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Downloaded from
YTS.BZ
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Official YIFY movies site:
YTS.BZ
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Very tiny.
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Two minutes.
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Oh, look at that sweet baby.
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Oh. Oh, he smells Mama.
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You're precious.
Yeah. Are you precious?
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Yes, look at Mama.
Look at your mama.
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Wash your hands.
Hmm. Playing next.
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Okay. Here too.
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All right.
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- History.
- Okay.
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- Okay.
- Okay. Sounds good.
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I had no idea there was
anything wrong with him.
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We had no issues.
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Evan has a plate.
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Mama has a plate.
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And keep in mind
as we tell these stories,
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we're talking about
the early '90s.
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Look at Daddy. Look.
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Look at Daddy. Good boy.
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I'm not sure I'd ever heard
the word autism before.
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If I had, it just didn't seem
to be a prevalent...
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...topic.
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- Say "hi" to Paul.
- Say hi, Paul.
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Um, see you Sunday.
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- All right.
- All right.
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- Bye.
- Bye.
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00:03:00,484 --> 00:03:02,965
My name is Evan Mitchell James.
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00:03:03,139 --> 00:03:08,188
I was born on April 24th, 1991.
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My dad is Dennis James.
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00:03:11,278 --> 00:03:14,063
My mommy is Beth James Burns.
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I am a very special person.
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Being a part of Evan's life
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has 100% impacted me
in the best way
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00:03:22,027 --> 00:03:24,291
because he's got
contagious energy.
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00:03:24,465 --> 00:03:27,946
I still refer to him
as "my little boy,"
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but he is a grown man
with autism.
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00:03:31,211 --> 00:03:34,431
He's talented.
He's a great mimic.
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00:03:34,605 --> 00:03:36,651
How are you? I'm fine.
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00:03:36,825 --> 00:03:38,218
He loves an audience.
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If he knows
that he's got an audience,
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he loves it,
and he's not stopping.
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00:03:44,354 --> 00:03:47,009
Evan sees the world
as his playground.
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00:03:47,183 --> 00:03:48,880
Nothing but play and fun
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until we inconvenience him
with scheduled dinners,
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baths, showers,
and brushing your teeth.
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00:03:54,582 --> 00:03:56,888
I think
he's much more intelligent
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than people may assume he is.
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I don't know.
I just think he's so cool,
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00:04:01,763 --> 00:04:03,634
and he shows his love
in, like, cool ways.
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00:04:03,808 --> 00:04:05,636
And I think
all those things go back
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00:04:05,810 --> 00:04:10,467
to what a great job
Beth had done with Evan.
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00:04:10,641 --> 00:04:12,817
I suspect that, at this point,
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00:04:12,991 --> 00:04:16,865
my label is Evan's mom at 60.
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00:04:17,039 --> 00:04:19,998
But I don't think
that totally sums up a person.
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I have lots of hats,
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00:04:21,826 --> 00:04:24,133
and I think that may have been
the saving grace.
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00:04:24,307 --> 00:04:27,658
And that I have been able
to continue to wear lots of hats
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other than just Evan's mom.
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We are in the middle,
South Central Arkansas.
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Population of about 18,000.
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A hundred miles
from the nearest airport,
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00:04:43,152 --> 00:04:46,068
be it Texarkana,
Little Rock, Shreveport.
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00:04:46,242 --> 00:04:49,463
We have the Art Center,
Murphy Arts District.
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We do a film festival.
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00:04:51,639 --> 00:04:54,119
For a little town,
we do have a lot of culture.
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Being in a small southern town
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00:04:56,252 --> 00:04:58,733
proved to be
part of the solution for us,
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00:04:58,907 --> 00:05:02,824
and I think that people might
consider that a little unusual.
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00:05:03,738 --> 00:05:05,479
Take us to the beginning.
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00:05:05,653 --> 00:05:08,482
And b-- by the beginning,
I mean the beginning of Evan.
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What about your wife, Chris?
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00:05:15,663 --> 00:05:19,319
Oh, forget her.
Me and her hardly talk anymore.
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00:05:19,493 --> 00:05:22,060
Well, Dennis and I--
You know, I was already 27
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00:05:22,234 --> 00:05:24,367
when Dennis and I got married.
He was 29.
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00:05:24,541 --> 00:05:26,761
You know,
there's a general expectation,
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00:05:26,935 --> 00:05:29,024
certainly of my generation,
you know,
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00:05:29,198 --> 00:05:32,506
that ultimately
you would get married
and you would have children.
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Not having children
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00:05:36,466 --> 00:05:38,816
or not being able
to have children
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didn't-- wasn't even part
of my imagination.
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00:05:43,125 --> 00:05:46,346
I was actually here when Beth
had one of her miscarriages.
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And that was just heartbreaking.
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00:05:48,086 --> 00:05:50,611
I'd never gone through that
with anybody.
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For the first time,
I was realizing
that life does not always
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00:05:53,091 --> 00:05:54,615
turn out the way
you think it's going to.
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00:05:54,789 --> 00:05:57,052
Because after the first
unsuccessful pregnancy,
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00:05:57,226 --> 00:05:59,271
I was like, "Okay, well, that,
that happens to people."
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00:05:59,924 --> 00:06:02,840
The second one, I was like,
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00:06:03,014 --> 00:06:05,974
"Oh, wow,
this is gonna be a deal."
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00:06:14,548 --> 00:06:17,159
We went to the doctor a lot,
we watched it a lot closer,
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00:06:17,333 --> 00:06:20,641
and we were able to have
a successful pregnancy.
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00:06:20,815 --> 00:06:22,904
I am one of his godparents.
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He's actually--
I'm, I'm one of five.
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00:06:25,733 --> 00:06:27,604
They didn't trust me by myself.
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But they made a video
and sent to me in California
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00:06:30,955 --> 00:06:33,349
of the first time
Beth was holding Evan.
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Say, "I'm two weeks old,
and I'm precious."
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00:06:40,574 --> 00:06:43,185
He really was
just the most beautiful baby,
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young child that you ever saw.
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He, he really did-- He looked
like an angel. He really did.
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00:06:51,672 --> 00:06:53,587
See, go look at Baby Evan,
Jordan.
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He crawled. He walked.
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He was pleasant.
He was really pleasant.
106
00:07:02,204 --> 00:07:04,249
I mean, we have a baby book.
It's really funny.
107
00:07:04,424 --> 00:07:05,729
And here are
all of his pictures.
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00:07:05,903 --> 00:07:08,166
You know, his, his baptism,
his walking,
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his family, his first home.
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00:07:10,473 --> 00:07:13,433
And then it,
and then it just kind of stops
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00:07:13,607 --> 00:07:15,435
because the next page
is first word.
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00:07:19,047 --> 00:07:24,052
He wouldn't respond
to even a simple instruction.
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Like, "Come here."
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So I thought, "I believe
he has a hearing problem."
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So, I would do
little experiments.
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Like, I would go
to the other part of the house,
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and I would hit a key
on the piano
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or play with the toy,
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00:07:38,719 --> 00:07:41,504
or start the movie,
and he would come.
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00:07:41,678 --> 00:07:44,420
"Okay, he doesn't have
a hearing problem."
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00:07:46,117 --> 00:07:48,337
He had a big birthday party
in their backyard,
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00:07:48,511 --> 00:07:51,383
and it would have been
about the time
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00:07:51,558 --> 00:07:53,298
he should have started
having some words,
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00:07:53,473 --> 00:07:55,736
but nothing noticeable yet.
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00:07:56,476 --> 00:07:58,826
It took a while for me
to convince anyone
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that there was a problem
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00:08:01,002 --> 00:08:04,353
because he was so congenial,
and so handsome,
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00:08:04,527 --> 00:08:08,096
and so fun, and sweet, and kind.
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00:08:08,270 --> 00:08:10,098
I do think Dennis,
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00:08:10,272 --> 00:08:12,970
he always thought
Evan was gonna talk,
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00:08:13,144 --> 00:08:15,799
and he would just go,
"Why won't you talk to me?
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00:08:15,973 --> 00:08:17,105
Talk to me."
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00:08:17,584 --> 00:08:19,760
I finally did begin to do
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00:08:19,934 --> 00:08:22,197
a little investigating
on my own,
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00:08:22,371 --> 00:08:25,766
and I had come up
with the term autism.
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00:08:29,596 --> 00:08:32,642
I knew intuitively--
I didn't know what it was,
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00:08:32,816 --> 00:08:36,472
but I knew things were not going
as they should be going.
138
00:08:36,646 --> 00:08:39,693
And so we put Evan
into speech therapy
139
00:08:39,867 --> 00:08:43,653
until we could get an evaluation
at Children's Hospital.
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00:08:43,827 --> 00:08:46,961
I said, "Now, Dan, here's
what they're going to tell us."
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00:08:47,570 --> 00:08:50,704
And even to that night,
bless his heart,
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00:08:50,878 --> 00:08:52,532
he was in total denial.
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00:08:52,706 --> 00:08:53,837
"No, they're not."
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00:08:54,838 --> 00:08:56,971
"Yes, they are."
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00:08:58,189 --> 00:08:59,930
They did, in fact,
that day, tell us that
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00:09:00,104 --> 00:09:02,063
they believe
he suffered from autism,
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00:09:02,237 --> 00:09:03,717
not a developmental delay.
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00:09:03,891 --> 00:09:06,197
They used the big A word
plain as day.
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00:09:07,372 --> 00:09:09,026
They would say things
in that evaluation
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00:09:09,200 --> 00:09:11,376
like, "You'll probably never
be able to go to church.
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00:09:11,551 --> 00:09:13,422
You'll probably never
be able to go to a restaurant."
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00:09:13,596 --> 00:09:17,034
And I was thinking,
"We already do do those things."
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00:09:17,208 --> 00:09:20,342
They did tell me that he needed
to get occupational therapy,
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00:09:20,516 --> 00:09:22,213
and speech therapy,
and physical therapy,
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and all these therapies,
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00:09:24,215 --> 00:09:25,826
which was the right advice,
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00:09:26,000 --> 00:09:30,439
but really, practical living,
it was pretty much...
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00:09:31,614 --> 00:09:33,137
..."Have a nice life."
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00:09:34,312 --> 00:09:37,098
And not because they were bad,
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00:09:37,272 --> 00:09:40,188
but because
they didn't know either.
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00:09:41,668 --> 00:09:43,800
I don't remember feeling angry.
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00:09:43,974 --> 00:09:48,500
I'm not even sure at that point
I even felt sad or disappointed.
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00:09:48,675 --> 00:09:51,721
Those things have come to me,
but at that point, it was just,
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00:09:51,895 --> 00:09:53,810
"Okay, we're taking
this three-year-old kid,
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00:09:53,984 --> 00:09:55,595
and we're gonna create
a life for him now.
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00:09:55,769 --> 00:09:57,858
Now, how do I learn
how to do that?"
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00:10:02,776 --> 00:10:04,865
Back in March,
when the COVID numbers
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00:10:05,039 --> 00:10:07,215
reached pandemic proportions,
169
00:10:07,389 --> 00:10:10,087
we felt very insecure about him
being in an environment
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00:10:10,261 --> 00:10:11,611
that we could not control.
171
00:10:13,830 --> 00:10:16,572
Transitions are very difficult
for autistic people in general,
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00:10:16,746 --> 00:10:18,661
but they're especially difficult
for Evan.
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00:10:18,835 --> 00:10:20,663
So, what we've learned over time
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00:10:20,837 --> 00:10:23,057
is that we need
to clearly explain
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00:10:23,231 --> 00:10:25,755
when there's going to be
a transition.
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00:10:26,495 --> 00:10:29,237
And since he's been with us
since March,
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00:10:29,411 --> 00:10:32,240
going back
to his regular schedule
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00:10:32,414 --> 00:10:36,636
is going to be a serious
emotional transition for him,
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00:10:36,810 --> 00:10:38,376
for which
he is not going to like.
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00:10:38,550 --> 00:10:41,031
So, what we've also learned
is when we do that,
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00:10:41,205 --> 00:10:43,860
if we'll write it down on paper
and tell a story about it,
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00:10:44,034 --> 00:10:47,037
he seems to understand,
begin to transition.
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00:10:47,211 --> 00:10:50,214
He can read it over and over
so he knows what to do.
184
00:10:50,388 --> 00:10:52,042
So-- Yes, you'll understand.
185
00:10:52,216 --> 00:10:53,696
So, that's what we're gonna do.
186
00:10:53,870 --> 00:10:55,872
I've got my supplies,
and I'm gonna get Evan,
187
00:10:56,046 --> 00:10:59,354
and we're going to write a story
about what we're about to do.
188
00:10:59,528 --> 00:11:02,226
- Okay, Ev, it's-- We need to...
- Oh.
189
00:11:02,400 --> 00:11:03,793
...write a story today.
190
00:11:03,967 --> 00:11:06,317
Can you sit down?
Mom's got to write a story.
191
00:11:07,754 --> 00:11:09,886
- Story.
- Story time. Okay?
192
00:11:10,060 --> 00:11:11,932
- Story time.
- Are you ready?
193
00:11:12,106 --> 00:11:13,237
Ready.
194
00:11:13,411 --> 00:11:15,370
Okay. Today is?
195
00:11:16,240 --> 00:11:17,241
Today.
196
00:11:24,466 --> 00:11:25,510
What is today?
197
00:11:27,774 --> 00:11:29,210
Sunday.
198
00:11:29,384 --> 00:11:30,907
Today is Sunday.
199
00:11:33,040 --> 00:11:33,954
Evan...
200
00:11:37,784 --> 00:11:39,263
...has been...
201
00:11:39,437 --> 00:11:43,137
"...staying at Madison House
202
00:11:43,311 --> 00:11:47,707
with Mom and Paul
for a long time."
203
00:11:47,881 --> 00:11:48,882
Evan...
204
00:11:50,405 --> 00:11:52,973
...stayed with...
205
00:11:54,757 --> 00:11:55,889
...Mom...
206
00:11:57,238 --> 00:11:58,805
...and Paul
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00:11:58,979 --> 00:12:02,243
because many people...
208
00:12:04,462 --> 00:12:05,812
...were sick.
209
00:12:05,986 --> 00:12:10,207
"It is time
for Evan to go to..."
210
00:12:11,818 --> 00:12:13,602
No, Evan.
211
00:12:13,776 --> 00:12:16,910
- That's a no, no. Evan's house.
- Mmm-hmm.
212
00:12:17,475 --> 00:12:18,520
Mom...
213
00:12:19,739 --> 00:12:22,698
...will miss him...
214
00:12:25,483 --> 00:12:27,921
...very much.
215
00:12:28,095 --> 00:12:29,052
Oh!
216
00:12:30,097 --> 00:12:31,185
Oh!
217
00:12:31,359 --> 00:12:32,969
- Are you good?
- I'm good.
218
00:12:33,143 --> 00:12:34,405
Go to Magnolia tomorrow?
219
00:12:38,453 --> 00:12:39,933
- Yes?
- Yes.
220
00:12:40,107 --> 00:12:42,109
You're a good guy.
I'm proud of you.
221
00:12:42,979 --> 00:12:43,980
All right.
222
00:12:52,946 --> 00:12:54,077
Anything you wanna say?
223
00:12:56,036 --> 00:12:58,516
One two, three, four.
224
00:12:59,604 --> 00:13:01,171
Yes, you can take
whatever you want.
225
00:13:06,873 --> 00:13:08,352
...job.
226
00:13:08,526 --> 00:13:10,354
Yes. Mom has a job.
227
00:13:11,355 --> 00:13:12,661
Mom has to go back to her job,
228
00:13:12,835 --> 00:13:14,358
and you have to go back
to your house.
229
00:13:16,970 --> 00:13:17,797
Monday.
230
00:13:18,841 --> 00:13:21,452
Monday, Tuesday, Wednesday.
231
00:13:21,626 --> 00:13:22,671
Mom will come get you.
232
00:13:22,845 --> 00:13:24,716
- See you Wednesday.
- Yes.
233
00:13:26,762 --> 00:13:28,764
- Wednesday.
- Mmm-hmm.
234
00:13:28,938 --> 00:13:30,635
- Wednesday.
- Okay.
235
00:13:32,072 --> 00:13:33,029
Good job.
236
00:13:34,422 --> 00:13:35,379
Robert.
237
00:13:36,337 --> 00:13:37,555
Yes, Robert's there.
238
00:13:38,643 --> 00:13:39,514
Uh-huh.
239
00:13:44,693 --> 00:13:47,087
He doesn't usually get upset
when he's on a regular schedule.
240
00:13:47,261 --> 00:13:49,306
We just do his schedule,
and he's okay with it.
241
00:13:49,480 --> 00:13:51,482
So, him getting upset...
242
00:13:51,656 --> 00:13:53,484
He usually just-- "Okay,
that's my life," you know.
243
00:13:53,658 --> 00:13:56,270
But that, that hasn't
been his life, so...
244
00:13:56,444 --> 00:13:57,749
Show Mom your book.
245
00:13:58,402 --> 00:13:59,273
Um...
246
00:14:01,928 --> 00:14:04,104
So, he was a little more upset
than he would normally be.
247
00:14:04,278 --> 00:14:06,410
Normally, he just does
whatever he's supposed to do.
248
00:14:06,584 --> 00:14:07,890
This is Dad.
249
00:14:09,239 --> 00:14:11,241
- "Evan goes to college."
Yep.
- Yeah.
250
00:14:11,415 --> 00:14:13,461
So, this is his sort of, like,
I-know-you book.
251
00:14:16,029 --> 00:14:18,901
El Dorado is a small town.
My parents live there.
252
00:14:19,075 --> 00:14:21,382
My sister actually was working
at the hospital
253
00:14:21,556 --> 00:14:23,210
the night that Evan was born.
254
00:14:23,384 --> 00:14:26,953
And then, you know,
two to three years after that
255
00:14:27,127 --> 00:14:28,650
is when I had heard that
256
00:14:28,824 --> 00:14:31,958
Evan had been diagnosed
with autism.
257
00:14:38,790 --> 00:14:40,357
I had a close-knit family.
258
00:14:40,531 --> 00:14:42,142
Dennis had a close-knit family.
259
00:14:42,316 --> 00:14:45,928
We had a close group of friends.
260
00:14:46,102 --> 00:14:50,280
I didn't feel the need
to try to hide him.
261
00:14:50,454 --> 00:14:53,457
Beth had very limited resources.
262
00:14:53,631 --> 00:14:54,850
Certainly locally.
263
00:14:55,024 --> 00:14:57,200
I mean, she had to dig
and research
264
00:14:57,374 --> 00:15:00,160
and find her resources herself.
265
00:15:01,204 --> 00:15:04,164
There's no Internet,
there's no cell phone,
266
00:15:04,338 --> 00:15:06,775
there's no Google,
there's nothing.
267
00:15:06,949 --> 00:15:09,125
And so we were going
to have to help ourselves.
268
00:15:09,299 --> 00:15:11,823
I've always said this,
that Dennis and I were similar.
269
00:15:11,998 --> 00:15:13,695
In that, give us a problem.
270
00:15:13,869 --> 00:15:15,262
We're gonna take to our beds
271
00:15:15,436 --> 00:15:16,872
and pull the covers
over our heads,
272
00:15:17,046 --> 00:15:20,180
and Beth is gonna figure out
what to do.
273
00:15:20,354 --> 00:15:23,705
And she did.
And she discovered
the National Autism Society,
274
00:15:23,879 --> 00:15:26,316
and they were having
their annual conference.
275
00:15:26,490 --> 00:15:27,970
And we really thought,
276
00:15:28,144 --> 00:15:30,016
"Since we know
nothing about autism,
277
00:15:30,190 --> 00:15:31,931
let's go see what this is."
278
00:15:32,105 --> 00:15:33,715
In Las Vegas of all places.
279
00:15:40,026 --> 00:15:42,158
We were able
to gather information
280
00:15:42,332 --> 00:15:43,943
that we had not had before.
281
00:15:44,117 --> 00:15:46,206
I mean, we're trying
to immerse ourselves in it
282
00:15:46,380 --> 00:15:49,122
and just absorb everything
that was being offered.
283
00:15:49,296 --> 00:15:52,125
There were people out there
facing the same things we were.
284
00:15:52,299 --> 00:15:56,259
None of us were really seeing
the answer for Evan.
285
00:15:56,433 --> 00:15:59,436
There's no right or wrong.
There's no map.
286
00:15:59,610 --> 00:16:02,439
I felt a certain sense
of confidence
that we could do it.
287
00:16:02,613 --> 00:16:04,876
I just didn't know
how we were gonna do it.
288
00:16:05,051 --> 00:16:08,489
I'd flown to Las Vegas,
but I did ride back in the car
289
00:16:08,663 --> 00:16:10,839
with Beth and Dennis
to El Dorado.
290
00:16:11,013 --> 00:16:14,016
We ended up driving
straight from Las Vegas
to El Dorado
291
00:16:14,190 --> 00:16:17,802
because there was
not a hotel, motel,
292
00:16:17,977 --> 00:16:21,241
anything available
all through that night.
293
00:16:21,415 --> 00:16:24,200
And Beth had bought a book,
294
00:16:24,374 --> 00:16:25,810
Let Me Hear Your Voice.
295
00:16:25,985 --> 00:16:28,422
So, we had to stay awake.
So we read this book.
296
00:16:28,596 --> 00:16:31,816
And it was written
by a woman in Manhattan
297
00:16:31,991 --> 00:16:35,342
who had all the resources
of New York
right outside her door.
298
00:16:35,516 --> 00:16:37,170
But again, like us,
299
00:16:37,344 --> 00:16:41,304
it's like none of these
particular therapy programs
300
00:16:41,478 --> 00:16:43,915
fit her autistic child.
301
00:16:44,090 --> 00:16:48,355
So, she started taking
bits and pieces
from the different therapies.
302
00:16:48,529 --> 00:16:52,881
Year four was a critical year
in the child's development,
303
00:16:53,055 --> 00:16:56,015
to really do
these intense therapies.
304
00:16:56,189 --> 00:16:58,060
And that's--
Evan was about to turn four.
305
00:16:58,234 --> 00:17:04,545
♪ Happy birthday to you ♪
306
00:17:04,719 --> 00:17:07,330
Happy birthday.
307
00:17:08,070 --> 00:17:09,245
Are you four?
308
00:17:11,987 --> 00:17:15,164
There's Evan's name. E-V-A-N.
309
00:17:15,904 --> 00:17:18,037
E-V-A-N, Evan.
310
00:17:18,559 --> 00:17:21,997
Beth and Dennis
found a therapy clinic
311
00:17:22,171 --> 00:17:25,218
in Memphis,
called Communication Station,
312
00:17:25,392 --> 00:17:27,568
that was taking
a similar approach
313
00:17:27,742 --> 00:17:29,831
to what we had decided
would be best.
314
00:17:30,005 --> 00:17:31,833
Turn around this way.
315
00:17:32,007 --> 00:17:34,618
You haven't opened this one.
You wanna try to open this one?
316
00:17:34,792 --> 00:17:38,057
The theory at the time was
the best way to treat autism
317
00:17:38,231 --> 00:17:40,102
was with behavior modification,
318
00:17:40,276 --> 00:17:43,410
and you move
into this therapy environment.
319
00:17:43,584 --> 00:17:45,934
I went for two weeks.
Dennis came for one.
320
00:17:46,108 --> 00:17:48,676
You're going to have
to never assume
321
00:17:48,850 --> 00:17:50,373
that he can learn anything,
322
00:17:50,547 --> 00:17:53,072
that he's going to have to be
taught everything.
323
00:17:53,246 --> 00:17:55,987
And this is going to take
hours and hours every day.
324
00:17:56,162 --> 00:17:58,729
And here's how you do it. And...
325
00:17:58,903 --> 00:18:00,166
Wow.
326
00:18:03,169 --> 00:18:06,041
Yeah. We got to use
that pointing finger.
327
00:18:07,434 --> 00:18:09,566
All right!
328
00:18:09,740 --> 00:18:12,047
When you're trying
to bring him in,
329
00:18:12,221 --> 00:18:14,267
bring him into your world,
give him the words,
330
00:18:14,441 --> 00:18:15,790
give him the explanations,
331
00:18:15,964 --> 00:18:19,402
it's not natural to them
like it is to you.
332
00:18:19,576 --> 00:18:22,449
So, your level of frustration
is gonna be great,
333
00:18:22,623 --> 00:18:24,842
but your level of understanding
has to be great too.
334
00:18:25,016 --> 00:18:27,018
It's just your pointing finger.
There we go.
335
00:18:29,760 --> 00:18:33,286
All right.
336
00:18:33,460 --> 00:18:36,245
And if it's really gonna
be successful, your family's
gonna have to do it,
337
00:18:36,419 --> 00:18:38,247
and your friends are gonna
have to talk to him this way.
338
00:18:38,421 --> 00:18:40,467
Because at this point, still,
339
00:18:41,250 --> 00:18:43,600
we have no means...
340
00:18:44,906 --> 00:18:46,212
...of communication.
341
00:18:47,343 --> 00:18:49,954
Oh, she's gonna ride in the car.
342
00:18:50,129 --> 00:18:52,957
You want him to ride in the car
together with the pig?
343
00:18:55,046 --> 00:18:57,745
He couldn't, wouldn't,
whatever you wanna call it,
344
00:18:57,919 --> 00:19:00,748
even point to what he wanted.
345
00:19:00,922 --> 00:19:03,272
Evan, you did a good job
with the puzzle...
346
00:19:04,491 --> 00:19:09,017
...and the letters,
and I like it
when you... point.
347
00:19:09,191 --> 00:19:10,845
Point.
348
00:19:11,019 --> 00:19:14,022
And I can remember saying,
"Will there ever be words?"
349
00:19:14,196 --> 00:19:15,850
And then they said,
"Well, we're gonna get some."
350
00:19:17,068 --> 00:19:20,550
B-L-U-E.
351
00:19:22,770 --> 00:19:23,901
Blue.
352
00:19:24,728 --> 00:19:27,557
We were in Memphis
at Communication Station.
353
00:19:27,731 --> 00:19:30,386
They said to me,
"Beth, what are the two things
he loves the most?"
354
00:19:30,560 --> 00:19:32,083
I said, "Coke.
355
00:19:33,128 --> 00:19:34,434
TV."
356
00:19:34,608 --> 00:19:36,740
She said, "Now,
I want you to practice
357
00:19:36,914 --> 00:19:39,656
a sign language
for 'I want TV'."
358
00:19:40,962 --> 00:19:42,268
So, you know, um...
359
00:19:43,921 --> 00:19:44,879
Okay.
360
00:19:45,445 --> 00:19:47,534
She said, "We're starting there.
361
00:19:47,708 --> 00:19:49,840
He will never get
TV or Coke again
362
00:19:50,014 --> 00:19:51,755
until he says the words."
363
00:19:51,929 --> 00:19:55,455
Cookie. Cookie.
364
00:19:55,629 --> 00:19:59,676
I want cookie.
365
00:19:59,850 --> 00:20:03,071
I want cookie.
366
00:20:03,637 --> 00:20:05,987
So, when, you know,
when you say,
"What was Evan's first word?"
367
00:20:06,161 --> 00:20:09,164
It was "Coke" or "TV."
One or the other. I don't know.
368
00:20:09,338 --> 00:20:11,558
But that led us to
369
00:20:12,211 --> 00:20:16,519
begin to learn to communicate
and have him communicate back.
370
00:20:16,693 --> 00:20:18,869
- I...
- Want cookie.
371
00:20:19,043 --> 00:20:21,742
Good. Excellent, Evan.
Very good.
372
00:20:21,916 --> 00:20:24,614
We were going to have to use
everything in his senses
373
00:20:24,788 --> 00:20:28,314
to teach him
about his environment.
374
00:20:28,488 --> 00:20:31,317
When we did this first
little rudimentary book,
375
00:20:31,491 --> 00:20:33,493
it's not all here anymore,
that's how many times
376
00:20:33,667 --> 00:20:36,322
he's looked at it,
it just worked.
377
00:20:36,496 --> 00:20:39,020
When I realized that he was
going to be able to read,
378
00:20:39,194 --> 00:20:41,588
him reading the words
was one thing...
379
00:20:42,676 --> 00:20:44,417
...but then we had to give him
the meaning of the word.
380
00:20:44,591 --> 00:20:47,550
He could easily memorize
the word "table"...
381
00:20:48,595 --> 00:20:50,901
...but there was no meaning
to the word "table."
382
00:20:51,598 --> 00:20:53,730
So, there was a process in there
somewhere where I realized
383
00:20:53,904 --> 00:20:56,211
his visual memory
was going to be excellent.
384
00:20:56,385 --> 00:21:00,737
And that's where
we began the labeling
of everything in his world.
385
00:21:00,911 --> 00:21:03,305
So, I'm walking around there.
I'm making these little cards.
386
00:21:03,479 --> 00:21:05,307
You know,
cutting up construction paper,
387
00:21:05,481 --> 00:21:08,179
a little card,
with a marker and some tape,
388
00:21:08,354 --> 00:21:10,399
and I'm taping everything
in the house.
389
00:21:19,321 --> 00:21:21,932
So, window had "window" on it,
chair had "chair" on it,
390
00:21:22,106 --> 00:21:23,325
flower had "flower" on it.
391
00:21:23,499 --> 00:21:25,153
And so, as we walked
around the house,
392
00:21:25,327 --> 00:21:27,634
he saw the word,
he saw the thing.
393
00:21:27,808 --> 00:21:30,201
Well, of course, then
pretty soon I realized that,
394
00:21:30,376 --> 00:21:33,335
"Oh, if I put the word
'chair' on this chair,
395
00:21:33,509 --> 00:21:35,468
then that's a chair.
396
00:21:35,642 --> 00:21:38,862
Not everything
that looks like this
in this world is a chair."
397
00:21:40,386 --> 00:21:44,085
So, now we have to have
the word "chair" on every chair
398
00:21:44,259 --> 00:21:47,610
so he understands
the word "chair"
means all of these things.
399
00:21:47,784 --> 00:21:50,526
Or the word "flower"
means not just this thing,
400
00:21:50,700 --> 00:21:52,485
but it means
all of these things.
401
00:21:52,659 --> 00:21:54,225
And that "dog" is a dog
402
00:21:54,400 --> 00:21:56,271
regardless if it's brown,
or big, or little, or the--
403
00:21:56,445 --> 00:21:57,968
All of these things are dog.
404
00:21:58,142 --> 00:22:01,189
And as we would go,
we would share these things
405
00:22:01,363 --> 00:22:02,756
so that everyone would know,
406
00:22:02,930 --> 00:22:05,498
"Okay, now,
now we're doing this."
407
00:22:05,672 --> 00:22:09,415
Use your pointing finger
and say...
408
00:22:11,547 --> 00:22:13,027
- Evan.
- Evan.
409
00:22:13,201 --> 00:22:16,335
- And... Grandma.
- Grandma.
410
00:22:19,599 --> 00:22:22,123
Say, "Richard." Yes.
411
00:22:22,776 --> 00:22:24,430
Beth's one of five children.
412
00:22:24,604 --> 00:22:26,867
And their attitude is,
"We face it.
413
00:22:27,041 --> 00:22:29,391
We deal with adversity,
whatever it is."
414
00:22:29,565 --> 00:22:32,394
There is nobody in our family
415
00:22:32,568 --> 00:22:34,744
that has ever shied away
from Evan.
416
00:22:35,441 --> 00:22:36,659
His friends.
417
00:22:37,138 --> 00:22:39,358
Nobody has ever
shied away from him.
418
00:22:39,532 --> 00:22:41,751
Bringing him up as a family,
it was no question
419
00:22:41,925 --> 00:22:44,406
of whether or not he was
gonna be included in our lives.
420
00:22:44,580 --> 00:22:47,409
Beth makes you aware
of what needs to happen,
421
00:22:47,583 --> 00:22:50,369
but also lets you know
that there's not any fear there.
422
00:22:50,543 --> 00:22:52,240
They might have been afraid,
423
00:22:52,414 --> 00:22:54,198
but just because
I didn't know what to do,
424
00:22:54,373 --> 00:22:57,114
and they were willing to learn.
425
00:22:57,288 --> 00:23:01,554
And everybody learned
exactly how they were supposed
to communicate with him
426
00:23:01,728 --> 00:23:04,818
so that we could all be
on the same track.
427
00:23:04,992 --> 00:23:06,950
And when it became apparent
428
00:23:07,124 --> 00:23:11,912
that he was going to need
a helper, interpreter,
429
00:23:12,086 --> 00:23:15,394
and that was at the point,
of course, that Richard
dropped the big bomb
430
00:23:15,568 --> 00:23:18,222
that he was going
to come home...
431
00:23:19,223 --> 00:23:21,661
...and he was going
to be that for him.
432
00:23:25,665 --> 00:23:27,406
We were driving.
433
00:23:27,580 --> 00:23:29,712
It started to occur to me
in the car,
434
00:23:29,886 --> 00:23:34,064
but I, uh, kept it in my head
that I could do this.
435
00:23:34,238 --> 00:23:37,024
So, I've committed
to coming back
to El Dorado for a year.
436
00:23:40,157 --> 00:23:42,595
Richard went to school
with Evan...
437
00:23:43,378 --> 00:23:45,859
...and he went
in the classrooms.
438
00:23:46,033 --> 00:23:48,557
Richard was Evan's
inclusion therapist.
439
00:23:48,731 --> 00:23:52,300
Uh, went to kindergarten
with him,
took him to therapies.
440
00:23:52,474 --> 00:23:55,825
We brought the people
from Communication Station
to El Dorado.
441
00:23:55,999 --> 00:23:58,132
My mom went, my sisters went,
442
00:23:58,306 --> 00:24:00,177
my brothers went,
the friends went.
443
00:24:00,351 --> 00:24:03,093
They came down to El Dorado
and trained me
444
00:24:03,267 --> 00:24:05,966
in Evan's classroom,
in his house,
445
00:24:06,140 --> 00:24:08,011
all of his normal environments.
446
00:24:08,838 --> 00:24:11,493
I don't know if Evan would have
made it through preschool.
447
00:24:11,667 --> 00:24:14,496
Without that,
I certainly don't think
448
00:24:14,670 --> 00:24:17,412
that what happened to him
in the next...
449
00:24:18,587 --> 00:24:21,372
...few years would have
been possible at all.
450
00:24:21,547 --> 00:24:24,027
When we started
these therapies with him,
451
00:24:24,201 --> 00:24:25,855
it was very frustrating to him
452
00:24:26,029 --> 00:24:28,641
because he did not understand
what we were doing.
453
00:24:28,815 --> 00:24:30,381
You know,
a change in temperature,
454
00:24:30,556 --> 00:24:32,558
a lot of change in texture,
455
00:24:32,732 --> 00:24:34,429
those were all issues.
456
00:24:34,603 --> 00:24:38,999
I would have to hold his hand
in a bowl of shaving cream
457
00:24:39,173 --> 00:24:41,697
for him to get used
to that texture.
458
00:24:41,871 --> 00:24:43,569
You know, he could walk
into a room, and there'll be
459
00:24:43,743 --> 00:24:46,049
a fluorescent
light bulb that's humming,
460
00:24:46,223 --> 00:24:49,096
and not perceptible to us,
and it will freak him out.
461
00:24:51,098 --> 00:24:53,187
I think he hears
more than we hear.
462
00:24:53,361 --> 00:24:55,885
I think he sees
more than we see.
463
00:24:57,104 --> 00:24:59,323
His senses are magnified.
464
00:25:00,368 --> 00:25:02,718
When he's looking
at that yard of grass,
465
00:25:02,892 --> 00:25:05,765
we see grass,
Evan may see one blade.
466
00:25:06,722 --> 00:25:09,943
He eventually just realized
that I was gonna be putting him
467
00:25:10,117 --> 00:25:11,945
in situations
that were new to him,
468
00:25:12,119 --> 00:25:14,774
but that even started
to become a routine.
469
00:25:14,948 --> 00:25:17,951
Yeah, I would go over
to their house
at six o'clock in the morning.
470
00:25:18,429 --> 00:25:22,303
I mean, he's sound asleep,
I would throw him
in the deep end of that pool,
471
00:25:22,477 --> 00:25:26,002
and he would just start
squealing with delight,
you know.
472
00:25:28,614 --> 00:25:31,225
And it really helped him
get through the rest of the day.
473
00:25:31,399 --> 00:25:34,358
And as you get the body to work
474
00:25:34,533 --> 00:25:36,970
in sync with the mind,
the better the mind works.
475
00:25:37,144 --> 00:25:39,625
Of course,
now that sounds so trite,
476
00:25:39,799 --> 00:25:41,583
but 30 years ago,
we didn't understand
477
00:25:41,757 --> 00:25:43,280
how the mind
and the body affected.
478
00:25:43,454 --> 00:25:45,065
Or if we understood it,
we weren't--
479
00:25:45,239 --> 00:25:47,633
The average person
was not practicing it.
480
00:25:47,807 --> 00:25:49,896
Seeing him progress...
481
00:25:51,245 --> 00:25:55,641
...and the bond
that formed between us...
482
00:25:58,121 --> 00:26:02,996
...was, was the most rewarding
year of my life...
483
00:26:03,866 --> 00:26:08,262
...and I'll always treasure that
and treasure him for it.
484
00:26:09,480 --> 00:26:12,396
One of my best childhood friends
who does not live here now,
485
00:26:12,571 --> 00:26:15,661
she came to visit,
and I introduced her to Evan.
486
00:26:15,835 --> 00:26:17,924
You know, he was four
or five years old at this point.
487
00:26:18,098 --> 00:26:20,753
She just goes, "Oh, Richard,
he's, he's your soulmate."
488
00:26:21,580 --> 00:26:24,147
And she was right.
489
00:26:24,321 --> 00:26:25,584
He really is.
490
00:26:27,455 --> 00:26:28,978
Evan, what do you want to eat?
491
00:26:30,719 --> 00:26:33,417
Chicken strips, French fries,
and ketchup. Drink is Sprite.
492
00:26:33,592 --> 00:26:35,855
Okay. That's what I figured.
493
00:26:36,420 --> 00:26:40,033
To him, everything is a video.
That's how his brain works.
494
00:26:40,599 --> 00:26:43,079
And just like if you say
what are the specials today,
495
00:26:43,253 --> 00:26:45,952
he recites
the whole Cat in the Hat.
496
00:26:46,126 --> 00:26:48,302
Are there some specials today?
497
00:26:48,476 --> 00:26:50,434
We got lots of specials today.
498
00:26:50,609 --> 00:26:52,306
Fried eggs and ham.
499
00:26:52,959 --> 00:26:54,264
Ham on a moo.
500
00:26:55,004 --> 00:26:57,528
Ham soufflé, and with cheese.
501
00:26:58,181 --> 00:26:59,530
Ham on toast.
502
00:27:00,227 --> 00:27:01,576
Glazed ham.
503
00:27:02,316 --> 00:27:03,622
Ham fritters.
504
00:27:03,796 --> 00:27:05,624
Minced ham.
505
00:27:06,189 --> 00:27:07,495
Rum ham.
506
00:27:08,409 --> 00:27:10,193
Ham kabobs.
507
00:27:10,367 --> 00:27:11,804
Ham pulled pork.
508
00:27:11,978 --> 00:27:13,414
Ham in the morning.
509
00:27:13,588 --> 00:27:15,764
Ham, ham, ham.
510
00:27:15,938 --> 00:27:17,592
All the lovely ham.
511
00:27:17,766 --> 00:27:19,986
I am. I am.
512
00:27:21,204 --> 00:27:23,337
All right. Well, I guess
that's what I'm having.
513
00:27:29,604 --> 00:27:33,564
Being in El Dorado, we realized
that we had a village
514
00:27:33,739 --> 00:27:36,132
of very loving, dedicated people
515
00:27:36,306 --> 00:27:38,744
that were family and friends
of Beth and Dennis's
516
00:27:38,918 --> 00:27:41,311
that, that picked up
all the slack.
517
00:27:41,834 --> 00:27:44,924
There are times
where you get very tired.
518
00:27:45,098 --> 00:27:47,143
Well, i-- it makes
the difference,
519
00:27:47,317 --> 00:27:49,711
you know, for someone to say,
"I'll do that,"
520
00:27:49,885 --> 00:27:53,019
or "I'll take them somewhere,"
or "I'll, um...
521
00:27:55,064 --> 00:27:56,283
...I'll pitch in for you."
522
00:27:56,457 --> 00:27:59,199
Somebody had a day
that they would
523
00:28:00,026 --> 00:28:02,071
pick up Evan,
and then with that person,
524
00:28:02,245 --> 00:28:04,639
you had a specific routine
that you did.
525
00:28:04,813 --> 00:28:08,425
You know, he is very regimented,
and no surprises.
526
00:28:08,599 --> 00:28:10,689
And it meant
you only had him two hours.
527
00:28:11,298 --> 00:28:13,648
I mean,
it wasn't a long block of time.
528
00:28:14,214 --> 00:28:15,868
It's not about the hour
529
00:28:16,042 --> 00:28:18,522
as much as it is
about the acceptance.
530
00:28:20,350 --> 00:28:23,136
To give you the space
531
00:28:23,310 --> 00:28:25,094
that you need to do
something normal.
532
00:28:25,268 --> 00:28:27,314
And it's not about
doing something special,
533
00:28:27,488 --> 00:28:28,924
it's about doing
something normal.
534
00:28:29,098 --> 00:28:31,013
It gave Evan a social life,
535
00:28:31,187 --> 00:28:34,234
and it gave Beth and Dennis
their lives back too.
536
00:28:34,408 --> 00:28:37,541
And I would accept help
from anyone
537
00:28:37,716 --> 00:28:41,502
who had Evan's best interest
at heart, mine, Dennis's.
538
00:28:41,676 --> 00:28:45,027
Beth knew that he was tended
and taken care of...
539
00:28:46,202 --> 00:28:48,509
...with someone who loved him
and cared about him.
540
00:28:48,683 --> 00:28:51,947
And he was-- He is still,
he is very intriguing.
541
00:28:52,121 --> 00:28:53,427
I mean, he's hysterical.
542
00:28:53,601 --> 00:28:54,907
Evan, you're so weird.
543
00:28:55,081 --> 00:28:57,344
You have no idea.
544
00:28:58,301 --> 00:29:00,303
I was one of the few people
at that point
545
00:29:00,477 --> 00:29:02,436
that Evan was comfortable,
546
00:29:02,610 --> 00:29:04,786
um, and, and Beth and Denis
were comfortable
547
00:29:04,960 --> 00:29:07,702
leaving him with me.
548
00:29:07,876 --> 00:29:09,704
Uh, I don't know
where they went,
549
00:29:09,878 --> 00:29:11,880
but they, they were doing
something that night.
550
00:29:12,054 --> 00:29:14,709
So, Evan came up and stayed
with me in my apartment.
551
00:29:15,579 --> 00:29:19,758
"Richard is a great
baby sister."
552
00:29:22,195 --> 00:29:24,937
- Babysitter?
- Babysitter.
553
00:29:25,111 --> 00:29:26,895
And I was just letting him
do his thing.
554
00:29:27,069 --> 00:29:29,637
I think I was doing
some kind of domestic drudgery.
555
00:29:29,811 --> 00:29:31,465
But I was walking, you know,
556
00:29:31,639 --> 00:29:33,510
in and out of the bathroom
and past him.
557
00:29:33,684 --> 00:29:36,035
And, and I just looked
down at him,
558
00:29:36,209 --> 00:29:38,777
watching him make faces
in the mirror just constantly,
559
00:29:38,951 --> 00:29:41,475
and I said,
"Evan, you're so weird."
560
00:29:41,649 --> 00:29:44,783
He goes, "You have no idea."
561
00:29:44,957 --> 00:29:47,176
He'd never put a sentence
together in his life.
562
00:29:47,350 --> 00:29:49,918
And I dropped
whatever I had in my hand.
563
00:29:50,092 --> 00:29:52,703
I turned around, and it's like--
it was like The Exorcist.
564
00:29:52,878 --> 00:29:55,271
I mean, I didn't know
what was happening.
565
00:29:55,445 --> 00:29:57,621
Come to find out, and it took
a while to figure it out,
566
00:29:57,796 --> 00:30:00,450
this was, uh, in The Lion King.
567
00:30:00,624 --> 00:30:03,323
You're so weird.
568
00:30:03,497 --> 00:30:05,412
You have no idea.
569
00:30:05,586 --> 00:30:07,849
And that's exactly
where that came from.
570
00:30:09,285 --> 00:30:10,547
Here's your schedule.
571
00:30:15,901 --> 00:30:17,816
So, I will, uh,
put this in his room,
572
00:30:17,990 --> 00:30:19,818
and every once in a while,
you'll see him reading it.
573
00:30:19,992 --> 00:30:21,776
So, he reads it kind of
over and over and over again
574
00:30:21,950 --> 00:30:24,518
until he gets it in his head
what it is he's supposed to do.
575
00:30:24,692 --> 00:30:26,868
So, that's pretty much
the process.
576
00:30:28,565 --> 00:30:31,003
A variety of responses
that he might have
577
00:30:31,177 --> 00:30:33,135
as the day goes on
in between now
578
00:30:33,309 --> 00:30:35,311
and when we pack
our bags tomorrow.
579
00:30:35,485 --> 00:30:38,619
The, uh, erasing of the schedule
on his iPad
580
00:30:38,793 --> 00:30:41,665
is sort of, like, trying to say,
this is not gonna happen to me.
581
00:30:41,840 --> 00:30:45,408
If it's not my iPad
or it's not my schedule,
it's not gonna happen.
582
00:30:51,850 --> 00:30:53,329
Do you like to go back?
583
00:30:55,114 --> 00:30:57,768
- Do you like to go back?
- Go back.
584
00:30:58,987 --> 00:31:00,380
Go back, back, back...
585
00:31:03,122 --> 00:31:05,080
I know-- Listen,
I know you don't want to.
586
00:31:06,603 --> 00:31:08,040
Evan, Evan, Evan.
587
00:31:08,867 --> 00:31:10,825
- But... don't be--
- Nope.
588
00:31:10,999 --> 00:31:13,480
Don't be mad or sad.
It's just for a couple of days.
589
00:31:15,874 --> 00:31:17,179
- I get it.
- Ouch.
590
00:31:17,353 --> 00:31:18,224
I know.
591
00:31:19,703 --> 00:31:20,835
I know.
592
00:31:22,097 --> 00:31:24,360
- Shut up.
- Oh, okay.
593
00:31:26,275 --> 00:31:28,887
- Oh, pack a bag.
- Yeah. Tomorrow.
594
00:31:31,672 --> 00:31:33,326
You have to go back. Pack a bag.
595
00:31:33,500 --> 00:31:34,588
Yeah, tomorrow.
596
00:31:42,901 --> 00:31:45,904
- Okay?
- Bag. Okay.
597
00:31:47,557 --> 00:31:49,081
Hmm. Hmm.
598
00:31:50,256 --> 00:31:50,996
Hmm?
599
00:31:55,130 --> 00:31:57,611
When it was time
to put him in public school,
600
00:31:57,785 --> 00:32:01,180
we knew that he needed to be
in a regular classroom.
601
00:32:01,354 --> 00:32:03,834
How do you teach someone
normal behaviors
602
00:32:04,009 --> 00:32:06,011
if they're not around
normal behaviors?
603
00:32:06,185 --> 00:32:09,753
And how do you get
people to understand
people with disabilities
604
00:32:09,928 --> 00:32:11,451
if they're not around them?
605
00:32:11,625 --> 00:32:14,497
But he knew everything
a kindergartner was supposed to.
606
00:32:14,671 --> 00:32:16,543
He had some words.
607
00:32:16,717 --> 00:32:20,068
We have never,
to this day, acquired
conversational language.
608
00:32:20,242 --> 00:32:22,331
You cannot have
a conversation with Evan.
609
00:32:30,731 --> 00:32:33,429
I'm not f--
I haven't figured it out yet.
610
00:32:33,603 --> 00:32:35,954
But due to the language
acquisition that we've done,
611
00:32:36,128 --> 00:32:38,869
he has learned
how to express himself,
612
00:32:39,044 --> 00:32:42,134
and he can tell you
what he wants and needs.
613
00:32:42,308 --> 00:32:43,657
There were points
I look back on,
614
00:32:43,831 --> 00:32:45,789
and I must have been
extremely naive,
615
00:32:45,964 --> 00:32:49,054
because I thought
someone would ask me like,
616
00:32:49,228 --> 00:32:52,318
"What would you like
to happen to him
as he enters public school?"
617
00:32:52,492 --> 00:32:55,451
So, I'm thinking, "Okay,
he's-- he knows all the stuff."
618
00:32:55,625 --> 00:32:58,193
Yes, he doesn't-- can't have
a conversation with him.
619
00:32:58,367 --> 00:33:01,414
Yes, he continues
to have sensory issues.
620
00:33:01,588 --> 00:33:04,895
But I still,
on the other hand, say
621
00:33:05,070 --> 00:33:07,420
he deserves to be included
in a classroom.
622
00:33:07,594 --> 00:33:08,943
He has the knowledge,
623
00:33:09,117 --> 00:33:13,034
and that's his least
restrictive environment,
624
00:33:13,208 --> 00:33:14,905
which was the law at the time.
625
00:33:15,080 --> 00:33:17,691
And Beth,
knowing what she knew...
626
00:33:17,865 --> 00:33:20,520
She knew her rights as a parent.
627
00:33:20,694 --> 00:33:23,697
She knew district policy.
628
00:33:23,871 --> 00:33:27,527
Legally, she had the right
to have him
in a regular classroom
629
00:33:27,701 --> 00:33:31,096
and request the school district
to provide an aide
630
00:33:31,270 --> 00:33:33,620
to assist for him
to be in the classroom.
631
00:33:33,794 --> 00:33:36,101
So, we go
for the preschool meeting,
632
00:33:36,275 --> 00:33:40,670
and the, uh,
special education person
from the public school said,
633
00:33:40,844 --> 00:33:43,151
"All right, well,
Evan James will be placed
634
00:33:43,325 --> 00:33:46,372
in the self-contained classroom
at so and so, so and so, so..."
635
00:33:47,764 --> 00:33:52,595
- I said, "Pardon me."
- Putting him in a self-contained
special ed classroom
636
00:33:52,769 --> 00:33:56,121
was the only thing
that the school district
was offering.
637
00:33:56,295 --> 00:34:00,473
And Beth was like, "No, he's got
to be in a regular classroom
638
00:34:00,647 --> 00:34:03,302
'cause he's gonna emulate
whatever behavior he's around."
639
00:34:03,476 --> 00:34:06,783
None of those people
were bad people.
640
00:34:06,957 --> 00:34:08,698
This was an unusual situation.
641
00:34:08,872 --> 00:34:10,526
It was an unusual request.
642
00:34:10,700 --> 00:34:13,094
It was going to require things
643
00:34:13,268 --> 00:34:15,009
that had not been
required before.
644
00:34:15,183 --> 00:34:17,011
I understood that.
645
00:34:17,185 --> 00:34:18,578
At the same time...
646
00:34:20,058 --> 00:34:21,929
...it was going to happen.
647
00:34:22,103 --> 00:34:24,410
And so we came
to an impasse that day.
648
00:34:24,584 --> 00:34:27,456
Let me say
he went to the regular classroom
649
00:34:27,630 --> 00:34:29,589
with, uh, an aide.
650
00:34:30,503 --> 00:34:31,982
She said, "There's no way that
651
00:34:32,157 --> 00:34:33,549
Missy's gonna be able
to do this by herself."
652
00:34:33,723 --> 00:34:36,248
So, we had Diane Smith
as an aide.
653
00:34:36,422 --> 00:34:38,946
We had Valerie Barnes
as an aide.
654
00:34:39,120 --> 00:34:41,296
And they came,
and they would sit with Evan
655
00:34:41,470 --> 00:34:43,342
to make sure
that he was on task,
656
00:34:43,516 --> 00:34:44,995
but they also would help
the other students.
657
00:34:45,170 --> 00:34:46,693
So, it wasn't just Evan.
658
00:34:48,390 --> 00:34:51,045
And then there were
other students that came.
659
00:34:51,219 --> 00:34:53,395
And she was somebody
that those parents
660
00:34:53,569 --> 00:34:56,442
could go and talk to
and learn from.
661
00:34:56,616 --> 00:34:58,226
Consequently, through the years,
662
00:34:58,400 --> 00:35:00,620
there was lots of training
that was done.
663
00:35:00,794 --> 00:35:04,711
And several students with autism
ended up at Hugh Goodwin
664
00:35:04,885 --> 00:35:06,539
because of the training
that those people
665
00:35:06,713 --> 00:35:10,108
had taken upon themselves
to get and took seriously.
666
00:35:10,282 --> 00:35:12,762
There were some people there,
some of the best...
667
00:35:13,937 --> 00:35:16,462
...classroom teachers
and therapists
that I have ever met
668
00:35:16,636 --> 00:35:18,594
in-- no matter
where I've been in this country.
669
00:35:18,768 --> 00:35:20,770
Really, growing up
with him in school
670
00:35:20,944 --> 00:35:24,296
was where I learned,
or I was impacted most by him.
671
00:35:24,470 --> 00:35:26,733
There weren't very many children
like Evan at the time.
672
00:35:26,907 --> 00:35:30,171
That wasn't something that
the world really knew about,
and especially El Dorado.
673
00:35:30,345 --> 00:35:35,350
But I do think
that now that his impact
on everyone's awareness
674
00:35:35,524 --> 00:35:37,700
has probably made a 360.
675
00:35:37,874 --> 00:35:40,050
As Evan progressed through this,
we were going to take
676
00:35:40,225 --> 00:35:42,140
as many people with us
as we could.
677
00:35:42,314 --> 00:35:45,621
If you get
the appropriate therapies
and, and that sort of thing,
678
00:35:45,795 --> 00:35:48,058
you are going
to have a better life.
679
00:35:48,233 --> 00:35:49,973
There is just no way around it.
680
00:35:50,148 --> 00:35:53,063
Mary Pat was seeing that
in her classroom.
681
00:35:53,238 --> 00:35:55,849
There were five of us
that came together
682
00:35:56,023 --> 00:35:57,938
and wanted to create
HOPE Landing.
683
00:35:58,112 --> 00:36:00,201
So, a child with special needs--
684
00:36:00,375 --> 00:36:02,421
It was a one-stop shop,
685
00:36:02,595 --> 00:36:04,336
but it, it serves
the whole family.
686
00:36:04,510 --> 00:36:07,077
It wasn't just the child.
It was the child's family.
687
00:36:07,252 --> 00:36:09,210
By this time,
they're talking about it.
688
00:36:09,384 --> 00:36:11,778
They're talking
about water therapy,
and horse therapy,
689
00:36:11,952 --> 00:36:15,390
and all those kinds of things
that are really, really making
a difference for kids.
690
00:36:15,564 --> 00:36:18,001
There was a movement,
and we were able
691
00:36:18,176 --> 00:36:21,744
to start planning
for what we felt
692
00:36:21,918 --> 00:36:25,095
what would be a peaceful setting
693
00:36:25,270 --> 00:36:29,317
that provided traditional
as well as
nontraditional therapies
694
00:36:29,491 --> 00:36:31,928
in support for entire families
695
00:36:32,102 --> 00:36:35,149
without being based
on whether you could pay or not.
696
00:36:35,323 --> 00:36:38,587
It was a huge idea
697
00:36:38,761 --> 00:36:42,548
for a small Southern town
to be able to pull that off.
698
00:36:51,034 --> 00:36:53,515
So, how's Evan been
over the last, uh, 24 hours?
699
00:36:53,689 --> 00:36:56,779
Um, didn't go to sleep
very well last night.
700
00:36:56,953 --> 00:36:58,651
So, it was kind of a late night.
701
00:36:59,217 --> 00:37:02,089
And he was afraid,
when Paul took him for an ice,
702
00:37:02,263 --> 00:37:04,831
that he wouldn't bringing him
back to get his stuff.
703
00:37:05,005 --> 00:37:06,572
So, he's a little
704
00:37:07,486 --> 00:37:09,836
nervous, but he hadn't...
705
00:37:11,229 --> 00:37:12,142
...been terrible.
706
00:37:16,059 --> 00:37:17,409
I can't help you much.
707
00:37:18,105 --> 00:37:20,760
- Go to the movies.
- We'll try
to go to the movies,
708
00:37:20,934 --> 00:37:23,328
but right now, we need to pack
your bag to go to group home.
709
00:37:24,242 --> 00:37:25,982
- First?
- Yes.
710
00:37:33,947 --> 00:37:36,645
Okay. No one's going to get it
till you come back. I promise.
711
00:37:37,603 --> 00:37:38,821
Shut up.
712
00:37:43,391 --> 00:37:45,393
Listen, you need
to pack your bag.
713
00:37:45,567 --> 00:37:47,787
Pack your bag.
714
00:37:50,616 --> 00:37:52,400
Wow.
715
00:37:53,706 --> 00:37:56,099
Yes, yes, you have to go back
716
00:37:56,274 --> 00:37:58,537
because I've got things
I have to do.
717
00:38:03,063 --> 00:38:05,457
- Pack your back.
- Pack a bag.
718
00:38:11,811 --> 00:38:12,812
That's all?
719
00:38:17,425 --> 00:38:20,907
- "Mickey and Donald
Have a Farm!"
- Okay.
720
00:38:23,475 --> 00:38:26,565
- It's "The Many Adventures
of Winnie the Pooh."
- Okay.
721
00:38:28,915 --> 00:38:30,482
That's all? No books?
722
00:38:31,004 --> 00:38:32,179
That's a no, no.
723
00:38:33,441 --> 00:38:34,964
"Dr. Seuss's ABC."
724
00:38:36,531 --> 00:38:38,054
"The Cat in the Hat."
725
00:38:39,360 --> 00:38:41,884
- And "Green Eggs and Ham."
- Okay.
726
00:38:42,058 --> 00:38:43,625
Now, do you want DVD player?
727
00:38:46,106 --> 00:38:47,237
What's next?
728
00:39:12,611 --> 00:39:14,787
I see owl. Do you?
729
00:39:16,571 --> 00:39:17,616
Owl.
730
00:39:19,792 --> 00:39:21,010
Do you want this in here?
731
00:39:22,795 --> 00:39:25,363
"Hop on Pop by Dr. Seuss."
732
00:39:28,366 --> 00:39:29,889
- That's it?
- That's it.
733
00:39:32,718 --> 00:39:33,849
Group home first.
734
00:39:34,720 --> 00:39:36,896
Yes, you're going
to the group home tonight. Yes.
735
00:39:38,158 --> 00:39:39,681
- Ready to go?
- Yeah, Paul's truck.
736
00:39:39,855 --> 00:39:42,075
- Go to the movies.
- We're gonna try.
737
00:39:42,249 --> 00:39:44,294
- We're gonna try.
- Okay.
738
00:39:48,995 --> 00:39:52,302
- Car.
- We're gonna go
in Paul's truck today, okay?
739
00:39:52,477 --> 00:39:53,913
Oh. Truck.
740
00:39:54,740 --> 00:39:56,655
I know we usually go
in Mom's car, but
741
00:39:57,307 --> 00:39:58,787
we're gonna go
in Paul's truck today.
742
00:39:58,961 --> 00:40:00,441
You can sit in the front, Evan.
743
00:40:01,137 --> 00:40:02,704
You wanna sit at front
or in the back?
744
00:40:06,665 --> 00:40:08,710
- Doesn't want.
- Yeah.
745
00:40:35,433 --> 00:40:36,608
Hi, everyone.
746
00:40:46,748 --> 00:40:48,271
Okay, here we are.
747
00:40:49,925 --> 00:40:51,797
Here's a cat in a hat.
748
00:40:51,971 --> 00:40:53,625
I know. Did you miss it?
749
00:40:54,669 --> 00:40:55,801
I miss it.
750
00:40:55,975 --> 00:40:57,672
You did? You pretty happy?
751
00:40:57,846 --> 00:40:58,673
You happy?
752
00:40:59,326 --> 00:41:00,458
Yeah.
753
00:41:00,632 --> 00:41:02,460
All your movies. Wow.
754
00:41:06,681 --> 00:41:08,291
"When I wish to make a wish,
755
00:41:08,466 --> 00:41:11,556
I wave my hand
in a swish, swish.
756
00:41:11,730 --> 00:41:14,254
Then I say, 'I wish for fish.'
757
00:41:14,428 --> 00:41:16,561
And I get fish right on my dish.
758
00:41:16,735 --> 00:41:19,302
So, if you wish to wish a wish,
759
00:41:19,477 --> 00:41:22,915
you may swish for fish
with my Ish wish dish."
760
00:41:23,089 --> 00:41:25,483
Would you make sure
there's some toilet paper
in there, please?
761
00:41:26,875 --> 00:41:28,529
- Remember.
- Remember.
762
00:41:28,703 --> 00:41:30,618
Loving Father, Son
and the Holy Spirit.
763
00:41:30,792 --> 00:41:32,272
Father, Son,
and the Holy Spirit.
764
00:41:34,056 --> 00:41:35,449
- You gonna do good?
- Do good.
765
00:41:35,623 --> 00:41:36,711
- Yeah?
- Yes.
766
00:41:36,885 --> 00:41:37,712
Okay.
767
00:41:40,019 --> 00:41:41,760
- All right.
- You all right.
768
00:41:41,934 --> 00:41:44,371
- When am I gonna see you?
- See you.
769
00:41:45,241 --> 00:41:46,547
I'll pick you up...
770
00:41:47,722 --> 00:41:49,942
- See ya Wednesday.
- Wednesday. Okay, good.
771
00:41:50,116 --> 00:41:51,030
All right.
772
00:41:51,726 --> 00:41:53,336
- You okay?
- You okay?
773
00:41:55,208 --> 00:41:56,078
Okay.
774
00:41:59,778 --> 00:42:01,519
- Bye.
- Bye-bye.
775
00:42:01,693 --> 00:42:03,129
- Love ya.
- Love you.
776
00:42:05,218 --> 00:42:07,437
See you later. Say bye.
777
00:42:09,352 --> 00:42:10,223
Bye.
778
00:42:15,358 --> 00:42:17,186
Things were progressing
with Evan,
779
00:42:17,360 --> 00:42:19,319
and, you know,
we were dealing with
780
00:42:19,493 --> 00:42:22,540
each new year's
set of circumstances.
781
00:42:22,714 --> 00:42:25,194
Dennis was in a play,
Dearly Departed,
782
00:42:25,368 --> 00:42:28,067
and Dennis was getting
very bad bruises.
783
00:42:28,241 --> 00:42:30,591
It got to the point where
Dennis did show the bruises
784
00:42:30,765 --> 00:42:33,246
to Matt Callaway, his doctor,
785
00:42:33,855 --> 00:42:35,596
and Matt
was immediately alarmed.
786
00:42:35,770 --> 00:42:37,772
APL.
787
00:42:37,946 --> 00:42:41,036
And I can't tell you
the A and the P,
but the L is leukemia.
788
00:42:43,169 --> 00:42:44,736
Just me and my dad.
789
00:42:47,477 --> 00:42:50,785
Th-- That just pulled the rug
out from under everybody
790
00:42:50,959 --> 00:42:54,223
because we did not,
of course, see that coming.
791
00:42:54,397 --> 00:42:56,356
And there is-- Okay.
792
00:42:56,530 --> 00:42:58,619
There is... You do it.
793
00:42:58,793 --> 00:43:00,708
For me, personally,
for the village,
794
00:43:00,882 --> 00:43:02,928
there was kind of
a shift in focus
795
00:43:03,102 --> 00:43:07,149
from what we were going to do
for people like him
and in his future
796
00:43:07,323 --> 00:43:09,282
and to "Oh, my goodness,
797
00:43:09,456 --> 00:43:13,242
now... what are we
gonna do about this?"
798
00:43:13,416 --> 00:43:15,941
"My mom and dad...
799
00:43:17,029 --> 00:43:19,771
...are Beth and Dennis James."
800
00:43:19,945 --> 00:43:21,686
Dennis was, um...
801
00:43:25,254 --> 00:43:27,517
Well, he was special.
That's all I'm gonna say.
802
00:43:27,692 --> 00:43:30,085
Sometimes you can
just look at Evan,
803
00:43:30,259 --> 00:43:33,175
and you, you can see Dennis.
804
00:43:33,349 --> 00:43:38,398
"My eyes are blue,
just like my daddy's."
805
00:43:38,572 --> 00:43:40,356
The village
had to rally for this
806
00:43:40,530 --> 00:43:44,578
because we had Evan,
who needed attention,
807
00:43:44,752 --> 00:43:47,102
and now we had Dennis
in the hospital
808
00:43:47,276 --> 00:43:49,452
for who knows how long
in Little Rock.
809
00:43:49,627 --> 00:43:51,150
Over the next three years,
810
00:43:51,890 --> 00:43:55,371
he continued
to... seek treatment.
811
00:43:55,545 --> 00:43:57,635
He had periods of remission.
812
00:43:57,809 --> 00:44:00,159
You know, you couldn't
really explain to Evan
813
00:44:00,333 --> 00:44:01,769
what was going on.
814
00:44:01,943 --> 00:44:05,120
I mean, there,
there wasn't a way to explain
815
00:44:05,294 --> 00:44:08,123
that kind of concept to Evan.
816
00:44:08,297 --> 00:44:09,342
"Daddy."
817
00:44:09,951 --> 00:44:12,388
It was just a very rough time.
818
00:44:12,562 --> 00:44:15,914
But once again...
Stupid me.
819
00:44:16,088 --> 00:44:19,047
I felt like
it w-- wouldn't be easy,
820
00:44:19,221 --> 00:44:21,180
but we would make it.
821
00:44:21,354 --> 00:44:24,618
And so, for three years,
we did treatments.
822
00:44:25,314 --> 00:44:27,012
Friends would help,
go sit with Beth
823
00:44:27,186 --> 00:44:28,840
or take shifts
to go sit with Dennis
824
00:44:29,014 --> 00:44:30,624
so that he wasn't by himself.
825
00:44:31,538 --> 00:44:35,324
And we see the reemergence
of a community of people
826
00:44:35,498 --> 00:44:38,284
willing, once again,
to reach out and, and lift up,
827
00:44:38,458 --> 00:44:40,068
and support, and care
828
00:44:40,242 --> 00:44:44,464
with no... judgments.
829
00:44:44,638 --> 00:44:46,858
We thought we were beating this.
We really did.
830
00:44:47,032 --> 00:44:50,426
Against all odds, we thought
we were beating the cancer.
831
00:44:50,600 --> 00:44:52,733
I mean, he endured a lot,
832
00:44:53,603 --> 00:44:55,780
but he still--
he kept his sense of humor.
833
00:44:55,954 --> 00:44:57,477
In the beginning, he did,
834
00:44:57,651 --> 00:45:00,219
but it was,
it was just painful to watch.
835
00:45:00,393 --> 00:45:02,351
For me, he was a, um,
836
00:45:02,961 --> 00:45:05,050
a constant in my life,
a constant male in my life.
837
00:45:05,224 --> 00:45:07,443
And he meant a whole lot to me.
838
00:45:08,009 --> 00:45:10,490
It's Daddy. It's Daddy.
839
00:45:10,664 --> 00:45:12,187
It would have been a long shot
840
00:45:12,361 --> 00:45:14,320
if he would have had
long-time survival
841
00:45:14,494 --> 00:45:17,497
with, with his--
th-- this form of leukemia.
842
00:45:18,324 --> 00:45:21,109
And, um, he...
843
00:45:21,588 --> 00:45:22,937
I will say this.
844
00:45:23,851 --> 00:45:26,985
I've never seen anybody fight,
fight harder than he did to--
845
00:45:27,159 --> 00:45:29,552
Because he knew
what it would mean to Evan...
846
00:45:30,771 --> 00:45:33,948
...for him to, um, not make it.
847
00:45:36,559 --> 00:45:42,783
♪ I have often walked
down this street before ♪
848
00:45:42,957 --> 00:45:48,571
♪ But the pavement always
stayed beneath my feet before ♪
849
00:45:48,746 --> 00:45:54,447
♪ All at once am I
several stories high ♪
850
00:45:54,621 --> 00:46:00,975
♪ Knowing I'm on the street
where you live ♪
851
00:46:01,149 --> 00:46:06,589
♪ And, oh the towering feeling ♪
852
00:46:06,764 --> 00:46:13,074
♪ Just to know
somehow you are near ♪
853
00:46:13,248 --> 00:46:18,297
♪ The overpowering feeling ♪
854
00:46:18,471 --> 00:46:20,473
♪ That any second ♪
855
00:46:20,647 --> 00:46:26,653
♪ You may suddenly appear ♪
856
00:46:26,827 --> 00:46:28,829
Because Dennis did die
in the hospital,
857
00:46:29,003 --> 00:46:30,613
and Evan was not with me,
858
00:46:30,788 --> 00:46:33,355
there was gonna be-- have to be
a communication of that.
859
00:46:33,834 --> 00:46:36,315
And so all the way home,
I kept thinking, "Now--"
860
00:46:36,489 --> 00:46:38,665
uh, everything I know
about Evan.
861
00:46:38,839 --> 00:46:41,929
I knew that he had some
basic religious understandings.
862
00:46:42,103 --> 00:46:43,757
The Lord bless you, keep you.
863
00:46:43,931 --> 00:46:47,195
The Lord make His face shine
upon you and be gracious to you.
864
00:46:47,369 --> 00:46:50,764
The Lord...
and give you His peace.
865
00:46:50,938 --> 00:46:52,505
Amen.
866
00:46:52,679 --> 00:46:55,595
And anytime that I could
communicate something with him
867
00:46:55,769 --> 00:47:00,426
in a picture or words,
he was going to understand.
868
00:47:00,600 --> 00:47:05,387
So, I came home, and I got a...
869
00:47:06,736 --> 00:47:10,479
...picture board of heaven.
870
00:47:10,653 --> 00:47:13,091
What you would--
You know, heaven. It was a--
871
00:47:13,265 --> 00:47:15,310
Clouds, and the sky.
872
00:47:15,920 --> 00:47:18,705
And I got a picture of Dennis,
873
00:47:18,879 --> 00:47:23,144
and a picture of an angel,
and a picture of Jesus.
874
00:47:23,710 --> 00:47:26,060
And I put them all together
875
00:47:26,234 --> 00:47:29,585
and explained to him
that Dad had gone there,
876
00:47:30,151 --> 00:47:32,414
um, and he was with Jesus.
877
00:47:32,588 --> 00:47:35,026
And just like
we didn't see Jesus,
878
00:47:35,200 --> 00:47:36,854
we wouldn't see Dad anymore.
879
00:47:37,028 --> 00:47:39,639
Now, I will say this.
There's a difference between...
880
00:47:40,640 --> 00:47:42,207
...death and grief.
881
00:47:42,381 --> 00:47:44,165
R-E-D...
882
00:47:45,384 --> 00:47:46,515
...spells red.
883
00:47:50,911 --> 00:47:53,609
Roll two, scene Richard,
take one, mark.
884
00:47:54,132 --> 00:47:56,221
Beth, interview B, take one.
885
00:47:57,004 --> 00:47:59,050
When Dennis died,
we, we all felt like
886
00:47:59,224 --> 00:48:01,269
we'd had the rug pulled out
from under us.
887
00:48:01,443 --> 00:48:03,315
And, and for months...
888
00:48:05,360 --> 00:48:07,406
I mean, many, many months,
889
00:48:07,580 --> 00:48:12,759
we were just walking around,
um, like zombies.
890
00:48:12,933 --> 00:48:16,458
Lot of Evan's,
um, therapies early on
891
00:48:16,632 --> 00:48:18,721
were about emotions.
892
00:48:18,896 --> 00:48:23,161
We did a lot of emotion
expression therapy.
893
00:48:23,335 --> 00:48:25,424
He had to learn
to read people's faces.
894
00:48:25,598 --> 00:48:28,253
And so he would look at me,
and I would know that
895
00:48:28,427 --> 00:48:30,472
when he looked at me that
I had to have a look on my face
896
00:48:30,646 --> 00:48:33,736
that I was calm,
that I wasn't sad,
897
00:48:33,911 --> 00:48:36,870
that I was okay, and I was
gonna make it through the day.
898
00:48:37,044 --> 00:48:39,786
And he would really examine me.
899
00:48:39,960 --> 00:48:44,530
He, um, he really reads
people's expressions.
900
00:48:45,270 --> 00:48:47,707
Everything he does
is in pictures.
901
00:48:47,881 --> 00:48:52,190
Either in his mind,
he would take
an Instamatic photograph
902
00:48:52,364 --> 00:48:53,887
of something on a television.
903
00:49:00,024 --> 00:49:02,069
Since the beginning,
Evan has been obsessed
904
00:49:02,243 --> 00:49:04,028
with taking, uh, photographs.
905
00:49:04,202 --> 00:49:06,639
He has always,
um, taken pictures
906
00:49:06,813 --> 00:49:10,034
of the TV screen
and put them together.
907
00:49:10,208 --> 00:49:12,297
We can't quite figure out
what it means,
908
00:49:12,471 --> 00:49:15,430
but to him, he's putting
a sequence of things together.
909
00:49:15,604 --> 00:49:18,346
He takes expressions,
910
00:49:18,520 --> 00:49:20,870
a series of expressions,
many times,
911
00:49:21,045 --> 00:49:23,090
and then there's always a...
912
00:49:24,309 --> 00:49:25,832
...like, a couple blank screens.
913
00:49:26,006 --> 00:49:27,355
Like, that's the end
of that movie
914
00:49:27,529 --> 00:49:31,533
or an end of that thought
before he begins...
915
00:49:33,013 --> 00:49:34,580
...another series.
916
00:49:36,364 --> 00:49:37,670
He missed his daddy.
917
00:49:37,844 --> 00:49:39,802
And so he was carrying
these 50--
918
00:49:39,977 --> 00:49:42,109
Zero to 50 pictures.
919
00:49:42,283 --> 00:49:43,415
They were numbered.
920
00:49:44,111 --> 00:49:45,330
And I said,
"Beth, what do they mean?"
921
00:49:45,504 --> 00:49:46,940
She said, "I don't know."
922
00:49:47,114 --> 00:49:48,637
So, she went somewhere one day,
and I said,
923
00:49:48,811 --> 00:49:50,813
"Evan, let's put
your pictures out."
924
00:49:50,988 --> 00:49:53,381
So, we-- he laid them out
in order on the kitchen floor.
925
00:49:53,555 --> 00:49:56,515
And I said, "Give me words
for these pictures."
926
00:49:57,603 --> 00:50:00,606
Ah. Oh, my gosh,
talk about communicate.
927
00:50:00,780 --> 00:50:02,651
Don't say he can't communicate.
928
00:50:03,304 --> 00:50:07,874
It started out with pictures
from home, happy times.
929
00:50:08,048 --> 00:50:11,312
And then it was a series
of scenes from The Lion King.
930
00:50:12,052 --> 00:50:16,970
And it was sad. Cry, sleep, cry.
931
00:50:17,144 --> 00:50:21,583
I mean, he had a word
for every picture.
932
00:50:21,757 --> 00:50:23,063
It was amazing.
933
00:50:23,237 --> 00:50:25,109
We spent one Saturday,
934
00:50:25,283 --> 00:50:28,634
and we put it together in a book
called Me and My Dad.
935
00:50:28,808 --> 00:50:30,940
"I miss my daddy.
936
00:50:33,117 --> 00:50:34,074
I'm not...
937
00:50:35,815 --> 00:50:37,077
I wish
938
00:50:37,904 --> 00:50:42,039
that he were still living
939
00:50:42,213 --> 00:50:46,826
at the new house
with Mama and me."
940
00:50:47,000 --> 00:50:49,698
He was so smart
to go and find that
941
00:50:49,872 --> 00:50:54,138
and give words to his emotions,
942
00:50:54,312 --> 00:50:56,488
and then he could convey it
to someone else.
943
00:50:56,662 --> 00:50:58,577
That just blew me
out of the water.
944
00:50:59,969 --> 00:51:04,235
One of my favorite examples
of the village rallying.
945
00:51:04,409 --> 00:51:07,977
Evan's-- The birthday
after Dennis had died,
946
00:51:08,152 --> 00:51:11,155
Beth asked
all her teenage friends
947
00:51:11,329 --> 00:51:13,766
if they would dress
as Disney characters
948
00:51:13,940 --> 00:51:17,161
and come to her house and be
part of Evan's birthday party.
949
00:51:17,335 --> 00:51:20,294
So, there was Cinderella,
Tigger.
950
00:51:20,468 --> 00:51:22,470
All of these,
like, eight to ten people,
951
00:51:22,644 --> 00:51:24,429
showed up in costumes
952
00:51:24,603 --> 00:51:27,345
just to make Evan happy
and feel better.
953
00:51:32,611 --> 00:51:33,960
There was a change.
954
00:51:34,134 --> 00:51:36,005
With Dennis's death,
there was a change.
955
00:51:36,180 --> 00:51:39,574
It kind of turned my focus from
956
00:51:40,445 --> 00:51:43,665
training, teaching to...
957
00:51:44,753 --> 00:51:46,625
...planning for a future
958
00:51:46,799 --> 00:51:48,757
because I'm all he has.
959
00:51:49,976 --> 00:51:54,023
It was apparent to me
life skills, a safe environment
960
00:51:54,198 --> 00:51:57,157
were going to become
the important things,
961
00:51:57,331 --> 00:52:00,117
not whether or not
he was in a normal classroom.
962
00:52:07,994 --> 00:52:10,736
What you doing?
963
00:52:16,829 --> 00:52:18,526
- Did you do good?
- Do good.
964
00:52:18,700 --> 00:52:20,572
You did? Was it okay?
965
00:52:20,746 --> 00:52:22,051
- Is it okay?
- Yeah?
966
00:52:22,226 --> 00:52:23,140
- Yeah.
- Did you miss me?
967
00:52:23,314 --> 00:52:24,837
- Miss me?
- Yeah.
968
00:52:25,925 --> 00:52:27,274
- You gonna go home with me?
- Go home.
969
00:52:27,448 --> 00:52:28,667
Okay. Get your stuff.
970
00:52:28,841 --> 00:52:30,495
Go and get your stuff, baby.
971
00:52:30,669 --> 00:52:32,584
- Evan's stuff.
- He's been
very good today.
972
00:52:32,758 --> 00:52:34,499
He has? Well,
thank you for helping--
973
00:52:34,673 --> 00:52:36,153
- Evan's stuff.
- You're welcome.
974
00:52:39,939 --> 00:52:41,201
Evan's stuff.
975
00:52:41,375 --> 00:52:42,898
She gonna help him, isn't she?
976
00:52:43,072 --> 00:52:45,510
I love these,
but I don't need to eat.
977
00:52:48,469 --> 00:52:50,254
Your class
is pretty small today.
978
00:52:50,428 --> 00:52:53,648
Well, yeah. We got two more...
979
00:52:53,822 --> 00:52:54,867
Great.
980
00:52:55,781 --> 00:52:56,999
All right, let's go.
981
00:52:57,174 --> 00:52:58,523
See you, Evan.
982
00:52:58,697 --> 00:53:00,394
- See you, Evan.
- Bye, Evan
983
00:53:00,568 --> 00:53:03,267
Hey, Ev. Hey, Evan.
984
00:53:04,006 --> 00:53:05,007
Come here.
985
00:53:08,533 --> 00:53:10,622
- Say "See you next week."
- See you next week.
986
00:53:10,796 --> 00:53:12,972
- See you next week.
- See you next week,
Evan.
987
00:53:13,146 --> 00:53:15,757
Bye.
988
00:53:15,931 --> 00:53:19,892
After Dennis passed away,
it had been a couple of years,
989
00:53:20,501 --> 00:53:22,547
and Beth's sister, Heidi,
990
00:53:22,721 --> 00:53:25,985
was talking
with Paul's sister, Laura.
991
00:53:26,159 --> 00:53:27,856
They had been friends
from high school.
992
00:53:28,030 --> 00:53:33,035
And knew that Beth and Paul
had dated many years before.
993
00:53:34,123 --> 00:53:40,826
I met Beth in the spring of 1983
at El Dorado High School.
994
00:53:41,000 --> 00:53:44,438
Heidi, my sister, is in
the same class with his sister,
995
00:53:44,612 --> 00:53:46,832
and we all have to go
to this event.
996
00:53:47,006 --> 00:53:48,660
It was love at first sight.
997
00:53:48,834 --> 00:53:52,403
She walked up the sidewalk.
I was introduced to her.
998
00:53:52,577 --> 00:53:54,927
I mean, it was like
the conversation never ended.
999
00:53:55,101 --> 00:53:57,582
And so we dated for some months,
1000
00:53:57,756 --> 00:54:00,585
and then we got engaged.
1001
00:54:00,759 --> 00:54:03,022
You know? Isn't that what you do
when you're in your twenties?
1002
00:54:03,196 --> 00:54:05,416
We considered getting married,
1003
00:54:05,590 --> 00:54:10,899
and things just did not work out
for us at that point in time.
1004
00:54:11,073 --> 00:54:13,424
And we were
mutually hurt by that,
1005
00:54:13,598 --> 00:54:16,427
and parted as friends.
1006
00:54:16,601 --> 00:54:18,907
I didn't see her again
until 2007.
1007
00:54:21,083 --> 00:54:23,564
Paul's sister, in fact,
had returned to El Dorado
1008
00:54:23,738 --> 00:54:25,871
to teach nursing
at the community college.
1009
00:54:26,045 --> 00:54:27,568
So, I ask about Paul.
1010
00:54:27,742 --> 00:54:29,570
And, you know,
"Things didn't work out
1011
00:54:29,744 --> 00:54:33,008
exactly as he had intended,
but he's got five children."
1012
00:54:34,053 --> 00:54:36,621
I said, "Oh, my gosh."
1013
00:54:36,795 --> 00:54:39,972
I think she was thinking,
"He still has no sense at all,"
1014
00:54:40,146 --> 00:54:42,409
you know, with that many kids.
1015
00:54:42,583 --> 00:54:47,284
I said, "Well, you tell him,
um, that I asked about him."
1016
00:54:47,458 --> 00:54:48,981
I was coming down for a visit.
1017
00:54:49,155 --> 00:54:52,506
And Heidi and my sister, Laura,
1018
00:54:52,680 --> 00:54:56,728
decided that they wanted
to get Beth and I
1019
00:54:56,902 --> 00:54:59,774
back in the same room together.
1020
00:54:59,948 --> 00:55:02,516
"What if next time
Paul comes to town...
1021
00:55:04,388 --> 00:55:06,999
...we fix them up?
We all go out to dinner."
1022
00:55:07,173 --> 00:55:09,175
And she goes, "Oh, it would
make them so uncomfortable.
1023
00:55:09,349 --> 00:55:10,655
Wouldn't that be great?"
1024
00:55:10,829 --> 00:55:12,613
"Paul's gonna come to El Dorado,
1025
00:55:13,179 --> 00:55:16,400
and we're all gonna
go out to eat,
1026
00:55:16,574 --> 00:55:17,879
and we want you to come along."
1027
00:55:18,053 --> 00:55:19,881
And I said,
"Have you lost your mind?"
1028
00:55:20,055 --> 00:55:22,144
And I said,
"Oh, come on. Come on.
1029
00:55:22,319 --> 00:55:24,233
It'd be fun to catch up."
1030
00:55:24,408 --> 00:55:26,366
It had only been a year
since Dennis had died,
1031
00:55:26,540 --> 00:55:28,499
and no one was breaking
down my door,
1032
00:55:28,673 --> 00:55:33,417
but I had made it pretty clear
that I was unable,
at this time, to,
1033
00:55:34,374 --> 00:55:37,029
uh, move forward in that sense.
1034
00:55:37,203 --> 00:55:39,988
And I went to dinner
with my sister at Fayrays,
1035
00:55:40,162 --> 00:55:42,643
and I did not know
what to expect.
1036
00:55:42,817 --> 00:55:44,602
And she walks in.
1037
00:55:44,776 --> 00:55:49,476
She and I looked at each other,
and she sat down by me.
1038
00:55:49,650 --> 00:55:53,262
We all sat to where she was
gonna have to sit beside him.
1039
00:55:53,437 --> 00:55:57,310
And the conversation
just started all up again
1040
00:55:57,484 --> 00:55:59,834
and, uh, never stopped.
1041
00:56:00,008 --> 00:56:03,229
They never once put us
in the conversation.
1042
00:56:04,099 --> 00:56:06,145
They never on--
We weren't there.
1043
00:56:07,364 --> 00:56:11,063
She said, "Would you like
to come back and-- to my house
1044
00:56:11,237 --> 00:56:14,675
and-- so we can keep talking,
and, and you can meet Evan?"
1045
00:56:16,285 --> 00:56:18,113
Uh, that was my first--
1046
00:56:18,287 --> 00:56:20,507
that was my first encounter
with Evan, that night.
1047
00:56:24,424 --> 00:56:28,863
There is something very soothing
about that that, you know...
1048
00:56:29,037 --> 00:56:33,128
I've said very often
that he probably saved my life.
He probably did.
1049
00:56:33,607 --> 00:56:36,218
I think, when I left
that evening, we both realized
1050
00:56:36,393 --> 00:56:38,830
it was divine intervention.
1051
00:56:39,004 --> 00:56:41,441
I didn't know really
if I would see him again,
1052
00:56:41,615 --> 00:56:45,184
and it wasn't too much later
that I got an email from him.
1053
00:56:45,358 --> 00:56:47,012
That was back in the days
when you emailed, you know.
1054
00:56:47,186 --> 00:56:50,319
This is before texting
and stuff like that.
1055
00:56:50,494 --> 00:56:54,367
And, you know, he kind of said,
"I'm probably gonna keep on
1056
00:56:54,541 --> 00:56:57,457
emailing you and calling you
and probably coming to El Dorado
1057
00:56:57,631 --> 00:57:01,635
because, uh, I lost once,
I'm not gonna lose twice."
1058
00:57:04,595 --> 00:57:09,861
I can't imagine coming
into all this like Paul did.
1059
00:57:10,035 --> 00:57:11,689
I mean,
he's got five of his own,
1060
00:57:11,863 --> 00:57:13,778
and yet Evan was
1061
00:57:14,518 --> 00:57:15,780
part of Paul.
1062
00:57:15,954 --> 00:57:18,304
Even though he didn't know crap
1063
00:57:18,478 --> 00:57:20,219
about what to do
about Evan, you know,
1064
00:57:20,393 --> 00:57:23,048
he was stunned
by the whole thing.
1065
00:57:24,310 --> 00:57:26,921
He never really
shied away from that.
1066
00:57:27,095 --> 00:57:33,319
My own relationship with Evan
took a very, very long time
1067
00:57:33,493 --> 00:57:36,104
to become what it is today.
1068
00:57:36,278 --> 00:57:38,498
All right. Are you ready
to go get an icee?
1069
00:57:38,672 --> 00:57:41,458
- Yes.
- Yes? Would you like my phone?
1070
00:57:42,459 --> 00:57:43,329
Yeah?
1071
00:57:43,938 --> 00:57:45,331
- What--
- Austin and Weston.
1072
00:57:45,940 --> 00:57:47,986
- Not this weekend. Next--
- Not.
1073
00:57:48,160 --> 00:57:50,031
- Next time.
- Not yet.
1074
00:57:51,250 --> 00:57:52,294
Get in the car.
1075
00:57:54,383 --> 00:57:55,820
There's a green triangle.
1076
00:57:55,994 --> 00:57:56,908
Uh-huh.
1077
00:57:58,779 --> 00:58:00,172
There's a green triangle.
1078
00:58:00,346 --> 00:58:01,608
Uh-huh.
1079
00:58:01,782 --> 00:58:04,872
There's an orange...
Right.
1080
00:58:05,046 --> 00:58:07,701
I understood his habits
1081
00:58:07,875 --> 00:58:10,878
and got those down a lot quicker
1082
00:58:11,052 --> 00:58:13,359
and a lot easier than I did...
1083
00:58:14,273 --> 00:58:16,536
...his form of communication.
1084
00:58:16,710 --> 00:58:18,277
When I first started going
back and forth,
1085
00:58:18,451 --> 00:58:20,627
Beth and Evan would drive me
to the airport.
1086
00:58:20,801 --> 00:58:23,369
I remember
one time in particular...
1087
00:58:24,413 --> 00:58:26,067
...towards the beginning
of all this,
1088
00:58:26,241 --> 00:58:28,243
he's walking
back and forth in front of me
1089
00:58:28,417 --> 00:58:30,376
with a book in his hand,
1090
00:58:30,550 --> 00:58:33,945
and it's a book
about going to the airport,
1091
00:58:34,119 --> 00:58:36,730
and what you do
when you go, you know?
1092
00:58:36,904 --> 00:58:39,341
We go to the airport
to take trips.
1093
00:58:39,516 --> 00:58:41,692
And I realized
in the middle of all this,
1094
00:58:41,866 --> 00:58:44,521
he was ready
for me to go.
1095
00:58:44,695 --> 00:58:47,262
I won't say everything he did
was purposeful,
1096
00:58:47,436 --> 00:58:50,831
but I would say
the majority of it was.
1097
00:58:51,005 --> 00:58:53,617
I mean, he had a little message
and everything.
1098
00:58:53,791 --> 00:58:55,880
- Mmm-hmm. Always.
- Really, especially there
in the beginning
1099
00:58:56,054 --> 00:58:57,882
that we did, we did together.
1100
00:58:58,360 --> 00:59:00,841
Especially if it's
a verbalization
or if it's a direct
1101
00:59:01,015 --> 00:59:03,148
- interaction with a person...
- Mmm-hmm.
1102
00:59:03,322 --> 00:59:05,759
...he is trying
to say something.
1103
00:59:05,933 --> 00:59:08,806
So, if he doesn't have the words
for what he says,
1104
00:59:08,980 --> 00:59:11,722
then he's going to replace it
with an action
1105
00:59:11,896 --> 00:59:13,506
or some kind of verbalization,
1106
00:59:13,680 --> 00:59:16,030
trying to get you to understand
what it is he wants.
1107
00:59:16,509 --> 00:59:21,383
"Christmas
is my favorite holiday."
1108
00:59:21,558 --> 00:59:23,037
Look into the mirror.
1109
00:59:23,821 --> 00:59:25,344
I love it!
1110
00:59:25,518 --> 00:59:27,955
I love it!
1111
00:59:28,782 --> 00:59:29,783
I knew you would.
1112
00:59:34,440 --> 00:59:37,878
♪ Rudolph
the red-nosed reindeer ♪
1113
00:59:38,575 --> 00:59:42,143
♪ Had a very shiny nose ♪
1114
00:59:42,840 --> 00:59:46,017
♪ And if you ever saw it ♪
1115
00:59:46,931 --> 00:59:49,847
♪ You would even say it glows ♪
1116
00:59:50,761 --> 00:59:54,591
♪ Then one foggy Christmas Eve ♪
1117
00:59:54,765 --> 00:59:57,681
♪ Santa came to say ♪
1118
00:59:59,291 --> 01:00:03,077
♪ Rudolph
with your nose so bright ♪
1119
01:00:03,251 --> 01:00:06,690
♪ Won't you guide
my sleigh tonight? ♪
1120
01:00:06,864 --> 01:00:09,736
♪ Then how the reindeer
loved him ♪
1121
01:00:10,563 --> 01:00:13,784
♪ As they shouted out
with glee ♪
1122
01:00:14,567 --> 01:00:18,223
♪ Rudolph
the red-nosed reindeer ♪
1123
01:00:18,397 --> 01:00:22,270
♪ You'll go down in history ♪
1124
01:00:27,580 --> 01:00:30,191
- Great job!
- Yay!
1125
01:00:33,717 --> 01:00:36,807
When we did begin to see each
other on a consistent basis,
1126
01:00:36,981 --> 01:00:40,724
we made a promise
that no matter what we did,
1127
01:00:41,333 --> 01:00:44,379
not his children
or mine would suffer.
1128
01:00:44,553 --> 01:00:47,078
We made a commitment to,
1129
01:00:47,252 --> 01:00:50,559
you know,
pursue this relationship.
1130
01:00:51,560 --> 01:00:53,084
I was kind of getting
used to the idea that
1131
01:00:53,258 --> 01:00:55,216
he might be my boyfriend
or something,
1132
01:00:55,390 --> 01:00:58,219
but I was not interested
initially in,
1133
01:00:58,785 --> 01:01:00,221
like, oh, getting married.
1134
01:01:00,395 --> 01:01:02,049
I mean, I had a job.
I was in El Dorado.
1135
01:01:02,223 --> 01:01:04,312
He was in St. Louis.
Paul-- Evan was in school.
1136
01:01:04,486 --> 01:01:08,534
I was in no way going
to, to leave that for that.
1137
01:01:08,708 --> 01:01:10,884
So I told Paul, I said,
"I'm never gonna meet your kids.
1138
01:01:11,058 --> 01:01:13,495
Come when you can.
We'll have a great time.
1139
01:01:13,670 --> 01:01:15,715
That's where
this thing is going."
1140
01:01:15,889 --> 01:01:18,675
And I said, "'Cause I'm not--
I can't meet those kids."
1141
01:01:24,593 --> 01:01:27,771
Paul's kids were wonderful.
You know, they love him.
1142
01:01:27,945 --> 01:01:29,511
I mean, he is their brother.
1143
01:01:29,686 --> 01:01:31,383
But now, if you ask him
who they are,
1144
01:01:31,557 --> 01:01:32,906
he's gonna list them in order.
1145
01:01:33,080 --> 01:01:35,039
Grace, Kenny, Jackson, William,
1146
01:01:35,213 --> 01:01:38,303
Caroline, Aston,
Watson and Dan.
1147
01:01:38,477 --> 01:01:40,740
Ready, set, go!
1148
01:01:41,393 --> 01:01:43,438
My dad did give
us a forewarning and said,
1149
01:01:43,612 --> 01:01:45,571
"She's gonna be here
when you get home from school."
1150
01:01:45,745 --> 01:01:47,486
And we got home from school,
1151
01:01:47,660 --> 01:01:49,357
- and she was just sitting
at the counter...
- She was.
1152
01:01:49,531 --> 01:01:50,794
...and her makeup was perfect,
1153
01:01:50,968 --> 01:01:52,621
and everything
was just together.
1154
01:01:52,796 --> 01:01:54,362
- Mmm-hmm.
- And she just had, like, a...
1155
01:01:54,536 --> 01:01:55,842
She just has, like, a presence.
1156
01:01:56,016 --> 01:01:57,714
- She does.
- And she was very striking
1157
01:01:57,888 --> 01:01:59,367
- from the get-go.
That was my first impression.
- Yeah.
1158
01:01:59,541 --> 01:02:00,673
Yeah, it was, like, an ad--
1159
01:02:00,847 --> 01:02:02,501
an adjustment for us.
1160
01:02:02,675 --> 01:02:04,764
Obviously, someone new
in the house with her and Evan.
1161
01:02:04,938 --> 01:02:06,984
But it's also, like,
an adjustment for her
1162
01:02:07,158 --> 01:02:08,986
- 'cause we're--
we're us, you know.
- Big adjustment.
1163
01:02:09,160 --> 01:02:10,944
- Like, it's-- Yeah.
- Big adjustment.
1164
01:02:11,118 --> 01:02:14,078
There was five of us,
and most of us were teenagers.
1165
01:02:14,252 --> 01:02:17,429
And my dad's not
a low-maintenance kind of guy.
1166
01:02:17,603 --> 01:02:20,084
And we are not exactly, um--
1167
01:02:20,258 --> 01:02:22,913
- We got some maintenance to us.
- Yeah. We...
1168
01:02:23,087 --> 01:02:25,654
- We weren't easy.
- She told us, um,
1169
01:02:25,829 --> 01:02:27,482
a while back
that she would hear us
1170
01:02:27,656 --> 01:02:29,441
every once in a while going...
"Where is she?"
1171
01:02:29,615 --> 01:02:31,182
- "Where is she?" Yeah.
- "Where is she?"
1172
01:02:31,356 --> 01:02:32,923
When she first was
spending a lot of time up there
1173
01:02:33,097 --> 01:02:34,925
and we didn't know her
very well, we'd all kind of--
1174
01:02:35,099 --> 01:02:36,753
Or if we wanted something,
we'd send, like,
1175
01:02:36,927 --> 01:02:38,972
one, one-- usually the cut--
the cutest kid out--
1176
01:02:39,146 --> 01:02:40,887
- "You go. You go."
- You know, like...
Yeah.
1177
01:02:41,061 --> 01:02:42,628
It really was like
she never skipped a beat.
1178
01:02:42,802 --> 01:02:45,196
I'm sure she did
in her own private time.
1179
01:02:45,370 --> 01:02:48,155
But, to us,
it just seemed very--
1180
01:02:48,329 --> 01:02:51,245
I don't know.
It's just-- It's always been...
1181
01:02:51,419 --> 01:02:54,422
It's always felt natural.
Like how it should be.
1182
01:02:54,596 --> 01:02:58,122
And then came the time
for them to actually meet Evan.
1183
01:02:58,296 --> 01:03:00,211
And, you know,
kids are just different.
1184
01:03:00,385 --> 01:03:01,995
They're just resilient.
1185
01:03:03,780 --> 01:03:05,433
Whenever we actually
got down there,
1186
01:03:05,607 --> 01:03:08,219
Beth was talking to us,
and Evan just came in
1187
01:03:08,393 --> 01:03:11,265
with these pile
of sugar cookies.
1188
01:03:11,439 --> 01:03:13,006
- I think there were,
like, six of them.
- Yeah.
1189
01:03:13,180 --> 01:03:15,487
She just turned around
and suddenly goes, "No, sir,"
1190
01:03:15,661 --> 01:03:18,229
and took, like,
three or four of them away.
1191
01:03:18,403 --> 01:03:20,666
And he started following her
around, around the house saying,
1192
01:03:20,840 --> 01:03:23,495
- "No, sir. No, sir."
- Yeah.
1193
01:03:23,669 --> 01:03:25,453
And that was,
that was our first-- that was
1194
01:03:25,627 --> 01:03:27,238
- my first impression of-- Yeah.
- That was my first time
1195
01:03:27,412 --> 01:03:29,066
ever seeing Evan,
my first experience.
1196
01:03:29,240 --> 01:03:31,590
- And I just thought, "He's mad."
- Yeah.
1197
01:03:31,764 --> 01:03:34,245
- This, this is what it is.
Let's, let's go.
- Yeah.
1198
01:03:34,419 --> 01:03:36,551
I think, at first
we put a big emphasis
1199
01:03:36,725 --> 01:03:39,990
on just making everything
as smooth as possible for him.
1200
01:03:40,164 --> 01:03:41,948
We went about our regular lives,
1201
01:03:42,122 --> 01:03:45,169
and you just added in
this other variable.
1202
01:03:45,343 --> 01:03:47,693
They never really seemed
to skip a beat.
1203
01:03:47,867 --> 01:03:50,957
I think it says something
for them. You know,
what kind of people they are.
1204
01:03:51,131 --> 01:03:54,482
There was a lot of change
growing up.
A lot of moving around.
1205
01:03:54,656 --> 01:03:58,835
Anything that's different
just kind of flows naturally.
1206
01:04:03,187 --> 01:04:06,930
Beth made a book
about people getting married.
1207
01:04:07,104 --> 01:04:08,801
People in her family.
1208
01:04:09,410 --> 01:04:12,022
People in my family.
Her and Dennis.
1209
01:04:12,196 --> 01:04:16,156
People in the Disney movies
or the other movies he used
to like getting married.
1210
01:04:17,375 --> 01:04:20,508
When we got married, it was
kind of generally accepted that,
1211
01:04:20,682 --> 01:04:23,990
as crazy as it would seem,
I would stay in El Dorado,
1212
01:04:24,164 --> 01:04:26,384
and he would stay in St. Louis.
1213
01:04:26,558 --> 01:04:29,082
We just decided
that's the way it was gonna be.
1214
01:04:29,256 --> 01:04:31,302
So, we still were doing school,
going to work,
1215
01:04:31,476 --> 01:04:33,478
trying to travel
on the weekends.
1216
01:04:33,652 --> 01:04:34,958
That's a lot.
1217
01:04:35,132 --> 01:04:37,177
I was committed,
and so was Beth.
1218
01:04:37,351 --> 01:04:39,005
We were committed to both Evan,
1219
01:04:39,179 --> 01:04:42,008
and we were committed
to the five other children.
1220
01:04:42,182 --> 01:04:44,837
It was a balance
in making all that work.
1221
01:04:45,011 --> 01:04:48,406
So, we finally decided
that when Evan turned 18
1222
01:04:48,580 --> 01:04:50,495
and didn't have to go
to school anymore,
1223
01:04:50,669 --> 01:04:53,063
I would quit my job,
and we would have to--
1224
01:04:53,237 --> 01:04:54,847
Evan and I would have
to go to St. Louis.
1225
01:04:57,241 --> 01:04:59,330
I was sort of excited.
1226
01:04:59,504 --> 01:05:00,853
We're gonna go to a big city.
1227
01:05:01,027 --> 01:05:02,289
I had done a lot of research.
1228
01:05:02,463 --> 01:05:04,291
There was
an autism community there.
1229
01:05:04,465 --> 01:05:07,033
We'll be able to take advantage
of all sorts of resources
1230
01:05:07,207 --> 01:05:09,340
that we haven't had or...
1231
01:05:09,514 --> 01:05:11,733
"Maybe I-- maybe there's things
I don't know about."
1232
01:05:11,908 --> 01:05:16,477
Maybe we had a better chance
of finding facilities
1233
01:05:16,651 --> 01:05:20,264
and post-high school life
for him.
1234
01:05:20,438 --> 01:05:24,181
That did not turn out
exactly as planned.
1235
01:05:25,617 --> 01:05:28,663
One evening, it was
just Beth and Evan and I,
1236
01:05:28,837 --> 01:05:31,318
and he kept turning off the TV.
1237
01:05:32,015 --> 01:05:34,321
And I would turn it back on,
and he would turn it off,
1238
01:05:34,495 --> 01:05:36,628
and I would turn it on,
and he would turn it off.
1239
01:05:36,802 --> 01:05:40,414
And Evan just reaches down
and grabs my hand,
1240
01:05:41,328 --> 01:05:44,462
and grabs my wedding ring
1241
01:05:44,636 --> 01:05:47,030
and starts trying
to pull it off my finger.
1242
01:05:47,204 --> 01:05:50,424
Evan made it very clear
that he was mad
about the whole darn thing,
1243
01:05:50,598 --> 01:05:53,123
and he was mad at Paul
because...
1244
01:05:53,297 --> 01:05:56,300
for having caused
the whole darn thing.
1245
01:05:56,822 --> 01:05:58,563
And he wasn't happy.
1246
01:05:58,737 --> 01:06:02,654
Evan had been in his room there
at the St. Louis house,
1247
01:06:02,828 --> 01:06:07,093
and... for some reason,
I had-- I walked into his room.
1248
01:06:07,267 --> 01:06:09,139
There was one of the books
1249
01:06:09,313 --> 01:06:12,490
that I think
Mary Pat had made for him.
1250
01:06:12,664 --> 01:06:14,057
Me and My Dad.
1251
01:06:14,231 --> 01:06:16,233
It was about him and his father.
1252
01:06:19,062 --> 01:06:20,541
And he had been looking at it.
1253
01:06:28,245 --> 01:06:29,072
"Dad."
1254
01:06:31,074 --> 01:06:32,249
He didn't wanna forget him.
1255
01:06:34,207 --> 01:06:36,688
That moment, as hard as it was,
1256
01:06:36,862 --> 01:06:40,866
I think it, it helped him get
some things out of his system
1257
01:06:41,040 --> 01:06:43,347
that he couldn't communicate.
1258
01:06:44,870 --> 01:06:47,916
I really think
it helped me to make sure
1259
01:06:48,091 --> 01:06:51,311
I wasn't afraid to talk
about his dad to him.
1260
01:06:51,485 --> 01:06:53,748
Because before all that,
I didn't.
1261
01:06:53,922 --> 01:06:55,489
After all that, I did.
1262
01:06:56,099 --> 01:06:57,665
That was our moment,
1263
01:06:57,839 --> 01:07:00,581
and it was pretty damn good
after all that.
1264
01:07:02,322 --> 01:07:06,326
She had every intention
of creating a life in St. Louis.
1265
01:07:06,500 --> 01:07:08,502
And there just--
1266
01:07:08,676 --> 01:07:12,158
It never was that comfortable
of a fit, especially for Evan.
1267
01:07:12,941 --> 01:07:14,639
When it didn't work,
1268
01:07:15,248 --> 01:07:17,903
I think it rocked us
on our heels a little bit.
1269
01:07:18,077 --> 01:07:20,862
He would just look at me like,
"What, what are you doing,
Mother? What are you thinking?"
1270
01:07:21,037 --> 01:07:22,908
I mean, I could almost see that
in his face
1271
01:07:23,082 --> 01:07:24,388
when I would pick him up,
like...
1272
01:07:25,563 --> 01:07:27,391
..."What are we doing here?"
1273
01:07:27,565 --> 01:07:30,872
And he would just look at Beth
and go, "Pack a bag. Airplane."
1274
01:07:31,047 --> 01:07:33,614
He's like, "Take me home now."
1275
01:07:33,788 --> 01:07:37,792
You know, he didn't have a life
outside of the house at all,
and he was totally used to that.
1276
01:07:37,966 --> 01:07:41,057
Go anywhere in the community
and know people,
and they know him, and...
1277
01:07:41,231 --> 01:07:45,365
I think, in retrospect,
it was a lot to expect of Evan.
1278
01:07:45,539 --> 01:07:50,544
And he did his best to adjust
till he just couldn't.
1279
01:07:50,718 --> 01:07:54,548
His body literally
just had stress responses.
I know he had seizures.
1280
01:07:54,722 --> 01:07:58,291
He was kind of taken away from
everything he knew growing up.
1281
01:07:58,465 --> 01:08:01,033
And, like, the way I think
about that, for me, it's like...
1282
01:08:01,207 --> 01:08:02,730
I mean, like,
"Would it bother you?"
1283
01:08:03,427 --> 01:08:06,038
Probably, you know.
And there you go.
1284
01:08:06,212 --> 01:08:10,695
In retrospect, I feel kind of
stupid having thought
1285
01:08:11,565 --> 01:08:13,524
that he was gonna be happy,
or that we could find
1286
01:08:13,698 --> 01:08:15,874
all those things
that I perceived in my mind
1287
01:08:16,048 --> 01:08:18,398
had to have been missing
from our experience.
1288
01:08:19,138 --> 01:08:21,749
And the one thing
that we really needed,
we already had.
1289
01:08:23,229 --> 01:08:24,883
I don't know, the El Dorado,
1290
01:08:25,057 --> 01:08:26,885
the place is, like,
what's home to him
1291
01:08:27,059 --> 01:08:30,410
as much as the people there,
and getting pulled from that
1292
01:08:31,368 --> 01:08:33,152
- was really hard for him,
I think.
- Yeah.
1293
01:08:33,326 --> 01:08:36,547
He missed his community.
He missed his friends.
1294
01:08:36,721 --> 01:08:42,074
And it was almost like
we had instilled in him
so much community.
1295
01:08:42,248 --> 01:08:43,902
We made the decision...
1296
01:08:45,338 --> 01:08:47,775
...albeit sadly, that
1297
01:08:48,472 --> 01:08:51,866
the best thing for Evan would be
to come back down to El Dorado.
1298
01:08:52,867 --> 01:08:54,739
Paul said to me,
1299
01:08:55,348 --> 01:08:58,090
"Pack your bags
and take him home."
1300
01:08:58,264 --> 01:09:00,179
It wasn't me having
to go to him and say,
1301
01:09:00,353 --> 01:09:02,834
"I gotta..."
You know, "I gotta go."
1302
01:09:03,835 --> 01:09:04,879
He came to me.
1303
01:09:05,053 --> 01:09:06,229
And so we...
1304
01:09:08,100 --> 01:09:09,623
...packed our bags
and came home.
1305
01:09:13,671 --> 01:09:16,587
And so I went to work
at the community college
1306
01:09:16,761 --> 01:09:21,069
to create a pilot program
in El Dorado, Arkansas,
1307
01:09:21,244 --> 01:09:27,032
to include people
with developmental disabilities
on the college campus.
1308
01:09:27,206 --> 01:09:32,124
Beth contacted me.
She was the new program director
of the Stepping Stones Program,
1309
01:09:32,298 --> 01:09:35,388
a newly-formed program
at the college
1310
01:09:35,562 --> 01:09:39,523
that gave people
the opportunity to do things
1311
01:09:39,697 --> 01:09:42,178
that they would never have
gotten to do on their own.
1312
01:09:42,352 --> 01:09:46,051
My friend Jason here had always
wanted to be a firefighter.
1313
01:09:46,225 --> 01:09:49,533
So, through
the Stepping Stones process,
1314
01:09:49,707 --> 01:09:51,883
Jason was able to train,
1315
01:09:52,057 --> 01:09:55,191
and he was able to come up
to the El Dorado Fire Department
1316
01:09:55,365 --> 01:09:57,541
and be a firefighter with us.
1317
01:09:57,715 --> 01:09:59,847
She's a mentor to me.
1318
01:10:00,021 --> 01:10:04,765
And she, she helped me
get an internship,
1319
01:10:04,939 --> 01:10:10,684
and... I'm, I'm happy
that she did.
1320
01:10:10,858 --> 01:10:15,341
They made as big an impact on me
as I made on them, I think.
1321
01:10:15,515 --> 01:10:18,605
But I also feel incredibly lucky
1322
01:10:19,476 --> 01:10:22,261
to have been a part of that
for, for even a short time.
1323
01:10:22,435 --> 01:10:25,264
In the meantime,
at my house...
1324
01:10:26,178 --> 01:10:29,573
...my issues with my child
were still unsolved.
1325
01:10:32,228 --> 01:10:34,099
"Evan goes to college."
1326
01:10:34,273 --> 01:10:37,929
"One day, Evan and his mom
got in the car
1327
01:10:38,103 --> 01:10:39,800
and drove to a place called..."
1328
01:10:40,714 --> 01:10:41,585
"Magnolia."
1329
01:10:43,804 --> 01:10:46,546
I was getting
a little more desperate,
1330
01:10:46,720 --> 01:10:48,809
a little more afraid
something would happen to me.
1331
01:10:48,983 --> 01:10:50,681
And now we weren't in St. Louis,
1332
01:10:50,855 --> 01:10:53,466
and now Evan was by himself,
and ugh, ugh, ugh.
1333
01:10:53,640 --> 01:10:55,338
I-- I'm getting old.
1334
01:10:55,512 --> 01:10:57,818
And he doesn't have the patience
with his old mother.
1335
01:10:57,992 --> 01:10:59,211
And, you know,
there's a lot of--
1336
01:10:59,385 --> 01:11:00,647
There were a lot of dynamics
going on.
1337
01:11:00,821 --> 01:11:03,041
We-- 'Cause we were there.
Just me and him.
1338
01:11:05,173 --> 01:11:06,610
You want to stay here all day?
1339
01:11:09,308 --> 01:11:10,918
She comes home
from church one Sunday
1340
01:11:11,092 --> 01:11:12,311
and she calls me and she says,
1341
01:11:12,485 --> 01:11:16,010
"I ran into Ralph Weiser
at church today."
1342
01:11:16,184 --> 01:11:19,231
He had been instrumental
in creating programing
1343
01:11:19,405 --> 01:11:21,146
for people
with developmental disabilities,
1344
01:11:21,320 --> 01:11:22,800
that sort of stuff, in Magnolia.
1345
01:11:22,974 --> 01:11:27,283
I had no idea
that in my little backyard,
1346
01:11:27,457 --> 01:11:29,023
there was
this little place over here.
1347
01:11:29,197 --> 01:11:31,069
He said, "I'd like to show you
around" or something.
1348
01:11:31,243 --> 01:11:32,853
And I pulled up to this place,
1349
01:11:33,027 --> 01:11:35,073
and there was a day program
for preschoolers
1350
01:11:35,247 --> 01:11:37,945
with developmental disabilities,
and adults.
1351
01:11:38,119 --> 01:11:41,166
She went over to look at it,
and it was the perfect situation
for Evan.
1352
01:11:41,340 --> 01:11:43,473
All of the group homes
that I had been interested
1353
01:11:43,647 --> 01:11:46,345
in looking at,
people shared rooms.
1354
01:11:46,519 --> 01:11:49,566
And I knew that Evan James
was never gonna share a room
with anyone.
1355
01:11:49,740 --> 01:11:52,699
And he said, "Yeah,
there's five rooms on one side
and five rooms on the other."
1356
01:11:52,873 --> 01:11:55,528
I said, "You mean
everyone has their own room?"
1357
01:11:55,702 --> 01:11:57,878
"Yeah." Well, of course,
Monday morning,
1358
01:11:58,052 --> 01:12:01,708
I was on the phone, and I said,
"I might be interested some time
1359
01:12:01,882 --> 01:12:05,538
in Evan getting on the list
to live in the group home
1360
01:12:05,712 --> 01:12:07,540
and maybe
go to the day program."
1361
01:12:07,714 --> 01:12:09,673
And she said, "Beth,
from what I understand,
1362
01:12:09,847 --> 01:12:11,501
Evan's at the top of the list."
1363
01:12:13,633 --> 01:12:16,593
And she said,
"Evan, when men turn 21,
1364
01:12:16,767 --> 01:12:18,551
they go to college in Magnolia.
1365
01:12:18,725 --> 01:12:22,250
So you are going
to college in Magnolia."
1366
01:12:22,425 --> 01:12:23,817
It's how it started.
1367
01:12:25,253 --> 01:12:27,125
"Evan gets a house."
1368
01:12:27,299 --> 01:12:29,127
"Just around the corner
from Evan's college,
1369
01:12:29,301 --> 01:12:32,304
there's a beautiful house
where really nice people live."
1370
01:12:32,478 --> 01:12:35,568
Honestly, the first time
she took him over
to see the group home,
1371
01:12:35,742 --> 01:12:37,265
and we were so nervous
about that,
1372
01:12:37,440 --> 01:12:39,616
he met everybody,
he saw his room,
1373
01:12:39,790 --> 01:12:41,444
he, he saw the whole house,
1374
01:12:41,618 --> 01:12:44,490
and he just go-- turned to Beth
and said, "I love it."
1375
01:12:44,664 --> 01:12:47,145
"They ask Evan
if he would like to live there.
1376
01:12:47,319 --> 01:12:50,104
Evan and Mama decided it would
be a great place to live."
1377
01:12:50,975 --> 01:12:52,759
The plan sort of happened to me,
1378
01:12:52,933 --> 01:12:56,241
and when it did, I felt okay.
1379
01:12:57,503 --> 01:13:00,419
And I had never felt
okay about it.
1380
01:13:00,593 --> 01:13:03,640
And then she fixed up his room.
Of course, the cutest room
1381
01:13:03,814 --> 01:13:05,946
with The Cat in the Hat
and Dr. Seuss.
1382
01:13:06,120 --> 01:13:08,340
And at first,
it was just a few days.
1383
01:13:08,514 --> 01:13:10,603
It was a slow integration.
1384
01:13:11,822 --> 01:13:13,867
I got two minutes,
and I'm gonna take it in there.
1385
01:13:14,041 --> 01:13:14,999
Put it up.
1386
01:13:15,173 --> 01:13:16,304
Put it up.
1387
01:13:16,479 --> 01:13:18,045
- Are you good?
- Are you good?
1388
01:13:20,265 --> 01:13:24,574
I was as scared for him to do it
as he was to do it.
1389
01:13:24,748 --> 01:13:28,055
And so our transition
was very slow for him,
1390
01:13:28,229 --> 01:13:29,883
even spending the night.
1391
01:13:30,057 --> 01:13:33,931
Evan is going to be
able to go to Magnolia
1392
01:13:34,105 --> 01:13:36,455
and have a chance
to become as independent
1393
01:13:36,629 --> 01:13:38,501
as life will allow him to be.
1394
01:13:38,675 --> 01:13:40,546
But something did happen...
1395
01:13:41,591 --> 01:13:43,244
...uh, about this time.
1396
01:13:44,594 --> 01:13:49,686
Boom. We find out
that Evan's got Crohn's.
1397
01:13:49,860 --> 01:13:53,341
About 40% of people with autism
also have Crohn's disease.
1398
01:13:53,516 --> 01:13:56,127
He was in excruciating pain,
1399
01:13:56,301 --> 01:14:00,000
and I had no idea
what to do with him.
1400
01:14:00,174 --> 01:14:04,962
Hospitalizations and procedures
and illness and weight loss.
1401
01:14:05,136 --> 01:14:08,879
He was developing rectal abscess
1402
01:14:09,053 --> 01:14:12,752
that were requiring
incredibly painful surgery.
1403
01:14:12,926 --> 01:14:14,188
And I'm like, "Oh, great.
1404
01:14:14,362 --> 01:14:16,539
You know, we got autism,
we have seizures,
1405
01:14:16,713 --> 01:14:18,541
and now we have this."
1406
01:14:20,586 --> 01:14:23,371
He learned,
"Well, if I don't eat,
I don't go to the bathroom,
1407
01:14:23,546 --> 01:14:25,156
so maybe I won't eat."
1408
01:14:25,330 --> 01:14:27,724
I mean, it was just miserable.
1409
01:14:27,898 --> 01:14:29,552
Once again, here's Beth
1410
01:14:29,726 --> 01:14:34,078
who gets one of
the over-the-door shoe racks,
1411
01:14:34,252 --> 01:14:35,993
and that's Evan's medical,
1412
01:14:36,167 --> 01:14:38,822
so he could tell her
what he needed.
1413
01:14:38,996 --> 01:14:42,478
Like, she would have
the different creams,
the gloves, and...
1414
01:14:42,652 --> 01:14:44,654
"What do you need?
What do you want?"
1415
01:14:44,828 --> 01:14:47,613
So he could help communicate
what he needed.
1416
01:14:47,787 --> 01:14:51,312
So, at that point,
we took Evan back to St. Louis.
1417
01:14:52,313 --> 01:14:54,054
You would start to get
a handle on things,
1418
01:14:54,228 --> 01:14:56,535
and then they call you up
on the phone at work and say,
1419
01:14:56,709 --> 01:15:00,147
"We just did a scan on him,
and his, uh, his appendix
is about to rupture.
1420
01:15:00,321 --> 01:15:03,499
You know, you have to get him
to the hospital immediately."
1421
01:15:03,673 --> 01:15:05,326
I don't know how he did it.
1422
01:15:05,501 --> 01:15:06,937
It almost killed him,
1423
01:15:07,720 --> 01:15:09,679
um, in, in fact.
1424
01:15:09,853 --> 01:15:12,377
I'd never seen her
1425
01:15:12,551 --> 01:15:14,074
almost to the point
of being hopeless.
1426
01:15:14,248 --> 01:15:16,468
I mean, that's just not Beth,
but she was about there.
1427
01:15:16,642 --> 01:15:20,951
But all of our people
aligned again
1428
01:15:21,560 --> 01:15:23,127
from just out of the blue
1429
01:15:23,301 --> 01:15:25,608
to guide us
through another situation.
1430
01:15:26,130 --> 01:15:28,001
Crohn's is in remission.
1431
01:15:28,175 --> 01:15:30,787
He's gone from having
to have monthly infusions
1432
01:15:30,961 --> 01:15:33,441
to, um, monthly injections.
1433
01:15:33,616 --> 01:15:37,184
It's still something that...
they have to stay on top of,
1434
01:15:37,358 --> 01:15:38,925
but it is under control
right now.
1435
01:15:39,099 --> 01:15:41,624
He is-- Continues
on that medicine today.
1436
01:15:41,798 --> 01:15:44,670
That is not easy on the body.
1437
01:15:44,844 --> 01:15:47,891
It creates quite a detriment
to the immune system.
1438
01:15:49,632 --> 01:15:52,243
I noticed
he was really scratching
his eyes and his ears.
1439
01:15:52,417 --> 01:15:55,507
A suppressed immune system
causes all sorts of problems.
1440
01:15:55,681 --> 01:15:59,032
So, we have been fighting here,
as of late, topical--
1441
01:15:59,206 --> 01:16:02,470
A dermatitis that has affected
his ears and his eyes.
1442
01:16:02,645 --> 01:16:05,125
Being, uh, kind of unable
to explain this to him,
1443
01:16:05,299 --> 01:16:07,258
he's really rubbing his eyes.
1444
01:16:07,432 --> 01:16:10,914
And as he's really
digging in there,
he's scratching his cornea.
1445
01:16:11,610 --> 01:16:14,570
And there's going to be
long-term vision damage if he...
1446
01:16:15,701 --> 01:16:17,311
...rubs too hard, too long.
1447
01:16:17,485 --> 01:16:19,139
Same thing with his ears.
1448
01:16:19,313 --> 01:16:21,446
The written word
is very important in our family,
1449
01:16:21,620 --> 01:16:23,622
so we need to make sure
that he continues
1450
01:16:23,796 --> 01:16:25,929
to have access to that strength.
1451
01:16:26,103 --> 01:16:28,975
Actually, I think it's time
that we put some medicine
in his eyes, so...
1452
01:16:30,150 --> 01:16:31,108
Eye time.
1453
01:16:33,980 --> 01:16:35,765
Yes?
1454
01:16:39,551 --> 01:16:41,335
- Eye time?
- No.
1455
01:16:42,119 --> 01:16:44,164
- You ready?
- Ready?
1456
01:16:53,870 --> 01:16:56,307
- Eye time.
- Mmm-hmm.
1457
01:16:56,481 --> 01:16:57,743
Eye time.
1458
01:16:58,701 --> 01:17:00,006
Try not to for a minute.
1459
01:17:03,967 --> 01:17:06,970
- Be gentle.
- Yes. Be very gentle.
Don't rub hard.
1460
01:17:09,450 --> 01:17:11,801
Beth always knew,
and Dennis too,
1461
01:17:11,975 --> 01:17:16,022
that Evan was gonna need
special attention all his life.
1462
01:17:16,762 --> 01:17:20,548
And that was one reason
Dennis fought so hard
with the leukemia.
1463
01:17:21,941 --> 01:17:25,641
You put his health issues,
his autism,
1464
01:17:25,815 --> 01:17:28,513
the death of his father, moving,
1465
01:17:29,209 --> 01:17:31,472
new and more health issues...
1466
01:17:32,865 --> 01:17:36,173
That's a lot.
That's a lot for anybody.
1467
01:17:37,087 --> 01:17:39,393
Evan has a real autism
1468
01:17:39,567 --> 01:17:44,224
and all the medical
and emotional
and disabling effects of it.
1469
01:17:44,398 --> 01:17:48,011
And yet there's something
special about him.
1470
01:17:48,968 --> 01:17:51,449
And I don't even know
how to put it into words.
1471
01:17:51,623 --> 01:17:54,365
He can do amazing things
with that brain.
1472
01:17:54,844 --> 01:17:59,849
It's just not things
that are going to keep him
from needing...
1473
01:18:00,850 --> 01:18:03,417
...someone to make sure
he's always okay.
1474
01:18:04,157 --> 01:18:06,682
Look at me.
1475
01:18:06,856 --> 01:18:08,074
Look.
1476
01:18:08,248 --> 01:18:10,598
- Nose.
- Yeah. Did you have a good week?
1477
01:18:10,773 --> 01:18:13,340
- Good week.
- Good. Good.
You ready to go home?
1478
01:18:13,514 --> 01:18:15,516
- Yes. Good week.
- All right,
let's pick up your stuff.
1479
01:18:15,691 --> 01:18:16,996
Give it to your mom.
1480
01:18:18,171 --> 01:18:19,869
- What is it?
- All right.
1481
01:18:20,043 --> 01:18:21,435
- Say "Open it."
- All right.
1482
01:18:21,609 --> 01:18:23,829
- What is it?
- All right. What is it?
1483
01:18:24,482 --> 01:18:27,920
- Good.
- Good. I love it.
1484
01:18:28,442 --> 01:18:29,835
Good.
1485
01:18:30,009 --> 01:18:31,837
- Okay.
- I like that.
1486
01:18:32,011 --> 01:18:33,273
I like that.
1487
01:18:33,926 --> 01:18:34,971
- What?
- What have you got?
1488
01:18:35,145 --> 01:18:36,146
Oh.
1489
01:18:37,843 --> 01:18:39,410
Santa Claus ornament.
1490
01:18:40,498 --> 01:18:42,326
Yeah, I thought
that would be good too.
1491
01:18:52,902 --> 01:18:55,469
I have told
all of my nieces and nephews,
1492
01:18:55,643 --> 01:18:58,821
my great nieces and nephews,
and my stepchildren,
1493
01:18:58,995 --> 01:19:03,042
and I intend
to tell their children
if I live long enough...
1494
01:19:04,304 --> 01:19:06,263
...that my only requirement
of them...
1495
01:19:07,960 --> 01:19:09,527
...is that they go see him
once a year,
1496
01:19:09,701 --> 01:19:11,485
and it can't be a holiday.
1497
01:19:11,659 --> 01:19:14,488
Because I figure
there are so many of them
1498
01:19:15,185 --> 01:19:18,057
that surely two of them
will show up every month
1499
01:19:18,231 --> 01:19:20,668
if they commit
to that one time of year.
1500
01:19:20,843 --> 01:19:22,975
Go into Magnolia
and taking Evan to dinner.
1501
01:19:23,149 --> 01:19:24,498
That's the only requirement.
1502
01:19:25,412 --> 01:19:27,893
And if everybody does that...
1503
01:19:29,242 --> 01:19:31,941
...then a couple of times
a month, Evan gets
to go out to dinner
1504
01:19:32,115 --> 01:19:33,856
with someone
he really cares about.
1505
01:19:34,030 --> 01:19:36,467
And if something really terrible
is going on in his life,
1506
01:19:36,641 --> 01:19:37,947
somebody will know.
1507
01:19:39,426 --> 01:19:41,254
I don't really see it
as a responsibility,
1508
01:19:41,428 --> 01:19:43,604
and I never even saw it
as a question.
1509
01:19:43,779 --> 01:19:48,131
I feel like Evan's village
is gonna go down
to the next generation,
1510
01:19:48,827 --> 01:19:50,698
and I feel like
he'll always have people.
1511
01:19:50,873 --> 01:19:54,702
We need to do our part
because he's impacted us so much
1512
01:19:54,877 --> 01:19:57,967
and done so much for us
in our lives
that he doesn't even realize.
1513
01:19:58,141 --> 01:19:59,795
We're just gonna have
to take shifts, you know.
1514
01:19:59,969 --> 01:20:01,100
- You're gonna take care of him
for three months.
- No.
1515
01:20:01,274 --> 01:20:02,710
He can move
into the room next door.
1516
01:20:02,885 --> 01:20:04,451
I don't-- I'm not worried
about it, but, like--
1517
01:20:04,625 --> 01:20:06,976
I, I know for sure that
there's a community behind Evan.
1518
01:20:07,150 --> 01:20:08,847
I have complete faith in that.
1519
01:20:09,021 --> 01:20:11,241
And I have faith that
all of us will come together
1520
01:20:11,415 --> 01:20:12,895
and do what's right
at the end of that.
1521
01:20:13,069 --> 01:20:14,810
It's just
what we would do for...
1522
01:20:15,767 --> 01:20:16,942
- Our brother.
- Yeah.
1523
01:20:17,116 --> 01:20:18,465
There is no fear or worries
1524
01:20:18,639 --> 01:20:20,119
about what the future
looks like for Evan.
1525
01:20:20,293 --> 01:20:23,035
I feel like he is going
to survive and thrive,
1526
01:20:23,209 --> 01:20:25,603
um, as the older generation
moves on.
1527
01:20:25,777 --> 01:20:27,823
We'll make sure
he's taken care of.
1528
01:20:28,345 --> 01:20:31,565
We just have
really big shoes to fill.
1529
01:20:32,175 --> 01:20:33,089
Really big.
1530
01:20:37,180 --> 01:20:39,878
This, this story
shows a pattern...
1531
01:20:41,532 --> 01:20:45,231
...of me, um, running
into just the right person
1532
01:20:45,405 --> 01:20:49,757
or just the r-- right, um, help,
1533
01:20:49,932 --> 01:20:51,759
or just the right
piece of information
1534
01:20:51,934 --> 01:20:53,718
when it was necessary for me.
1535
01:20:56,025 --> 01:20:58,418
Uh, which is, you know,
1536
01:20:59,071 --> 01:21:00,812
maybe luck,
maybe divine intervention,
1537
01:21:00,986 --> 01:21:03,075
maybe... Whatever. I don't know.
1538
01:21:03,249 --> 01:21:05,643
But behind all of that...
1539
01:21:07,123 --> 01:21:10,474
...uh,
I'm looking at the picture
of these people.
1540
01:21:12,476 --> 01:21:13,999
And this is my family.
1541
01:21:14,739 --> 01:21:17,437
These people were the people
that struggled through
1542
01:21:17,611 --> 01:21:20,092
so that he learned
to go to church,
1543
01:21:20,266 --> 01:21:22,442
and go to a restaurant,
1544
01:21:22,616 --> 01:21:24,662
and go to a family dinner.
And, you know, I--
1545
01:21:24,836 --> 01:21:26,533
People call me all the time,
"I can't take him anywhere."
1546
01:21:26,707 --> 01:21:28,318
Well...
1547
01:21:29,623 --> 01:21:32,235
...find these kind of people
1548
01:21:32,409 --> 01:21:35,586
who will accept you
no matter what.
1549
01:21:36,587 --> 01:21:37,980
They're not your family.
1550
01:21:38,154 --> 01:21:39,895
You have to find them
because they're key.
1551
01:21:40,069 --> 01:21:42,593
For me, it was these people.
1552
01:21:45,944 --> 01:21:48,468
And I owe them everything.
1553
01:21:51,384 --> 01:21:54,866
This commitment
that Beth has to Evan,
1554
01:21:55,040 --> 01:21:57,434
you can't help
but be moved by it.
1555
01:21:59,044 --> 01:22:01,394
You have no idea what it takes.
1556
01:22:01,568 --> 01:22:04,441
You have no idea what kind of
love that kid can provide.
1557
01:22:04,615 --> 01:22:09,489
He's taught us so much
through the whole thing.
1558
01:22:11,404 --> 01:22:14,103
You have no idea what love,
1559
01:22:14,277 --> 01:22:17,802
and work, and dedication
this took
1560
01:22:17,976 --> 01:22:23,373
to get one person
to the point he is today.
1561
01:22:23,547 --> 01:22:25,810
And that's one person.
1562
01:22:25,984 --> 01:22:28,900
What Beth is doing
can be super impactful
1563
01:22:29,074 --> 01:22:32,251
if the message can be spread
because there's a lot of people
out there
1564
01:22:32,425 --> 01:22:34,340
that don't have that support.
1565
01:22:34,514 --> 01:22:37,430
Being a movie star again, Evan?
- Movie star.
1566
01:22:37,996 --> 01:22:41,521
I just think of how much
my life has been enriched
1567
01:22:41,695 --> 01:22:45,090
by knowing Evan
and him being a part of my life.
1568
01:22:45,264 --> 01:22:47,179
I still get excited
when I see him
1569
01:22:47,353 --> 01:22:50,226
and when he comes up
and gives me a kiss
1570
01:22:50,400 --> 01:22:52,880
or hugs my neck
and says, "I love you."
1571
01:22:53,055 --> 01:22:54,360
Oh, my gosh.
1572
01:22:54,839 --> 01:22:56,058
I just hope that
1573
01:22:56,972 --> 01:23:00,584
people who have a Beth
or have an Evan in their life
1574
01:23:00,758 --> 01:23:03,500
take this and really help them.
1575
01:23:04,022 --> 01:23:05,458
One thing I hope
people take away
1576
01:23:05,632 --> 01:23:08,984
is, is what a privilege
it has been...
1577
01:23:10,028 --> 01:23:11,464
...to be part of this story.
1578
01:23:15,381 --> 01:23:18,819
I think people found
a common purpose,
1579
01:23:19,429 --> 01:23:22,693
and in this common purpose
was Evan.
1580
01:23:24,347 --> 01:23:26,958
So, it's all as it ends,
as I said before.
1581
01:23:27,132 --> 01:23:33,008
What would I say to someone?
There's so much to be taken
from a situation, uh, like this.
1582
01:23:33,182 --> 01:23:35,184
It's not that you don't--
Do you get tired?
1583
01:23:35,358 --> 01:23:37,751
Heck yeah.
I'm gonna be tired by Sunday.
1584
01:23:37,925 --> 01:23:41,277
But as far as
the life's experience,
1585
01:23:41,451 --> 01:23:43,366
I am different, I am better.
1586
01:23:43,540 --> 01:23:44,802
I'm a better person.
1587
01:23:45,629 --> 01:23:47,674
So, maybe, you know,
when people say,
1588
01:23:47,848 --> 01:23:49,328
"Oh, you do everything for him,"
1589
01:23:49,502 --> 01:23:51,809
you know, I'm like,
"Maybe he saved me."
1590
01:23:52,331 --> 01:23:54,507
I don't know. Who saved who?
1591
01:23:57,597 --> 01:23:59,338
♪ You've got a friend in me ♪
1592
01:23:59,512 --> 01:24:00,687
Your favorite song.
1593
01:24:01,993 --> 01:24:04,213
♪ You've got a friend in me ♪
1594
01:24:06,128 --> 01:24:09,261
♪ When the road
looks rough ahead ♪
1595
01:24:09,435 --> 01:24:13,613
♪ And you're miles and miles
from your nice warm bed ♪
1596
01:24:14,266 --> 01:24:17,269
♪ We stick together
and can see it through ♪
1597
01:24:17,443 --> 01:24:20,751
♪ 'Cause you've got
a friend in me ♪
1598
01:24:21,447 --> 01:24:25,147
♪ Oh, you've got
a friend in me ♪
1599
01:24:26,800 --> 01:24:30,935
♪ Some other folks
might be a little bit
smarter than I am ♪
1600
01:24:31,109 --> 01:24:33,198
♪ Bigger and stronger too ♪
1601
01:24:33,981 --> 01:24:38,421
♪ Maybe, but none of them
will ever love you ♪
1602
01:24:38,595 --> 01:24:40,423
♪ The way I do ♪
1603
01:24:40,597 --> 01:24:42,860
♪ It's me and you ♪
1604
01:24:43,034 --> 01:24:45,906
♪ Boy, as the years go by ♪
1605
01:24:47,386 --> 01:24:49,997
♪ Our friendship
will never die ♪
1606
01:24:51,477 --> 01:24:56,656
♪ You're gonna see
it's our destiny ♪
1607
01:24:57,788 --> 01:25:00,138
♪ You've got a friend in me ♪
1608
01:25:09,234 --> 01:25:10,235
"The end."
1609
01:25:10,888 --> 01:25:11,976
Good job.
118217
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