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Wouldn't it be nice to say, no, there's nothing wrong with you.
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And in fact, you know,
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that we need exactly your type of personality in order to be,
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you know, creative and inventive as a community.
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That sounds lovely,
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doesn't it?
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It's the sort of thing you'd want someone to say to you on a bad day,
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to cheer you up a bit.
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But let me tell you what she means by it.
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She means that people like me,
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late identified autistic adults,
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like you,
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The ones who can hold a conversation and get the joke and mask our way through a birthday party perhaps.
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We should be taken out from the autism diagnosis she thinks.
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Reclassified as having an interesting personality instead of a neurotype.
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She believes the kindest thing she can do is to look a late diagnosed person in the eye
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and tell them that there is nothing wrong with them and in the same breath
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take away the one word, the one label that finally makes the whole life make sense.
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This is not some angry bloke with a ring light and a grievance.
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This is Dame Uta Frith, one of the most important autism researchers who has ever lived.
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And in May she sat down with a new scientist and made the case that the autism spectrum has,
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in her words, "come to its collapse".
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She used another word in that interview,
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she said it was dangerous to cling to the autism label.
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Now hold that word because by the end of this video I'll be giving it back to her.
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So today we are taking her argument apart,
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all of it, every piece, and I'm going to be scrupulously
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fair to her first because she has earned that,
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and then I'm going to put her arguments in the
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litter box,
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I'm going to feed them to the tigers,
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that sort of thing.
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Anyway,
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hey friends,
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I'm Mike,
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a late identified autistic adult.
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Grab a cup of tea for this particular video,
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I have got a huge
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flask of tea,
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acquire a cat or a plushie and settle in,
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because this one is a big one and
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it matters more than most.
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New Scientist then.
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If you don't know it,
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it is one of the oldest and most widely read popular science magazines
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in the world.
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It's been going since the 1950s, it is not a tabloid and it is not a scientific journal.
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It sits sort of somewhere in the middle.
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It's the place a curious person might go to find out what scientists are saying.
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When something runs in New Scientist, it carries a certain weight.
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People tend to take it as fact,
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as settled, or at least close to it.
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And in May they ran a long,
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friendly,
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admiring interview with Dame Uta Frith.
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We'll get to exactly who she is in a moment,
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but the short version first is that she is
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one of the most influential autism researchers who has ever lived.
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Genuinely a giant in the field.
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So this is not a fringe figure in a fringe outlet.
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This is one of the biggest names in autism science,
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in one of the biggest science magazines
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in the world.
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And here is what she used that platform to say:
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that the autism spectrum,
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the whole idea
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of it,
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has, in her words, come to its collapse.
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The people getting diagnosed today,
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especially women,
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especially adults,
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have, and again her
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words, absolutely no overlap with what she considers to be real autism.
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TM.
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So why am I making this video?
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Three reasons.
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One,
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I think that she's wrong and not wrong in some vague way that people might say on the internet,
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oh, you're wrong,
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you know, without specifying reasons,
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but wrong in a way that I can show you piece by piece using her own words and the actual evidence.
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Two, because of who she is,
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where she said it,
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this is not going to stay in a magazine interview.
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It's going to move through teachers and clinicians and policymakers and doctors,
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etc.
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at the exact moment that this country is deciding how much support autistic people are allowed to have.
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And three,
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because I am one of the people that she's talking about.
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I am late identified,
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I can speak,
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and the kind that she thinks doesn't really count.
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I've got a horse in this race and I'm not going to pretend otherwise.
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That's my bias for what it's worth.
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If you are autistic,
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you owe Uta Frith a debt,
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and I want to say that plainly before I disagree with a single word.
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When Frith started out back in the 1960s, the going theory for what caused autism was the refrigerator mother.
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The idea,
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and I do wish I was inventing this,
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was that children were autistic because their mothers were cold.
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They were emotionally frozen and unavailable,
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you know,
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unloving.
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So you did not just have a child who was autistic and struggling.
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You had a mother who had been told it was all her fault because they didn't love the child enough.
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They didn't love hard enough. They were too cold.
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they're frigid,
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you know. Friff helped end that in a big way.
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She sat with those mothers and she
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looked at the evidence and she said no,
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this is biological,
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this is the brain.
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That mattered and
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it took a lot of nerve.
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She went on to co-author the famous Sally Ann experiment,
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you know,
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the one that gave us the idea of theory of mind deficits in autism.
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She brought Hans Asperger's
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work to the English-speaking world.
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She literally translated it.
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And she taught, mentored, or shaped
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a huge slice of the autism researchers currently working today.
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Simon Baron-Cohen, the chap whose
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name is on half of pretty much all autism research that you've ever heard of, was her PhD student.
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So when I tell you that I think Uta Frith is wrong,
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understand what I'm doing here. Just sort of like
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swatting away some sort of crank with a podcast.
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I am disagreeing with one of the architects of the
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entire field.
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That is a heavy thing to do and I do not do it lightly,
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which is
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probably why this video is going to be very very long.
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Before I show you where
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she goes wrong I'm gonna show you where she's right,
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properly right, because if I
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can't do that I've got no business making this video.
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Four things on all four she
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has a point.
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Number one:
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that autism is a wildly,
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almost absurdly varied.
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A non
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speaking autistic person who needs round-the-clock care and an autistic
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adult holding down a job while quietly white-knuckling their way through every
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meeting are both on paper the same diagnosis,
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same label.
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Now that's an
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enormous range to hang on one word.
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Researchers like Lombardo and Mandeli
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have written exactly this:
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that autism is heterogeneous at every level from the
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genome all the way up to behavior.
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Frith is not imagining it,
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she's not lying
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when she says it,
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it is real.
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Number two:
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there is a very real fear that people with the very
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highest support needs get forgotten.
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The non-speaking,
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the ones who need full-time care.
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In public
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conversation increasingly shaped by those of us who are verbal and online,
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and let's be honest,
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never knowingly under-opinionated, there is a worry that their needs might slide down the agenda.
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Now, I have my problems with how that worry gets packaged online,
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and I'll get to it later,
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properly because it matters.
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If you want to know now the TLDR,
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perhaps watch my levels video
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linked above my head.
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But the fear underneath it is fair.
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High support needs autistic people
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deserved not to be an afterthought.
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What I will not accept and what I will not spend this video
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dismantling is the idea that the way to protect them is to throw the rest of us out of the category.
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Those two things have nothing at all to do with each other and she keeps acting as though they are
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the same move.
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We'll get to it.
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At the start of this video there is an awful lot of we'll get to it,
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but I promise you we will.
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Number three:
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she is right that there is no biological test for autism.
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There is no blood test,
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no brain scan,
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no single gene that you can point out and say "there,
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that's the one,
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that's the autism gene,
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that's the autism region of the brain"
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or whatever.
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We diagnose it by watching behaviour and listening to a life.
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And yes,
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that is scientifically awkward.
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It would be tidier if they were a marker and you could have a blood test.
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There is not.
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Four.
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That resources are finite.
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Waiting lists are real.
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The money for support is not infinite and working out who gets what is hard,
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it's a material and it's a very miserable problem.
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She's not wrong that the system is straining.
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This is the thin strip of solid ground.
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That
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is the only thing that she is standing on.
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In May 2026,
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New Scientist ran a long interview
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with Frith, written by the journalist Thomas Lewton and filmed by David Stock.
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A sit-down
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in her living room.
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Tea.
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Homemade macaroons.
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Model trains on the shelves.
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Very quiet and
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uncivilised.
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And it was not the first time because back in March she had said much the same thing to the TES
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or the Times Educational Supplement.
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That's a magazine that goes out to school teachers under the headline
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"Why I no longer think autism is a spectrum". Hold that detail,
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teachers,
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we're going to come back to it.
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If you're taking notes, and I know some of you will be,
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we'll close all of those loops towards the end.
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Here is the heart of it in her own words.
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It just becomes a question of why one should cling to the label autism.
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And I would say it's dangerous to do that because it completely ignores the profound autism,
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which has these very severe communication difficulties.
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So I'm still not understanding what the essential problem with calling both autism is.
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Is it just that you see absolutely no overlap?
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Absolutely no overlap,
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yes.
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And I'm really,
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in a sense,
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completely astonished that people want to cling to this label
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when it, you know, has outlived its purpose.
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And you really should look for new labels and new
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categories,
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new ideas.
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Collapsed.
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No overlap.
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Outlived its purpose.
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Nobody reaches for language like
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this when they want to tidy a category up. They reach for it when they want it gone.
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Now you might be thinking, so what? An academic has an opinion,
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academics disagree for a living,
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why make a 40 minute video about one interview?
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Because of who she is and because of where
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this lands.
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If I were to say the spectrum has collapsed,
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nothing happens.
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I am a bloke
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on YouTube with 16 cats and a strong opinion.
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But when Uta Frith says it, it does not stay
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in a magazine.
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It travels,
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it gets cited,
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it ends up in policy submissions,
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in government
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reviews in the mouths of people deciding how much support an autistic child is allowed
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to have.
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Her name carries weight and weight moves things.
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And remember where she said it first:
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the TES.
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Two teachers.
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At the exact moment the UK is fighting over special educational needs support and whether
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to cut it back.
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Right now in England,
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around a quarter of a million people are sitting on a waiting list
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just to be assessed for autism.
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Not treated,
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assessed.
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and roughly 9 in 10 of them have been waiting longer than the period the NICE guidelines
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say that anyone should.
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The National Autistic Society puts the average wait at around 17 months.
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At the same time,
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the number of education,
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health and care plans citing autism has nearly
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tripled in a decade
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from around 54,000 to 149,000,
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according to the Institute for Fiscal
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Studies.
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one rise accounts for 40% of the entire increase in EHCPs across the board.
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I know what some of you are thinking because it is the obvious objection.
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That is,
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the same rising number that Frith reaches for.
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She looks at that climb and sees a bubble,
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a fashion,
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people being swept in who do not belong.
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So why do I get to look at the identical graph and see something completely different?
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Fair question,
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and here is the answer.
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When you widen the criteria and train more clinicians and finally start looking for autism in
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women particularly and adults instead of just little boys,
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the number going up is exactly what
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you would predict.
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This is not an epidemic,
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it is not a surprise,
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it's a backlog clearing if anything.
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The boring explanation is that detection catching up with reality fits the data at least as well as
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hers and does not require you to believe that hundreds of thousands of people and their clinicians
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collectively kidding themselves.
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A quarter of a million people queuing for a door that barely
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opens,
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a support system buckling under pressure,
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a government hunting for reasons to tighten the
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criteria.
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And into that room walks one of the most respected autism researchers alive to announce
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that the whole category might just be meaningless.
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Now do you see why she is entitled to her opinion
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and doesn't quite cover it?
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There are two more things that she said that I keep circling back to.
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We have to really rethink the whole idea.
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And as far as I can see, nobody is really brave enough to do that.
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The first is that she casts herself as the brave one,
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the lone voice willing to say the unsayable.
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She says that she's the only one brave enough to tell the truth.
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She says that the label is the dangerous thing.
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So let's test both of those properly against the
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actual science.
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And to do that,
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we have to start with the single idea her entire argument is built
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on
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one idea from 1934 that her own profession quietly threw in the bin about 50 years ago.
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Here is the load-bearing wall of Frith's whole case.
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Pull this out and the rest comes down, so watch closely.
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She almost says it in passing.
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The interviewer puts it to her that autistic women often mask,
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and that they camouflage their autism to get through the day,
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and this is why so many were missed.
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And here is her answer:
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And as researchers like Gina Rippon have said,
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that there are coping strategies that autistic women have because of the pressure to maybe
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socialize more than men do and so that you end up with you know you end up masking or camouflaging
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so you you may present as having quite normal social behaviors but actually there can be
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different kinds of neural processes going on which can also lead to internal stresses and
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experiences?
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What's your feeling? Well, I think it creates an extraordinary paradox,
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so that you can diagnose autism if you show the symptoms,
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and you can diagnose autism
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not showing any of the symptoms,
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but assuming that there is this masking going on.
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So how can you ever falsify a diagnosis?
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It just doesn't make sense to me.
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And if you can never prove it wrong,
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it's not science.
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Therefore, she says masking is not real.
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And the women who rely on it to explain their late diagnosis are not really autistic.
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00:14:55,220 --> 00:14:59,140
Now, I want to be fair because that idea has a long and respectable pedigree.
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It has a name.
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It is called falsifiability,
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and it comes from a philosopher called Karl Popper,
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who set out in 1934.
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Popper was wrestling with a real question.
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How do you tell science from fortune telling?
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and his answer was elegant.
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A scientific claim is one that sticks its neck out.
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It forbids something.
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Saying "the sun will rise tomorrow"
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is science because if the sun does not rise,
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you are wrong.
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Mercury being in retrograde and making you tired is not because whatever happens,
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00:15:33,550 --> 00:15:35,080
the horoscope was right all along.
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00:15:35,940 --> 00:15:40,079
It's a lovely idea and it caught on for a while and I understand
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00:15:40,100 --> 00:15:41,780
completely why she reaches for it,
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00:15:42,140 --> 00:15:43,320
but there is one problem.
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Philosophers of science spent the
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next 50 years taking Popper's ideas apart,
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and by now naive falsifiability is not the test anyone
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00:15:53,100 --> 00:15:53,620
serious uses,
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and I do mean anyone.
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00:15:55,760 --> 00:15:58,220
Here's the first crack, and it has a wonderful name.
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It's the
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Duum-Quine thesis.
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It says that you can never actually test one idea on its own.
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00:16:05,260 --> 00:16:06,959
Every experiment
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00:16:07,000 --> 00:16:10,100
drags along a whole rucksack of assumptions along with it.
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00:16:10,680 --> 00:16:11,900
So when a prediction fails,
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00:16:12,120 --> 00:16:14,060
the failure never tells you which part broke.
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00:16:14,940 --> 00:16:15,920
Maybe the theory is wrong,
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00:16:16,080 --> 00:16:19,560
maybe your instrument was miscalibrated, or your sample was off,
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00:16:20,000 --> 00:16:22,900
or one of the 10 background assumptions that you didn't even notice,
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00:16:23,300 --> 00:16:24,800
maybe one of those was the
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00:16:25,000 --> 00:16:25,500
faulty one.
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00:16:25,740 --> 00:16:28,100
When astronomers found a planet in the wrong place,
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00:16:28,720 --> 00:16:30,800
they didn't just bin the theory of
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gravity,
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00:16:31,880 --> 00:16:34,980
they went looking for an unseen planet that must be pulling on it.
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00:16:35,560 --> 00:16:36,100
And that's how they
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00:16:36,100 --> 00:16:36,680
found Neptune.
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The anomaly was real.
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00:16:39,100 --> 00:16:42,260
Throwing out the whole theory would have taken the wrong move.
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00:16:42,920 --> 00:16:46,800
And here is the crack that finishes the job. A philosopher called Larry Laudan showed that
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00:16:46,880 --> 00:16:49,480
Popper's test fails in both directions at once.
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00:16:50,060 --> 00:16:51,820
Astrology is perfectly falsifiable.
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00:16:52,000 --> 00:16:52,460
You can check
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00:16:52,460 --> 00:16:53,860
its predictions and watch them fail.
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00:16:54,140 --> 00:16:54,640
Meanwhile,
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00:16:54,820 --> 00:16:57,060
large chunks of respected theoretical physics
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00:16:58,620 --> 00:17:01,000
are not clearly falsifiable at all,
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00:17:01,660 --> 00:17:03,920
but nobody is throwing physicists out of the building.
401
00:17:04,319 --> 00:17:06,760
The falsifiability ruler can cut the wrong things.
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00:17:06,980 --> 00:17:09,120
It can let nonsense in and it can throw good
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00:17:09,260 --> 00:17:09,760
science out.
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00:17:10,020 --> 00:17:13,699
Uta Frith is judging masking with a ruler that her own discipline measured,
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00:17:14,180 --> 00:17:16,839
found wanting and is quietly retired half a century ago.
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00:17:17,300 --> 00:17:19,040
Psychology is often called a soft
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00:17:19,140 --> 00:17:23,120
science and excluded from other STEM disciplines for this reason.
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00:17:23,360 --> 00:17:24,600
It is a bit fluffy.
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00:17:25,220 --> 00:17:29,700
The standard that psychology actually runs on is called construct validity and it was set out by
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00:17:29,700 --> 00:17:31,600
two researchers in 1955.
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00:17:32,020 --> 00:17:34,220
The idea is simple and rather beautiful.
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You cannot see intelligence.
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00:17:36,460 --> 00:17:40,180
You cannot see depression or anxiety or working memory.
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00:17:40,540 --> 00:17:43,440
You cannot hold any of them in your hand.
415
00:17:43,700 --> 00:17:45,680
So how do you know that they are real?
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00:17:45,920 --> 00:17:49,400
You check whether they behave the way a real thing should.
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00:17:49,700 --> 00:17:50,960
Do they show up consistently?
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00:17:51,280 --> 00:17:53,020
Do they predict other things?
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00:17:53,640 --> 00:17:57,580
Do they hang together in a web of of relationships that makes sense.
420
00:17:58,080 --> 00:18:01,100
If a thing converges with what it should converge with,
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00:18:01,640 --> 00:18:03,700
separates from what it should separate from,
422
00:18:04,050 --> 00:18:05,360
and predicts what it should predict,
423
00:18:06,280 --> 00:18:09,140
then it is a real measurable construct.
424
00:18:09,420 --> 00:18:12,260
Not because you falsified it in one dramatic experiment,
425
00:18:12,750 --> 00:18:14,500
but because it earns its place in the network.
426
00:18:15,050 --> 00:18:17,540
And by that standard, the one that the entire field
427
00:18:17,640 --> 00:18:18,140
uses,
428
00:18:18,220 --> 00:18:21,640
masking is not some vague feeling.
429
00:18:21,940 --> 00:18:25,600
It is one of the best behaved constructs in autism research.
430
00:18:26,820 --> 00:18:29,200
We have a validated measurement tool for it.
431
00:18:29,400 --> 00:18:31,720
It's called the Camouflaging Autistic Traits
432
00:18:31,860 --> 00:18:33,000
Questionnaire or the CATQ.
433
00:18:33,300 --> 00:18:37,540
I made a video about this right here if you want to watch it. It was
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00:18:37,550 --> 00:18:43,080
built by Laura Hull and colleagues and it converges with other autistic trait measures exactly as it
435
00:18:43,080 --> 00:18:43,540
should.
436
00:18:43,540 --> 00:18:49,000
It tells autistic and non-autistic people apart exactly as it should and it predicts things,
437
00:18:49,680 --> 00:18:50,180
serious things.
438
00:18:50,580 --> 00:18:52,940
Higher masking predicts higher anxiety,
439
00:18:54,120 --> 00:18:54,620
obviously.
440
00:18:55,720 --> 00:18:57,300
Higher masking predicts
441
00:18:57,580 --> 00:18:58,080
depression.
442
00:18:58,420 --> 00:18:59,340
Autistic burnout,
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00:18:59,580 --> 00:19:00,100
which Jura,
444
00:19:00,260 --> 00:19:01,960
Raymaker and colleagues mapped out in detail,
445
00:19:02,460 --> 00:19:07,480
and in the work of Sarah Cassidy and her team, camouflaging predicts suicidality.
446
00:19:08,300 --> 00:19:09,240
Before anyone says, ah,
447
00:19:09,700 --> 00:19:12,440
but that's just people filling in a questionnaire online about their
448
00:19:12,440 --> 00:19:12,940
own feelings.
449
00:19:13,300 --> 00:19:13,860
No,
450
00:19:14,740 --> 00:19:18,060
Meng Chuan Lai and colleagues put autistic women in a scanner and found
451
00:19:18,220 --> 00:19:22,080
distinct neural patterns associated with camouflaging.
452
00:19:22,700 --> 00:19:25,700
So this is not just self-report.
453
00:19:26,060 --> 00:19:26,600
There is something
454
00:19:27,000 --> 00:19:30,660
measurably different happening in the brain when an autistic person masks.
455
00:19:31,680 --> 00:19:32,200
That can leave
456
00:19:32,200 --> 00:19:32,700
a fingerprint.
457
00:19:33,340 --> 00:19:37,560
Note that is different from detecting autism on brain scans as detecting
458
00:19:37,820 --> 00:19:39,620
an autistic behaviour on brain scans.
459
00:19:39,860 --> 00:19:40,360
Different thing.
460
00:19:40,710 --> 00:19:42,560
Okay, just putting that out there as a little footnote.
461
00:19:42,870 --> 00:19:44,860
Let us be very clear about what Frith has done.
462
00:19:45,020 --> 00:19:49,100
She's called masking unfalsifiable and therefore unscientific,
463
00:19:49,860 --> 00:19:55,360
while sitting on top of a lot of literature that operationalises it, measures it, scans it,
464
00:19:55,660 --> 00:19:58,840
and uses it to predict whether an autistic person will still be alive in the future.
465
00:19:59,680 --> 00:20:03,780
The thing that predicts whether or not you'll still be alive is the precise opposite of untestable.
466
00:20:04,340 --> 00:20:10,300
But here's the part that turns this from a disagreement into something that's a great deal more uncomfortable.
467
00:20:10,650 --> 00:20:13,920
The moment you pick up Frith's ruler and apply it honestly,
468
00:20:14,180 --> 00:20:15,040
evenly,
469
00:20:15,580 --> 00:20:16,120
to everyone,
470
00:20:16,770 --> 00:20:19,320
the first thing that it condemns is not masking.
471
00:20:21,020 --> 00:20:22,080
It is her.
472
00:20:22,860 --> 00:20:25,940
Her single most famous contribution is Theory of Mind.
473
00:20:26,080 --> 00:20:29,240
Sally has a basket and has a box,
474
00:20:29,830 --> 00:20:33,720
and Sally has a marble and puts it into her basket and covers it up.
475
00:20:33,980 --> 00:20:37,600
the idea that autistic people struggle to track what other people are thinking.
476
00:20:38,040 --> 00:20:39,060
The Sally Ann test.
477
00:20:39,220 --> 00:20:40,500
It's in every textbook.
478
00:20:40,980 --> 00:20:41,500
It is,
479
00:20:41,920 --> 00:20:42,560
more than anything else,
480
00:20:42,760 --> 00:20:44,380
the thing that her name is attached to.
481
00:20:45,080 --> 00:20:47,580
Listen to how she describes it now in the same interview.
482
00:20:48,020 --> 00:20:53,640
We say the particular difficulties in social communication,
483
00:20:54,040 --> 00:20:55,900
which are only one aspect of autism,
484
00:20:56,280 --> 00:21:03,420
are possibly rooted in a difficulty in mentalising.
485
00:21:03,880 --> 00:21:09,060
That was an idea that we could have turned out completely wrong.
486
00:21:09,360 --> 00:21:11,160
Could have turned out completely wrong.
487
00:21:11,920 --> 00:21:13,780
Only true for a small subgroup.
488
00:21:14,680 --> 00:21:16,240
And she is not wrong to hedge,
489
00:21:16,600 --> 00:21:19,060
because independent researchers have taken theory of mind apart
490
00:21:19,560 --> 00:21:22,480
with exactly the kind of rigour that she demands of masking.
491
00:21:23,500 --> 00:21:29,080
Morten-Anne Gernsbacher and Melanie Youngu went through the literature in 2019 and found three
492
00:21:29,100 --> 00:21:29,600
things:
493
00:21:29,660 --> 00:21:32,320
the original findings often fail to replicate,
494
00:21:32,680 --> 00:21:34,360
the tasks correlate with how good
495
00:21:34,360 --> 00:21:35,060
your language is,
496
00:21:35,360 --> 00:21:36,600
not whether you are autistic,
497
00:21:37,500 --> 00:21:39,840
and plenty of non-autistic people fail while
498
00:21:40,000 --> 00:21:41,460
plenty of autistic people pass.
499
00:21:42,060 --> 00:21:47,180
They also found that something like three-quarters of the most cited papers on the subject just
500
00:21:47,680 --> 00:21:52,480
assert the deficit as fact without offering any new data to back it up.
501
00:21:52,480 --> 00:21:53,160
They just go,
502
00:21:53,640 --> 00:21:57,160
"Uter Frith says autistic people lack theory of mind, I rest my case", right?
503
00:21:58,620 --> 00:21:59,380
It's just an idea,
504
00:21:59,660 --> 00:22:00,700
repeated,
505
00:22:01,520 --> 00:22:02,600
until it sounded true.
506
00:22:03,720 --> 00:22:06,740
And then there's the problem that should really give Uta pause,
507
00:22:06,960 --> 00:22:08,520
and it comes straight out
508
00:22:08,520 --> 00:22:09,700
of her own framework:
509
00:22:10,420 --> 00:22:11,860
psychopaths.
510
00:22:12,720 --> 00:22:17,080
People with psychopathy tend to do perfectly well on the cognitive side of theory of mind,
511
00:22:17,300 --> 00:22:19,020
the part that these tasks actually measure,
512
00:22:19,280 --> 00:22:21,120
working out what someone else knows or believes.
513
00:22:22,040 --> 00:22:23,920
Where they differ is affective empathy,
514
00:22:24,080 --> 00:22:26,020
the part where you feel anything about it.
515
00:22:26,500 --> 00:22:28,480
And that split is the whole problem for this test.
516
00:22:28,830 --> 00:22:32,840
If you can pass a mentalising task while feeling nothing for the person in front of you,
517
00:22:33,140 --> 00:22:38,480
and yet a deeply empathic autistic person can fail it, then the task is not measuring care
518
00:22:38,830 --> 00:22:41,900
or connection or whether someone is a good person to have in your life,
519
00:22:42,140 --> 00:22:42,760
it's measuring
520
00:22:43,040 --> 00:22:45,100
one very narrow cognitive operation,
521
00:22:45,590 --> 00:22:48,560
and Frith built an entire theory of autism's social
522
00:22:48,800 --> 00:22:49,660
heart on top of it.
523
00:22:51,060 --> 00:22:53,100
There is a better way to think about social difficulty,
524
00:22:53,300 --> 00:22:54,220
and it has a name.
525
00:22:55,060 --> 00:22:58,020
The double empathy problem set out by Damien Milton in 2012.
526
00:22:58,200 --> 00:23:02,700
The idea that the breakdown in understanding between autistic and non-autistic people is
527
00:23:02,700 --> 00:23:04,960
not a fault inside the autistic person,
528
00:23:05,140 --> 00:23:07,300
it runs both ways.
529
00:23:07,800 --> 00:23:11,660
Non-autistic people are just as bad at reading autistic people as the other way around.
530
00:23:11,760 --> 00:23:12,820
From an empathy perspective,
531
00:23:13,320 --> 00:23:14,560
if you put autistic people together,
532
00:23:14,860 --> 00:23:16,360
they communicate just as
533
00:23:16,520 --> 00:23:19,740
well as if you put neurotypical people together and non-autistic people together.
534
00:23:20,520 --> 00:23:24,780
The mismatch lives in the gap between two different ways of being,
535
00:23:25,360 --> 00:23:26,560
not inside one broken
536
00:23:26,800 --> 00:23:27,300
brain.
537
00:23:27,320 --> 00:23:28,800
And here's the really lovely bit.
538
00:23:29,020 --> 00:23:32,400
You don't have to take my word that any of this is mainstream now because the new scientist
539
00:23:32,640 --> 00:23:35,320
article you're watching clips from says it too.
540
00:23:35,660 --> 00:23:40,520
It notes in black and white that the lack of empathy idea is disputed and that autistic
541
00:23:40,680 --> 00:23:42,300
people communicate effectively with each other.
542
00:23:42,780 --> 00:23:45,180
Her own venue concedes the point.
543
00:23:46,140 --> 00:23:47,720
And then right at the end of the interview,
544
00:23:48,280 --> 00:23:50,200
the journalist asks her a direct question.
545
00:23:50,960 --> 00:23:54,060
Of all the theories of autism that have been put forward over the decades,
546
00:23:54,500 --> 00:23:56,140
which ones does
547
00:23:56,380 --> 00:23:58,900
she think has stood the test of time?
548
00:23:59,460 --> 00:24:02,500
There have been many theories of autism,
549
00:24:02,760 --> 00:24:06,060
of what autism might be put forward over the
550
00:24:06,200 --> 00:24:06,700
decades.
551
00:24:07,360 --> 00:24:10,140
Which do you think have stood the test of time?
552
00:24:12,040 --> 00:24:19,260
Very little has stood the test of time because I think we do know too little about brain
553
00:24:19,350 --> 00:24:28,840
and mind and that is still an area that is in a sort of early stage and a lot of things
554
00:24:28,850 --> 00:24:30,180
are possible with new techniques.
555
00:24:31,450 --> 00:24:32,460
Now remember who's answering.
556
00:24:32,530 --> 00:24:35,540
This is the woman whose theories are the theories.
557
00:24:36,580 --> 00:24:39,060
Theory of mind, weak central coherence.
558
00:24:39,540 --> 00:24:41,140
If anyone's work is in that pantheon,
559
00:24:41,320 --> 00:24:42,320
here it is.
560
00:24:42,960 --> 00:24:46,920
She's not only talking about her own work, she's talking about the whole field.
561
00:24:47,780 --> 00:24:48,280
The whole field.
562
00:24:48,480 --> 00:24:48,980
Autism.
563
00:24:49,200 --> 00:24:49,820
The whole autism,
564
00:24:50,100 --> 00:24:52,460
understanding of autism, autism research a lot.
565
00:24:53,340 --> 00:24:53,940
For this stuff,
566
00:24:54,660 --> 00:24:57,120
it is substantially is, actually, her work.
567
00:24:57,580 --> 00:25:01,240
You cannot say very little in autism theory has survived and then carve out an exception
568
00:25:01,360 --> 00:25:02,880
for the two biggest theories in autism,
569
00:25:03,380 --> 00:25:04,960
both of which have your own name on them.
570
00:25:05,740 --> 00:25:06,940
She is including herself.
571
00:25:07,620 --> 00:25:08,240
She has to be.
572
00:25:08,760 --> 00:25:12,080
And that's not me being unkind to an 80-something-year-old woman.
573
00:25:12,820 --> 00:25:19,100
Those are her words in her chair over her macaroons in an answer to a direct question about what survived.
574
00:25:20,060 --> 00:25:22,680
Uta Frith demands an objective,
575
00:25:23,000 --> 00:25:24,080
falsifiable,
576
00:25:24,440 --> 00:25:28,640
biomarker-backed standard from masking and
577
00:25:28,800 --> 00:25:30,260
from the women who describe it.
578
00:25:31,300 --> 00:25:33,160
Her own life's work, by her own admission,
579
00:25:33,800 --> 00:25:34,760
in the same conversation,
580
00:25:35,820 --> 00:25:36,960
never reached that
581
00:25:37,220 --> 00:25:37,720
standard.
582
00:25:38,040 --> 00:25:40,680
theory of mind work might be,
583
00:25:40,900 --> 00:25:43,440
is mostly wrong.
584
00:25:43,820 --> 00:25:44,440
The imaging,
585
00:25:44,740 --> 00:25:49,180
very little of that has survived.
586
00:25:50,170 --> 00:25:53,820
She demands of us what she admits she never delivered.
587
00:25:55,040 --> 00:25:58,120
Twenty odd minutes into a video about the philosophy of science and a woman's cardigan,
588
00:25:58,320 --> 00:25:59,740
you are exactly my kind of person.
589
00:26:00,000 --> 00:26:01,040
So do me a favour,
590
00:26:01,470 --> 00:26:02,160
tap the like button.
591
00:26:02,340 --> 00:26:02,960
I know, I know,
592
00:26:03,200 --> 00:26:05,080
but this is the honest truth of how this works.
593
00:26:05,560 --> 00:26:09,740
YouTube decides whether to show this video to the next late diagnosed person who needs
594
00:26:09,840 --> 00:26:12,360
it almost entirely based on whether you
595
00:26:12,540 --> 00:26:13,620
yes you watching this video
596
00:26:13,860 --> 00:26:14,620
are engaging with
597
00:26:14,660 --> 00:26:15,100
it.
598
00:26:15,100 --> 00:26:18,160
So a like, a comment, a share to one person who would care.
599
00:26:18,480 --> 00:26:23,240
It costs you nothing and is the difference between this reaching 10 people and 10,000
600
00:26:23,440 --> 00:26:23,800
people.
601
00:26:23,800 --> 00:26:26,840
She is pointing her arguments at women,
602
00:26:27,320 --> 00:26:29,820
specifically autistic women diagnosed late.
603
00:26:30,740 --> 00:26:31,440
Here's her case.
604
00:26:31,800 --> 00:26:32,800
She says that there are two groups:
605
00:26:33,090 --> 00:26:34,280
the early diagnosed group,
606
00:26:34,440 --> 00:26:36,520
which she describes as severely
607
00:26:36,820 --> 00:26:38,900
affected with intellectual disability and language delay,
608
00:26:39,470 --> 00:26:40,720
and the late diagnosed group
609
00:26:40,850 --> 00:26:42,320
who she describes like this:
610
00:26:42,580 --> 00:26:46,680
Suddenly increasing number of cases in these late diagnosed, especially women,
611
00:26:47,240 --> 00:26:47,580
is they have
612
00:26:47,580 --> 00:26:48,980
this wonderful communication.
613
00:26:50,240 --> 00:26:53,180
They have absolutely no difficulty in language.
614
00:26:53,830 --> 00:26:56,240
They have everything.
615
00:26:57,160 --> 00:26:57,660
They are,
616
00:26:57,900 --> 00:27:01,760
you know, they still want to be autistic or they are labelled autistic,
617
00:27:02,300 --> 00:27:15,460
but I wonder whether they have, they would be much better recognised and much better treated and understood if one looked at what really their problems actually were.
618
00:27:15,900 --> 00:27:20,320
The problems are not the same as of those other cases.
619
00:27:20,520 --> 00:27:24,640
And as you say, you could call it type 2 autism or whatever it is.
620
00:27:25,040 --> 00:27:26,880
And then she reaches for a number.
621
00:27:27,320 --> 00:27:29,680
She says that in the late diagnosed group,
622
00:27:30,080 --> 00:27:32,960
the old four to one ratio of boys to girls collapses
623
00:27:33,620 --> 00:27:35,440
and you get almost as many women as men.
624
00:27:35,450 --> 00:27:36,080
And to her,
625
00:27:36,820 --> 00:27:38,100
this is a smoking gun,
626
00:27:38,480 --> 00:27:38,980
she says.
627
00:27:39,140 --> 00:27:43,640
The classic proportion of male to female
628
00:27:44,260 --> 00:27:47,280
in autism was four to one
629
00:27:47,520 --> 00:27:50,140
and quite soon changed to three to one.
630
00:27:50,640 --> 00:27:51,960
So preponderance of males,
631
00:27:52,500 --> 00:27:54,640
to reach three boys to one girl.
632
00:27:56,040 --> 00:28:02,620
And that has remained amazingly stable in the early diagnosed group.
633
00:28:03,350 --> 00:28:06,720
But in the late diagnosed group, we see a completely different pattern.
634
00:28:06,910 --> 00:28:10,240
We suddenly see more and more females appearing.
635
00:28:10,570 --> 00:28:13,360
And this has been shown in another study,
636
00:28:13,720 --> 00:28:16,080
very recently published this year,
637
00:28:16,900 --> 00:28:19,040
a study of the Swedish population,
638
00:28:19,340 --> 00:28:23,060
which showed that after the age of 15,
639
00:28:23,240 --> 00:28:24,020
when you get diagnosed
640
00:28:24,740 --> 00:28:25,580
at that point,
641
00:28:25,980 --> 00:28:30,320
you get practically as many girls as boys.
642
00:28:30,540 --> 00:28:34,040
In other words, it's a huge increase in girls.
643
00:28:34,420 --> 00:28:41,220
But she is using data from a very, very large Swedish population study published in the BMJ this year.
644
00:28:41,620 --> 00:28:43,740
And it does not say what she needs it to say.
645
00:28:44,200 --> 00:28:45,300
It actually says the opposite.
646
00:28:46,340 --> 00:28:51,200
The researchers and the editorial that ran alongside it concluded that the narrowing ratio
647
00:28:51,680 --> 00:28:58,300
from 4:1 to 3:1 to... and so on is evidence that autistic women were systematically missed
648
00:28:58,480 --> 00:29:00,900
for decades and are finally being found.
649
00:29:01,160 --> 00:29:03,660
The editorial says it in plain English. It describes
650
00:29:03,820 --> 00:29:08,880
late diagnosed women as, and I quote, "just as autistic as their male counterparts".
651
00:29:09,100 --> 00:29:09,600
Oh well,
652
00:29:09,680 --> 00:29:14,360
the CDC's own American data shows the same ratio narrowing over time.
653
00:29:14,700 --> 00:29:15,480
The most boring,
654
00:29:15,860 --> 00:29:21,880
most parsimonious reading of that number is not "We let the women in!
655
00:29:22,640 --> 00:29:24,720
We're letting the wrong women in!"
656
00:29:25,460 --> 00:29:25,860
No,
657
00:29:25,860 --> 00:29:31,780
it's actually "We kept the right women out and we're only now letting them in through the door."
658
00:29:32,210 --> 00:29:37,280
So she's taken a finding about women being under-recognised and read it as women being
659
00:29:37,590 --> 00:29:38,280
over-included.
660
00:29:39,080 --> 00:29:39,580
Same number,
661
00:29:39,720 --> 00:29:40,840
opposite conclusion.
662
00:29:41,640 --> 00:29:45,820
My conclusion is the same as what the study says
663
00:29:46,840 --> 00:29:49,560
And I wonder if she's actually reading properly.
664
00:29:50,500 --> 00:29:55,660
It just makes me wonder if Uta Frith is such a powerful mind and is she even reading?
665
00:29:56,820 --> 00:30:01,560
And here is the mechanism that she won't look at, which is the one that explains the whole thing.
666
00:30:02,380 --> 00:30:02,940
Masking,
667
00:30:03,140 --> 00:30:06,000
which remember we have just established is real,
668
00:30:06,180 --> 00:30:08,320
measured and visible in a brain scan.
669
00:30:08,600 --> 00:30:13,860
Autistic girls grow up under far more social pressure to fit in than boys typically do.
670
00:30:13,880 --> 00:30:18,160
so they tend to learn earlier and harder to camouflage.
671
00:30:19,280 --> 00:30:20,840
Not that they're hard to camouflage,
672
00:30:21,320 --> 00:30:24,660
just they learn to camouflage harder with more effort,
673
00:30:24,850 --> 00:30:25,440
if that makes sense.
674
00:30:25,780 --> 00:30:26,880
We're not camouflaging
675
00:30:27,010 --> 00:30:27,660
girls right now.
676
00:30:28,460 --> 00:30:30,080
They have it hard enough as it is.
677
00:30:30,380 --> 00:30:31,940
They learn to script the conversations,
678
00:30:32,170 --> 00:30:32,670
right?
679
00:30:32,690 --> 00:30:36,540
Copy the popular girl, that sort of thing. Hold it all together all day at school and fall apart
680
00:30:36,820 --> 00:30:37,540
the moment they get home.
681
00:30:38,230 --> 00:30:40,580
And because the autism textbook was written around boys,
682
00:30:40,860 --> 00:30:42,179
a girl who masks
683
00:30:42,540 --> 00:30:43,260
well looks,
684
00:30:43,800 --> 00:30:44,520
well to a clinician,
685
00:30:44,800 --> 00:30:46,680
like a girl who is just fine.
686
00:30:47,040 --> 00:30:48,840
The masking is not a footnote,
687
00:30:49,100 --> 00:30:52,760
it's the reason that the four to one ratio exists in the first place.
688
00:30:53,360 --> 00:30:55,540
And then Frith goes further,
689
00:30:56,200 --> 00:30:58,960
and this is the tool that made me put my tea down.
690
00:30:59,180 --> 00:31:02,580
I think it is certainly is, you know,
691
00:31:03,020 --> 00:31:07,680
a research area to really go into and answer these questions,
692
00:31:07,980 --> 00:31:10,340
but you have to face the fact
693
00:31:10,820 --> 00:31:15,880
that these late diagnosed people had a perfectly unremarkable childhood.
694
00:31:16,000 --> 00:31:17,480
They developed quite normally,
695
00:31:17,800 --> 00:31:21,740
at least, you know, from what one basically hears.
696
00:31:21,740 --> 00:31:30,760
I believe also that it's very easy to elicit memories or reports of slightly unusual behavior
697
00:31:31,320 --> 00:31:32,740
if you want to do that.
698
00:31:33,320 --> 00:31:34,880
and you can get basically anybody,
699
00:31:35,240 --> 00:31:36,540
including you and me,
700
00:31:36,700 --> 00:31:40,320
to have some episode in your early life
701
00:31:40,560 --> 00:31:42,740
that might say, that looks a little bit autistic.
702
00:31:43,160 --> 00:31:45,900
She's saying that late diagnosed people had,
703
00:31:46,030 --> 00:31:46,700
in her worlds,
704
00:31:46,880 --> 00:31:51,340
a perfectly unremarkable childhood and that autistic memories they describe are
705
00:31:51,720 --> 00:31:52,820
basically suggestible noise.
706
00:31:53,250 --> 00:31:54,200
That if you go looking,
707
00:31:54,510 --> 00:31:56,360
you can talk anybody into believing
708
00:31:56,470 --> 00:31:58,040
that they are a bit autistic as a child.
709
00:31:59,140 --> 00:32:01,200
But think about what that actually is.
710
00:32:01,440 --> 00:32:02,480
That's not data,
711
00:32:03,140 --> 00:32:04,120
that's just her opinion,
712
00:32:04,320 --> 00:32:06,720
it's just an assumption, it just wears the costume of
713
00:32:06,860 --> 00:32:07,360
data.
714
00:32:08,260 --> 00:32:11,900
You know, an Afghan flavoured lab coat,
715
00:32:12,120 --> 00:32:12,620
if you will.
716
00:32:12,860 --> 00:32:13,840
You assume that the
717
00:32:13,940 --> 00:32:17,440
childhood was typical and then you treat every piece of evidence to the contrary
718
00:32:17,560 --> 00:32:18,880
as the person fooling themselves.
719
00:32:19,420 --> 00:32:20,500
It's a closed loop,
720
00:32:20,780 --> 00:32:22,540
no one can win, it's circular
721
00:32:22,780 --> 00:32:23,280
reasoning,
722
00:32:23,520 --> 00:32:24,440
nothing can ever get it.
723
00:32:24,660 --> 00:32:26,560
This is the ground that researchers like
724
00:32:26,820 --> 00:32:28,640
Gina Rippon have spent their careers,
725
00:32:28,900 --> 00:32:30,740
this is Gina Rippon there, have spent their
726
00:32:30,740 --> 00:32:31,580
careers reclaiming.
727
00:32:31,740 --> 00:32:33,740
The lost girls of autism.
728
00:32:34,240 --> 00:32:36,440
The ones in the field,
729
00:32:37,160 --> 00:32:37,900
in Rippon's telling,
730
00:32:38,490 --> 00:32:42,920
simply did not bother looking for, because the entire picture of autism was built around small
731
00:32:43,160 --> 00:32:43,660
boys.
732
00:32:43,740 --> 00:32:48,060
The work of Bargiella and colleagues documented exactly how these women slipped through,
733
00:32:48,460 --> 00:32:49,500
masking and adapting,
734
00:32:49,780 --> 00:32:52,720
and being told again and again that they seem fine.
735
00:32:52,900 --> 00:32:53,680
The cost of all that
736
00:32:53,860 --> 00:32:54,640
masking is not nothing,
737
00:32:54,940 --> 00:32:56,320
whatever Frith says.
738
00:32:56,910 --> 00:32:58,700
The research from people like Leigh and McQuaid
739
00:32:59,060 --> 00:33:00,940
links sustained camouflaging to anxiety,
740
00:33:01,310 --> 00:33:01,880
to depression,
741
00:33:02,520 --> 00:33:04,700
to a damaged sense of who you even are,
742
00:33:05,300 --> 00:33:06,300
and as I said before,
743
00:33:06,760 --> 00:33:07,620
to suicidality.
744
00:33:07,800 --> 00:33:10,540
That is the opposite of an interesting personality quirk.
745
00:33:10,980 --> 00:33:13,440
This is people quietly drowning while performing fine.
746
00:33:14,780 --> 00:33:16,240
Look at the trap that Frith has built,
747
00:33:17,320 --> 00:33:18,620
maybe without meaning to.
748
00:33:18,730 --> 00:33:20,220
She says that she will not trust
749
00:33:20,270 --> 00:33:21,880
an autistic woman's account of her own life.
750
00:33:22,360 --> 00:33:24,260
I think the subjective experience is,
751
00:33:27,140 --> 00:33:27,640
It's very,
752
00:33:27,960 --> 00:33:28,540
very tricky.
753
00:33:29,180 --> 00:33:30,860
You do need to verify it.
754
00:33:32,500 --> 00:33:34,240
You do need objective criteria.
755
00:33:35,340 --> 00:33:37,980
This objective experience is very malleable
756
00:33:38,260 --> 00:33:40,340
by cultural opinion,
757
00:33:40,960 --> 00:33:43,440
by the way you understand yourself,
758
00:33:43,620 --> 00:33:44,420
you have memories.
759
00:33:45,200 --> 00:33:47,460
That is just not a solid enough foundation.
760
00:33:48,760 --> 00:33:49,780
Frith wants objective,
761
00:33:50,020 --> 00:33:50,520
external,
762
00:33:50,600 --> 00:33:51,540
third-party verification
763
00:33:51,880 --> 00:33:53,500
before she will even believe that you're autistic.
764
00:33:53,960 --> 00:33:54,780
But the objective,
765
00:33:55,020 --> 00:33:55,540
external,
766
00:33:55,840 --> 00:33:57,100
third-party system
767
00:33:57,100 --> 00:34:00,240
appealing to is the exact same system that was built around boys,
768
00:34:00,520 --> 00:34:01,300
white boys,
769
00:34:01,890 --> 00:34:02,540
and well-off families,
770
00:34:02,910 --> 00:34:03,410
pretty much.
771
00:34:03,710 --> 00:34:07,680
The exact same system that missed these women in the first place.
772
00:34:07,980 --> 00:34:13,260
She's proposing that we re-examine the lost girls of autism using the precise instrument that lost them.
773
00:34:14,300 --> 00:34:14,740
And look,
774
00:34:14,740 --> 00:34:18,919
I have a stake in this and I'm not going to pretend otherwise.
775
00:34:19,210 --> 00:34:23,899
I am one of the people she's talking about because I was identified as autistic as an adult.
776
00:34:24,460 --> 00:34:25,500
Not because it was fashionable,
777
00:34:25,879 --> 00:34:28,500
not because someone talked me into a memory,
778
00:34:29,520 --> 00:34:36,040
but because I spent decades knowing something did not fit and finally found an explanation that fit it perfectly.
779
00:34:36,659 --> 00:34:39,800
And I'm not an interesting personality variant, at least I don't think so.
780
00:34:39,889 --> 00:34:40,639
Let me know in the comments.
781
00:34:41,300 --> 00:34:42,879
But I'm autistic.
782
00:34:43,500 --> 00:34:44,820
The system just missed me.
783
00:34:45,050 --> 00:34:46,600
As it, of course it did.
784
00:34:47,580 --> 00:34:48,360
I'm 44 years old.
785
00:34:48,500 --> 00:34:49,419
Of course the system missed me.
786
00:34:50,040 --> 00:34:54,879
And I'm not willing to let the same person who helped build that system stand in her living room,
787
00:34:54,899 --> 00:34:58,600
or sit in her living room I guess, and tell me that I imagined the whole thing.
788
00:34:59,180 --> 00:35:01,820
Frith does not just rest on a feeling.
789
00:35:02,060 --> 00:35:03,320
She points to the science,
790
00:35:03,620 --> 00:35:05,120
she says modern genetics is
791
00:35:05,280 --> 00:35:07,980
starting to find real subtypes, distinct kinds,
792
00:35:08,180 --> 00:35:10,260
and this supports breaking the spectrum apart.
793
00:35:10,800 --> 00:35:14,980
We don't have an objective way of diagnosing autism.
794
00:35:15,480 --> 00:35:17,140
Even though we believe there is a brain
795
00:35:17,140 --> 00:35:19,000
base, you believe there's a genetic basis.
796
00:35:19,920 --> 00:35:20,660
There's a lot of evidence,
797
00:35:21,040 --> 00:35:21,920
yes, that this is definitely
798
00:35:22,110 --> 00:35:22,610
the case.
799
00:35:22,680 --> 00:35:27,880
And there has been this general trend in recent years of these subtyping studies where
800
00:35:28,330 --> 00:35:28,920
you find,
801
00:35:29,070 --> 00:35:30,820
or researchers find,
802
00:35:30,980 --> 00:35:32,820
patterns in genes,
803
00:35:33,140 --> 00:35:34,840
in brain activity,
804
00:35:35,320 --> 00:35:39,380
and also kind of experiences
805
00:35:39,920 --> 00:35:40,740
and behaviours.
806
00:35:41,340 --> 00:35:44,860
And then the question is, are there multiple kinds of autism?
807
00:35:45,280 --> 00:35:46,520
I have read those
808
00:35:46,520 --> 00:35:52,400
studies many times. I have really taken them to heart. In fact I made an entire video taking them
809
00:35:52,430 --> 00:35:53,840
apart and I'll put it on screen.
810
00:35:54,660 --> 00:35:55,400
Watch it after this one.
811
00:35:56,410 --> 00:35:57,920
So I'm not going in cold here.
812
00:35:58,160 --> 00:35:58,920
The studies
813
00:35:59,300 --> 00:36:00,940
are interesting and they're not fraudulent,
814
00:36:01,220 --> 00:36:02,460
they're not junk,
815
00:36:02,740 --> 00:36:04,720
but they do not say what she needs them
816
00:36:04,730 --> 00:36:07,200
to say and the reasons are baked into how they were built.
817
00:36:07,420 --> 00:36:09,520
Starting with the big one, the 2025 study
818
00:36:10,020 --> 00:36:15,460
in Nature Genetics. It took over 5,000 autistic children and then used machine learning or AI
819
00:36:15,520 --> 00:36:20,260
to sort them into four subtypes based on more than 230 traits each.
820
00:36:20,560 --> 00:36:23,940
Those traits were mostly parent-reported,
821
00:36:24,220 --> 00:36:26,460
which in practice means a parent sitting at a kitchen table
822
00:36:27,440 --> 00:36:29,620
scorecarding their own child on a long questionnaire.
823
00:36:30,600 --> 00:36:31,840
That is not a knock on the parents,
824
00:36:32,040 --> 00:36:32,820
they're doing their best,
825
00:36:33,260 --> 00:36:35,740
but it does mean that the raw material of the entire study
826
00:36:36,360 --> 00:36:39,180
is merely a parent's perception of their child's behaviour,
827
00:36:39,740 --> 00:36:43,880
and that is just filtered through whatever that person thinks that autism looks like.
828
00:36:44,020 --> 00:36:48,880
Frith spends the whole interview telling us subjective report is too unreliable to trust
829
00:36:49,500 --> 00:36:53,600
while leaning on a study built entirely out of it.
830
00:36:53,900 --> 00:36:56,840
So one of those four subtypes is the interesting one for our purposes,
831
00:36:57,100 --> 00:36:57,880
it's the largest group,
832
00:36:58,140 --> 00:37:02,240
around 37%, and the researchers called it social and behavioural
833
00:37:02,340 --> 00:37:02,840
challenges.
834
00:37:02,920 --> 00:37:05,080
They wanted to write core autistic traits,
835
00:37:05,260 --> 00:37:07,140
hit their developmental milestones roughly
836
00:37:07,140 --> 00:37:07,640
on time,
837
00:37:07,740 --> 00:37:12,640
good language but a stack of co-occurring conditions like anxiety, ADHD and depression.
838
00:37:13,640 --> 00:37:14,620
If you're listening carefully,
839
00:37:14,960 --> 00:37:18,600
that group sounds an awful lot like Frith's so-called second group:
840
00:37:19,060 --> 00:37:19,760
the late diagnosed,
841
00:37:20,240 --> 00:37:23,880
verbal, anxious ones who she wants to remove from the autism category.
842
00:37:24,800 --> 00:37:25,860
And there are more problems.
843
00:37:26,120 --> 00:37:29,100
The first is that every one of these studies is built on children.
844
00:37:29,480 --> 00:37:32,040
The 2025 one runs from age 4 to 18,
845
00:37:32,420 --> 00:37:35,740
the 2023 one before it in Nature Neuroscience was children and
846
00:37:35,740 --> 00:37:36,420
young people too.
847
00:37:37,220 --> 00:37:38,020
So whatever they find,
848
00:37:38,240 --> 00:37:40,400
they structurally cannot speak to autistic adults.
849
00:37:41,320 --> 00:37:44,580
Yet it is autistic adults that Frith's entire argument is about.
850
00:37:45,480 --> 00:37:49,120
She's using research on children to tell grown women that they are not autistic.
851
00:37:49,650 --> 00:37:52,060
The second is that these are not the neat,
852
00:37:53,780 --> 00:37:56,220
separable boxes that the headlines promised.
853
00:37:56,840 --> 00:37:57,700
As I said in that video,
854
00:37:58,470 --> 00:37:59,560
these are fuzzy clusters,
855
00:37:59,840 --> 00:38:00,980
not species of Pokémon.
856
00:38:01,600 --> 00:38:02,800
People sit on the borders,
857
00:38:03,020 --> 00:38:05,580
people shift between them as they grow and their lives change,
858
00:38:06,070 --> 00:38:08,360
and the researchers themselves are the first to say so.
859
00:38:08,820 --> 00:38:13,340
The lead author said in plain words that finding four classes in the data does not mean that there
860
00:38:13,340 --> 00:38:14,500
are only four kinds of autism.
861
00:38:14,900 --> 00:38:19,100
The team behind the age of diagnosis genetics described their own work
862
00:38:19,200 --> 00:38:21,540
as showing the diversity found within autism,
863
00:38:22,340 --> 00:38:24,860
not the exit from it. Who paid for a study does not
864
00:38:25,060 --> 00:38:26,040
tell you whether it's true.
865
00:38:26,220 --> 00:38:30,440
A good study funded by the devil himself is still a good study.
866
00:38:30,820 --> 00:38:34,640
So everything I just said, the children, the parent reports, the clusters that cut across age and sex,
867
00:38:35,140 --> 00:38:36,480
That stands entirely on its own,
868
00:38:36,940 --> 00:38:37,980
whoever signed the checks.
869
00:38:39,190 --> 00:38:41,200
The next part is not me proving the science wrong.
870
00:38:42,340 --> 00:38:46,180
This is me explaining why the framing around it keeps coming from the same shape.
871
00:38:47,400 --> 00:38:49,880
This is really worth knowing and it's worth talking about.
872
00:38:50,400 --> 00:38:51,920
Both studies came out of the same machine.
873
00:38:52,570 --> 00:38:54,000
They were funded by Safari,
874
00:38:54,400 --> 00:38:55,800
the research arm of Simon's
875
00:38:55,940 --> 00:38:56,440
Foundation,
876
00:38:56,610 --> 00:38:57,700
and they run on Spark,
877
00:38:58,010 --> 00:39:01,020
the Simon's Foundation's own enormous collection of autism data.
878
00:39:01,440 --> 00:39:04,080
This is a heavily genetics-focused,
879
00:39:04,320 --> 00:39:08,180
heavily resourced research world, and it has very few
880
00:39:08,310 --> 00:39:10,540
autistic people anywhere near the steering wheel.
881
00:39:10,760 --> 00:39:13,280
One of the figures circling it, Alison Singer,
882
00:39:13,820 --> 00:39:18,080
sits on the SPARC advisory board and runs a foundation that takes Simon's money and is one
883
00:39:18,080 --> 00:39:24,040
of the people who coined the term "profound autism". She has argued on record that you need to be able
884
00:39:24,040 --> 00:39:27,740
to call autism a severe disorder with symptoms and comorbidities.
885
00:39:28,010 --> 00:39:30,019
So this is not neutral scientific
886
00:39:30,020 --> 00:39:30,520
ground.
887
00:39:30,680 --> 00:39:36,040
This is a research world built largely around the idea of autism as something to be
888
00:39:36,280 --> 00:39:38,480
screened for and ideally prevented.
889
00:39:38,860 --> 00:39:40,660
That does not make the data wrong,
890
00:39:40,960 --> 00:39:42,340
it does explain why the people
891
00:39:42,600 --> 00:39:47,940
holding it keep reaching for the same conclusions and why Frith picking up on the framing arrives
892
00:39:48,160 --> 00:39:49,100
where she arrives.
893
00:39:49,640 --> 00:39:50,940
It's a cultural thing.
894
00:39:51,220 --> 00:39:54,740
And I would say it's dangerous to do that because
895
00:39:54,760 --> 00:40:02,960
it completely ignores the profound autism which has these very severe communication difficulties.
896
00:40:03,260 --> 00:40:04,860
Ah, profound autism again.
897
00:40:05,660 --> 00:40:08,200
Frith reaches for that term to make her case.
898
00:40:08,750 --> 00:40:12,880
The idea that there is a group so severely affected that lumping them in with the late
899
00:40:13,080 --> 00:40:15,060
diagnosed is an insult to them.
900
00:40:15,310 --> 00:40:18,600
And I have a whole video on profound autism right here,
901
00:40:19,180 --> 00:40:23,140
so let me tell you what that term actually means, because it does not mean
902
00:40:23,200 --> 00:40:24,880
what she is using it to mean.
903
00:40:25,700 --> 00:40:29,220
Profound autism was proposed by a report in the Lancet Commission back in 2021,
904
00:40:30,000 --> 00:40:31,640
and it was never proposed as a diagnosis.
905
00:40:32,140 --> 00:40:34,240
It is purely an administrative term.
906
00:40:34,660 --> 00:40:37,860
You will not find it in the DSM, you will not find it in the ICD.
907
00:40:38,280 --> 00:40:42,220
No clinician will ever write it on a form. It was meant as a flag for research
908
00:40:42,580 --> 00:40:45,320
and for directing care to the people who need the most of it.
909
00:40:46,060 --> 00:40:48,440
And here is how the Lancet defined it:
910
00:40:48,960 --> 00:40:50,620
someone who needs round-the-clock supervision,
911
00:40:50,960 --> 00:40:52,240
who cannot be left alone,
912
00:40:52,640 --> 00:40:55,220
who cannot manage their daily basic needs.
913
00:40:55,460 --> 00:40:56,880
And this line,
914
00:40:57,100 --> 00:41:00,000
which I read out in my earlier video,
915
00:41:00,130 --> 00:41:03,580
and I'm going to read it again here because it is the whole thing,
916
00:41:03,820 --> 00:41:05,800
the Lancet says profound autism is,
917
00:41:06,030 --> 00:41:08,940
and I quote, "defined not by autistic features,
918
00:41:09,290 --> 00:41:11,660
but by intellectual or language disability."
919
00:41:11,970 --> 00:41:13,840
I will say that again for those at the back,
920
00:41:14,740 --> 00:41:16,080
not by autistic features.
921
00:41:16,420 --> 00:41:18,020
Profound autism is defined
922
00:41:18,040 --> 00:41:19,480
not by autistic features,
923
00:41:20,040 --> 00:41:21,980
but by intellectual or language disability.
924
00:41:22,600 --> 00:41:23,140
Profound autism,
925
00:41:23,440 --> 00:41:25,020
the thing Frith is holding up as real,
926
00:41:26,100 --> 00:41:26,600
the severe,
927
00:41:27,000 --> 00:41:30,420
the proper autism that the late diagnosed are supposedly diluting,
928
00:41:30,920 --> 00:41:36,740
is a category defined by how much intellectual disability and language disability sits alongside
929
00:41:37,360 --> 00:41:37,860
autism,
930
00:41:37,900 --> 00:41:39,340
not by autism.
931
00:41:39,540 --> 00:41:42,900
And that is the trick at the very centre of her split,
932
00:41:43,180 --> 00:41:44,280
whether she intends it
933
00:41:44,700 --> 00:41:45,360
or not.
934
00:41:45,860 --> 00:41:51,220
When she looks back at her early diagnosed group and sees something profoundly different from
935
00:41:51,320 --> 00:41:52,520
her late diagnosed group,
936
00:41:52,780 --> 00:41:55,900
a great deal of what she's actually seeing is intellectual disability
937
00:41:56,680 --> 00:42:00,420
and language disability in the one group and not in the other.
938
00:42:00,900 --> 00:42:02,400
Those disabilities are real,
939
00:42:02,540 --> 00:42:03,200
they matter enormously,
940
00:42:03,680 --> 00:42:04,900
support for them is important,
941
00:42:05,340 --> 00:42:07,060
they can completely change what a
942
00:42:07,170 --> 00:42:08,240
person needs from the world.
943
00:42:08,720 --> 00:42:10,160
But they are not autism,
944
00:42:10,510 --> 00:42:12,420
they are conditions that often travel
945
00:42:12,440 --> 00:42:13,820
alongside an autism diagnosis,
946
00:42:14,240 --> 00:42:15,460
strip them out,
947
00:42:15,640 --> 00:42:16,860
look at the autism on its own,
948
00:42:17,120 --> 00:42:17,620
and the
949
00:42:17,720 --> 00:42:22,760
unbridgeable chasm that she keeps describing narrows to just a small crack.
950
00:42:23,420 --> 00:42:26,360
To show you how badly that term fits the job she's giving it,
951
00:42:26,600 --> 00:42:27,920
there are autistic people
952
00:42:28,060 --> 00:42:29,020
who speak fluently,
953
00:42:29,460 --> 00:42:33,720
who have extremely high IQs, who still need round-the-clock care because
954
00:42:33,780 --> 00:42:38,140
of severe anxiety or epilepsy or any number of co-occurring conditions.
955
00:42:39,400 --> 00:42:40,340
Under the Lancet definition,
956
00:42:40,600 --> 00:42:42,280
those people are not profound.
957
00:42:43,020 --> 00:42:43,520
And yet their autism,
958
00:42:43,820 --> 00:42:47,540
by any ordinary meaning of the word, really is profound.
959
00:42:48,800 --> 00:42:51,320
The label sails straight past them.
960
00:42:52,080 --> 00:42:54,520
So it does not even do the one job that it was built to do.
961
00:42:55,220 --> 00:42:59,200
It's not a measurement of how autistic you are, it's a measure of how much intellectual
962
00:42:59,440 --> 00:43:01,140
disability you have.
963
00:43:01,560 --> 00:43:05,040
And Frith is leaning on it as though those two things are the same thing.
964
00:43:05,260 --> 00:43:05,840
They are not.
965
00:43:06,600 --> 00:43:09,940
Do you notice the move Frith has pulled earlier in the very same interview?
966
00:43:10,370 --> 00:43:13,700
She said she told us that she does not trust big data.
967
00:43:14,230 --> 00:43:14,730
She said:
968
00:43:15,000 --> 00:43:18,060
I'm a little bit sceptical of big data,
969
00:43:18,340 --> 00:43:20,900
basically because it is very,
970
00:43:21,060 --> 00:43:21,560
very noisy.
971
00:43:22,200 --> 00:43:22,700
And you don't,
972
00:43:23,150 --> 00:43:24,900
you also, the bigger the data,
973
00:43:25,670 --> 00:43:27,500
the more likely it is that there are errors
974
00:43:27,760 --> 00:43:28,680
in collection,
975
00:43:29,390 --> 00:43:31,460
in the kind of tests that you use.
976
00:43:32,180 --> 00:43:36,280
When you think of behavioural tests or cognitive tests, they will be minimal because,
977
00:43:36,520 --> 00:43:42,780
you know, you can't do two days or three days worth of assessment for one of,
978
00:43:42,960 --> 00:43:45,300
you know, one million individuals.
979
00:43:45,660 --> 00:43:46,120
Very,
980
00:43:46,120 --> 00:43:46,700
very noisy,
981
00:43:47,320 --> 00:43:49,440
right up until it appears to agree with her,
982
00:43:49,680 --> 00:43:50,540
at which point it becomes
983
00:43:50,560 --> 00:43:51,660
the bedrock of her argument.
984
00:43:52,220 --> 00:43:55,920
You do not get to disown the method and keep the conclusion.
985
00:43:56,620 --> 00:43:59,980
The subtyping studies that she's leaning on are big data bottom-up studies,
986
00:44:00,180 --> 00:44:00,620
the exact
987
00:44:00,620 --> 00:44:02,140
kind that she told us, she doesn't believe.
988
00:44:02,580 --> 00:44:06,140
She trusts the data when it flatters her and distrusts
989
00:44:06,140 --> 00:44:08,460
it when it does not. That is not scepticism,
990
00:44:08,930 --> 00:44:10,000
that is just shopping.
991
00:44:10,540 --> 00:44:12,040
At the end of the interview Frith
992
00:44:12,140 --> 00:44:13,860
says something that sounds almost humble.
993
00:44:14,100 --> 00:44:16,060
We are all different in these respects.
994
00:44:16,630 --> 00:44:17,340
So this would be
995
00:44:17,340 --> 00:44:21,480
an identity and absolutely wrong to pathologise.
996
00:44:21,900 --> 00:44:25,819
Now in these cases I would really wonder whether
997
00:44:25,840 --> 00:44:31,000
we could take out that now called subgroup from the spectrum and say,
998
00:44:31,240 --> 00:44:32,180
actually,
999
00:44:32,760 --> 00:44:33,260
you just
1000
00:44:33,340 --> 00:44:34,660
have a somewhat eccentric,
1001
00:44:34,920 --> 00:44:36,460
wonderful personality.
1002
00:44:36,960 --> 00:44:40,400
There is no way that there is anything wrong
1003
00:44:40,640 --> 00:44:41,140
with you.
1004
00:44:41,160 --> 00:44:42,260
This is a central proposal,
1005
00:44:42,540 --> 00:44:45,140
that late diagnosed group does not have autism,
1006
00:44:45,680 --> 00:44:46,600
but it has instead,
1007
00:44:47,160 --> 00:44:50,580
in her words, an extremely useful personality variant.
1008
00:44:51,140 --> 00:45:05,760
I think a wrong turn has been the pathologizing of what I think are probably extremely useful
1009
00:45:06,200 --> 00:45:11,160
personality variants that I would call autistic-like.
1010
00:45:11,540 --> 00:45:12,040
Yeah,
1011
00:45:13,320 --> 00:45:14,500
yeah capitalism I guess.
1012
00:45:14,890 --> 00:45:19,060
I mean she would call it autistic-like. I mean honestly if I'd
1013
00:45:19,060 --> 00:45:26,200
known I'd have called the channel Autistic Like or Autism Light AF or something and just saved
1014
00:45:26,380 --> 00:45:26,940
everyone all the bother.
1015
00:45:27,180 --> 00:45:27,680
Anyway,
1016
00:45:28,600 --> 00:45:29,740
take them out of the category,
1017
00:45:30,440 --> 00:45:32,020
tell them kindly that there is nothing
1018
00:45:32,140 --> 00:45:32,640
wrong with them,
1019
00:45:32,920 --> 00:45:33,240
right?
1020
00:45:33,240 --> 00:45:36,260
That's what she wants to do. If you reclassify somebody who has support needs,
1021
00:45:36,540 --> 00:45:37,440
that has a disability,
1022
00:45:38,000 --> 00:45:39,380
you reclassify them out of autism,
1023
00:45:39,880 --> 00:45:42,120
you reclassify them out of support.
1024
00:45:43,160 --> 00:45:45,120
The diagnosis is not a sticker,
1025
00:45:45,610 --> 00:45:49,340
it is the key potentially that can get you workplace adjustments,
1026
00:45:49,800 --> 00:45:50,500
educational support,
1027
00:45:50,840 --> 00:45:52,180
clinical care,
1028
00:45:52,530 --> 00:45:54,400
the basic recognition that you're not broken.
1029
00:45:57,880 --> 00:45:59,300
There is nothing wrong with you,
1030
00:45:59,480 --> 00:46:03,880
it sounds like a gift right up until the moment it it becomes
1031
00:46:04,720 --> 00:46:06,400
so you do not qualify right.
1032
00:46:06,940 --> 00:46:08,100
That's the same sentence,
1033
00:46:08,420 --> 00:46:09,780
there is nothing wrong with you so you
1034
00:46:09,780 --> 00:46:12,240
do you not qualify?" She's not saying the critical part,
1035
00:46:12,600 --> 00:46:13,540
she's not saying the conclusion,
1036
00:46:13,840 --> 00:46:14,340
she's just
1037
00:46:14,440 --> 00:46:17,440
sort of sitting on the nice part with the macaroons.
1038
00:46:17,770 --> 00:46:19,400
But she does gesture at the real machinery
1039
00:46:19,680 --> 00:46:24,800
underneath even if she doesn't dwell on it. Can we not find a way to meet all of these people's needs?
1040
00:46:25,060 --> 00:46:26,460
Well we have limited resources,
1041
00:46:26,890 --> 00:46:28,040
you have to remember that.
1042
00:46:29,100 --> 00:46:29,920
They have to be,
1043
00:46:30,340 --> 00:46:32,159
you know, distributed
1044
00:46:32,180 --> 00:46:33,960
wisely and fairly.
1045
00:46:35,120 --> 00:46:35,800
And it is very,
1046
00:46:35,960 --> 00:46:38,140
very difficult to judge that,
1047
00:46:38,620 --> 00:46:39,380
I have to say.
1048
00:46:39,620 --> 00:46:41,640
That is not a neuroscience finding,
1049
00:46:41,900 --> 00:46:42,400
by the way.
1050
00:46:43,220 --> 00:46:45,800
Who deserves support is a political question.
1051
00:46:46,120 --> 00:46:46,620
It's politics.
1052
00:46:47,020 --> 00:46:48,900
It's a moral question, an ethical question,
1053
00:46:49,620 --> 00:46:51,080
but it is not a scientific question.
1054
00:46:51,500 --> 00:46:53,420
She keeps sort of smuggling it into the conversation
1055
00:46:53,720 --> 00:46:55,280
as though it were a fact about the brain.
1056
00:46:56,120 --> 00:46:56,780
It is not.
1057
00:46:57,180 --> 00:46:59,420
Whether you are autistic is one question.
1058
00:47:00,080 --> 00:47:02,140
Whether the state will pay for your support
1059
00:47:02,620 --> 00:47:03,920
is a completely different question.
1060
00:47:04,380 --> 00:47:06,540
And she has quietly fused the two together
1061
00:47:07,200 --> 00:47:09,140
so that the answer to the second can be solved
1062
00:47:09,700 --> 00:47:11,560
by changing the answer to the first.
1063
00:47:11,920 --> 00:47:12,680
And while we're here,
1064
00:47:13,120 --> 00:47:15,980
let us actually look at this terrifying drain on resources,
1065
00:47:16,860 --> 00:47:18,440
the late identified adults,
1066
00:47:18,780 --> 00:47:19,280
right?
1067
00:47:19,520 --> 00:47:20,480
Because I am one of them.
1068
00:47:20,640 --> 00:47:22,480
And I'll tell you what I got from my diagnosis.
1069
00:47:22,700 --> 00:47:23,560
I got a letter,
1070
00:47:24,060 --> 00:47:24,740
I got a report.
1071
00:47:26,080 --> 00:47:27,260
I got six documents actually,
1072
00:47:27,500 --> 00:47:28,100
a nice little package.
1073
00:47:28,380 --> 00:47:31,180
I got a conversation and I got a reading list.
1074
00:47:31,750 --> 00:47:34,820
I got basically permission to stop hating myself
1075
00:47:35,040 --> 00:47:37,220
for the things that I've been failing at my whole life
1076
00:47:37,310 --> 00:47:38,120
without knowing why.
1077
00:47:39,420 --> 00:47:41,120
And that is the typical story,
1078
00:47:41,360 --> 00:47:41,860
by the way.
1079
00:47:42,120 --> 00:47:44,240
The vast majority of late identified autistic people
1080
00:47:44,720 --> 00:47:46,060
are not asking for a care package
1081
00:47:46,400 --> 00:47:48,740
or a residential placement or a penny of anything.
1082
00:47:49,720 --> 00:47:51,520
They're asking to be believed and to be supported,
1083
00:47:52,360 --> 00:47:54,300
to get the odd reasonable adjustment at work,
1084
00:47:54,450 --> 00:47:57,520
the kind that costs an employer roughly nothing.
1085
00:47:58,380 --> 00:48:00,540
to stop being told that they are imagining it.
1086
00:48:00,740 --> 00:48:02,060
The image Frith is leaning on
1087
00:48:02,260 --> 00:48:04,460
of hordes of fake autistic adults
1088
00:48:05,420 --> 00:48:07,300
swarming a finite pot of money
1089
00:48:08,080 --> 00:48:09,620
and starving the truly needly
1090
00:48:09,820 --> 00:48:12,400
is almost entirely imaginary.
1091
00:48:14,060 --> 00:48:15,580
The people that she wants to remove from the category
1092
00:48:15,740 --> 00:48:18,680
are for the most part not the ones drawing on the resources
1093
00:48:18,980 --> 00:48:20,180
that she is so worried about.
1094
00:48:21,100 --> 00:48:24,300
So the sort of austerity-flavoured rationing argument
1095
00:48:24,390 --> 00:48:26,060
does not even do what she needs it to.
1096
00:48:26,380 --> 00:48:29,280
She's picking the wrong people's pockets
1097
00:48:29,450 --> 00:48:31,120
to solve a problem that they were never causing.
1098
00:48:32,160 --> 00:48:35,020
We should ask, by the way, where this framing comes from,
1099
00:48:35,500 --> 00:48:37,540
because Frith is not having this thought in a vacuum.
1100
00:48:38,400 --> 00:48:39,740
I've spent a lot of time on this channel
1101
00:48:40,020 --> 00:48:41,640
mapping the autism research machine,
1102
00:48:41,860 --> 00:48:42,860
the funding bodies,
1103
00:48:43,420 --> 00:48:44,980
the genetic first priorities,
1104
00:48:45,660 --> 00:48:47,540
the organizations with very loud opinions
1105
00:48:47,940 --> 00:48:51,200
and the very few autistic people anywhere near the top,
1106
00:48:51,380 --> 00:48:52,780
anywhere near the steering wheel,
1107
00:48:53,080 --> 00:48:53,580
right?
1108
00:48:53,620 --> 00:48:55,800
The same world that wants to subtype autism
1109
00:48:56,600 --> 00:48:57,100
for a, you know,
1110
00:48:57,280 --> 00:48:59,220
quote, "precision diagnosis and care"
1111
00:48:59,680 --> 00:49:03,100
is the world whose framing she has picked up and run with.
1112
00:49:03,540 --> 00:49:04,760
She says it's not pathology.
1113
00:49:05,240 --> 00:49:07,300
The people that she has just handed this argument to
1114
00:49:07,760 --> 00:49:09,040
think it is nothing but.
1115
00:49:09,480 --> 00:49:11,040
And the biggest tell for me,
1116
00:49:11,600 --> 00:49:15,060
the thing that should kind of make everyone pause
1117
00:49:15,700 --> 00:49:17,960
is that her own student broke with her on this.
1118
00:49:18,180 --> 00:49:19,680
Simon Baron Cohen on the BBC
1119
00:49:20,300 --> 00:49:21,680
agreed that the word autism
1120
00:49:21,700 --> 00:49:23,600
may have stretched a little too wide,
1121
00:49:23,710 --> 00:49:24,980
which is a reasonable thing to say,
1122
00:49:25,820 --> 00:49:28,520
and then said that there is no evidence of over-diagnosis.
1123
00:49:29,360 --> 00:49:32,120
The man who helped her build the framework
1124
00:49:32,620 --> 00:49:33,600
looked at the same situation
1125
00:49:33,960 --> 00:49:36,080
and could not follow her to the same conclusion.
1126
00:49:37,280 --> 00:49:39,260
When your most famous student plants a flag
1127
00:49:39,580 --> 00:49:41,100
short of where you are standing,
1128
00:49:41,300 --> 00:49:42,380
that is worth noticing.
1129
00:49:43,300 --> 00:49:45,580
Every objective bar that she set for the rest of us,
1130
00:49:45,640 --> 00:49:46,760
she's missed herself.
1131
00:49:47,420 --> 00:49:48,760
And she told you so on camera.
1132
00:49:48,900 --> 00:49:51,740
She demands of us what she admits she never delivers.
1133
00:49:52,240 --> 00:49:54,440
It's not a category falling apart.
1134
00:49:54,680 --> 00:49:57,700
It's a category finally being asked to account for reality
1135
00:49:57,960 --> 00:50:00,640
and straining because it was drawn far too small
1136
00:50:00,740 --> 00:50:01,420
in the first place.
1137
00:50:02,060 --> 00:50:04,660
And as you say, you could call it type two autism
1138
00:50:04,960 --> 00:50:06,200
or whatever it is,
1139
00:50:06,840 --> 00:50:08,640
but why not call it, you know,
1140
00:50:08,720 --> 00:50:10,700
find a name that actually is suitable
1141
00:50:11,060 --> 00:50:14,200
and recognises that this is a different,
1142
00:50:14,420 --> 00:50:16,040
a different thing.
1143
00:50:16,400 --> 00:50:17,500
Go right back to the beginning.
1144
00:50:17,680 --> 00:50:20,280
The very first person ever formally diagnosed with autism,
1145
00:50:20,720 --> 00:50:21,440
Donald Triplett.
1146
00:50:22,120 --> 00:50:25,720
The man Leo Kanner literally labeled case one in 1943.
1147
00:50:26,700 --> 00:50:27,380
What was he like?
1148
00:50:28,130 --> 00:50:29,220
He had a degree in French.
1149
00:50:29,330 --> 00:50:30,560
He had perfect pitch too.
1150
00:50:31,200 --> 00:50:33,480
He could multiply three digit numbers in his head in seconds.
1151
00:50:33,940 --> 00:50:37,040
He worked at the bank, the same bank for 65 years.
1152
00:50:37,760 --> 00:50:38,860
He loved traveling the world.
1153
00:50:39,080 --> 00:50:39,800
He was verbal,
1154
00:50:40,040 --> 00:50:40,840
gifted, independent,
1155
00:50:41,020 --> 00:50:43,560
and he lived a long and contented life on his own terms.
1156
00:50:44,300 --> 00:50:45,420
That's patient one.
1157
00:50:46,360 --> 00:50:49,080
That is the foundation stone of the entire diagnosis.
1158
00:50:50,360 --> 00:50:53,680
So the idea that real autism means a non-speaking child
1159
00:50:53,840 --> 00:50:54,660
with an intellectual disability
1160
00:50:55,400 --> 00:50:57,900
and that a verbal capable adult cannot be autistic
1161
00:50:58,520 --> 00:50:59,320
is just wrong.
1162
00:51:01,100 --> 00:51:03,160
It was wrong in the very first case in the file
1163
00:51:03,700 --> 00:51:04,660
and we did not drift away
1164
00:51:04,780 --> 00:51:07,020
from some pure original meaning of autism.
1165
00:51:08,800 --> 00:51:10,760
We just spent 80 years forgetting it
1166
00:51:10,860 --> 00:51:11,920
because intellectual disability
1167
00:51:12,200 --> 00:51:15,120
kept getting tangled up with autism
1168
00:51:15,140 --> 00:51:16,320
and confusing the whole picture.
1169
00:51:17,420 --> 00:51:18,900
We can separate the two questions
1170
00:51:19,190 --> 00:51:20,940
that she spent the whole interview blurring together.
1171
00:51:22,060 --> 00:51:23,920
Is autism a scientifically valid construct?
1172
00:51:24,150 --> 00:51:25,000
The answer is,
1173
00:51:25,210 --> 00:51:26,000
to the best of our knowledge,
1174
00:51:26,160 --> 00:51:26,660
yes.
1175
00:51:27,040 --> 00:51:29,080
By the same standard psychology uses
1176
00:51:29,350 --> 00:51:31,120
for every other construct it has.
1177
00:51:31,960 --> 00:51:35,880
And the standard her own theories struggled to meet.
1178
00:51:37,520 --> 00:51:38,560
Question two is,
1179
00:51:39,130 --> 00:51:41,020
who should the state pay to support?
1180
00:51:41,480 --> 00:51:44,140
And that is a political fight, a real and hard one,
1181
00:51:44,940 --> 00:51:46,400
but it's not answered by a brain scan
1182
00:51:46,560 --> 00:51:48,940
and it's not answered by deleting people from a diagnosis.
1183
00:51:49,520 --> 00:51:50,900
Why Yuta Frith is getting so involved
1184
00:51:50,940 --> 00:51:54,520
in this funding question and the politics of disability
1185
00:51:56,480 --> 00:51:58,060
at such a late stage in her life,
1186
00:51:58,240 --> 00:51:59,280
I do not know.
1187
00:52:00,220 --> 00:52:02,340
And in the end, she tells you all of this herself.
1188
00:52:04,180 --> 00:52:05,700
Right at the close, the journalist asks
1189
00:52:05,880 --> 00:52:07,840
whether we are at a turning point in understanding autism
1190
00:52:08,060 --> 00:52:10,360
and she does something I actually admire.
1191
00:52:10,840 --> 00:52:12,280
She refuses to oversell it.
1192
00:52:12,500 --> 00:52:13,380
I'm not really,
1193
00:52:14,040 --> 00:52:19,240
I don't want to pretend that I actually know anything
1194
00:52:19,460 --> 00:52:25,940
or have the kind of facts that I could be sure about.
1195
00:52:26,090 --> 00:52:27,580
I think it's all in flux,
1196
00:52:28,540 --> 00:52:29,040
sadly,
1197
00:52:29,160 --> 00:52:31,220
but that's science.
1198
00:52:32,820 --> 00:52:35,040
It's all in flux, I cannot be certain of anything.
1199
00:52:35,900 --> 00:52:36,400
And also,
1200
00:52:36,610 --> 00:52:37,820
this category should be broken up.
1201
00:52:37,880 --> 00:52:39,460
These people removed, the label retired.
1202
00:52:39,630 --> 00:52:44,000
You cannot build a demolition order on a foundation
1203
00:52:44,020 --> 00:52:45,420
you've told us is still moving.
1204
00:52:45,920 --> 00:52:49,720
Do you think this is a critical turning point for our understanding?
1205
00:52:50,080 --> 00:52:53,680
Or we're nearing a turning point in our understanding of autism once again?
1206
00:52:54,100 --> 00:52:55,440
I think we're at a low point,
1207
00:52:55,980 --> 00:52:57,020
not at a turning point.
1208
00:52:57,640 --> 00:53:04,440
I think it could be a time where we have to really rethink the whole idea.
1209
00:53:05,360 --> 00:53:09,020
And as far as I can see, nobody is really brave enough to do that.
1210
00:53:09,260 --> 00:53:12,220
Surely the problem is that we've gated help,
1211
00:53:13,300 --> 00:53:14,420
any sort of assistance,
1212
00:53:15,560 --> 00:53:17,160
behind a diagnosis
1213
00:53:17,880 --> 00:53:19,340
that people have to fight for,
1214
00:53:19,480 --> 00:53:20,940
for years on a waiting list,
1215
00:53:21,840 --> 00:53:22,880
just to be believed.
1216
00:53:23,200 --> 00:53:26,060
Frith looking at that mess describes the problem is the label.
1217
00:53:26,780 --> 00:53:28,180
I think the problem is the gate.
1218
00:53:29,080 --> 00:53:29,740
And so finally,
1219
00:53:30,520 --> 00:53:31,020
the word,
1220
00:53:31,280 --> 00:53:34,080
the one that I asked you to hold right at the start.
1221
00:53:34,940 --> 00:53:37,600
She said it was dangerous to cling to the autism label.
1222
00:53:38,680 --> 00:53:41,680
I do not think the dangerous thing is a late diagnosed woman
1223
00:53:41,960 --> 00:53:43,060
finding a word that explains her life.
1224
00:53:43,280 --> 00:53:46,040
I think the most dangerous thing is telling a quarter
1225
00:53:46,050 --> 00:53:47,960
of a million people stuck on a waiting list
1226
00:53:49,340 --> 00:53:51,380
that the word they are waiting for is meaningless
1227
00:53:52,060 --> 00:53:54,180
in the middle of a fight over whether to fund them at all.
1228
00:53:54,740 --> 00:53:56,560
The danger was never the label,
1229
00:53:57,330 --> 00:53:58,780
the danger is the withdrawal.
1230
00:54:00,120 --> 00:54:03,100
The danger is careless statements from ivory towers.
1231
00:54:04,200 --> 00:54:07,320
That is why the title of this video says what it says,
1232
00:54:07,660 --> 00:54:09,400
not because Uta is a bad person,
1233
00:54:09,620 --> 00:54:10,960
she clearly is not.
1234
00:54:11,580 --> 00:54:13,920
She's a brilliant one who did real good
1235
00:54:14,140 --> 00:54:17,280
and has talked herself into a genuinely dangerous place.
1236
00:54:17,840 --> 00:54:20,200
Being brilliant has never once stopped anyone
1237
00:54:20,330 --> 00:54:22,340
from being dangerously wrong.
1238
00:54:22,820 --> 00:54:24,400
If this video helps something stick into place,
1239
00:54:24,910 --> 00:54:25,820
stim the subscribe button.
1240
00:54:26,280 --> 00:54:27,700
It genuinely tells the algorithm
1241
00:54:27,770 --> 00:54:29,140
that this is worth someone's time
1242
00:54:29,620 --> 00:54:31,260
and to show it to the next person who needs it
1243
00:54:31,380 --> 00:54:33,400
and leave a comment telling me where you landed,
1244
00:54:33,580 --> 00:54:35,180
even if you think I got something wrong,
1245
00:54:35,620 --> 00:54:37,079
especially if you think I got something wrong
1246
00:54:37,100 --> 00:54:38,580
because that's half the fun.
1247
00:54:38,760 --> 00:54:41,260
And if you want to see where all this started,
1248
00:54:41,760 --> 00:54:44,140
I made an earlier video on her first round of comments,
1249
00:54:44,860 --> 00:54:47,240
the calmer one before she doubled down.
1250
00:54:48,460 --> 00:54:50,380
And that one is the one to watch next,
1251
00:54:50,620 --> 00:54:51,120
it's right.
1252
00:54:51,320 --> 00:54:53,060
Also in the comments is a deep dive
1253
00:54:53,220 --> 00:54:54,220
on the four subtype studies,
1254
00:54:54,360 --> 00:54:56,640
the parent reported safari funded ones we talked about.
1255
00:54:57,200 --> 00:54:58,000
That's right here too.
1256
00:54:58,120 --> 00:55:00,240
And it goes a lot deeper into the eugenics adjacent
1257
00:55:00,640 --> 00:55:01,900
end of the swimming pool than I did today.
1258
00:55:02,160 --> 00:55:02,920
And if you'd like more of this
1259
00:55:03,540 --> 00:55:05,740
and you would like to help me to keep making it,
1260
00:55:05,920 --> 00:55:07,720
I do have a Patreon and I wanna be really clear
1261
00:55:07,720 --> 00:55:09,560
about how it works because I never want anyone
1262
00:55:09,620 --> 00:55:10,300
to feel pressured.
1263
00:55:10,700 --> 00:55:12,900
Everything I make for YouTube stays free always.
1264
00:55:13,560 --> 00:55:16,340
What it actually pays for is all the unglamorous stuff,
1265
00:55:16,480 --> 00:55:17,020
the software,
1266
00:55:17,480 --> 00:55:18,500
the Yorkshire tea,
1267
00:55:18,900 --> 00:55:19,700
the music,
1268
00:55:19,880 --> 00:55:20,380
the footage,
1269
00:55:20,480 --> 00:55:21,000
the licenses,
1270
00:55:21,440 --> 00:55:21,940
cat biscuits,
1271
00:55:22,120 --> 00:55:22,640
the servers,
1272
00:55:22,940 --> 00:55:24,620
and genuinely enormous numbers of hours
1273
00:55:25,080 --> 00:55:26,460
that a video like this one swallows.
1274
00:55:27,120 --> 00:55:29,920
A long form essay like today is the better part
1275
00:55:29,920 --> 00:55:31,980
of a working week and I've been doing most of the writing
1276
00:55:32,020 --> 00:55:34,120
for this video with one working eye.
1277
00:55:34,780 --> 00:55:35,500
if you've missed it.
1278
00:55:36,170 --> 00:55:38,020
I made two short films on the process
1279
00:55:38,300 --> 00:55:40,020
of my cataract diagnosis and surgery
1280
00:55:40,230 --> 00:55:41,800
from my perspective as an autistic adult.
1281
00:55:42,370 --> 00:55:43,520
And there is a lot in there,
1282
00:55:43,690 --> 00:55:44,500
if that interests you,
1283
00:55:44,840 --> 00:55:46,260
those videos are in the description below.
1284
00:55:46,860 --> 00:55:49,860
The lowest tier is the kitten tier at four US dollars a month.
1285
00:55:50,060 --> 00:55:51,420
And the main thing it gets you,
1286
00:55:51,530 --> 00:55:53,980
other than a selection of the finest exclusive videos,
1287
00:55:54,500 --> 00:55:55,040
is a really,
1288
00:55:55,280 --> 00:55:56,560
it's not really a perk,
1289
00:55:56,780 --> 00:55:57,620
it's a place.
1290
00:55:58,240 --> 00:56:00,260
It's a key to the scratching post discord community.
1291
00:56:00,780 --> 00:56:03,260
It is, and I say this as a man with 16 cats
1292
00:56:03,280 --> 00:56:04,920
and a professional interest in cozy.
1293
00:56:05,700 --> 00:56:06,680
One of the kindest,
1294
00:56:07,040 --> 00:56:08,460
warmest corners of the internet I know.
1295
00:56:08,580 --> 00:56:10,700
Hundreds of neurodivergence, and some neurotypicals too,
1296
00:56:11,240 --> 00:56:12,100
being gentle with each other,
1297
00:56:12,400 --> 00:56:12,900
sharing memes,
1298
00:56:13,240 --> 00:56:13,740
sharing wins,
1299
00:56:13,920 --> 00:56:15,500
sharing the odd bad day.
1300
00:56:15,740 --> 00:56:19,200
Plus around four exclusive members only live streams a month.
1301
00:56:19,540 --> 00:56:21,040
There is no expectation that you talk,
1302
00:56:21,360 --> 00:56:23,380
plenty of people just lurk and warm their hands on it,
1303
00:56:23,660 --> 00:56:24,620
and that is completely fine.
1304
00:56:24,980 --> 00:56:26,100
Your name goes into the credits
1305
00:56:26,240 --> 00:56:26,920
at the end of these videos,
1306
00:56:27,560 --> 00:56:28,220
at the food bowl,
1307
00:56:28,540 --> 00:56:29,260
sorry, at the credits,
1308
00:56:29,560 --> 00:56:30,820
unless you would rather I didn't,
1309
00:56:31,240 --> 00:56:32,280
in which case just tell me.
1310
00:56:32,620 --> 00:56:34,780
And if Patreon is not in the budget this month or any month,
1311
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please do not give it a second thought.
1312
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The single best way to support me costs nothing at all.
1313
00:56:39,160 --> 00:56:40,700
Watch the videos I'll be uploading to YouTube.
1314
00:56:41,180 --> 00:56:43,620
Stim the subscribe button and leave a comment
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and tap the like.
1316
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That helps more than you know and is free.
1317
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Please be kind to the late identified autistic person
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in your life,
1319
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even if that person is you,
1320
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especially if that person is you.
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And I'll see you in the next one.
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Bye for now.105501
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