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Would you like to inspect the original subtitles? These are the user uploaded subtitles that are being translated: 1 00:00:02,000 --> 00:00:07,000 Downloaded from YTS.BZ 2 00:00:08,000 --> 00:00:13,000 Official YIFY movies site: YTS.BZ 3 00:00:47,482 --> 00:00:49,745 Very tiny. 4 00:00:56,186 --> 00:00:57,622 Two minutes. 5 00:00:59,798 --> 00:01:02,671 Oh, look at that sweet baby. 6 00:01:09,460 --> 00:01:12,072 Oh. Oh, he smells Mama. 7 00:01:17,033 --> 00:01:19,949 You're precious. Yeah. Are you precious? 8 00:01:20,602 --> 00:01:23,257 Yes, look at Mama. Look at your mama. 9 00:01:26,216 --> 00:01:30,307 Wash your hands. Hmm. Playing next. 10 00:01:33,615 --> 00:01:35,530 Okay. Here too. 11 00:01:36,835 --> 00:01:37,923 All right. 12 00:01:38,576 --> 00:01:40,274 - History. - Okay. 13 00:01:40,448 --> 00:01:43,929 - Okay. - Okay. Sounds good. 14 00:01:44,104 --> 00:01:47,455 I had no idea there was anything wrong with him. 15 00:01:50,066 --> 00:01:51,589 We had no issues. 16 00:01:53,330 --> 00:01:55,332 Evan has a plate. 17 00:01:55,506 --> 00:01:56,899 Mama has a plate. 18 00:01:57,073 --> 00:01:58,857 And keep in mind as we tell these stories, 19 00:01:59,031 --> 00:02:01,121 we're talking about the early '90s. 20 00:02:01,295 --> 00:02:03,340 Look at Daddy. Look. 21 00:02:03,514 --> 00:02:05,386 Look at Daddy. Good boy. 22 00:02:05,560 --> 00:02:08,302 I'm not sure I'd ever heard the word autism before. 23 00:02:08,476 --> 00:02:12,393 If I had, it just didn't seem to be a prevalent... 24 00:02:13,959 --> 00:02:14,873 ...topic. 25 00:02:46,992 --> 00:02:49,343 - Say "hi" to Paul. - Say hi, Paul. 26 00:02:50,039 --> 00:02:53,738 Um, see you Sunday. 27 00:02:53,912 --> 00:02:55,653 - All right. - All right. 28 00:02:56,393 --> 00:02:58,047 - Bye. - Bye. 29 00:03:00,484 --> 00:03:02,965 My name is Evan Mitchell James. 30 00:03:03,139 --> 00:03:08,188 I was born on April 24th, 1991. 31 00:03:08,362 --> 00:03:11,103 My dad is Dennis James. 32 00:03:11,278 --> 00:03:14,063 My mommy is Beth James Burns. 33 00:03:14,237 --> 00:03:17,849 I am a very special person. 34 00:03:18,023 --> 00:03:19,373 Being a part of Evan's life 35 00:03:19,547 --> 00:03:21,853 has 100% impacted me in the best way 36 00:03:22,027 --> 00:03:24,291 because he's got contagious energy. 37 00:03:24,465 --> 00:03:27,946 I still refer to him as "my little boy," 38 00:03:28,120 --> 00:03:31,036 but he is a grown man with autism. 39 00:03:31,211 --> 00:03:34,431 He's talented. He's a great mimic. 40 00:03:34,605 --> 00:03:36,651 How are you? I'm fine. 41 00:03:36,825 --> 00:03:38,218 He loves an audience. 42 00:03:38,392 --> 00:03:41,003 If he knows that he's got an audience, 43 00:03:41,177 --> 00:03:43,527 he loves it, and he's not stopping. 44 00:03:44,354 --> 00:03:47,009 Evan sees the world as his playground. 45 00:03:47,183 --> 00:03:48,880 Nothing but play and fun 46 00:03:49,054 --> 00:03:52,014 until we inconvenience him with scheduled dinners, 47 00:03:52,188 --> 00:03:54,408 baths, showers, and brushing your teeth. 48 00:03:54,582 --> 00:03:56,888 I think he's much more intelligent 49 00:03:57,062 --> 00:03:59,543 than people may assume he is. 50 00:03:59,717 --> 00:04:01,589 I don't know. I just think he's so cool, 51 00:04:01,763 --> 00:04:03,634 and he shows his love in, like, cool ways. 52 00:04:03,808 --> 00:04:05,636 And I think all those things go back 53 00:04:05,810 --> 00:04:10,467 to what a great job Beth had done with Evan. 54 00:04:10,641 --> 00:04:12,817 I suspect that, at this point, 55 00:04:12,991 --> 00:04:16,865 my label is Evan's mom at 60. 56 00:04:17,039 --> 00:04:19,998 But I don't think that totally sums up a person. 57 00:04:20,172 --> 00:04:21,652 I have lots of hats, 58 00:04:21,826 --> 00:04:24,133 and I think that may have been the saving grace. 59 00:04:24,307 --> 00:04:27,658 And that I have been able to continue to wear lots of hats 60 00:04:27,832 --> 00:04:30,139 other than just Evan's mom. 61 00:04:34,578 --> 00:04:37,712 We are in the middle, South Central Arkansas. 62 00:04:37,886 --> 00:04:40,236 Population of about 18,000. 63 00:04:40,410 --> 00:04:42,978 A hundred miles from the nearest airport, 64 00:04:43,152 --> 00:04:46,068 be it Texarkana, Little Rock, Shreveport. 65 00:04:46,242 --> 00:04:49,463 We have the Art Center, Murphy Arts District. 66 00:04:49,637 --> 00:04:51,465 We do a film festival. 67 00:04:51,639 --> 00:04:54,119 For a little town, we do have a lot of culture. 68 00:04:54,294 --> 00:04:56,078 Being in a small southern town 69 00:04:56,252 --> 00:04:58,733 proved to be part of the solution for us, 70 00:04:58,907 --> 00:05:02,824 and I think that people might consider that a little unusual. 71 00:05:03,738 --> 00:05:05,479 Take us to the beginning. 72 00:05:05,653 --> 00:05:08,482 And b-- by the beginning, I mean the beginning of Evan. 73 00:05:13,356 --> 00:05:15,489 What about your wife, Chris? 74 00:05:15,663 --> 00:05:19,319 Oh, forget her. Me and her hardly talk anymore. 75 00:05:19,493 --> 00:05:22,060 Well, Dennis and I-- You know, I was already 27 76 00:05:22,234 --> 00:05:24,367 when Dennis and I got married. He was 29. 77 00:05:24,541 --> 00:05:26,761 You know, there's a general expectation, 78 00:05:26,935 --> 00:05:29,024 certainly of my generation, you know, 79 00:05:29,198 --> 00:05:32,506 that ultimately you would get married and you would have children. 80 00:05:34,725 --> 00:05:36,292 Not having children 81 00:05:36,466 --> 00:05:38,816 or not being able to have children 82 00:05:38,990 --> 00:05:42,951 didn't-- wasn't even part of my imagination. 83 00:05:43,125 --> 00:05:46,346 I was actually here when Beth had one of her miscarriages. 84 00:05:46,520 --> 00:05:47,912 And that was just heartbreaking. 85 00:05:48,086 --> 00:05:50,611 I'd never gone through that with anybody. 86 00:05:50,785 --> 00:05:52,917 For the first time, I was realizing that life does not always 87 00:05:53,091 --> 00:05:54,615 turn out the way you think it's going to. 88 00:05:54,789 --> 00:05:57,052 Because after the first unsuccessful pregnancy, 89 00:05:57,226 --> 00:05:59,271 I was like, "Okay, well, that, that happens to people." 90 00:05:59,924 --> 00:06:02,840 The second one, I was like, 91 00:06:03,014 --> 00:06:05,974 "Oh, wow, this is gonna be a deal." 92 00:06:14,548 --> 00:06:17,159 We went to the doctor a lot, we watched it a lot closer, 93 00:06:17,333 --> 00:06:20,641 and we were able to have a successful pregnancy. 94 00:06:20,815 --> 00:06:22,904 I am one of his godparents. 95 00:06:23,078 --> 00:06:25,559 He's actually-- I'm, I'm one of five. 96 00:06:25,733 --> 00:06:27,604 They didn't trust me by myself. 97 00:06:27,778 --> 00:06:30,781 But they made a video and sent to me in California 98 00:06:30,955 --> 00:06:33,349 of the first time Beth was holding Evan. 99 00:06:36,308 --> 00:06:39,964 Say, "I'm two weeks old, and I'm precious." 100 00:06:40,574 --> 00:06:43,185 He really was just the most beautiful baby, 101 00:06:43,359 --> 00:06:45,143 young child that you ever saw. 102 00:06:45,317 --> 00:06:47,929 He, he really did-- He looked like an angel. He really did. 103 00:06:51,672 --> 00:06:53,587 See, go look at Baby Evan, Jordan. 104 00:06:55,676 --> 00:06:58,809 He crawled. He walked. 105 00:06:58,983 --> 00:07:02,030 He was pleasant. He was really pleasant. 106 00:07:02,204 --> 00:07:04,249 I mean, we have a baby book. It's really funny. 107 00:07:04,424 --> 00:07:05,729 And here are all of his pictures. 108 00:07:05,903 --> 00:07:08,166 You know, his, his baptism, his walking, 109 00:07:08,340 --> 00:07:10,299 his family, his first home. 110 00:07:10,473 --> 00:07:13,433 And then it, and then it just kind of stops 111 00:07:13,607 --> 00:07:15,435 because the next page is first word. 112 00:07:19,047 --> 00:07:24,052 He wouldn't respond to even a simple instruction. 113 00:07:24,226 --> 00:07:25,880 Like, "Come here." 114 00:07:26,054 --> 00:07:28,665 So I thought, "I believe he has a hearing problem." 115 00:07:29,710 --> 00:07:31,581 So, I would do little experiments. 116 00:07:31,755 --> 00:07:33,801 Like, I would go to the other part of the house, 117 00:07:33,975 --> 00:07:36,194 and I would hit a key on the piano 118 00:07:36,368 --> 00:07:38,545 or play with the toy, 119 00:07:38,719 --> 00:07:41,504 or start the movie, and he would come. 120 00:07:41,678 --> 00:07:44,420 "Okay, he doesn't have a hearing problem." 121 00:07:46,117 --> 00:07:48,337 He had a big birthday party in their backyard, 122 00:07:48,511 --> 00:07:51,383 and it would have been about the time 123 00:07:51,558 --> 00:07:53,298 he should have started having some words, 124 00:07:53,473 --> 00:07:55,736 but nothing noticeable yet. 125 00:07:56,476 --> 00:07:58,826 It took a while for me to convince anyone 126 00:07:59,000 --> 00:08:00,828 that there was a problem 127 00:08:01,002 --> 00:08:04,353 because he was so congenial, and so handsome, 128 00:08:04,527 --> 00:08:08,096 and so fun, and sweet, and kind. 129 00:08:08,270 --> 00:08:10,098 I do think Dennis, 130 00:08:10,272 --> 00:08:12,970 he always thought Evan was gonna talk, 131 00:08:13,144 --> 00:08:15,799 and he would just go, "Why won't you talk to me? 132 00:08:15,973 --> 00:08:17,105 Talk to me." 133 00:08:17,584 --> 00:08:19,760 I finally did begin to do 134 00:08:19,934 --> 00:08:22,197 a little investigating on my own, 135 00:08:22,371 --> 00:08:25,766 and I had come up with the term autism. 136 00:08:29,596 --> 00:08:32,642 I knew intuitively-- I didn't know what it was, 137 00:08:32,816 --> 00:08:36,472 but I knew things were not going as they should be going. 138 00:08:36,646 --> 00:08:39,693 And so we put Evan into speech therapy 139 00:08:39,867 --> 00:08:43,653 until we could get an evaluation at Children's Hospital. 140 00:08:43,827 --> 00:08:46,961 I said, "Now, Dan, here's what they're going to tell us." 141 00:08:47,570 --> 00:08:50,704 And even to that night, bless his heart, 142 00:08:50,878 --> 00:08:52,532 he was in total denial. 143 00:08:52,706 --> 00:08:53,837 "No, they're not." 144 00:08:54,838 --> 00:08:56,971 "Yes, they are." 145 00:08:58,189 --> 00:08:59,930 They did, in fact, that day, tell us that 146 00:09:00,104 --> 00:09:02,063 they believe he suffered from autism, 147 00:09:02,237 --> 00:09:03,717 not a developmental delay. 148 00:09:03,891 --> 00:09:06,197 They used the big A word plain as day. 149 00:09:07,372 --> 00:09:09,026 They would say things in that evaluation 150 00:09:09,200 --> 00:09:11,376 like, "You'll probably never be able to go to church. 151 00:09:11,551 --> 00:09:13,422 You'll probably never be able to go to a restaurant." 152 00:09:13,596 --> 00:09:17,034 And I was thinking, "We already do do those things." 153 00:09:17,208 --> 00:09:20,342 They did tell me that he needed to get occupational therapy, 154 00:09:20,516 --> 00:09:22,213 and speech therapy, and physical therapy, 155 00:09:22,387 --> 00:09:24,041 and all these therapies, 156 00:09:24,215 --> 00:09:25,826 which was the right advice, 157 00:09:26,000 --> 00:09:30,439 but really, practical living, it was pretty much... 158 00:09:31,614 --> 00:09:33,137 ..."Have a nice life." 159 00:09:34,312 --> 00:09:37,098 And not because they were bad, 160 00:09:37,272 --> 00:09:40,188 but because they didn't know either. 161 00:09:41,668 --> 00:09:43,800 I don't remember feeling angry. 162 00:09:43,974 --> 00:09:48,500 I'm not even sure at that point I even felt sad or disappointed. 163 00:09:48,675 --> 00:09:51,721 Those things have come to me, but at that point, it was just, 164 00:09:51,895 --> 00:09:53,810 "Okay, we're taking this three-year-old kid, 165 00:09:53,984 --> 00:09:55,595 and we're gonna create a life for him now. 166 00:09:55,769 --> 00:09:57,858 Now, how do I learn how to do that?" 167 00:10:02,776 --> 00:10:04,865 Back in March, when the COVID numbers 168 00:10:05,039 --> 00:10:07,215 reached pandemic proportions, 169 00:10:07,389 --> 00:10:10,087 we felt very insecure about him being in an environment 170 00:10:10,261 --> 00:10:11,611 that we could not control. 171 00:10:13,830 --> 00:10:16,572 Transitions are very difficult for autistic people in general, 172 00:10:16,746 --> 00:10:18,661 but they're especially difficult for Evan. 173 00:10:18,835 --> 00:10:20,663 So, what we've learned over time 174 00:10:20,837 --> 00:10:23,057 is that we need to clearly explain 175 00:10:23,231 --> 00:10:25,755 when there's going to be a transition. 176 00:10:26,495 --> 00:10:29,237 And since he's been with us since March, 177 00:10:29,411 --> 00:10:32,240 going back to his regular schedule 178 00:10:32,414 --> 00:10:36,636 is going to be a serious emotional transition for him, 179 00:10:36,810 --> 00:10:38,376 for which he is not going to like. 180 00:10:38,550 --> 00:10:41,031 So, what we've also learned is when we do that, 181 00:10:41,205 --> 00:10:43,860 if we'll write it down on paper and tell a story about it, 182 00:10:44,034 --> 00:10:47,037 he seems to understand, begin to transition. 183 00:10:47,211 --> 00:10:50,214 He can read it over and over so he knows what to do. 184 00:10:50,388 --> 00:10:52,042 So-- Yes, you'll understand. 185 00:10:52,216 --> 00:10:53,696 So, that's what we're gonna do. 186 00:10:53,870 --> 00:10:55,872 I've got my supplies, and I'm gonna get Evan, 187 00:10:56,046 --> 00:10:59,354 and we're going to write a story about what we're about to do. 188 00:10:59,528 --> 00:11:02,226 - Okay, Ev, it's-- We need to... - Oh. 189 00:11:02,400 --> 00:11:03,793 ...write a story today. 190 00:11:03,967 --> 00:11:06,317 Can you sit down? Mom's got to write a story. 191 00:11:07,754 --> 00:11:09,886 - Story. - Story time. Okay? 192 00:11:10,060 --> 00:11:11,932 - Story time. - Are you ready? 193 00:11:12,106 --> 00:11:13,237 Ready. 194 00:11:13,411 --> 00:11:15,370 Okay. Today is? 195 00:11:16,240 --> 00:11:17,241 Today. 196 00:11:24,466 --> 00:11:25,510 What is today? 197 00:11:27,774 --> 00:11:29,210 Sunday. 198 00:11:29,384 --> 00:11:30,907 Today is Sunday. 199 00:11:33,040 --> 00:11:33,954 Evan... 200 00:11:37,784 --> 00:11:39,263 ...has been... 201 00:11:39,437 --> 00:11:43,137 "...staying at Madison House 202 00:11:43,311 --> 00:11:47,707 with Mom and Paul for a long time." 203 00:11:47,881 --> 00:11:48,882 Evan... 204 00:11:50,405 --> 00:11:52,973 ...stayed with... 205 00:11:54,757 --> 00:11:55,889 ...Mom... 206 00:11:57,238 --> 00:11:58,805 ...and Paul 207 00:11:58,979 --> 00:12:02,243 because many people... 208 00:12:04,462 --> 00:12:05,812 ...were sick. 209 00:12:05,986 --> 00:12:10,207 "It is time for Evan to go to..." 210 00:12:11,818 --> 00:12:13,602 No, Evan. 211 00:12:13,776 --> 00:12:16,910 - That's a no, no. Evan's house. - Mmm-hmm. 212 00:12:17,475 --> 00:12:18,520 Mom... 213 00:12:19,739 --> 00:12:22,698 ...will miss him... 214 00:12:25,483 --> 00:12:27,921 ...very much. 215 00:12:28,095 --> 00:12:29,052 Oh! 216 00:12:30,097 --> 00:12:31,185 Oh! 217 00:12:31,359 --> 00:12:32,969 - Are you good? - I'm good. 218 00:12:33,143 --> 00:12:34,405 Go to Magnolia tomorrow? 219 00:12:38,453 --> 00:12:39,933 - Yes? - Yes. 220 00:12:40,107 --> 00:12:42,109 You're a good guy. I'm proud of you. 221 00:12:42,979 --> 00:12:43,980 All right. 222 00:12:52,946 --> 00:12:54,077 Anything you wanna say? 223 00:12:56,036 --> 00:12:58,516 One two, three, four. 224 00:12:59,604 --> 00:13:01,171 Yes, you can take whatever you want. 225 00:13:06,873 --> 00:13:08,352 ...job. 226 00:13:08,526 --> 00:13:10,354 Yes. Mom has a job. 227 00:13:11,355 --> 00:13:12,661 Mom has to go back to her job, 228 00:13:12,835 --> 00:13:14,358 and you have to go back to your house. 229 00:13:16,970 --> 00:13:17,797 Monday. 230 00:13:18,841 --> 00:13:21,452 Monday, Tuesday, Wednesday. 231 00:13:21,626 --> 00:13:22,671 Mom will come get you. 232 00:13:22,845 --> 00:13:24,716 - See you Wednesday. - Yes. 233 00:13:26,762 --> 00:13:28,764 - Wednesday. - Mmm-hmm. 234 00:13:28,938 --> 00:13:30,635 - Wednesday. - Okay. 235 00:13:32,072 --> 00:13:33,029 Good job. 236 00:13:34,422 --> 00:13:35,379 Robert. 237 00:13:36,337 --> 00:13:37,555 Yes, Robert's there. 238 00:13:38,643 --> 00:13:39,514 Uh-huh. 239 00:13:44,693 --> 00:13:47,087 He doesn't usually get upset when he's on a regular schedule. 240 00:13:47,261 --> 00:13:49,306 We just do his schedule, and he's okay with it. 241 00:13:49,480 --> 00:13:51,482 So, him getting upset... 242 00:13:51,656 --> 00:13:53,484 He usually just-- "Okay, that's my life," you know. 243 00:13:53,658 --> 00:13:56,270 But that, that hasn't been his life, so... 244 00:13:56,444 --> 00:13:57,749 Show Mom your book. 245 00:13:58,402 --> 00:13:59,273 Um... 246 00:14:01,928 --> 00:14:04,104 So, he was a little more upset than he would normally be. 247 00:14:04,278 --> 00:14:06,410 Normally, he just does whatever he's supposed to do. 248 00:14:06,584 --> 00:14:07,890 This is Dad. 249 00:14:09,239 --> 00:14:11,241 - "Evan goes to college." Yep. - Yeah. 250 00:14:11,415 --> 00:14:13,461 So, this is his sort of, like, I-know-you book. 251 00:14:16,029 --> 00:14:18,901 El Dorado is a small town. My parents live there. 252 00:14:19,075 --> 00:14:21,382 My sister actually was working at the hospital 253 00:14:21,556 --> 00:14:23,210 the night that Evan was born. 254 00:14:23,384 --> 00:14:26,953 And then, you know, two to three years after that 255 00:14:27,127 --> 00:14:28,650 is when I had heard that 256 00:14:28,824 --> 00:14:31,958 Evan had been diagnosed with autism. 257 00:14:38,790 --> 00:14:40,357 I had a close-knit family. 258 00:14:40,531 --> 00:14:42,142 Dennis had a close-knit family. 259 00:14:42,316 --> 00:14:45,928 We had a close group of friends. 260 00:14:46,102 --> 00:14:50,280 I didn't feel the need to try to hide him. 261 00:14:50,454 --> 00:14:53,457 Beth had very limited resources. 262 00:14:53,631 --> 00:14:54,850 Certainly locally. 263 00:14:55,024 --> 00:14:57,200 I mean, she had to dig and research 264 00:14:57,374 --> 00:15:00,160 and find her resources herself. 265 00:15:01,204 --> 00:15:04,164 There's no Internet, there's no cell phone, 266 00:15:04,338 --> 00:15:06,775 there's no Google, there's nothing. 267 00:15:06,949 --> 00:15:09,125 And so we were going to have to help ourselves. 268 00:15:09,299 --> 00:15:11,823 I've always said this, that Dennis and I were similar. 269 00:15:11,998 --> 00:15:13,695 In that, give us a problem. 270 00:15:13,869 --> 00:15:15,262 We're gonna take to our beds 271 00:15:15,436 --> 00:15:16,872 and pull the covers over our heads, 272 00:15:17,046 --> 00:15:20,180 and Beth is gonna figure out what to do. 273 00:15:20,354 --> 00:15:23,705 And she did. And she discovered the National Autism Society, 274 00:15:23,879 --> 00:15:26,316 and they were having their annual conference. 275 00:15:26,490 --> 00:15:27,970 And we really thought, 276 00:15:28,144 --> 00:15:30,016 "Since we know nothing about autism, 277 00:15:30,190 --> 00:15:31,931 let's go see what this is." 278 00:15:32,105 --> 00:15:33,715 In Las Vegas of all places. 279 00:15:40,026 --> 00:15:42,158 We were able to gather information 280 00:15:42,332 --> 00:15:43,943 that we had not had before. 281 00:15:44,117 --> 00:15:46,206 I mean, we're trying to immerse ourselves in it 282 00:15:46,380 --> 00:15:49,122 and just absorb everything that was being offered. 283 00:15:49,296 --> 00:15:52,125 There were people out there facing the same things we were. 284 00:15:52,299 --> 00:15:56,259 None of us were really seeing the answer for Evan. 285 00:15:56,433 --> 00:15:59,436 There's no right or wrong. There's no map. 286 00:15:59,610 --> 00:16:02,439 I felt a certain sense of confidence that we could do it. 287 00:16:02,613 --> 00:16:04,876 I just didn't know how we were gonna do it. 288 00:16:05,051 --> 00:16:08,489 I'd flown to Las Vegas, but I did ride back in the car 289 00:16:08,663 --> 00:16:10,839 with Beth and Dennis to El Dorado. 290 00:16:11,013 --> 00:16:14,016 We ended up driving straight from Las Vegas to El Dorado 291 00:16:14,190 --> 00:16:17,802 because there was not a hotel, motel, 292 00:16:17,977 --> 00:16:21,241 anything available all through that night. 293 00:16:21,415 --> 00:16:24,200 And Beth had bought a book, 294 00:16:24,374 --> 00:16:25,810 Let Me Hear Your Voice. 295 00:16:25,985 --> 00:16:28,422 So, we had to stay awake. So we read this book. 296 00:16:28,596 --> 00:16:31,816 And it was written by a woman in Manhattan 297 00:16:31,991 --> 00:16:35,342 who had all the resources of New York right outside her door. 298 00:16:35,516 --> 00:16:37,170 But again, like us, 299 00:16:37,344 --> 00:16:41,304 it's like none of these particular therapy programs 300 00:16:41,478 --> 00:16:43,915 fit her autistic child. 301 00:16:44,090 --> 00:16:48,355 So, she started taking bits and pieces from the different therapies. 302 00:16:48,529 --> 00:16:52,881 Year four was a critical year in the child's development, 303 00:16:53,055 --> 00:16:56,015 to really do these intense therapies. 304 00:16:56,189 --> 00:16:58,060 And that's-- Evan was about to turn four. 305 00:16:58,234 --> 00:17:04,545 ♪ Happy birthday to you ♪ 306 00:17:04,719 --> 00:17:07,330 Happy birthday. 307 00:17:08,070 --> 00:17:09,245 Are you four? 308 00:17:11,987 --> 00:17:15,164 There's Evan's name. E-V-A-N. 309 00:17:15,904 --> 00:17:18,037 E-V-A-N, Evan. 310 00:17:18,559 --> 00:17:21,997 Beth and Dennis found a therapy clinic 311 00:17:22,171 --> 00:17:25,218 in Memphis, called Communication Station, 312 00:17:25,392 --> 00:17:27,568 that was taking a similar approach 313 00:17:27,742 --> 00:17:29,831 to what we had decided would be best. 314 00:17:30,005 --> 00:17:31,833 Turn around this way. 315 00:17:32,007 --> 00:17:34,618 You haven't opened this one. You wanna try to open this one? 316 00:17:34,792 --> 00:17:38,057 The theory at the time was the best way to treat autism 317 00:17:38,231 --> 00:17:40,102 was with behavior modification, 318 00:17:40,276 --> 00:17:43,410 and you move into this therapy environment. 319 00:17:43,584 --> 00:17:45,934 I went for two weeks. Dennis came for one. 320 00:17:46,108 --> 00:17:48,676 You're going to have to never assume 321 00:17:48,850 --> 00:17:50,373 that he can learn anything, 322 00:17:50,547 --> 00:17:53,072 that he's going to have to be taught everything. 323 00:17:53,246 --> 00:17:55,987 And this is going to take hours and hours every day. 324 00:17:56,162 --> 00:17:58,729 And here's how you do it. And... 325 00:17:58,903 --> 00:18:00,166 Wow. 326 00:18:03,169 --> 00:18:06,041 Yeah. We got to use that pointing finger. 327 00:18:07,434 --> 00:18:09,566 All right! 328 00:18:09,740 --> 00:18:12,047 When you're trying to bring him in, 329 00:18:12,221 --> 00:18:14,267 bring him into your world, give him the words, 330 00:18:14,441 --> 00:18:15,790 give him the explanations, 331 00:18:15,964 --> 00:18:19,402 it's not natural to them like it is to you. 332 00:18:19,576 --> 00:18:22,449 So, your level of frustration is gonna be great, 333 00:18:22,623 --> 00:18:24,842 but your level of understanding has to be great too. 334 00:18:25,016 --> 00:18:27,018 It's just your pointing finger. There we go. 335 00:18:29,760 --> 00:18:33,286 All right. 336 00:18:33,460 --> 00:18:36,245 And if it's really gonna be successful, your family's gonna have to do it, 337 00:18:36,419 --> 00:18:38,247 and your friends are gonna have to talk to him this way. 338 00:18:38,421 --> 00:18:40,467 Because at this point, still, 339 00:18:41,250 --> 00:18:43,600 we have no means... 340 00:18:44,906 --> 00:18:46,212 ...of communication. 341 00:18:47,343 --> 00:18:49,954 Oh, she's gonna ride in the car. 342 00:18:50,129 --> 00:18:52,957 You want him to ride in the car together with the pig? 343 00:18:55,046 --> 00:18:57,745 He couldn't, wouldn't, whatever you wanna call it, 344 00:18:57,919 --> 00:19:00,748 even point to what he wanted. 345 00:19:00,922 --> 00:19:03,272 Evan, you did a good job with the puzzle... 346 00:19:04,491 --> 00:19:09,017 ...and the letters, and I like it when you... point. 347 00:19:09,191 --> 00:19:10,845 Point. 348 00:19:11,019 --> 00:19:14,022 And I can remember saying, "Will there ever be words?" 349 00:19:14,196 --> 00:19:15,850 And then they said, "Well, we're gonna get some." 350 00:19:17,068 --> 00:19:20,550 B-L-U-E. 351 00:19:22,770 --> 00:19:23,901 Blue. 352 00:19:24,728 --> 00:19:27,557 We were in Memphis at Communication Station. 353 00:19:27,731 --> 00:19:30,386 They said to me, "Beth, what are the two things he loves the most?" 354 00:19:30,560 --> 00:19:32,083 I said, "Coke. 355 00:19:33,128 --> 00:19:34,434 TV." 356 00:19:34,608 --> 00:19:36,740 She said, "Now, I want you to practice 357 00:19:36,914 --> 00:19:39,656 a sign language for 'I want TV'." 358 00:19:40,962 --> 00:19:42,268 So, you know, um... 359 00:19:43,921 --> 00:19:44,879 Okay. 360 00:19:45,445 --> 00:19:47,534 She said, "We're starting there. 361 00:19:47,708 --> 00:19:49,840 He will never get TV or Coke again 362 00:19:50,014 --> 00:19:51,755 until he says the words." 363 00:19:51,929 --> 00:19:55,455 Cookie. Cookie. 364 00:19:55,629 --> 00:19:59,676 I want cookie. 365 00:19:59,850 --> 00:20:03,071 I want cookie. 366 00:20:03,637 --> 00:20:05,987 So, when, you know, when you say, "What was Evan's first word?" 367 00:20:06,161 --> 00:20:09,164 It was "Coke" or "TV." One or the other. I don't know. 368 00:20:09,338 --> 00:20:11,558 But that led us to 369 00:20:12,211 --> 00:20:16,519 begin to learn to communicate and have him communicate back. 370 00:20:16,693 --> 00:20:18,869 - I... - Want cookie. 371 00:20:19,043 --> 00:20:21,742 Good. Excellent, Evan. Very good. 372 00:20:21,916 --> 00:20:24,614 We were going to have to use everything in his senses 373 00:20:24,788 --> 00:20:28,314 to teach him about his environment. 374 00:20:28,488 --> 00:20:31,317 When we did this first little rudimentary book, 375 00:20:31,491 --> 00:20:33,493 it's not all here anymore, that's how many times 376 00:20:33,667 --> 00:20:36,322 he's looked at it, it just worked. 377 00:20:36,496 --> 00:20:39,020 When I realized that he was going to be able to read, 378 00:20:39,194 --> 00:20:41,588 him reading the words was one thing... 379 00:20:42,676 --> 00:20:44,417 ...but then we had to give him the meaning of the word. 380 00:20:44,591 --> 00:20:47,550 He could easily memorize the word "table"... 381 00:20:48,595 --> 00:20:50,901 ...but there was no meaning to the word "table." 382 00:20:51,598 --> 00:20:53,730 So, there was a process in there somewhere where I realized 383 00:20:53,904 --> 00:20:56,211 his visual memory was going to be excellent. 384 00:20:56,385 --> 00:21:00,737 And that's where we began the labeling of everything in his world. 385 00:21:00,911 --> 00:21:03,305 So, I'm walking around there. I'm making these little cards. 386 00:21:03,479 --> 00:21:05,307 You know, cutting up construction paper, 387 00:21:05,481 --> 00:21:08,179 a little card, with a marker and some tape, 388 00:21:08,354 --> 00:21:10,399 and I'm taping everything in the house. 389 00:21:19,321 --> 00:21:21,932 So, window had "window" on it, chair had "chair" on it, 390 00:21:22,106 --> 00:21:23,325 flower had "flower" on it. 391 00:21:23,499 --> 00:21:25,153 And so, as we walked around the house, 392 00:21:25,327 --> 00:21:27,634 he saw the word, he saw the thing. 393 00:21:27,808 --> 00:21:30,201 Well, of course, then pretty soon I realized that, 394 00:21:30,376 --> 00:21:33,335 "Oh, if I put the word 'chair' on this chair, 395 00:21:33,509 --> 00:21:35,468 then that's a chair. 396 00:21:35,642 --> 00:21:38,862 Not everything that looks like this in this world is a chair." 397 00:21:40,386 --> 00:21:44,085 So, now we have to have the word "chair" on every chair 398 00:21:44,259 --> 00:21:47,610 so he understands the word "chair" means all of these things. 399 00:21:47,784 --> 00:21:50,526 Or the word "flower" means not just this thing, 400 00:21:50,700 --> 00:21:52,485 but it means all of these things. 401 00:21:52,659 --> 00:21:54,225 And that "dog" is a dog 402 00:21:54,400 --> 00:21:56,271 regardless if it's brown, or big, or little, or the-- 403 00:21:56,445 --> 00:21:57,968 All of these things are dog. 404 00:21:58,142 --> 00:22:01,189 And as we would go, we would share these things 405 00:22:01,363 --> 00:22:02,756 so that everyone would know, 406 00:22:02,930 --> 00:22:05,498 "Okay, now, now we're doing this." 407 00:22:05,672 --> 00:22:09,415 Use your pointing finger and say... 408 00:22:11,547 --> 00:22:13,027 - Evan. - Evan. 409 00:22:13,201 --> 00:22:16,335 - And... Grandma. - Grandma. 410 00:22:19,599 --> 00:22:22,123 Say, "Richard." Yes. 411 00:22:22,776 --> 00:22:24,430 Beth's one of five children. 412 00:22:24,604 --> 00:22:26,867 And their attitude is, "We face it. 413 00:22:27,041 --> 00:22:29,391 We deal with adversity, whatever it is." 414 00:22:29,565 --> 00:22:32,394 There is nobody in our family 415 00:22:32,568 --> 00:22:34,744 that has ever shied away from Evan. 416 00:22:35,441 --> 00:22:36,659 His friends. 417 00:22:37,138 --> 00:22:39,358 Nobody has ever shied away from him. 418 00:22:39,532 --> 00:22:41,751 Bringing him up as a family, it was no question 419 00:22:41,925 --> 00:22:44,406 of whether or not he was gonna be included in our lives. 420 00:22:44,580 --> 00:22:47,409 Beth makes you aware of what needs to happen, 421 00:22:47,583 --> 00:22:50,369 but also lets you know that there's not any fear there. 422 00:22:50,543 --> 00:22:52,240 They might have been afraid, 423 00:22:52,414 --> 00:22:54,198 but just because I didn't know what to do, 424 00:22:54,373 --> 00:22:57,114 and they were willing to learn. 425 00:22:57,288 --> 00:23:01,554 And everybody learned exactly how they were supposed to communicate with him 426 00:23:01,728 --> 00:23:04,818 so that we could all be on the same track. 427 00:23:04,992 --> 00:23:06,950 And when it became apparent 428 00:23:07,124 --> 00:23:11,912 that he was going to need a helper, interpreter, 429 00:23:12,086 --> 00:23:15,394 and that was at the point, of course, that Richard dropped the big bomb 430 00:23:15,568 --> 00:23:18,222 that he was going to come home... 431 00:23:19,223 --> 00:23:21,661 ...and he was going to be that for him. 432 00:23:25,665 --> 00:23:27,406 We were driving. 433 00:23:27,580 --> 00:23:29,712 It started to occur to me in the car, 434 00:23:29,886 --> 00:23:34,064 but I, uh, kept it in my head that I could do this. 435 00:23:34,238 --> 00:23:37,024 So, I've committed to coming back to El Dorado for a year. 436 00:23:40,157 --> 00:23:42,595 Richard went to school with Evan... 437 00:23:43,378 --> 00:23:45,859 ...and he went in the classrooms. 438 00:23:46,033 --> 00:23:48,557 Richard was Evan's inclusion therapist. 439 00:23:48,731 --> 00:23:52,300 Uh, went to kindergarten with him, took him to therapies. 440 00:23:52,474 --> 00:23:55,825 We brought the people from Communication Station to El Dorado. 441 00:23:55,999 --> 00:23:58,132 My mom went, my sisters went, 442 00:23:58,306 --> 00:24:00,177 my brothers went, the friends went. 443 00:24:00,351 --> 00:24:03,093 They came down to El Dorado and trained me 444 00:24:03,267 --> 00:24:05,966 in Evan's classroom, in his house, 445 00:24:06,140 --> 00:24:08,011 all of his normal environments. 446 00:24:08,838 --> 00:24:11,493 I don't know if Evan would have made it through preschool. 447 00:24:11,667 --> 00:24:14,496 Without that, I certainly don't think 448 00:24:14,670 --> 00:24:17,412 that what happened to him in the next... 449 00:24:18,587 --> 00:24:21,372 ...few years would have been possible at all. 450 00:24:21,547 --> 00:24:24,027 When we started these therapies with him, 451 00:24:24,201 --> 00:24:25,855 it was very frustrating to him 452 00:24:26,029 --> 00:24:28,641 because he did not understand what we were doing. 453 00:24:28,815 --> 00:24:30,381 You know, a change in temperature, 454 00:24:30,556 --> 00:24:32,558 a lot of change in texture, 455 00:24:32,732 --> 00:24:34,429 those were all issues. 456 00:24:34,603 --> 00:24:38,999 I would have to hold his hand in a bowl of shaving cream 457 00:24:39,173 --> 00:24:41,697 for him to get used to that texture. 458 00:24:41,871 --> 00:24:43,569 You know, he could walk into a room, and there'll be 459 00:24:43,743 --> 00:24:46,049 a fluorescent light bulb that's humming, 460 00:24:46,223 --> 00:24:49,096 and not perceptible to us, and it will freak him out. 461 00:24:51,098 --> 00:24:53,187 I think he hears more than we hear. 462 00:24:53,361 --> 00:24:55,885 I think he sees more than we see. 463 00:24:57,104 --> 00:24:59,323 His senses are magnified. 464 00:25:00,368 --> 00:25:02,718 When he's looking at that yard of grass, 465 00:25:02,892 --> 00:25:05,765 we see grass, Evan may see one blade. 466 00:25:06,722 --> 00:25:09,943 He eventually just realized that I was gonna be putting him 467 00:25:10,117 --> 00:25:11,945 in situations that were new to him, 468 00:25:12,119 --> 00:25:14,774 but that even started to become a routine. 469 00:25:14,948 --> 00:25:17,951 Yeah, I would go over to their house at six o'clock in the morning. 470 00:25:18,429 --> 00:25:22,303 I mean, he's sound asleep, I would throw him in the deep end of that pool, 471 00:25:22,477 --> 00:25:26,002 and he would just start squealing with delight, you know. 472 00:25:28,614 --> 00:25:31,225 And it really helped him get through the rest of the day. 473 00:25:31,399 --> 00:25:34,358 And as you get the body to work 474 00:25:34,533 --> 00:25:36,970 in sync with the mind, the better the mind works. 475 00:25:37,144 --> 00:25:39,625 Of course, now that sounds so trite, 476 00:25:39,799 --> 00:25:41,583 but 30 years ago, we didn't understand 477 00:25:41,757 --> 00:25:43,280 how the mind and the body affected. 478 00:25:43,454 --> 00:25:45,065 Or if we understood it, we weren't-- 479 00:25:45,239 --> 00:25:47,633 The average person was not practicing it. 480 00:25:47,807 --> 00:25:49,896 Seeing him progress... 481 00:25:51,245 --> 00:25:55,641 ...and the bond that formed between us... 482 00:25:58,121 --> 00:26:02,996 ...was, was the most rewarding year of my life... 483 00:26:03,866 --> 00:26:08,262 ...and I'll always treasure that and treasure him for it. 484 00:26:09,480 --> 00:26:12,396 One of my best childhood friends who does not live here now, 485 00:26:12,571 --> 00:26:15,661 she came to visit, and I introduced her to Evan. 486 00:26:15,835 --> 00:26:17,924 You know, he was four or five years old at this point. 487 00:26:18,098 --> 00:26:20,753 She just goes, "Oh, Richard, he's, he's your soulmate." 488 00:26:21,580 --> 00:26:24,147 And she was right. 489 00:26:24,321 --> 00:26:25,584 He really is. 490 00:26:27,455 --> 00:26:28,978 Evan, what do you want to eat? 491 00:26:30,719 --> 00:26:33,417 Chicken strips, French fries, and ketchup. Drink is Sprite. 492 00:26:33,592 --> 00:26:35,855 Okay. That's what I figured. 493 00:26:36,420 --> 00:26:40,033 To him, everything is a video. That's how his brain works. 494 00:26:40,599 --> 00:26:43,079 And just like if you say what are the specials today, 495 00:26:43,253 --> 00:26:45,952 he recites the whole Cat in the Hat. 496 00:26:46,126 --> 00:26:48,302 Are there some specials today? 497 00:26:48,476 --> 00:26:50,434 We got lots of specials today. 498 00:26:50,609 --> 00:26:52,306 Fried eggs and ham. 499 00:26:52,959 --> 00:26:54,264 Ham on a moo. 500 00:26:55,004 --> 00:26:57,528 Ham soufflé, and with cheese. 501 00:26:58,181 --> 00:26:59,530 Ham on toast. 502 00:27:00,227 --> 00:27:01,576 Glazed ham. 503 00:27:02,316 --> 00:27:03,622 Ham fritters. 504 00:27:03,796 --> 00:27:05,624 Minced ham. 505 00:27:06,189 --> 00:27:07,495 Rum ham. 506 00:27:08,409 --> 00:27:10,193 Ham kabobs. 507 00:27:10,367 --> 00:27:11,804 Ham pulled pork. 508 00:27:11,978 --> 00:27:13,414 Ham in the morning. 509 00:27:13,588 --> 00:27:15,764 Ham, ham, ham. 510 00:27:15,938 --> 00:27:17,592 All the lovely ham. 511 00:27:17,766 --> 00:27:19,986 I am. I am. 512 00:27:21,204 --> 00:27:23,337 All right. Well, I guess that's what I'm having. 513 00:27:29,604 --> 00:27:33,564 Being in El Dorado, we realized that we had a village 514 00:27:33,739 --> 00:27:36,132 of very loving, dedicated people 515 00:27:36,306 --> 00:27:38,744 that were family and friends of Beth and Dennis's 516 00:27:38,918 --> 00:27:41,311 that, that picked up all the slack. 517 00:27:41,834 --> 00:27:44,924 There are times where you get very tired. 518 00:27:45,098 --> 00:27:47,143 Well, i-- it makes the difference, 519 00:27:47,317 --> 00:27:49,711 you know, for someone to say, "I'll do that," 520 00:27:49,885 --> 00:27:53,019 or "I'll take them somewhere," or "I'll, um... 521 00:27:55,064 --> 00:27:56,283 ...I'll pitch in for you." 522 00:27:56,457 --> 00:27:59,199 Somebody had a day that they would 523 00:28:00,026 --> 00:28:02,071 pick up Evan, and then with that person, 524 00:28:02,245 --> 00:28:04,639 you had a specific routine that you did. 525 00:28:04,813 --> 00:28:08,425 You know, he is very regimented, and no surprises. 526 00:28:08,599 --> 00:28:10,689 And it meant you only had him two hours. 527 00:28:11,298 --> 00:28:13,648 I mean, it wasn't a long block of time. 528 00:28:14,214 --> 00:28:15,868 It's not about the hour 529 00:28:16,042 --> 00:28:18,522 as much as it is about the acceptance. 530 00:28:20,350 --> 00:28:23,136 To give you the space 531 00:28:23,310 --> 00:28:25,094 that you need to do something normal. 532 00:28:25,268 --> 00:28:27,314 And it's not about doing something special, 533 00:28:27,488 --> 00:28:28,924 it's about doing something normal. 534 00:28:29,098 --> 00:28:31,013 It gave Evan a social life, 535 00:28:31,187 --> 00:28:34,234 and it gave Beth and Dennis their lives back too. 536 00:28:34,408 --> 00:28:37,541 And I would accept help from anyone 537 00:28:37,716 --> 00:28:41,502 who had Evan's best interest at heart, mine, Dennis's. 538 00:28:41,676 --> 00:28:45,027 Beth knew that he was tended and taken care of... 539 00:28:46,202 --> 00:28:48,509 ...with someone who loved him and cared about him. 540 00:28:48,683 --> 00:28:51,947 And he was-- He is still, he is very intriguing. 541 00:28:52,121 --> 00:28:53,427 I mean, he's hysterical. 542 00:28:53,601 --> 00:28:54,907 Evan, you're so weird. 543 00:28:55,081 --> 00:28:57,344 You have no idea. 544 00:28:58,301 --> 00:29:00,303 I was one of the few people at that point 545 00:29:00,477 --> 00:29:02,436 that Evan was comfortable, 546 00:29:02,610 --> 00:29:04,786 um, and, and Beth and Denis were comfortable 547 00:29:04,960 --> 00:29:07,702 leaving him with me. 548 00:29:07,876 --> 00:29:09,704 Uh, I don't know where they went, 549 00:29:09,878 --> 00:29:11,880 but they, they were doing something that night. 550 00:29:12,054 --> 00:29:14,709 So, Evan came up and stayed with me in my apartment. 551 00:29:15,579 --> 00:29:19,758 "Richard is a great baby sister." 552 00:29:22,195 --> 00:29:24,937 - Babysitter? - Babysitter. 553 00:29:25,111 --> 00:29:26,895 And I was just letting him do his thing. 554 00:29:27,069 --> 00:29:29,637 I think I was doing some kind of domestic drudgery. 555 00:29:29,811 --> 00:29:31,465 But I was walking, you know, 556 00:29:31,639 --> 00:29:33,510 in and out of the bathroom and past him. 557 00:29:33,684 --> 00:29:36,035 And, and I just looked down at him, 558 00:29:36,209 --> 00:29:38,777 watching him make faces in the mirror just constantly, 559 00:29:38,951 --> 00:29:41,475 and I said, "Evan, you're so weird." 560 00:29:41,649 --> 00:29:44,783 He goes, "You have no idea." 561 00:29:44,957 --> 00:29:47,176 He'd never put a sentence together in his life. 562 00:29:47,350 --> 00:29:49,918 And I dropped whatever I had in my hand. 563 00:29:50,092 --> 00:29:52,703 I turned around, and it's like-- it was like The Exorcist. 564 00:29:52,878 --> 00:29:55,271 I mean, I didn't know what was happening. 565 00:29:55,445 --> 00:29:57,621 Come to find out, and it took a while to figure it out, 566 00:29:57,796 --> 00:30:00,450 this was, uh, in The Lion King. 567 00:30:00,624 --> 00:30:03,323 You're so weird. 568 00:30:03,497 --> 00:30:05,412 You have no idea. 569 00:30:05,586 --> 00:30:07,849 And that's exactly where that came from. 570 00:30:09,285 --> 00:30:10,547 Here's your schedule. 571 00:30:15,901 --> 00:30:17,816 So, I will, uh, put this in his room, 572 00:30:17,990 --> 00:30:19,818 and every once in a while, you'll see him reading it. 573 00:30:19,992 --> 00:30:21,776 So, he reads it kind of over and over and over again 574 00:30:21,950 --> 00:30:24,518 until he gets it in his head what it is he's supposed to do. 575 00:30:24,692 --> 00:30:26,868 So, that's pretty much the process. 576 00:30:28,565 --> 00:30:31,003 A variety of responses that he might have 577 00:30:31,177 --> 00:30:33,135 as the day goes on in between now 578 00:30:33,309 --> 00:30:35,311 and when we pack our bags tomorrow. 579 00:30:35,485 --> 00:30:38,619 The, uh, erasing of the schedule on his iPad 580 00:30:38,793 --> 00:30:41,665 is sort of, like, trying to say, this is not gonna happen to me. 581 00:30:41,840 --> 00:30:45,408 If it's not my iPad or it's not my schedule, it's not gonna happen. 582 00:30:51,850 --> 00:30:53,329 Do you like to go back? 583 00:30:55,114 --> 00:30:57,768 - Do you like to go back? - Go back. 584 00:30:58,987 --> 00:31:00,380 Go back, back, back... 585 00:31:03,122 --> 00:31:05,080 I know-- Listen, I know you don't want to. 586 00:31:06,603 --> 00:31:08,040 Evan, Evan, Evan. 587 00:31:08,867 --> 00:31:10,825 - But... don't be-- - Nope. 588 00:31:10,999 --> 00:31:13,480 Don't be mad or sad. It's just for a couple of days. 589 00:31:15,874 --> 00:31:17,179 - I get it. - Ouch. 590 00:31:17,353 --> 00:31:18,224 I know. 591 00:31:19,703 --> 00:31:20,835 I know. 592 00:31:22,097 --> 00:31:24,360 - Shut up. - Oh, okay. 593 00:31:26,275 --> 00:31:28,887 - Oh, pack a bag. - Yeah. Tomorrow. 594 00:31:31,672 --> 00:31:33,326 You have to go back. Pack a bag. 595 00:31:33,500 --> 00:31:34,588 Yeah, tomorrow. 596 00:31:42,901 --> 00:31:45,904 - Okay? - Bag. Okay. 597 00:31:47,557 --> 00:31:49,081 Hmm. Hmm. 598 00:31:50,256 --> 00:31:50,996 Hmm? 599 00:31:55,130 --> 00:31:57,611 When it was time to put him in public school, 600 00:31:57,785 --> 00:32:01,180 we knew that he needed to be in a regular classroom. 601 00:32:01,354 --> 00:32:03,834 How do you teach someone normal behaviors 602 00:32:04,009 --> 00:32:06,011 if they're not around normal behaviors? 603 00:32:06,185 --> 00:32:09,753 And how do you get people to understand people with disabilities 604 00:32:09,928 --> 00:32:11,451 if they're not around them? 605 00:32:11,625 --> 00:32:14,497 But he knew everything a kindergartner was supposed to. 606 00:32:14,671 --> 00:32:16,543 He had some words. 607 00:32:16,717 --> 00:32:20,068 We have never, to this day, acquired conversational language. 608 00:32:20,242 --> 00:32:22,331 You cannot have a conversation with Evan. 609 00:32:30,731 --> 00:32:33,429 I'm not f-- I haven't figured it out yet. 610 00:32:33,603 --> 00:32:35,954 But due to the language acquisition that we've done, 611 00:32:36,128 --> 00:32:38,869 he has learned how to express himself, 612 00:32:39,044 --> 00:32:42,134 and he can tell you what he wants and needs. 613 00:32:42,308 --> 00:32:43,657 There were points I look back on, 614 00:32:43,831 --> 00:32:45,789 and I must have been extremely naive, 615 00:32:45,964 --> 00:32:49,054 because I thought someone would ask me like, 616 00:32:49,228 --> 00:32:52,318 "What would you like to happen to him as he enters public school?" 617 00:32:52,492 --> 00:32:55,451 So, I'm thinking, "Okay, he's-- he knows all the stuff." 618 00:32:55,625 --> 00:32:58,193 Yes, he doesn't-- can't have a conversation with him. 619 00:32:58,367 --> 00:33:01,414 Yes, he continues to have sensory issues. 620 00:33:01,588 --> 00:33:04,895 But I still, on the other hand, say 621 00:33:05,070 --> 00:33:07,420 he deserves to be included in a classroom. 622 00:33:07,594 --> 00:33:08,943 He has the knowledge, 623 00:33:09,117 --> 00:33:13,034 and that's his least restrictive environment, 624 00:33:13,208 --> 00:33:14,905 which was the law at the time. 625 00:33:15,080 --> 00:33:17,691 And Beth, knowing what she knew... 626 00:33:17,865 --> 00:33:20,520 She knew her rights as a parent. 627 00:33:20,694 --> 00:33:23,697 She knew district policy. 628 00:33:23,871 --> 00:33:27,527 Legally, she had the right to have him in a regular classroom 629 00:33:27,701 --> 00:33:31,096 and request the school district to provide an aide 630 00:33:31,270 --> 00:33:33,620 to assist for him to be in the classroom. 631 00:33:33,794 --> 00:33:36,101 So, we go for the preschool meeting, 632 00:33:36,275 --> 00:33:40,670 and the, uh, special education person from the public school said, 633 00:33:40,844 --> 00:33:43,151 "All right, well, Evan James will be placed 634 00:33:43,325 --> 00:33:46,372 in the self-contained classroom at so and so, so and so, so..." 635 00:33:47,764 --> 00:33:52,595 - I said, "Pardon me." - Putting him in a self-contained special ed classroom 636 00:33:52,769 --> 00:33:56,121 was the only thing that the school district was offering. 637 00:33:56,295 --> 00:34:00,473 And Beth was like, "No, he's got to be in a regular classroom 638 00:34:00,647 --> 00:34:03,302 'cause he's gonna emulate whatever behavior he's around." 639 00:34:03,476 --> 00:34:06,783 None of those people were bad people. 640 00:34:06,957 --> 00:34:08,698 This was an unusual situation. 641 00:34:08,872 --> 00:34:10,526 It was an unusual request. 642 00:34:10,700 --> 00:34:13,094 It was going to require things 643 00:34:13,268 --> 00:34:15,009 that had not been required before. 644 00:34:15,183 --> 00:34:17,011 I understood that. 645 00:34:17,185 --> 00:34:18,578 At the same time... 646 00:34:20,058 --> 00:34:21,929 ...it was going to happen. 647 00:34:22,103 --> 00:34:24,410 And so we came to an impasse that day. 648 00:34:24,584 --> 00:34:27,456 Let me say he went to the regular classroom 649 00:34:27,630 --> 00:34:29,589 with, uh, an aide. 650 00:34:30,503 --> 00:34:31,982 She said, "There's no way that 651 00:34:32,157 --> 00:34:33,549 Missy's gonna be able to do this by herself." 652 00:34:33,723 --> 00:34:36,248 So, we had Diane Smith as an aide. 653 00:34:36,422 --> 00:34:38,946 We had Valerie Barnes as an aide. 654 00:34:39,120 --> 00:34:41,296 And they came, and they would sit with Evan 655 00:34:41,470 --> 00:34:43,342 to make sure that he was on task, 656 00:34:43,516 --> 00:34:44,995 but they also would help the other students. 657 00:34:45,170 --> 00:34:46,693 So, it wasn't just Evan. 658 00:34:48,390 --> 00:34:51,045 And then there were other students that came. 659 00:34:51,219 --> 00:34:53,395 And she was somebody that those parents 660 00:34:53,569 --> 00:34:56,442 could go and talk to and learn from. 661 00:34:56,616 --> 00:34:58,226 Consequently, through the years, 662 00:34:58,400 --> 00:35:00,620 there was lots of training that was done. 663 00:35:00,794 --> 00:35:04,711 And several students with autism ended up at Hugh Goodwin 664 00:35:04,885 --> 00:35:06,539 because of the training that those people 665 00:35:06,713 --> 00:35:10,108 had taken upon themselves to get and took seriously. 666 00:35:10,282 --> 00:35:12,762 There were some people there, some of the best... 667 00:35:13,937 --> 00:35:16,462 ...classroom teachers and therapists that I have ever met 668 00:35:16,636 --> 00:35:18,594 in-- no matter where I've been in this country. 669 00:35:18,768 --> 00:35:20,770 Really, growing up with him in school 670 00:35:20,944 --> 00:35:24,296 was where I learned, or I was impacted most by him. 671 00:35:24,470 --> 00:35:26,733 There weren't very many children like Evan at the time. 672 00:35:26,907 --> 00:35:30,171 That wasn't something that the world really knew about, and especially El Dorado. 673 00:35:30,345 --> 00:35:35,350 But I do think that now that his impact on everyone's awareness 674 00:35:35,524 --> 00:35:37,700 has probably made a 360. 675 00:35:37,874 --> 00:35:40,050 As Evan progressed through this, we were going to take 676 00:35:40,225 --> 00:35:42,140 as many people with us as we could. 677 00:35:42,314 --> 00:35:45,621 If you get the appropriate therapies and, and that sort of thing, 678 00:35:45,795 --> 00:35:48,058 you are going to have a better life. 679 00:35:48,233 --> 00:35:49,973 There is just no way around it. 680 00:35:50,148 --> 00:35:53,063 Mary Pat was seeing that in her classroom. 681 00:35:53,238 --> 00:35:55,849 There were five of us that came together 682 00:35:56,023 --> 00:35:57,938 and wanted to create HOPE Landing. 683 00:35:58,112 --> 00:36:00,201 So, a child with special needs-- 684 00:36:00,375 --> 00:36:02,421 It was a one-stop shop, 685 00:36:02,595 --> 00:36:04,336 but it, it serves the whole family. 686 00:36:04,510 --> 00:36:07,077 It wasn't just the child. It was the child's family. 687 00:36:07,252 --> 00:36:09,210 By this time, they're talking about it. 688 00:36:09,384 --> 00:36:11,778 They're talking about water therapy, and horse therapy, 689 00:36:11,952 --> 00:36:15,390 and all those kinds of things that are really, really making a difference for kids. 690 00:36:15,564 --> 00:36:18,001 There was a movement, and we were able 691 00:36:18,176 --> 00:36:21,744 to start planning for what we felt 692 00:36:21,918 --> 00:36:25,095 what would be a peaceful setting 693 00:36:25,270 --> 00:36:29,317 that provided traditional as well as nontraditional therapies 694 00:36:29,491 --> 00:36:31,928 in support for entire families 695 00:36:32,102 --> 00:36:35,149 without being based on whether you could pay or not. 696 00:36:35,323 --> 00:36:38,587 It was a huge idea 697 00:36:38,761 --> 00:36:42,548 for a small Southern town to be able to pull that off. 698 00:36:51,034 --> 00:36:53,515 So, how's Evan been over the last, uh, 24 hours? 699 00:36:53,689 --> 00:36:56,779 Um, didn't go to sleep very well last night. 700 00:36:56,953 --> 00:36:58,651 So, it was kind of a late night. 701 00:36:59,217 --> 00:37:02,089 And he was afraid, when Paul took him for an ice, 702 00:37:02,263 --> 00:37:04,831 that he wouldn't bringing him back to get his stuff. 703 00:37:05,005 --> 00:37:06,572 So, he's a little 704 00:37:07,486 --> 00:37:09,836 nervous, but he hadn't... 705 00:37:11,229 --> 00:37:12,142 ...been terrible. 706 00:37:16,059 --> 00:37:17,409 I can't help you much. 707 00:37:18,105 --> 00:37:20,760 - Go to the movies. - We'll try to go to the movies, 708 00:37:20,934 --> 00:37:23,328 but right now, we need to pack your bag to go to group home. 709 00:37:24,242 --> 00:37:25,982 - First? - Yes. 710 00:37:33,947 --> 00:37:36,645 Okay. No one's going to get it till you come back. I promise. 711 00:37:37,603 --> 00:37:38,821 Shut up. 712 00:37:43,391 --> 00:37:45,393 Listen, you need to pack your bag. 713 00:37:45,567 --> 00:37:47,787 Pack your bag. 714 00:37:50,616 --> 00:37:52,400 Wow. 715 00:37:53,706 --> 00:37:56,099 Yes, yes, you have to go back 716 00:37:56,274 --> 00:37:58,537 because I've got things I have to do. 717 00:38:03,063 --> 00:38:05,457 - Pack your back. - Pack a bag. 718 00:38:11,811 --> 00:38:12,812 That's all? 719 00:38:17,425 --> 00:38:20,907 - "Mickey and Donald Have a Farm!" - Okay. 720 00:38:23,475 --> 00:38:26,565 - It's "The Many Adventures of Winnie the Pooh." - Okay. 721 00:38:28,915 --> 00:38:30,482 That's all? No books? 722 00:38:31,004 --> 00:38:32,179 That's a no, no. 723 00:38:33,441 --> 00:38:34,964 "Dr. Seuss's ABC." 724 00:38:36,531 --> 00:38:38,054 "The Cat in the Hat." 725 00:38:39,360 --> 00:38:41,884 - And "Green Eggs and Ham." - Okay. 726 00:38:42,058 --> 00:38:43,625 Now, do you want DVD player? 727 00:38:46,106 --> 00:38:47,237 What's next? 728 00:39:12,611 --> 00:39:14,787 I see owl. Do you? 729 00:39:16,571 --> 00:39:17,616 Owl. 730 00:39:19,792 --> 00:39:21,010 Do you want this in here? 731 00:39:22,795 --> 00:39:25,363 "Hop on Pop by Dr. Seuss." 732 00:39:28,366 --> 00:39:29,889 - That's it? - That's it. 733 00:39:32,718 --> 00:39:33,849 Group home first. 734 00:39:34,720 --> 00:39:36,896 Yes, you're going to the group home tonight. Yes. 735 00:39:38,158 --> 00:39:39,681 - Ready to go? - Yeah, Paul's truck. 736 00:39:39,855 --> 00:39:42,075 - Go to the movies. - We're gonna try. 737 00:39:42,249 --> 00:39:44,294 - We're gonna try. - Okay. 738 00:39:48,995 --> 00:39:52,302 - Car. - We're gonna go in Paul's truck today, okay? 739 00:39:52,477 --> 00:39:53,913 Oh. Truck. 740 00:39:54,740 --> 00:39:56,655 I know we usually go in Mom's car, but 741 00:39:57,307 --> 00:39:58,787 we're gonna go in Paul's truck today. 742 00:39:58,961 --> 00:40:00,441 You can sit in the front, Evan. 743 00:40:01,137 --> 00:40:02,704 You wanna sit at front or in the back? 744 00:40:06,665 --> 00:40:08,710 - Doesn't want. - Yeah. 745 00:40:35,433 --> 00:40:36,608 Hi, everyone. 746 00:40:46,748 --> 00:40:48,271 Okay, here we are. 747 00:40:49,925 --> 00:40:51,797 Here's a cat in a hat. 748 00:40:51,971 --> 00:40:53,625 I know. Did you miss it? 749 00:40:54,669 --> 00:40:55,801 I miss it. 750 00:40:55,975 --> 00:40:57,672 You did? You pretty happy? 751 00:40:57,846 --> 00:40:58,673 You happy? 752 00:40:59,326 --> 00:41:00,458 Yeah. 753 00:41:00,632 --> 00:41:02,460 All your movies. Wow. 754 00:41:06,681 --> 00:41:08,291 "When I wish to make a wish, 755 00:41:08,466 --> 00:41:11,556 I wave my hand in a swish, swish. 756 00:41:11,730 --> 00:41:14,254 Then I say, 'I wish for fish.' 757 00:41:14,428 --> 00:41:16,561 And I get fish right on my dish. 758 00:41:16,735 --> 00:41:19,302 So, if you wish to wish a wish, 759 00:41:19,477 --> 00:41:22,915 you may swish for fish with my Ish wish dish." 760 00:41:23,089 --> 00:41:25,483 Would you make sure there's some toilet paper in there, please? 761 00:41:26,875 --> 00:41:28,529 - Remember. - Remember. 762 00:41:28,703 --> 00:41:30,618 Loving Father, Son and the Holy Spirit. 763 00:41:30,792 --> 00:41:32,272 Father, Son, and the Holy Spirit. 764 00:41:34,056 --> 00:41:35,449 - You gonna do good? - Do good. 765 00:41:35,623 --> 00:41:36,711 - Yeah? - Yes. 766 00:41:36,885 --> 00:41:37,712 Okay. 767 00:41:40,019 --> 00:41:41,760 - All right. - You all right. 768 00:41:41,934 --> 00:41:44,371 - When am I gonna see you? - See you. 769 00:41:45,241 --> 00:41:46,547 I'll pick you up... 770 00:41:47,722 --> 00:41:49,942 - See ya Wednesday. - Wednesday. Okay, good. 771 00:41:50,116 --> 00:41:51,030 All right. 772 00:41:51,726 --> 00:41:53,336 - You okay? - You okay? 773 00:41:55,208 --> 00:41:56,078 Okay. 774 00:41:59,778 --> 00:42:01,519 - Bye. - Bye-bye. 775 00:42:01,693 --> 00:42:03,129 - Love ya. - Love you. 776 00:42:05,218 --> 00:42:07,437 See you later. Say bye. 777 00:42:09,352 --> 00:42:10,223 Bye. 778 00:42:15,358 --> 00:42:17,186 Things were progressing with Evan, 779 00:42:17,360 --> 00:42:19,319 and, you know, we were dealing with 780 00:42:19,493 --> 00:42:22,540 each new year's set of circumstances. 781 00:42:22,714 --> 00:42:25,194 Dennis was in a play, Dearly Departed, 782 00:42:25,368 --> 00:42:28,067 and Dennis was getting very bad bruises. 783 00:42:28,241 --> 00:42:30,591 It got to the point where Dennis did show the bruises 784 00:42:30,765 --> 00:42:33,246 to Matt Callaway, his doctor, 785 00:42:33,855 --> 00:42:35,596 and Matt was immediately alarmed. 786 00:42:35,770 --> 00:42:37,772 APL. 787 00:42:37,946 --> 00:42:41,036 And I can't tell you the A and the P, but the L is leukemia. 788 00:42:43,169 --> 00:42:44,736 Just me and my dad. 789 00:42:47,477 --> 00:42:50,785 Th-- That just pulled the rug out from under everybody 790 00:42:50,959 --> 00:42:54,223 because we did not, of course, see that coming. 791 00:42:54,397 --> 00:42:56,356 And there is-- Okay. 792 00:42:56,530 --> 00:42:58,619 There is... You do it. 793 00:42:58,793 --> 00:43:00,708 For me, personally, for the village, 794 00:43:00,882 --> 00:43:02,928 there was kind of a shift in focus 795 00:43:03,102 --> 00:43:07,149 from what we were going to do for people like him and in his future 796 00:43:07,323 --> 00:43:09,282 and to "Oh, my goodness, 797 00:43:09,456 --> 00:43:13,242 now... what are we gonna do about this?" 798 00:43:13,416 --> 00:43:15,941 "My mom and dad... 799 00:43:17,029 --> 00:43:19,771 ...are Beth and Dennis James." 800 00:43:19,945 --> 00:43:21,686 Dennis was, um... 801 00:43:25,254 --> 00:43:27,517 Well, he was special. That's all I'm gonna say. 802 00:43:27,692 --> 00:43:30,085 Sometimes you can just look at Evan, 803 00:43:30,259 --> 00:43:33,175 and you, you can see Dennis. 804 00:43:33,349 --> 00:43:38,398 "My eyes are blue, just like my daddy's." 805 00:43:38,572 --> 00:43:40,356 The village had to rally for this 806 00:43:40,530 --> 00:43:44,578 because we had Evan, who needed attention, 807 00:43:44,752 --> 00:43:47,102 and now we had Dennis in the hospital 808 00:43:47,276 --> 00:43:49,452 for who knows how long in Little Rock. 809 00:43:49,627 --> 00:43:51,150 Over the next three years, 810 00:43:51,890 --> 00:43:55,371 he continued to... seek treatment. 811 00:43:55,545 --> 00:43:57,635 He had periods of remission. 812 00:43:57,809 --> 00:44:00,159 You know, you couldn't really explain to Evan 813 00:44:00,333 --> 00:44:01,769 what was going on. 814 00:44:01,943 --> 00:44:05,120 I mean, there, there wasn't a way to explain 815 00:44:05,294 --> 00:44:08,123 that kind of concept to Evan. 816 00:44:08,297 --> 00:44:09,342 "Daddy." 817 00:44:09,951 --> 00:44:12,388 It was just a very rough time. 818 00:44:12,562 --> 00:44:15,914 But once again... Stupid me. 819 00:44:16,088 --> 00:44:19,047 I felt like it w-- wouldn't be easy, 820 00:44:19,221 --> 00:44:21,180 but we would make it. 821 00:44:21,354 --> 00:44:24,618 And so, for three years, we did treatments. 822 00:44:25,314 --> 00:44:27,012 Friends would help, go sit with Beth 823 00:44:27,186 --> 00:44:28,840 or take shifts to go sit with Dennis 824 00:44:29,014 --> 00:44:30,624 so that he wasn't by himself. 825 00:44:31,538 --> 00:44:35,324 And we see the reemergence of a community of people 826 00:44:35,498 --> 00:44:38,284 willing, once again, to reach out and, and lift up, 827 00:44:38,458 --> 00:44:40,068 and support, and care 828 00:44:40,242 --> 00:44:44,464 with no... judgments. 829 00:44:44,638 --> 00:44:46,858 We thought we were beating this. We really did. 830 00:44:47,032 --> 00:44:50,426 Against all odds, we thought we were beating the cancer. 831 00:44:50,600 --> 00:44:52,733 I mean, he endured a lot, 832 00:44:53,603 --> 00:44:55,780 but he still-- he kept his sense of humor. 833 00:44:55,954 --> 00:44:57,477 In the beginning, he did, 834 00:44:57,651 --> 00:45:00,219 but it was, it was just painful to watch. 835 00:45:00,393 --> 00:45:02,351 For me, he was a, um, 836 00:45:02,961 --> 00:45:05,050 a constant in my life, a constant male in my life. 837 00:45:05,224 --> 00:45:07,443 And he meant a whole lot to me. 838 00:45:08,009 --> 00:45:10,490 It's Daddy. It's Daddy. 839 00:45:10,664 --> 00:45:12,187 It would have been a long shot 840 00:45:12,361 --> 00:45:14,320 if he would have had long-time survival 841 00:45:14,494 --> 00:45:17,497 with, with his-- th-- this form of leukemia. 842 00:45:18,324 --> 00:45:21,109 And, um, he... 843 00:45:21,588 --> 00:45:22,937 I will say this. 844 00:45:23,851 --> 00:45:26,985 I've never seen anybody fight, fight harder than he did to-- 845 00:45:27,159 --> 00:45:29,552 Because he knew what it would mean to Evan... 846 00:45:30,771 --> 00:45:33,948 ...for him to, um, not make it. 847 00:45:36,559 --> 00:45:42,783 ♪ I have often walked down this street before ♪ 848 00:45:42,957 --> 00:45:48,571 ♪ But the pavement always stayed beneath my feet before ♪ 849 00:45:48,746 --> 00:45:54,447 ♪ All at once am I several stories high ♪ 850 00:45:54,621 --> 00:46:00,975 ♪ Knowing I'm on the street where you live ♪ 851 00:46:01,149 --> 00:46:06,589 ♪ And, oh the towering feeling ♪ 852 00:46:06,764 --> 00:46:13,074 ♪ Just to know somehow you are near ♪ 853 00:46:13,248 --> 00:46:18,297 ♪ The overpowering feeling ♪ 854 00:46:18,471 --> 00:46:20,473 ♪ That any second ♪ 855 00:46:20,647 --> 00:46:26,653 ♪ You may suddenly appear ♪ 856 00:46:26,827 --> 00:46:28,829 Because Dennis did die in the hospital, 857 00:46:29,003 --> 00:46:30,613 and Evan was not with me, 858 00:46:30,788 --> 00:46:33,355 there was gonna be-- have to be a communication of that. 859 00:46:33,834 --> 00:46:36,315 And so all the way home, I kept thinking, "Now--" 860 00:46:36,489 --> 00:46:38,665 uh, everything I know about Evan. 861 00:46:38,839 --> 00:46:41,929 I knew that he had some basic religious understandings. 862 00:46:42,103 --> 00:46:43,757 The Lord bless you, keep you. 863 00:46:43,931 --> 00:46:47,195 The Lord make His face shine upon you and be gracious to you. 864 00:46:47,369 --> 00:46:50,764 The Lord... and give you His peace. 865 00:46:50,938 --> 00:46:52,505 Amen. 866 00:46:52,679 --> 00:46:55,595 And anytime that I could communicate something with him 867 00:46:55,769 --> 00:47:00,426 in a picture or words, he was going to understand. 868 00:47:00,600 --> 00:47:05,387 So, I came home, and I got a... 869 00:47:06,736 --> 00:47:10,479 ...picture board of heaven. 870 00:47:10,653 --> 00:47:13,091 What you would-- You know, heaven. It was a-- 871 00:47:13,265 --> 00:47:15,310 Clouds, and the sky. 872 00:47:15,920 --> 00:47:18,705 And I got a picture of Dennis, 873 00:47:18,879 --> 00:47:23,144 and a picture of an angel, and a picture of Jesus. 874 00:47:23,710 --> 00:47:26,060 And I put them all together 875 00:47:26,234 --> 00:47:29,585 and explained to him that Dad had gone there, 876 00:47:30,151 --> 00:47:32,414 um, and he was with Jesus. 877 00:47:32,588 --> 00:47:35,026 And just like we didn't see Jesus, 878 00:47:35,200 --> 00:47:36,854 we wouldn't see Dad anymore. 879 00:47:37,028 --> 00:47:39,639 Now, I will say this. There's a difference between... 880 00:47:40,640 --> 00:47:42,207 ...death and grief. 881 00:47:42,381 --> 00:47:44,165 R-E-D... 882 00:47:45,384 --> 00:47:46,515 ...spells red. 883 00:47:50,911 --> 00:47:53,609 Roll two, scene Richard, take one, mark. 884 00:47:54,132 --> 00:47:56,221 Beth, interview B, take one. 885 00:47:57,004 --> 00:47:59,050 When Dennis died, we, we all felt like 886 00:47:59,224 --> 00:48:01,269 we'd had the rug pulled out from under us. 887 00:48:01,443 --> 00:48:03,315 And, and for months... 888 00:48:05,360 --> 00:48:07,406 I mean, many, many months, 889 00:48:07,580 --> 00:48:12,759 we were just walking around, um, like zombies. 890 00:48:12,933 --> 00:48:16,458 Lot of Evan's, um, therapies early on 891 00:48:16,632 --> 00:48:18,721 were about emotions. 892 00:48:18,896 --> 00:48:23,161 We did a lot of emotion expression therapy. 893 00:48:23,335 --> 00:48:25,424 He had to learn to read people's faces. 894 00:48:25,598 --> 00:48:28,253 And so he would look at me, and I would know that 895 00:48:28,427 --> 00:48:30,472 when he looked at me that I had to have a look on my face 896 00:48:30,646 --> 00:48:33,736 that I was calm, that I wasn't sad, 897 00:48:33,911 --> 00:48:36,870 that I was okay, and I was gonna make it through the day. 898 00:48:37,044 --> 00:48:39,786 And he would really examine me. 899 00:48:39,960 --> 00:48:44,530 He, um, he really reads people's expressions. 900 00:48:45,270 --> 00:48:47,707 Everything he does is in pictures. 901 00:48:47,881 --> 00:48:52,190 Either in his mind, he would take an Instamatic photograph 902 00:48:52,364 --> 00:48:53,887 of something on a television. 903 00:49:00,024 --> 00:49:02,069 Since the beginning, Evan has been obsessed 904 00:49:02,243 --> 00:49:04,028 with taking, uh, photographs. 905 00:49:04,202 --> 00:49:06,639 He has always, um, taken pictures 906 00:49:06,813 --> 00:49:10,034 of the TV screen and put them together. 907 00:49:10,208 --> 00:49:12,297 We can't quite figure out what it means, 908 00:49:12,471 --> 00:49:15,430 but to him, he's putting a sequence of things together. 909 00:49:15,604 --> 00:49:18,346 He takes expressions, 910 00:49:18,520 --> 00:49:20,870 a series of expressions, many times, 911 00:49:21,045 --> 00:49:23,090 and then there's always a... 912 00:49:24,309 --> 00:49:25,832 ...like, a couple blank screens. 913 00:49:26,006 --> 00:49:27,355 Like, that's the end of that movie 914 00:49:27,529 --> 00:49:31,533 or an end of that thought before he begins... 915 00:49:33,013 --> 00:49:34,580 ...another series. 916 00:49:36,364 --> 00:49:37,670 He missed his daddy. 917 00:49:37,844 --> 00:49:39,802 And so he was carrying these 50-- 918 00:49:39,977 --> 00:49:42,109 Zero to 50 pictures. 919 00:49:42,283 --> 00:49:43,415 They were numbered. 920 00:49:44,111 --> 00:49:45,330 And I said, "Beth, what do they mean?" 921 00:49:45,504 --> 00:49:46,940 She said, "I don't know." 922 00:49:47,114 --> 00:49:48,637 So, she went somewhere one day, and I said, 923 00:49:48,811 --> 00:49:50,813 "Evan, let's put your pictures out." 924 00:49:50,988 --> 00:49:53,381 So, we-- he laid them out in order on the kitchen floor. 925 00:49:53,555 --> 00:49:56,515 And I said, "Give me words for these pictures." 926 00:49:57,603 --> 00:50:00,606 Ah. Oh, my gosh, talk about communicate. 927 00:50:00,780 --> 00:50:02,651 Don't say he can't communicate. 928 00:50:03,304 --> 00:50:07,874 It started out with pictures from home, happy times. 929 00:50:08,048 --> 00:50:11,312 And then it was a series of scenes from The Lion King. 930 00:50:12,052 --> 00:50:16,970 And it was sad. Cry, sleep, cry. 931 00:50:17,144 --> 00:50:21,583 I mean, he had a word for every picture. 932 00:50:21,757 --> 00:50:23,063 It was amazing. 933 00:50:23,237 --> 00:50:25,109 We spent one Saturday, 934 00:50:25,283 --> 00:50:28,634 and we put it together in a book called Me and My Dad. 935 00:50:28,808 --> 00:50:30,940 "I miss my daddy. 936 00:50:33,117 --> 00:50:34,074 I'm not... 937 00:50:35,815 --> 00:50:37,077 I wish 938 00:50:37,904 --> 00:50:42,039 that he were still living 939 00:50:42,213 --> 00:50:46,826 at the new house with Mama and me." 940 00:50:47,000 --> 00:50:49,698 He was so smart to go and find that 941 00:50:49,872 --> 00:50:54,138 and give words to his emotions, 942 00:50:54,312 --> 00:50:56,488 and then he could convey it to someone else. 943 00:50:56,662 --> 00:50:58,577 That just blew me out of the water. 944 00:50:59,969 --> 00:51:04,235 One of my favorite examples of the village rallying. 945 00:51:04,409 --> 00:51:07,977 Evan's-- The birthday after Dennis had died, 946 00:51:08,152 --> 00:51:11,155 Beth asked all her teenage friends 947 00:51:11,329 --> 00:51:13,766 if they would dress as Disney characters 948 00:51:13,940 --> 00:51:17,161 and come to her house and be part of Evan's birthday party. 949 00:51:17,335 --> 00:51:20,294 So, there was Cinderella, Tigger. 950 00:51:20,468 --> 00:51:22,470 All of these, like, eight to ten people, 951 00:51:22,644 --> 00:51:24,429 showed up in costumes 952 00:51:24,603 --> 00:51:27,345 just to make Evan happy and feel better. 953 00:51:32,611 --> 00:51:33,960 There was a change. 954 00:51:34,134 --> 00:51:36,005 With Dennis's death, there was a change. 955 00:51:36,180 --> 00:51:39,574 It kind of turned my focus from 956 00:51:40,445 --> 00:51:43,665 training, teaching to... 957 00:51:44,753 --> 00:51:46,625 ...planning for a future 958 00:51:46,799 --> 00:51:48,757 because I'm all he has. 959 00:51:49,976 --> 00:51:54,023 It was apparent to me life skills, a safe environment 960 00:51:54,198 --> 00:51:57,157 were going to become the important things, 961 00:51:57,331 --> 00:52:00,117 not whether or not he was in a normal classroom. 962 00:52:07,994 --> 00:52:10,736 What you doing? 963 00:52:16,829 --> 00:52:18,526 - Did you do good? - Do good. 964 00:52:18,700 --> 00:52:20,572 You did? Was it okay? 965 00:52:20,746 --> 00:52:22,051 - Is it okay? - Yeah? 966 00:52:22,226 --> 00:52:23,140 - Yeah. - Did you miss me? 967 00:52:23,314 --> 00:52:24,837 - Miss me? - Yeah. 968 00:52:25,925 --> 00:52:27,274 - You gonna go home with me? - Go home. 969 00:52:27,448 --> 00:52:28,667 Okay. Get your stuff. 970 00:52:28,841 --> 00:52:30,495 Go and get your stuff, baby. 971 00:52:30,669 --> 00:52:32,584 - Evan's stuff. - He's been very good today. 972 00:52:32,758 --> 00:52:34,499 He has? Well, thank you for helping-- 973 00:52:34,673 --> 00:52:36,153 - Evan's stuff. - You're welcome. 974 00:52:39,939 --> 00:52:41,201 Evan's stuff. 975 00:52:41,375 --> 00:52:42,898 She gonna help him, isn't she? 976 00:52:43,072 --> 00:52:45,510 I love these, but I don't need to eat. 977 00:52:48,469 --> 00:52:50,254 Your class is pretty small today. 978 00:52:50,428 --> 00:52:53,648 Well, yeah. We got two more... 979 00:52:53,822 --> 00:52:54,867 Great. 980 00:52:55,781 --> 00:52:56,999 All right, let's go. 981 00:52:57,174 --> 00:52:58,523 See you, Evan. 982 00:52:58,697 --> 00:53:00,394 - See you, Evan. - Bye, Evan 983 00:53:00,568 --> 00:53:03,267 Hey, Ev. Hey, Evan. 984 00:53:04,006 --> 00:53:05,007 Come here. 985 00:53:08,533 --> 00:53:10,622 - Say "See you next week." - See you next week. 986 00:53:10,796 --> 00:53:12,972 - See you next week. - See you next week, Evan. 987 00:53:13,146 --> 00:53:15,757 Bye. 988 00:53:15,931 --> 00:53:19,892 After Dennis passed away, it had been a couple of years, 989 00:53:20,501 --> 00:53:22,547 and Beth's sister, Heidi, 990 00:53:22,721 --> 00:53:25,985 was talking with Paul's sister, Laura. 991 00:53:26,159 --> 00:53:27,856 They had been friends from high school. 992 00:53:28,030 --> 00:53:33,035 And knew that Beth and Paul had dated many years before. 993 00:53:34,123 --> 00:53:40,826 I met Beth in the spring of 1983 at El Dorado High School. 994 00:53:41,000 --> 00:53:44,438 Heidi, my sister, is in the same class with his sister, 995 00:53:44,612 --> 00:53:46,832 and we all have to go to this event. 996 00:53:47,006 --> 00:53:48,660 It was love at first sight. 997 00:53:48,834 --> 00:53:52,403 She walked up the sidewalk. I was introduced to her. 998 00:53:52,577 --> 00:53:54,927 I mean, it was like the conversation never ended. 999 00:53:55,101 --> 00:53:57,582 And so we dated for some months, 1000 00:53:57,756 --> 00:54:00,585 and then we got engaged. 1001 00:54:00,759 --> 00:54:03,022 You know? Isn't that what you do when you're in your twenties? 1002 00:54:03,196 --> 00:54:05,416 We considered getting married, 1003 00:54:05,590 --> 00:54:10,899 and things just did not work out for us at that point in time. 1004 00:54:11,073 --> 00:54:13,424 And we were mutually hurt by that, 1005 00:54:13,598 --> 00:54:16,427 and parted as friends. 1006 00:54:16,601 --> 00:54:18,907 I didn't see her again until 2007. 1007 00:54:21,083 --> 00:54:23,564 Paul's sister, in fact, had returned to El Dorado 1008 00:54:23,738 --> 00:54:25,871 to teach nursing at the community college. 1009 00:54:26,045 --> 00:54:27,568 So, I ask about Paul. 1010 00:54:27,742 --> 00:54:29,570 And, you know, "Things didn't work out 1011 00:54:29,744 --> 00:54:33,008 exactly as he had intended, but he's got five children." 1012 00:54:34,053 --> 00:54:36,621 I said, "Oh, my gosh." 1013 00:54:36,795 --> 00:54:39,972 I think she was thinking, "He still has no sense at all," 1014 00:54:40,146 --> 00:54:42,409 you know, with that many kids. 1015 00:54:42,583 --> 00:54:47,284 I said, "Well, you tell him, um, that I asked about him." 1016 00:54:47,458 --> 00:54:48,981 I was coming down for a visit. 1017 00:54:49,155 --> 00:54:52,506 And Heidi and my sister, Laura, 1018 00:54:52,680 --> 00:54:56,728 decided that they wanted to get Beth and I 1019 00:54:56,902 --> 00:54:59,774 back in the same room together. 1020 00:54:59,948 --> 00:55:02,516 "What if next time Paul comes to town... 1021 00:55:04,388 --> 00:55:06,999 ...we fix them up? We all go out to dinner." 1022 00:55:07,173 --> 00:55:09,175 And she goes, "Oh, it would make them so uncomfortable. 1023 00:55:09,349 --> 00:55:10,655 Wouldn't that be great?" 1024 00:55:10,829 --> 00:55:12,613 "Paul's gonna come to El Dorado, 1025 00:55:13,179 --> 00:55:16,400 and we're all gonna go out to eat, 1026 00:55:16,574 --> 00:55:17,879 and we want you to come along." 1027 00:55:18,053 --> 00:55:19,881 And I said, "Have you lost your mind?" 1028 00:55:20,055 --> 00:55:22,144 And I said, "Oh, come on. Come on. 1029 00:55:22,319 --> 00:55:24,233 It'd be fun to catch up." 1030 00:55:24,408 --> 00:55:26,366 It had only been a year since Dennis had died, 1031 00:55:26,540 --> 00:55:28,499 and no one was breaking down my door, 1032 00:55:28,673 --> 00:55:33,417 but I had made it pretty clear that I was unable, at this time, to, 1033 00:55:34,374 --> 00:55:37,029 uh, move forward in that sense. 1034 00:55:37,203 --> 00:55:39,988 And I went to dinner with my sister at Fayrays, 1035 00:55:40,162 --> 00:55:42,643 and I did not know what to expect. 1036 00:55:42,817 --> 00:55:44,602 And she walks in. 1037 00:55:44,776 --> 00:55:49,476 She and I looked at each other, and she sat down by me. 1038 00:55:49,650 --> 00:55:53,262 We all sat to where she was gonna have to sit beside him. 1039 00:55:53,437 --> 00:55:57,310 And the conversation just started all up again 1040 00:55:57,484 --> 00:55:59,834 and, uh, never stopped. 1041 00:56:00,008 --> 00:56:03,229 They never once put us in the conversation. 1042 00:56:04,099 --> 00:56:06,145 They never on-- We weren't there. 1043 00:56:07,364 --> 00:56:11,063 She said, "Would you like to come back and-- to my house 1044 00:56:11,237 --> 00:56:14,675 and-- so we can keep talking, and, and you can meet Evan?" 1045 00:56:16,285 --> 00:56:18,113 Uh, that was my first-- 1046 00:56:18,287 --> 00:56:20,507 that was my first encounter with Evan, that night. 1047 00:56:24,424 --> 00:56:28,863 There is something very soothing about that that, you know... 1048 00:56:29,037 --> 00:56:33,128 I've said very often that he probably saved my life. He probably did. 1049 00:56:33,607 --> 00:56:36,218 I think, when I left that evening, we both realized 1050 00:56:36,393 --> 00:56:38,830 it was divine intervention. 1051 00:56:39,004 --> 00:56:41,441 I didn't know really if I would see him again, 1052 00:56:41,615 --> 00:56:45,184 and it wasn't too much later that I got an email from him. 1053 00:56:45,358 --> 00:56:47,012 That was back in the days when you emailed, you know. 1054 00:56:47,186 --> 00:56:50,319 This is before texting and stuff like that. 1055 00:56:50,494 --> 00:56:54,367 And, you know, he kind of said, "I'm probably gonna keep on 1056 00:56:54,541 --> 00:56:57,457 emailing you and calling you and probably coming to El Dorado 1057 00:56:57,631 --> 00:57:01,635 because, uh, I lost once, I'm not gonna lose twice." 1058 00:57:04,595 --> 00:57:09,861 I can't imagine coming into all this like Paul did. 1059 00:57:10,035 --> 00:57:11,689 I mean, he's got five of his own, 1060 00:57:11,863 --> 00:57:13,778 and yet Evan was 1061 00:57:14,518 --> 00:57:15,780 part of Paul. 1062 00:57:15,954 --> 00:57:18,304 Even though he didn't know crap 1063 00:57:18,478 --> 00:57:20,219 about what to do about Evan, you know, 1064 00:57:20,393 --> 00:57:23,048 he was stunned by the whole thing. 1065 00:57:24,310 --> 00:57:26,921 He never really shied away from that. 1066 00:57:27,095 --> 00:57:33,319 My own relationship with Evan took a very, very long time 1067 00:57:33,493 --> 00:57:36,104 to become what it is today. 1068 00:57:36,278 --> 00:57:38,498 All right. Are you ready to go get an icee? 1069 00:57:38,672 --> 00:57:41,458 - Yes. - Yes? Would you like my phone? 1070 00:57:42,459 --> 00:57:43,329 Yeah? 1071 00:57:43,938 --> 00:57:45,331 - What-- - Austin and Weston. 1072 00:57:45,940 --> 00:57:47,986 - Not this weekend. Next-- - Not. 1073 00:57:48,160 --> 00:57:50,031 - Next time. - Not yet. 1074 00:57:51,250 --> 00:57:52,294 Get in the car. 1075 00:57:54,383 --> 00:57:55,820 There's a green triangle. 1076 00:57:55,994 --> 00:57:56,908 Uh-huh. 1077 00:57:58,779 --> 00:58:00,172 There's a green triangle. 1078 00:58:00,346 --> 00:58:01,608 Uh-huh. 1079 00:58:01,782 --> 00:58:04,872 There's an orange... Right. 1080 00:58:05,046 --> 00:58:07,701 I understood his habits 1081 00:58:07,875 --> 00:58:10,878 and got those down a lot quicker 1082 00:58:11,052 --> 00:58:13,359 and a lot easier than I did... 1083 00:58:14,273 --> 00:58:16,536 ...his form of communication. 1084 00:58:16,710 --> 00:58:18,277 When I first started going back and forth, 1085 00:58:18,451 --> 00:58:20,627 Beth and Evan would drive me to the airport. 1086 00:58:20,801 --> 00:58:23,369 I remember one time in particular... 1087 00:58:24,413 --> 00:58:26,067 ...towards the beginning of all this, 1088 00:58:26,241 --> 00:58:28,243 he's walking back and forth in front of me 1089 00:58:28,417 --> 00:58:30,376 with a book in his hand, 1090 00:58:30,550 --> 00:58:33,945 and it's a book about going to the airport, 1091 00:58:34,119 --> 00:58:36,730 and what you do when you go, you know? 1092 00:58:36,904 --> 00:58:39,341 We go to the airport to take trips. 1093 00:58:39,516 --> 00:58:41,692 And I realized in the middle of all this, 1094 00:58:41,866 --> 00:58:44,521 he was ready for me to go. 1095 00:58:44,695 --> 00:58:47,262 I won't say everything he did was purposeful, 1096 00:58:47,436 --> 00:58:50,831 but I would say the majority of it was. 1097 00:58:51,005 --> 00:58:53,617 I mean, he had a little message and everything. 1098 00:58:53,791 --> 00:58:55,880 - Mmm-hmm. Always. - Really, especially there in the beginning 1099 00:58:56,054 --> 00:58:57,882 that we did, we did together. 1100 00:58:58,360 --> 00:59:00,841 Especially if it's a verbalization or if it's a direct 1101 00:59:01,015 --> 00:59:03,148 - interaction with a person... - Mmm-hmm. 1102 00:59:03,322 --> 00:59:05,759 ...he is trying to say something. 1103 00:59:05,933 --> 00:59:08,806 So, if he doesn't have the words for what he says, 1104 00:59:08,980 --> 00:59:11,722 then he's going to replace it with an action 1105 00:59:11,896 --> 00:59:13,506 or some kind of verbalization, 1106 00:59:13,680 --> 00:59:16,030 trying to get you to understand what it is he wants. 1107 00:59:16,509 --> 00:59:21,383 "Christmas is my favorite holiday." 1108 00:59:21,558 --> 00:59:23,037 Look into the mirror. 1109 00:59:23,821 --> 00:59:25,344 I love it! 1110 00:59:25,518 --> 00:59:27,955 I love it! 1111 00:59:28,782 --> 00:59:29,783 I knew you would. 1112 00:59:34,440 --> 00:59:37,878 ♪ Rudolph the red-nosed reindeer ♪ 1113 00:59:38,575 --> 00:59:42,143 ♪ Had a very shiny nose ♪ 1114 00:59:42,840 --> 00:59:46,017 ♪ And if you ever saw it ♪ 1115 00:59:46,931 --> 00:59:49,847 ♪ You would even say it glows ♪ 1116 00:59:50,761 --> 00:59:54,591 ♪ Then one foggy Christmas Eve ♪ 1117 00:59:54,765 --> 00:59:57,681 ♪ Santa came to say ♪ 1118 00:59:59,291 --> 01:00:03,077 ♪ Rudolph with your nose so bright ♪ 1119 01:00:03,251 --> 01:00:06,690 ♪ Won't you guide my sleigh tonight? ♪ 1120 01:00:06,864 --> 01:00:09,736 ♪ Then how the reindeer loved him ♪ 1121 01:00:10,563 --> 01:00:13,784 ♪ As they shouted out with glee ♪ 1122 01:00:14,567 --> 01:00:18,223 ♪ Rudolph the red-nosed reindeer ♪ 1123 01:00:18,397 --> 01:00:22,270 ♪ You'll go down in history ♪ 1124 01:00:27,580 --> 01:00:30,191 - Great job! - Yay! 1125 01:00:33,717 --> 01:00:36,807 When we did begin to see each other on a consistent basis, 1126 01:00:36,981 --> 01:00:40,724 we made a promise that no matter what we did, 1127 01:00:41,333 --> 01:00:44,379 not his children or mine would suffer. 1128 01:00:44,553 --> 01:00:47,078 We made a commitment to, 1129 01:00:47,252 --> 01:00:50,559 you know, pursue this relationship. 1130 01:00:51,560 --> 01:00:53,084 I was kind of getting used to the idea that 1131 01:00:53,258 --> 01:00:55,216 he might be my boyfriend or something, 1132 01:00:55,390 --> 01:00:58,219 but I was not interested initially in, 1133 01:00:58,785 --> 01:01:00,221 like, oh, getting married. 1134 01:01:00,395 --> 01:01:02,049 I mean, I had a job. I was in El Dorado. 1135 01:01:02,223 --> 01:01:04,312 He was in St. Louis. Paul-- Evan was in school. 1136 01:01:04,486 --> 01:01:08,534 I was in no way going to, to leave that for that. 1137 01:01:08,708 --> 01:01:10,884 So I told Paul, I said, "I'm never gonna meet your kids. 1138 01:01:11,058 --> 01:01:13,495 Come when you can. We'll have a great time. 1139 01:01:13,670 --> 01:01:15,715 That's where this thing is going." 1140 01:01:15,889 --> 01:01:18,675 And I said, "'Cause I'm not-- I can't meet those kids." 1141 01:01:24,593 --> 01:01:27,771 Paul's kids were wonderful. You know, they love him. 1142 01:01:27,945 --> 01:01:29,511 I mean, he is their brother. 1143 01:01:29,686 --> 01:01:31,383 But now, if you ask him who they are, 1144 01:01:31,557 --> 01:01:32,906 he's gonna list them in order. 1145 01:01:33,080 --> 01:01:35,039 Grace, Kenny, Jackson, William, 1146 01:01:35,213 --> 01:01:38,303 Caroline, Aston, Watson and Dan. 1147 01:01:38,477 --> 01:01:40,740 Ready, set, go! 1148 01:01:41,393 --> 01:01:43,438 My dad did give us a forewarning and said, 1149 01:01:43,612 --> 01:01:45,571 "She's gonna be here when you get home from school." 1150 01:01:45,745 --> 01:01:47,486 And we got home from school, 1151 01:01:47,660 --> 01:01:49,357 - and she was just sitting at the counter... - She was. 1152 01:01:49,531 --> 01:01:50,794 ...and her makeup was perfect, 1153 01:01:50,968 --> 01:01:52,621 and everything was just together. 1154 01:01:52,796 --> 01:01:54,362 - Mmm-hmm. - And she just had, like, a... 1155 01:01:54,536 --> 01:01:55,842 She just has, like, a presence. 1156 01:01:56,016 --> 01:01:57,714 - She does. - And she was very striking 1157 01:01:57,888 --> 01:01:59,367 - from the get-go. That was my first impression. - Yeah. 1158 01:01:59,541 --> 01:02:00,673 Yeah, it was, like, an ad-- 1159 01:02:00,847 --> 01:02:02,501 an adjustment for us. 1160 01:02:02,675 --> 01:02:04,764 Obviously, someone new in the house with her and Evan. 1161 01:02:04,938 --> 01:02:06,984 But it's also, like, an adjustment for her 1162 01:02:07,158 --> 01:02:08,986 - 'cause we're-- we're us, you know. - Big adjustment. 1163 01:02:09,160 --> 01:02:10,944 - Like, it's-- Yeah. - Big adjustment. 1164 01:02:11,118 --> 01:02:14,078 There was five of us, and most of us were teenagers. 1165 01:02:14,252 --> 01:02:17,429 And my dad's not a low-maintenance kind of guy. 1166 01:02:17,603 --> 01:02:20,084 And we are not exactly, um-- 1167 01:02:20,258 --> 01:02:22,913 - We got some maintenance to us. - Yeah. We... 1168 01:02:23,087 --> 01:02:25,654 - We weren't easy. - She told us, um, 1169 01:02:25,829 --> 01:02:27,482 a while back that she would hear us 1170 01:02:27,656 --> 01:02:29,441 every once in a while going... "Where is she?" 1171 01:02:29,615 --> 01:02:31,182 - "Where is she?" Yeah. - "Where is she?" 1172 01:02:31,356 --> 01:02:32,923 When she first was spending a lot of time up there 1173 01:02:33,097 --> 01:02:34,925 and we didn't know her very well, we'd all kind of-- 1174 01:02:35,099 --> 01:02:36,753 Or if we wanted something, we'd send, like, 1175 01:02:36,927 --> 01:02:38,972 one, one-- usually the cut-- the cutest kid out-- 1176 01:02:39,146 --> 01:02:40,887 - "You go. You go." - You know, like... Yeah. 1177 01:02:41,061 --> 01:02:42,628 It really was like she never skipped a beat. 1178 01:02:42,802 --> 01:02:45,196 I'm sure she did in her own private time. 1179 01:02:45,370 --> 01:02:48,155 But, to us, it just seemed very-- 1180 01:02:48,329 --> 01:02:51,245 I don't know. It's just-- It's always been... 1181 01:02:51,419 --> 01:02:54,422 It's always felt natural. Like how it should be. 1182 01:02:54,596 --> 01:02:58,122 And then came the time for them to actually meet Evan. 1183 01:02:58,296 --> 01:03:00,211 And, you know, kids are just different. 1184 01:03:00,385 --> 01:03:01,995 They're just resilient. 1185 01:03:03,780 --> 01:03:05,433 Whenever we actually got down there, 1186 01:03:05,607 --> 01:03:08,219 Beth was talking to us, and Evan just came in 1187 01:03:08,393 --> 01:03:11,265 with these pile of sugar cookies. 1188 01:03:11,439 --> 01:03:13,006 - I think there were, like, six of them. - Yeah. 1189 01:03:13,180 --> 01:03:15,487 She just turned around and suddenly goes, "No, sir," 1190 01:03:15,661 --> 01:03:18,229 and took, like, three or four of them away. 1191 01:03:18,403 --> 01:03:20,666 And he started following her around, around the house saying, 1192 01:03:20,840 --> 01:03:23,495 - "No, sir. No, sir." - Yeah. 1193 01:03:23,669 --> 01:03:25,453 And that was, that was our first-- that was 1194 01:03:25,627 --> 01:03:27,238 - my first impression of-- Yeah. - That was my first time 1195 01:03:27,412 --> 01:03:29,066 ever seeing Evan, my first experience. 1196 01:03:29,240 --> 01:03:31,590 - And I just thought, "He's mad." - Yeah. 1197 01:03:31,764 --> 01:03:34,245 - This, this is what it is. Let's, let's go. - Yeah. 1198 01:03:34,419 --> 01:03:36,551 I think, at first we put a big emphasis 1199 01:03:36,725 --> 01:03:39,990 on just making everything as smooth as possible for him. 1200 01:03:40,164 --> 01:03:41,948 We went about our regular lives, 1201 01:03:42,122 --> 01:03:45,169 and you just added in this other variable. 1202 01:03:45,343 --> 01:03:47,693 They never really seemed to skip a beat. 1203 01:03:47,867 --> 01:03:50,957 I think it says something for them. You know, what kind of people they are. 1204 01:03:51,131 --> 01:03:54,482 There was a lot of change growing up. A lot of moving around. 1205 01:03:54,656 --> 01:03:58,835 Anything that's different just kind of flows naturally. 1206 01:04:03,187 --> 01:04:06,930 Beth made a book about people getting married. 1207 01:04:07,104 --> 01:04:08,801 People in her family. 1208 01:04:09,410 --> 01:04:12,022 People in my family. Her and Dennis. 1209 01:04:12,196 --> 01:04:16,156 People in the Disney movies or the other movies he used to like getting married. 1210 01:04:17,375 --> 01:04:20,508 When we got married, it was kind of generally accepted that, 1211 01:04:20,682 --> 01:04:23,990 as crazy as it would seem, I would stay in El Dorado, 1212 01:04:24,164 --> 01:04:26,384 and he would stay in St. Louis. 1213 01:04:26,558 --> 01:04:29,082 We just decided that's the way it was gonna be. 1214 01:04:29,256 --> 01:04:31,302 So, we still were doing school, going to work, 1215 01:04:31,476 --> 01:04:33,478 trying to travel on the weekends. 1216 01:04:33,652 --> 01:04:34,958 That's a lot. 1217 01:04:35,132 --> 01:04:37,177 I was committed, and so was Beth. 1218 01:04:37,351 --> 01:04:39,005 We were committed to both Evan, 1219 01:04:39,179 --> 01:04:42,008 and we were committed to the five other children. 1220 01:04:42,182 --> 01:04:44,837 It was a balance in making all that work. 1221 01:04:45,011 --> 01:04:48,406 So, we finally decided that when Evan turned 18 1222 01:04:48,580 --> 01:04:50,495 and didn't have to go to school anymore, 1223 01:04:50,669 --> 01:04:53,063 I would quit my job, and we would have to-- 1224 01:04:53,237 --> 01:04:54,847 Evan and I would have to go to St. Louis. 1225 01:04:57,241 --> 01:04:59,330 I was sort of excited. 1226 01:04:59,504 --> 01:05:00,853 We're gonna go to a big city. 1227 01:05:01,027 --> 01:05:02,289 I had done a lot of research. 1228 01:05:02,463 --> 01:05:04,291 There was an autism community there. 1229 01:05:04,465 --> 01:05:07,033 We'll be able to take advantage of all sorts of resources 1230 01:05:07,207 --> 01:05:09,340 that we haven't had or... 1231 01:05:09,514 --> 01:05:11,733 "Maybe I-- maybe there's things I don't know about." 1232 01:05:11,908 --> 01:05:16,477 Maybe we had a better chance of finding facilities 1233 01:05:16,651 --> 01:05:20,264 and post-high school life for him. 1234 01:05:20,438 --> 01:05:24,181 That did not turn out exactly as planned. 1235 01:05:25,617 --> 01:05:28,663 One evening, it was just Beth and Evan and I, 1236 01:05:28,837 --> 01:05:31,318 and he kept turning off the TV. 1237 01:05:32,015 --> 01:05:34,321 And I would turn it back on, and he would turn it off, 1238 01:05:34,495 --> 01:05:36,628 and I would turn it on, and he would turn it off. 1239 01:05:36,802 --> 01:05:40,414 And Evan just reaches down and grabs my hand, 1240 01:05:41,328 --> 01:05:44,462 and grabs my wedding ring 1241 01:05:44,636 --> 01:05:47,030 and starts trying to pull it off my finger. 1242 01:05:47,204 --> 01:05:50,424 Evan made it very clear that he was mad about the whole darn thing, 1243 01:05:50,598 --> 01:05:53,123 and he was mad at Paul because... 1244 01:05:53,297 --> 01:05:56,300 for having caused the whole darn thing. 1245 01:05:56,822 --> 01:05:58,563 And he wasn't happy. 1246 01:05:58,737 --> 01:06:02,654 Evan had been in his room there at the St. Louis house, 1247 01:06:02,828 --> 01:06:07,093 and... for some reason, I had-- I walked into his room. 1248 01:06:07,267 --> 01:06:09,139 There was one of the books 1249 01:06:09,313 --> 01:06:12,490 that I think Mary Pat had made for him. 1250 01:06:12,664 --> 01:06:14,057 Me and My Dad. 1251 01:06:14,231 --> 01:06:16,233 It was about him and his father. 1252 01:06:19,062 --> 01:06:20,541 And he had been looking at it. 1253 01:06:28,245 --> 01:06:29,072 "Dad." 1254 01:06:31,074 --> 01:06:32,249 He didn't wanna forget him. 1255 01:06:34,207 --> 01:06:36,688 That moment, as hard as it was, 1256 01:06:36,862 --> 01:06:40,866 I think it, it helped him get some things out of his system 1257 01:06:41,040 --> 01:06:43,347 that he couldn't communicate. 1258 01:06:44,870 --> 01:06:47,916 I really think it helped me to make sure 1259 01:06:48,091 --> 01:06:51,311 I wasn't afraid to talk about his dad to him. 1260 01:06:51,485 --> 01:06:53,748 Because before all that, I didn't. 1261 01:06:53,922 --> 01:06:55,489 After all that, I did. 1262 01:06:56,099 --> 01:06:57,665 That was our moment, 1263 01:06:57,839 --> 01:07:00,581 and it was pretty damn good after all that. 1264 01:07:02,322 --> 01:07:06,326 She had every intention of creating a life in St. Louis. 1265 01:07:06,500 --> 01:07:08,502 And there just-- 1266 01:07:08,676 --> 01:07:12,158 It never was that comfortable of a fit, especially for Evan. 1267 01:07:12,941 --> 01:07:14,639 When it didn't work, 1268 01:07:15,248 --> 01:07:17,903 I think it rocked us on our heels a little bit. 1269 01:07:18,077 --> 01:07:20,862 He would just look at me like, "What, what are you doing, Mother? What are you thinking?" 1270 01:07:21,037 --> 01:07:22,908 I mean, I could almost see that in his face 1271 01:07:23,082 --> 01:07:24,388 when I would pick him up, like... 1272 01:07:25,563 --> 01:07:27,391 ..."What are we doing here?" 1273 01:07:27,565 --> 01:07:30,872 And he would just look at Beth and go, "Pack a bag. Airplane." 1274 01:07:31,047 --> 01:07:33,614 He's like, "Take me home now." 1275 01:07:33,788 --> 01:07:37,792 You know, he didn't have a life outside of the house at all, and he was totally used to that. 1276 01:07:37,966 --> 01:07:41,057 Go anywhere in the community and know people, and they know him, and... 1277 01:07:41,231 --> 01:07:45,365 I think, in retrospect, it was a lot to expect of Evan. 1278 01:07:45,539 --> 01:07:50,544 And he did his best to adjust till he just couldn't. 1279 01:07:50,718 --> 01:07:54,548 His body literally just had stress responses. I know he had seizures. 1280 01:07:54,722 --> 01:07:58,291 He was kind of taken away from everything he knew growing up. 1281 01:07:58,465 --> 01:08:01,033 And, like, the way I think about that, for me, it's like... 1282 01:08:01,207 --> 01:08:02,730 I mean, like, "Would it bother you?" 1283 01:08:03,427 --> 01:08:06,038 Probably, you know. And there you go. 1284 01:08:06,212 --> 01:08:10,695 In retrospect, I feel kind of stupid having thought 1285 01:08:11,565 --> 01:08:13,524 that he was gonna be happy, or that we could find 1286 01:08:13,698 --> 01:08:15,874 all those things that I perceived in my mind 1287 01:08:16,048 --> 01:08:18,398 had to have been missing from our experience. 1288 01:08:19,138 --> 01:08:21,749 And the one thing that we really needed, we already had. 1289 01:08:23,229 --> 01:08:24,883 I don't know, the El Dorado, 1290 01:08:25,057 --> 01:08:26,885 the place is, like, what's home to him 1291 01:08:27,059 --> 01:08:30,410 as much as the people there, and getting pulled from that 1292 01:08:31,368 --> 01:08:33,152 - was really hard for him, I think. - Yeah. 1293 01:08:33,326 --> 01:08:36,547 He missed his community. He missed his friends. 1294 01:08:36,721 --> 01:08:42,074 And it was almost like we had instilled in him so much community. 1295 01:08:42,248 --> 01:08:43,902 We made the decision... 1296 01:08:45,338 --> 01:08:47,775 ...albeit sadly, that 1297 01:08:48,472 --> 01:08:51,866 the best thing for Evan would be to come back down to El Dorado. 1298 01:08:52,867 --> 01:08:54,739 Paul said to me, 1299 01:08:55,348 --> 01:08:58,090 "Pack your bags and take him home." 1300 01:08:58,264 --> 01:09:00,179 It wasn't me having to go to him and say, 1301 01:09:00,353 --> 01:09:02,834 "I gotta..." You know, "I gotta go." 1302 01:09:03,835 --> 01:09:04,879 He came to me. 1303 01:09:05,053 --> 01:09:06,229 And so we... 1304 01:09:08,100 --> 01:09:09,623 ...packed our bags and came home. 1305 01:09:13,671 --> 01:09:16,587 And so I went to work at the community college 1306 01:09:16,761 --> 01:09:21,069 to create a pilot program in El Dorado, Arkansas, 1307 01:09:21,244 --> 01:09:27,032 to include people with developmental disabilities on the college campus. 1308 01:09:27,206 --> 01:09:32,124 Beth contacted me. She was the new program director of the Stepping Stones Program, 1309 01:09:32,298 --> 01:09:35,388 a newly-formed program at the college 1310 01:09:35,562 --> 01:09:39,523 that gave people the opportunity to do things 1311 01:09:39,697 --> 01:09:42,178 that they would never have gotten to do on their own. 1312 01:09:42,352 --> 01:09:46,051 My friend Jason here had always wanted to be a firefighter. 1313 01:09:46,225 --> 01:09:49,533 So, through the Stepping Stones process, 1314 01:09:49,707 --> 01:09:51,883 Jason was able to train, 1315 01:09:52,057 --> 01:09:55,191 and he was able to come up to the El Dorado Fire Department 1316 01:09:55,365 --> 01:09:57,541 and be a firefighter with us. 1317 01:09:57,715 --> 01:09:59,847 She's a mentor to me. 1318 01:10:00,021 --> 01:10:04,765 And she, she helped me get an internship, 1319 01:10:04,939 --> 01:10:10,684 and... I'm, I'm happy that she did. 1320 01:10:10,858 --> 01:10:15,341 They made as big an impact on me as I made on them, I think. 1321 01:10:15,515 --> 01:10:18,605 But I also feel incredibly lucky 1322 01:10:19,476 --> 01:10:22,261 to have been a part of that for, for even a short time. 1323 01:10:22,435 --> 01:10:25,264 In the meantime, at my house... 1324 01:10:26,178 --> 01:10:29,573 ...my issues with my child were still unsolved. 1325 01:10:32,228 --> 01:10:34,099 "Evan goes to college." 1326 01:10:34,273 --> 01:10:37,929 "One day, Evan and his mom got in the car 1327 01:10:38,103 --> 01:10:39,800 and drove to a place called..." 1328 01:10:40,714 --> 01:10:41,585 "Magnolia." 1329 01:10:43,804 --> 01:10:46,546 I was getting a little more desperate, 1330 01:10:46,720 --> 01:10:48,809 a little more afraid something would happen to me. 1331 01:10:48,983 --> 01:10:50,681 And now we weren't in St. Louis, 1332 01:10:50,855 --> 01:10:53,466 and now Evan was by himself, and ugh, ugh, ugh. 1333 01:10:53,640 --> 01:10:55,338 I-- I'm getting old. 1334 01:10:55,512 --> 01:10:57,818 And he doesn't have the patience with his old mother. 1335 01:10:57,992 --> 01:10:59,211 And, you know, there's a lot of-- 1336 01:10:59,385 --> 01:11:00,647 There were a lot of dynamics going on. 1337 01:11:00,821 --> 01:11:03,041 We-- 'Cause we were there. Just me and him. 1338 01:11:05,173 --> 01:11:06,610 You want to stay here all day? 1339 01:11:09,308 --> 01:11:10,918 She comes home from church one Sunday 1340 01:11:11,092 --> 01:11:12,311 and she calls me and she says, 1341 01:11:12,485 --> 01:11:16,010 "I ran into Ralph Weiser at church today." 1342 01:11:16,184 --> 01:11:19,231 He had been instrumental in creating programing 1343 01:11:19,405 --> 01:11:21,146 for people with developmental disabilities, 1344 01:11:21,320 --> 01:11:22,800 that sort of stuff, in Magnolia. 1345 01:11:22,974 --> 01:11:27,283 I had no idea that in my little backyard, 1346 01:11:27,457 --> 01:11:29,023 there was this little place over here. 1347 01:11:29,197 --> 01:11:31,069 He said, "I'd like to show you around" or something. 1348 01:11:31,243 --> 01:11:32,853 And I pulled up to this place, 1349 01:11:33,027 --> 01:11:35,073 and there was a day program for preschoolers 1350 01:11:35,247 --> 01:11:37,945 with developmental disabilities, and adults. 1351 01:11:38,119 --> 01:11:41,166 She went over to look at it, and it was the perfect situation for Evan. 1352 01:11:41,340 --> 01:11:43,473 All of the group homes that I had been interested 1353 01:11:43,647 --> 01:11:46,345 in looking at, people shared rooms. 1354 01:11:46,519 --> 01:11:49,566 And I knew that Evan James was never gonna share a room with anyone. 1355 01:11:49,740 --> 01:11:52,699 And he said, "Yeah, there's five rooms on one side and five rooms on the other." 1356 01:11:52,873 --> 01:11:55,528 I said, "You mean everyone has their own room?" 1357 01:11:55,702 --> 01:11:57,878 "Yeah." Well, of course, Monday morning, 1358 01:11:58,052 --> 01:12:01,708 I was on the phone, and I said, "I might be interested some time 1359 01:12:01,882 --> 01:12:05,538 in Evan getting on the list to live in the group home 1360 01:12:05,712 --> 01:12:07,540 and maybe go to the day program." 1361 01:12:07,714 --> 01:12:09,673 And she said, "Beth, from what I understand, 1362 01:12:09,847 --> 01:12:11,501 Evan's at the top of the list." 1363 01:12:13,633 --> 01:12:16,593 And she said, "Evan, when men turn 21, 1364 01:12:16,767 --> 01:12:18,551 they go to college in Magnolia. 1365 01:12:18,725 --> 01:12:22,250 So you are going to college in Magnolia." 1366 01:12:22,425 --> 01:12:23,817 It's how it started. 1367 01:12:25,253 --> 01:12:27,125 "Evan gets a house." 1368 01:12:27,299 --> 01:12:29,127 "Just around the corner from Evan's college, 1369 01:12:29,301 --> 01:12:32,304 there's a beautiful house where really nice people live." 1370 01:12:32,478 --> 01:12:35,568 Honestly, the first time she took him over to see the group home, 1371 01:12:35,742 --> 01:12:37,265 and we were so nervous about that, 1372 01:12:37,440 --> 01:12:39,616 he met everybody, he saw his room, 1373 01:12:39,790 --> 01:12:41,444 he, he saw the whole house, 1374 01:12:41,618 --> 01:12:44,490 and he just go-- turned to Beth and said, "I love it." 1375 01:12:44,664 --> 01:12:47,145 "They ask Evan if he would like to live there. 1376 01:12:47,319 --> 01:12:50,104 Evan and Mama decided it would be a great place to live." 1377 01:12:50,975 --> 01:12:52,759 The plan sort of happened to me, 1378 01:12:52,933 --> 01:12:56,241 and when it did, I felt okay. 1379 01:12:57,503 --> 01:13:00,419 And I had never felt okay about it. 1380 01:13:00,593 --> 01:13:03,640 And then she fixed up his room. Of course, the cutest room 1381 01:13:03,814 --> 01:13:05,946 with The Cat in the Hat and Dr. Seuss. 1382 01:13:06,120 --> 01:13:08,340 And at first, it was just a few days. 1383 01:13:08,514 --> 01:13:10,603 It was a slow integration. 1384 01:13:11,822 --> 01:13:13,867 I got two minutes, and I'm gonna take it in there. 1385 01:13:14,041 --> 01:13:14,999 Put it up. 1386 01:13:15,173 --> 01:13:16,304 Put it up. 1387 01:13:16,479 --> 01:13:18,045 - Are you good? - Are you good? 1388 01:13:20,265 --> 01:13:24,574 I was as scared for him to do it as he was to do it. 1389 01:13:24,748 --> 01:13:28,055 And so our transition was very slow for him, 1390 01:13:28,229 --> 01:13:29,883 even spending the night. 1391 01:13:30,057 --> 01:13:33,931 Evan is going to be able to go to Magnolia 1392 01:13:34,105 --> 01:13:36,455 and have a chance to become as independent 1393 01:13:36,629 --> 01:13:38,501 as life will allow him to be. 1394 01:13:38,675 --> 01:13:40,546 But something did happen... 1395 01:13:41,591 --> 01:13:43,244 ...uh, about this time. 1396 01:13:44,594 --> 01:13:49,686 Boom. We find out that Evan's got Crohn's. 1397 01:13:49,860 --> 01:13:53,341 About 40% of people with autism also have Crohn's disease. 1398 01:13:53,516 --> 01:13:56,127 He was in excruciating pain, 1399 01:13:56,301 --> 01:14:00,000 and I had no idea what to do with him. 1400 01:14:00,174 --> 01:14:04,962 Hospitalizations and procedures and illness and weight loss. 1401 01:14:05,136 --> 01:14:08,879 He was developing rectal abscess 1402 01:14:09,053 --> 01:14:12,752 that were requiring incredibly painful surgery. 1403 01:14:12,926 --> 01:14:14,188 And I'm like, "Oh, great. 1404 01:14:14,362 --> 01:14:16,539 You know, we got autism, we have seizures, 1405 01:14:16,713 --> 01:14:18,541 and now we have this." 1406 01:14:20,586 --> 01:14:23,371 He learned, "Well, if I don't eat, I don't go to the bathroom, 1407 01:14:23,546 --> 01:14:25,156 so maybe I won't eat." 1408 01:14:25,330 --> 01:14:27,724 I mean, it was just miserable. 1409 01:14:27,898 --> 01:14:29,552 Once again, here's Beth 1410 01:14:29,726 --> 01:14:34,078 who gets one of the over-the-door shoe racks, 1411 01:14:34,252 --> 01:14:35,993 and that's Evan's medical, 1412 01:14:36,167 --> 01:14:38,822 so he could tell her what he needed. 1413 01:14:38,996 --> 01:14:42,478 Like, she would have the different creams, the gloves, and... 1414 01:14:42,652 --> 01:14:44,654 "What do you need? What do you want?" 1415 01:14:44,828 --> 01:14:47,613 So he could help communicate what he needed. 1416 01:14:47,787 --> 01:14:51,312 So, at that point, we took Evan back to St. Louis. 1417 01:14:52,313 --> 01:14:54,054 You would start to get a handle on things, 1418 01:14:54,228 --> 01:14:56,535 and then they call you up on the phone at work and say, 1419 01:14:56,709 --> 01:15:00,147 "We just did a scan on him, and his, uh, his appendix is about to rupture. 1420 01:15:00,321 --> 01:15:03,499 You know, you have to get him to the hospital immediately." 1421 01:15:03,673 --> 01:15:05,326 I don't know how he did it. 1422 01:15:05,501 --> 01:15:06,937 It almost killed him, 1423 01:15:07,720 --> 01:15:09,679 um, in, in fact. 1424 01:15:09,853 --> 01:15:12,377 I'd never seen her 1425 01:15:12,551 --> 01:15:14,074 almost to the point of being hopeless. 1426 01:15:14,248 --> 01:15:16,468 I mean, that's just not Beth, but she was about there. 1427 01:15:16,642 --> 01:15:20,951 But all of our people aligned again 1428 01:15:21,560 --> 01:15:23,127 from just out of the blue 1429 01:15:23,301 --> 01:15:25,608 to guide us through another situation. 1430 01:15:26,130 --> 01:15:28,001 Crohn's is in remission. 1431 01:15:28,175 --> 01:15:30,787 He's gone from having to have monthly infusions 1432 01:15:30,961 --> 01:15:33,441 to, um, monthly injections. 1433 01:15:33,616 --> 01:15:37,184 It's still something that... they have to stay on top of, 1434 01:15:37,358 --> 01:15:38,925 but it is under control right now. 1435 01:15:39,099 --> 01:15:41,624 He is-- Continues on that medicine today. 1436 01:15:41,798 --> 01:15:44,670 That is not easy on the body. 1437 01:15:44,844 --> 01:15:47,891 It creates quite a detriment to the immune system. 1438 01:15:49,632 --> 01:15:52,243 I noticed he was really scratching his eyes and his ears. 1439 01:15:52,417 --> 01:15:55,507 A suppressed immune system causes all sorts of problems. 1440 01:15:55,681 --> 01:15:59,032 So, we have been fighting here, as of late, topical-- 1441 01:15:59,206 --> 01:16:02,470 A dermatitis that has affected his ears and his eyes. 1442 01:16:02,645 --> 01:16:05,125 Being, uh, kind of unable to explain this to him, 1443 01:16:05,299 --> 01:16:07,258 he's really rubbing his eyes. 1444 01:16:07,432 --> 01:16:10,914 And as he's really digging in there, he's scratching his cornea. 1445 01:16:11,610 --> 01:16:14,570 And there's going to be long-term vision damage if he... 1446 01:16:15,701 --> 01:16:17,311 ...rubs too hard, too long. 1447 01:16:17,485 --> 01:16:19,139 Same thing with his ears. 1448 01:16:19,313 --> 01:16:21,446 The written word is very important in our family, 1449 01:16:21,620 --> 01:16:23,622 so we need to make sure that he continues 1450 01:16:23,796 --> 01:16:25,929 to have access to that strength. 1451 01:16:26,103 --> 01:16:28,975 Actually, I think it's time that we put some medicine in his eyes, so... 1452 01:16:30,150 --> 01:16:31,108 Eye time. 1453 01:16:33,980 --> 01:16:35,765 Yes? 1454 01:16:39,551 --> 01:16:41,335 - Eye time? - No. 1455 01:16:42,119 --> 01:16:44,164 - You ready? - Ready? 1456 01:16:53,870 --> 01:16:56,307 - Eye time. - Mmm-hmm. 1457 01:16:56,481 --> 01:16:57,743 Eye time. 1458 01:16:58,701 --> 01:17:00,006 Try not to for a minute. 1459 01:17:03,967 --> 01:17:06,970 - Be gentle. - Yes. Be very gentle. Don't rub hard. 1460 01:17:09,450 --> 01:17:11,801 Beth always knew, and Dennis too, 1461 01:17:11,975 --> 01:17:16,022 that Evan was gonna need special attention all his life. 1462 01:17:16,762 --> 01:17:20,548 And that was one reason Dennis fought so hard with the leukemia. 1463 01:17:21,941 --> 01:17:25,641 You put his health issues, his autism, 1464 01:17:25,815 --> 01:17:28,513 the death of his father, moving, 1465 01:17:29,209 --> 01:17:31,472 new and more health issues... 1466 01:17:32,865 --> 01:17:36,173 That's a lot. That's a lot for anybody. 1467 01:17:37,087 --> 01:17:39,393 Evan has a real autism 1468 01:17:39,567 --> 01:17:44,224 and all the medical and emotional and disabling effects of it. 1469 01:17:44,398 --> 01:17:48,011 And yet there's something special about him. 1470 01:17:48,968 --> 01:17:51,449 And I don't even know how to put it into words. 1471 01:17:51,623 --> 01:17:54,365 He can do amazing things with that brain. 1472 01:17:54,844 --> 01:17:59,849 It's just not things that are going to keep him from needing... 1473 01:18:00,850 --> 01:18:03,417 ...someone to make sure he's always okay. 1474 01:18:04,157 --> 01:18:06,682 Look at me. 1475 01:18:06,856 --> 01:18:08,074 Look. 1476 01:18:08,248 --> 01:18:10,598 - Nose. - Yeah. Did you have a good week? 1477 01:18:10,773 --> 01:18:13,340 - Good week. - Good. Good. You ready to go home? 1478 01:18:13,514 --> 01:18:15,516 - Yes. Good week. - All right, let's pick up your stuff. 1479 01:18:15,691 --> 01:18:16,996 Give it to your mom. 1480 01:18:18,171 --> 01:18:19,869 - What is it? - All right. 1481 01:18:20,043 --> 01:18:21,435 - Say "Open it." - All right. 1482 01:18:21,609 --> 01:18:23,829 - What is it? - All right. What is it? 1483 01:18:24,482 --> 01:18:27,920 - Good. - Good. I love it. 1484 01:18:28,442 --> 01:18:29,835 Good. 1485 01:18:30,009 --> 01:18:31,837 - Okay. - I like that. 1486 01:18:32,011 --> 01:18:33,273 I like that. 1487 01:18:33,926 --> 01:18:34,971 - What? - What have you got? 1488 01:18:35,145 --> 01:18:36,146 Oh. 1489 01:18:37,843 --> 01:18:39,410 Santa Claus ornament. 1490 01:18:40,498 --> 01:18:42,326 Yeah, I thought that would be good too. 1491 01:18:52,902 --> 01:18:55,469 I have told all of my nieces and nephews, 1492 01:18:55,643 --> 01:18:58,821 my great nieces and nephews, and my stepchildren, 1493 01:18:58,995 --> 01:19:03,042 and I intend to tell their children if I live long enough... 1494 01:19:04,304 --> 01:19:06,263 ...that my only requirement of them... 1495 01:19:07,960 --> 01:19:09,527 ...is that they go see him once a year, 1496 01:19:09,701 --> 01:19:11,485 and it can't be a holiday. 1497 01:19:11,659 --> 01:19:14,488 Because I figure there are so many of them 1498 01:19:15,185 --> 01:19:18,057 that surely two of them will show up every month 1499 01:19:18,231 --> 01:19:20,668 if they commit to that one time of year. 1500 01:19:20,843 --> 01:19:22,975 Go into Magnolia and taking Evan to dinner. 1501 01:19:23,149 --> 01:19:24,498 That's the only requirement. 1502 01:19:25,412 --> 01:19:27,893 And if everybody does that... 1503 01:19:29,242 --> 01:19:31,941 ...then a couple of times a month, Evan gets to go out to dinner 1504 01:19:32,115 --> 01:19:33,856 with someone he really cares about. 1505 01:19:34,030 --> 01:19:36,467 And if something really terrible is going on in his life, 1506 01:19:36,641 --> 01:19:37,947 somebody will know. 1507 01:19:39,426 --> 01:19:41,254 I don't really see it as a responsibility, 1508 01:19:41,428 --> 01:19:43,604 and I never even saw it as a question. 1509 01:19:43,779 --> 01:19:48,131 I feel like Evan's village is gonna go down to the next generation, 1510 01:19:48,827 --> 01:19:50,698 and I feel like he'll always have people. 1511 01:19:50,873 --> 01:19:54,702 We need to do our part because he's impacted us so much 1512 01:19:54,877 --> 01:19:57,967 and done so much for us in our lives that he doesn't even realize. 1513 01:19:58,141 --> 01:19:59,795 We're just gonna have to take shifts, you know. 1514 01:19:59,969 --> 01:20:01,100 - You're gonna take care of him for three months. - No. 1515 01:20:01,274 --> 01:20:02,710 He can move into the room next door. 1516 01:20:02,885 --> 01:20:04,451 I don't-- I'm not worried about it, but, like-- 1517 01:20:04,625 --> 01:20:06,976 I, I know for sure that there's a community behind Evan. 1518 01:20:07,150 --> 01:20:08,847 I have complete faith in that. 1519 01:20:09,021 --> 01:20:11,241 And I have faith that all of us will come together 1520 01:20:11,415 --> 01:20:12,895 and do what's right at the end of that. 1521 01:20:13,069 --> 01:20:14,810 It's just what we would do for... 1522 01:20:15,767 --> 01:20:16,942 - Our brother. - Yeah. 1523 01:20:17,116 --> 01:20:18,465 There is no fear or worries 1524 01:20:18,639 --> 01:20:20,119 about what the future looks like for Evan. 1525 01:20:20,293 --> 01:20:23,035 I feel like he is going to survive and thrive, 1526 01:20:23,209 --> 01:20:25,603 um, as the older generation moves on. 1527 01:20:25,777 --> 01:20:27,823 We'll make sure he's taken care of. 1528 01:20:28,345 --> 01:20:31,565 We just have really big shoes to fill. 1529 01:20:32,175 --> 01:20:33,089 Really big. 1530 01:20:37,180 --> 01:20:39,878 This, this story shows a pattern... 1531 01:20:41,532 --> 01:20:45,231 ...of me, um, running into just the right person 1532 01:20:45,405 --> 01:20:49,757 or just the r-- right, um, help, 1533 01:20:49,932 --> 01:20:51,759 or just the right piece of information 1534 01:20:51,934 --> 01:20:53,718 when it was necessary for me. 1535 01:20:56,025 --> 01:20:58,418 Uh, which is, you know, 1536 01:20:59,071 --> 01:21:00,812 maybe luck, maybe divine intervention, 1537 01:21:00,986 --> 01:21:03,075 maybe... Whatever. I don't know. 1538 01:21:03,249 --> 01:21:05,643 But behind all of that... 1539 01:21:07,123 --> 01:21:10,474 ...uh, I'm looking at the picture of these people. 1540 01:21:12,476 --> 01:21:13,999 And this is my family. 1541 01:21:14,739 --> 01:21:17,437 These people were the people that struggled through 1542 01:21:17,611 --> 01:21:20,092 so that he learned to go to church, 1543 01:21:20,266 --> 01:21:22,442 and go to a restaurant, 1544 01:21:22,616 --> 01:21:24,662 and go to a family dinner. And, you know, I-- 1545 01:21:24,836 --> 01:21:26,533 People call me all the time, "I can't take him anywhere." 1546 01:21:26,707 --> 01:21:28,318 Well... 1547 01:21:29,623 --> 01:21:32,235 ...find these kind of people 1548 01:21:32,409 --> 01:21:35,586 who will accept you no matter what. 1549 01:21:36,587 --> 01:21:37,980 They're not your family. 1550 01:21:38,154 --> 01:21:39,895 You have to find them because they're key. 1551 01:21:40,069 --> 01:21:42,593 For me, it was these people. 1552 01:21:45,944 --> 01:21:48,468 And I owe them everything. 1553 01:21:51,384 --> 01:21:54,866 This commitment that Beth has to Evan, 1554 01:21:55,040 --> 01:21:57,434 you can't help but be moved by it. 1555 01:21:59,044 --> 01:22:01,394 You have no idea what it takes. 1556 01:22:01,568 --> 01:22:04,441 You have no idea what kind of love that kid can provide. 1557 01:22:04,615 --> 01:22:09,489 He's taught us so much through the whole thing. 1558 01:22:11,404 --> 01:22:14,103 You have no idea what love, 1559 01:22:14,277 --> 01:22:17,802 and work, and dedication this took 1560 01:22:17,976 --> 01:22:23,373 to get one person to the point he is today. 1561 01:22:23,547 --> 01:22:25,810 And that's one person. 1562 01:22:25,984 --> 01:22:28,900 What Beth is doing can be super impactful 1563 01:22:29,074 --> 01:22:32,251 if the message can be spread because there's a lot of people out there 1564 01:22:32,425 --> 01:22:34,340 that don't have that support. 1565 01:22:34,514 --> 01:22:37,430 Being a movie star again, Evan? - Movie star. 1566 01:22:37,996 --> 01:22:41,521 I just think of how much my life has been enriched 1567 01:22:41,695 --> 01:22:45,090 by knowing Evan and him being a part of my life. 1568 01:22:45,264 --> 01:22:47,179 I still get excited when I see him 1569 01:22:47,353 --> 01:22:50,226 and when he comes up and gives me a kiss 1570 01:22:50,400 --> 01:22:52,880 or hugs my neck and says, "I love you." 1571 01:22:53,055 --> 01:22:54,360 Oh, my gosh. 1572 01:22:54,839 --> 01:22:56,058 I just hope that 1573 01:22:56,972 --> 01:23:00,584 people who have a Beth or have an Evan in their life 1574 01:23:00,758 --> 01:23:03,500 take this and really help them. 1575 01:23:04,022 --> 01:23:05,458 One thing I hope people take away 1576 01:23:05,632 --> 01:23:08,984 is, is what a privilege it has been... 1577 01:23:10,028 --> 01:23:11,464 ...to be part of this story. 1578 01:23:15,381 --> 01:23:18,819 I think people found a common purpose, 1579 01:23:19,429 --> 01:23:22,693 and in this common purpose was Evan. 1580 01:23:24,347 --> 01:23:26,958 So, it's all as it ends, as I said before. 1581 01:23:27,132 --> 01:23:33,008 What would I say to someone? There's so much to be taken from a situation, uh, like this. 1582 01:23:33,182 --> 01:23:35,184 It's not that you don't-- Do you get tired? 1583 01:23:35,358 --> 01:23:37,751 Heck yeah. I'm gonna be tired by Sunday. 1584 01:23:37,925 --> 01:23:41,277 But as far as the life's experience, 1585 01:23:41,451 --> 01:23:43,366 I am different, I am better. 1586 01:23:43,540 --> 01:23:44,802 I'm a better person. 1587 01:23:45,629 --> 01:23:47,674 So, maybe, you know, when people say, 1588 01:23:47,848 --> 01:23:49,328 "Oh, you do everything for him," 1589 01:23:49,502 --> 01:23:51,809 you know, I'm like, "Maybe he saved me." 1590 01:23:52,331 --> 01:23:54,507 I don't know. Who saved who? 1591 01:23:57,597 --> 01:23:59,338 ♪ You've got a friend in me ♪ 1592 01:23:59,512 --> 01:24:00,687 Your favorite song. 1593 01:24:01,993 --> 01:24:04,213 ♪ You've got a friend in me ♪ 1594 01:24:06,128 --> 01:24:09,261 ♪ When the road looks rough ahead ♪ 1595 01:24:09,435 --> 01:24:13,613 ♪ And you're miles and miles from your nice warm bed ♪ 1596 01:24:14,266 --> 01:24:17,269 ♪ We stick together and can see it through ♪ 1597 01:24:17,443 --> 01:24:20,751 ♪ 'Cause you've got a friend in me ♪ 1598 01:24:21,447 --> 01:24:25,147 ♪ Oh, you've got a friend in me ♪ 1599 01:24:26,800 --> 01:24:30,935 ♪ Some other folks might be a little bit smarter than I am ♪ 1600 01:24:31,109 --> 01:24:33,198 ♪ Bigger and stronger too ♪ 1601 01:24:33,981 --> 01:24:38,421 ♪ Maybe, but none of them will ever love you ♪ 1602 01:24:38,595 --> 01:24:40,423 ♪ The way I do ♪ 1603 01:24:40,597 --> 01:24:42,860 ♪ It's me and you ♪ 1604 01:24:43,034 --> 01:24:45,906 ♪ Boy, as the years go by ♪ 1605 01:24:47,386 --> 01:24:49,997 ♪ Our friendship will never die ♪ 1606 01:24:51,477 --> 01:24:56,656 ♪ You're gonna see it's our destiny ♪ 1607 01:24:57,788 --> 01:25:00,138 ♪ You've got a friend in me ♪ 1608 01:25:09,234 --> 01:25:10,235 "The end." 1609 01:25:10,888 --> 01:25:11,976 Good job. 118217

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