:18:48,800 My mom had a T-shirt with the slogan, 213 00:18:48,840 --> 00:18:51,080 "Labels are for jars, not people." 214 00:18:52,080 --> 00:18:55,320 I found disability interesting 215 00:18:55,360 --> 00:18:57,320 because of that exposure. 216 00:18:58,920 --> 00:19:02,440 And so I got my dad to, you know, build me a pair of crutches 217 00:19:02,480 --> 00:19:04,800 so I could, you know, pretend to be post-polio, 218 00:19:04,840 --> 00:19:07,360 or have cerebral palsy, or something like that. 219 00:19:07,400 --> 00:19:11,080 I'd tie a blindfold on and spend all afternoon... 220 00:19:11,920 --> 00:19:13,920 During her elementary years, 221 00:19:13,960 --> 00:19:16,200 I taught her how to write Braille. 222 00:19:17,120 --> 00:19:19,400 At her request, I got her a blind pen pal. 223 00:19:20,400 --> 00:19:22,600 She was interested in sign language, 224 00:19:22,640 --> 00:19:24,960 and I think she may have learned some of that. 225 00:19:25,000 --> 00:19:28,040 I was fascinated by the way in which, 226 00:19:28,080 --> 00:19:30,600 you know, it's not really the impairment, 227 00:19:30,640 --> 00:19:32,960 it's the environment 228 00:19:33,000 --> 00:19:35,680 that creates impairments for people. 229 00:19:36,520 --> 00:19:41,080 Growing up, I got that message very powerfully, how in our society, 230 00:19:41,120 --> 00:19:44,000 it's like we want everybody to walk through the same-size door. 231 00:19:44,040 --> 00:19:47,280 And if you don't fit in that door, there's something wrong with you, 232 00:19:47,320 --> 00:19:49,560 and that doesn't have to be that way. 233 00:19:52,920 --> 00:19:56,400 Welcome to the 1993 Conference 234 00:19:56,440 --> 00:20:00,720 on Facilitated Communication in Syracuse sponsored by 235 00:20:00,760 --> 00:20:04,680 the Facilitated Communication Institute at Syracuse University. 236 00:20:05,680 --> 00:20:08,920 I learned about facilitated communication 237 00:20:08,960 --> 00:20:11,440 in December of 1990 at a conference. 238 00:20:14,080 --> 00:20:19,120 Rosemary Crossley reported on the work she'd done in Australia. 239 00:20:21,840 --> 00:20:23,520 I had done some work 240 00:20:23,560 --> 00:20:26,120 with a girl named Anne McDonald 241 00:20:26,160 --> 00:20:29,440 who had athetoid cerebral palsy. 242 00:20:29,480 --> 00:20:31,240 Couldn't move her hands. 243 00:20:31,280 --> 00:20:34,720 Couldn't speak. There was nothing. 244 00:20:35,640 --> 00:20:37,960 We had a spelling board, 245 00:20:38,000 --> 00:20:40,600 but because she had cerebral palsy, 246 00:20:40,640 --> 00:20:43,280 her hands would move so much 247 00:20:43,320 --> 00:20:46,880 that she couldn't actually hit a target. 248 00:20:46,920 --> 00:20:49,440 I tried what would happen 249 00:20:49,480 --> 00:20:52,440 if I supported her, um 250 00:20:52,480 --> 00:20:54,800 under her upper arm. 251 00:20:54,840 --> 00:20:58,640 She could then move from the elbow 252 00:20:58,680 --> 00:21:04,320 and do better in selecting items. 253 00:21:05,880 --> 00:21:09,160 And it turned out that she could spell. 254 00:21:10,240 --> 00:21:12,560 She was VERY smart. 255 00:21:12,600 --> 00:21:15,080 We gave her the page-turner 256 00:21:15,120 --> 00:21:17,920 so that every time she hit a button, 257 00:21:17,960 --> 00:21:19,640 the page would turn, 258 00:21:19,680 --> 00:21:23,560 and suddenly she could read books. 259 00:21:24,960 --> 00:21:27,400 As soon as I heard their presentation, 260 00:21:27,440 --> 00:21:29,920 I knew that's what I needed. 261 00:21:29,960 --> 00:21:33,640 This is how to help all these kids who I used to work with. 262 00:21:40,480 --> 00:21:42,720 My mother's one of the first people in the country 263 00:21:42,760 --> 00:21:46,680 who started doing training workshops in facilitated communication. 264 00:21:48,120 --> 00:21:50,240 When she came back and started using it, 265 00:21:50,280 --> 00:21:52,440 she was videotaping everybody, 266 00:21:52,480 --> 00:21:54,640 and I ended up being the one who ran the camera. 267 00:21:54,680 --> 00:21:57,440 So I was there when she first started using it. 268 00:21:57,480 --> 00:21:59,600 I was part of that moment. 269 00:22:03,880 --> 00:22:06,400 To see people for the first time 270 00:22:06,440 --> 00:22:09,400 be able to type out something. 271 00:22:09,440 --> 00:22:13,960 Being part of that was, you know... was amazing. 272 00:22:14,000 --> 00:22:16,360 We find that once we open this world for the kids, 273 00:22:16,400 --> 00:22:19,040 they are social now, they are appropriate. 274 00:22:19,080 --> 00:22:21,320 They do have language. They do understand. 275 00:22:21,360 --> 00:22:23,080 I couldn't believe what I was seeing. 276 00:22:23,120 --> 00:22:25,880 Cherise has typed 120 poems, nine short stories. 277 00:22:25,920 --> 00:22:28,360 She talks about everything she feels. 278 00:22:30,680 --> 00:22:34,280 We understood that people knew 279 00:22:34,320 --> 00:22:37,440 what it was they wanted to communicate. 280 00:22:37,480 --> 00:22:41,320 And we needed to just provide some means 281 00:22:41,360 --> 00:22:43,960 to make that possible physically. 282 00:22:53,920 --> 00:22:58,040 When I met Derrick, I'd been told he had cerebral palsy, 283 00:22:58,080 --> 00:23:00,120 and that was all. 284 00:23:01,160 --> 00:23:03,920 He walks. He needs to hold onto somebody's arm, 285 00:23:03,960 --> 00:23:06,480 have a little support. 286 00:23:06,520 --> 00:23:08,800 He can focus his gaze, 287 00:23:08,840 --> 00:23:11,480 but his eyes kind of go off, his head turns. 288 00:23:11,520 --> 00:23:13,920 If you're not used to that, 289 00:23:13,960 --> 00:23:18,320 we see that as signs of lack of intelligence. 290 00:23:18,360 --> 00:23:20,480 I've seen enough people like that in my life 291 00:23:20,520 --> 00:23:22,280 to know that that's simply not true. 292 00:23:22,320 --> 00:23:25,800 So I don't register things that way. 293 00:23:28,560 --> 00:23:31,400 So I had just cut out some pictures from magazines 294 00:23:31,440 --> 00:23:33,480 or drawn some pictures. 295 00:23:33,520 --> 00:23:35,280 John and Daisy were in the room watching. 296 00:23:35,320 --> 00:23:37,920 And I said to Derrick, 297 00:23:37,960 --> 00:23:40,080 "I'm gonna ask you some questions, 298 00:23:40,120 --> 00:23:42,360 and I'm not asking them 299 00:23:42,400 --> 00:23:45,160 because I don't think you're smart enough or anything. 300 00:23:45,200 --> 00:23:48,360 I just want to see what happens when you try to point to something." 301 00:23:51,080 --> 00:23:53,320 So I watched and he 302 00:23:53,360 --> 00:23:56,840 would kind of start moving his arm. It would go a little ways. 303 00:23:56,880 --> 00:23:59,240 And then he'd have this kind of muscle jerk reaction, 304 00:23:59,280 --> 00:24:01,640 which turned out to be very typical. 305 00:24:01,680 --> 00:24:04,040 You can see how hard he works 306 00:24:04,080 --> 00:24:08,400 to try to have the least little bit of control over his arm, 307 00:24:08,440 --> 00:24:10,440 and it's slow. 308 00:24:11,800 --> 00:24:15,720 If you've got cerebral palsy, you might be able to get your hand 309 00:24:15,760 --> 00:24:18,720 to something you're pointing at, but it might take you a minute. 310 00:24:18,760 --> 00:24:20,720 How do you have a conversation like that? 311 00:24:22,960 --> 00:24:26,480 So I had started with just a little support on his elbow. 312 00:24:26,520 --> 00:24:28,960 And that was it initially, that freed him up enough, 313 00:24:29,000 --> 00:24:31,400 and then he could select which picture he wanted. 314 00:24:36,920 --> 00:24:38,120 So, so far, so good. 315 00:24:40,280 --> 00:24:42,800 Then I said, "Now what I want to do is 316 00:24:42,840 --> 00:24:45,760 see where you're at with literacy." 317 00:24:45,800 --> 00:24:48,280 So I had cards that just had letters on them, 318 00:24:48,320 --> 00:24:49,960 kind of like doing Boggle, 319 00:24:50,000 --> 00:24:53,280 so if you have A, B, C, and T, 320 00:24:53,320 --> 00:24:56,200 you can spell cat, you can spell bat. 321 00:24:56,240 --> 00:25:00,080 And when I asked him to spell as many words as he could 322 00:25:00,120 --> 00:25:04,960 using these four letters, he made a very good showing with that. 323 00:25:06,640 --> 00:25:09,440 But it's one thing to reach your whole hand 324 00:25:09,480 --> 00:25:12,160 toward a very large target. 325 00:25:12,200 --> 00:25:13,960 It's an entirely different thing 326 00:25:14,000 --> 00:25:17,240 to get one finger pushing a key. 327 00:25:17,280 --> 00:25:22,800 So I had this small, very lightweight, portable keyboard 328 00:25:22,840 --> 00:25:26,400 with a small LED display called the Neo. 329 00:25:26,440 --> 00:25:30,840 I ended up where I was keeping his fingers folded down 330 00:25:30,880 --> 00:25:33,360 so that his index finger was isolated. 331 00:25:35,120 --> 00:25:37,880 And the first thing I asked him to do 332 00:25:37,920 --> 00:25:41,680 was point to the letter H, the letter T. 333 00:25:41,720 --> 00:25:43,760 And he started making mistakes. 334 00:25:43,800 --> 00:25:46,560 So he mixed up the A and the H, 335 00:25:46,600 --> 00:25:48,640 and he mixed up the T and the F, 336 00:25:48,680 --> 00:25:51,040 and the U and the V. 337 00:25:51,080 --> 00:25:55,120 What I realised was that the alphabetical-order letter board 338 00:25:55,160 --> 00:25:57,400 that I'd set up were all lowercase letters 339 00:25:57,440 --> 00:26:00,560 and on the Neo is capital letters. 340 00:26:00,600 --> 00:26:02,640 And so the difference between the A and the H 341 00:26:02,680 --> 00:26:05,120 was one little line across the top of the A, 342 00:26:05,160 --> 00:26:06,840 that sort of thing. 343 00:26:06,880 --> 00:26:10,000 When he was making those mistakes, I just said, "No, no, you're wrong. 344 00:26:10,040 --> 00:26:13,240 I asked for the A, you hit the H. Here's the A here." 345 00:26:13,280 --> 00:26:16,040 And then I went through some other letters, and then I would go back. 346 00:26:16,080 --> 00:26:18,200 He didn't make the same mistake twice. 347 00:26:20,680 --> 00:26:23,640 So he was a really fast learner. 348 00:26:23,680 --> 00:26:25,280 Tell him once, he's got it. 349 00:26:28,760 --> 00:26:32,680 It was like the porch lights went on. 350 00:26:32,720 --> 00:26:34,760 And I was like, "Wow, is he doing it?" 351 00:26:35,680 --> 00:26:39,160 And I felt very excited about it. 352 00:26:40,920 --> 00:26:45,160 She said, "Don't forget you're travelling with him", 353 00:26:45,200 --> 00:26:47,720 you're taking him places, 354 00:26:48,520 --> 00:26:50,720 and when you're taking him, 355 00:26:50,760 --> 00:26:52,840 "he's reading the signs." 356 00:26:52,880 --> 00:26:55,400 And, you know, I'm mama 357 00:26:57,080 --> 00:26:59,080 tell me what my sons can do. 358 00:27:03,200 --> 00:27:07,680 I was elated. I mean, I always knew that there was something there. 359 00:27:07,720 --> 00:27:10,000 And so in a way, 360 00:27:10,040 --> 00:27:12,520 it somewhat confirmed what I'd already knew. 361 00:27:13,480 --> 00:27:16,920 In the school that he attended, the Essex County Day Training Programme, 362 00:27:16,960 --> 00:27:19,640 they had did some remarkable things with him. 363 00:27:21,560 --> 00:27:23,576 They were able to get him to the point where he can, 364 00:27:23,600 --> 00:27:26,080 you know, walk on his own. 365 00:27:26,120 --> 00:27:29,560 But there was this question of intellectual capacity. 366 00:27:29,600 --> 00:27:32,920 And so to have this revelation 367 00:27:32,960 --> 00:27:36,880 that Derrick can do these things, it was just like, "Wow." 368 00:27:36,920 --> 00:27:39,040 I knew it was there, and I'm just happy for him. 369 00:28:04,200 --> 00:28:07,120 One day when Derrick came, and I just asked him, 370 00:28:07,160 --> 00:28:09,880 "Did you do anything particularly interesting this week?" 371 00:28:09,920 --> 00:28:11,920 And he typed "GM". 372 00:28:13,040 --> 00:28:16,360 His spelling was very, very creative in the beginning. 373 00:28:16,400 --> 00:28:19,560 And I said, "Hm, you know, did you play a game? 374 00:28:19,600 --> 00:28:21,880 "Was there some kind of game?" No. 375 00:28:21,920 --> 00:28:24,440 "Gym, did you go to the gym?" Yes. 376 00:28:24,480 --> 00:28:27,360 And then Daisy popped in with, 377 00:28:27,400 --> 00:28:30,640 "Oh, yeah, his day program me had gone to a health club, 378 00:28:30,680 --> 00:28:33,960 and he had walked on a treadmill, and he'd really enjoyed that." 379 00:28:35,440 --> 00:28:38,640 At that point, Daisy had stepped outside the room. 380 00:28:39,760 --> 00:28:41,440 I said, "You know, it's occurring to me 381 00:28:41,480 --> 00:28:44,840 that I never actually asked you what you like to be called. 382 00:28:44,880 --> 00:28:48,320 Your brother told me your name was Derrick, and I've been calling you, Derrick. 383 00:28:48,360 --> 00:28:51,040 Tell me what do you want me to call you?" 384 00:28:53,920 --> 00:28:56,880 And he typed D-M-A-N. 385 00:28:58,600 --> 00:29:02,600 I was looking at that, and it didn't look like any name that I recognised. 386 00:29:03,440 --> 00:29:05,640 Daisy came back in the room at that point, 387 00:29:05,680 --> 00:29:08,680 and I said, "He typed D-M-A-N. 388 00:29:08,720 --> 00:29:11,720 Does that mean anything to you? Does..." 389 00:29:11,760 --> 00:29:14,920 She said, "Oh! He had this really great teacher, 390 00:29:14,960 --> 00:29:18,280 back when he was about 13 years old, who used to call him DMan. 391 00:29:18,320 --> 00:29:20,920 That was the teacher who got him out of the wheelchair 392 00:29:20,960 --> 00:29:22,400 and got him walking." 393 00:29:22,440 --> 00:29:24,480 So I said, "Is she right?" 394 00:29:24,520 --> 00:29:26,880 And he said, "Yes." 395 00:29:26,920 --> 00:29:30,040 So I called him DMan from there. 396 00:29:31,880 --> 00:29:34,240 That was a really important moment. 397 00:29:34,280 --> 00:29:37,880 Being able to tell people what you wanna be called 398 00:29:37,920 --> 00:29:41,520 is this important, emotional aspect of life 399 00:29:41,560 --> 00:29:44,880 that we take away from people when they can't speak. 400 00:30:04,680 --> 00:30:07,240 DMan and I saw each other several hours a week. 401 00:30:08,400 --> 00:30:10,960 And over the course of the year, as he speeded up, 402 00:30:11,000 --> 00:30:12,640 as his spelling got a little better 403 00:30:13,640 --> 00:30:16,120 it went from a couple-word answers 404 00:30:17,920 --> 00:30:20,080 to five-word answers 405 00:30:21,840 --> 00:30:24,360 to a whole sentence, to a couple sentences. 406 00:30:26,880 --> 00:30:28,240 So by the end of a year, 407 00:30:28,280 --> 00:30:31,800 we could really have a decent conversation. 408 00:30:33,080 --> 00:30:35,240 And he could then be more expressive 409 00:30:35,280 --> 00:30:37,880 and more detailed about what he had to say. 410 00:30:37,920 --> 00:30:41,040 And that was... that was real progress. That's huge. 411 00:30:47,160 --> 00:30:50,120 I didn't really feel like I was getting to know him as a person 412 00:30:50,160 --> 00:30:51,560 until he got to that stage. 413 00:31:02,040 --> 00:31:04,280 Somewhat early on, Anna started saying 414 00:31:04,320 --> 00:31:07,800 Derrick had the intellectual capacity to do high-level work 415 00:31:07,840 --> 00:31:11,920 and to put sentences together and do all these different things. 416 00:31:11,960 --> 00:31:13,520 I was like, "Woah, this is great." 417 00:31:13,560 --> 00:31:17,520 She told us, "Because Derrick was hanging around you all for so long" 418 00:31:17,560 --> 00:31:21,240 and listened to your conversations, and you went to movies, 419 00:31:21,280 --> 00:31:23,320 and you would watch TV, 420 00:31:23,360 --> 00:31:26,080 and so he's absorbing all of these things, 421 00:31:26,120 --> 00:31:29,160 "and so that's how he built his body of knowledge." 422 00:31:29,200 --> 00:31:32,480 Without, you know, going through a peer-reviewed 423 00:31:32,520 --> 00:31:35,880 assessment of those assertions, I was like, "OK, I buy that, cool." 424 00:31:42,520 --> 00:31:45,560 One of the things that really bothered him was 425 00:31:45,600 --> 00:31:47,600 that he hadn't had the opportunity 426 00:31:47,640 --> 00:31:50,760 to get a formal education of any sort. 427 00:31:50,800 --> 00:31:52,920 His brother was getting a doctoral degree, 428 00:31:52,960 --> 00:31:55,800 so he had watched his brother and the whole process, 429 00:31:55,840 --> 00:31:59,720 and he really, really, really wanted to have that also. 430 00:32:01,240 --> 00:32:02,960 So there was a course 431 00:32:03,000 --> 00:32:05,520 being offered on Saturday mornings at Rutgers Newark. 432 00:32:05,560 --> 00:32:07,760 It was an African American literature course, 433 00:32:07,800 --> 00:32:10,200 and that looked really interesting to him. 434 00:32:18,680 --> 00:32:22,360 I guess the idea was for Derrick to go to a class, 435 00:32:22,400 --> 00:32:25,320 possibly write papers, or at least be able to show the work 436 00:32:25,360 --> 00:32:29,520 that may put him in line to then go on and pursue a BA. 437 00:32:29,560 --> 00:32:31,760 I was getting towards the end of my PhD program me, 438 00:32:31,800 --> 00:32:34,800 and so... you know, this kind of thing, you know, 439 00:32:34,840 --> 00:32:37,640 Black scholar. My baby brother, who was developmentally disabled, 440 00:32:37,680 --> 00:32:41,200 was gonna be a Black... could be a Black scholar. I felt great. 441 00:32:44,160 --> 00:32:46,560 I sat in the class with him 442 00:32:46,600 --> 00:32:49,240 and provided communication support for class. 443 00:33:00,800 --> 00:33:02,680 We ended up finding him a student 444 00:33:02,720 --> 00:33:05,720 who would facilitate DMan for doing part of the homework. 445 00:33:05,760 --> 00:33:07,640 Her name was Sheronda Jones. 446 00:33:07,680 --> 00:33:09,920 Sheronda met with him outside of class 447 00:33:09,960 --> 00:33:12,320 for several hours a week so he could read the book 448 00:33:12,360 --> 00:33:15,400 and then at least take a crack at writing the essay. 449 00:33:15,440 --> 00:33:18,000 She had never taken this class. 450 00:33:18,040 --> 00:33:21,040 She never read the books. She just provided the support. 451 00:33:36,680 --> 00:33:38,640 He wasn't doing 400-level writing, 452 00:33:39,480 --> 00:33:42,520 but he was correctly identifying characters and plot elements. 453 00:33:42,560 --> 00:33:45,480 He clearly had read the book and understood the book. 454 00:34:02,400 --> 00:34:04,240 From 1619, 455 00:34:04,280 --> 00:34:07,400 when 20 of us were sold by a Dutch ship to the English... 456 00:34:07,440 --> 00:34:10,080 One day in class, the professor started it out 457 00:34:10,120 --> 00:34:15,320 by showing a film on the entire African diaspora. 458 00:34:17,440 --> 00:34:20,320 And DMan wrote something. 459 00:34:23,360 --> 00:34:25,000 He wasn't expressing himself 460 00:34:25,040 --> 00:34:28,160 as articulately as I knew he was capable of, 461 00:34:28,200 --> 00:34:30,520 and I was typing back to him because we were in class. 462 00:34:30,560 --> 00:34:32,200 So I typed back, 463 00:34:32,240 --> 00:34:35,840 "What if you said it this way, wouldn't this be better?" 464 00:34:37,560 --> 00:34:40,520 And he typed, "I know what you're saying, 465 00:34:40,560 --> 00:34:43,760 but just read it the way I wrote it." And I said, "OK, fair enough." 466 00:34:43,800 --> 00:34:46,240 And then we got called on right at that point. 467 00:34:47,400 --> 00:34:51,800 I couldn't resist. I was sort of editing slightly as I read, 468 00:34:51,840 --> 00:34:54,680 which all it did was make it worse. 469 00:34:54,720 --> 00:34:57,640 Screwed up the whole thing, but I got to the end, 470 00:34:57,680 --> 00:35:00,200 and the discussion went on. 471 00:35:00,240 --> 00:35:02,160 He typed, 472 00:35:02,200 --> 00:35:06,720 "Never ever, ever, ever, ever, ever do that again." 473 00:35:07,760 --> 00:35:10,160 I can tell DMan's mad. 474 00:35:10,200 --> 00:35:12,920 This was DMan furious. 475 00:35:12,960 --> 00:35:15,840 And I typed back, "I'm so sorry." 476 00:35:15,880 --> 00:35:19,400 And he said, "I'm not mad, but don't ever do that again." 477 00:35:19,440 --> 00:35:23,320 Because, you know, I did speak for him and that was wrong. 478 00:35:24,160 --> 00:35:26,720 Needless to say, I never did it before, 479 00:35:26,760 --> 00:35:28,720 and I never did it since. 480 00:35:28,760 --> 00:35:31,160 But he was pissed. 481 00:37:18,680 --> 00:37:21,640 About a year after DMan started typing, 482 00:37:21,680 --> 00:37:25,520 my mother was organising this panel with other FC users 483 00:37:25,560 --> 00:37:28,920 for the Society For Disability Studies Conference, 484 00:37:28,960 --> 00:37:31,600 and she asked if he wanted to be part of the panel. 485 00:37:33,480 --> 00:37:37,640 I like to arrange conferences 486 00:37:37,680 --> 00:37:40,280 that people with disabilities 487 00:37:40,320 --> 00:37:42,600 can actually do some presenting. 488 00:37:45,680 --> 00:37:49,200 What I had noticed was that, in terms of the FC community, 489 00:37:49,240 --> 00:37:51,800 Derrick was the only African American, and saw this 490 00:37:51,840 --> 00:37:55,080 as a very white space, and in a way, Derrick was a 491 00:37:55,960 --> 00:37:58,240 a path breaker, a trailblazer. 492 00:37:58,280 --> 00:38:00,520 The Jackie Robinson of FC. 493 00:38:03,120 --> 00:38:06,000 The panel was on the right to communication clause 494 00:38:06,040 --> 00:38:09,640 in the UN Convention on Disability Rights. 495 00:38:09,680 --> 00:38:13,520 But I said to him, "Don't worry about the official topic of the panel." 496 00:38:13,560 --> 00:38:16,920 Just write something about the right to communicate, 497 00:38:16,960 --> 00:38:19,000 or what it means to you to be able to communicate. 498 00:38:21,800 --> 00:38:24,640 He wanted to be able to refer to some of the literature. 499 00:38:24,680 --> 00:38:27,960 I was getting books for him. Steven Pinker, who's a neurologist, 500 00:38:28,000 --> 00:38:30,640 who's written about language being very hardwired. 501 00:38:30,680 --> 00:38:33,160 I got him some Piaget. 502 00:38:33,200 --> 00:38:35,680 It wasn't much, but it was to give him a taste. 503 00:38:36,840 --> 00:38:40,720 So he was reading the books, we were talking about things. 504 00:38:40,760 --> 00:38:43,560 What he wrote for the panel 505 00:38:43,600 --> 00:38:45,960 was very impressive to me. 506 00:38:46,000 --> 00:38:48,240 It was less than a page, 507 00:38:48,280 --> 00:38:50,920 but he had a choice of words, 508 00:38:50,960 --> 00:38:53,640 a way of phrasing things. It really struck me. 509 00:39:02,080 --> 00:39:06,840 I just became more and more aware that, you know, this was a man 510 00:39:06,880 --> 00:39:10,560 who was very... insightful and very thoughtful. 511 00:39:11,520 --> 00:39:13,480 He spent a lot of time sitting around, 512 00:39:13,520 --> 00:39:15,280 and he was sitting around thinking, 513 00:39:15,320 --> 00:39:18,600 and give him some ideas and something to work with, 514 00:39:18,640 --> 00:39:22,800 and he was just digging in and seeing stuff. 515 00:39:24,120 --> 00:39:27,880 That is what I... I mean, that's what I like in my friends. 516 00:39:27,920 --> 00:39:30,440 That's honestly what I like in men. 517 00:39:33,680 --> 00:39:36,080 You know, I'm the kind of nerdy, intellectual girl 518 00:39:36,120 --> 00:39:38,680 who wants a nerdy, intellectual guy. 519 00:39:41,920 --> 00:39:45,320 You know, you find you really enjoy talking to them, and 520 00:39:45,360 --> 00:39:46,760 you know, you share tastes, 521 00:39:46,800 --> 00:39:49,560 but you also disagree on things, but you learn from it. 522 00:39:49,600 --> 00:39:51,920 I mean, we were just having those kinds of experiences. 523 00:39:53,480 --> 00:39:56,960 But, you know, I was married. My marriage wasn't terrific, 524 00:39:57,000 --> 00:40:01,120 but I wasn't in any way thinking about going outside the relationship. 525 00:40:01,160 --> 00:40:03,600 I wasn't shopping around. It was nothing like that. 526 00:40:03,640 --> 00:40:05,760 At the time, 527 00:40:05,800 --> 00:40:08,600 if you'd asked me, you know, "How do you feel about DMan?" 528 00:40:08,640 --> 00:40:10,640 It's, you know, "He's my friend." 529 00:40:22,920 --> 00:40:25,920 I just really, really liked him, and I really, really enjoyed his company, 530 00:40:25,960 --> 00:40:27,640 and I was really impressed by him. 531 00:40:44,680 --> 00:40:47,320 In March of 2011, 532 00:40:47,360 --> 00:40:50,320 I invited DMan to speak to an undergraduate class 533 00:40:50,360 --> 00:40:53,440 where we were talking about disability issues. 534 00:40:53,480 --> 00:40:55,360 So students were asking him questions, 535 00:40:55,400 --> 00:40:58,320 and somebody asked him about, you know, what his hopes and dreams were. 536 00:40:58,360 --> 00:41:00,320 And he talked about going to college 537 00:41:00,360 --> 00:41:02,560 and maybe being a writer someday, 538 00:41:02,600 --> 00:41:04,800 which was kind of where he was heading. 539 00:41:04,840 --> 00:41:09,440 And then somebody else in the class said to him, 540 00:41:09,480 --> 00:41:12,480 you know, what about love? What about relationships? 541 00:41:12,520 --> 00:41:14,920 Is that something that you hope for? 542 00:41:16,920 --> 00:41:20,720 And he typed, "I want that more than anything, 543 00:41:20,760 --> 00:41:24,640 but that doesn't happen for people with disabilities like mine." 544 00:41:27,560 --> 00:41:29,360 And 545 00:41:29,400 --> 00:41:31,400 in that moment... 546 00:41:32,240 --> 00:41:34,200 I mean, what I wanted to say was... 547 00:41:34,240 --> 00:41:36,560 I-I almost 548 00:41:36,600 --> 00:41:39,920 you know, y-y-you know, you can have that with me. 549 00:41:46,800 --> 00:41:51,320 I started thinking about, "OK, well, wow, if this is the way I'm feeling, 550 00:41:51,360 --> 00:41:53,200 OK, I've gotta think about this." 551 00:41:53,240 --> 00:41:55,760 And I didn't... I still didn't wanna say anything to him. 552 00:41:55,800 --> 00:41:58,160 I was like, "Look, I've gotta figure this out." I mean... 553 00:41:58,200 --> 00:42:01,040 I had my husband and my kids. 554 00:42:02,400 --> 00:42:06,640 I-I... OK, I'm in love with DMan. I realise this now, but... 555 00:42:06,680 --> 00:42:10,320 I'm not gonna say anything. I have to sort all of this out. It was awkward. 556 00:42:13,120 --> 00:42:15,920 Then I saw him about a week later, 557 00:42:15,960 --> 00:42:18,320 and I found myself saying 558 00:42:18,360 --> 00:42:21,920 that I help the other people that I do facilitated communication with 559 00:42:21,960 --> 00:42:24,320 because I believe so strongly 560 00:42:24,360 --> 00:42:27,200 that everyone has a right to communication. 561 00:42:28,640 --> 00:42:32,880 And then I said, "I do what I do for you because I love you." 562 00:42:32,920 --> 00:42:35,120 And he typed, 563 00:42:35,160 --> 00:42:37,160 he said, "I know. 564 00:42:37,200 --> 00:42:39,200 I love you too." 565 00:42:40,120 --> 00:42:42,200 And I said, "I know." 566 00:42:44,840 --> 00:42:47,480 He asked me to kiss him, and I did. 567 00:42:48,280 --> 00:42:50,360 And 568 00:42:50,400 --> 00:42:52,200 then he said, "Kiss me again." 569 00:42:52,240 --> 00:42:55,080 And I did, and 570 00:42:55,120 --> 00:42:57,160 he said, "So now what?" 571 00:43:23,880 --> 00:43:26,280 As things went along, 572 00:43:26,320 --> 00:43:28,640 Derrick started going on the speaking circuit, 573 00:43:28,680 --> 00:43:30,560 I guess, going to these conferences and all. 574 00:43:30,600 --> 00:43:33,520 And there started to be some tension. 575 00:43:33,560 --> 00:43:36,720 ♪ Can you see it No, no, no, you can't see it 576 00:43:36,760 --> 00:43:38,120 ♪ A man asked me... 577 00:43:38,160 --> 00:43:40,920 They were driving to this event in suburban Trenton somewhere, 578 00:43:40,960 --> 00:43:42,880 and my mom was playing gospel music. 579 00:43:44,280 --> 00:43:47,200 And Anna goes and turns the station... 580 00:43:50,640 --> 00:43:52,200 and puts on classical music. 581 00:43:54,000 --> 00:43:55,720 "He doesn't wanna hear this, he wants that." 582 00:43:55,760 --> 00:43:58,480 She had ejected my gospel music, 583 00:43:58,520 --> 00:44:01,800 so I hit it, and it went back to playing. 584 00:44:01,840 --> 00:44:03,680 ♪ ..be right at home... ♪ 585 00:44:03,720 --> 00:44:07,080 Derrick loves gospel. He goes to church. He hears the music. 586 00:44:07,120 --> 00:44:10,920 That assumption that he prefers the high culture of classical music 587 00:44:10,960 --> 00:44:13,680 and not the low culture of gospel, I mean, it was just 588 00:44:13,720 --> 00:44:15,880 uh... too much of a leap. 589 00:44:20,680 --> 00:44:22,680 Slow down. 590 00:44:27,760 --> 00:44:30,760 There were different things, like one day, 591 00:44:30,800 --> 00:44:32,760 when we broke for lunch, 592 00:44:32,800 --> 00:44:34,760 I was cutting up his chicken, 593 00:44:34,800 --> 00:44:37,760 and she rolled over to the table and said, 594 00:44:37,800 --> 00:44:41,880 "What are you doing giving him meat?! He's a vegetarian." 595 00:44:41,920 --> 00:44:44,200 I said, "Nobody sent me any friggin' memo." 596 00:44:45,480 --> 00:44:49,080 There was another time she's working with Derrick on the computer. 597 00:44:49,120 --> 00:44:52,296 I said something to the effect to Derrick jokingly, "I can't wait till we get home 598 00:44:52,320 --> 00:44:55,040 so we can kick... get a beer, kick back and just relax." 599 00:44:55,080 --> 00:44:58,760 And then on the keyboard, it said something to the effect of, 600 00:44:58,800 --> 00:45:01,800 "Well, I don't like beer. I like red wine." 601 00:45:01,840 --> 00:45:04,440 And I just thought that to be hell a peculiar. 602 00:45:04,480 --> 00:45:07,400 Derrick does not... He doesn't even like communion wine. 603 00:45:12,880 --> 00:45:15,280 If you're in a "giving care" frame of mind, 604 00:45:15,320 --> 00:45:17,400 you don't see the person you're supporting 605 00:45:17,440 --> 00:45:22,360 as somebody who's in a position to make their own decisions, 606 00:45:22,400 --> 00:45:25,400 who has their own ideas about how they want things done. 607 00:45:25,440 --> 00:45:27,200 OK. 608 00:45:27,400 --> 00:45:29,400 OK. 609 00:45:30,280 --> 00:45:32,400 You wanna give them some control 610 00:45:32,440 --> 00:45:36,160 to develop into a person who has a good sense of themselves. 611 00:45:36,200 --> 00:45:37,200 Come on. 612 00:45:37,240 --> 00:45:39,000 So that part is 613 00:45:40,160 --> 00:45:43,480 a hard adjustment for parents or teachers 614 00:45:43,520 --> 00:45:45,880 who've been in a "I'm taking care of you" mode. 615 00:45:45,920 --> 00:45:49,000 Turn your feet. Turn your body. 616 00:45:49,040 --> 00:45:51,480 Now step off. Thank you. 617 00:46:26,160 --> 00:46:29,040 My mom kept telling me oh, you know, Anna was saying that, 618 00:46:29,080 --> 00:46:31,560 you know, she's too mothering, she's smothering Derrick, 619 00:46:31,600 --> 00:46:35,000 Derrick doesn't want all of this help from her, 620 00:46:35,040 --> 00:46:37,680 that, you know, you can't be my mom all the time. 621 00:46:37,720 --> 00:46:41,240 All these different things, that it seemed to be breaking my mom down. 622 00:46:41,280 --> 00:46:43,840 And... then to add to that, 623 00:46:43,880 --> 00:46:46,760 this idea that, oh, Derrick now wants to live independently. 624 00:46:47,960 --> 00:46:52,400 DMan had wanted to look into a more independent living arrangement, 625 00:46:52,440 --> 00:46:54,000 moving out of his mother's house 626 00:46:54,040 --> 00:46:57,040 and moving into a supported living situation. 627 00:47:12,080 --> 00:47:13,600 There was an organisation 628 00:47:13,640 --> 00:47:16,800 that was able to provide supervised housing for Derrick. 629 00:47:16,840 --> 00:47:20,720 Derrick would have individuals looking out for him 24 hours a day. 630 00:47:20,760 --> 00:47:24,000 He would take classes. He would get his degree. 631 00:47:24,040 --> 00:47:26,240 As my mom was telling me this, I thought, 632 00:47:26,280 --> 00:47:29,080 "Where's this money gonna come from for this? It's not gonna be free." 633 00:47:29,120 --> 00:47:31,400 And I just kind of saw that as... 634 00:47:32,280 --> 00:47:34,920 "Alright, you're getting a little too personal here. 635 00:47:34,960 --> 00:47:37,840 Now you're looking into Derrick's support?" 636 00:47:37,880 --> 00:47:41,120 'And I just wasn't comfortable with that.' 637 00:47:41,160 --> 00:47:43,080 I said, "Anna 638 00:47:43,120 --> 00:47:45,640 if he's gonna move in a place, he's gonna move in the basement 639 00:47:45,680 --> 00:47:48,240 where John lived before John got on his own. 640 00:47:48,280 --> 00:47:50,080 Derrick is not going anywhere." 641 00:47:51,560 --> 00:47:54,040 "You need to cut the apron strings." 642 00:47:54,080 --> 00:47:56,960 I said, "How am I gonna cut my apron strings 643 00:47:57,000 --> 00:48:00,960 when Derrick cannot walk, talk, or do anything on his own?" 644 00:48:01,000 --> 00:48:04,320 "See, that's where you're wrong. Derrick can do it." 645 00:48:05,840 --> 00:48:08,920 "You're opening up a whole new world for him.'" 646 00:48:13,920 --> 00:48:16,240 The ways in which she talked to my mom, 647 00:48:16,280 --> 00:48:18,680 you know, not mothering the proper way, 648 00:48:18,720 --> 00:48:21,000 and saying that Derrick doesn't like this and wants this, 649 00:48:21,040 --> 00:48:23,320 or "Daisy, you need to let him be a MAN." 650 00:48:23,360 --> 00:48:26,760 It just kind of rubbed me the wrong way. 651 00:48:26,800 --> 00:48:29,280 Part of it might be a level of self-consciousness on my part 652 00:48:29,320 --> 00:48:32,720 because I remember growing up in the late '80s, early '90s, and 653 00:48:32,760 --> 00:48:36,520 you know, when my mom and dad separated and then divorced, 654 00:48:36,560 --> 00:48:39,560 the idea of single parenthood was resonant. 655 00:48:40,960 --> 00:48:42,840 There was all these studies about, 656 00:48:42,880 --> 00:48:46,880 you know, "Children of single-parent households just don't do well". 657 00:48:46,920 --> 00:48:48,760 You know, invariably it was framed around, 658 00:48:48,800 --> 00:48:51,400 you know, "Black women aren't good parents", 659 00:48:51,440 --> 00:48:54,480 "there's things that Black women can't teach their sons", and 660 00:48:54,520 --> 00:48:56,920 all of that was kind of in my ear. 661 00:48:58,160 --> 00:49:00,080 Now, I think it's important to recognise 662 00:49:00,120 --> 00:49:03,520 that my mom, prior to all of this, was affiliated 663 00:49:03,560 --> 00:49:07,360 with a number of organisations that were headed by women of colour, 664 00:49:07,400 --> 00:49:11,400 who were advocates for people of colour with disabilities, 665 00:49:11,440 --> 00:49:13,440 who otherwise may have been overlooked. 666 00:49:14,560 --> 00:49:16,480 For Anna to make certain assumptions 667 00:49:16,520 --> 00:49:20,800 about my mom's expertise or her decision-making 668 00:49:20,840 --> 00:49:22,560 and those kinds of things, 669 00:49:22,600 --> 00:49:25,440 it just has those racial undertones and overtones. 670 00:49:25,480 --> 00:49:27,200 It wasn't like, you know, 671 00:49:27,240 --> 00:49:29,280 "Nigger, get in the back of the bus" kind of racism. 672 00:49:29,320 --> 00:49:31,520 It wasn't that, but it was more like making assumptions 673 00:49:31,560 --> 00:49:35,600 based on the idea certain people might be inherently... deficient. 674 00:49:36,960 --> 00:49:39,720 Anna was just ignoring the past 30-some-odd years 675 00:49:39,760 --> 00:49:43,360 and everything that my mom has done to get us to this point, right? 676 00:49:45,760 --> 00:49:48,720 And so I had it in my mind, 677 00:49:48,760 --> 00:49:50,680 we're gonna have a long conversation. 678 00:49:50,720 --> 00:49:53,280 We are gonna have to, like, really set some hard, fast rules, 679 00:49:53,320 --> 00:49:56,720 or we may have to just kind of begin to draw things down. 680 00:50:01,600 --> 00:50:04,720 DMan and I had debated on several occasions 681 00:50:04,760 --> 00:50:07,320 whether we wanted to say anything 682 00:50:07,360 --> 00:50:10,520 to Daisy and John about the change in our relationship. 683 00:50:11,360 --> 00:50:13,160 We knew we were gonna tell them eventually. 684 00:50:13,200 --> 00:50:15,080 So it was more just 685 00:50:15,120 --> 00:50:17,280 we were enjoying that 686 00:50:17,320 --> 00:50:19,960 kind of initial beginning of a romance 687 00:50:20,000 --> 00:50:22,280 when it's very private, and it's very intimate, 688 00:50:22,320 --> 00:50:25,440 and it's just the two of you, and it changes 689 00:50:25,480 --> 00:50:27,280 when you start sharing with family. 690 00:50:27,320 --> 00:50:30,560 'But we had started figuring out' 691 00:50:30,600 --> 00:50:33,840 ways that we could, you know, try to spend time together. 692 00:50:34,800 --> 00:50:37,280 And there was the Sunday. 693 00:50:37,320 --> 00:50:41,840 DMan and I had made plans to go to a film festival in New York, 694 00:50:41,880 --> 00:50:44,040 where there was a film being shown 695 00:50:44,080 --> 00:50:46,880 called Wretches And Jabberers, which was about FC users. 696 00:50:46,920 --> 00:50:51,440 'Daisy wanted to go to church that morning.' 697 00:50:51,480 --> 00:50:55,000 And in thinking about locations and stuff 698 00:50:55,040 --> 00:50:57,800 for eventual romantic rendezvous, 699 00:50:57,840 --> 00:51:00,120 we definitely didn't want to use, 700 00:51:00,160 --> 00:51:02,120 you know, his mother's house. 701 00:51:02,960 --> 00:51:05,440 But, you know, here we are at the house, 702 00:51:05,480 --> 00:51:08,880 and she's not there, and 703 00:51:08,920 --> 00:51:11,760 it's difficult for him to kiss, 704 00:51:11,800 --> 00:51:16,240 so we wanted to practise. 705 00:51:16,280 --> 00:51:20,040 Like anything else, it was a physical challenge for him. 706 00:51:23,000 --> 00:51:25,600 I could tell that he's very tense, 707 00:51:25,640 --> 00:51:28,160 and every time he tried to sit back, 708 00:51:28,200 --> 00:51:30,200 he would kind of pop up again. 709 00:51:30,240 --> 00:51:32,360 And I said, like, "Talk to me, you know, 710 00:51:32,400 --> 00:51:35,720 obviously, this is not working for you. What's going on?" 711 00:51:35,760 --> 00:51:37,640 And he typed, 712 00:51:37,680 --> 00:51:41,640 "I really, really love being with you, and I wanna be doing this, 713 00:51:41,680 --> 00:51:45,600 but I'm just really overwhelmed right now, I need a minute." 714 00:51:45,640 --> 00:51:49,400 And I said, you know, "Fine, take all the time you need, of course." 715 00:51:52,120 --> 00:51:55,240 So he excluded himself down the hallway, 716 00:51:55,280 --> 00:51:58,400 and I got a glass of water. I was just giving him some time. 717 00:51:59,480 --> 00:52:01,280 And I said to him, "Look, you know", 718 00:52:01,320 --> 00:52:04,920 you're the one where this is all a brand-new thing for you. 719 00:52:04,960 --> 00:52:07,440 You've gotta call the shots. You've gotta 720 00:52:07,480 --> 00:52:10,560 you know, I don't wanna do anything that makes you uncomfortable. 721 00:52:10,600 --> 00:52:13,080 I don't wanna push anything faster. 722 00:52:13,120 --> 00:52:16,000 I don't know what's gonna work for your body and what isn't, 723 00:52:16,040 --> 00:52:17,440 "so you tell me." 724 00:52:18,480 --> 00:52:20,800 I was figuring at that point 725 00:52:20,840 --> 00:52:23,760 that, like, the moment had passed, and that was alright. 726 00:52:24,920 --> 00:52:26,640 And 727 00:52:26,680 --> 00:52:28,880 he typed, "May I touch your breasts?" 728 00:52:30,120 --> 00:52:32,720 And I was like, "Wow, OK." 729 00:52:32,760 --> 00:52:36,320 I didn't know where that was... That wasn't what I was expecting. 730 00:52:36,360 --> 00:52:38,000 OK. 731 00:52:38,040 --> 00:52:41,000 And then he typed, 732 00:52:41,040 --> 00:52:43,800 "Take your shirt off all the way." 733 00:52:43,840 --> 00:52:46,320 I was like, "OK." So I did that. 734 00:52:46,360 --> 00:52:49,200 And then he said, "Take the rest of your clothes off." 735 00:52:49,240 --> 00:52:52,360 And OK, so I did. 736 00:52:52,400 --> 00:52:54,840 And, um 737 00:52:54,880 --> 00:52:58,320 then he said, "You know, I've dreamed about this." 738 00:52:58,360 --> 00:53:00,920 It seemed to me that what he was doing 739 00:53:00,960 --> 00:53:04,400 was taking control of the situation. 740 00:53:04,440 --> 00:53:07,000 He was, like, really ordering me around and, 741 00:53:07,040 --> 00:53:11,000 but that was kind of cool because I wasn't necessarily anticipating 742 00:53:11,040 --> 00:53:13,120 that element of the relationship. 743 00:53:14,440 --> 00:53:16,600 He said, 744 00:53:16,640 --> 00:53:19,600 "I long to hold you the way that men do." 745 00:53:21,480 --> 00:53:24,640 I said to him, "Look, I feel held." 746 00:53:24,680 --> 00:53:26,360 He 747 00:53:26,400 --> 00:53:28,120 Said, 748 00:53:28,160 --> 00:53:30,920 "Do you think that it would even be possible 749 00:53:30,960 --> 00:53:33,880 with my cerebral palsy 750 00:53:33,920 --> 00:53:35,920 for us to make love?" 751 00:53:35,960 --> 00:53:39,000 And I said, "You know, I have no idea, 752 00:53:39,040 --> 00:53:42,200 but there's only... there's only one way to find out." 753 00:54:06,880 --> 00:54:09,640 We had this meeting scheduled for Memorial Day for DMan 754 00:54:09,680 --> 00:54:13,400 to talk to Daisy and John about the independent living counsellor. 755 00:54:13,440 --> 00:54:16,960 And DMan brought up, or I brought up, I don't even remember, 756 00:54:17,000 --> 00:54:19,520 you know, should we also use this opportunity 757 00:54:19,560 --> 00:54:22,640 to tell them about the change in our relationship? 758 00:54:23,520 --> 00:54:27,960 But I said to him, "Look, if Daisy and John did get upset about this 759 00:54:28,000 --> 00:54:29,720 and chose to separate us, 760 00:54:29,760 --> 00:54:32,240 technically, that's a violation of your rights, 761 00:54:32,280 --> 00:54:35,920 but it would be very hard to challenge them on that." 762 00:54:38,960 --> 00:54:41,160 'He said to me...' 763 00:54:41,200 --> 00:54:44,400 "They would never do that to me. They love me too much." 764 00:54:48,160 --> 00:54:50,080 We all sit down, and 765 00:54:50,120 --> 00:54:54,080 there just seemed to be this awkwardness about it, you know? 766 00:54:54,120 --> 00:54:56,320 If we're gonna talk business, let's talk business. 767 00:54:56,360 --> 00:54:58,560 But she seemed... She looked at Derrick and said, 768 00:54:58,600 --> 00:55:00,240 "Do you want me to tell them?" 769 00:55:00,280 --> 00:55:02,120 And so... 770 00:55:02,160 --> 00:55:03,840 I'm like, "Tell us what?" 771 00:55:03,880 --> 00:55:06,360 And then she grabs Derrick's hand, 772 00:55:06,400 --> 00:55:08,240 and on the keyboard comes up, 773 00:55:08,280 --> 00:55:09,560 "We are in love." 774 00:55:12,560 --> 00:55:15,800 So he typed, you know, "Anna and I are in love, 775 00:55:15,840 --> 00:55:19,560 and we've, you know, we have a physical relationship," 776 00:55:19,600 --> 00:55:23,520 I think John said something about, you know, "Did you use protection?" 777 00:55:23,560 --> 00:55:26,320 and DMan said, "Yes," and... 778 00:55:26,360 --> 00:55:29,760 She said, "Yes, we have made love." 779 00:55:33,720 --> 00:55:36,760 And I was like, "What?" 780 00:55:36,800 --> 00:55:39,200 "Yes, we've made love. 781 00:55:39,240 --> 00:55:42,600 He's a man in every sense of the word." 782 00:55:44,480 --> 00:55:48,280 And what I did, I sat on my hands, 783 00:55:51,080 --> 00:55:53,240 and I said, "You did what?" 784 00:55:59,720 --> 00:56:01,480 You know, they asked me 785 00:56:01,520 --> 00:56:03,960 about where things were at with my husband, 786 00:56:04,000 --> 00:56:06,120 and, you know, I told them 787 00:56:06,160 --> 00:56:09,920 I really did wanna, you know, be with DMan permanently to marry him, 788 00:56:09,960 --> 00:56:12,440 that I hadn't talked to my husband yet, 789 00:56:12,480 --> 00:56:16,000 but that I was going to very soon, and... 790 00:56:16,040 --> 00:56:18,240 There was a moment as part of the conversation 791 00:56:18,280 --> 00:56:22,240 where he asked me to kiss him, I found that a little awkward. 792 00:56:22,280 --> 00:56:25,800 Like, I didn't really want to in that moment, just like... 793 00:56:26,600 --> 00:56:28,720 You know, but he insisted, so I did. 794 00:56:30,320 --> 00:56:31,960 I tried to be civil. 795 00:56:32,800 --> 00:56:35,440 John had gone somewhere, and I think he went down and threw up. 796 00:56:36,680 --> 00:56:38,680 I was shocked. 797 00:56:38,720 --> 00:56:43,720 I didn't really know what to make of it at the time, but... 798 00:56:43,760 --> 00:56:46,280 I felt myself getting so angry, 799 00:56:47,360 --> 00:56:50,680 and rage-filled that I left. 800 00:56:50,720 --> 00:56:53,960 I went downstairs. I paced the floor a bunch of times. 801 00:56:54,000 --> 00:56:56,360 I looked at the cracks in the wall. I remember... 802 00:56:56,400 --> 00:56:58,280 I had to 803 00:56:58,320 --> 00:57:01,200 let my anger subside. 804 00:57:02,560 --> 00:57:06,600 I said goodbye to DMan, and Daisy was there, and she, 805 00:57:06,640 --> 00:57:08,400 you know, came and gave me a big hug 806 00:57:08,440 --> 00:57:10,280 and said, "You know, we'll get through this. 807 00:57:10,320 --> 00:57:12,240 We'll figure this out." 808 00:57:12,280 --> 00:57:15,160 I was heading out the door and just saying goodbye to DMan. 809 00:57:15,200 --> 00:57:18,840 I said, you know, I said to him, like, "Good call, love, hon. 810 00:57:18,880 --> 00:57:21,480 You know, hon, it was a good choice to tell them." 811 00:57:21,520 --> 00:57:25,360 And then I left, and, you know, I was feeling fine. 812 00:57:31,040 --> 00:57:33,200 John called me the next morning 813 00:57:33,240 --> 00:57:36,000 about 10 o'clock in the morning, and... 814 00:57:36,040 --> 00:57:39,320 I think I knew something was gonna be wrong 815 00:57:39,360 --> 00:57:41,360 when I saw he was calling. 816 00:57:42,680 --> 00:57:47,240 He said, "Daisy and I don't want you to see DMan 817 00:57:47,280 --> 00:57:51,360 until you, and she and I have a chance to sit down and talk." 818 00:57:52,440 --> 00:57:55,720 We sort of scheduled a meeting, then she pulled out. 819 00:57:55,760 --> 00:57:58,960 Then John or Daisy got back to me 820 00:57:59,000 --> 00:58:01,080 and said, "You know what? We just don't wanna meet." 821 00:58:01,120 --> 00:58:04,640 That was when... Then I started calling Daisy... 822 00:58:11,760 --> 00:58:14,120 She would talk to me on the phone. 823 00:58:14,160 --> 00:58:18,120 I would kind of address her concerns and talk about things. 824 00:58:43,320 --> 00:58:45,360 And then she stopped returning my calls. 825 00:59:14,440 --> 00:59:18,320 One of the things that happened with the facilitated communication 826 00:59:18,360 --> 00:59:22,080 was that part of the sessions were for us, my mom and I, 827 00:59:22,120 --> 00:59:24,080 to also practise with him. 828 00:59:24,120 --> 00:59:27,400 And so Anna would be there with him, 829 00:59:27,440 --> 00:59:30,320 and you know, a sentence will come out. 830 00:59:30,360 --> 00:59:33,960 "Alright, John, you try." So I would try to, and I would get nothing. 831 00:59:34,000 --> 00:59:36,120 You know, eventually he would apply pressure. 832 00:59:36,160 --> 00:59:38,280 I may get two words, but it wouldn't make sense. 833 00:59:38,320 --> 00:59:40,520 And then when my mama tried, nothing would happen. 834 00:59:40,560 --> 00:59:44,080 See all these marks on my arm? That was Derrick's facilitating. 835 00:59:44,880 --> 00:59:48,080 He would grab me and pull my hand, 836 00:59:48,120 --> 00:59:50,200 you know, take my hand away from his. 837 00:59:50,240 --> 00:59:52,880 The coaching from Anna was, 838 00:59:52,920 --> 00:59:55,760 "You have to keep trying. You have to keep practising. 839 00:59:55,800 --> 00:59:59,840 You have to anticipate what he's gonna say." 840 00:59:59,880 --> 01:00:02,200 That was one of those like, "Hm?" 841 01:00:02,240 --> 01:00:06,040 That's when I guess my own doubts started to creep in, 842 01:00:06,080 --> 01:00:07,960 and that's when I started looking 843 01:00:08,000 --> 01:00:11,520 for the video that I initially saw in the classroom 844 01:00:11,560 --> 01:00:15,560 to see, what in the world am I doing wrong? Um... 845 01:00:15,600 --> 01:00:20,400 And that's when I stumbled upon the Frontline Documentary on FC. 846 01:00:25,400 --> 01:00:29,360 Some people had doubts about facilitated communication. 847 01:00:29,400 --> 01:00:31,400 Dr Howard Shane has devoted his life 848 01:00:31,440 --> 01:00:34,840 to helping disabled non-verbal people to communicate. 849 01:00:34,880 --> 01:00:37,280 You must be Dr Shane. How are you? Great to meet you. 850 01:00:38,240 --> 01:00:40,280 In 1990, I got a call 851 01:00:40,320 --> 01:00:43,480 from a prosecutor in Western Massachusetts 852 01:00:43,520 --> 01:00:45,800 because someone was being facilitated, 853 01:00:45,840 --> 01:00:48,160 and while being facilitated, 854 01:00:48,200 --> 01:00:51,760 he mentioned that his aid in his group residence 855 01:00:51,800 --> 01:00:53,880 was sexually abusing him. 856 01:00:55,640 --> 01:00:57,440 And the prosecutor wanted to be sure 857 01:00:57,480 --> 01:01:01,840 that this individual was actually independently communicating. 858 01:01:04,320 --> 01:01:06,280 When you have somebody hold your hand, 859 01:01:06,320 --> 01:01:09,960 it obviously brings up the question every time, 860 01:01:10,000 --> 01:01:12,600 "Well, are they being influenced?" 861 01:01:12,640 --> 01:01:14,920 How can you be sure that these individuals 862 01:01:14,960 --> 01:01:17,240 are actually, you know, independently communicating? 863 01:01:17,280 --> 01:01:19,920 Or they aren't being facilitated and really being influenced? 864 01:01:25,680 --> 01:01:28,560 I went on to design a protocol 865 01:01:28,600 --> 01:01:31,200 that would enable me 866 01:01:31,240 --> 01:01:33,320 to determine who was authoring the message. 867 01:01:33,360 --> 01:01:35,680 OK, folks, what I'm gonna be doing now... 868 01:01:35,720 --> 01:01:38,560 Shane had devised a double-blind test like this. 869 01:01:38,600 --> 01:01:40,840 He showed both a series of pictures 870 01:01:40,880 --> 01:01:43,000 and asked them to type what they saw. 871 01:01:44,720 --> 01:01:46,360 Betsy, you sure you're looking at... 872 01:01:46,400 --> 01:01:49,880 When both Betsy and her facilitators saw a picture of a key 873 01:01:50,800 --> 01:01:55,000 the letters K-E-Y were typed. 874 01:01:55,920 --> 01:01:58,200 But Shane wanted to discover what happened 875 01:01:58,240 --> 01:02:00,440 if each saw a different picture. 876 01:02:00,480 --> 01:02:02,360 When Betsy saw a cup, 877 01:02:02,400 --> 01:02:05,440 she didn't type "cup", she typed "hat", 878 01:02:05,480 --> 01:02:08,080 what the facilitator saw. 879 01:02:08,120 --> 01:02:10,600 Now take a look at this one, OK? 880 01:02:12,280 --> 01:02:14,480 When Betsy was shown a picture of a dog, 881 01:02:14,520 --> 01:02:18,200 she didn't type "dog", but "sneakers", 882 01:02:18,240 --> 01:02:20,920 what the facilitator saw. 883 01:02:21,800 --> 01:02:23,200 OK, here's the next one. 884 01:02:23,240 --> 01:02:25,920 Later work that I did and others have done 885 01:02:25,960 --> 01:02:29,760 seems to indicate that facilitators were doing this 886 01:02:29,800 --> 01:02:33,280 thinking they were giving people the ability to be able to communicate. 887 01:02:34,720 --> 01:02:37,360 I don't think that they're intentionally 888 01:02:37,400 --> 01:02:39,640 trying to create a false message. 889 01:02:39,680 --> 01:02:42,560 They believe that this is coming from the person 890 01:02:42,600 --> 01:02:45,080 who's being facilitated. 891 01:02:45,120 --> 01:02:46,760 The scientific evidence suggested 892 01:02:46,800 --> 01:02:49,840 that far from unlocking the minds of autistic individuals, 893 01:02:49,880 --> 01:02:53,920 FC tapped the unconscious thoughts of the facilitator. 894 01:02:57,480 --> 01:02:59,680 I just remember thinking at the time, 895 01:02:59,720 --> 01:03:03,160 you know, Derrick was writing those papers. 896 01:03:04,200 --> 01:03:06,160 What I find interesting, in hindsight, 897 01:03:06,200 --> 01:03:09,480 is that a lot of it revolved around this idea of 898 01:03:09,520 --> 01:03:13,040 you know, "Now I have a voice. Now I can speak and talk," 899 01:03:13,080 --> 01:03:14,840 and, uh... 900 01:03:14,880 --> 01:03:19,040 "Whereas I was trapped, now I have this freedom." 901 01:03:19,080 --> 01:03:22,320 And a lot of it revolved around things 902 01:03:22,360 --> 01:03:25,600 that just, in my estimation, were not 903 01:03:26,960 --> 01:03:28,960 about Derrick. 904 01:03:29,000 --> 01:03:32,920 And so to me, it was just like this whole FC thing is bogus. 905 01:03:35,960 --> 01:03:39,720 I never got any vibe off of John or Daisy 906 01:03:39,760 --> 01:03:42,120 that they didn't 100% believe 907 01:03:42,160 --> 01:03:45,280 that what DMan said was DMan's words. 908 01:03:46,200 --> 01:03:49,080 I had been careful in the beginning 909 01:03:49,120 --> 01:03:52,000 to make sure that I wasn't influencing him, 910 01:03:52,040 --> 01:03:56,120 but there were so many, so many situations 911 01:03:56,160 --> 01:03:58,760 that he was telling me information I didn't know. 912 01:03:58,800 --> 01:04:02,560 In the beginning, I was checking to make sure that I wasn't influencing, 913 01:04:02,600 --> 01:04:05,840 and the fact that we had arguments and disagreements, 914 01:04:05,880 --> 01:04:09,640 and so on, and so forth, I mean, he very clearly had his own mind. 915 01:04:11,680 --> 01:04:13,200 He more than proved himself. 916 01:04:14,040 --> 01:04:16,800 The homework assignments that DMan had typed 917 01:04:16,840 --> 01:04:18,760 with Sheronda, and she hadn't read the books. 918 01:04:18,800 --> 01:04:23,320 I mean, had John come and talk to me, I had all of this... proof 919 01:04:23,360 --> 01:04:25,640 that I could have shared with him to reassure him. 920 01:05:37,560 --> 01:05:41,600 At the time, we weren't trying to pursue any kind of legal thing. 921 01:05:41,640 --> 01:05:44,120 We just wanted to leave us alone. 922 01:05:44,160 --> 01:05:45,920 But then one day, 923 01:05:45,960 --> 01:05:49,920 the Director of Derrick's Day program me got an email from Anna. 924 01:05:49,960 --> 01:05:52,160 And the gist of it was, 925 01:05:52,200 --> 01:05:55,360 "Daisy and John have not allowed me to see Derrick, 926 01:05:55,400 --> 01:05:58,040 but Daisy and John don't know what's in Derrick's best interest, 927 01:05:58,080 --> 01:06:01,520 but we, as people who work with people with disabilities, do." 928 01:06:10,360 --> 01:06:12,480 And at that point, I thought, "You know what?" 929 01:06:12,520 --> 01:06:14,600 If she's gonna go to these lengths to 930 01:06:14,640 --> 01:06:17,120 try to get to Derrick behind our back, 931 01:06:17,160 --> 01:06:19,320 there's no telling what she may do, 932 01:06:19,360 --> 01:06:22,080 "and I need to take steps necessary to put an end to this." 933 01:06:23,120 --> 01:06:26,840 And so I made an appointment to meet with the Dean. 934 01:06:26,880 --> 01:06:28,800 I remember going into her office, 935 01:06:28,840 --> 01:06:32,880 and I started to tell her what was going on. 936 01:06:32,920 --> 01:06:35,320 She kinda froze and was like 937 01:06:35,360 --> 01:06:38,360 took a deep breath and was somewhat in disbelief. 938 01:06:41,080 --> 01:06:44,320 I don't think I had taken the opportunity to kind of 939 01:06:45,160 --> 01:06:48,040 let myself release this emotion. 940 01:06:48,080 --> 01:06:50,960 I was just sat in that office... ..and I don't think 941 01:06:51,000 --> 01:06:54,560 I ever cried in front of a white woman before, but I just broke down. 942 01:06:54,600 --> 01:06:57,360 And she basically said to me, 943 01:06:57,400 --> 01:07:00,680 in so many words, "John, make sure you get a lawyer." 944 01:07:23,360 --> 01:07:26,080 I got a phone call one day from Daisy, 945 01:07:26,120 --> 01:07:28,120 and she said... 946 01:07:40,360 --> 01:07:43,720 She said, "He's been biting his hand a lot more. He's really unhappy." 947 01:07:43,760 --> 01:07:46,800 So she said, "I'm just trying to understand 948 01:07:46,840 --> 01:07:48,880 what happened between the two of you." 949 01:08:08,720 --> 01:08:10,440 To me, it sounded like, 950 01:08:10,480 --> 01:08:13,880 "Oh, maybe this is an opening. Maybe they're seeing he's unhappy, 951 01:08:13,920 --> 01:08:15,880 and they're reconsidering, and," 952 01:08:15,920 --> 01:08:19,200 so I was happy to answer her questions. 953 01:08:47,720 --> 01:08:50,280 You know, again, that feels kinda weird to talk about with 954 01:08:50,320 --> 01:08:52,440 your lover's mother, 955 01:08:52,480 --> 01:08:54,240 but, you know, whatever. 956 01:08:54,280 --> 01:08:57,080 If it kept the conversation going, and if she was listening... 957 01:09:18,000 --> 01:09:20,160 I found out later that that was 958 01:09:20,200 --> 01:09:22,280 that phone call had been set up by the police, 959 01:09:22,320 --> 01:09:24,400 and they had coached her on what to say, 960 01:09:24,440 --> 01:09:27,080 and it was being recorded. 961 01:09:42,800 --> 01:09:47,200 The crimes investigated are crimes of the sexual assault nature. 962 01:09:54,440 --> 01:09:56,920 It was a Monday, 963 01:09:56,960 --> 01:10:00,360 and I was teaching class in the afternoon, 964 01:10:00,400 --> 01:10:03,320 so I pulled into the parking lot, 965 01:10:03,360 --> 01:10:08,280 and I was approached by two people in plain clothes. 966 01:10:08,320 --> 01:10:11,640 And they said, "We're with the Essex County Prosecutor's Office, 967 01:10:11,680 --> 01:10:13,560 and we need to ask you some questions." 968 01:10:13,600 --> 01:10:17,960 And the only thing I could think of was something about a student. 969 01:10:20,040 --> 01:10:22,600 You know, I'm wondering what's going on. 970 01:10:22,640 --> 01:10:24,320 And then they said, 971 01:10:24,360 --> 01:10:27,280 "Do you know somebody named Derrick Johnson?" 972 01:10:29,360 --> 01:10:30,600 I was like... 973 01:10:32,240 --> 01:10:34,400 "OK," you know? And that was... 974 01:10:34,440 --> 01:10:37,400 It's starting to penetrate that, um... 975 01:10:37,440 --> 01:10:39,800 "Wow, OK, this is..." 976 01:10:44,360 --> 01:10:46,560 So then I had to make a decision on the spot 977 01:10:46,600 --> 01:10:48,800 about how much do I say. 978 01:10:48,840 --> 01:10:51,640 But I figured, "You know what? I didn't do anything wrong." 979 01:10:52,480 --> 01:10:56,800 I talked to them for about two hours, and I told them the whole story. 980 01:10:56,840 --> 01:10:58,640 That we were in love and all of that stuff. 981 01:10:58,680 --> 01:11:00,600 I just didn't actually say the words, 982 01:11:00,640 --> 01:11:02,840 you know, "We consummated the relationship." 983 01:11:04,520 --> 01:11:08,640 They drove me back to the parking lot at Rutgers, 984 01:11:08,680 --> 01:11:11,920 and there was a person I didn't know, 985 01:11:11,960 --> 01:11:16,920 who identified himself as a representative of the Dean's Office. 986 01:11:16,960 --> 01:11:20,160 He handed me a letter, and the letter informed me 987 01:11:20,200 --> 01:11:24,960 as of this moment, I was suspended from my teaching duties at Rutgers, 988 01:11:25,000 --> 01:11:27,120 I was not allowed on campus. 989 01:11:43,760 --> 01:11:45,440 And while I was there, 990 01:11:45,480 --> 01:11:48,320 they had gone to my house with a search warrant. 991 01:11:53,000 --> 01:11:56,000 My... now ex-husband was there, 992 01:11:56,040 --> 01:12:00,480 so he's found out that I'm under investigation. 993 01:12:14,280 --> 01:12:16,320 This is Detective Christine McKowski 994 01:12:16,360 --> 01:12:18,440 of the Essex County Prosecutor's Office. 995 01:13:07,040 --> 01:13:11,240 Today, we're conducting an interview with Ms Karen Moore. Um... 996 01:14:27,240 --> 01:14:29,000 I got a call from my assistant 997 01:14:29,040 --> 01:14:32,960 saying that the Special Victims Unit in New Jersey was calling. 998 01:14:34,720 --> 01:14:36,440 Asked me if I would be willing 999 01:14:36,480 --> 01:14:38,720 provide some assistance as an expert. 1000 01:14:45,240 --> 01:14:46,960 As it was described to me, 1001 01:14:47,000 --> 01:14:48,840 I'd never encountered any case 1002 01:14:48,880 --> 01:14:51,800 that mirrored these particular circumstances. 1003 01:14:51,840 --> 01:14:53,360 I had never seen anything like it. 1004 01:14:59,520 --> 01:15:01,680 In this case, the question to me was, 1005 01:15:01,720 --> 01:15:04,120 "Could you evaluate Derrick to understand 1006 01:15:04,160 --> 01:15:06,680 his best level of communication?" 1007 01:15:08,160 --> 01:15:09,840 From everything that I read, 1008 01:15:09,880 --> 01:15:13,000 there was a consistency to the extent of his disability, 1009 01:15:13,040 --> 01:15:15,360 but I went in with an open mind. 1010 01:15:16,200 --> 01:15:19,480 I met him when he was brought to the prosecutor's office. 1011 01:15:19,520 --> 01:15:22,320 He was accompanied by his brother and his mother. 1012 01:15:23,520 --> 01:15:26,640 'I already knew that he had no speech.' 1013 01:15:26,680 --> 01:15:29,480 So I proceeded 1014 01:15:29,520 --> 01:15:32,040 to introduce different types 1015 01:15:32,080 --> 01:15:34,600 of materials for him to indicate. 1016 01:15:34,640 --> 01:15:38,120 Pictures, photographs, which are very realistic. 1017 01:15:38,160 --> 01:15:40,520 It was difficult for him, you know, 1018 01:15:40,560 --> 01:15:42,800 I really didn't get very much from that. 1019 01:15:42,840 --> 01:15:46,160 He was able to pick up some objects, but not when I said, you know, 1020 01:15:46,200 --> 01:15:48,880 "Pick up the spoon," or, "Pick up the cup." 1021 01:15:48,920 --> 01:15:52,280 I did an interview of his mother. 1022 01:15:52,320 --> 01:15:54,840 Based on everything that she had observed, 1023 01:15:54,880 --> 01:15:56,840 and she certainly was a very good observer, 1024 01:15:56,880 --> 01:16:00,400 I found that he was, you know, functioning at a pretty low level. 1025 01:16:01,320 --> 01:16:04,040 His way of telling you that he wanted something to eat 1026 01:16:04,080 --> 01:16:05,880 was he would scoot over to the refrigerator 1027 01:16:05,920 --> 01:16:09,440 and tap on the refrigerator. That's very functional. 1028 01:16:09,480 --> 01:16:13,080 But to move from that to pointing to a picture of the refrigerator, 1029 01:16:13,120 --> 01:16:15,400 that's a greater level of abstraction. 1030 01:16:15,440 --> 01:16:18,800 And in all the years he had been in these different programmes, 1031 01:16:18,840 --> 01:16:20,840 he had never moved from the physical 1032 01:16:20,880 --> 01:16:22,920 to that type of communication. 1033 01:16:27,720 --> 01:16:30,080 I spent two or three hours with him. 1034 01:16:31,400 --> 01:16:34,640 He spent a lot of time just moving around the room. 1035 01:16:34,680 --> 01:16:37,640 He liked coat hangers, so if he saw a coat hanger, 1036 01:16:37,680 --> 01:16:40,000 he would go over, and he recognised that. 1037 01:16:40,040 --> 01:16:42,720 He liked to slap 'em on the floor. 1038 01:16:47,600 --> 01:16:50,040 So I just basically reported what I found. 1039 01:17:07,120 --> 01:17:11,240 I made a determination that what I was observing 1040 01:17:11,280 --> 01:17:15,360 was consistent with what the medical record had indicated 1041 01:17:15,400 --> 01:17:18,320 for, you know, over 20 years of his life. 1042 01:17:19,160 --> 01:17:21,560 There was no one in the 20 years 1043 01:17:21,600 --> 01:17:25,320 who saw some sparkling of, you know, something different. 1044 01:19:06,960 --> 01:19:09,600 I was actually looking forward to the trial 1045 01:19:09,640 --> 01:19:12,120 as finally, this nightmare is gonna be over. 1046 01:19:12,160 --> 01:19:16,160 I knew she was not guilty of anything. 1047 01:19:21,600 --> 01:19:24,200 I'm not guilty 1048 01:19:24,240 --> 01:19:27,880 of what they were accusing me of. 1049 01:19:27,920 --> 01:19:30,400 If the accusation is 1050 01:19:30,440 --> 01:19:34,320 I have some weird perversion that makes me 1051 01:19:34,360 --> 01:19:37,880 want to molest helpless, intellectually impaired people. 1052 01:19:37,920 --> 01:19:40,640 'that's simply not the case.' 1053 01:19:43,560 --> 01:19:46,040 This whole thing is framed 1054 01:19:46,080 --> 01:19:48,600 in terms of consent and his ability to consent 1055 01:19:48,640 --> 01:19:51,160 because I'm the one who's accused of assault. 1056 01:19:51,200 --> 01:19:54,800 It's all as if it was all coming from me, 1057 01:19:54,840 --> 01:19:56,920 which is really not fair to him 1058 01:19:56,960 --> 01:19:59,120 because he seduced me, 1059 01:19:59,160 --> 01:20:02,080 and he deserves some credit for that. 1060 01:20:02,120 --> 01:20:05,280 Here's this guy who's so physically impaired, 1061 01:20:05,320 --> 01:20:07,680 and he 1062 01:20:07,720 --> 01:20:11,920 he got me to fall in love with him, and with his words. 1063 01:20:24,800 --> 01:20:27,240 The judge kept taking things away 1064 01:20:27,280 --> 01:20:30,160 and taking things away in terms of evidence. 1065 01:20:30,200 --> 01:20:33,200 I knew that DMan was the author of what he typed. 1066 01:20:33,240 --> 01:20:37,000 I wasn't influencing him, but at the end of the day, 1067 01:20:37,040 --> 01:20:39,520 I didn't have anything except my word for that. 1068 01:20:45,440 --> 01:20:48,000 There was a morning, the prosecutor said, 1069 01:20:48,040 --> 01:20:50,520 "We're gonna bring DMan into the courtroom." 1070 01:20:52,000 --> 01:20:54,480 It was Daisy who walked him in. 1071 01:20:56,480 --> 01:20:58,920 I had to say who he was. 1072 01:20:58,960 --> 01:21:01,400 And, you know, I was his mother. 1073 01:21:01,440 --> 01:21:05,680 And the fact that he could not walk by himself independently, 1074 01:21:05,720 --> 01:21:07,440 I just walked him 1075 01:21:07,480 --> 01:21:11,160 in front of the judge and then around by the jury stand. 1076 01:21:12,360 --> 01:21:15,000 It was horrifying to me 1077 01:21:15,040 --> 01:21:19,560 that a human being had been basically made an exhibit. 1078 01:21:20,760 --> 01:21:24,720 I know with DMan, there are ways of walking with him 1079 01:21:24,760 --> 01:21:27,680 in which he looks less handicapped, 1080 01:21:27,720 --> 01:21:29,760 and his mother walked him in 1081 01:21:29,800 --> 01:21:33,440 in a way that made him look as handicapped 1082 01:21:33,480 --> 01:21:37,600 and incapable as one could possibly manage. 1083 01:21:37,640 --> 01:21:39,720 She turned around again, and she turned 1084 01:21:39,760 --> 01:21:43,200 always putting her body in between him and... me, 1085 01:21:43,240 --> 01:21:45,800 and walked him out. 1086 01:22:51,400 --> 01:22:53,520 What we didn't have on the jury was anyone 1087 01:22:53,560 --> 01:22:58,000 with significant physical disabilities or that understanding 1088 01:22:58,040 --> 01:23:00,920 of a disability rights perspective on the whole case. 1089 01:23:02,840 --> 01:23:05,560 At the end of the day, it was just 1090 01:23:05,600 --> 01:23:09,280 be myself and tell my story, and 1091 01:23:09,320 --> 01:23:12,720 hopefully, the jury would see that guy over there 1092 01:23:12,760 --> 01:23:16,760 is this wonderful, intelligent man who I was in love with. 1093 01:24:14,880 --> 01:24:18,960 Was there any moment, either during your time with Derrick, 1094 01:24:19,000 --> 01:24:21,200 or during the trial, or now, 1095 01:24:21,240 --> 01:24:24,360 where you had doubts about what might have occurred between you two? 1096 01:24:24,400 --> 01:24:26,800 Never. 1097 01:24:38,880 --> 01:24:43,200 Her attorney came, and he was making me to be the villain. 1098 01:24:44,320 --> 01:24:47,280 And he said, "Well, how do you feel 1099 01:24:47,320 --> 01:24:50,080 about her being his lover?" 1100 01:24:50,120 --> 01:24:53,960 I said, "No." I said, "She's not his lover." 1101 01:24:56,880 --> 01:25:00,120 This whore done laid down, raped my son, 1102 01:25:00,160 --> 01:25:04,080 and I had to compose myself because 1103 01:25:07,400 --> 01:25:09,400 that's my son. 1104 01:25:13,720 --> 01:25:17,640 Days and nights, I walked through hospital corridors 1105 01:25:17,680 --> 01:25:20,760 not knowing what was wrong with my son, 1106 01:25:20,800 --> 01:25:23,120 not knowing his medical condition, 1107 01:25:23,160 --> 01:25:25,240 him having seizures. 1108 01:25:25,280 --> 01:25:27,560 And for that moment, 1109 01:25:27,600 --> 01:25:30,160 I almost lost it. 1110 01:25:30,200 --> 01:25:32,200 I did. 1111 01:25:33,360 --> 01:25:35,360 I really did. 1112 01:25:38,120 --> 01:25:40,240 Because who does that? 1113 01:25:43,840 --> 01:25:45,840 Who does that? 1114 01:25:48,400 --> 01:25:50,400 And then go criticise me. 1115 01:25:53,560 --> 01:25:56,360 Make me look like I'm... I'm nobody, 1116 01:25:56,400 --> 01:25:58,400 I don't understand. 1117 01:25:59,920 --> 01:26:01,920 Who does that? 1118 01:26:06,680 --> 01:26:11,160 I don't think that Anna Stubblefield truly recognised 1119 01:26:11,200 --> 01:26:13,760 how she devalued my brother 1120 01:26:13,800 --> 01:26:15,800 and also devalued my family. 1121 01:26:17,080 --> 01:26:19,080 It's one thing to 1122 01:26:21,360 --> 01:26:24,400 hear Anna Stubblefield say, "Derrick and I love each other." 1123 01:26:24,440 --> 01:26:26,600 Just like... 1124 01:26:26,640 --> 01:26:31,320 But as the details of what actually transpired unfold, 1125 01:26:31,360 --> 01:26:33,760 that she was in her office, 1126 01:26:33,800 --> 01:26:35,760 she had this mat on the floor. 1127 01:26:35,800 --> 01:26:38,800 And then you recall that moment or that day 1128 01:26:38,840 --> 01:26:40,800 where I was changing Derrick's diaper, 1129 01:26:40,840 --> 01:26:43,040 and I saw these abrasions on his back. 1130 01:26:44,400 --> 01:26:48,120 Strawberries, like somebody's dragging you across the floor. 1131 01:26:48,160 --> 01:26:52,640 And we couldn't figure out where the heck these things came from. 1132 01:26:52,680 --> 01:26:55,120 We called the school. "Did Derrick fall down? 1133 01:26:55,160 --> 01:26:57,840 Did something happen at the school? Did somebody hit my brother?" 1134 01:26:57,880 --> 01:27:00,360 They're like, "No, nothing happened. We don't know." 1135 01:27:00,400 --> 01:27:03,400 Prosecutor's trying to figure out what happened. The story comes out, "Oh! 1136 01:27:03,440 --> 01:27:05,600 Something happened in the office." 1137 01:27:05,640 --> 01:27:09,360 And, I mean, this woman, 140, 150 pounds, 1138 01:27:09,400 --> 01:27:12,240 I don't know how much she weighed, but she's much heavier than him. 1139 01:27:12,280 --> 01:27:14,720 Derrick is slight. He's 5'3 ", 5'4". 1140 01:27:14,760 --> 01:27:17,440 And she was exerting so much force on him 1141 01:27:17,480 --> 01:27:21,000 that his back was being drug across this mat, 1142 01:27:21,040 --> 01:27:23,040 and it was leaving scars. 1143 01:27:41,920 --> 01:27:44,520 That woman did not give a damn about my brother. 1144 01:27:54,640 --> 01:27:57,440 I didn't think I was gonna be convicted, 1145 01:27:57,480 --> 01:27:59,640 but I wear contacts, 1146 01:27:59,680 --> 01:28:02,680 and that morning when the jury came back, 1147 01:28:02,720 --> 01:28:08,000 I did put my glasses in my purse. 1148 01:28:08,040 --> 01:28:10,800 It was my one little concession to. 1149 01:28:10,840 --> 01:28:14,680 If I ended up in prison, I needed my glasses. 1150 01:28:17,240 --> 01:28:19,400 I think by the time 1151 01:28:19,440 --> 01:28:21,440 the verdict actually came. 1152 01:28:23,120 --> 01:28:25,120 I was expecting it. 1153 01:28:27,880 --> 01:28:30,920 When the jury read the conviction, 1154 01:28:30,960 --> 01:28:33,120 I started saying out loud to the judge, 1155 01:28:33,160 --> 01:28:36,000 "Just please let me take care of my daughter. 1156 01:28:36,040 --> 01:28:39,200 Just please let me take care of my daughter." 1157 01:29:15,440 --> 01:29:17,720 Never doubted her. 1158 01:29:17,760 --> 01:29:20,120 No, not for an instant. 1159 01:29:21,840 --> 01:29:26,840 I mean, I watched her interact with people her whole life, 1160 01:29:26,880 --> 01:29:28,880 and she is 1161 01:29:31,760 --> 01:29:34,560 as compassionate a person as I've ever known. 1162 01:29:36,400 --> 01:29:40,120 And there's no way, I mean, she's never harmed anybody. 1163 01:29:41,640 --> 01:29:44,840 And there's certainly no way she would've harmed a man. 1164 01:29:45,760 --> 01:29:49,360 Do you think she believed that he was typing? 1165 01:29:49,400 --> 01:29:51,720 Yeah, in her wicked mind. 1166 01:29:52,640 --> 01:29:54,320 In her wicked mind. 1167 01:30:08,000 --> 01:30:10,640 State versus Marjorie Anna Stubblefield, 1168 01:30:10,680 --> 01:30:13,800 indictment number 13-1-44. 1169 01:30:14,680 --> 01:30:17,960 We are here today for the sentencing of Marjorie Anna Stubblefield. 1170 01:30:21,560 --> 01:30:23,760 Yes, Your Honour. The victim's brother, John Johnson, 1171 01:30:23,800 --> 01:30:26,440 would like to address the court, his mother would like to approach 1172 01:30:26,480 --> 01:30:28,400 and stand with him while he addresses the court. 1173 01:30:28,440 --> 01:30:30,440 That's fine. 1174 01:30:33,400 --> 01:30:35,160 Good afternoon, Your Honour. 1175 01:30:35,200 --> 01:30:37,400 Good afternoon. 1176 01:30:37,440 --> 01:30:39,320 Thirty-four years ago, doctors said 1177 01:30:39,360 --> 01:30:42,240 my brother would not live to see his third birthday. 1178 01:30:42,280 --> 01:30:45,920 Those doctors and the devil are liars. 1179 01:30:45,960 --> 01:30:49,200 My brother since then has grown to become a loving person. 1180 01:30:49,240 --> 01:30:53,040 He is a beautiful brother, and he is a beautiful son. 1181 01:30:53,080 --> 01:30:56,800 I don't think Anna understood the depth of pain she caused my family. 1182 01:30:56,840 --> 01:30:59,280 She tried to lay claim to him and rename him. 1183 01:31:00,440 --> 01:31:02,920 She tried to supplant Derrick's life, 1184 01:31:02,960 --> 01:31:05,040 a life steeped... 1185 01:31:05,080 --> 01:31:07,320 Go ahead. 1186 01:31:11,360 --> 01:31:13,600 Take your time. 1187 01:31:13,800 --> 01:31:15,720 Take your time. 1188 01:31:15,760 --> 01:31:17,560 A life steeped in the history and culture 1189 01:31:17,600 --> 01:31:22,520 of his God-fearing, southern-rooted African-American family. 1190 01:31:22,560 --> 01:31:24,760 She tried to supplant that with some version of life 1191 01:31:24,800 --> 01:31:26,640 she thought was better. 1192 01:31:26,680 --> 01:31:29,280 We need to disenchant ourselves from the notion 1193 01:31:29,320 --> 01:31:32,080 that Anna Stubblefield is some tragic "shero". 1194 01:31:32,120 --> 01:31:35,520 Anna is not Sandra Bullock, and this is not The Blind Side. 1195 01:31:35,560 --> 01:31:37,880 Derrick is not some poor Black kid from the ghetto 1196 01:31:37,920 --> 01:31:39,920 that needs someone to save him. 1197 01:31:40,720 --> 01:31:43,960 An able-bodied woman raped a disabled young man 1198 01:31:44,000 --> 01:31:46,080 that could not consent to sex. 1199 01:31:46,120 --> 01:31:48,680 You were wrong, Anna. You committed a crime. 1200 01:31:48,720 --> 01:31:51,080 There is no grey area. In closing, 1201 01:31:51,120 --> 01:31:54,360 thank Your Honour for helping bring this ordeal to a close. 1202 01:32:00,960 --> 01:32:02,680 I have read and received letters 1203 01:32:02,720 --> 01:32:05,160 from the former husband of the defendant, 1204 01:32:05,200 --> 01:32:09,360 who wrote a very compelling impact statement. 1205 01:32:09,400 --> 01:32:13,640 "I believe that Anna is a pathological liar and narcissist." 1206 01:32:13,680 --> 01:32:18,040 She will stop at nothing to fool the court and seek vindication 1207 01:32:18,080 --> 01:32:21,000 regardless of the emotional and financial expense 1208 01:32:21,040 --> 01:32:24,280 to her family or the primary victim's family. 1209 01:32:24,320 --> 01:32:26,080 Clearly, I am distraught, 1210 01:32:26,120 --> 01:32:29,120 but this and the impact on my immediate family, 1211 01:32:29,160 --> 01:32:32,800 "I leave it to the wisdom of the court to determine a just sentence." 1212 01:32:36,000 --> 01:32:38,000 Ms Stubblefield, please stand. 1213 01:32:43,360 --> 01:32:45,360 As to count one, 1214 01:32:45,400 --> 01:32:48,000 first-degree aggravated sexual assault, 1215 01:32:48,040 --> 01:32:52,080 where the victim was physically helpless or mentally incapacitated, 1216 01:32:52,120 --> 01:32:55,520 I sentence you to 12 years in New Jersey State Prison. 1217 01:32:56,320 --> 01:32:59,040 As to count two, I sentence you 1218 01:32:59,080 --> 01:33:03,200 to 12 years New Jersey State Prison concurrent with count one. 1219 01:33:04,040 --> 01:33:05,800 After you are released from prison, 1220 01:33:05,840 --> 01:33:09,280 you are placed on parole supervision for life. 1221 01:33:35,480 --> 01:33:37,800 I never thought that she was a predator. 1222 01:33:39,320 --> 01:33:41,800 She truly believed that what she was doing 1223 01:33:41,840 --> 01:33:44,360 was in Derrick's best interest. 1224 01:33:45,240 --> 01:33:48,080 She thought that he deserves the opportunity 1225 01:33:48,120 --> 01:33:51,560 to have a life outside of, you know, living with his mother. 1226 01:33:52,560 --> 01:33:55,280 But I think that given what I observed, 1227 01:33:55,320 --> 01:33:57,200 and what I learned from his record, 1228 01:33:57,240 --> 01:34:00,400 I think that it would've been a false life with Anna. 1229 01:34:02,240 --> 01:34:04,920 I think that she was a unfortunate victim 1230 01:34:04,960 --> 01:34:08,480 of methodology that's very problematic. 1231 01:34:10,520 --> 01:34:13,120 However, she interpreted what was going on, 1232 01:34:13,160 --> 01:34:15,840 whether she actually had those conversations with him, 1233 01:34:15,880 --> 01:34:18,480 I don't know. But she... you know, from my perspective, 1234 01:34:18,520 --> 01:34:21,440 she was having conversations with herself. 1235 01:34:21,480 --> 01:34:23,760 Um, and, you know... 1236 01:34:23,800 --> 01:34:26,960 I don't know where to even go with that. 1237 01:35:28,080 --> 01:35:30,960 When I first came out of prison, 1238 01:35:31,000 --> 01:35:33,200 I managed to pick up a waitressing job, 1239 01:35:33,240 --> 01:35:36,520 and then there was some publicity around when I did the plea bargain 1240 01:35:36,560 --> 01:35:38,280 and I was sentenced, and 1241 01:35:38,320 --> 01:35:42,080 one of their customers complained, and so they let me go. 1242 01:35:42,120 --> 01:35:44,760 So I was doing that kind of thing 1243 01:35:44,800 --> 01:35:47,120 for the first year. 1244 01:35:47,160 --> 01:35:50,240 And then I do have, 1245 01:35:50,280 --> 01:35:53,920 you know, what's now kind of part-time work. 1246 01:35:53,960 --> 01:35:57,000 I'm working at home, nobody knows me. 1247 01:35:57,040 --> 01:36:00,160 And so, you know, that's OK, 1248 01:36:00,200 --> 01:36:02,200 but it's not teaching. 1249 01:36:03,480 --> 01:36:06,360 That was my whole identity. That was everything. 1250 01:36:13,440 --> 01:36:17,680 I don't know what DMan's life is like now, um... 1251 01:36:18,720 --> 01:36:20,560 As far as his mother and brother, 1252 01:36:20,600 --> 01:36:23,120 I think they had to really decide 1253 01:36:23,160 --> 01:36:25,240 that he wasn't intelligent, 1254 01:36:25,280 --> 01:36:28,720 and he wasn't typing, and it was all a fraud and a hoax. 1255 01:36:30,600 --> 01:36:33,800 A friend of mine, who is another... somebody else 1256 01:36:33,840 --> 01:36:35,680 who uses facilitated communication, 1257 01:36:35,720 --> 01:36:39,640 who knew DMan and was friends with DMan, um... 1258 01:36:39,680 --> 01:36:42,680 He said, "Look, if I was DMan, 1259 01:36:42,720 --> 01:36:45,080 I would rather have 1260 01:36:45,120 --> 01:36:49,000 had the relationship with you and lost it 1261 01:36:49,040 --> 01:36:52,080 than never to have had it in the first place." 1262 01:36:52,120 --> 01:36:54,440 So I hope that he's right. 1263 01:36:54,480 --> 01:36:56,840 You know, um, but... 1264 01:36:58,160 --> 01:37:00,160 Yeah. 1265 01:37:11,320 --> 01:37:13,960 People don't think that there was damage done. 1266 01:37:14,000 --> 01:37:16,560 Yes, there was. 1267 01:37:16,600 --> 01:37:18,600 And it's still going on. 1268 01:37:20,440 --> 01:37:22,440 I had to put him on medication. 1269 01:37:23,560 --> 01:37:25,560 Because he 1270 01:37:26,360 --> 01:37:28,360 masturbates. 1271 01:37:29,360 --> 01:37:31,000 He has this urge, 1272 01:37:31,040 --> 01:37:34,240 and, you know, it's like a itch that he can't scratch. 1273 01:37:34,280 --> 01:37:36,920 And it's hard enough to give him 1274 01:37:36,960 --> 01:37:38,720 a life 1275 01:37:38,760 --> 01:37:40,800 without him going through that. 1276 01:37:41,640 --> 01:37:43,640 And she did that. 1277 01:37:45,000 --> 01:37:49,000 Because if you don't ever strike that match or do whatever, 1278 01:37:49,040 --> 01:37:50,840 how will you ever know? 1279 01:37:50,880 --> 01:37:52,840 There we go. 1280 01:37:56,400 --> 01:37:58,800 Showing all your muscles, huh? 1281 01:37:58,840 --> 01:38:00,840 You good? 1282 01:38:01,960 --> 01:38:04,480 Ready? 1283 01:38:04,520 --> 01:38:06,800 'One of the tough things about this whole process 1284 01:38:06,840 --> 01:38:09,240 is that there was this idea 1285 01:38:09,280 --> 01:38:12,320 that, "Oh, he can do all these wonderful things." 1286 01:38:15,560 --> 01:38:17,760 And then to have to... 1287 01:38:17,800 --> 01:38:20,080 Looking at everything that was taking place, 1288 01:38:20,120 --> 01:38:23,120 then say... that he can't.' 1289 01:38:23,160 --> 01:38:25,040 You got the walk right there, haven't you? 1290 01:38:27,200 --> 01:38:29,080 Alright. 1291 01:38:29,120 --> 01:38:30,760 In a sense I kinda felt as though 1292 01:38:30,800 --> 01:38:33,720 I was diminishing his value. "Yeah, Derrick can't do that." 1293 01:38:33,760 --> 01:38:35,960 Pick 'em up and put 'em down. 1294 01:38:36,000 --> 01:38:37,800 Pick 'em up. 1295 01:38:37,840 --> 01:38:41,320 'Going through that process of having to recognise that, 1296 01:38:41,360 --> 01:38:44,600 "Damn, yeah, he is really disabled." And that's fine.' 1297 01:38:45,960 --> 01:38:49,280 He can't do all other things that other people can do. 1298 01:38:49,320 --> 01:38:52,880 And that's perfectly fine because we're gonna be alright regardless. 1299 01:38:54,360 --> 01:38:57,160 OK. 1300 01:38:59,200 --> 01:39:01,200 Oh, you gonna show them that smile? 1301 01:39:02,880 --> 01:39:05,520 Yeah, say, "Here I am." 1302 01:39:05,560 --> 01:39:09,640 The psychiatrist determined that Derrick was deemed 1303 01:39:09,680 --> 01:39:13,840 incapable and incompetent of taking care of himself. 1304 01:39:13,880 --> 01:39:15,880 Well, I knew. 1305 01:39:16,880 --> 01:39:18,520 I knew. 1306 01:39:18,560 --> 01:39:22,480 And knowing and accepting it, 1307 01:39:22,520 --> 01:39:26,400 and just embrace him. Just love him for who he is. 1308 01:39:27,440 --> 01:39:29,680 No matter what or how 1309 01:39:31,720 --> 01:39:34,360 strong he gets, he's still my child. 1310 01:39:34,400 --> 01:39:38,080 He will always have that younger mindset. 1311 01:39:38,120 --> 01:39:40,520 And I, you know, he's 40 years old, 1312 01:39:40,560 --> 01:39:43,840 and that's where we are. 1313 01:39:54,120 --> 01:39:56,920 You OK? 1314 01:39:57,720 --> 01:40:00,840 And I don't love him no less, and I don't love him no more. 1315 01:40:00,880 --> 01:40:02,640 He's my baby. 1316 01:40:02,680 --> 01:40:06,160 He... is my baby. 1317 01:40:09,760 --> 01:40:11,760 Go ahead. 1318 01:40:55,960 --> 01:40:58,960 AccessibleCustomerService@sky.uk 106914

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