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Would you like to inspect the original subtitles? These are the user uploaded subtitles that are being translated: 1 00:00:02,220 --> 00:00:04,740 I always liken the AIDS pandemic to war. 2 00:00:08,860 --> 00:00:14,080 There was a relentless quality to the destruction and death around us. 3 00:00:20,300 --> 00:00:25,980 Everybody who we lost to the pandemic, we owe it to their memory to keep them 4 00:00:25,980 --> 00:00:26,980 alive. 5 00:00:32,430 --> 00:00:37,090 the lonely deaths that they died, to take it out of that and to replace them 6 00:00:37,090 --> 00:00:39,490 somewhere better and brighter. I think that's really important. 7 00:00:42,750 --> 00:00:46,570 The Department of the Taoiseach has announced plans to unveil a national 8 00:00:46,570 --> 00:00:50,770 monument in the Phoenix Park to commemorate 40 years of HIV AIDS in 9 00:00:52,610 --> 00:00:58,870 The HIV AIDS memorial that is due to be unveiled in Phoenix Park, 10 00:00:59,090 --> 00:01:01,670 it's long overdue. 11 00:01:04,010 --> 00:01:07,830 It's great to have a place where you can go and reflect. 12 00:01:12,050 --> 00:01:18,110 I think it's very necessary to remember those who died from this pernicious 13 00:01:18,110 --> 00:01:19,130 disease in Ireland. 14 00:01:23,170 --> 00:01:24,550 This is the AIDS virus. 15 00:01:24,850 --> 00:01:28,450 The bubonic plague of the 80s called the TB of this generation. 16 00:01:28,870 --> 00:01:32,950 Incurable, an epidemic and potentially as disastrous for Ireland as the famine 17 00:01:32,950 --> 00:01:33,950 was. 18 00:01:46,700 --> 00:01:48,000 Good evening and welcome. 19 00:01:48,260 --> 00:01:52,120 If you're tired of hearing about AIDS, maybe it's because you think it'll never 20 00:01:52,120 --> 00:01:54,800 affect you or yours. Don't be so sure. 21 00:01:59,600 --> 00:02:04,880 The assurance of no change in the status of Northern Ireland. If you obey the 22 00:02:04,880 --> 00:02:07,180 Ten Commandments, you won't get AIDS. 23 00:02:09,000 --> 00:02:12,600 Drug addicts are the biggest problem facing the AIDS campaign in this 24 00:02:12,780 --> 00:02:16,280 We can't really say they died a peaceful death. The problem is now acute in 25 00:02:16,280 --> 00:02:20,320 certain geographical areas of the city. Those areas whose poor conditions gave 26 00:02:20,320 --> 00:02:21,880 rise to drug abuse in the first place. 27 00:02:23,020 --> 00:02:24,860 AIDS ruined everything for me. 28 00:02:25,820 --> 00:02:26,820 Everything. 29 00:02:27,520 --> 00:02:32,200 One third of the 350 haemophiliacs in the Republic have been infected with the 30 00:02:32,200 --> 00:02:32,978 AIDS virus. 31 00:02:32,980 --> 00:02:35,360 Their ages ranging from 60 down to 10. 32 00:02:36,200 --> 00:02:40,460 Some of the mums say that they're literally, they're watching their child. 33 00:02:40,680 --> 00:02:43,200 A lot of them, I think, are literally waiting for death. 34 00:02:43,800 --> 00:02:46,900 There really was a lack of compassion and empathy throughout the party. 35 00:02:47,220 --> 00:02:49,260 He died last night in the Mater Hospital. 36 00:02:49,540 --> 00:02:53,060 Sick prisoners in this block are not HIV. 37 00:02:55,340 --> 00:02:57,640 The basic message seems to be just don't fool around. 38 00:02:58,440 --> 00:03:00,540 Casual sex spreads AIDS. 39 00:03:00,840 --> 00:03:05,240 Looking at the different clips of all that went on at that time. 40 00:03:05,660 --> 00:03:07,240 Like, or there didn't really happen. 41 00:03:08,200 --> 00:03:11,220 We were all trying to grapple what this was about. 42 00:03:20,700 --> 00:03:22,760 Irish -related publications. 43 00:03:24,100 --> 00:03:29,720 Because you know what, when you start looking at newspapers, you can really 44 00:03:29,720 --> 00:03:31,380 a sense of, like... 45 00:03:31,920 --> 00:03:37,080 The tone of the public discourse, I mean, the levels of fear and hysteria 46 00:03:37,080 --> 00:03:43,600 were actually also being encouraged by some of the sleazier elements, the red 47 00:03:43,600 --> 00:03:45,480 tops, for example, were shocking. 48 00:03:46,100 --> 00:03:48,920 It's documenting a really important and traumatic period. 49 00:03:49,140 --> 00:03:55,340 And I'm standing here as a 62 -year -old gay man, and I think I'm emblematic of 50 00:03:55,340 --> 00:03:58,900 a generation of gay men who will, for better or worse... 51 00:03:59,310 --> 00:04:03,350 our lives will be defined by AIDS, will be defined by the pandemic. 52 00:04:03,830 --> 00:04:05,990 It's just, it's inescapable. 53 00:04:21,410 --> 00:04:26,730 Once we dive into it, not only are we excavating the past, 54 00:04:27,600 --> 00:04:32,400 But we're actually learning something that we can apply to the place we find 55 00:04:32,400 --> 00:04:33,400 ourselves in today. 56 00:04:42,000 --> 00:04:45,680 The media response to HIV and AIDS was stark. 57 00:04:46,220 --> 00:04:48,940 Driven by fear. It was driven by misinformation. 58 00:04:49,580 --> 00:04:51,560 It was driven by a reaction. 59 00:04:52,250 --> 00:04:56,630 to something that people probably didn't understand well enough to be reporting 60 00:04:56,630 --> 00:04:57,990 on and to be discussing. 61 00:05:00,290 --> 00:05:07,130 The subject matter is so shrouded in mystique, in worry. The ignorance 62 00:05:07,130 --> 00:05:09,770 and fear was just so palpable. It was enormous. 63 00:05:22,240 --> 00:05:28,400 metropolitan cultural elite, gained by sexual men and then IV drug users. And 64 00:05:28,400 --> 00:05:30,400 sure, they're not really important, are they? 65 00:05:30,960 --> 00:05:37,300 The other train of thought was that Ireland was setting itself up for a very 66 00:05:37,300 --> 00:05:38,300 large problem. 67 00:05:39,320 --> 00:05:46,120 We were a small island society with almost zero public 68 00:05:46,120 --> 00:05:48,600 sexual health education and culture. 69 00:05:49,440 --> 00:05:53,340 One facet of the Irish government's strategy to combat the disease is that 70 00:05:53,340 --> 00:05:56,780 child should leave school without knowing the facts about AIDS. But there 71 00:05:56,780 --> 00:06:00,420 been complaints that some principals won't allow this educational programme 72 00:06:00,420 --> 00:06:01,239 their schools. 73 00:06:01,240 --> 00:06:06,960 We're still bent down by really suspect Roman Catholic ideology and morality. 74 00:06:08,650 --> 00:06:12,310 The bishops at their spring meeting in Maynooth complained that they only 75 00:06:12,310 --> 00:06:16,170 received a copy of the pilot project on AIDS from the Department of Education a 76 00:06:16,170 --> 00:06:17,170 couple of weeks ago. 77 00:06:17,410 --> 00:06:21,430 Already the bishops' commissions for education and catechetics have submitted 78 00:06:21,430 --> 00:06:25,830 detailed comments on the project to the department, outlining what they see as 79 00:06:25,830 --> 00:06:26,749 its weaknesses. 80 00:06:26,750 --> 00:06:29,150 The fundamental issue here is not conduct. 81 00:06:29,470 --> 00:06:33,830 It's something much deeper than that. It's the formation and promotion of 82 00:06:33,830 --> 00:06:37,530 attitudes. We had all of the perfect conditions. 83 00:06:38,220 --> 00:06:40,440 Were they conditioned to rampage? 84 00:06:44,140 --> 00:06:51,040 It was a privilege and a misfortune at the same time working with people in 85 00:06:51,040 --> 00:06:56,140 St James' Hospital who were living and dying with AIDS in the early to mid 86 00:06:56,140 --> 00:06:57,140 -1980s. 87 00:06:57,860 --> 00:06:59,540 I'd never seen a plague before. 88 00:07:01,099 --> 00:07:05,420 Unfortunately, we learned, as we were learning, we weren't even sure then how 89 00:07:05,420 --> 00:07:10,800 HIV was transmitted, but it was killing everybody on the AIDS unit. 90 00:07:11,800 --> 00:07:17,600 As a nurse and a midwife, I'd been used to helping people get better, and 91 00:07:17,600 --> 00:07:23,240 certainly not young people my own age, in my early 20s, and just a bit older, 92 00:07:23,360 --> 00:07:25,000 getting sick and dying. 93 00:07:25,540 --> 00:07:29,380 Looking back now, I almost think we really needed counselling ourselves. 94 00:07:30,600 --> 00:07:37,400 because you try to do the best, you try to lift the mood, and 95 00:07:37,400 --> 00:07:44,240 yet in that part of the three -unit war, top of one, everybody there at that 96 00:07:44,240 --> 00:07:48,900 time died, and it was hard to take. 97 00:07:52,900 --> 00:07:56,960 It's just beginning to move into the heterosexual population. 98 00:07:57,360 --> 00:08:01,400 Just one act of intercourse may give you AIDS and lead to death. 99 00:08:01,840 --> 00:08:08,460 I was introduced to a substance called crystal meth, and this was delivered 100 00:08:08,460 --> 00:08:13,120 intravenously. How far down the road are you in the HIV? I'm in what's known as 101 00:08:13,120 --> 00:08:17,100 stage three. That's to say that my immune system has been significantly 102 00:08:17,500 --> 00:08:21,560 When I do reach stage four, I will be considered to have full -blown AIDS. 103 00:08:22,010 --> 00:08:23,890 I know I'm dead, honestly. 104 00:08:24,970 --> 00:08:27,930 That's the only way I can take that. 105 00:08:28,410 --> 00:08:33,150 But it's my family. 106 00:08:33,570 --> 00:08:36,650 How are they going to survive without me gone? 107 00:08:54,890 --> 00:09:01,390 I remember my friend Barry's wake up in Capra Downs in a lovely leafy Victorian 108 00:09:01,390 --> 00:09:02,410 suburb of Dublin. 109 00:09:04,890 --> 00:09:10,790 And less than a dozen of his closest men and women friends sitting around the 110 00:09:10,790 --> 00:09:17,630 bed and Barry laid out in the bed, my age, 27, laid out in the bed, thick 111 00:09:17,630 --> 00:09:18,630 tin. 112 00:09:20,470 --> 00:09:22,710 Every part of that wake. 113 00:09:23,160 --> 00:09:24,260 I remember very clearly. 114 00:09:25,440 --> 00:09:28,820 I remember the music that was played. I remember smoking spliffs. 115 00:09:30,720 --> 00:09:34,840 I remember sitting around sharing stories about Barry while he's there. 116 00:09:36,940 --> 00:09:41,020 I remember wanting to go over, feeling the urge to go over and shake him and 117 00:09:41,080 --> 00:09:42,760 wake up, wake up, wake up. 118 00:09:44,060 --> 00:09:47,420 And now, when I think back on it now, and as I'm saying it to you, I realize 119 00:09:47,420 --> 00:09:49,880 that that was me trying to... 120 00:09:50,520 --> 00:09:56,780 process and modulate my grief and just the sheer fucking horror you 121 00:09:56,780 --> 00:09:59,100 know that we were surrounded with 122 00:09:59,100 --> 00:10:09,140 so 123 00:10:09,140 --> 00:10:15,280 far over 500 people have the virus Over 300 are drug users. 124 00:10:15,540 --> 00:10:19,800 What we're facing now is a doubling of AIDS cases in a nine -month period and 125 00:10:19,800 --> 00:10:24,060 it's ravaging those communities least equipped to resist it or to contain it. 126 00:10:24,720 --> 00:10:29,940 I had been living in Dublin and I wasn't in a very good relationship. 127 00:10:30,320 --> 00:10:34,500 The relationship was very volatile. There was a lot of violence. 128 00:10:36,240 --> 00:10:39,860 I was only 15 and he was two years older. 129 00:10:40,620 --> 00:10:42,840 Heroin had come to Dublin. 130 00:10:43,930 --> 00:10:46,350 And he got swept up in that. 131 00:10:47,690 --> 00:10:51,370 In order for me to live, it was to get out of this relationship. 132 00:10:52,810 --> 00:10:55,610 The violence was quite horrific at times. 133 00:10:56,730 --> 00:10:59,670 And when I walked out of the house, I didn't know where I was going. 134 00:11:00,990 --> 00:11:04,710 I had the children, and I knew I was getting on the fourth bus. 135 00:11:05,290 --> 00:11:09,970 But where, I didn't know. And I was very conscious of, I'm still in Dublin here. 136 00:11:10,390 --> 00:11:12,170 You know, he's going to find me. 137 00:11:12,810 --> 00:11:15,390 He always said he would find me no matter where I went. 138 00:11:16,530 --> 00:11:18,050 So I knew I couldn't stay. 139 00:11:19,590 --> 00:11:22,870 And I ended up in a tiny little village in Galway. 140 00:11:26,650 --> 00:11:31,370 I knew my partner had tested positive. And I was starting to get a bit sick 141 00:11:31,370 --> 00:11:32,370 myself. 142 00:11:32,590 --> 00:11:35,350 And I wanted a test for myself. 143 00:11:35,810 --> 00:11:38,670 The test was sent off to Galway City. 144 00:11:40,750 --> 00:11:45,630 I was waiting and waiting and waiting and it felt like forever. 145 00:11:47,090 --> 00:11:53,550 I went up and sat in the surgery and I could hear him and his wife talking in 146 00:11:53,550 --> 00:11:58,910 the background, chatting and like, how am I supposed to go out and tell this 147 00:11:58,910 --> 00:12:03,990 woman? How am I to tell her she has four small children? How am I to tell her 148 00:12:03,990 --> 00:12:04,829 this news? 149 00:12:04,830 --> 00:12:08,010 So I already knew the news before I even... 150 00:12:08,350 --> 00:12:14,130 got into his little surgery room and he said, well, Elizabeth, I'm very, very 151 00:12:14,130 --> 00:12:18,350 sorry that I had to tell you that your results came back and you're positive. 152 00:12:24,370 --> 00:12:28,370 Ireland now has the highest number of babies born with AIDS antibodies per 153 00:12:28,370 --> 00:12:32,450 of population than any other European country. This is due to the prevalence 154 00:12:32,450 --> 00:12:33,970 the disease among drug abusers. 155 00:12:35,450 --> 00:12:37,130 I had just had my... 156 00:12:37,440 --> 00:12:39,860 my son that August. 157 00:12:40,220 --> 00:12:46,300 The doctor said, you know, we really do need to do this test to see he had been 158 00:12:46,300 --> 00:12:48,820 ill and he wasn't responding to antibiotics. 159 00:12:51,460 --> 00:12:54,560 And the doctor said, you know, like, we'll... 160 00:12:54,940 --> 00:12:58,820 we'll do this together i'll completely support you you know and the test came 161 00:12:58,820 --> 00:13:05,160 back and uh it was negative and i remember uh my mother being so overjoyed 162 00:13:05,160 --> 00:13:10,780 was doing a little dance in the surgery and saying it's a miracle you know yeah 163 00:13:10,780 --> 00:13:17,460 it was a miracle my ex -partner died 164 00:13:17,460 --> 00:13:22,760 20 years ago it was a decision that he had made 165 00:13:24,360 --> 00:13:26,180 He doesn't want to start treatment. 166 00:13:27,660 --> 00:13:31,260 And I do believe that I made the right decision because if I didn't, I wouldn't 167 00:13:31,260 --> 00:13:32,260 be here. 168 00:13:51,310 --> 00:13:57,110 I always feel really weird walking around the streets of Dublin because 169 00:13:57,110 --> 00:13:58,310 alive with ghosts. 170 00:14:12,130 --> 00:14:16,130 I made a mental note of all the people I lost. 171 00:14:18,480 --> 00:14:23,440 And at one point, I was able to count to 43 the number of people I knew who died 172 00:14:23,440 --> 00:14:24,440 of AIDS. 173 00:14:27,800 --> 00:14:29,780 What's shocking is actually there have been more since. 174 00:14:33,160 --> 00:14:39,120 All you can think of is having some bright future together with your friends 175 00:14:39,120 --> 00:14:42,380 only to discover that bright future snuffed out. 176 00:14:46,000 --> 00:14:50,520 The friends you imagined you were going to have a lifetime of memories not being 177 00:14:50,520 --> 00:14:51,520 with you. 178 00:14:54,840 --> 00:14:58,920 And actually there's a few of them, I think about them every single day. 179 00:14:59,120 --> 00:15:04,920 Part of that's a determination to offset the anger I felt that society had 180 00:15:04,920 --> 00:15:05,920 forgotten them. 181 00:15:07,960 --> 00:15:12,360 That Ireland hadn't done enough to remember the people we lost from AIDS. 182 00:15:26,600 --> 00:15:31,000 We were delighted to be invited onto the Oversight Committee, which was formed 183 00:15:31,000 --> 00:15:34,980 and led by the PSOC's office to bring a monument to reality. 184 00:15:36,020 --> 00:15:40,720 The Oversight Committee had two functions. One was to ensure that the 185 00:15:40,720 --> 00:15:45,160 project came to fruition, but also to select the actual winning design. 186 00:15:46,560 --> 00:15:52,120 What was chosen, I think, is the most stunning, the most appropriate, the most 187 00:15:52,120 --> 00:15:53,460 impactful design. 188 00:15:54,040 --> 00:15:56,520 that was put before the jury and the oversight committee. 189 00:16:20,860 --> 00:16:26,500 something else than just look at it. So if you can create a seat or a monument 190 00:16:26,500 --> 00:16:32,760 that people can walk or climb or interact somehow, it has become 191 00:16:32,760 --> 00:16:35,360 and it gets much more interest. 192 00:16:35,780 --> 00:16:40,080 I first draw the red ribbon and then I close it in a shape and then it was 193 00:16:40,080 --> 00:16:44,440 something like this that is an embraced loop and people sitting there. 194 00:16:44,760 --> 00:16:49,120 And then I put these lines in the computer and then I start doing some 195 00:16:49,120 --> 00:16:50,120 experiments. 196 00:16:51,280 --> 00:16:58,020 I'm trying to do a composition that will focus on the shape of this 197 00:16:58,020 --> 00:16:59,020 ribbon. 198 00:16:59,660 --> 00:17:06,260 This symbol of awareness would connect so much the community and bring people 199 00:17:06,260 --> 00:17:10,319 together and then they will talk about the HIV and the memories. 200 00:17:19,790 --> 00:17:26,670 It's great that they choose the location of the park because it's silent, you 201 00:17:26,670 --> 00:17:28,210 can feel the nature around. 202 00:17:29,870 --> 00:17:35,070 You have a much better experience when you have this type of surrounding. 203 00:17:44,330 --> 00:17:48,310 My vision was to get everything in this. 204 00:17:48,730 --> 00:17:54,570 In this color palette that where the the curtain steel is the is the heavy color 205 00:17:54,570 --> 00:17:59,850 the dark color That's the loop and and then we do the entrance from here and 206 00:17:59,850 --> 00:18:02,830 then we can grow This entrance here. 207 00:18:03,090 --> 00:18:10,090 Yeah And then people will enter here so it's really nice to imagine how 208 00:18:10,090 --> 00:18:16,150 the concept of the Ribbon bring this community together and that the people 209 00:18:16,150 --> 00:18:18,770 the city can enjoy it It's really nice to imagine. 210 00:18:19,090 --> 00:18:21,790 You've got to be careful too as well, and this is what I was saying earlier on 211 00:18:21,790 --> 00:18:22,790 in the week. 212 00:18:22,850 --> 00:18:27,250 We need the size of the toil for the timber, because you've got to agree to 213 00:18:27,250 --> 00:18:30,230 that. Haemophiliacs' blood doesn't clot in the normal way. 214 00:18:30,650 --> 00:18:34,730 Bleeding damages muscles and joints, or it can be life -threatening. To avoid 215 00:18:34,730 --> 00:18:38,110 this, patients must have transfusions to make their blood clot. 216 00:18:38,930 --> 00:18:43,430 100 of the 350 haemophiliacs in the Republic have been infected with the 217 00:18:43,430 --> 00:18:45,990 virus after getting contaminated transfusions. 218 00:19:11,590 --> 00:19:17,190 What we can see from here is the big Elysian straight in front 219 00:19:17,190 --> 00:19:24,050 Into Cork Over to the right 220 00:19:24,050 --> 00:19:30,090 hand side the white building the white structure. That's Parkey Cove I've the 221 00:19:30,090 --> 00:19:36,290 green here and that's the city. You can't go wrong Ten minutes I'm in 222 00:19:36,290 --> 00:19:38,010 Street traffic defending. 223 00:19:38,770 --> 00:19:40,530 Yeah, and I love it 224 00:19:41,520 --> 00:19:42,920 lovely part of the world. 225 00:19:45,340 --> 00:19:46,820 My name is Colm Wall. 226 00:19:47,660 --> 00:19:48,660 I'm 48. 227 00:19:49,860 --> 00:19:56,720 I am a severe factor IX deficiency haemophiliac, and I live life to the 228 00:19:56,720 --> 00:19:57,720 full. 229 00:20:04,100 --> 00:20:06,320 Here are the family. 230 00:20:06,820 --> 00:20:08,640 That's my mother and father. 231 00:20:09,660 --> 00:20:10,660 That's Brendan. 232 00:20:11,580 --> 00:20:14,180 That's me, and that's my sister Susan. 233 00:20:15,220 --> 00:20:18,940 Brendan was a big man. He was like me. 234 00:20:19,700 --> 00:20:23,020 To look at us, you wouldn't think we were haemophiliacs. 235 00:20:23,300 --> 00:20:25,820 He travelled, he had a girlfriend. 236 00:20:26,500 --> 00:20:27,500 He lived life. 237 00:20:28,280 --> 00:20:31,260 And at the same time, he was always looking out for me as well. 238 00:20:32,540 --> 00:20:37,140 This doctor is preparing the concentrated blood plasma, which is the 239 00:20:37,140 --> 00:20:38,660 treatment for all haemophiliacs. 240 00:20:39,320 --> 00:20:43,900 It is called Factor VIII and is produced from a large quantity of blood given by 241 00:20:43,900 --> 00:20:45,260 a large number of blood donors. 242 00:20:45,780 --> 00:20:52,300 Every Wednesday after school, I remember distinctly, up to the hospital in the 243 00:20:52,300 --> 00:20:56,080 mini, we'd go down to the blood bank and then pray that there was a doctor 244 00:20:56,080 --> 00:20:58,040 around that could infuse us. 245 00:20:58,920 --> 00:21:05,640 So that was our life for a good portion of it. We didn't know where 246 00:21:05,640 --> 00:21:08,600 the product was coming from. We were just there. 247 00:21:08,990 --> 00:21:11,550 giving me freedom, giving me independence. 248 00:21:13,970 --> 00:21:18,410 Since the 1960s, haemophiliacs have depended on plasma to keep them alive. 249 00:21:18,770 --> 00:21:22,650 As knowledge and technology improved, they began to look forward to a better 250 00:21:22,650 --> 00:21:24,390 lifestyle and a longer lifespan. 251 00:21:25,550 --> 00:21:30,010 In the 1980s and up to the mid -90s, the treatments used for haemophilia were 252 00:21:30,010 --> 00:21:34,450 factor VIII or factor IX concentrate, made from vast pools of human plasma. 253 00:21:34,750 --> 00:21:39,010 Now, thousands and thousands of donations would... would be pooled 254 00:21:39,010 --> 00:21:42,510 then they'd make batches of factor VIII or factor IX from this. The problem was 255 00:21:42,510 --> 00:21:48,870 if one or two of the donors had HIV or hepatitis C or hepatitis B, then the 256 00:21:48,870 --> 00:21:50,110 entire pool would be contaminated. 257 00:21:50,510 --> 00:21:53,870 It was basically a lottery of death. 258 00:21:57,190 --> 00:22:04,030 It was our normal injection, our normal 259 00:22:04,030 --> 00:22:05,170 routine injection. 260 00:22:06,170 --> 00:22:13,090 up to a few hits, went up that day, got the doses we were supposed, 261 00:22:13,330 --> 00:22:20,110 got the amounts we were supposed to get and Brendan got HIV, I didn't, 262 00:22:20,110 --> 00:22:26,290 I got Hepatitis C. We took the same dose on the same day and Brendan got the HIV 263 00:22:26,290 --> 00:22:27,710 and I didn't. 264 00:22:27,990 --> 00:22:33,150 And that's a bit tough and I still get the lump in my throat because 265 00:22:34,610 --> 00:22:40,570 what after happened then, it kind of determined a lot for our lives. 266 00:22:45,110 --> 00:22:50,630 To put it in perspective, in the 1980s, you probably had about 240 people with 267 00:22:50,630 --> 00:22:51,650 serohemophilia in Ireland. 268 00:22:51,930 --> 00:22:53,790 103 got HIV. 269 00:22:54,560 --> 00:22:57,940 to blood and blood products and the vast majority of those were also 270 00:22:57,940 --> 00:23:02,340 subsequently infected with hepatitis C. So it devastated the community and to 271 00:23:02,340 --> 00:23:06,720 the extent that if you look at all deaths of people with haemophilia in 272 00:23:06,720 --> 00:23:11,900 from 1983 to now, I think there were 124 deaths, 120 of those were due to the 273 00:23:11,900 --> 00:23:12,900 treatment. 274 00:23:21,740 --> 00:23:26,860 He was okay. He was getting migraines, and they were bad migraines, but he was 275 00:23:26,860 --> 00:23:30,600 still as big as ever. There was never any issue with him losing weight or 276 00:23:30,600 --> 00:23:34,280 anything like that. He was still going on holidays. He was still working. 277 00:23:35,420 --> 00:23:41,760 But then, all of a sudden, the migraines started progressing, getting worse and 278 00:23:41,760 --> 00:23:42,760 worse and worse. 279 00:23:43,740 --> 00:23:46,580 And we did not know. 280 00:23:46,860 --> 00:23:49,800 We had no idea what was going on. 281 00:23:50,170 --> 00:23:54,050 He went into hospital on a Friday. 282 00:23:54,410 --> 00:23:59,570 He was a good enough arm. And I was there, come on, get up, you're OK. I 283 00:23:59,570 --> 00:24:00,570 help. 284 00:24:02,130 --> 00:24:05,390 I remember Mum and Dad going up to him on a Wednesday. 285 00:24:08,050 --> 00:24:09,250 Things were not good. 286 00:24:10,770 --> 00:24:14,850 He was after deteriorating fast. 287 00:24:20,960 --> 00:24:25,740 And... I remember 288 00:24:25,740 --> 00:24:32,540 that it was a Friday morning and my parents coming home 289 00:24:32,540 --> 00:24:34,940 and my father just going like that. 290 00:24:35,660 --> 00:24:37,060 My mother was in bed. 291 00:24:39,500 --> 00:24:43,800 Susan ran down to her bedroom like it was just a mess. 292 00:24:44,340 --> 00:24:45,580 My brother had passed. 293 00:24:46,200 --> 00:24:47,800 And the thing was... 294 00:24:48,190 --> 00:24:54,910 we didn't know the reason behind this and that was his 295 00:24:54,910 --> 00:25:01,870 wish and you know something I respect that Brendan obviously he 296 00:25:01,870 --> 00:25:05,730 was so strong he took it on the chin and 297 00:25:05,730 --> 00:25:09,470 for 298 00:25:09,470 --> 00:25:14,990 that I said thank you 299 00:25:14,990 --> 00:25:18,350 but It must have been horrific. 300 00:25:21,430 --> 00:25:26,390 He didn't want to tell people with the stigma around it because people did not 301 00:25:26,390 --> 00:25:29,410 know the facts, the full story. 302 00:25:30,670 --> 00:25:34,850 That pressure on Brendan back then must have been enormous. 303 00:25:36,830 --> 00:25:40,090 When I remember starting getting ill with HIV and AIDS, 304 00:25:42,380 --> 00:25:45,700 There really was a lack of compassion and empathy throughout society. 305 00:25:46,100 --> 00:25:49,000 It was very, very difficult. These were dark, dark days. 306 00:25:49,420 --> 00:25:53,960 There were major deficits in the actions of doctors and hospitals and the entire 307 00:25:53,960 --> 00:25:57,500 health care system. There was a paternalistic culture. You didn't 308 00:25:57,500 --> 00:25:58,500 doctors. 309 00:25:59,020 --> 00:26:04,300 We were importing factor concentrates from the USA right from the late 70s. In 310 00:26:04,300 --> 00:26:09,100 looking back, in fact, at the files afterwards, I found notes from 1980, 311 00:26:09,260 --> 00:26:13,680 where they kept talking about self -sufficiency and we would start 312 00:26:13,680 --> 00:26:17,240 enough plasma to make factorate from Irish plasma and they talked about this 313 00:26:17,240 --> 00:26:20,100 talked about this and there were all sorts of issues of production and 314 00:26:20,100 --> 00:26:22,560 from the Department of Health and it never happened. 315 00:26:23,460 --> 00:26:28,360 We started making factor from Irish plasma in 1986, which was... 316 00:26:29,200 --> 00:26:32,860 far, far too late. At that stage, if they had started as they were supposed 317 00:26:32,860 --> 00:26:36,040 do in 1980, 81, a lot of the deaths might have been avoided. 318 00:26:37,360 --> 00:26:40,740 To this day, the effect it has on my mum and dad is unreal. 319 00:26:42,420 --> 00:26:43,500 Susan, the same. 320 00:26:45,060 --> 00:26:52,000 I'm... I take it one day at a time, but that was then. I'm 321 00:26:52,000 --> 00:26:55,600 after living my own life as best I can. 322 00:27:04,110 --> 00:27:08,170 Patients were told the problem would be investigated by the Findlay inquiry, but 323 00:27:08,170 --> 00:27:12,570 Haemophiliacs withdrew, saying that terms of reference didn't allow the 324 00:27:12,570 --> 00:27:14,330 to scrutinise their grievances. 325 00:27:14,590 --> 00:27:17,970 In the last 11 months, we've had three financial tribunals being set up and one 326 00:27:17,970 --> 00:27:21,830 of them completed, and yet this tribunal, which is dealing with people's 327 00:27:21,830 --> 00:27:25,670 and not with funds, has been very slow in getting anywhere. 328 00:27:27,090 --> 00:27:30,890 Haemophiliacs were assured there would be ongoing consultation about the terms 329 00:27:30,890 --> 00:27:32,510 of reference for the new inquiry. 330 00:27:37,360 --> 00:27:40,600 The recommendations of the Lindsay Tribunal were somewhat general, but we 331 00:27:40,600 --> 00:27:43,860 able to use those to put in place specific measures to make sure that this 332 00:27:43,860 --> 00:27:46,420 of tragedy could not happen to the community again. 333 00:27:51,300 --> 00:27:57,640 Let's concentrate on the future and what we can do to make sure that 334 00:27:57,640 --> 00:28:01,260 nothing like that ever happens again. 335 00:28:03,620 --> 00:28:05,860 And quite frankly, we won't accept. 336 00:28:06,620 --> 00:28:10,940 unsafe products now or in the future. We won't accept not being consulted. 337 00:28:11,180 --> 00:28:12,480 That's the change that's come. 338 00:28:18,180 --> 00:28:23,640 The monument that they're making at the moment is just a fitting tribute to them 339 00:28:23,640 --> 00:28:25,080 and I think it will be lovely. 340 00:28:39,470 --> 00:28:43,450 We were approached by Anasia and Michael to work on the project. 341 00:28:43,650 --> 00:28:49,590 What they perceived was the emblem for the AIDS and HIV, which I remember 342 00:28:49,590 --> 00:28:51,730 greatly through the 80s and the 90s. 343 00:28:54,750 --> 00:28:57,630 This looks much more black than this one. 344 00:28:57,850 --> 00:29:02,370 Yeah, but that's at the 80s stages and after about three or four years it will 345 00:29:02,370 --> 00:29:03,370 come down to that colour. 346 00:29:04,190 --> 00:29:05,190 Yeah, 347 00:29:06,670 --> 00:29:08,070 I think this one is more like this. 348 00:29:08,510 --> 00:29:12,170 We've a couple of weeks, probably the guts of about six to eight weeks in 349 00:29:12,170 --> 00:29:13,170 of us. 350 00:29:14,350 --> 00:29:17,890 And look, it's a privilege to work on it because it's a very sad story. 351 00:29:26,370 --> 00:29:27,370 Children, 352 00:29:32,290 --> 00:29:37,010 adults, they'll all want to feel it and touch, get that sensitivity of the piece 353 00:29:37,010 --> 00:29:41,350 out. As you can see, there's rust on my hand, but this will, after a while, that 354 00:29:41,350 --> 00:29:43,670 will seal itself and it will fade out with the cortex. 355 00:29:43,990 --> 00:29:48,870 But most importantly, you can see that I'm not afraid to rub it really hard so 356 00:29:48,870 --> 00:29:49,870 there's no sharp edges. 357 00:29:50,810 --> 00:29:54,470 This actually is the gateway into the private area. 358 00:29:54,690 --> 00:29:58,530 And it's an area where people who want a bit of solace and they just want to 359 00:29:58,530 --> 00:30:04,050 meditate, think about all the people, all the misfortunates and unfortunates 360 00:30:04,050 --> 00:30:07,130 that, you know, were affected by these horrible diseases. 361 00:30:07,760 --> 00:30:12,020 over the last two or three generations that just want to spend a bit of 362 00:30:12,020 --> 00:30:18,900 time in the park what can i say there was some 363 00:30:18,900 --> 00:30:22,760 horrific scenes all around the country with people that were badly affected by 364 00:30:22,760 --> 00:30:23,620 it people 365 00:30:23,620 --> 00:30:33,600 that 366 00:30:33,600 --> 00:30:38,350 you knew two years ago were find solid people and then you meet them and 367 00:30:38,350 --> 00:30:39,470 just a shadow of what they were. 368 00:30:41,870 --> 00:30:45,290 You could see the haunting look on them and you could see them wasting away. 369 00:30:47,890 --> 00:30:51,250 Just to see somebody waste away is haunting. 370 00:31:06,250 --> 00:31:10,930 It's just marking an era that was just like COVID will be marked in a few 371 00:31:11,050 --> 00:31:13,130 time. It's just to say that I lived through it. 372 00:31:16,270 --> 00:31:20,630 Last year, 60 ,000 people left the country of their birth to find the one 373 00:31:20,630 --> 00:31:23,630 that Ireland could not give them, work and a new life elsewhere. 374 00:31:24,230 --> 00:31:28,270 And once again, Ireland loses its best asset, its youth, who are voting with 375 00:31:28,270 --> 00:31:29,950 their feet and heading towards London. 376 00:31:41,770 --> 00:31:47,870 So I was having my gender reassignment surgery and it was compulsory to have an 377 00:31:47,870 --> 00:31:48,589 AIDS test. 378 00:31:48,590 --> 00:31:53,890 And I will use the word AIDS because of time and when it happened. 379 00:31:54,750 --> 00:32:00,730 I genuinely thought absolutely nothing of it because what I'd heard on the 380 00:32:00,730 --> 00:32:05,330 streets really was it either came from darkest Africa. These were the words 381 00:32:05,330 --> 00:32:06,350 we're using of mine. 382 00:32:06,630 --> 00:32:08,410 It either came from darkest Africa. 383 00:32:09,070 --> 00:32:14,230 or you had to be gay and into like really heavy rough trade as we would 384 00:32:14,230 --> 00:32:19,950 called it back in the day and i thought well that couldn't be me you know 385 00:32:19,950 --> 00:32:25,110 i come from ranelagh things like that don't happen to people like me 386 00:32:25,110 --> 00:32:36,230 the 387 00:32:36,230 --> 00:32:42,840 minute i was told by the doctor. He sat me down. He was very cold, very 388 00:32:42,840 --> 00:32:48,100 matter of fact, and said, you've tested positive for AIDS. 389 00:32:49,940 --> 00:32:54,280 When somebody tells you that, your world ends there and then. 390 00:32:55,120 --> 00:32:56,700 My whole world stopped. 391 00:32:58,360 --> 00:33:03,360 And I remember flirting out the only words I could think of to say were, can 392 00:33:03,360 --> 00:33:04,360 still have my surgery? 393 00:33:05,480 --> 00:33:08,160 And he went, Most definitely not. 394 00:33:08,640 --> 00:33:12,720 My world stopped that day. 395 00:33:18,440 --> 00:33:22,280 Something that I thought in my childhood was just something in my head. 396 00:33:24,680 --> 00:33:29,580 And because I'm Catholic, that it was probably evil, you know, to think that I 397 00:33:29,580 --> 00:33:30,580 could be a girl. 398 00:33:32,600 --> 00:33:37,540 And then when I find out that it's possible, and I go to every length to be 399 00:33:37,540 --> 00:33:44,200 person, me, the real me, to then feeling some form of 400 00:33:44,200 --> 00:33:49,360 freedom, or that freedom was on the way, and I would go and have my surgery. 401 00:33:50,860 --> 00:33:53,620 And then this fucking AIDS came in. 402 00:33:57,800 --> 00:33:59,680 AIDS ruined everything for me. 403 00:34:00,500 --> 00:34:02,360 So I'm fighting with my gender. 404 00:34:03,720 --> 00:34:05,240 And I'm fighting with my life. 405 00:34:09,620 --> 00:34:12,840 At this stage, I'm trying to change my name by depot. 406 00:34:14,300 --> 00:34:15,860 I can't have a bank account. 407 00:34:17,199 --> 00:34:18,440 Nobody would give me one. 408 00:34:21,659 --> 00:34:23,679 And I ended up on the streets of Soho. 409 00:34:25,780 --> 00:34:29,880 You just think to yourself, fuck this. 410 00:34:32,590 --> 00:34:35,650 Somebody rang me and said, have you ever thought about writing a book? I said, 411 00:34:35,830 --> 00:34:41,650 yeah. And I wrote the book, and I mentioned all the stuff I'd done, sex 412 00:34:41,989 --> 00:34:45,850 heroin, crack, running a brothel in Amsterdam. 413 00:34:47,510 --> 00:34:50,210 But there was no way I would put in HIV. 414 00:34:50,969 --> 00:34:56,230 Them reading about me running a brothel or being a heroin addict was, yeah, a 415 00:34:56,230 --> 00:34:58,070 job for even being a sex worker. 416 00:34:59,250 --> 00:35:01,690 But for kids, that's somewhere along the line. 417 00:35:02,920 --> 00:35:03,940 But not the HIV. 418 00:35:05,800 --> 00:35:07,660 I thought Ireland wouldn't forgive that. 419 00:35:21,820 --> 00:35:24,960 John, I'm over here with the lad spittering down at the minute on the 420 00:35:24,960 --> 00:35:28,940 documentary. Any chance to comb your hair down and come over here quickly 421 00:35:28,940 --> 00:35:29,940 the light's fast? 422 00:35:30,190 --> 00:35:32,670 They're looking for a really good looking guy to be in the snapshot. 423 00:35:33,850 --> 00:35:37,610 I'm happy with the lines, the way that they wanted the lines. You can see the 424 00:35:37,610 --> 00:35:38,610 vertical lines. 425 00:35:39,090 --> 00:35:41,850 I'm happy with that. You? Yeah, I'm really happy, Brian, yeah. 426 00:35:43,290 --> 00:35:46,750 All of that shape now, just tack everything in. Now we need to get that 427 00:35:46,750 --> 00:35:48,950 and get a twist on it. Yeah. 428 00:35:52,110 --> 00:35:56,150 Our T -shirt clear for that is due to open, I think, on the 3rd of December. 429 00:35:56,970 --> 00:36:00,830 So there's a mad scramble, obviously, to get it finished for that date. 430 00:36:03,850 --> 00:36:05,990 It has to be split now for transport. 431 00:36:07,050 --> 00:36:11,410 Ideally, I want to leave the loop on it, so I've got to see what way I've got to 432 00:36:11,410 --> 00:36:15,430 strengthen it and put it all together for transportation and splitting it. 433 00:36:17,070 --> 00:36:22,490 It's like lifting maybe 10 or 12 dozen eggs in one go because of its 434 00:36:22,490 --> 00:36:25,690 irregularity in size and shape. 435 00:36:26,299 --> 00:36:27,640 It's not a proven science. 436 00:36:28,060 --> 00:36:33,660 And at the end of the day, it'll be down to skill, knowledge, and a bit of good 437 00:36:33,660 --> 00:36:35,320 luck. A lot of good luck. 438 00:36:38,100 --> 00:36:41,080 No matter what happens, I have to get it across the world. 439 00:36:46,760 --> 00:36:50,020 The first medications that came out, I was on them, AZT. 440 00:36:51,960 --> 00:36:54,360 We used to, like, have a dark joke between ourselves. 441 00:36:55,120 --> 00:36:59,040 We used to say, if AIDS doesn't kill you, the meds will. 442 00:36:59,980 --> 00:37:04,280 Up until now, a drug known as AZT was reckoned to be the best treatment to 443 00:37:04,280 --> 00:37:05,300 down the spread of AIDS. 444 00:37:05,560 --> 00:37:09,440 It's not a cure, and one of the drawbacks is that it can kill healthy 445 00:37:09,440 --> 00:37:10,399 well as the virus. 446 00:37:10,400 --> 00:37:14,220 I don't want to get into an argument about AZT. What I want is a drug, any 447 00:37:14,240 --> 00:37:17,060 I don't care. A hundred drugs will be given that will stop AIDS. 448 00:37:18,480 --> 00:37:21,020 One colleague recalls a bucket. 449 00:37:21,420 --> 00:37:25,340 being put in the corners of rooms so people who are working here and 450 00:37:25,340 --> 00:37:29,680 the community would have a place to throw up because the impact of being on 451 00:37:29,680 --> 00:37:34,060 medication like AZT in the early years was really, really, really difficult. 452 00:37:34,580 --> 00:37:37,980 Millions of dollars have been spent on research, but is there any sign of a 453 00:37:37,980 --> 00:37:40,380 cure? There is no cure currently. 454 00:37:40,600 --> 00:37:44,240 Research teams in the USA have also released details about new drugs that 455 00:37:44,240 --> 00:37:47,840 stopped the virus making copies of its face. I feel very lucky and I feel 456 00:37:47,840 --> 00:37:49,860 blessed to still be here. 457 00:37:50,380 --> 00:37:55,960 and to be alive and to have lived long enough to be able to experience the 458 00:37:55,960 --> 00:37:57,380 advancement in medication. 459 00:37:58,000 --> 00:38:02,900 You know, I have lost a lot of people in my life. 460 00:38:04,340 --> 00:38:06,400 Yeah, I'm one of the lucky ones. 461 00:38:12,400 --> 00:38:17,040 Nowadays, a person can manage the condition with as little as one pill a 462 00:38:17,120 --> 00:38:22,330 and that... medication will ensure that they will reach an undetectable viral 463 00:38:22,330 --> 00:38:28,270 load. So essentially the medication will reduce the amount of HIV in a person's 464 00:38:28,270 --> 00:38:30,890 system whereby it becomes undetectable. 465 00:38:31,490 --> 00:38:35,310 It's exceptionally important that people understand what it means to be 466 00:38:35,310 --> 00:38:41,250 undetectable. Studies have shown that if you are undetectable you cannot pass on 467 00:38:41,250 --> 00:38:44,910 HIV through sex to a sexual partner. It cannot be done. 468 00:38:45,610 --> 00:38:49,110 Thanks for taking the call. I just wanted to come back to you on the 469 00:38:49,110 --> 00:38:51,150 the mobile pet and van in 2024. 470 00:38:52,670 --> 00:38:56,830 HIV has changed because the technology and the medication have changed. And a 471 00:38:56,830 --> 00:39:00,410 person now living with HIV can live a full and healthy life. 472 00:39:05,750 --> 00:39:10,970 For a large majority of people living with HIV, we tend to be healthier than 473 00:39:10,970 --> 00:39:13,630 people in the same category who are HIV negative. 474 00:39:16,150 --> 00:39:19,150 Why? Because we undergo routine checks. 475 00:39:20,350 --> 00:39:23,890 Sometimes for the wrong reason, but we end up doing it, taking more care of 476 00:39:23,890 --> 00:39:30,270 we eat and how we go on in life. So my point is that living with HIV, the life 477 00:39:30,270 --> 00:39:34,950 expectancy is exactly the same or more than a person in the same group, in the 478 00:39:34,950 --> 00:39:35,950 same category. 479 00:39:41,630 --> 00:39:44,750 Younger people that have HIV nowadays, they didn't. 480 00:39:45,080 --> 00:39:48,260 go through this drama and pain of the 90s and stuff like this, for them it's 481 00:39:48,260 --> 00:39:49,260 different. 482 00:39:50,180 --> 00:39:52,320 And it's a completely different story. 483 00:39:55,040 --> 00:39:58,700 The stories of HIV now are stories of people living with HIV, not dying with 484 00:39:58,700 --> 00:40:00,180 HIV, so we need to change the narrative. 485 00:40:05,180 --> 00:40:11,120 The only problem is societal, the only problem is stigma, the only problem is 486 00:40:11,120 --> 00:40:14,280 misinformation, lack of information. 487 00:40:14,810 --> 00:40:16,230 So that's the only problem. 488 00:40:17,690 --> 00:40:21,390 But even removing the virus from somebody's body will not fix society if 489 00:40:21,390 --> 00:40:22,450 don't focus on education. 490 00:40:25,850 --> 00:40:31,230 My house was egged and I was told to go back to Dublin, back to where I 491 00:40:31,230 --> 00:40:34,150 belonged, and my children were spat at. 492 00:40:35,790 --> 00:40:42,450 I felt that the only way that I was going to do this was to face this head 493 00:40:42,450 --> 00:40:47,040 on. and I became involved in education and awareness. 494 00:40:48,980 --> 00:40:54,380 People started to understand what it was like living with stigma. 495 00:40:55,660 --> 00:41:02,080 You know, you think about it, it's the perfect mix of sex shaming, body 496 00:41:02,080 --> 00:41:06,800 transgressiveness, cultural transgressiveness, criminality, taboo. 497 00:41:07,950 --> 00:41:10,790 There was a lot of silence and stigma. 498 00:41:11,070 --> 00:41:16,650 So, yeah, it wasn't really discussed until somebody famous, they became 499 00:41:16,650 --> 00:41:17,650 infected. 500 00:41:17,970 --> 00:41:18,970 LAUGHTER 501 00:41:37,920 --> 00:41:41,000 So I've been living with that for the last four years. 502 00:41:41,240 --> 00:41:44,840 So this is the big mystery of the mysterious illness that has been written 503 00:41:44,840 --> 00:41:45,840 about. 504 00:41:48,540 --> 00:41:52,980 There were activists at the time, like Tom Ginty, the Dice Man, who people will 505 00:41:52,980 --> 00:41:55,460 remember as a street artist in Dublin. 506 00:41:55,680 --> 00:42:00,040 And this was somebody who was living with HIV, who used the platform that 507 00:42:00,040 --> 00:42:02,320 had to draw attention to the injustice. 508 00:42:02,840 --> 00:42:07,640 that existed around HIV and AIDS at the time, whether it was lack of action, 509 00:42:07,760 --> 00:42:11,700 lack of political will to put forward on treatment, to put forward on research, 510 00:42:12,040 --> 00:42:15,580 or to support the community of people living with HIV and AIDS. 511 00:43:04,110 --> 00:43:10,710 It's quite extraordinary how the government of the day dragged its feet 512 00:43:10,710 --> 00:43:12,510 intervening in this horror. 513 00:43:15,190 --> 00:43:21,030 When I look at specific examples of how the government of the day let us down, I 514 00:43:21,030 --> 00:43:26,630 have to temper my anger at how the government failed us. 515 00:43:28,050 --> 00:43:31,650 The government failed us by, first of all, censoring access to information. 516 00:43:32,430 --> 00:43:35,030 being slow on funding and access to information. 517 00:43:35,430 --> 00:43:39,210 But the disease has been in this country for four years, and yet nothing's been 518 00:43:39,210 --> 00:43:41,350 done. The HEB haven't yet produced a leaflet. 519 00:43:41,550 --> 00:43:45,690 Well, the HEB haven't produced a leaflet on AIDS because it's very difficult to 520 00:43:45,690 --> 00:43:48,050 know exactly what kind of a leaflet you can produce. 521 00:43:48,370 --> 00:43:51,310 As far as I know from the people at Gay Health Action, there's only been about 522 00:43:51,310 --> 00:43:56,670 £700 allocated to help out with this pamphlet, and that pretty grudgingly. 523 00:43:57,090 --> 00:43:59,090 So, you know, that's not going to do it. 524 00:43:59,400 --> 00:44:03,200 For people with AIDS and their families, Cordia provides support and friendship. 525 00:44:03,600 --> 00:44:08,080 Cordia has received no state funding to date. It's run on money raised through 526 00:44:08,080 --> 00:44:09,640 collections and private donations. 527 00:44:10,140 --> 00:44:13,880 Gay behaviour is still criminal. What is to be done? Does it not require a great 528 00:44:13,880 --> 00:44:15,520 societal change in attitude? 529 00:44:15,820 --> 00:44:17,660 Like, I am a criminal in this society. 530 00:44:18,180 --> 00:44:22,660 Slow in addressing the decriminalisation of condoms. 531 00:44:23,310 --> 00:44:26,690 The action was brought against the Irish Family Planning Association for selling 532 00:44:26,690 --> 00:44:29,610 a condom at the Virgin Mega store on January the 10th last. 533 00:44:29,890 --> 00:44:34,270 To actually discourage the use of condoms is possibly going as far as 534 00:44:34,270 --> 00:44:35,270 some people to death. 535 00:44:35,430 --> 00:44:40,010 At least 50 % of pharmacists will not stop them and many young people are not 536 00:44:40,010 --> 00:44:41,490 clear on how to use them safely. 537 00:44:41,710 --> 00:44:44,510 The best antidote to AIDS is virtue. 538 00:44:44,930 --> 00:44:51,690 We were clobbered with AIDS in 1981 and condoms were 539 00:44:51,690 --> 00:44:54,760 only... Fully made legal a decade later. 540 00:44:57,940 --> 00:44:58,940 Excuse me? 541 00:45:02,180 --> 00:45:04,120 That is the dreaded object. 542 00:45:04,340 --> 00:45:06,180 There it is. That's what it looks like. Out of the thing. 543 00:45:06,740 --> 00:45:10,920 People falling in a swoon all over Ireland at this moment, looking at that. 544 00:45:11,240 --> 00:45:15,480 Okay. If you'll pardon the expression, Roisin, would you roll it there, please? 545 00:45:18,120 --> 00:45:22,400 In 1988, we did a very complete survey of all our members with HIV and we asked 546 00:45:22,400 --> 00:45:24,020 them what their needs were. Their needs were apparent. 547 00:45:24,900 --> 00:45:29,140 So we sent in a submission to government, which was ignored for 548 00:45:29,400 --> 00:45:32,680 So we had to go the media and political route to try and raise awareness of 549 00:45:32,680 --> 00:45:37,000 this. And that subsequently led to a debate in the Dáil after a private 550 00:45:37,000 --> 00:45:38,260 bill and the government were defeated. 551 00:45:38,500 --> 00:45:42,040 And that led to an establishment of a trust fund. So we learned a lesson 552 00:45:42,460 --> 00:45:45,960 You're not going to get what you want quietly and just by sending in a 553 00:45:45,960 --> 00:45:50,120 reasonable case. And if you don't put on pressure, you just fall into a long 554 00:45:50,120 --> 00:45:52,160 list of other issues that they're trying not to deal with. 555 00:45:55,240 --> 00:45:58,320 There was a lot of barbarism, there was a lot of cruelty, there was a lot of 556 00:45:58,320 --> 00:45:59,320 exclusion. 557 00:46:01,080 --> 00:46:06,160 But there were also extraordinary gestures of compassion and generosity. 558 00:46:07,540 --> 00:46:10,680 There was bravery, there was resourcefulness. 559 00:46:12,040 --> 00:46:15,800 AIDS is a lonely illness, whether you have the full -blown version or you've 560 00:46:15,800 --> 00:46:17,500 been diagnosed HIV positive. 561 00:46:18,120 --> 00:46:22,880 Those who've contacted the virus speak of isolation and discrimination, and 562 00:46:22,880 --> 00:46:25,780 find it difficult to share their suffering with family and friends. 563 00:46:26,720 --> 00:46:30,140 Cordia provides support and friendship for these people by means of a 564 00:46:30,140 --> 00:46:34,440 befriending system based on volunteers and those who wish to be befriended. 565 00:46:36,920 --> 00:46:41,180 A welter of voluntary organisations have sprung up to give comfort and 566 00:46:41,180 --> 00:46:43,260 counselling to AIDS sufferers. The 567 00:46:43,260 --> 00:46:50,200 criminalisation of 568 00:46:50,200 --> 00:46:54,900 same -sex relationships and a ban on the sale of condoms in Ireland paralysed 569 00:46:54,900 --> 00:46:56,440 any meaningful response from the state. 570 00:46:56,920 --> 00:47:01,460 Community groups, activists and healthcare workers stepped in to provide 571 00:47:01,460 --> 00:47:02,460 information and care. 572 00:47:05,610 --> 00:47:11,270 And so we're here today on a chilly December afternoon, experiencing the 573 00:47:11,270 --> 00:47:13,410 people's gardens in its winter shades. 574 00:47:14,270 --> 00:47:20,390 But as the seasons unfold, Embrace Loop will be visited on warmer days, and it's 575 00:47:20,390 --> 00:47:25,130 my belief that this monument will become an inclusive space for people to 576 00:47:25,130 --> 00:47:27,830 gather, to reflect, and to remember. 577 00:47:43,210 --> 00:47:48,250 nearly 4 ,000 new HIV infections are transmitted every day. That's yesterday, 578 00:47:48,450 --> 00:47:51,290 today, tomorrow, globally every day. 579 00:47:51,590 --> 00:47:55,930 Just over 2 .5 new cases diagnosed now every day in Ireland. 580 00:47:57,110 --> 00:47:58,270 It's too many. 581 00:48:12,810 --> 00:48:19,070 Let's concentrate on the future and what we can do to make sure that 582 00:48:19,070 --> 00:48:22,750 nothing like that ever happens again. 583 00:48:47,880 --> 00:48:53,160 Right throughout the unveiling ceremony, it felt like finally we've arrived at 584 00:48:53,160 --> 00:48:58,580 the point where Irish society is allowing us to grieve. Irish society is 585 00:48:58,580 --> 00:49:05,580 allowing us to anchor some of the sadness and the anger and the grief that 586 00:49:05,580 --> 00:49:08,600 we've carried with us over the years and make some sense of it. 52101

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