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These are the user uploaded subtitles that are being translated: 1 00:00:00,020 --> 00:00:02,360 Wouldn't it be nice to say, no, there's nothing wrong with you. 2 00:00:02,710 --> 00:00:03,210 And in fact, you know, 3 00:00:05,000 --> 00:00:09,960 that we need exactly your type of personality in order to be, 4 00:00:10,300 --> 00:00:14,120 you know, creative and inventive as a community. 5 00:00:14,400 --> 00:00:15,240 That sounds lovely, 6 00:00:15,400 --> 00:00:15,900 doesn't it? 7 00:00:16,100 --> 00:00:18,960 It's the sort of thing you'd want someone to say to you on a bad day, 8 00:00:19,320 --> 00:00:20,560 to cheer you up a bit. 9 00:00:21,280 --> 00:00:23,240 But let me tell you what she means by it. 10 00:00:23,920 --> 00:00:25,880 She means that people like me, 11 00:00:26,300 --> 00:00:28,140 late identified autistic adults, 12 00:00:28,760 --> 00:00:29,320 like you, 13 00:00:30,020 --> 00:00:34,420 The ones who can hold a conversation and get the joke and mask our way through a birthday party perhaps. 14 00:00:34,860 --> 00:00:37,360 We should be taken out from the autism diagnosis she thinks. 15 00:00:38,440 --> 00:00:42,420 Reclassified as having an interesting personality instead of a neurotype. 16 00:00:43,280 --> 00:00:48,300 She believes the kindest thing she can do is to look a late diagnosed person in the eye 17 00:00:48,940 --> 00:00:51,960 and tell them that there is nothing wrong with them and in the same breath 18 00:00:52,620 --> 00:00:58,220 take away the one word, the one label that finally makes the whole life make sense. 19 00:00:59,100 --> 00:01:02,820 This is not some angry bloke with a ring light and a grievance. 20 00:01:03,440 --> 00:01:09,800 This is Dame Uta Frith, one of the most important autism researchers who has ever lived. 21 00:01:10,400 --> 00:01:14,760 And in May she sat down with a new scientist and made the case that the autism spectrum has, 22 00:01:15,260 --> 00:01:17,780 in her words, "come to its collapse". 23 00:01:18,460 --> 00:01:19,580 She used another word in that interview, 24 00:01:19,760 --> 00:01:22,880 she said it was dangerous to cling to the autism label. 25 00:01:23,380 --> 00:01:27,120 Now hold that word because by the end of this video I'll be giving it back to her. 26 00:01:27,900 --> 00:01:31,300 So today we are taking her argument apart, 27 00:01:31,580 --> 00:01:34,880 all of it, every piece, and I'm going to be scrupulously 28 00:01:35,080 --> 00:01:37,760 fair to her first because she has earned that, 29 00:01:38,020 --> 00:01:40,560 and then I'm going to put her arguments in the 30 00:01:40,660 --> 00:01:41,160 litter box, 31 00:01:41,300 --> 00:01:42,880 I'm going to feed them to the tigers, 32 00:01:43,580 --> 00:01:44,300 that sort of thing. 33 00:01:44,460 --> 00:01:44,960 Anyway, 34 00:01:45,000 --> 00:01:45,620 hey friends, 35 00:01:45,860 --> 00:01:46,300 I'm Mike, 36 00:01:46,300 --> 00:01:47,640 a late identified autistic adult. 37 00:01:48,000 --> 00:01:50,420 Grab a cup of tea for this particular video, 38 00:01:50,580 --> 00:01:51,840 I have got a huge 39 00:01:51,860 --> 00:01:52,640 flask of tea, 40 00:01:52,800 --> 00:01:55,740 acquire a cat or a plushie and settle in, 41 00:01:55,890 --> 00:01:57,500 because this one is a big one and 42 00:01:57,500 --> 00:01:58,500 it matters more than most. 43 00:01:58,970 --> 00:01:59,780 New Scientist then. 44 00:02:00,430 --> 00:02:01,140 If you don't know it, 45 00:02:01,340 --> 00:02:04,960 it is one of the oldest and most widely read popular science magazines 46 00:02:05,740 --> 00:02:06,240 in the world. 47 00:02:06,620 --> 00:02:12,200 It's been going since the 1950s, it is not a tabloid and it is not a scientific journal. 48 00:02:12,940 --> 00:02:14,780 It sits sort of somewhere in the middle. 49 00:02:15,240 --> 00:02:18,800 It's the place a curious person might go to find out what scientists are saying. 50 00:02:19,560 --> 00:02:22,800 When something runs in New Scientist, it carries a certain weight. 51 00:02:23,740 --> 00:02:25,480 People tend to take it as fact, 52 00:02:25,780 --> 00:02:27,780 as settled, or at least close to it. 53 00:02:28,080 --> 00:02:29,340 And in May they ran a long, 54 00:02:29,540 --> 00:02:30,120 friendly, 55 00:02:30,300 --> 00:02:32,720 admiring interview with Dame Uta Frith. 56 00:02:33,030 --> 00:02:34,480 We'll get to exactly who she is in a moment, 57 00:02:34,700 --> 00:02:36,740 but the short version first is that she is 58 00:02:36,910 --> 00:02:40,380 one of the most influential autism researchers who has ever lived. 59 00:02:40,660 --> 00:02:42,080 Genuinely a giant in the field. 60 00:02:42,400 --> 00:02:44,980 So this is not a fringe figure in a fringe outlet. 61 00:02:45,280 --> 00:02:47,200 This is one of the biggest names in autism science, 62 00:02:47,680 --> 00:02:49,060 in one of the biggest science magazines 63 00:02:49,640 --> 00:02:50,300 in the world. 64 00:02:51,340 --> 00:02:53,640 And here is what she used that platform to say: 65 00:02:53,840 --> 00:02:55,240 that the autism spectrum, 66 00:02:55,480 --> 00:02:56,220 the whole idea 67 00:02:56,320 --> 00:02:56,820 of it, 68 00:02:57,260 --> 00:02:59,160 has, in her words, come to its collapse. 69 00:03:00,000 --> 00:03:01,440 The people getting diagnosed today, 70 00:03:01,780 --> 00:03:02,720 especially women, 71 00:03:03,000 --> 00:03:03,860 especially adults, 72 00:03:04,140 --> 00:03:05,100 have, and again her 73 00:03:05,300 --> 00:03:09,840 words, absolutely no overlap with what she considers to be real autism. 74 00:03:10,600 --> 00:03:11,100 TM. 75 00:03:11,680 --> 00:03:12,720 So why am I making this video? 76 00:03:13,740 --> 00:03:14,240 Three reasons. 77 00:03:14,920 --> 00:03:15,260 One, 78 00:03:15,260 --> 00:03:19,620 I think that she's wrong and not wrong in some vague way that people might say on the internet, 79 00:03:19,690 --> 00:03:20,400 oh, you're wrong, 80 00:03:20,620 --> 00:03:21,920 you know, without specifying reasons, 81 00:03:22,880 --> 00:03:28,880 but wrong in a way that I can show you piece by piece using her own words and the actual evidence. 82 00:03:30,200 --> 00:03:31,900 Two, because of who she is, 83 00:03:32,140 --> 00:03:33,360 where she said it, 84 00:03:33,520 --> 00:03:35,420 this is not going to stay in a magazine interview. 85 00:03:35,880 --> 00:03:39,680 It's going to move through teachers and clinicians and policymakers and doctors, 86 00:03:40,080 --> 00:03:40,580 etc. 87 00:03:40,900 --> 00:03:45,700 at the exact moment that this country is deciding how much support autistic people are allowed to have. 88 00:03:46,579 --> 00:03:47,260 And three, 89 00:03:47,560 --> 00:03:49,820 because I am one of the people that she's talking about. 90 00:03:50,100 --> 00:03:51,300 I am late identified, 91 00:03:51,940 --> 00:03:52,580 I can speak, 92 00:03:53,140 --> 00:03:55,480 and the kind that she thinks doesn't really count. 93 00:03:55,680 --> 00:03:58,220 I've got a horse in this race and I'm not going to pretend otherwise. 94 00:03:58,680 --> 00:04:00,240 That's my bias for what it's worth. 95 00:04:00,480 --> 00:04:01,060 If you are autistic, 96 00:04:01,460 --> 00:04:03,280 you owe Uta Frith a debt, 97 00:04:03,560 --> 00:04:06,540 and I want to say that plainly before I disagree with a single word. 98 00:04:07,100 --> 00:04:13,560 When Frith started out back in the 1960s, the going theory for what caused autism was the refrigerator mother. 99 00:04:14,160 --> 00:04:14,700 The idea, 100 00:04:15,100 --> 00:04:16,480 and I do wish I was inventing this, 101 00:04:16,700 --> 00:04:19,739 was that children were autistic because their mothers were cold. 102 00:04:20,540 --> 00:04:22,720 They were emotionally frozen and unavailable, 103 00:04:22,960 --> 00:04:23,460 you know, 104 00:04:23,580 --> 00:04:24,120 unloving. 105 00:04:25,020 --> 00:04:29,000 So you did not just have a child who was autistic and struggling. 106 00:04:29,580 --> 00:04:34,200 You had a mother who had been told it was all her fault because they didn't love the child enough. 107 00:04:34,520 --> 00:04:36,340 They didn't love hard enough. They were too cold. 108 00:04:36,460 --> 00:04:37,240 they're frigid, 109 00:04:37,500 --> 00:04:40,360 you know. Friff helped end that in a big way. 110 00:04:40,620 --> 00:04:42,520 She sat with those mothers and she 111 00:04:42,760 --> 00:04:45,160 looked at the evidence and she said no, 112 00:04:45,480 --> 00:04:46,320 this is biological, 113 00:04:46,650 --> 00:04:47,340 this is the brain. 114 00:04:47,670 --> 00:04:48,500 That mattered and 115 00:04:48,500 --> 00:04:50,120 it took a lot of nerve. 116 00:04:50,380 --> 00:04:54,080 She went on to co-author the famous Sally Ann experiment, 117 00:04:54,680 --> 00:04:55,180 you know, 118 00:04:55,230 --> 00:04:58,580 the one that gave us the idea of theory of mind deficits in autism. 119 00:04:59,040 --> 00:05:00,839 She brought Hans Asperger's 120 00:05:00,860 --> 00:05:02,580 work to the English-speaking world. 121 00:05:02,780 --> 00:05:04,600 She literally translated it. 122 00:05:04,920 --> 00:05:07,220 And she taught, mentored, or shaped 123 00:05:07,300 --> 00:05:11,060 a huge slice of the autism researchers currently working today. 124 00:05:11,380 --> 00:05:13,120 Simon Baron-Cohen, the chap whose 125 00:05:13,340 --> 00:05:18,740 name is on half of pretty much all autism research that you've ever heard of, was her PhD student. 126 00:05:19,820 --> 00:05:21,580 So when I tell you that I think Uta Frith is wrong, 127 00:05:21,820 --> 00:05:23,940 understand what I'm doing here. Just sort of like 128 00:05:24,100 --> 00:05:26,740 swatting away some sort of crank with a podcast. 129 00:05:27,060 --> 00:05:29,840 I am disagreeing with one of the architects of the 130 00:05:29,840 --> 00:05:30,620 entire field. 131 00:05:31,100 --> 00:05:33,780 That is a heavy thing to do and I do not do it lightly, 132 00:05:34,060 --> 00:05:34,420 which is 133 00:05:34,420 --> 00:05:36,640 probably why this video is going to be very very long. 134 00:05:36,900 --> 00:05:38,320 Before I show you where 135 00:05:38,320 --> 00:05:41,040 she goes wrong I'm gonna show you where she's right, 136 00:05:41,540 --> 00:05:43,020 properly right, because if I 137 00:05:43,100 --> 00:05:45,300 can't do that I've got no business making this video. 138 00:05:45,980 --> 00:05:48,340 Four things on all four she 139 00:05:48,460 --> 00:05:49,100 has a point. 140 00:05:49,860 --> 00:05:50,660 Number one: 141 00:05:51,220 --> 00:05:53,060 that autism is a wildly, 142 00:05:53,260 --> 00:05:55,460 almost absurdly varied. 143 00:05:56,180 --> 00:05:57,300 A non 144 00:05:57,400 --> 00:06:01,400 speaking autistic person who needs round-the-clock care and an autistic 145 00:06:01,540 --> 00:06:04,860 adult holding down a job while quietly white-knuckling their way through every 146 00:06:05,040 --> 00:06:08,660 meeting are both on paper the same diagnosis, 147 00:06:09,000 --> 00:06:09,840 same label. 148 00:06:10,280 --> 00:06:10,800 Now that's an 149 00:06:10,960 --> 00:06:12,600 enormous range to hang on one word. 150 00:06:13,000 --> 00:06:15,000 Researchers like Lombardo and Mandeli 151 00:06:15,120 --> 00:06:17,340 have written exactly this: 152 00:06:18,560 --> 00:06:22,300 that autism is heterogeneous at every level from the 153 00:06:22,460 --> 00:06:23,900 genome all the way up to behavior. 154 00:06:24,600 --> 00:06:25,580 Frith is not imagining it, 155 00:06:25,880 --> 00:06:26,440 she's not lying 156 00:06:26,440 --> 00:06:26,980 when she says it, 157 00:06:27,160 --> 00:06:28,000 it is real. 158 00:06:28,580 --> 00:06:29,420 Number two: 159 00:06:29,680 --> 00:06:32,800 there is a very real fear that people with the very 160 00:06:33,040 --> 00:06:35,020 highest support needs get forgotten. 161 00:06:35,580 --> 00:06:36,640 The non-speaking, 162 00:06:37,060 --> 00:06:39,000 the ones who need full-time care. 163 00:06:39,240 --> 00:06:39,960 In public 164 00:06:40,140 --> 00:06:43,100 conversation increasingly shaped by those of us who are verbal and online, 165 00:06:43,340 --> 00:06:43,900 and let's be honest, 166 00:06:44,600 --> 00:06:49,820 never knowingly under-opinionated, there is a worry that their needs might slide down the agenda. 167 00:06:50,100 --> 00:06:53,600 Now, I have my problems with how that worry gets packaged online, 168 00:06:54,440 --> 00:06:55,460 and I'll get to it later, 169 00:06:56,040 --> 00:06:57,360 properly because it matters. 170 00:06:57,720 --> 00:06:59,180 If you want to know now the TLDR, 171 00:06:59,500 --> 00:07:00,920 perhaps watch my levels video 172 00:07:01,640 --> 00:07:02,300 linked above my head. 173 00:07:03,080 --> 00:07:05,880 But the fear underneath it is fair. 174 00:07:06,120 --> 00:07:07,520 High support needs autistic people 175 00:07:07,760 --> 00:07:10,100 deserved not to be an afterthought. 176 00:07:11,460 --> 00:07:14,240 What I will not accept and what I will not spend this video 177 00:07:14,340 --> 00:07:19,440 dismantling is the idea that the way to protect them is to throw the rest of us out of the category. 178 00:07:20,240 --> 00:07:24,600 Those two things have nothing at all to do with each other and she keeps acting as though they are 179 00:07:24,600 --> 00:07:25,440 the same move. 180 00:07:25,920 --> 00:07:26,900 We'll get to it. 181 00:07:27,760 --> 00:07:30,000 At the start of this video there is an awful lot of we'll get to it, 182 00:07:30,120 --> 00:07:31,340 but I promise you we will. 183 00:07:31,900 --> 00:07:32,520 Number three: 184 00:07:32,800 --> 00:07:36,060 she is right that there is no biological test for autism. 185 00:07:36,680 --> 00:07:37,420 There is no blood test, 186 00:07:37,640 --> 00:07:38,600 no brain scan, 187 00:07:38,780 --> 00:07:41,600 no single gene that you can point out and say "there, 188 00:07:42,200 --> 00:07:42,700 that's the one, 189 00:07:43,320 --> 00:07:44,160 that's the autism gene, 190 00:07:44,480 --> 00:07:46,600 that's the autism region of the brain" 191 00:07:46,840 --> 00:07:47,340 or whatever. 192 00:07:47,760 --> 00:07:51,960 We diagnose it by watching behaviour and listening to a life. 193 00:07:52,500 --> 00:07:53,000 And yes, 194 00:07:53,500 --> 00:07:54,880 that is scientifically awkward. 195 00:07:55,480 --> 00:07:59,180 It would be tidier if they were a marker and you could have a blood test. 196 00:08:00,140 --> 00:08:00,640 There is not. 197 00:08:02,640 --> 00:08:03,140 Four. 198 00:08:04,260 --> 00:08:05,600 That resources are finite. 199 00:08:06,500 --> 00:08:07,600 Waiting lists are real. 200 00:08:08,020 --> 00:08:11,920 The money for support is not infinite and working out who gets what is hard, 201 00:08:12,460 --> 00:08:15,560 it's a material and it's a very miserable problem. 202 00:08:17,580 --> 00:08:19,700 She's not wrong that the system is straining. 203 00:08:20,040 --> 00:08:22,440 This is the thin strip of solid ground. 204 00:08:23,360 --> 00:08:23,780 That 205 00:08:23,780 --> 00:08:25,720 is the only thing that she is standing on. 206 00:08:25,920 --> 00:08:27,300 In May 2026, 207 00:08:27,530 --> 00:08:29,180 New Scientist ran a long interview 208 00:08:29,360 --> 00:08:33,539 with Frith, written by the journalist Thomas Lewton and filmed by David Stock. 209 00:08:33,880 --> 00:08:34,599 A sit-down 210 00:08:34,599 --> 00:08:35,380 in her living room. 211 00:08:36,090 --> 00:08:36,590 Tea. 212 00:08:37,060 --> 00:08:38,300 Homemade macaroons. 213 00:08:38,880 --> 00:08:40,020 Model trains on the shelves. 214 00:08:40,479 --> 00:08:42,239 Very quiet and 215 00:08:42,639 --> 00:08:43,139 uncivilised. 216 00:08:43,320 --> 00:08:48,400 And it was not the first time because back in March she had said much the same thing to the TES 217 00:08:48,500 --> 00:08:50,160 or the Times Educational Supplement. 218 00:08:50,640 --> 00:08:54,360 That's a magazine that goes out to school teachers under the headline 219 00:08:54,700 --> 00:08:58,840 "Why I no longer think autism is a spectrum". Hold that detail, 220 00:08:59,100 --> 00:08:59,700 teachers, 221 00:09:00,120 --> 00:09:01,400 we're going to come back to it. 222 00:09:01,400 --> 00:09:03,140 If you're taking notes, and I know some of you will be, 223 00:09:03,360 --> 00:09:06,420 we'll close all of those loops towards the end. 224 00:09:07,380 --> 00:09:09,080 Here is the heart of it in her own words. 225 00:09:10,100 --> 00:09:15,540 It just becomes a question of why one should cling to the label autism. 226 00:09:16,200 --> 00:09:25,080 And I would say it's dangerous to do that because it completely ignores the profound autism, 227 00:09:25,240 --> 00:09:27,640 which has these very severe communication difficulties. 228 00:09:27,840 --> 00:09:34,240 So I'm still not understanding what the essential problem with calling both autism is. 229 00:09:34,320 --> 00:09:37,600 Is it just that you see absolutely no overlap? 230 00:09:37,760 --> 00:09:38,780 Absolutely no overlap, 231 00:09:39,400 --> 00:09:39,900 yes. 232 00:09:41,060 --> 00:09:42,440 And I'm really, 233 00:09:42,800 --> 00:09:43,320 in a sense, 234 00:09:43,540 --> 00:09:49,620 completely astonished that people want to cling to this label 235 00:09:50,400 --> 00:09:52,520 when it, you know, has outlived its purpose. 236 00:09:53,280 --> 00:09:56,100 And you really should look for new labels and new 237 00:09:56,440 --> 00:09:56,840 categories, 238 00:09:56,840 --> 00:09:57,460 new ideas. 239 00:09:58,040 --> 00:09:58,600 Collapsed. 240 00:09:58,940 --> 00:09:59,920 No overlap. 241 00:10:00,460 --> 00:10:01,880 Outlived its purpose. 242 00:10:02,200 --> 00:10:04,220 Nobody reaches for language like 243 00:10:04,360 --> 00:10:07,860 this when they want to tidy a category up. They reach for it when they want it gone. 244 00:10:08,440 --> 00:10:11,300 Now you might be thinking, so what? An academic has an opinion, 245 00:10:11,580 --> 00:10:13,000 academics disagree for a living, 246 00:10:13,510 --> 00:10:16,100 why make a 40 minute video about one interview? 247 00:10:16,380 --> 00:10:18,360 Because of who she is and because of where 248 00:10:18,370 --> 00:10:18,900 this lands. 249 00:10:19,740 --> 00:10:21,760 If I were to say the spectrum has collapsed, 250 00:10:22,000 --> 00:10:22,900 nothing happens. 251 00:10:23,320 --> 00:10:24,500 I am a bloke 252 00:10:24,510 --> 00:10:26,960 on YouTube with 16 cats and a strong opinion. 253 00:10:27,480 --> 00:10:30,240 But when Uta Frith says it, it does not stay 254 00:10:30,330 --> 00:10:30,830 in a magazine. 255 00:10:31,420 --> 00:10:31,920 It travels, 256 00:10:32,100 --> 00:10:32,840 it gets cited, 257 00:10:33,190 --> 00:10:34,480 it ends up in policy submissions, 258 00:10:34,690 --> 00:10:35,199 in government 259 00:10:35,220 --> 00:10:39,580 reviews in the mouths of people deciding how much support an autistic child is allowed 260 00:10:39,650 --> 00:10:40,150 to have. 261 00:10:40,280 --> 00:10:42,540 Her name carries weight and weight moves things. 262 00:10:43,400 --> 00:10:44,900 And remember where she said it first: 263 00:10:45,280 --> 00:10:46,860 the TES. 264 00:10:47,470 --> 00:10:48,000 Two teachers. 265 00:10:48,650 --> 00:10:52,840 At the exact moment the UK is fighting over special educational needs support and whether 266 00:10:52,840 --> 00:10:53,460 to cut it back. 267 00:10:54,000 --> 00:10:54,700 Right now in England, 268 00:10:55,110 --> 00:10:58,080 around a quarter of a million people are sitting on a waiting list 269 00:10:58,340 --> 00:10:59,680 just to be assessed for autism. 270 00:11:00,360 --> 00:11:00,860 Not treated, 271 00:11:01,080 --> 00:11:01,820 assessed. 272 00:11:02,220 --> 00:11:07,220 and roughly 9 in 10 of them have been waiting longer than the period the NICE guidelines 273 00:11:07,530 --> 00:11:08,600 say that anyone should. 274 00:11:09,190 --> 00:11:13,200 The National Autistic Society puts the average wait at around 17 months. 275 00:11:14,290 --> 00:11:15,180 At the same time, 276 00:11:15,430 --> 00:11:16,900 the number of education, 277 00:11:17,220 --> 00:11:20,800 health and care plans citing autism has nearly 278 00:11:21,180 --> 00:11:22,540 tripled in a decade 279 00:11:23,250 --> 00:11:27,240 from around 54,000 to 149,000, 280 00:11:27,400 --> 00:11:28,780 according to the Institute for Fiscal 281 00:11:29,020 --> 00:11:29,520 Studies. 282 00:11:30,480 --> 00:11:35,860 one rise accounts for 40% of the entire increase in EHCPs across the board. 283 00:11:36,070 --> 00:11:38,740 I know what some of you are thinking because it is the obvious objection. 284 00:11:39,300 --> 00:11:39,800 That is, 285 00:11:40,070 --> 00:11:42,840 the same rising number that Frith reaches for. 286 00:11:43,530 --> 00:11:45,220 She looks at that climb and sees a bubble, 287 00:11:45,490 --> 00:11:45,990 a fashion, 288 00:11:46,100 --> 00:11:48,480 people being swept in who do not belong. 289 00:11:49,240 --> 00:11:53,340 So why do I get to look at the identical graph and see something completely different? 290 00:11:54,480 --> 00:11:54,980 Fair question, 291 00:11:55,360 --> 00:11:56,140 and here is the answer. 292 00:11:56,840 --> 00:12:01,680 When you widen the criteria and train more clinicians and finally start looking for autism in 293 00:12:02,200 --> 00:12:04,960 women particularly and adults instead of just little boys, 294 00:12:05,200 --> 00:12:06,960 the number going up is exactly what 295 00:12:07,040 --> 00:12:07,800 you would predict. 296 00:12:08,660 --> 00:12:09,520 This is not an epidemic, 297 00:12:09,760 --> 00:12:10,740 it is not a surprise, 298 00:12:11,340 --> 00:12:13,380 it's a backlog clearing if anything. 299 00:12:14,400 --> 00:12:20,740 The boring explanation is that detection catching up with reality fits the data at least as well as 300 00:12:20,880 --> 00:12:26,760 hers and does not require you to believe that hundreds of thousands of people and their clinicians 301 00:12:26,780 --> 00:12:28,240 collectively kidding themselves. 302 00:12:28,820 --> 00:12:32,000 A quarter of a million people queuing for a door that barely 303 00:12:32,360 --> 00:12:32,720 opens, 304 00:12:32,720 --> 00:12:35,660 a support system buckling under pressure, 305 00:12:35,900 --> 00:12:38,680 a government hunting for reasons to tighten the 306 00:12:38,960 --> 00:12:39,460 criteria. 307 00:12:40,180 --> 00:12:44,800 And into that room walks one of the most respected autism researchers alive to announce 308 00:12:45,000 --> 00:12:46,760 that the whole category might just be meaningless. 309 00:12:47,120 --> 00:12:49,700 Now do you see why she is entitled to her opinion 310 00:12:49,920 --> 00:12:51,000 and doesn't quite cover it? 311 00:12:51,240 --> 00:12:54,440 There are two more things that she said that I keep circling back to. 312 00:12:54,540 --> 00:12:57,780 We have to really rethink the whole idea. 313 00:12:58,810 --> 00:13:02,320 And as far as I can see, nobody is really brave enough to do that. 314 00:13:02,780 --> 00:13:05,240 The first is that she casts herself as the brave one, 315 00:13:05,550 --> 00:13:07,740 the lone voice willing to say the unsayable. 316 00:13:08,300 --> 00:13:10,540 She says that she's the only one brave enough to tell the truth. 317 00:13:11,190 --> 00:13:13,080 She says that the label is the dangerous thing. 318 00:13:13,340 --> 00:13:16,540 So let's test both of those properly against the 319 00:13:16,670 --> 00:13:17,220 actual science. 320 00:13:17,840 --> 00:13:18,460 And to do that, 321 00:13:18,630 --> 00:13:23,080 we have to start with the single idea her entire argument is built 322 00:13:23,120 --> 00:13:23,620 on 323 00:13:24,090 --> 00:13:29,840 one idea from 1934 that her own profession quietly threw in the bin about 50 years ago. 324 00:13:30,480 --> 00:13:32,400 Here is the load-bearing wall of Frith's whole case. 325 00:13:33,100 --> 00:13:36,280 Pull this out and the rest comes down, so watch closely. 326 00:13:37,100 --> 00:13:38,120 She almost says it in passing. 327 00:13:39,330 --> 00:13:42,420 The interviewer puts it to her that autistic women often mask, 328 00:13:42,850 --> 00:13:45,140 and that they camouflage their autism to get through the day, 329 00:13:45,400 --> 00:13:47,160 and this is why so many were missed. 330 00:13:47,810 --> 00:13:48,740 And here is her answer: 331 00:13:49,120 --> 00:13:51,840 And as researchers like Gina Rippon have said, 332 00:13:51,860 --> 00:13:58,160 that there are coping strategies that autistic women have because of the pressure to maybe 333 00:13:58,500 --> 00:14:04,520 socialize more than men do and so that you end up with you know you end up masking or camouflaging 334 00:14:04,990 --> 00:14:12,680 so you you may present as having quite normal social behaviors but actually there can be 335 00:14:13,600 --> 00:14:20,320 different kinds of neural processes going on which can also lead to internal stresses and 336 00:14:20,340 --> 00:14:20,900 experiences? 337 00:14:21,240 --> 00:14:25,500 What's your feeling? Well, I think it creates an extraordinary paradox, 338 00:14:25,800 --> 00:14:29,280 so that you can diagnose autism if you show the symptoms, 339 00:14:30,160 --> 00:14:31,960 and you can diagnose autism 340 00:14:33,040 --> 00:14:34,780 not showing any of the symptoms, 341 00:14:35,720 --> 00:14:38,220 but assuming that there is this masking going on. 342 00:14:38,900 --> 00:14:41,280 So how can you ever falsify a diagnosis? 343 00:14:41,900 --> 00:14:44,140 It just doesn't make sense to me. 344 00:14:44,340 --> 00:14:45,640 And if you can never prove it wrong, 345 00:14:45,920 --> 00:14:46,860 it's not science. 346 00:14:48,640 --> 00:14:50,920 Therefore, she says masking is not real. 347 00:14:51,580 --> 00:14:54,800 And the women who rely on it to explain their late diagnosis are not really autistic. 348 00:14:55,220 --> 00:14:59,140 Now, I want to be fair because that idea has a long and respectable pedigree. 349 00:14:59,840 --> 00:15:00,480 It has a name. 350 00:15:01,020 --> 00:15:02,360 It is called falsifiability, 351 00:15:02,960 --> 00:15:05,140 and it comes from a philosopher called Karl Popper, 352 00:15:05,420 --> 00:15:07,620 who set out in 1934. 353 00:15:08,540 --> 00:15:10,060 Popper was wrestling with a real question. 354 00:15:10,260 --> 00:15:13,180 How do you tell science from fortune telling? 355 00:15:13,940 --> 00:15:14,920 and his answer was elegant. 356 00:15:15,220 --> 00:15:18,200 A scientific claim is one that sticks its neck out. 357 00:15:18,460 --> 00:15:20,140 It forbids something. 358 00:15:21,180 --> 00:15:22,720 Saying "the sun will rise tomorrow" 359 00:15:23,120 --> 00:15:25,920 is science because if the sun does not rise, 360 00:15:26,100 --> 00:15:27,000 you are wrong. 361 00:15:28,260 --> 00:15:32,960 Mercury being in retrograde and making you tired is not because whatever happens, 362 00:15:33,550 --> 00:15:35,080 the horoscope was right all along. 363 00:15:35,940 --> 00:15:40,079 It's a lovely idea and it caught on for a while and I understand 364 00:15:40,100 --> 00:15:41,780 completely why she reaches for it, 365 00:15:42,140 --> 00:15:43,320 but there is one problem. 366 00:15:43,860 --> 00:15:45,320 Philosophers of science spent the 367 00:15:45,320 --> 00:15:48,040 next 50 years taking Popper's ideas apart, 368 00:15:48,440 --> 00:15:52,880 and by now naive falsifiability is not the test anyone 369 00:15:53,100 --> 00:15:53,620 serious uses, 370 00:15:54,100 --> 00:15:54,960 and I do mean anyone. 371 00:15:55,760 --> 00:15:58,220 Here's the first crack, and it has a wonderful name. 372 00:15:58,400 --> 00:15:58,900 It's the 373 00:15:59,820 --> 00:16:01,020 Duum-Quine thesis. 374 00:16:01,320 --> 00:16:04,840 It says that you can never actually test one idea on its own. 375 00:16:05,260 --> 00:16:06,959 Every experiment 376 00:16:07,000 --> 00:16:10,100 drags along a whole rucksack of assumptions along with it. 377 00:16:10,680 --> 00:16:11,900 So when a prediction fails, 378 00:16:12,120 --> 00:16:14,060 the failure never tells you which part broke. 379 00:16:14,940 --> 00:16:15,920 Maybe the theory is wrong, 380 00:16:16,080 --> 00:16:19,560 maybe your instrument was miscalibrated, or your sample was off, 381 00:16:20,000 --> 00:16:22,900 or one of the 10 background assumptions that you didn't even notice, 382 00:16:23,300 --> 00:16:24,800 maybe one of those was the 383 00:16:25,000 --> 00:16:25,500 faulty one. 384 00:16:25,740 --> 00:16:28,100 When astronomers found a planet in the wrong place, 385 00:16:28,720 --> 00:16:30,800 they didn't just bin the theory of 386 00:16:30,920 --> 00:16:31,420 gravity, 387 00:16:31,880 --> 00:16:34,980 they went looking for an unseen planet that must be pulling on it. 388 00:16:35,560 --> 00:16:36,100 And that's how they 389 00:16:36,100 --> 00:16:36,680 found Neptune. 390 00:16:37,040 --> 00:16:38,720 The anomaly was real. 391 00:16:39,100 --> 00:16:42,260 Throwing out the whole theory would have taken the wrong move. 392 00:16:42,920 --> 00:16:46,800 And here is the crack that finishes the job. A philosopher called Larry Laudan showed that 393 00:16:46,880 --> 00:16:49,480 Popper's test fails in both directions at once. 394 00:16:50,060 --> 00:16:51,820 Astrology is perfectly falsifiable. 395 00:16:52,000 --> 00:16:52,460 You can check 396 00:16:52,460 --> 00:16:53,860 its predictions and watch them fail. 397 00:16:54,140 --> 00:16:54,640 Meanwhile, 398 00:16:54,820 --> 00:16:57,060 large chunks of respected theoretical physics 399 00:16:58,620 --> 00:17:01,000 are not clearly falsifiable at all, 400 00:17:01,660 --> 00:17:03,920 but nobody is throwing physicists out of the building. 401 00:17:04,319 --> 00:17:06,760 The falsifiability ruler can cut the wrong things. 402 00:17:06,980 --> 00:17:09,120 It can let nonsense in and it can throw good 403 00:17:09,260 --> 00:17:09,760 science out. 404 00:17:10,020 --> 00:17:13,699 Uta Frith is judging masking with a ruler that her own discipline measured, 405 00:17:14,180 --> 00:17:16,839 found wanting and is quietly retired half a century ago. 406 00:17:17,300 --> 00:17:19,040 Psychology is often called a soft 407 00:17:19,140 --> 00:17:23,120 science and excluded from other STEM disciplines for this reason. 408 00:17:23,360 --> 00:17:24,600 It is a bit fluffy. 409 00:17:25,220 --> 00:17:29,700 The standard that psychology actually runs on is called construct validity and it was set out by 410 00:17:29,700 --> 00:17:31,600 two researchers in 1955. 411 00:17:32,020 --> 00:17:34,220 The idea is simple and rather beautiful. 412 00:17:34,520 --> 00:17:35,920 You cannot see intelligence. 413 00:17:36,460 --> 00:17:40,180 You cannot see depression or anxiety or working memory. 414 00:17:40,540 --> 00:17:43,440 You cannot hold any of them in your hand. 415 00:17:43,700 --> 00:17:45,680 So how do you know that they are real? 416 00:17:45,920 --> 00:17:49,400 You check whether they behave the way a real thing should. 417 00:17:49,700 --> 00:17:50,960 Do they show up consistently? 418 00:17:51,280 --> 00:17:53,020 Do they predict other things? 419 00:17:53,640 --> 00:17:57,580 Do they hang together in a web of of relationships that makes sense. 420 00:17:58,080 --> 00:18:01,100 If a thing converges with what it should converge with, 421 00:18:01,640 --> 00:18:03,700 separates from what it should separate from, 422 00:18:04,050 --> 00:18:05,360 and predicts what it should predict, 423 00:18:06,280 --> 00:18:09,140 then it is a real measurable construct. 424 00:18:09,420 --> 00:18:12,260 Not because you falsified it in one dramatic experiment, 425 00:18:12,750 --> 00:18:14,500 but because it earns its place in the network. 426 00:18:15,050 --> 00:18:17,540 And by that standard, the one that the entire field 427 00:18:17,640 --> 00:18:18,140 uses, 428 00:18:18,220 --> 00:18:21,640 masking is not some vague feeling. 429 00:18:21,940 --> 00:18:25,600 It is one of the best behaved constructs in autism research. 430 00:18:26,820 --> 00:18:29,200 We have a validated measurement tool for it. 431 00:18:29,400 --> 00:18:31,720 It's called the Camouflaging Autistic Traits 432 00:18:31,860 --> 00:18:33,000 Questionnaire or the CATQ. 433 00:18:33,300 --> 00:18:37,540 I made a video about this right here if you want to watch it. It was 434 00:18:37,550 --> 00:18:43,080 built by Laura Hull and colleagues and it converges with other autistic trait measures exactly as it 435 00:18:43,080 --> 00:18:43,540 should. 436 00:18:43,540 --> 00:18:49,000 It tells autistic and non-autistic people apart exactly as it should and it predicts things, 437 00:18:49,680 --> 00:18:50,180 serious things. 438 00:18:50,580 --> 00:18:52,940 Higher masking predicts higher anxiety, 439 00:18:54,120 --> 00:18:54,620 obviously. 440 00:18:55,720 --> 00:18:57,300 Higher masking predicts 441 00:18:57,580 --> 00:18:58,080 depression. 442 00:18:58,420 --> 00:18:59,340 Autistic burnout, 443 00:18:59,580 --> 00:19:00,100 which Jura, 444 00:19:00,260 --> 00:19:01,960 Raymaker and colleagues mapped out in detail, 445 00:19:02,460 --> 00:19:07,480 and in the work of Sarah Cassidy and her team, camouflaging predicts suicidality. 446 00:19:08,300 --> 00:19:09,240 Before anyone says, ah, 447 00:19:09,700 --> 00:19:12,440 but that's just people filling in a questionnaire online about their 448 00:19:12,440 --> 00:19:12,940 own feelings. 449 00:19:13,300 --> 00:19:13,860 No, 450 00:19:14,740 --> 00:19:18,060 Meng Chuan Lai and colleagues put autistic women in a scanner and found 451 00:19:18,220 --> 00:19:22,080 distinct neural patterns associated with camouflaging. 452 00:19:22,700 --> 00:19:25,700 So this is not just self-report. 453 00:19:26,060 --> 00:19:26,600 There is something 454 00:19:27,000 --> 00:19:30,660 measurably different happening in the brain when an autistic person masks. 455 00:19:31,680 --> 00:19:32,200 That can leave 456 00:19:32,200 --> 00:19:32,700 a fingerprint. 457 00:19:33,340 --> 00:19:37,560 Note that is different from detecting autism on brain scans as detecting 458 00:19:37,820 --> 00:19:39,620 an autistic behaviour on brain scans. 459 00:19:39,860 --> 00:19:40,360 Different thing. 460 00:19:40,710 --> 00:19:42,560 Okay, just putting that out there as a little footnote. 461 00:19:42,870 --> 00:19:44,860 Let us be very clear about what Frith has done. 462 00:19:45,020 --> 00:19:49,100 She's called masking unfalsifiable and therefore unscientific, 463 00:19:49,860 --> 00:19:55,360 while sitting on top of a lot of literature that operationalises it, measures it, scans it, 464 00:19:55,660 --> 00:19:58,840 and uses it to predict whether an autistic person will still be alive in the future. 465 00:19:59,680 --> 00:20:03,780 The thing that predicts whether or not you'll still be alive is the precise opposite of untestable. 466 00:20:04,340 --> 00:20:10,300 But here's the part that turns this from a disagreement into something that's a great deal more uncomfortable. 467 00:20:10,650 --> 00:20:13,920 The moment you pick up Frith's ruler and apply it honestly, 468 00:20:14,180 --> 00:20:15,040 evenly, 469 00:20:15,580 --> 00:20:16,120 to everyone, 470 00:20:16,770 --> 00:20:19,320 the first thing that it condemns is not masking. 471 00:20:21,020 --> 00:20:22,080 It is her. 472 00:20:22,860 --> 00:20:25,940 Her single most famous contribution is Theory of Mind. 473 00:20:26,080 --> 00:20:29,240 Sally has a basket and has a box, 474 00:20:29,830 --> 00:20:33,720 and Sally has a marble and puts it into her basket and covers it up. 475 00:20:33,980 --> 00:20:37,600 the idea that autistic people struggle to track what other people are thinking. 476 00:20:38,040 --> 00:20:39,060 The Sally Ann test. 477 00:20:39,220 --> 00:20:40,500 It's in every textbook. 478 00:20:40,980 --> 00:20:41,500 It is, 479 00:20:41,920 --> 00:20:42,560 more than anything else, 480 00:20:42,760 --> 00:20:44,380 the thing that her name is attached to. 481 00:20:45,080 --> 00:20:47,580 Listen to how she describes it now in the same interview. 482 00:20:48,020 --> 00:20:53,640 We say the particular difficulties in social communication, 483 00:20:54,040 --> 00:20:55,900 which are only one aspect of autism, 484 00:20:56,280 --> 00:21:03,420 are possibly rooted in a difficulty in mentalising. 485 00:21:03,880 --> 00:21:09,060 That was an idea that we could have turned out completely wrong. 486 00:21:09,360 --> 00:21:11,160 Could have turned out completely wrong. 487 00:21:11,920 --> 00:21:13,780 Only true for a small subgroup. 488 00:21:14,680 --> 00:21:16,240 And she is not wrong to hedge, 489 00:21:16,600 --> 00:21:19,060 because independent researchers have taken theory of mind apart 490 00:21:19,560 --> 00:21:22,480 with exactly the kind of rigour that she demands of masking. 491 00:21:23,500 --> 00:21:29,080 Morten-Anne Gernsbacher and Melanie Youngu went through the literature in 2019 and found three 492 00:21:29,100 --> 00:21:29,600 things: 493 00:21:29,660 --> 00:21:32,320 the original findings often fail to replicate, 494 00:21:32,680 --> 00:21:34,360 the tasks correlate with how good 495 00:21:34,360 --> 00:21:35,060 your language is, 496 00:21:35,360 --> 00:21:36,600 not whether you are autistic, 497 00:21:37,500 --> 00:21:39,840 and plenty of non-autistic people fail while 498 00:21:40,000 --> 00:21:41,460 plenty of autistic people pass. 499 00:21:42,060 --> 00:21:47,180 They also found that something like three-quarters of the most cited papers on the subject just 500 00:21:47,680 --> 00:21:52,480 assert the deficit as fact without offering any new data to back it up. 501 00:21:52,480 --> 00:21:53,160 They just go, 502 00:21:53,640 --> 00:21:57,160 "Uter Frith says autistic people lack theory of mind, I rest my case", right? 503 00:21:58,620 --> 00:21:59,380 It's just an idea, 504 00:21:59,660 --> 00:22:00,700 repeated, 505 00:22:01,520 --> 00:22:02,600 until it sounded true. 506 00:22:03,720 --> 00:22:06,740 And then there's the problem that should really give Uta pause, 507 00:22:06,960 --> 00:22:08,520 and it comes straight out 508 00:22:08,520 --> 00:22:09,700 of her own framework: 509 00:22:10,420 --> 00:22:11,860 psychopaths. 510 00:22:12,720 --> 00:22:17,080 People with psychopathy tend to do perfectly well on the cognitive side of theory of mind, 511 00:22:17,300 --> 00:22:19,020 the part that these tasks actually measure, 512 00:22:19,280 --> 00:22:21,120 working out what someone else knows or believes. 513 00:22:22,040 --> 00:22:23,920 Where they differ is affective empathy, 514 00:22:24,080 --> 00:22:26,020 the part where you feel anything about it. 515 00:22:26,500 --> 00:22:28,480 And that split is the whole problem for this test. 516 00:22:28,830 --> 00:22:32,840 If you can pass a mentalising task while feeling nothing for the person in front of you, 517 00:22:33,140 --> 00:22:38,480 and yet a deeply empathic autistic person can fail it, then the task is not measuring care 518 00:22:38,830 --> 00:22:41,900 or connection or whether someone is a good person to have in your life, 519 00:22:42,140 --> 00:22:42,760 it's measuring 520 00:22:43,040 --> 00:22:45,100 one very narrow cognitive operation, 521 00:22:45,590 --> 00:22:48,560 and Frith built an entire theory of autism's social 522 00:22:48,800 --> 00:22:49,660 heart on top of it. 523 00:22:51,060 --> 00:22:53,100 There is a better way to think about social difficulty, 524 00:22:53,300 --> 00:22:54,220 and it has a name. 525 00:22:55,060 --> 00:22:58,020 The double empathy problem set out by Damien Milton in 2012. 526 00:22:58,200 --> 00:23:02,700 The idea that the breakdown in understanding between autistic and non-autistic people is 527 00:23:02,700 --> 00:23:04,960 not a fault inside the autistic person, 528 00:23:05,140 --> 00:23:07,300 it runs both ways. 529 00:23:07,800 --> 00:23:11,660 Non-autistic people are just as bad at reading autistic people as the other way around. 530 00:23:11,760 --> 00:23:12,820 From an empathy perspective, 531 00:23:13,320 --> 00:23:14,560 if you put autistic people together, 532 00:23:14,860 --> 00:23:16,360 they communicate just as 533 00:23:16,520 --> 00:23:19,740 well as if you put neurotypical people together and non-autistic people together. 534 00:23:20,520 --> 00:23:24,780 The mismatch lives in the gap between two different ways of being, 535 00:23:25,360 --> 00:23:26,560 not inside one broken 536 00:23:26,800 --> 00:23:27,300 brain. 537 00:23:27,320 --> 00:23:28,800 And here's the really lovely bit. 538 00:23:29,020 --> 00:23:32,400 You don't have to take my word that any of this is mainstream now because the new scientist 539 00:23:32,640 --> 00:23:35,320 article you're watching clips from says it too. 540 00:23:35,660 --> 00:23:40,520 It notes in black and white that the lack of empathy idea is disputed and that autistic 541 00:23:40,680 --> 00:23:42,300 people communicate effectively with each other. 542 00:23:42,780 --> 00:23:45,180 Her own venue concedes the point. 543 00:23:46,140 --> 00:23:47,720 And then right at the end of the interview, 544 00:23:48,280 --> 00:23:50,200 the journalist asks her a direct question. 545 00:23:50,960 --> 00:23:54,060 Of all the theories of autism that have been put forward over the decades, 546 00:23:54,500 --> 00:23:56,140 which ones does 547 00:23:56,380 --> 00:23:58,900 she think has stood the test of time? 548 00:23:59,460 --> 00:24:02,500 There have been many theories of autism, 549 00:24:02,760 --> 00:24:06,060 of what autism might be put forward over the 550 00:24:06,200 --> 00:24:06,700 decades. 551 00:24:07,360 --> 00:24:10,140 Which do you think have stood the test of time? 552 00:24:12,040 --> 00:24:19,260 Very little has stood the test of time because I think we do know too little about brain 553 00:24:19,350 --> 00:24:28,840 and mind and that is still an area that is in a sort of early stage and a lot of things 554 00:24:28,850 --> 00:24:30,180 are possible with new techniques. 555 00:24:31,450 --> 00:24:32,460 Now remember who's answering. 556 00:24:32,530 --> 00:24:35,540 This is the woman whose theories are the theories. 557 00:24:36,580 --> 00:24:39,060 Theory of mind, weak central coherence. 558 00:24:39,540 --> 00:24:41,140 If anyone's work is in that pantheon, 559 00:24:41,320 --> 00:24:42,320 here it is. 560 00:24:42,960 --> 00:24:46,920 She's not only talking about her own work, she's talking about the whole field. 561 00:24:47,780 --> 00:24:48,280 The whole field. 562 00:24:48,480 --> 00:24:48,980 Autism. 563 00:24:49,200 --> 00:24:49,820 The whole autism, 564 00:24:50,100 --> 00:24:52,460 understanding of autism, autism research a lot. 565 00:24:53,340 --> 00:24:53,940 For this stuff, 566 00:24:54,660 --> 00:24:57,120 it is substantially is, actually, her work. 567 00:24:57,580 --> 00:25:01,240 You cannot say very little in autism theory has survived and then carve out an exception 568 00:25:01,360 --> 00:25:02,880 for the two biggest theories in autism, 569 00:25:03,380 --> 00:25:04,960 both of which have your own name on them. 570 00:25:05,740 --> 00:25:06,940 She is including herself. 571 00:25:07,620 --> 00:25:08,240 She has to be. 572 00:25:08,760 --> 00:25:12,080 And that's not me being unkind to an 80-something-year-old woman. 573 00:25:12,820 --> 00:25:19,100 Those are her words in her chair over her macaroons in an answer to a direct question about what survived. 574 00:25:20,060 --> 00:25:22,680 Uta Frith demands an objective, 575 00:25:23,000 --> 00:25:24,080 falsifiable, 576 00:25:24,440 --> 00:25:28,640 biomarker-backed standard from masking and 577 00:25:28,800 --> 00:25:30,260 from the women who describe it. 578 00:25:31,300 --> 00:25:33,160 Her own life's work, by her own admission, 579 00:25:33,800 --> 00:25:34,760 in the same conversation, 580 00:25:35,820 --> 00:25:36,960 never reached that 581 00:25:37,220 --> 00:25:37,720 standard. 582 00:25:38,040 --> 00:25:40,680 theory of mind work might be, 583 00:25:40,900 --> 00:25:43,440 is mostly wrong. 584 00:25:43,820 --> 00:25:44,440 The imaging, 585 00:25:44,740 --> 00:25:49,180 very little of that has survived. 586 00:25:50,170 --> 00:25:53,820 She demands of us what she admits she never delivered. 587 00:25:55,040 --> 00:25:58,120 Twenty odd minutes into a video about the philosophy of science and a woman's cardigan, 588 00:25:58,320 --> 00:25:59,740 you are exactly my kind of person. 589 00:26:00,000 --> 00:26:01,040 So do me a favour, 590 00:26:01,470 --> 00:26:02,160 tap the like button. 591 00:26:02,340 --> 00:26:02,960 I know, I know, 592 00:26:03,200 --> 00:26:05,080 but this is the honest truth of how this works. 593 00:26:05,560 --> 00:26:09,740 YouTube decides whether to show this video to the next late diagnosed person who needs 594 00:26:09,840 --> 00:26:12,360 it almost entirely based on whether you 595 00:26:12,540 --> 00:26:13,620 yes you watching this video 596 00:26:13,860 --> 00:26:14,620 are engaging with 597 00:26:14,660 --> 00:26:15,100 it. 598 00:26:15,100 --> 00:26:18,160 So a like, a comment, a share to one person who would care. 599 00:26:18,480 --> 00:26:23,240 It costs you nothing and is the difference between this reaching 10 people and 10,000 600 00:26:23,440 --> 00:26:23,800 people. 601 00:26:23,800 --> 00:26:26,840 She is pointing her arguments at women, 602 00:26:27,320 --> 00:26:29,820 specifically autistic women diagnosed late. 603 00:26:30,740 --> 00:26:31,440 Here's her case. 604 00:26:31,800 --> 00:26:32,800 She says that there are two groups: 605 00:26:33,090 --> 00:26:34,280 the early diagnosed group, 606 00:26:34,440 --> 00:26:36,520 which she describes as severely 607 00:26:36,820 --> 00:26:38,900 affected with intellectual disability and language delay, 608 00:26:39,470 --> 00:26:40,720 and the late diagnosed group 609 00:26:40,850 --> 00:26:42,320 who she describes like this: 610 00:26:42,580 --> 00:26:46,680 Suddenly increasing number of cases in these late diagnosed, especially women, 611 00:26:47,240 --> 00:26:47,580 is they have 612 00:26:47,580 --> 00:26:48,980 this wonderful communication. 613 00:26:50,240 --> 00:26:53,180 They have absolutely no difficulty in language. 614 00:26:53,830 --> 00:26:56,240 They have everything. 615 00:26:57,160 --> 00:26:57,660 They are, 616 00:26:57,900 --> 00:27:01,760 you know, they still want to be autistic or they are labelled autistic, 617 00:27:02,300 --> 00:27:15,460 but I wonder whether they have, they would be much better recognised and much better treated and understood if one looked at what really their problems actually were. 618 00:27:15,900 --> 00:27:20,320 The problems are not the same as of those other cases. 619 00:27:20,520 --> 00:27:24,640 And as you say, you could call it type 2 autism or whatever it is. 620 00:27:25,040 --> 00:27:26,880 And then she reaches for a number. 621 00:27:27,320 --> 00:27:29,680 She says that in the late diagnosed group, 622 00:27:30,080 --> 00:27:32,960 the old four to one ratio of boys to girls collapses 623 00:27:33,620 --> 00:27:35,440 and you get almost as many women as men. 624 00:27:35,450 --> 00:27:36,080 And to her, 625 00:27:36,820 --> 00:27:38,100 this is a smoking gun, 626 00:27:38,480 --> 00:27:38,980 she says. 627 00:27:39,140 --> 00:27:43,640 The classic proportion of male to female 628 00:27:44,260 --> 00:27:47,280 in autism was four to one 629 00:27:47,520 --> 00:27:50,140 and quite soon changed to three to one. 630 00:27:50,640 --> 00:27:51,960 So preponderance of males, 631 00:27:52,500 --> 00:27:54,640 to reach three boys to one girl. 632 00:27:56,040 --> 00:28:02,620 And that has remained amazingly stable in the early diagnosed group. 633 00:28:03,350 --> 00:28:06,720 But in the late diagnosed group, we see a completely different pattern. 634 00:28:06,910 --> 00:28:10,240 We suddenly see more and more females appearing. 635 00:28:10,570 --> 00:28:13,360 And this has been shown in another study, 636 00:28:13,720 --> 00:28:16,080 very recently published this year, 637 00:28:16,900 --> 00:28:19,040 a study of the Swedish population, 638 00:28:19,340 --> 00:28:23,060 which showed that after the age of 15, 639 00:28:23,240 --> 00:28:24,020 when you get diagnosed 640 00:28:24,740 --> 00:28:25,580 at that point, 641 00:28:25,980 --> 00:28:30,320 you get practically as many girls as boys. 642 00:28:30,540 --> 00:28:34,040 In other words, it's a huge increase in girls. 643 00:28:34,420 --> 00:28:41,220 But she is using data from a very, very large Swedish population study published in the BMJ this year. 644 00:28:41,620 --> 00:28:43,740 And it does not say what she needs it to say. 645 00:28:44,200 --> 00:28:45,300 It actually says the opposite. 646 00:28:46,340 --> 00:28:51,200 The researchers and the editorial that ran alongside it concluded that the narrowing ratio 647 00:28:51,680 --> 00:28:58,300 from 4:1 to 3:1 to... and so on is evidence that autistic women were systematically missed 648 00:28:58,480 --> 00:29:00,900 for decades and are finally being found. 649 00:29:01,160 --> 00:29:03,660 The editorial says it in plain English. It describes 650 00:29:03,820 --> 00:29:08,880 late diagnosed women as, and I quote, "just as autistic as their male counterparts". 651 00:29:09,100 --> 00:29:09,600 Oh well, 652 00:29:09,680 --> 00:29:14,360 the CDC's own American data shows the same ratio narrowing over time. 653 00:29:14,700 --> 00:29:15,480 The most boring, 654 00:29:15,860 --> 00:29:21,880 most parsimonious reading of that number is not "We let the women in! 655 00:29:22,640 --> 00:29:24,720 We're letting the wrong women in!" 656 00:29:25,460 --> 00:29:25,860 No, 657 00:29:25,860 --> 00:29:31,780 it's actually "We kept the right women out and we're only now letting them in through the door." 658 00:29:32,210 --> 00:29:37,280 So she's taken a finding about women being under-recognised and read it as women being 659 00:29:37,590 --> 00:29:38,280 over-included. 660 00:29:39,080 --> 00:29:39,580 Same number, 661 00:29:39,720 --> 00:29:40,840 opposite conclusion. 662 00:29:41,640 --> 00:29:45,820 My conclusion is the same as what the study says 663 00:29:46,840 --> 00:29:49,560 And I wonder if she's actually reading properly. 664 00:29:50,500 --> 00:29:55,660 It just makes me wonder if Uta Frith is such a powerful mind and is she even reading? 665 00:29:56,820 --> 00:30:01,560 And here is the mechanism that she won't look at, which is the one that explains the whole thing. 666 00:30:02,380 --> 00:30:02,940 Masking, 667 00:30:03,140 --> 00:30:06,000 which remember we have just established is real, 668 00:30:06,180 --> 00:30:08,320 measured and visible in a brain scan. 669 00:30:08,600 --> 00:30:13,860 Autistic girls grow up under far more social pressure to fit in than boys typically do. 670 00:30:13,880 --> 00:30:18,160 so they tend to learn earlier and harder to camouflage. 671 00:30:19,280 --> 00:30:20,840 Not that they're hard to camouflage, 672 00:30:21,320 --> 00:30:24,660 just they learn to camouflage harder with more effort, 673 00:30:24,850 --> 00:30:25,440 if that makes sense. 674 00:30:25,780 --> 00:30:26,880 We're not camouflaging 675 00:30:27,010 --> 00:30:27,660 girls right now. 676 00:30:28,460 --> 00:30:30,080 They have it hard enough as it is. 677 00:30:30,380 --> 00:30:31,940 They learn to script the conversations, 678 00:30:32,170 --> 00:30:32,670 right? 679 00:30:32,690 --> 00:30:36,540 Copy the popular girl, that sort of thing. Hold it all together all day at school and fall apart 680 00:30:36,820 --> 00:30:37,540 the moment they get home. 681 00:30:38,230 --> 00:30:40,580 And because the autism textbook was written around boys, 682 00:30:40,860 --> 00:30:42,179 a girl who masks 683 00:30:42,540 --> 00:30:43,260 well looks, 684 00:30:43,800 --> 00:30:44,520 well to a clinician, 685 00:30:44,800 --> 00:30:46,680 like a girl who is just fine. 686 00:30:47,040 --> 00:30:48,840 The masking is not a footnote, 687 00:30:49,100 --> 00:30:52,760 it's the reason that the four to one ratio exists in the first place. 688 00:30:53,360 --> 00:30:55,540 And then Frith goes further, 689 00:30:56,200 --> 00:30:58,960 and this is the tool that made me put my tea down. 690 00:30:59,180 --> 00:31:02,580 I think it is certainly is, you know, 691 00:31:03,020 --> 00:31:07,680 a research area to really go into and answer these questions, 692 00:31:07,980 --> 00:31:10,340 but you have to face the fact 693 00:31:10,820 --> 00:31:15,880 that these late diagnosed people had a perfectly unremarkable childhood. 694 00:31:16,000 --> 00:31:17,480 They developed quite normally, 695 00:31:17,800 --> 00:31:21,740 at least, you know, from what one basically hears. 696 00:31:21,740 --> 00:31:30,760 I believe also that it's very easy to elicit memories or reports of slightly unusual behavior 697 00:31:31,320 --> 00:31:32,740 if you want to do that. 698 00:31:33,320 --> 00:31:34,880 and you can get basically anybody, 699 00:31:35,240 --> 00:31:36,540 including you and me, 700 00:31:36,700 --> 00:31:40,320 to have some episode in your early life 701 00:31:40,560 --> 00:31:42,740 that might say, that looks a little bit autistic. 702 00:31:43,160 --> 00:31:45,900 She's saying that late diagnosed people had, 703 00:31:46,030 --> 00:31:46,700 in her worlds, 704 00:31:46,880 --> 00:31:51,340 a perfectly unremarkable childhood and that autistic memories they describe are 705 00:31:51,720 --> 00:31:52,820 basically suggestible noise. 706 00:31:53,250 --> 00:31:54,200 That if you go looking, 707 00:31:54,510 --> 00:31:56,360 you can talk anybody into believing 708 00:31:56,470 --> 00:31:58,040 that they are a bit autistic as a child. 709 00:31:59,140 --> 00:32:01,200 But think about what that actually is. 710 00:32:01,440 --> 00:32:02,480 That's not data, 711 00:32:03,140 --> 00:32:04,120 that's just her opinion, 712 00:32:04,320 --> 00:32:06,720 it's just an assumption, it just wears the costume of 713 00:32:06,860 --> 00:32:07,360 data. 714 00:32:08,260 --> 00:32:11,900 You know, an Afghan flavoured lab coat, 715 00:32:12,120 --> 00:32:12,620 if you will. 716 00:32:12,860 --> 00:32:13,840 You assume that the 717 00:32:13,940 --> 00:32:17,440 childhood was typical and then you treat every piece of evidence to the contrary 718 00:32:17,560 --> 00:32:18,880 as the person fooling themselves. 719 00:32:19,420 --> 00:32:20,500 It's a closed loop, 720 00:32:20,780 --> 00:32:22,540 no one can win, it's circular 721 00:32:22,780 --> 00:32:23,280 reasoning, 722 00:32:23,520 --> 00:32:24,440 nothing can ever get it. 723 00:32:24,660 --> 00:32:26,560 This is the ground that researchers like 724 00:32:26,820 --> 00:32:28,640 Gina Rippon have spent their careers, 725 00:32:28,900 --> 00:32:30,740 this is Gina Rippon there, have spent their 726 00:32:30,740 --> 00:32:31,580 careers reclaiming. 727 00:32:31,740 --> 00:32:33,740 The lost girls of autism. 728 00:32:34,240 --> 00:32:36,440 The ones in the field, 729 00:32:37,160 --> 00:32:37,900 in Rippon's telling, 730 00:32:38,490 --> 00:32:42,920 simply did not bother looking for, because the entire picture of autism was built around small 731 00:32:43,160 --> 00:32:43,660 boys. 732 00:32:43,740 --> 00:32:48,060 The work of Bargiella and colleagues documented exactly how these women slipped through, 733 00:32:48,460 --> 00:32:49,500 masking and adapting, 734 00:32:49,780 --> 00:32:52,720 and being told again and again that they seem fine. 735 00:32:52,900 --> 00:32:53,680 The cost of all that 736 00:32:53,860 --> 00:32:54,640 masking is not nothing, 737 00:32:54,940 --> 00:32:56,320 whatever Frith says. 738 00:32:56,910 --> 00:32:58,700 The research from people like Leigh and McQuaid 739 00:32:59,060 --> 00:33:00,940 links sustained camouflaging to anxiety, 740 00:33:01,310 --> 00:33:01,880 to depression, 741 00:33:02,520 --> 00:33:04,700 to a damaged sense of who you even are, 742 00:33:05,300 --> 00:33:06,300 and as I said before, 743 00:33:06,760 --> 00:33:07,620 to suicidality. 744 00:33:07,800 --> 00:33:10,540 That is the opposite of an interesting personality quirk. 745 00:33:10,980 --> 00:33:13,440 This is people quietly drowning while performing fine. 746 00:33:14,780 --> 00:33:16,240 Look at the trap that Frith has built, 747 00:33:17,320 --> 00:33:18,620 maybe without meaning to. 748 00:33:18,730 --> 00:33:20,220 She says that she will not trust 749 00:33:20,270 --> 00:33:21,880 an autistic woman's account of her own life. 750 00:33:22,360 --> 00:33:24,260 I think the subjective experience is, 751 00:33:27,140 --> 00:33:27,640 It's very, 752 00:33:27,960 --> 00:33:28,540 very tricky. 753 00:33:29,180 --> 00:33:30,860 You do need to verify it. 754 00:33:32,500 --> 00:33:34,240 You do need objective criteria. 755 00:33:35,340 --> 00:33:37,980 This objective experience is very malleable 756 00:33:38,260 --> 00:33:40,340 by cultural opinion, 757 00:33:40,960 --> 00:33:43,440 by the way you understand yourself, 758 00:33:43,620 --> 00:33:44,420 you have memories. 759 00:33:45,200 --> 00:33:47,460 That is just not a solid enough foundation. 760 00:33:48,760 --> 00:33:49,780 Frith wants objective, 761 00:33:50,020 --> 00:33:50,520 external, 762 00:33:50,600 --> 00:33:51,540 third-party verification 763 00:33:51,880 --> 00:33:53,500 before she will even believe that you're autistic. 764 00:33:53,960 --> 00:33:54,780 But the objective, 765 00:33:55,020 --> 00:33:55,540 external, 766 00:33:55,840 --> 00:33:57,100 third-party system 767 00:33:57,100 --> 00:34:00,240 appealing to is the exact same system that was built around boys, 768 00:34:00,520 --> 00:34:01,300 white boys, 769 00:34:01,890 --> 00:34:02,540 and well-off families, 770 00:34:02,910 --> 00:34:03,410 pretty much. 771 00:34:03,710 --> 00:34:07,680 The exact same system that missed these women in the first place. 772 00:34:07,980 --> 00:34:13,260 She's proposing that we re-examine the lost girls of autism using the precise instrument that lost them. 773 00:34:14,300 --> 00:34:14,740 And look, 774 00:34:14,740 --> 00:34:18,919 I have a stake in this and I'm not going to pretend otherwise. 775 00:34:19,210 --> 00:34:23,899 I am one of the people she's talking about because I was identified as autistic as an adult. 776 00:34:24,460 --> 00:34:25,500 Not because it was fashionable, 777 00:34:25,879 --> 00:34:28,500 not because someone talked me into a memory, 778 00:34:29,520 --> 00:34:36,040 but because I spent decades knowing something did not fit and finally found an explanation that fit it perfectly. 779 00:34:36,659 --> 00:34:39,800 And I'm not an interesting personality variant, at least I don't think so. 780 00:34:39,889 --> 00:34:40,639 Let me know in the comments. 781 00:34:41,300 --> 00:34:42,879 But I'm autistic. 782 00:34:43,500 --> 00:34:44,820 The system just missed me. 783 00:34:45,050 --> 00:34:46,600 As it, of course it did. 784 00:34:47,580 --> 00:34:48,360 I'm 44 years old. 785 00:34:48,500 --> 00:34:49,419 Of course the system missed me. 786 00:34:50,040 --> 00:34:54,879 And I'm not willing to let the same person who helped build that system stand in her living room, 787 00:34:54,899 --> 00:34:58,600 or sit in her living room I guess, and tell me that I imagined the whole thing. 788 00:34:59,180 --> 00:35:01,820 Frith does not just rest on a feeling. 789 00:35:02,060 --> 00:35:03,320 She points to the science, 790 00:35:03,620 --> 00:35:05,120 she says modern genetics is 791 00:35:05,280 --> 00:35:07,980 starting to find real subtypes, distinct kinds, 792 00:35:08,180 --> 00:35:10,260 and this supports breaking the spectrum apart. 793 00:35:10,800 --> 00:35:14,980 We don't have an objective way of diagnosing autism. 794 00:35:15,480 --> 00:35:17,140 Even though we believe there is a brain 795 00:35:17,140 --> 00:35:19,000 base, you believe there's a genetic basis. 796 00:35:19,920 --> 00:35:20,660 There's a lot of evidence, 797 00:35:21,040 --> 00:35:21,920 yes, that this is definitely 798 00:35:22,110 --> 00:35:22,610 the case. 799 00:35:22,680 --> 00:35:27,880 And there has been this general trend in recent years of these subtyping studies where 800 00:35:28,330 --> 00:35:28,920 you find, 801 00:35:29,070 --> 00:35:30,820 or researchers find, 802 00:35:30,980 --> 00:35:32,820 patterns in genes, 803 00:35:33,140 --> 00:35:34,840 in brain activity, 804 00:35:35,320 --> 00:35:39,380 and also kind of experiences 805 00:35:39,920 --> 00:35:40,740 and behaviours. 806 00:35:41,340 --> 00:35:44,860 And then the question is, are there multiple kinds of autism? 807 00:35:45,280 --> 00:35:46,520 I have read those 808 00:35:46,520 --> 00:35:52,400 studies many times. I have really taken them to heart. In fact I made an entire video taking them 809 00:35:52,430 --> 00:35:53,840 apart and I'll put it on screen. 810 00:35:54,660 --> 00:35:55,400 Watch it after this one. 811 00:35:56,410 --> 00:35:57,920 So I'm not going in cold here. 812 00:35:58,160 --> 00:35:58,920 The studies 813 00:35:59,300 --> 00:36:00,940 are interesting and they're not fraudulent, 814 00:36:01,220 --> 00:36:02,460 they're not junk, 815 00:36:02,740 --> 00:36:04,720 but they do not say what she needs them 816 00:36:04,730 --> 00:36:07,200 to say and the reasons are baked into how they were built. 817 00:36:07,420 --> 00:36:09,520 Starting with the big one, the 2025 study 818 00:36:10,020 --> 00:36:15,460 in Nature Genetics. It took over 5,000 autistic children and then used machine learning or AI 819 00:36:15,520 --> 00:36:20,260 to sort them into four subtypes based on more than 230 traits each. 820 00:36:20,560 --> 00:36:23,940 Those traits were mostly parent-reported, 821 00:36:24,220 --> 00:36:26,460 which in practice means a parent sitting at a kitchen table 822 00:36:27,440 --> 00:36:29,620 scorecarding their own child on a long questionnaire. 823 00:36:30,600 --> 00:36:31,840 That is not a knock on the parents, 824 00:36:32,040 --> 00:36:32,820 they're doing their best, 825 00:36:33,260 --> 00:36:35,740 but it does mean that the raw material of the entire study 826 00:36:36,360 --> 00:36:39,180 is merely a parent's perception of their child's behaviour, 827 00:36:39,740 --> 00:36:43,880 and that is just filtered through whatever that person thinks that autism looks like. 828 00:36:44,020 --> 00:36:48,880 Frith spends the whole interview telling us subjective report is too unreliable to trust 829 00:36:49,500 --> 00:36:53,600 while leaning on a study built entirely out of it. 830 00:36:53,900 --> 00:36:56,840 So one of those four subtypes is the interesting one for our purposes, 831 00:36:57,100 --> 00:36:57,880 it's the largest group, 832 00:36:58,140 --> 00:37:02,240 around 37%, and the researchers called it social and behavioural 833 00:37:02,340 --> 00:37:02,840 challenges. 834 00:37:02,920 --> 00:37:05,080 They wanted to write core autistic traits, 835 00:37:05,260 --> 00:37:07,140 hit their developmental milestones roughly 836 00:37:07,140 --> 00:37:07,640 on time, 837 00:37:07,740 --> 00:37:12,640 good language but a stack of co-occurring conditions like anxiety, ADHD and depression. 838 00:37:13,640 --> 00:37:14,620 If you're listening carefully, 839 00:37:14,960 --> 00:37:18,600 that group sounds an awful lot like Frith's so-called second group: 840 00:37:19,060 --> 00:37:19,760 the late diagnosed, 841 00:37:20,240 --> 00:37:23,880 verbal, anxious ones who she wants to remove from the autism category. 842 00:37:24,800 --> 00:37:25,860 And there are more problems. 843 00:37:26,120 --> 00:37:29,100 The first is that every one of these studies is built on children. 844 00:37:29,480 --> 00:37:32,040 The 2025 one runs from age 4 to 18, 845 00:37:32,420 --> 00:37:35,740 the 2023 one before it in Nature Neuroscience was children and 846 00:37:35,740 --> 00:37:36,420 young people too. 847 00:37:37,220 --> 00:37:38,020 So whatever they find, 848 00:37:38,240 --> 00:37:40,400 they structurally cannot speak to autistic adults. 849 00:37:41,320 --> 00:37:44,580 Yet it is autistic adults that Frith's entire argument is about. 850 00:37:45,480 --> 00:37:49,120 She's using research on children to tell grown women that they are not autistic. 851 00:37:49,650 --> 00:37:52,060 The second is that these are not the neat, 852 00:37:53,780 --> 00:37:56,220 separable boxes that the headlines promised. 853 00:37:56,840 --> 00:37:57,700 As I said in that video, 854 00:37:58,470 --> 00:37:59,560 these are fuzzy clusters, 855 00:37:59,840 --> 00:38:00,980 not species of Pokémon. 856 00:38:01,600 --> 00:38:02,800 People sit on the borders, 857 00:38:03,020 --> 00:38:05,580 people shift between them as they grow and their lives change, 858 00:38:06,070 --> 00:38:08,360 and the researchers themselves are the first to say so. 859 00:38:08,820 --> 00:38:13,340 The lead author said in plain words that finding four classes in the data does not mean that there 860 00:38:13,340 --> 00:38:14,500 are only four kinds of autism. 861 00:38:14,900 --> 00:38:19,100 The team behind the age of diagnosis genetics described their own work 862 00:38:19,200 --> 00:38:21,540 as showing the diversity found within autism, 863 00:38:22,340 --> 00:38:24,860 not the exit from it. Who paid for a study does not 864 00:38:25,060 --> 00:38:26,040 tell you whether it's true. 865 00:38:26,220 --> 00:38:30,440 A good study funded by the devil himself is still a good study. 866 00:38:30,820 --> 00:38:34,640 So everything I just said, the children, the parent reports, the clusters that cut across age and sex, 867 00:38:35,140 --> 00:38:36,480 That stands entirely on its own, 868 00:38:36,940 --> 00:38:37,980 whoever signed the checks. 869 00:38:39,190 --> 00:38:41,200 The next part is not me proving the science wrong. 870 00:38:42,340 --> 00:38:46,180 This is me explaining why the framing around it keeps coming from the same shape. 871 00:38:47,400 --> 00:38:49,880 This is really worth knowing and it's worth talking about. 872 00:38:50,400 --> 00:38:51,920 Both studies came out of the same machine. 873 00:38:52,570 --> 00:38:54,000 They were funded by Safari, 874 00:38:54,400 --> 00:38:55,800 the research arm of Simon's 875 00:38:55,940 --> 00:38:56,440 Foundation, 876 00:38:56,610 --> 00:38:57,700 and they run on Spark, 877 00:38:58,010 --> 00:39:01,020 the Simon's Foundation's own enormous collection of autism data. 878 00:39:01,440 --> 00:39:04,080 This is a heavily genetics-focused, 879 00:39:04,320 --> 00:39:08,180 heavily resourced research world, and it has very few 880 00:39:08,310 --> 00:39:10,540 autistic people anywhere near the steering wheel. 881 00:39:10,760 --> 00:39:13,280 One of the figures circling it, Alison Singer, 882 00:39:13,820 --> 00:39:18,080 sits on the SPARC advisory board and runs a foundation that takes Simon's money and is one 883 00:39:18,080 --> 00:39:24,040 of the people who coined the term "profound autism". She has argued on record that you need to be able 884 00:39:24,040 --> 00:39:27,740 to call autism a severe disorder with symptoms and comorbidities. 885 00:39:28,010 --> 00:39:30,019 So this is not neutral scientific 886 00:39:30,020 --> 00:39:30,520 ground. 887 00:39:30,680 --> 00:39:36,040 This is a research world built largely around the idea of autism as something to be 888 00:39:36,280 --> 00:39:38,480 screened for and ideally prevented. 889 00:39:38,860 --> 00:39:40,660 That does not make the data wrong, 890 00:39:40,960 --> 00:39:42,340 it does explain why the people 891 00:39:42,600 --> 00:39:47,940 holding it keep reaching for the same conclusions and why Frith picking up on the framing arrives 892 00:39:48,160 --> 00:39:49,100 where she arrives. 893 00:39:49,640 --> 00:39:50,940 It's a cultural thing. 894 00:39:51,220 --> 00:39:54,740 And I would say it's dangerous to do that because 895 00:39:54,760 --> 00:40:02,960 it completely ignores the profound autism which has these very severe communication difficulties. 896 00:40:03,260 --> 00:40:04,860 Ah, profound autism again. 897 00:40:05,660 --> 00:40:08,200 Frith reaches for that term to make her case. 898 00:40:08,750 --> 00:40:12,880 The idea that there is a group so severely affected that lumping them in with the late 899 00:40:13,080 --> 00:40:15,060 diagnosed is an insult to them. 900 00:40:15,310 --> 00:40:18,600 And I have a whole video on profound autism right here, 901 00:40:19,180 --> 00:40:23,140 so let me tell you what that term actually means, because it does not mean 902 00:40:23,200 --> 00:40:24,880 what she is using it to mean. 903 00:40:25,700 --> 00:40:29,220 Profound autism was proposed by a report in the Lancet Commission back in 2021, 904 00:40:30,000 --> 00:40:31,640 and it was never proposed as a diagnosis. 905 00:40:32,140 --> 00:40:34,240 It is purely an administrative term. 906 00:40:34,660 --> 00:40:37,860 You will not find it in the DSM, you will not find it in the ICD. 907 00:40:38,280 --> 00:40:42,220 No clinician will ever write it on a form. It was meant as a flag for research 908 00:40:42,580 --> 00:40:45,320 and for directing care to the people who need the most of it. 909 00:40:46,060 --> 00:40:48,440 And here is how the Lancet defined it: 910 00:40:48,960 --> 00:40:50,620 someone who needs round-the-clock supervision, 911 00:40:50,960 --> 00:40:52,240 who cannot be left alone, 912 00:40:52,640 --> 00:40:55,220 who cannot manage their daily basic needs. 913 00:40:55,460 --> 00:40:56,880 And this line, 914 00:40:57,100 --> 00:41:00,000 which I read out in my earlier video, 915 00:41:00,130 --> 00:41:03,580 and I'm going to read it again here because it is the whole thing, 916 00:41:03,820 --> 00:41:05,800 the Lancet says profound autism is, 917 00:41:06,030 --> 00:41:08,940 and I quote, "defined not by autistic features, 918 00:41:09,290 --> 00:41:11,660 but by intellectual or language disability." 919 00:41:11,970 --> 00:41:13,840 I will say that again for those at the back, 920 00:41:14,740 --> 00:41:16,080 not by autistic features. 921 00:41:16,420 --> 00:41:18,020 Profound autism is defined 922 00:41:18,040 --> 00:41:19,480 not by autistic features, 923 00:41:20,040 --> 00:41:21,980 but by intellectual or language disability. 924 00:41:22,600 --> 00:41:23,140 Profound autism, 925 00:41:23,440 --> 00:41:25,020 the thing Frith is holding up as real, 926 00:41:26,100 --> 00:41:26,600 the severe, 927 00:41:27,000 --> 00:41:30,420 the proper autism that the late diagnosed are supposedly diluting, 928 00:41:30,920 --> 00:41:36,740 is a category defined by how much intellectual disability and language disability sits alongside 929 00:41:37,360 --> 00:41:37,860 autism, 930 00:41:37,900 --> 00:41:39,340 not by autism. 931 00:41:39,540 --> 00:41:42,900 And that is the trick at the very centre of her split, 932 00:41:43,180 --> 00:41:44,280 whether she intends it 933 00:41:44,700 --> 00:41:45,360 or not. 934 00:41:45,860 --> 00:41:51,220 When she looks back at her early diagnosed group and sees something profoundly different from 935 00:41:51,320 --> 00:41:52,520 her late diagnosed group, 936 00:41:52,780 --> 00:41:55,900 a great deal of what she's actually seeing is intellectual disability 937 00:41:56,680 --> 00:42:00,420 and language disability in the one group and not in the other. 938 00:42:00,900 --> 00:42:02,400 Those disabilities are real, 939 00:42:02,540 --> 00:42:03,200 they matter enormously, 940 00:42:03,680 --> 00:42:04,900 support for them is important, 941 00:42:05,340 --> 00:42:07,060 they can completely change what a 942 00:42:07,170 --> 00:42:08,240 person needs from the world. 943 00:42:08,720 --> 00:42:10,160 But they are not autism, 944 00:42:10,510 --> 00:42:12,420 they are conditions that often travel 945 00:42:12,440 --> 00:42:13,820 alongside an autism diagnosis, 946 00:42:14,240 --> 00:42:15,460 strip them out, 947 00:42:15,640 --> 00:42:16,860 look at the autism on its own, 948 00:42:17,120 --> 00:42:17,620 and the 949 00:42:17,720 --> 00:42:22,760 unbridgeable chasm that she keeps describing narrows to just a small crack. 950 00:42:23,420 --> 00:42:26,360 To show you how badly that term fits the job she's giving it, 951 00:42:26,600 --> 00:42:27,920 there are autistic people 952 00:42:28,060 --> 00:42:29,020 who speak fluently, 953 00:42:29,460 --> 00:42:33,720 who have extremely high IQs, who still need round-the-clock care because 954 00:42:33,780 --> 00:42:38,140 of severe anxiety or epilepsy or any number of co-occurring conditions. 955 00:42:39,400 --> 00:42:40,340 Under the Lancet definition, 956 00:42:40,600 --> 00:42:42,280 those people are not profound. 957 00:42:43,020 --> 00:42:43,520 And yet their autism, 958 00:42:43,820 --> 00:42:47,540 by any ordinary meaning of the word, really is profound. 959 00:42:48,800 --> 00:42:51,320 The label sails straight past them. 960 00:42:52,080 --> 00:42:54,520 So it does not even do the one job that it was built to do. 961 00:42:55,220 --> 00:42:59,200 It's not a measurement of how autistic you are, it's a measure of how much intellectual 962 00:42:59,440 --> 00:43:01,140 disability you have. 963 00:43:01,560 --> 00:43:05,040 And Frith is leaning on it as though those two things are the same thing. 964 00:43:05,260 --> 00:43:05,840 They are not. 965 00:43:06,600 --> 00:43:09,940 Do you notice the move Frith has pulled earlier in the very same interview? 966 00:43:10,370 --> 00:43:13,700 She said she told us that she does not trust big data. 967 00:43:14,230 --> 00:43:14,730 She said: 968 00:43:15,000 --> 00:43:18,060 I'm a little bit sceptical of big data, 969 00:43:18,340 --> 00:43:20,900 basically because it is very, 970 00:43:21,060 --> 00:43:21,560 very noisy. 971 00:43:22,200 --> 00:43:22,700 And you don't, 972 00:43:23,150 --> 00:43:24,900 you also, the bigger the data, 973 00:43:25,670 --> 00:43:27,500 the more likely it is that there are errors 974 00:43:27,760 --> 00:43:28,680 in collection, 975 00:43:29,390 --> 00:43:31,460 in the kind of tests that you use. 976 00:43:32,180 --> 00:43:36,280 When you think of behavioural tests or cognitive tests, they will be minimal because, 977 00:43:36,520 --> 00:43:42,780 you know, you can't do two days or three days worth of assessment for one of, 978 00:43:42,960 --> 00:43:45,300 you know, one million individuals. 979 00:43:45,660 --> 00:43:46,120 Very, 980 00:43:46,120 --> 00:43:46,700 very noisy, 981 00:43:47,320 --> 00:43:49,440 right up until it appears to agree with her, 982 00:43:49,680 --> 00:43:50,540 at which point it becomes 983 00:43:50,560 --> 00:43:51,660 the bedrock of her argument. 984 00:43:52,220 --> 00:43:55,920 You do not get to disown the method and keep the conclusion. 985 00:43:56,620 --> 00:43:59,980 The subtyping studies that she's leaning on are big data bottom-up studies, 986 00:44:00,180 --> 00:44:00,620 the exact 987 00:44:00,620 --> 00:44:02,140 kind that she told us, she doesn't believe. 988 00:44:02,580 --> 00:44:06,140 She trusts the data when it flatters her and distrusts 989 00:44:06,140 --> 00:44:08,460 it when it does not. That is not scepticism, 990 00:44:08,930 --> 00:44:10,000 that is just shopping. 991 00:44:10,540 --> 00:44:12,040 At the end of the interview Frith 992 00:44:12,140 --> 00:44:13,860 says something that sounds almost humble. 993 00:44:14,100 --> 00:44:16,060 We are all different in these respects. 994 00:44:16,630 --> 00:44:17,340 So this would be 995 00:44:17,340 --> 00:44:21,480 an identity and absolutely wrong to pathologise. 996 00:44:21,900 --> 00:44:25,819 Now in these cases I would really wonder whether 997 00:44:25,840 --> 00:44:31,000 we could take out that now called subgroup from the spectrum and say, 998 00:44:31,240 --> 00:44:32,180 actually, 999 00:44:32,760 --> 00:44:33,260 you just 1000 00:44:33,340 --> 00:44:34,660 have a somewhat eccentric, 1001 00:44:34,920 --> 00:44:36,460 wonderful personality. 1002 00:44:36,960 --> 00:44:40,400 There is no way that there is anything wrong 1003 00:44:40,640 --> 00:44:41,140 with you. 1004 00:44:41,160 --> 00:44:42,260 This is a central proposal, 1005 00:44:42,540 --> 00:44:45,140 that late diagnosed group does not have autism, 1006 00:44:45,680 --> 00:44:46,600 but it has instead, 1007 00:44:47,160 --> 00:44:50,580 in her words, an extremely useful personality variant. 1008 00:44:51,140 --> 00:45:05,760 I think a wrong turn has been the pathologizing of what I think are probably extremely useful 1009 00:45:06,200 --> 00:45:11,160 personality variants that I would call autistic-like. 1010 00:45:11,540 --> 00:45:12,040 Yeah, 1011 00:45:13,320 --> 00:45:14,500 yeah capitalism I guess. 1012 00:45:14,890 --> 00:45:19,060 I mean she would call it autistic-like. I mean honestly if I'd 1013 00:45:19,060 --> 00:45:26,200 known I'd have called the channel Autistic Like or Autism Light AF or something and just saved 1014 00:45:26,380 --> 00:45:26,940 everyone all the bother. 1015 00:45:27,180 --> 00:45:27,680 Anyway, 1016 00:45:28,600 --> 00:45:29,740 take them out of the category, 1017 00:45:30,440 --> 00:45:32,020 tell them kindly that there is nothing 1018 00:45:32,140 --> 00:45:32,640 wrong with them, 1019 00:45:32,920 --> 00:45:33,240 right? 1020 00:45:33,240 --> 00:45:36,260 That's what she wants to do. If you reclassify somebody who has support needs, 1021 00:45:36,540 --> 00:45:37,440 that has a disability, 1022 00:45:38,000 --> 00:45:39,380 you reclassify them out of autism, 1023 00:45:39,880 --> 00:45:42,120 you reclassify them out of support. 1024 00:45:43,160 --> 00:45:45,120 The diagnosis is not a sticker, 1025 00:45:45,610 --> 00:45:49,340 it is the key potentially that can get you workplace adjustments, 1026 00:45:49,800 --> 00:45:50,500 educational support, 1027 00:45:50,840 --> 00:45:52,180 clinical care, 1028 00:45:52,530 --> 00:45:54,400 the basic recognition that you're not broken. 1029 00:45:57,880 --> 00:45:59,300 There is nothing wrong with you, 1030 00:45:59,480 --> 00:46:03,880 it sounds like a gift right up until the moment it it becomes 1031 00:46:04,720 --> 00:46:06,400 so you do not qualify right. 1032 00:46:06,940 --> 00:46:08,100 That's the same sentence, 1033 00:46:08,420 --> 00:46:09,780 there is nothing wrong with you so you 1034 00:46:09,780 --> 00:46:12,240 do you not qualify?" She's not saying the critical part, 1035 00:46:12,600 --> 00:46:13,540 she's not saying the conclusion, 1036 00:46:13,840 --> 00:46:14,340 she's just 1037 00:46:14,440 --> 00:46:17,440 sort of sitting on the nice part with the macaroons. 1038 00:46:17,770 --> 00:46:19,400 But she does gesture at the real machinery 1039 00:46:19,680 --> 00:46:24,800 underneath even if she doesn't dwell on it. Can we not find a way to meet all of these people's needs? 1040 00:46:25,060 --> 00:46:26,460 Well we have limited resources, 1041 00:46:26,890 --> 00:46:28,040 you have to remember that. 1042 00:46:29,100 --> 00:46:29,920 They have to be, 1043 00:46:30,340 --> 00:46:32,159 you know, distributed 1044 00:46:32,180 --> 00:46:33,960 wisely and fairly. 1045 00:46:35,120 --> 00:46:35,800 And it is very, 1046 00:46:35,960 --> 00:46:38,140 very difficult to judge that, 1047 00:46:38,620 --> 00:46:39,380 I have to say. 1048 00:46:39,620 --> 00:46:41,640 That is not a neuroscience finding, 1049 00:46:41,900 --> 00:46:42,400 by the way. 1050 00:46:43,220 --> 00:46:45,800 Who deserves support is a political question. 1051 00:46:46,120 --> 00:46:46,620 It's politics. 1052 00:46:47,020 --> 00:46:48,900 It's a moral question, an ethical question, 1053 00:46:49,620 --> 00:46:51,080 but it is not a scientific question. 1054 00:46:51,500 --> 00:46:53,420 She keeps sort of smuggling it into the conversation 1055 00:46:53,720 --> 00:46:55,280 as though it were a fact about the brain. 1056 00:46:56,120 --> 00:46:56,780 It is not. 1057 00:46:57,180 --> 00:46:59,420 Whether you are autistic is one question. 1058 00:47:00,080 --> 00:47:02,140 Whether the state will pay for your support 1059 00:47:02,620 --> 00:47:03,920 is a completely different question. 1060 00:47:04,380 --> 00:47:06,540 And she has quietly fused the two together 1061 00:47:07,200 --> 00:47:09,140 so that the answer to the second can be solved 1062 00:47:09,700 --> 00:47:11,560 by changing the answer to the first. 1063 00:47:11,920 --> 00:47:12,680 And while we're here, 1064 00:47:13,120 --> 00:47:15,980 let us actually look at this terrifying drain on resources, 1065 00:47:16,860 --> 00:47:18,440 the late identified adults, 1066 00:47:18,780 --> 00:47:19,280 right? 1067 00:47:19,520 --> 00:47:20,480 Because I am one of them. 1068 00:47:20,640 --> 00:47:22,480 And I'll tell you what I got from my diagnosis. 1069 00:47:22,700 --> 00:47:23,560 I got a letter, 1070 00:47:24,060 --> 00:47:24,740 I got a report. 1071 00:47:26,080 --> 00:47:27,260 I got six documents actually, 1072 00:47:27,500 --> 00:47:28,100 a nice little package. 1073 00:47:28,380 --> 00:47:31,180 I got a conversation and I got a reading list. 1074 00:47:31,750 --> 00:47:34,820 I got basically permission to stop hating myself 1075 00:47:35,040 --> 00:47:37,220 for the things that I've been failing at my whole life 1076 00:47:37,310 --> 00:47:38,120 without knowing why. 1077 00:47:39,420 --> 00:47:41,120 And that is the typical story, 1078 00:47:41,360 --> 00:47:41,860 by the way. 1079 00:47:42,120 --> 00:47:44,240 The vast majority of late identified autistic people 1080 00:47:44,720 --> 00:47:46,060 are not asking for a care package 1081 00:47:46,400 --> 00:47:48,740 or a residential placement or a penny of anything. 1082 00:47:49,720 --> 00:47:51,520 They're asking to be believed and to be supported, 1083 00:47:52,360 --> 00:47:54,300 to get the odd reasonable adjustment at work, 1084 00:47:54,450 --> 00:47:57,520 the kind that costs an employer roughly nothing. 1085 00:47:58,380 --> 00:48:00,540 to stop being told that they are imagining it. 1086 00:48:00,740 --> 00:48:02,060 The image Frith is leaning on 1087 00:48:02,260 --> 00:48:04,460 of hordes of fake autistic adults 1088 00:48:05,420 --> 00:48:07,300 swarming a finite pot of money 1089 00:48:08,080 --> 00:48:09,620 and starving the truly needly 1090 00:48:09,820 --> 00:48:12,400 is almost entirely imaginary. 1091 00:48:14,060 --> 00:48:15,580 The people that she wants to remove from the category 1092 00:48:15,740 --> 00:48:18,680 are for the most part not the ones drawing on the resources 1093 00:48:18,980 --> 00:48:20,180 that she is so worried about. 1094 00:48:21,100 --> 00:48:24,300 So the sort of austerity-flavoured rationing argument 1095 00:48:24,390 --> 00:48:26,060 does not even do what she needs it to. 1096 00:48:26,380 --> 00:48:29,280 She's picking the wrong people's pockets 1097 00:48:29,450 --> 00:48:31,120 to solve a problem that they were never causing. 1098 00:48:32,160 --> 00:48:35,020 We should ask, by the way, where this framing comes from, 1099 00:48:35,500 --> 00:48:37,540 because Frith is not having this thought in a vacuum. 1100 00:48:38,400 --> 00:48:39,740 I've spent a lot of time on this channel 1101 00:48:40,020 --> 00:48:41,640 mapping the autism research machine, 1102 00:48:41,860 --> 00:48:42,860 the funding bodies, 1103 00:48:43,420 --> 00:48:44,980 the genetic first priorities, 1104 00:48:45,660 --> 00:48:47,540 the organizations with very loud opinions 1105 00:48:47,940 --> 00:48:51,200 and the very few autistic people anywhere near the top, 1106 00:48:51,380 --> 00:48:52,780 anywhere near the steering wheel, 1107 00:48:53,080 --> 00:48:53,580 right? 1108 00:48:53,620 --> 00:48:55,800 The same world that wants to subtype autism 1109 00:48:56,600 --> 00:48:57,100 for a, you know, 1110 00:48:57,280 --> 00:48:59,220 quote, "precision diagnosis and care" 1111 00:48:59,680 --> 00:49:03,100 is the world whose framing she has picked up and run with. 1112 00:49:03,540 --> 00:49:04,760 She says it's not pathology. 1113 00:49:05,240 --> 00:49:07,300 The people that she has just handed this argument to 1114 00:49:07,760 --> 00:49:09,040 think it is nothing but. 1115 00:49:09,480 --> 00:49:11,040 And the biggest tell for me, 1116 00:49:11,600 --> 00:49:15,060 the thing that should kind of make everyone pause 1117 00:49:15,700 --> 00:49:17,960 is that her own student broke with her on this. 1118 00:49:18,180 --> 00:49:19,680 Simon Baron Cohen on the BBC 1119 00:49:20,300 --> 00:49:21,680 agreed that the word autism 1120 00:49:21,700 --> 00:49:23,600 may have stretched a little too wide, 1121 00:49:23,710 --> 00:49:24,980 which is a reasonable thing to say, 1122 00:49:25,820 --> 00:49:28,520 and then said that there is no evidence of over-diagnosis. 1123 00:49:29,360 --> 00:49:32,120 The man who helped her build the framework 1124 00:49:32,620 --> 00:49:33,600 looked at the same situation 1125 00:49:33,960 --> 00:49:36,080 and could not follow her to the same conclusion. 1126 00:49:37,280 --> 00:49:39,260 When your most famous student plants a flag 1127 00:49:39,580 --> 00:49:41,100 short of where you are standing, 1128 00:49:41,300 --> 00:49:42,380 that is worth noticing. 1129 00:49:43,300 --> 00:49:45,580 Every objective bar that she set for the rest of us, 1130 00:49:45,640 --> 00:49:46,760 she's missed herself. 1131 00:49:47,420 --> 00:49:48,760 And she told you so on camera. 1132 00:49:48,900 --> 00:49:51,740 She demands of us what she admits she never delivers. 1133 00:49:52,240 --> 00:49:54,440 It's not a category falling apart. 1134 00:49:54,680 --> 00:49:57,700 It's a category finally being asked to account for reality 1135 00:49:57,960 --> 00:50:00,640 and straining because it was drawn far too small 1136 00:50:00,740 --> 00:50:01,420 in the first place. 1137 00:50:02,060 --> 00:50:04,660 And as you say, you could call it type two autism 1138 00:50:04,960 --> 00:50:06,200 or whatever it is, 1139 00:50:06,840 --> 00:50:08,640 but why not call it, you know, 1140 00:50:08,720 --> 00:50:10,700 find a name that actually is suitable 1141 00:50:11,060 --> 00:50:14,200 and recognises that this is a different, 1142 00:50:14,420 --> 00:50:16,040 a different thing. 1143 00:50:16,400 --> 00:50:17,500 Go right back to the beginning. 1144 00:50:17,680 --> 00:50:20,280 The very first person ever formally diagnosed with autism, 1145 00:50:20,720 --> 00:50:21,440 Donald Triplett. 1146 00:50:22,120 --> 00:50:25,720 The man Leo Kanner literally labeled case one in 1943. 1147 00:50:26,700 --> 00:50:27,380 What was he like? 1148 00:50:28,130 --> 00:50:29,220 He had a degree in French. 1149 00:50:29,330 --> 00:50:30,560 He had perfect pitch too. 1150 00:50:31,200 --> 00:50:33,480 He could multiply three digit numbers in his head in seconds. 1151 00:50:33,940 --> 00:50:37,040 He worked at the bank, the same bank for 65 years. 1152 00:50:37,760 --> 00:50:38,860 He loved traveling the world. 1153 00:50:39,080 --> 00:50:39,800 He was verbal, 1154 00:50:40,040 --> 00:50:40,840 gifted, independent, 1155 00:50:41,020 --> 00:50:43,560 and he lived a long and contented life on his own terms. 1156 00:50:44,300 --> 00:50:45,420 That's patient one. 1157 00:50:46,360 --> 00:50:49,080 That is the foundation stone of the entire diagnosis. 1158 00:50:50,360 --> 00:50:53,680 So the idea that real autism means a non-speaking child 1159 00:50:53,840 --> 00:50:54,660 with an intellectual disability 1160 00:50:55,400 --> 00:50:57,900 and that a verbal capable adult cannot be autistic 1161 00:50:58,520 --> 00:50:59,320 is just wrong. 1162 00:51:01,100 --> 00:51:03,160 It was wrong in the very first case in the file 1163 00:51:03,700 --> 00:51:04,660 and we did not drift away 1164 00:51:04,780 --> 00:51:07,020 from some pure original meaning of autism. 1165 00:51:08,800 --> 00:51:10,760 We just spent 80 years forgetting it 1166 00:51:10,860 --> 00:51:11,920 because intellectual disability 1167 00:51:12,200 --> 00:51:15,120 kept getting tangled up with autism 1168 00:51:15,140 --> 00:51:16,320 and confusing the whole picture. 1169 00:51:17,420 --> 00:51:18,900 We can separate the two questions 1170 00:51:19,190 --> 00:51:20,940 that she spent the whole interview blurring together. 1171 00:51:22,060 --> 00:51:23,920 Is autism a scientifically valid construct? 1172 00:51:24,150 --> 00:51:25,000 The answer is, 1173 00:51:25,210 --> 00:51:26,000 to the best of our knowledge, 1174 00:51:26,160 --> 00:51:26,660 yes. 1175 00:51:27,040 --> 00:51:29,080 By the same standard psychology uses 1176 00:51:29,350 --> 00:51:31,120 for every other construct it has. 1177 00:51:31,960 --> 00:51:35,880 And the standard her own theories struggled to meet. 1178 00:51:37,520 --> 00:51:38,560 Question two is, 1179 00:51:39,130 --> 00:51:41,020 who should the state pay to support? 1180 00:51:41,480 --> 00:51:44,140 And that is a political fight, a real and hard one, 1181 00:51:44,940 --> 00:51:46,400 but it's not answered by a brain scan 1182 00:51:46,560 --> 00:51:48,940 and it's not answered by deleting people from a diagnosis. 1183 00:51:49,520 --> 00:51:50,900 Why Yuta Frith is getting so involved 1184 00:51:50,940 --> 00:51:54,520 in this funding question and the politics of disability 1185 00:51:56,480 --> 00:51:58,060 at such a late stage in her life, 1186 00:51:58,240 --> 00:51:59,280 I do not know. 1187 00:52:00,220 --> 00:52:02,340 And in the end, she tells you all of this herself. 1188 00:52:04,180 --> 00:52:05,700 Right at the close, the journalist asks 1189 00:52:05,880 --> 00:52:07,840 whether we are at a turning point in understanding autism 1190 00:52:08,060 --> 00:52:10,360 and she does something I actually admire. 1191 00:52:10,840 --> 00:52:12,280 She refuses to oversell it. 1192 00:52:12,500 --> 00:52:13,380 I'm not really, 1193 00:52:14,040 --> 00:52:19,240 I don't want to pretend that I actually know anything 1194 00:52:19,460 --> 00:52:25,940 or have the kind of facts that I could be sure about. 1195 00:52:26,090 --> 00:52:27,580 I think it's all in flux, 1196 00:52:28,540 --> 00:52:29,040 sadly, 1197 00:52:29,160 --> 00:52:31,220 but that's science. 1198 00:52:32,820 --> 00:52:35,040 It's all in flux, I cannot be certain of anything. 1199 00:52:35,900 --> 00:52:36,400 And also, 1200 00:52:36,610 --> 00:52:37,820 this category should be broken up. 1201 00:52:37,880 --> 00:52:39,460 These people removed, the label retired. 1202 00:52:39,630 --> 00:52:44,000 You cannot build a demolition order on a foundation 1203 00:52:44,020 --> 00:52:45,420 you've told us is still moving. 1204 00:52:45,920 --> 00:52:49,720 Do you think this is a critical turning point for our understanding? 1205 00:52:50,080 --> 00:52:53,680 Or we're nearing a turning point in our understanding of autism once again? 1206 00:52:54,100 --> 00:52:55,440 I think we're at a low point, 1207 00:52:55,980 --> 00:52:57,020 not at a turning point. 1208 00:52:57,640 --> 00:53:04,440 I think it could be a time where we have to really rethink the whole idea. 1209 00:53:05,360 --> 00:53:09,020 And as far as I can see, nobody is really brave enough to do that. 1210 00:53:09,260 --> 00:53:12,220 Surely the problem is that we've gated help, 1211 00:53:13,300 --> 00:53:14,420 any sort of assistance, 1212 00:53:15,560 --> 00:53:17,160 behind a diagnosis 1213 00:53:17,880 --> 00:53:19,340 that people have to fight for, 1214 00:53:19,480 --> 00:53:20,940 for years on a waiting list, 1215 00:53:21,840 --> 00:53:22,880 just to be believed. 1216 00:53:23,200 --> 00:53:26,060 Frith looking at that mess describes the problem is the label. 1217 00:53:26,780 --> 00:53:28,180 I think the problem is the gate. 1218 00:53:29,080 --> 00:53:29,740 And so finally, 1219 00:53:30,520 --> 00:53:31,020 the word, 1220 00:53:31,280 --> 00:53:34,080 the one that I asked you to hold right at the start. 1221 00:53:34,940 --> 00:53:37,600 She said it was dangerous to cling to the autism label. 1222 00:53:38,680 --> 00:53:41,680 I do not think the dangerous thing is a late diagnosed woman 1223 00:53:41,960 --> 00:53:43,060 finding a word that explains her life. 1224 00:53:43,280 --> 00:53:46,040 I think the most dangerous thing is telling a quarter 1225 00:53:46,050 --> 00:53:47,960 of a million people stuck on a waiting list 1226 00:53:49,340 --> 00:53:51,380 that the word they are waiting for is meaningless 1227 00:53:52,060 --> 00:53:54,180 in the middle of a fight over whether to fund them at all. 1228 00:53:54,740 --> 00:53:56,560 The danger was never the label, 1229 00:53:57,330 --> 00:53:58,780 the danger is the withdrawal. 1230 00:54:00,120 --> 00:54:03,100 The danger is careless statements from ivory towers. 1231 00:54:04,200 --> 00:54:07,320 That is why the title of this video says what it says, 1232 00:54:07,660 --> 00:54:09,400 not because Uta is a bad person, 1233 00:54:09,620 --> 00:54:10,960 she clearly is not. 1234 00:54:11,580 --> 00:54:13,920 She's a brilliant one who did real good 1235 00:54:14,140 --> 00:54:17,280 and has talked herself into a genuinely dangerous place. 1236 00:54:17,840 --> 00:54:20,200 Being brilliant has never once stopped anyone 1237 00:54:20,330 --> 00:54:22,340 from being dangerously wrong. 1238 00:54:22,820 --> 00:54:24,400 If this video helps something stick into place, 1239 00:54:24,910 --> 00:54:25,820 stim the subscribe button. 1240 00:54:26,280 --> 00:54:27,700 It genuinely tells the algorithm 1241 00:54:27,770 --> 00:54:29,140 that this is worth someone's time 1242 00:54:29,620 --> 00:54:31,260 and to show it to the next person who needs it 1243 00:54:31,380 --> 00:54:33,400 and leave a comment telling me where you landed, 1244 00:54:33,580 --> 00:54:35,180 even if you think I got something wrong, 1245 00:54:35,620 --> 00:54:37,079 especially if you think I got something wrong 1246 00:54:37,100 --> 00:54:38,580 because that's half the fun. 1247 00:54:38,760 --> 00:54:41,260 And if you want to see where all this started, 1248 00:54:41,760 --> 00:54:44,140 I made an earlier video on her first round of comments, 1249 00:54:44,860 --> 00:54:47,240 the calmer one before she doubled down. 1250 00:54:48,460 --> 00:54:50,380 And that one is the one to watch next, 1251 00:54:50,620 --> 00:54:51,120 it's right. 1252 00:54:51,320 --> 00:54:53,060 Also in the comments is a deep dive 1253 00:54:53,220 --> 00:54:54,220 on the four subtype studies, 1254 00:54:54,360 --> 00:54:56,640 the parent reported safari funded ones we talked about. 1255 00:54:57,200 --> 00:54:58,000 That's right here too. 1256 00:54:58,120 --> 00:55:00,240 And it goes a lot deeper into the eugenics adjacent 1257 00:55:00,640 --> 00:55:01,900 end of the swimming pool than I did today. 1258 00:55:02,160 --> 00:55:02,920 And if you'd like more of this 1259 00:55:03,540 --> 00:55:05,740 and you would like to help me to keep making it, 1260 00:55:05,920 --> 00:55:07,720 I do have a Patreon and I wanna be really clear 1261 00:55:07,720 --> 00:55:09,560 about how it works because I never want anyone 1262 00:55:09,620 --> 00:55:10,300 to feel pressured. 1263 00:55:10,700 --> 00:55:12,900 Everything I make for YouTube stays free always. 1264 00:55:13,560 --> 00:55:16,340 What it actually pays for is all the unglamorous stuff, 1265 00:55:16,480 --> 00:55:17,020 the software, 1266 00:55:17,480 --> 00:55:18,500 the Yorkshire tea, 1267 00:55:18,900 --> 00:55:19,700 the music, 1268 00:55:19,880 --> 00:55:20,380 the footage, 1269 00:55:20,480 --> 00:55:21,000 the licenses, 1270 00:55:21,440 --> 00:55:21,940 cat biscuits, 1271 00:55:22,120 --> 00:55:22,640 the servers, 1272 00:55:22,940 --> 00:55:24,620 and genuinely enormous numbers of hours 1273 00:55:25,080 --> 00:55:26,460 that a video like this one swallows. 1274 00:55:27,120 --> 00:55:29,920 A long form essay like today is the better part 1275 00:55:29,920 --> 00:55:31,980 of a working week and I've been doing most of the writing 1276 00:55:32,020 --> 00:55:34,120 for this video with one working eye. 1277 00:55:34,780 --> 00:55:35,500 if you've missed it. 1278 00:55:36,170 --> 00:55:38,020 I made two short films on the process 1279 00:55:38,300 --> 00:55:40,020 of my cataract diagnosis and surgery 1280 00:55:40,230 --> 00:55:41,800 from my perspective as an autistic adult. 1281 00:55:42,370 --> 00:55:43,520 And there is a lot in there, 1282 00:55:43,690 --> 00:55:44,500 if that interests you, 1283 00:55:44,840 --> 00:55:46,260 those videos are in the description below. 1284 00:55:46,860 --> 00:55:49,860 The lowest tier is the kitten tier at four US dollars a month. 1285 00:55:50,060 --> 00:55:51,420 And the main thing it gets you, 1286 00:55:51,530 --> 00:55:53,980 other than a selection of the finest exclusive videos, 1287 00:55:54,500 --> 00:55:55,040 is a really, 1288 00:55:55,280 --> 00:55:56,560 it's not really a perk, 1289 00:55:56,780 --> 00:55:57,620 it's a place. 1290 00:55:58,240 --> 00:56:00,260 It's a key to the scratching post discord community. 1291 00:56:00,780 --> 00:56:03,260 It is, and I say this as a man with 16 cats 1292 00:56:03,280 --> 00:56:04,920 and a professional interest in cozy. 1293 00:56:05,700 --> 00:56:06,680 One of the kindest, 1294 00:56:07,040 --> 00:56:08,460 warmest corners of the internet I know. 1295 00:56:08,580 --> 00:56:10,700 Hundreds of neurodivergence, and some neurotypicals too, 1296 00:56:11,240 --> 00:56:12,100 being gentle with each other, 1297 00:56:12,400 --> 00:56:12,900 sharing memes, 1298 00:56:13,240 --> 00:56:13,740 sharing wins, 1299 00:56:13,920 --> 00:56:15,500 sharing the odd bad day. 1300 00:56:15,740 --> 00:56:19,200 Plus around four exclusive members only live streams a month. 1301 00:56:19,540 --> 00:56:21,040 There is no expectation that you talk, 1302 00:56:21,360 --> 00:56:23,380 plenty of people just lurk and warm their hands on it, 1303 00:56:23,660 --> 00:56:24,620 and that is completely fine. 1304 00:56:24,980 --> 00:56:26,100 Your name goes into the credits 1305 00:56:26,240 --> 00:56:26,920 at the end of these videos, 1306 00:56:27,560 --> 00:56:28,220 at the food bowl, 1307 00:56:28,540 --> 00:56:29,260 sorry, at the credits, 1308 00:56:29,560 --> 00:56:30,820 unless you would rather I didn't, 1309 00:56:31,240 --> 00:56:32,280 in which case just tell me. 1310 00:56:32,620 --> 00:56:34,780 And if Patreon is not in the budget this month or any month, 1311 00:56:35,060 --> 00:56:36,340 please do not give it a second thought. 1312 00:56:36,700 --> 00:56:38,660 The single best way to support me costs nothing at all. 1313 00:56:39,160 --> 00:56:40,700 Watch the videos I'll be uploading to YouTube. 1314 00:56:41,180 --> 00:56:43,620 Stim the subscribe button and leave a comment 1315 00:56:44,020 --> 00:56:44,820 and tap the like. 1316 00:56:45,080 --> 00:56:46,620 That helps more than you know and is free. 1317 00:56:46,940 --> 00:56:49,100 Please be kind to the late identified autistic person 1318 00:56:49,180 --> 00:56:49,680 in your life, 1319 00:56:50,200 --> 00:56:51,200 even if that person is you, 1320 00:56:51,580 --> 00:56:52,600 especially if that person is you. 1321 00:56:53,040 --> 00:56:53,900 And I'll see you in the next one. 1322 00:56:54,400 --> 00:56:54,900 Bye for now.105501

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